KNOWLEDGE ON MENTAL HEALTH SERVICE UTILIZATION AMONGST IU-MIEN ADULTS A Project Presented to the faculty of the Department of Social Work California State University, Sacramento Submitted in partial satisfaction of the requirements for the degree of MASTER OF SOCIAL WORK by Cheng Ton Saetern SPRING 2014 © 2014 Cheng Ton Saetern ALL RIGHTS RESERVED ii KNOWLEDGE ON MENTAL HEALTH SERVICE UTILIZATION AMONGST IU-MIEN ADULTS A Project by Cheng Ton Saetern Approved by: __________________________________, Committee Chair Dr. Serge Lee, Ph.D. ____________________________ Date iii Student: Cheng Ton Saetern I certify that this student has met the requirements for format contained in the University format manual, and that this project is suitable for shelving in the Library and credit is to be awarded for the project. __________________________, Graduate Coordinator Dale Russell, Ed.D., LCSW Department of Social Work iv ___________________ Date Abstract of KNOWLEDGE ON MENTAL HEALTH SERVICE UTILIZATION AMONGST IU-MIEN ADULTS by Cheng Ton Saetern Information pertaining to mental health needs of Southeast Asians residing in the United States is limited but growing. There is still very limited literature on the Iu-Mien, and little to none is known about them in this country. In many mental health studies, there is a tendency of grouping all persons of Asian descent together and, therefore, the empirical literature does not sufficiently address the mental health needs in specific subgroups. This research project focused on the current knowledge the Iu-Mien possess about mental illness and the factors causing underutilization. Despite evidence of mental health needs for Iu-Mien people, most do not present for mental health services. Finding from the study revealed that there is still inadequate knowledge and perceptions of mental illness within the Iu-Mien community and there are not sufficient Iu-Mien language interpreters to meet the needs of the Iu-Mien people. _______________________, Committee Chair Dr. Serge Lee, Ph.D. _______________________ Date v ACKNOWLEDGEMENTS To my Mother Nai Luang Saephanh: I thank you for the sacrifices you have made in life to provide me with this opportunity. Raising six children on your own as a refugee in this country taught me that anything is possible. I know we have had our moments where we did not see eye to eye, but it was within these moments that I discovered your teachings. You taught me to be strong when I felt helpless; you taught me to be brave when I was scared; and most importantly you taught me to walk this journey in life for me and not anyone else. You were my motivation to be better than the person I was yesterday. I dedicate this project to you and hope that I have made you proud. I love you! To my grandfather Fou Ting Saetern and grandmother Kae Orn Saetern: Grandpa, I know you are gone, but never forgotten. I wish you were here to see me cross the finish line. I know you cannot be here in person, but I know you will continue to guide me in the path of life. Thank you for being my guardian angel. I love and miss you. Grandma, your will power in life has inspired me to pursue outside of my comfort zone. I hope to one day have a heart as big, kind, warm, generous, and as loving as you are. You empower me to be the best I can be. Thank you and I love you! To my favorite big brother Kao Siew Saetern: You played the role of a father figure, coach, teacher, babysitter, provider, and protector in my life and somehow you still manage to fulfill the shoes of being my big brother. I cannot thank you enough for all that you have done for the family. I am so grateful to call you my big brother. You vi inspired me to pursue higher education and this journey would not have been possible without your support. Thank you for being you. I love you! To my favorite big sister Ching (Lacey) Siew Saetern: You were like a mother to me during my infant days and the bond I have with you remains strong to this day. I am so fortunate to have a big sister who I can lean on when my world was falling apart. I thank you for never judging me for the choices I have made in life. I love you! To my favorite middle sister Cheng (Fin) Siew Saetern: Despite our distance you always remain close to heart. You have always been one I could count on to provide me active listening and validate my feelings. Thank you for being the understanding sister you are. I love you! To my favorite little brother Lo Xio Saetern: You have always been there for me through thick and thin. I would not change a thing about you, as you are one of the few people I know who has the biggest heart. Believe it or not, you have taught me to accept the things I cannot change and let go of what suppresses my happiness. I am so grateful to have you as my little brother. Thank you for being nonjudgmental of whom I am. I love you! To my favorite little sissy Kae Siew Saeteurn: My partner in crime! Thank you for your unconditional support and assistance through the many struggles I encountered in life. When times were hard and I felt like my world was in darkness you came through and shed light into my life. You helped guide me to where I am today and no words vii could express the gratitude I feel to have you as my little sister. I love you to the moon and back! To my Nyiam Farm K. Saetern: I dedicate a poem to you. From the first day that I met you, I knew you would be my friend. I knew that I could count on you, no matter what life sends. You always have made time to listen and time to give and share; by all your words and actions, you show you really care. You are so very special; it shows in all you do. I have found a special friendship, and I have gained a sister too. As a sisterin-law, you are great, as a friend, you are the best. To have you in our family makes us all so truly blessed. To my friends: You were my second family and this journey would not have been as fun and exciting without you all in it. Thank you for filling my life with endless memories. My life would be meaningless without our spontaneous moments. To Professor Lee: This project would not have been possible without your endless support and strict deadlines. I thank you for your patience and guidance along this treacherous journey. I wish you many more years of teaching and inspiring Southeast Asian students to pursue higher education. viii TABLE OF CONTENTS Page Acknowledgements ...................................................................................................... vi List of Tables ............................................................................................................... xi Chapter 1. THE PROBLEM ......................................................................................................1 Background of the Problem ...............................................................................2 Statement of the Research Problem ...................................................................3 Purpose of the Study ..........................................................................................4 Theoretical Framework ......................................................................................5 Definitions of Terms ..........................................................................................6 Assumptions.......................................................................................................6 