Economic Accessibilty to Healthcare: Is it an Issue in our Publicly-Funded Health System? Jeannie Haggerty, PhD St. Mary’s Research Centre McGill Research Chair in Family & Community Medicine at St. Mary’s Accessibility in Canada Commonwealth and Statistics Canada surveys indicate that healthcare accessibility has declined in Canada We now rank lowest among peer countries for primary care accessibility Improving accessibility has been a major policy focus in Canada; focus on wait times. Economic accessibility is off the radar Canada Health Act National principles for public health care insurance plans to qualify for full federal cash transfers for health Public administration, universality, comprehensiveness, portability, accessibility Accessibility: Insured persons must have reasonable and uniform access to services, free of financial and other barriers. Accessibility: Definition Characteristics of health systems that impede or promote the utilisation of services (Donabedian). Characteristics of geographic availability, organisational processes, costs and acceptability that facilitate people’s capacity to reach and use services (Thomas & Penchansky) Geographic accessibility Organisatonal accessibility Economic accessibility Cultural accessibility Economic accessibility The extent to which direct and indirect costs represent barriers for people to reach and use health services that they need. Accessibility: core attribute of primary health care First Contact Accessibility: The ease with which a person can obtain needed care (including advice and support) from the practitioner of choice within a time frame appropriate to the urgency of the problem Accessibility-accommodation: The way primary healthcare resources are organized to accommodate a wide range of patients’ abilities to contact healthcare providers and reach healthcare services (telephone services, flexible appointment systems, hours of operation, and walk-in periods). Accessibility: a counter-intuitive finding 2002 multilevel survey of primary health care practice, Quebec 100 sites, randomly selected: data from clinics, physicians, patients Stratified geographically: metropolitan, suburban, rural, remote Stratified by pratice type: community health clinic, group clinics, solo practice Haggerty, Pineault, Gauthier et al, Multi-level PHC survey, 2002-2004, CHSRF funded Accessibility: a counter-intuitive finding Patient-reported accessibility improves with increasing rurality First contact – higher confidence in being seen within one day Accommodation – better ratings of location, opening hours, wait times, ability to speak to doctor by phone Yet: longer distances, fewer local alternatives, restricted physician availability. Explanatory hypotheses: A programme of research The way rural services are organized makes them more accessible Types of organizational models Professional practices Measurement artefact Expectations are lower in rural areas Tools not sensitive to rural barriers Haggerty & Gauthier et al, Accessibility to healtcare for rural and remote communities, 2004-2009, CHSRF funded Rural-Urban Measures of Accessibility: Objectives To identify factors in rural areas that facilitate or impede initiation of firstcontact care, ongoing primary care, and follow up of referrals to secondary care To develop and validate additional measurement items of primary and secondary accessibility that are not addressed in existing questionnaires. Haggerty, Levesque, Roberge. Accessibility Measures, 2005-2010, CHSRF funded Rural-Urban Measures of Accessibility Sequential mixed-method study 1. Qualitative exploration of urban and rural care-seeking trajectories 2. Development and quantitative validation of new measures 3. Two administrations of measures to random sample from urban and rural locations Qualitative exploration of access barriers and facilitators in rural and urban contexts : Phase 1, 2004, Qualitative study To identify factors in rural areas that facilitate or impede initiation of first-contact care, follow up of referrals to secondary care, and ongoing primary care Qualitative exploration Focus groups Geographic contexts: two types of urban, two types of rural Metropolitan (4), towns (2) Rural agricultural (2), scattered villages (3) Interview schedule: focus on typical care trajectory and responses to barriers; probing for geographic, accommodation, cost and cultural elements Results: Major barriers/facilitators to access in typical care-seeking trajectory 1. 2. 3. 4. Regular source of care Organizational accommodation Geographic access Personal resources (economic, educational) Consequences of barriers to care Why is observed accessibiliy better in rural areas? Social networks in rural areas result in better organizational accommodation and flexibility compared to urban areas Long wait for appointment is the norm, as is individual accommodation BUT: processes are not formalized, so not everyone has equal access. Socio-economic status affects organizational and geographic access Organizational Accommodation: Information about the options Role of practice secretary: assess urgency, suggest care alternatives, give health advice, facilitate Personal information agency : individual’s capacity to obtain information by own means; independent facilitator for access Organizational flexibility Secretary accommodates individual requests to make shorter waits for care: squeeze in between appointments, telephone consultation Social network matters Geographic accessibility: getting to care Expressed in travel time and local availability of alternatives Perception of distance as a barrier depends on: Personal mobility Personal access to transportation Type of problem Acceptability of provider Other opportunity costs Not usually an issue in rural areas – except for those with few personal resources Conclusion: Low socio-economic status as generic barrier to health services (social exclusion) Low personal information agency Lack of personal transport makes geographic distance a barrier Restricted social network reduces organizational accommodation Indirect and direct costs impede care Conclusion Persons at risk of social exclusion are also at risk of poor accessibility In Canada, little exploration of economic barriers to access Development and quantitative validation of new measures: To develop and validate additional measurement items of geographic, organizational and economic accessibility that are not addressed in existing