Title Sub-title Centre Léa-Roback Marie-France Raynault October 31th 2012 1/39 MEASURING SOCIAL INEQUALITIES IN HEALTH: GOING BEYOND DESCRIPTION TO SUPPORT INTERVENTION Centre Léa-Roback Marie-France Raynault October 31th 2012 2/39 RESEARCH OBJECTIVES Design a strategy for surveillance of social inequalities in health in Québec Propose a set of indicators to measure social inequalities in health Centre Léa-Roback Marie-France Raynault October 31th 2012 3/39 SPECIFIC OBJECTIVES • Define a conceptual framework • Identify the attributes of an SIH surveillance strategy (work of the WHO Commission on Social Determinants of Health) • Identify relevant indicators • Produce indicator scoreboard prototypes Centre Léa-Roback Marie-France Raynault October 31th 2012 4/39 Conceptual framework Three approaches • Structural • Lifecourse • Access to resources (economic, geographic, regulations, ...) Centre Léa-Roback Marie-France Raynault October 31th 2012 5/39 1) Structural approach • Point out the fundamental causes of SIH, which translates inequalities (income, wealth, education, profession) into health disparities, regardless of proximal cause of disease Centre Léa-Roback Marie-France Raynault October 31th 2012 6/39 1) Structural approach – Mackenbach model Centre Léa-Roback Marie-France Raynault October 31th 2012 7/39 Lifecourse approach – Health is determined by a combination of life circumstances – SIS take root in the conditions during the first years of life, when health gaps widen – Far-reaching effects impeding their chances of avoiding SIH determinants (e.g. low birth weight, chronic stress in early childhood, workplace accidents early on in work life) Centre Léa-Roback Marie-France Raynault October 31th 2012 8/39 Les ISS au quotidien Les plus riches Les plus pauvres Naissance Maturité scolaire Décrochage scolaire Insersion professionnelle Niveau de revenu Milieu de vie État de santé Centre Léa-Roback Marie-France Raynault October 31th 2012 9/39 Espérance de vie 3) Access to resource approach – Living environments—neighbourhood, region—offer resources favourable or unfavourable to health (air quality, food safety, active transportation, parks, tobacco products sold to minors, video lottery terminals) – Economic regulations also govern access to resources. – Measure the level of access to resources Centre Léa-Roback Marie-France Raynault October 31th 2012 10/39 SIH surveillance – Seven health areas 1)Mental health 2)Occupational health 3)Child development 4) Ethnicity 5) Infectious diseases 6)Access to primary care services 7) Chronic diseases, lifestyle habits Centre Léa-Roback Marie-France Raynault October 31th 2012 11/39 Seven research teams 1)Mental health: Louise Fournier (INSPQ) 2)Occupational health: Michel Rossignol (DSP) 3)Child development: Sylvana Côté (UdeM) 4)Ethnicity Alex Battaglini (CSSS) 5)Infectious diseases: Richard Massé (ÉSP) 6)Access to primary care services: J-F Lévesque (INSPQ) 7) Chronic diseases, lifestyle habits: Lise Gauvin (UdeM) Centre Léa-Roback Marie-France Raynault October 31th 2012 12/39 Research teams (con't) • Socioeconomic inequalities: Jean-Michel Cousineau • Ethics: Michèle Stanton-Jean • Steering committee – Marie-France Raynault – – – – Richard Massé Jérôme Martinez Lise Gauvin Dominique Côté Centre Léa-Roback Marie-France Raynault October 31th 2012 13/39 CHOICE OF INDICATORS Each team identified indicators that could measure SIH in its area and produced a report that included • what's important to know about SIH in relation to the theme • an annotated selection of the 10 best indicators • the operationalization of the conceptual framework with these indicators • an argument in favour of three key indicators Centre Léa-Roback Marie-France Raynault October 31th 2012 14/39 CHOICE OF INDICATORS • The teams also filled out sheets for each of the 10 selected indicators in their areas • Sample sheets: Centre Léa-Roback Marie-France Raynault October 31th 2012 15/39 Indicator: Having a family physician, by income quintiles or material and social deprivation Population/Subpopulation concerned The population is stratified by income quintiles or material and social deprivation Definition of the indicator or calculation used HCU_Q01AA Do you have a family doctor? 1) Yes 2 No DK, R HCU_Q01AB Why don't you have a family doctor? INTERVIEWER: Choose all answers that are appropriate. 