2. REVIEW OF THE LITERATURE .........................................................................8 Mental Health Definition ...................................................................................9 History of the Iu-Mien Americans ...................................................................11 Mental Health Service Utilization Among Ethnic Minorities .........................13 Mental Health Needs/Issues of Southeast Asians ............................................18 Factors Associated with Mental Health Problems ...........................................20 Acculturation Stressors ....................................................................................20 Somatization ....................................................................................................23 Cultural Competence and Cultural Intervention in Service .............................25 ix Summary ..........................................................................................................28 3. METHODOLOGY ................................................................................................31 Study Objectives ..............................................................................................31 Study Design ....................................................................................................31 Data Collection Procedures..............................................................................32 Instruments .......................................................................................................33 Human Subject Protection ...............................................................................34 Data Analysis ...................................................................................................35 4. STUDY FINDINGS AND DISCUSSIONS ..........................................................37 Overall Findings...............................................................................................37 Specific Findings .............................................................................................40 5. SUMMARY ...........................................................................................................44 Overall Summary .............................................................................................44 Implications......................................................................................................46 Suggestions for Future Research .....................................................................48 Limitations .......................................................................................................49 Conclusion .......................................................................................................49 Appendix A. Questionnaire .......................................................................................51 References ....................................................................................................................58 x LIST OF TABLES Tables Page 1. Gender of Participants......................................................................................37 2. Marital Status of Participants ...........................................................................38 3. Participant’s Highest Level of Education ........................................................38 4. Participant’s Primary Language .......................................................................39 5. Do Participants Have Health Insurance ...........................................................39 6. Does Participant Have Reliable Transportation ...............................................40 7. Does Participant Think There Are Enough Good Service Options .................40 8. Participant’s Family Who Sought Service in Past Three Years ......................41 9. Does Participant Think Iu-Mien Utilize Mental Health Service Correctly .....41 10. Does Participant Think Iu-Mien Understand Mental Illness Terminology .....42 11. Are There Sufficient Iu-Mien Interpreters to Meet the Needs of Iu-Mien ......42 xi 1 Chapter 1 THE PROBLEM Asian Americans are the fastest growing minority group in the United States as it has doubled in the past two decades (Yeung & Kung, 2004). According to the U.S. Census (2002) Asian Americans make up 3.6% of the U.S. population and by 2020 they are projected to make 6% of the nation’s population. As the United States progressively become more ethnically diverse, it is important to understand the ethnic and cultural needs of each group, and to develop appropriate programs and services to meet the needs of these people. Although America has made significant improvements on programs and services in the areas of health and human services for immigrants and refugees, there are groups that are not readily able to access these services/resources. One of these underutilized groups is the Iu-Mien. In reviewing of the literature, the Iu-Mien are nearly unidentifiable and nearly unrecognized by human service agencies (Kim, 2006). Most studies conducted in the past consist of other Asian sub-groups such as Chinese, Koreans, and Japanese who have been in the United States much longer than the Iu-Mien. In comparison to other Asian Americans in general, the Iu-Mien’s underutilization of mental health services can be speculated to their limited exposure to Western cultural traditions (Kim, 2006). Furthermore, Kim notes that the Iu-Mien were presumably the least prepared for life in United States as they moved straight from rural environments to industrialized settings. Like their Southeast Asian counterparts, the Iu-Mien have shown to be at risk for developing psychiatric illness due to their experience with harsh stressors resulting from war-related psychological traumas and refugee experiences (Kim, 2006). 2 Background of the Problem Research has consistently shown that Asian Americans are less likely to seek help for mental health problems than other racial demographic groups (Chu & Sue, 2011). According to Yeung and Kung (2004), Asian Americans’ tend to utilize mental health services as a last resort after unsuccessful attempts to seek help from families, friends, alternative treatments and primary care physicians. Yeung and Kung states further that Southeast Asian refugee are at risk for mental illness, particularly post-traumatic stress disorder (PTSD) and major depressive disorder (MDD) due to their pre and postmigration. In addition, Fung and Wong (2007) and Kim (2006) note that most of the Southeast Asian refugees endured tremendous hardships in the process of emigration to the United States from their homeland. In their study, Fung and Wong were able to demonstrate that Asian refugees in North America have lower rates of mental health service utilization and by the time they seek or receive treatment, symptoms have become more severe. According to Yeung and Kung (2004) Asian immigrants are more reluctant towards seeking mental health services due to reasons such as stigma, language barrier, lack of access to care, and lack of culturally competent service. These various barriers are results of the underutilization of mental health services by Asian Americans. In their studies, Fung and Wong (2007) rationalized that Asian immigrants are perceived as a homogeneous group