questionnaires. Explore the prevalence of economic barriers to care Development of new measures Codes for barriers or facilitators from qualitative analysis developed into quantitative « items » Consequences, indicators of problem access: nuissance, emergency room, unmet needs, problem aggravation Telephone administration to 750 respondents in metropolitan rural (Longueuil), agricultural (Montérégie), and remote areas (Côte-Nord) Validation: analysis Exclusion of bad items (>5% missing, no variation). Exploratory factor analysis to identify constructs and sub-scales Predictive modelling against consequences: nuissance, unmet needs, emergency room use, problem deterioration Item response modelling to identify discriminatory capacity of items and differential item functioning by rural-urban Quantitative component: test of new subscales, new instrument Refinements made in light of analysis and new cognitive testing Self-administered format Mailed to 368 of previous respondents who accepted to be contacted (86% responded) Results Accessibility Measure Indicators of problem access Can be divided into minor (nuissance) and major problems Provide a good portrait of health care accessibility Nuissance Use of emergency room for system reasons Unmet needs for care Problem aggravation due to delay Organizational accommodation: Description New items (more discriminating for rural) Ease of getting information to solve health problems Ease of contacting the clinic by phone Ease of getting medical advice by phone Ease of getting shorter-than-usual wait for appointment for urgent care Available structures for rapid care Rating of usual wait for appointment Ease of talking to doctor by phone Each unit increase in accessibility associated with decreased likelihood of Nuissance (OR=0.47) Unmet needs (OR=0.34) Problem aggravation (OR=0.40) Effect stronger in rural areas Geographic accessibility: Description 5-items Perceived proximity of clinic Ease of getting there for urgent care and for routine care, Travel time Number of local alternatives Distance to clinic cited as reason for ER use (6%) and unmet need (10%) Each unit increase in accessibility, decreased likelihood of : Effects stronger Nuissance (OR=0.42) Unmet need (OR=0.44) in the poor Prevalence of Economic Barriers Payment for services (labs, exams or not covered by public insurance 20% Usually have revenue loss when getting healthcare 22% Usually have significant indirect costs when getting healthcare 24% Economic accessibility: Frequency cost-related unmet needs or difficulty (% ever among all vs. lowincome) Don’t take prescribed meds Don’t do lab tests or exams Don’t get uninsured services Difficulty from income loss Difficuty from indirect costs Items scored dichotomously (never vs. ever) and summed to indicate number of problems (range 0 to 5) Economic Accessibility: Each unit increase in reported cost problem (poor economic accessibility) associated with increased likelihood of: Nuissance: OR=1.8 (1.5 ER use: OR=1.9 (2.4 Unmet neet: OR=2.8 (3.3 Problem aggravation: OR=3.4 in poor) in poor) in poor) (5.9 in poor) Examination of economic accessibility in an independent sample Cohort of approximately 2500 adults in four Quebec local health networks, 2010. Compare poor and non-poor Haggerty & Fortin, At the interface of the community and the Health system, 2008-2013, CIHR Measure of self-perceived financial status What word best describes your current financial situation Very comfortable Comfortable Tight Very tight Poor « poor » Bottom 25% Health Status of poor vs. Nonpoor Poor Number of chronic illnesses Non-poor 3.5 2.5 56% 44% Physical component 44 49 Mental component 45 50 3+ chronic illness Functional health status Prevalence of cost related unmet needs: poor vs non-poor Experienced difficulties in access because of costs Don’t take prescribed meds Don’t do lab tests or exams Don’t get uninsured services Difficulty from income loss Difficulty from indirect costs Poor Non-poor 18% 5% 10% 4% 25% 13% 21% 8% 13% 3% 80% of poor report at least one vs. 20% of non-poor Indicators of problem access: Nuissance Did you have to make several attempts to get the healthcare you needed? Poor Non-poor Never 39% 47% Rarely 47% 43% Sometimes/often 14% 10% But poor experienced lower organizational accessibility. Indicators of problem access: Use of Emergency room in last year 32% overall 16% for system-related reasons only 20% poor vs. 15% non-poor Top reasons (rank order) No family physician or own not available Clinic not open when I could go Difficult to get appointment or wait too long To get tests or see specialist within reasonable time Indicators of problem access: Unmet needs for care Needed healthcare but didn’t get it 21% overall 17% poor vs 14% non-poor Top reasons (rank order) Wait for appointment too long Difficult to make appointment Regular doctor or clinic not available Clinic hours not convenient Indicators of problem access: Problem aggravation Health problem became more serious because it took a long time to get healthcare 9% overall 15% poor vs. 7% non-poor 30% with at least one major access problem (ER use, unmet need, problem aggravation) 37% poor vs. 28% non-poor Findings are coherent with other studies Commonwealth Survey 2001 Difficulty getting care off-hours, 19% poor vs. 13% non-poor Difficulty seeing specialist 20% poor vs. 15% non-poor Did not fill a prescription 22% poor vs. 7% nonpoor Did not get needed dental 42% poor vs. 15% non-poor Situation may be better in Quebec for some issues Conclusion Accessibility to healthcare has declined in Canada Our study confirms this Policy focus is on organizational accessibility BUT important inequities in access persist The poor get systematically poorer access to health services Accessibility: the Canada Health Act In Quebec’s public insurance system, poor people face more financial, geographic and organizational barriers to getting timely services despite having greater health needs We are not achieving uniform access to services as per the Canada Health Act Liberalization of the CHA framework unfairly affects the poor Conclusion and Implication Economic accessibility IS an issue in our publicly-funded system To make this a policy focus, we need to shake the myth that we have solved the problem of economic accessibility for necessary medical services in Canada We need to evaluate the performance of the system in how well it does for those with limited ability to advocate for themselves