1 There are none in the region 2 None in the region are taking new patients 3 Haven't tried to get one 4 Had one who left or retired 5 Other – Specify DK, R Centre Léa-Roback Marie-France Raynault October 31th 2012 16/39 Reasons for choosing Indicators related to the notion of care and services this indicator coverage. This indicator is linked wit the notion of having a regular source of care, which is known to facilitate access to care and obtaining appropriate care. Limits of the indicator Data sources, if they already exist: -geographical scale -frequency of data collection -data limitations Indicator originating from survey data and therefore often based on small sample sizes that limit the possibility of conducting quintile analyses or small geographical unit analyses. Indicator can be biased depending on a person's understanding of the notion of family doctor. Multiple survey questionnaires. Data compiled cyclically in the Canadian Community Health Survey. Available in Canada for provinces and for denselypopulated regions. Data compiled every two years. Centre Léa-Roback Marie-France Raynault October 31th 2012 17/39 How is the indicator The number of physicians available and the possibility of consistent with having a family doctor are linked to government policies "Mackenbach's and choices. structural approach"* (if it is)? How is the indicator Nil consistent with the "lifecourse approach"* (if it is)? How is the indicator Overlaps the notion of healthcare coverage, and reasons consistent with the for not having a family doctor are linked to geographical "resource availability of services. regulations approach"* (if it is)? References Statistics Canada Levesque, Pineault et al. 2007 Centre Léa-Roback Marie-France Raynault October 31th 2012 18/39 Choice of indicators • The steering committee then examined the key indicators proposed, to ensure balance and completeness. • Same exercise for socioeconomic indicators, starting from the ones used by the DSP to monitor the state of health of Montrealers (census, SLID and Emploi et Solidarité sociale Québec) Centre Léa-Roback Marie-France Raynault October 31th 2012 19/39 Selected indicators 1. Mental health 1) Psychological distress 2) Access to psychotherapy 3) Stigmatization due to mental health problems Centre Léa-Roback Marie-France Raynault October 31th 2012 20/39 1) Psychological distress – rationale • • • Important aspect of mental health; gives a good idea of a population's state of mental health and of the impacts of economic, political and social swings. The rate of distress in Québec is high (especially among women, young people and low-income individuals). A number of interventions are possible to reduce the gaps between different groups (see CIHI's latest report) Centre Léa-Roback Marie-France Raynault October 31th 2012 21/39 1) Psychological distress • Definition or calculation used: Proportion of the population aged 15 and over showing high levels on the psychological distress scale (Kessler) • Already compiled – Source: Canadian Community Health Survey (Stats Can) Centre Léa-Roback Marie-France Raynault October 31th 2012 22/39 2) Access to psychotherapy – rationale: • Due to a lack of a sufficient number of professionals in the public network, many people cannot benefit from affordable services when difficult situations arise. • Individuals who cannot pay for privately delivered services are affected the most. • The consequences of not treating psychological issues can be disastrous. • This indicator reflects broad inequality and must lead to the mobilization of many stakeholders. Centre Léa-Roback Marie-France Raynault October 31th 2012 23/39 2) Access to psychotherapy • Definition or calculation used: Proportion of the population aged 15 and over who benefit from psychotherapy for depression. • Indicator to build: The Canadian Community Health Survey (Stats Can) provides data consultations with a professional, but does not indicate if a visit resulted in a diagnosis of depression or if psychotherapy ensued. Centre Léa-Roback Marie-France Raynault October 31th 2012 24/39 2. Occupational health 1) Absence from work > 90 days due to low back pain and musculoskeletel disorders 2) Businesses"outside the standards" for chemical contaminants 3) Incidence of carpal tunnel syndrome Centre Léa-Roback Marie-France Raynault October 31th 2012 25/39 3. Child development 1) School readiness 2) Level of development at age 2 3) Children 0 to 5 years old in low-income families 4) Availability of childcare services in facilities 5) Breastfeeding for the first six months Centre Léa-Roback Marie-France Raynault October 31th 2012 26/39 4. Infectious diseases 1) Children's vaccine coverage against influenza, pneumococcus and some vaccinepreventable diseases 2) Living environments at increased risk for infectious diseases: a) Overcrowded housing b) Weak social support 3) Populations vulnerable to ID Centre Léa-Roback Marie-France Raynault October 31th 2012 27/39 