sharing similar culture and beliefs. There is an under exploration of the different historical and socio-political contexts faced by various Asian ethnic groups that may have resulted in their attitude towards seeking professional help. As such, 3 ethnicity is an important variable in mental health studies as the characteristics and intensity of the adverse effects vary from each ethnic group. Thus, making it necessary for professional providers to be aware of diversity within the Asian immigrant population to better provide care (Kim, 2006). As one of the Southeast Asian refugee groups from the Vietnam War, the Iu-Mien people experienced considerable reprisals, confiscation of land and goods, torture and slaughter (Barker & Saechao, 1997; Habarad, 1987a, b; & nMoore & Boehnlein, 1991). Many Iu-Mien were forced to leave their homeland to avoid persecution and in doing so many stayed in refugee camps for extended periods until they were allowed to enter the United States. Moving straight from rural environments to industrialized settings, and compared to other larger global category of Asians such as the Chinese and Japanese who had greater exposure to Western culture or urban life in their homeland, the Iu-Miens are presumably the least prepared for life in the U.S. (Kim, 2006). Kim states that migrating to the U.S. the Iu-Mien people experienced first-hand war and post-war killing fields on top of current social and cultural obstacles that presents a dire need for mental health services in this population. Statement of the Research Problem Mental illness is evident in the Iu-Mien community; however, utilization of mental health service has remained low. There are various potential factors contributing to the underutilization of mental health services by the Iu-Mien people. One of the reasons can be associated with Iu-Mien perceptions and lack of understanding of mental health. The most common term used by the Iu-Mien people to describe someone who has 4 a mental illness is butv ndin which translates as crazy/insane. Another factor maybe that there is a general lack of culturally and linguistically appropriate services available to meet the needs of Iu-Mien. Majority of the first generation Iu-Mien do not speak English and do not know how to begin accessing service. Stigma and shame are common factors that deter Iu-Mien from help-seeking behaviors. Many Iu-Mien feel ashamed and embarrassed to seek mental health service fearing public knowledge of his/her problem and being identified as crazy within the Iu-Mien community. Despite the reasons for non-help-seeking behavior, Iu-Mien people have a mental health need and are in need of help. Even after decades of resettling in the U.S., some Iu-Mien people have not yet addressed their traumatic experience and often report somatic symptoms. Their horrifying experience from fleeing their home country, witnessing death, losing family during migration, enduring the hardship of concentration camps, and struggling to assimilate to mainstream society in America are all components contributing to mental illness in the Iu-Mien community. The researcher is interested in researching the underutilization of mental health service amongst Iu-Mien adults due to the limited literature and data on this population. The researcher is also interested in exploring the barriers that prevent Iu-Mien from utilizing mental health service. Purpose of the Study. The purpose of this study is to investigate knowledge and perceptions Iu-Mien ages thirty years and older have towards mental health service utilization. This study aims to provide mental health professionals and social service 5 providers a better understanding of a minority group that continues to face such disparities even after more than three decades of residing in the U.S. Perhaps having a better understanding of this population will allow service providers to best tailor their service to meet the needs of the Iu-Mien population. It is hoped that with more knowledge, insight, and understanding of the Iu-Mien population providers can help to decrease the stigmas of mental illness and increase the utilization of mental health treatment. Theoretical Framework. The ecosystems perspective, also known as the ecological perspective as cited by Johnson and Rhodes (2010), is the theoretical framework used for this study. Johnson and Rhodes define the ecosystems perspective as the need to view people and environments as a unitary system within a particular cultural and historic context. Both person and environment can be fully understood only in terms of their relationship, in which each continually influences the other within a particular context. This perspective is useful as it takes into consideration the cultural aspects of the Iu-Mien population and their needs within the new environment here in American society. The fact that the Iu-Mien possesses inadequate knowledge and awareness regarding mental illness and mental health services within their community, the ecological perspective is relevant to consider in order to understand how the individual, group, and system interact and impact one another within their society. This framework will help mental health provider understand the Iu-Mien culture, historical experience and how to maintain a balance between the individual and their environment. 6 Definition of Terms. The following are definition of terms used throughout this research. Southeast Asians: refers to people from Vietnam, Cambodia, and Laos, who are characterized by seemingly common factors, such as geographic region of origin, recent war experiences, and migration experiences. Refugee: someone who has been forced to leave a country because of war or for religious or political reasons. Iu-Mien: are the smallest major refugee groups in the U.S. and the least known in the refugee literature. Immigrant: a person who comes to a country to live there. Siep mmien: is both a healing and protective ceremony. In the Iu-Mien language the word mien means people and the word mmien means ancestor spirits. Soul fright: is a cause of soul loss, which is a symptom complex of sleeplessness, distractibility, and listlessness believed to indicate that the soul has been frightened from the body. Hwen bach: souls that act as a protection for their physical and spiritual well-being. Assumptions. My experience working in the field of mental health for the last two years specifically with the Iu-Mien population has provided me direct knowledge of some of the barriers of mental health utilization. I learned that most Iu-Mien adults receiving mental health service prefer to work with the same sex mental health providers such as counselor/clinician/psychiatrist. The idea of disclosing personal information to the opposite sex is rather inappropriate and can be considered embarrassing. I also 7 learned that many Iu-Mien are isolated in their homes because they do not have a means of transportation. Most Iu-Mien adults do not know how to drive and there aren’t interpreters available to assist in conducting the written test often resulting in relying on their children for transportation needs. In addition, some Iu-Mien families face cultural and linguistic barriers within the parent and child relationship due to generational gap issues. Iu-Mien children have become westernized and with the demands of work and school most children do not have time to support their parents in navigating appropriate resources to combat their needs of mental health service. Even those who can assist with navigation are unable to communicate in their native language to their parents. It was clear to me during my time as a mental health case manager that there is still a large population of Iu-Mien people who are not getting their mental health needs met. I hope that in doing this research professionals in the helping field will have better knowledge of the disparities in the Iu-Mien community and will be able to better outreach to increase the utilization of mental health services. 