Community-Based Rehabilitation (CBR) Evaluation Framework Manjula Marella Co-authors: Ecosse Lamoureux and Jill Keeffe Centre for Eye Research Australia University of Melbourne Community-based rehabilitation (CBR) The World Report on Disability identifies CBR as an important component of health systems Rehabilitation within one’s own community using local resources The World Health Organization (WHO) guidelines promote a comprehensive system addressing Health, Education, Livelihood, Social participation and Empowerment of people with disabilities Effectiveness of CBR services Evaluations published on CBR programs lack evidence-based research Published evaluations are mainly descriptions of services Different methodologies and indicators used for evaluations Common indicators and a systematic framework for evaluation that are valid for different settings of CBR are essential Evaluation framework To address the gap in the literature related to effectiveness of CBR programs, the Centre for Eye Research Australia (CERA)-CBR Framework (CCF) has been developed The CCF includes indicators to comprehensively evaluate CBR programs CERA – CBR Framework (CCF) Delivery Components Service System Key Areas Program Management Networking Outcomes Availability of Services Program Planning Linkages Intended outcomes Utilisation of Services Human Resources Referral System Functional independence Quality of Services Infrastructure Advocacy Psycho-social Coverage Support from families Education Sustainability Support from community Economic Independence Empowerment Changes in Community Manjula Marella, CERA November 2010 Satisfaction with services Key area Themes/Questions Indicators Eligibility to enrol Enrolments Client demographics Average number of clients enrolled per year Waiting time Waiting list Utilisation of services Number of clients on waiting list Dropouts Number of clients who discontinue annually Socio-demographic profile of dropouts Gender ratio of dropouts Reasons for dropouts Developing questionnaires Questions for each indicator Data collection methods and sources Key informant questionnaires – CBR staff – Clients and Family members – Government (Health and Social Welfare) – Eye care practitioners – Disabled People Organisations (DPOs) – Non-government organisations (NGOs) Face validity of the CCF Reviewed by an expert panel (n=7) – CBR – Evaluation methods To assess the appropriateness of the content and structure of the CCF The CCF was modified based on the feedback from the panel Modified version of the CCF included 230 indicators Field-validation of the CCF Fiji Society for the Blind (FSB) Cambodian Development Mission for Disability (CDMD) Field-validation of the CCF Fiji Cambodia Total Population Location of services Number of CBR workers Types of services 944,720 14,494,293 4 areas of Viti Levu Island 4 provinces (29 districts) in the south 4 20 Functional rehabilitation Referrals to hospitals, social welfare department and special education. Inclusive education program is only for high school students Functional, vocational and social rehabilitation Empowerment Referrals to hospitals and inclusive education Sample size 38 148 Analysis Collated responses from various stakeholders NVivo 8 Qualitative analysis Strengths and limitations of the CBR programs Usefulness of indicators – Applicable (relevant to the context of services) – Measurable (feasible to obtain data) Triangulation – information obtained from different sources and compared 1. Service delivery system Fiji Cambodia Strengths • Medical model of • Social model of rehabilitation: rehabilitation addressing all components in the WHO - functional skills training and CBR matrix: health, - referrals to school for the education, social, livelihood blind and empowerment • Regular follow-up and monitoring systems Limitations • Lack of systematic follow-ups • Unable to manage children and internal monitoring <5 years protocols 2. Program planning Fiji Cambodia Strengths • Saving costs associated with • Involvement of external office space and transport by stakeholders to plan working in collaboration with activities Social Welfare and Eye departments Limitations • Activities do not match with the goals of the program • Poor financial sustainability • Poor financial sustainability 3. Networking Fiji Cambodia Strengths • Collaboration with Social Welfare and Eye departments for resources • Involving families in rehabilitation of the clients • Good compliance with referral services • Involving families in rehabilitation of the clients • Advocating for inclusion of PWDs Limitations • Poor collaboration with DPO and government • Lack of community involvement in CBR program • Accessibility to referral services • Poor collaboration with DPO and government • Lack of community involvement in CBR program • Negative attitudes of staff at referral centres 4. Outcomes Fiji Cambodia Strengths • Improvement in daily living skills • Changes in community attitudes • Inclusion of clients in community as a result of selfhelp groups and income generation • High client satisfaction - 35 (81%) clients and 52 (88%) family members interviewed felt their needs were met Limitations • Client satisfaction - 4 (36%) clients and 7 (50%) families interviewed felt their needs were met • Lack of systems to evaluate outcomes of services • Lack of systems to evaluate outcomes of services Usefulness of the CCF Overall 230 indicators in the framework Fiji Cambodia Both Applicable 201 (87%) 219 (95%) 197 (85%) Measurable 167 (83%) 178 (81%) 156 (79%) Discussion The CCF is comprehensive and useful to evaluate the effectiveness of CBR programs First study to compare two models of CBR Comprehensive model of CBR is feasible and more effectively meets the needs of the clients Recommendations provided based on the findings using the CCF helped the organisations to plan new services and strategies – Training of staff – Plans for financial sustainability Application of the CCF 144 (63%) indicators were derived from the literature where they were not proposed for any specific disability The majority (197, 85%) indicators were applicable to two different settings The framework is likely to be applicable to different programs irrespective of model and type of disability Limitations and recommendations for future research The component ‘outcomes’ needs further validation Only two case-studies in this study Does not include economic analysis Application in other settings including developed countries Summary The CCF has been developed to evaluate the effectiveness of vision-related CBR programs Field-tested in two different CBR settings in Fiji and Cambodia Practical and useful to investigate the strengths and limitations of the two CBR programs Acknowledgements Supervisors: A/Prof Ecosse Lamoureux and Prof Jill Keeffe Fiji Society Blind and Cambodian Development Mission for Disability Vision Cooperative Research Centre (CRC) University of Melbourne Thank you