OTHER INDICATORS 5. Access to care • Having a regular family physician • Unmet health services needs • Health services avoided because of costs Centre Léa-Roback Marie-France Raynault October 31th 2012 28/39 6. Chronic diseases and prevention • • • Smoking rate Diabetes rate based on glycohemoglobin Road injuries among pedestrians, cyclists and drivers of motor vehicles 7. Ethnicity • • • • • Knowledge of languages spoken Social disqualification Immigration status Duration residing Ethnic origin Centre Léa-Roback Marie-France Raynault October 31th 2012 29/39 SOCIOECONOMIC INDICATORS • Distribution of the population by income range • Proportion of the population with low income using the Market Basket Measure (MBM)*, before and after taxes • Proportion of families living below the low income cutoff • Average/median income of families, households and individuals • Proportion of the population receiving employment insurance Centre Léa-Roback Marie-France Raynault October 31th 2012 30/39 SOCIOECONOMIC INDICATORS • Employment rate (the unemployment rate is more volatile) • Proportion of the population by highest level of education completed • Proportion of private households by household type • Proportion of the population using 30% to 50% of their income for housing (affordability ratio) • Number of people waiting for social housing Centre Léa-Roback Marie-France Raynault October 31th 2012 31/39 SOCIOECONOMIC INDICATORS • Interquintile income ratios – 5th quintile/3rd quintile – 3rd quintile/1st quintile – Interesting to track socioeconomic inequalities (2nd and 4th quintiles more difficult to interpret) Centre Léa-Roback Marie-France Raynault October 31th 2012 32/39 COMPLEMENTARY INDICATORS • Overall literacy • Health literacy • Food insecurity Centre Léa-Roback Marie-France Raynault October 31th 2012 33/39 Conceptual model of public good Centre Léa-Roback Marie-France Raynault October 31th 2012 34/39 Principles of the Universal Declaration on Bioethics and Human Rights • Human dignity and human rights • Benefit and harm • Autonomy and individual responsibility • Consent • Persons without the capacity to consent (new) • Respect for human vulnerability and personal integrity •Privacy and confidentiality • Equality, justice and equity •Non-discrimination and non-stigmatization • Respect for cultural diversity and pluralism • Solidarity and cooperation • Social responsibility and health (health has been added) • Sharing of benefits • Protecting future generations (new) • Protection of the environment, the biosphere and biodiversity Centre Léa-Roback Marie-France Raynault October 31th 2012 35/39 Examples of articulating principles with the nature of the indicators Principles or values Human dignity and human rights Respect and autonomy of individuals Benefit and harm Indicators Justice and equity that allow everyone to be treated justly but also take into account various clienteles' differences Transparency Understandable Social responsibility that allows to increase the state's and citizens' social responsibility Privacy and confidentiality that respect private life that do not stigmatize that do not hamper the autonomy of others and enable respect whose beneficial effects for the population prevail over harmful ones Centre Léa-Roback Marie-France Raynault October 31th 2012 36/39 Process – Ethical framework • Each selected indicator has been examined in terms of ethical principles and values targeted by the surveillance strategy • Ethical issues specific to each of them will be detailed in the surveillance strategy Centre Léa-Roback Marie-France Raynault October 31th 2012 37/39 EXAMINATION OF INDICATORS WILL THEY ENABLE US TO MOVE CLOSER TO THE DECLARATION'S PRINCIPLES? • Each indicator has been associated with a principle, which will make it easier to respect – For example, in occupational health, business who do not meet the standards invoke social responsibility; – Absence of MSD > 90 days raises the question of non-stigmatization toward those who are absent for a long period of time as well as the issue of equity (future employability undermined) Centre Léa-Roback Marie-France Raynault October 31th 2012 38/39 EXAMINATION OF INDICATORS DO THEY RESPECT THESE ETHICAL PRINCIPLES... 1. Before data collection – in the way they were designed? 2. During data collection? 3. Post data collection? Centre Léa-Roback Marie-France Raynault October 31th 2012 39/39 Next steps • • • • • • Final formatting Development of consultation questionnaire Meetings with CSSS Integration of comments Final report to the Quebec Health Department Conference and publications Centre Léa-Roback Marie-France Raynault October 31th 2012 40/39