8 Chapter 2 REVIEW OF THE LITERATURE Even after more than three decades of settling into the United States there is still a lack of mental health utilization in the Southeast Asian population. According to the National Alliance on Mental Illness (2011), Southeast Asians have a higher risk of posttraumatic stress disorder (PTSD) which is often associated with pre and post-migration to the United States. Southeast Asians are defined as former refugees from Cambodia, Laos, and Vietnam. Multiple research studies have been conducted elucidating the manifestation of mental illness within the Southeast Asian refugee population; Southeast Asians still remain a population that underutilizes mental health services. To increase the utilization of mental health services by the Southeast Asian population, especially the IuMien people, it is important to further explore the existing barriers that continue to be factors causing underutilization. The focus of this research is to help readers understand the mental health needs of the Iu-Mien people age thirty and older. In addition, the IuMien’s knowledge and understanding of mental health services will be explored as a possible determinant of underutilization of mental health services. This research will consist of six major themes: (1) mental health definition; (2) the history of Iu-Mien Americans; (3) mental health service utilization among ethnic minorities; (4) mental health needs/issues of Southeast Asians; (5) factors associated with mental health problems; and (6) cultural competence and cultural intervention in service. In discussing these themes, the researcher hopes to help identify and explain some of the barriers that prevent Iu-Mien Americans from seeking out mental health services. 9 Mental Health Definition Mental health, as defined by the World Health Organization (2014), is a state of well-being where every individual realizes his or her own potential, is able to cope with life stressors, can work productively, and is able to make a contribution to his or her community. According to the National Alliance on Mental Illness (2011), mental illnesses are medical conditions that result in diminished capacity for coping with life demands. Mental illness disrupts the person’s thinking, feeling, mood, ability to relate to others and daily functioning. Before immigrating to the United States, the Iu-Mien people had little to no exposure to Western life including Western culture and Western perceptions of the world (Saetern, 1998). According to Saetern, due to their lack of exposure to Western life the Iu-Mien had little to no knowledge of Western perceptions of mental health and mental illness. Individuals from the Iu-Mien population may have difficulty understanding the term mental illness because the Iu-Mien language does not have a word for mental illness. The word used to describe mental illness in the Iu-Mien language has a very negative connotation. For example, in the Iu-Mien English Dictionary mental illness translated in Iu-Mien is butv ndin, which is defined by Purnell (2012) as being insane, crazy, mad, and out of one’s mind. This strong association of psychiatry with craziness and being insane has led many Iu-Miens to avoid utilizing mental health treatment. To obtain a complete picture of the mental health needs of Southeast Asians, primarily the Iu-Mien, mental health problems must be examined within a cultural context. Many of the Iu-Mien beliefs are similar to the Chinese beliefs which are a 10 mixture of Tao and Buddhist philosophies and ancestor worship. The Chinese also believe in a pantheon of powerful spirits that can be influenced by humans through certain rituals. These spiritual beings become the mediums through their trances and deal with devils and deities to bring a change in the suffering person (Haque, 2010). Just like the Chinese, the Iu-Mien people believe the spiritual world has a direct influence over their lives, well-being, health and happiness. They worship their ancestral spirits and see them as primarily helpful spirits who offer protection and assistance. However, in the IuMien culture the ancestor spirits can also be the cause of illnesses should they be offended or not given the proper offering of food and money. Based on studies by Moore, Sager, Keopraseuth, Chao, Riley, and Robinson (2001), shamans or spiritual leaders are called upon to perform spiritual healings when an ancestor or other spirits are believed to have caused the illness. Moore and colleagues further note that the shaman acts as an intermediary between the two worlds and treats the illness by performing spiritual ceremonies, rituals, and animal sacrifices. Soul fright is another cause of mental illness in which the Iu-Mien believes. A study by Moore et al., (2001) indicates that the Iu-Mien believe mental illness is a result of or failure to comply with rituals, spirit possession, soul loss or bad luck. Moore and colleagues state that soul loss is a complex symptom that consists of sleeplessness, distractibility, and listlessness believed to indicate that the soul has been frightened from the body. An earlier study by Moore and Boehnlein (1991) found that the Iu-Mien people believe that an individual has many souls or hwen bach that act as a protection for their physical and spiritual well-being. In the more recent study, Moore and colleagues 11 state that being cursed, experiencing a fearful or tragic event, and having sickness are results of the soul being lost leading to the cause of mental illness. Traditionally the IuMien relied on herbalists, nutrition and environmental changes to treat the problem of a soul loss. Problems that do not respond to these interventions would then require the intervention of religious healing ceremonies to bring back the hwen bach through the process of sip mmien. Moore and colleagues further note that during ceremonies the evil spirits are called upon to appease them and ancestor spirits are called to protect living family members. History of Iu-Mien Americans Worldwide, there is no correct way to refer to the Iu-Mien people. For example, in China they are better known as Yao, while in Laos and Thailand, they are known as Mienh or Iu-Mien (Barker & Saechao, 1997). History indicates that hundreds of years ago some Iu-Mien migrated out of Southwest China to the mountainous areas of Vietnam, eventually reaching Laos and Thailand. The reasons for this huge migration were due to the Iu-Mien’s desire to maintain their freedom, escape famine, and avoid taxes. Barker and Saechao state that there was an estimated 1.4 million Iu-Mien residing in China until the 1700s when some of them migrated to Vietnam, and during the midnineteenth century a part of this group migrated further south to the highlands of Laos and Thailand. They added that by 1954 the population of Iu-Mien in Vietnam was estimated to number around 200,000 and approximately 50,000 in Laos and Thailand combined. 