Development of a new self-report
instrument on participation and
environment
Danielle Cheeseman
With Ros Madden & Professor Anita Bundy
Outline
› 1) Review of literature
› 2) Development of YIPE
› 3) Study overview, results and future recommendations
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1) Review of literature
› Self-report increasingly advocated1,2
› ICF provides a framework for the development of self-report instruments
› ICF acknowledges the environment as a key contributor to participation3
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Review of literature
ABSENCE OF INSTRUMENTS THAT ARE:
Self-report
Measure participationenvironment relationship
Generic (vs. condition
specific)
DEVELOPMENT OF YIPE
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2) Development of YIPE
› YIPE: Your Ideas About Participation and Environment
› Generic, self-report instrument
› Enables a person to record their own assessment of overall functioning
› Developed from the Australian national data standards4
› Includes items from all “activities and participation” and “environmental
factors” ICF chapters
› Questions start with “satisfaction with participation” and move to related
environmental factors
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Overview of study
› Qualitative study
› 10 people from disability organisations
› Aim: examine the evidence for the content validity of the YIPE, including
meaningfulness, acceptability and usefulness
› 2 rounds of interviewing
› YIPE revised and converted to computer format
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3) Study results
Benefits of the YIPE:
› Empower service users
› Develop person-centred goals
› Useful being split into two related areas on participation and environment
› Holistic approach
› Assist with communication between health professionals
› Content and format well accepted by participants
› Useful assessment tool for preparation, during therapy, evaluation
› Importance of self-report
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Quotes
› “Well I thought that because it was self directed that it was very respectful
of me and I liked that”
› “I liked the fact that it was very open language and very non-judgmental. . .
It's quite empowering in a way”
› “A more full, rounded appreciation of a person's daily life”
› “To really concentrate on what you really want to do. Otherwise you go in
then they'll hit you with a questionnaire like this and off the cuff you're
going to have to answer them. That could be you for the next 5 years,
because that's what you said you wanted. But if you've got something that
you can have a look at and prompt yourself to what you really want to do,
yeah that'd be good.”
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Future research
› Psychometric properties of the YIPE
› Increasing sample size and diversity (people with cognitive impairments)
› Obtaining the professional’s view
› Trialling the YIPE at different stages in the therapy process
› Trialling accessible formats of the YIPE (e.g., vision impairments)
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Summary
› Lack of existing instruments that are self-report, generic and measure
participation and its relationship to the environment
› This has led to the development of a new self-report instrument, YIPE
› Findings support the meaningfulness, acceptability and usefulness of the
YIPE and its potential for promoting person-centred care and the
empowerment of service users.
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References
› 1. MacDonald C. Self-assessment models, practice and tools within disability support
services [Internet]. New Zealand: Ministry of Health; 2010. Available from:
http://www.moh.govt.nz/moh.nsf/Files/disability/$file/dss-self-assessment-models-practicetools.pdf Accessed 2011 Aug 10
› 2. Griffiths P, Harris R, Ullman R. Self assessment of health and social care needs by older
people: A multi-method systematic review of practices, accuracy, effectiveness and
experience [Internet]. London: National Co-ordinating Centre for NHS Service Delivery and
Organisation R&D (NCCSDO); 2005. Available from:
http://www.sdo.nihr.ac.uk/files/project/30-final-report.pdf Accessed 2011 Aug 11
› 3. World Health Organization. International classification of functioning, disability, and health:
ICF. Geneva: World Health Organization; 2001.
› 4. National Community Services Data Committee. National community services data
dictionary[Internet]. Version five. Cat. no. HWI 102. Canberra: Australian Institute of Health
and Welfare. 2008. Available from:
http://www.aihw.gov.au/publications/hwi/ncsddv5/ncsddv5.pdf Accessed 2011 Aug 26
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