12 During the Vietnam War era, 1960s to 1975, the Iu-Mien entered an important alliance with the American forces, especially the Central Intelligence Agency (CIA). According to Barker and Saechao (1997), during the Vietnam War many Iu-Miens were recruited by the CIA along with other tribal groups in Laos to fight communists and in return were promised protection from reprisals and relocation to the United States if needed. Unfortunately, the royal Lao government forces fell to the communists in May 1975. The Iu-Mien, along with thousands of Laotian refugees, fled Laos to seek temporary refuge in neighboring countries, particularly Thailand. During this journey of escape many Iu-Mien people died, some were captured, shot, and killed by the Communist soldiers and others drowned in the river or died of sickness related to the difficult travel (Hsu, Davies, & Hansen, 2004; Saetern, 1998; Howard, 1989). The Vietnam War severely ruptured the lives of the Iu-Mien, who not only lost their land and goods, but experienced the trauma of war. Grieving for loved ones who were killed and they were now left poverty stricken and homeless (Barker & Saechao, 1997). It was not until 1980 that the U.S. made asylum widely available to the Iu-Mien in refugee camps in Thailand by offering a refugee rescue program that gave the Iu-Mien and other hill tribes the choice to resettle in the United States (Saelee & Saeteurn, 2011). This was also known as the 1980 Refugee Act. The Refugee Act of 1980 defines a refugee as someone who has a well-founded fear of being persecuted in their homeland, for reasons of their race, religion, nationality, social group or political opinion (Hsu et al., 2004; Vu, 1990). Under the Refugee Act, during the first two years of their residence refugees are considered living under a parole status and are prohibited to apply for legal 13 alien resident status until after that duration. Public assistance is usually needed for newly migrated refugees to allow them time to adjust culturally and emotionally to their new settings; therefore, refugees enter the United States under conditions that affect their readjustment to the new country (Hsu et al., 2004). It was reported by Barker and Saechao (1997) that by the late 1980’s only about 15,000 Iu-Mien remained in Southeast Asia, primarily in the hills of Laos, comprising traditional farmers, rice growers, and artisans living in small villages. Barker and Saechao further state that about 85% of the Iu-Mien immigrated to the United States while others went to France or Australia. Mental Health Service Utilization Among Ethnic Minorities Asian Americans have a distinct pattern of underutilizing psychological services compared to other ethnic groups (Yeung & Kung, 2004). Among Asian Americans with a probable mental disorder, only 28% utilized specialty mental health service, in contrast to 54% of the general population (Chu & Sue, 2011). A study done by Chung and Lin, (1994) examined the intergroup differences between the Vietnamese, Cambodians, Laotian, Hmong, and Chinese Vietnamese in their help-seeking behavior in Asia and the United States. The results showed the percentage of each group utilizing Western medicine in their home country with Vietnamese (68%), Laotian (53%), Cambodians (44%), Chinese Vietnamese (44%), and the Hmong (11%). These results indicate that Vietnamese had significantly higher odds of utilizing Western medicine in their home county, whereas Hmong had significantly lower odds (Chung & Lin, 1994). Furthermore, these results indicating that there is substantial overlap in the utilization of traditional and Western medicine in Asia strongly suggest that in general this refugee 14 population, apart from the Hmong, was utilizing a dual health care system in Asia (Chung & Lin, 1994). Similar to their Hmong counterparts, Iu-Mien share with the Hmong a common history and pattern of daily life in Asia. Although there is no data to back this up due to such similarities between the Hmong and Iu-Mien, one can speculate that utilizing Western medicine in their home country was very minimal. Help-seeking patterns in the United States by Southeast Asians were no different compared to help-seeking patterns in Asia. The percentage of each group seeking Western medicine in the United States were Cambodians (88%), Lao (86%), Vietnamese (76%), Chinese Vietnamese (69%), and Hmong (56%). According to Chung and Lin the greatest disparity in help-seeking behavior in the United States were the Hmong. Although help-seeking patterns in the United States show a dramatic increase compared to help-seeking patterns in Asia, traditional methods of health care continue to be utilized in conjunction with Western health care methods by the Southeast Asians especially the Hmong. Chung and Lin further asserts that upon resettlement in the United States, the Hmong reported utilizing Western medicine five times more than in Laos, but nearly 40% of the Hmong also reported that they still utilize traditional medicine in the U.S. The main reason for continued usage of alternative or unconventional medicine is due to cultural conceptions of illness. This is also true for the Iu-Mien as studies done by Gilman, Justice, Saepharn, and Charles (1992) report that Iu-Mien takes a different approach to assessing illness causation. The Iu-Mien focus on the origin of the condition and emphasis on what caused the symptom and why it started. Only after there are no indications of spiritual involvement, illnesses are then treated with physical remedies 15 such as medical interventions. Furthermore, Gilman and colleagues state that health professionals in both public and private medical facilities treating the Iu-Mien were unaware that they might be taking unapproved and controlled medications that could have notable side effects. The intergroup difference in the utilization of health care services in Asia could be accredited to the level of exposure to Westernization and the availability of Western medicine (Chung & Lin, 1994). The analysis of help-seeking patterns in Asia suggests that Vietnamese were more likely to utilize Western medicine in their native country partially due to Western medical practices being introduced to Vietnam by the French colonials. Furthermore, the Vietnamese were from urban areas and had relatively longer exposure to the French culture which made them more familiar with Western medicine (Chung & Lin, 1994). In contrast, Western health professionals were scarce in Cambodia and Laos prior to 1975 which explains why the Cambodians, Laotian, and Hmong rely heavily on indigenous healers and folk medicine. Studies by Chung and Lin showed that the Hmong were the least likely to utilize Western medicine compared to other groups because they had little exposure to Westernization and they were from rural areas in Laos. English proficiency is a prerequisite for utilizing Western medicine in the United States where many of the mainstream service may not have translators or bilingual/bicultural staff (Chung & Lin. 1994). Findings by Chung and Lin have suggest that the educated, younger people and those with English proficiency acculturated at a greater pace and therefore sought Western medicine compared to traditional medicine. 16 Sue, Cheng, Saad, and Chu (2012) argued that among the U.S. born and immigrant Asian Americans alternative services either facilitated or inhibited specialty mental health service use, depending on the individual’s English proficiency. Specifically, those with poor or fair English language proficiency, alternative services seemed to compete with specialty mental health care. For those with good or excellent English proficiency, the use of alternative service increased the likelihood of utilizing specialty mental health services (Sue et al., 2012). Compared to their Vietnamese counterparts, the Iu-Mien were not highly educated and had low level of literacy in their own language and they cannot speak English. Therefore, the Iu-Mien underutilizes such services as mental health here in the United States due to their low English proficiency. Commonly, children were utilized as interpreters for the family when a professional interpreter was unavailable; however, this is not necessarily an effective method of communicating with health care professionals. The concept of stigma and shame also play an important role in the underutilization of mental health services. The fear of stigma and shame play a vital role in Asian American’s low service utilization of mental health. The intense stigma attached to mental illness among Asians is believed to attribute to character flaws and hereditary defects (Yeung & Kung, 2004). The Asian culture is commonly concerned over the loss of face and impacts of genetic defects can go beyond the patient to affect the marriageability of family members. In Asian societies, strong emphasis on saving face and bringing harmony is crucial to the family and mental illness is not perceived as a personal matter, but as a threat to the harmony of the family. Therefore, avoid utilizing 17 public services such as welfare agencies, mental health agencies, health service agencies, and legal systems because the utilization of service is considered a tacit admission of the existence of these problems and could potentially result in shame, embarrassment, and disappointment to the family (Chu & Sue, 2011). In a study conducted by the Primary Care Research in Substance Abuse and Mental Health for the Elderly (PRISM-E) as reported by Jimenez, Bartels, Cardenas, and Alegria (2013), 2244 clients were referred by their primary care clinician to participate in two specific interventions: an integrated care model and an enhance referral model. The integrated model provided mental health/substance abuse services in the primary care clinic by a mental health provider. The enhanced referral model provided mental health/substance abuse service in a specialty setting that was physically separate and designated as a mental health/substance abuse clinic. These interventions seek to identify cultural attitudes towards health care and mental illness as well as cultural sensitivity desired from the health care system from a cross-sectional perspective. According to Jimenez and colleagues the results of this study showed that 25.9% of Asian Americans felt shame or embarrassment with regard to having mental illness compared with nonLatino Whites at 15.3%. Asian Americans also stated having greater difficulty engaging in mental health treatment if others knew, less comfort in speaking with their primary care physicians (PCPs) about mental health issues, and greater difficulty seeking mental health treatment in specialty mental health settings. Due to the intense stigma and shame attached to mental illness, Asian American prefer informal solutions for their mental health problems by seeking support from family and friends and delaying professional 18 mental health service until problems become severe. Asian Americans who make the difficult decision to obtain help often turn to primary care physicians, herbalists, acupuncturists or other health care professionals for help instead of mental health professionals (Yeung & Kung, 2004). Mental Health Needs/Issues of Southeast Asians Chung and Bemak’s (2002) findings show that Southeast Asian refugees are at risk for developing serious mental health disorders. This includes PTSD resulting from the traumatic events experienced during the war, the escape from their homeland, and refugee camp experience (Chung & Bemak, 2002). Hsu et al., (2004) state that many Southeast Asians endured government-sponsored intimidation and threats to their lives after communist gained control of their homeland. Some of the migration stressors include separating from or witnessing deaths of family and relatives while fleeing their home county. Even after Southeast Asians escaped their native countries, they experienced additional stressors such as assaults by border guards while entering neighboring countries. Furthermore, while detained in refugee camps, they were faced with the uncertainty of their future and the fate of separated family and friends. Southeast Asians still continue to experience PTSD even after decades of fleeing from their country of origin. Southeast Asian refugee patients are most commonly diagnosed with mental health problems such as depression, somatization and physical disorders, adjustment disorders, anxiety, and PTSD. Hsu et al., (2004) reports on a study conducted in nine counties in California sampling 2773 Southeast Asian refugees regarding mental health 19 needs. The sample comprised of 867 Vietnamese, 291 Chinese Vietnamese, 589 Cambodians, 722 Laotians, and 302 Hmong. The percentages of traumatization among Southeast Asian groups were presented: Cambodians (43%); Laotians (17%); Hmong (17%); and Vietnamese (14). These results indicate that Cambodians experienced the most PTSD. Another extensive study on PTSD surveyed 322 patients at a psychiatric clinic for Indochinese refugees to determine the presence of PTSD. This study found that 226 patients (70%) met the diagnosis of PTSD with Iu-Mien having the highest rate of PTSD (93%) compared to the Vietnamese refugees who had the lowest (54%). Compared to the Iu-Mien, Cambodians and Hmong refugees, the Vietnamese refugees appear to be better adjusted than other Southeast Asian refugees because they have a lower prevalence rate of PTSD, greater happiness, and less depression (Hsu et al., 2004). In the aforementioned mental health needs assessment conducted on 2773 Southeast Asian refugees, the findings for Cambodian, Laotian, and Hmong subgroups were six to seven times more likely to be in severe need of services such as intensive outpatient, day treatment, or residential care. Cultural factors are also important to consider when conceptualizing their mental health needs. In Asian culture, the family is the primary social unit and a source of strong identity for its members. Roles and positions of hierarchy are evident in traditional Asian families as elders are placed in roles of authority and men are considered higher than women (Hsu et al., 2004). These traditional values were affected upon resettlement in the United States. Given the language barriers and little to no formal Western education and vocational experiences, elders lost their status within the 20 family and the society. Due to death encounters from war and pre-migration, many families were without male personnel which changed the family structure. Single mothers became primary caregiver as well as taking over responsibility of the family. Traditional gender roles have also been challenged after resettling in the United States as women are provided occupational opportunities to support their families. In Southeast Asia, higher education was only provided to men and women were discouraged from gaining skills that would allow work outside of the home. Language barriers made it difficult for parents to adjust to mainstream society often relying on their children for language support. This transfer of authority from elders to the children severely disrupted traditional cultural values and roles within the family structure making parents and elders feeling helpless. These possible effects of trauma on a person such as depression, irritability, hyper vigilance, startle reaction, and nightmares can severely impact one’s ability to function in the family let alone in society. FACTORS ASSOCIATED WITH MENTAL HEALTH PROBLEMS Acculturation Stressors Since the fall of Laos in 1975, the Iu-Mien’s residency in the United States has surpassed three decades. Even after three decades, it is still important to examine the transition and adjustment of the Iu-Mien people as it has an effect on their mental health. Acculturation is defined in Merriam-Webster Dictionary (2014) as cultural modification of an individual, group, or people by adapting to or borrowing traits from another culture; also: a merging of cultures as a result of prolonged contact. Most Asian Americans have difficulty acculturating in American society as they endured tremendous hardships in the 21 process of immigration to the U.S. from their homeland (Kim, 2006). Like many other immigrants and refugees, the Iu-Mien face unique distress such as acculturation stress related to loss of family/social network, social isolation, shifting gender roles, racism, language barriers, loss of employment and socioeconomic status, and intergenerational conflicts all which directly impacts their mental health (Fung & Wong, 2007). Some acculturation challenges that the Iu-Mien face include expectations, socioeconomic and environmental stressors, racial discrimination, and health care consequences (Hsu et al., 2004). Other stressors such as educational attainment and ethnic and cultural identity are additional factors that are also important to consider regarding Iu-Mien mental health. Refugees encounter acculturation challenges as they leave their native countries and attempt to reconstruct a new life in a new country. They essentially experience the sense of loss as majority of Southeast Asian refugees have lost significant others and are often not aware of the whereabouts of loved one. In addition to personal loss, refugees also endure the loss of material belongings, the loss of their country, and the loss of a familiar way of life. Hsu and colleagues further asserts that as refugees enter a new country they are immersed in a context of new and unknown culture where they lack familiar social support and knowledge to access resources for economic self-sufficiency. The refugees’ emotional resilience and coping resources are challenged as these situations are highly demanding and often are not in direct control of the refugees causing severe psychological distress. Life in Thai refugee camps was long and hard and did not adequately prepare the Iu-Mien for the move to the U.S. According to Barker and Saechao (1997) some Iu-Mien 22 people stayed in the refugee camps for ten years or more, which took a great toll on their physical and mental health. The Iu-Mien knowledge about the Western world were frequently distorted by unfounded rumors as Moore and Boehnlien (1991), report a camp rumor being that people in the U.S. were cannibals. When the Iu-Mien arrived in the U.S. they had little knowledge of urban life. Most Iu-Mien adults have never ridden in a passenger car, seen buildings more than two stories high, used a telephone, cooked on a stove, eaten with a fork or knife, used a flushable toilet, or used a refrigerator (Barker & Saechao, 1997). The American resettlement agencies were not aware or prepared for the degree to which the Iu-Mien needed to be oriented to urban life and consequently did not provide much in the way of specific training. The neighborhoods where the Iu-Mien resided were poverty stricken with high crime and provided few opportunities for economic success. City living made it difficult for Iu-Mien to grow subsistent crops and to make the necessary animal sacrifices for rituals to be performed correctly (Barker & Saechao, 1997; Crystal & Saepharn, 1992; Habarad, 1987b; Gilman et al., 1992; Waters, 1990). Southeast Asian women encounter specific acculturation stressors due to their lack of education and limited job skills. Most of them do not have extended family support, are single parents with no experience or role models to emulate, facing rolereversal problems and shift of power when the woman is the wage earner and the man stays at home (Hsu et al., 2004). Furthermore, Southeast Asian woman are challenged by their disciplinary methods. It is very common in the Iu-Mien culture to discipline a child through physical forms, which at times may leave bruises and marks. These bruises and 23 marks have in the past been intervened by Child Protective Service, which has severely affected the discipline system in the Iu-Mien family, and parents fear losing control of their children. Children also experience acculturation stressors from living and thinking in two languages such as one for home and one for school. These adjustments may result in identity confusion for refugee children (Hsu et al., 2004). Iu-Mien children are also required to serve as interpreters and culture-brokers for adults in their family resulting in reversal role of authority, power, and respect. The memories and trauma of their premigration and the challenges that the Iu-Mien have encountered during post-migration has further isolated them from being able to acculturate or assimilate into the new society. Somatization Somatization is defined by Moore et al., (2001) as the presentation of physical symptoms without demonstrable organic pathology. When Southeast Asians do seek help for mental illness, they often interpret psychological problems in physical terms to avoid stigmatization. Somatic complaints including pain are frequent in migrant population and in Southeast Asian refugees they have been associated with greater psychopathology, socio-economic distress and poorer adaptation. Furthermore, one explanation of somatic complaints would be to see them as part of a general stress response to trauma. Another possibility is that somatic symptoms can be part of psychiatric syndromes such as chest pain, tachycardia, dizziness, faintness, weakness and other complaints that accompany panic attacks. 24 A research on disorder and somatization by Moore and colleagues through the Indochinese Psychiatric Program (IPP) in Portland, Oregon, found that the most common primary complaint of the Iu-Mien was pain. The participants in this study consisted of 70 Iu-Mien and 30 Laotian patients. The Iu-Mien and Laotian had access to the same treatment within the IPP; however, when compared with other ethnic groups, the Iu-Mien provided the least improvement and continued to complain of persistent, wide spread pain. Despite their prevalence, the study also found that the Iu-Mien patients did not volunteer any psychological complaints, failed to report nightmares, panic attacks, depression or insomnia. In contrast, the Laotian did describe emotional complaints and other psychiatric symptoms consistent with diagnostic criteria for mental disorders. The Iu-Mien had proven to have difficulties with medications, showed poor tolerance and response to specific antidepressant medications. The study also found that all the subjects with complaints of pain suffered from depression, either alone, with PTSD, or with PTSD and psychotic symptoms. Moore and colleague further notes that the Iu-Mien had little to no experience with Western health care systems and was often confused about the role of specialists, and frequently failed to attend medical appointments. Due to the complexity of providers and lack of appropriate interpreters made negotiating medical care extremely difficult for the Iu-Mien. The findings in this study suggest that the high somatization rates of the Iu-Mien may be due to mental health illnesses being highly stigmatizing in their cultures and psychiatric care is sought only after failed attempts from traditional avenues of help. 25 Cultural Competence and Cultural Intervention in Service Culture is defined by Livingston et al., (2008) as an integrated pattern of behavior shared among a group of people that includes ideology, thoughts, beliefs, speech, action, and artifacts and is passed from one generation to the next through ceremonies, rituals, and traditions. Base on this definition, the primary purpose of culture is to give a group of people a general guideline for living and interpreting reality. Health care professionals having a greater understanding of each ethnic culture can help better implement culturally appropriate interventions. There is some evidence suggesting that treating patients in a more culturally sensitive manner can reduce premature treatment termination (Hwang, Myers, Abe-Kim, & Ting, 2008). Among English speaking Asian Americans, the beneficial effects of receiving treatment at a culturally sensitive treatment center seem to outweigh the positive effects of being matched with an ethnically similar therapist (Hwang et al., 2008). This finding indicates that training therapist to be culturally competent and developing culturally congruent interventions can serve as a form of quality improvement in mental health settings. According to most contemporary anthropologists, educators, and social scientist, cultural competence is a set of behaviors, attitudes, and policies that enables a system, agency, and/or individuals to function effectively with culturally diverse clients and communities (Livingston et al., 2008; Lynch & Hanson, 1998; Rorie et al., 1996). The development of cultural competence allows mental health professionals to be able to think, feel, and develop interventions that acknowledge, respect, and build upon ethnic and sociocultural diversity. Developing cultural competence requires becoming 26 knowledgeable and respectful of another culture’s values, beliefs, customs, and traditions (Livingston et al., 2008). For example, those working with population where reliance upon shamans and herbalists, may find that knowledge regarding health from the mainstream health care service may not be valued. In order to be effective in working with the Iu-Mien population one must be cognizant of what the community values as knowledge and what is consistent with traditional and cultural practices. Even though in recent years there have been culturally-specific services available for the mental health needs of Asian Americans, Livingston and colleagues point out that service professionals have only been trained to understand superficial differences between cultures such as differences in clothing, language, and food. Livingston and colleagues suggest that in order to understand culture, psychologist and those who study human behavior must be abreast of deep, structural factors that undergird aspects of surface-level behavioral manifestations among ethnic minority population. In trying to bridge the gap between cultural understanding and improving treatment efforts, mental health professionals need to be more culturally competent. Asian Americans also experience restricted access to available mental health services because of limited English proficiency and a lack of providers with appropriate language-matched abilities (Chu & Sue, 2011). The shortage of ethnic minority mental health professionals and the limited availability of services in various ethnic languages have made ethnic matching a barrier for treatment. This issue becomes even more salient because many ethnic minority groups already have less than positive attitudes towards mental health service (Hwang et al., 2008). According to Gilman et al., (1992) in a study 27 they did on cross-cultural medicine by Laotian refugees, specifically the Iu-Mien, indicate that patients in Richmond, California experienced problems navigating public health care service. Not only did the Iu-Mien encounter long waiting time and difficulty with transportation to health care service, they also encountered language barriers. There are two clinics that provide Iu-Mien language interpreters, but only on a limited scheduled basis. Often times when Iu-Mien patients go into the clinic for urgent or walkin care interpreters are not available. In cases where interpreters were unavailable school-age children were relied on to provide interpretation service for their parents. One of the challenges that the Iu-Mien continues to face today is the lack of ethnic-matching providers. As Iu-Mien children experience considerable exposure to American norms especially via schools and the educational process, they have become alienated from adults and older generations, skills in the Iu-Mien language are diminished and religious traditions and the people performing traditional rites appear old-fashioned or strange to the younger Iu-Mien population (Barker & Saechao, 1997). The effects of diminished Iu-Mien language in the younger population now will result in language gaps for future health care service as Iu-Mien children will not be able to communicate and understand their Iu-Mien elders. Research from the past decades indicate little progress have been made to reduce the disparities in mental health service access for Asian Americans. As of 2001, several solutions have been pursued to address the problem of low utilization of service by Asian Americans. According to Sue et al., (2012) several mental health service organizations have targeted community education and outreach efforts to increase the acceptability of 28 utilizing services, developed ethnic-specific programs, or increased the availability of bilingual staff. Directed attention to developing and increasing the availability of culturally competent treatments has also been explored. Cultural psychologists also recognized that treatments proven to work for Caucasian populations might not work for ethnic minority populations such as Asian Americans. As a result, clinical scientist recognized the need to culturally adapt these treatments to make them understandable and effective for Asian American population. Cultural adaptations have also emerged in recent years. Chu and Sue (2011) reports that cultural treatment adaptation refers to the method which evidence-based practices (EBPs) proven in mainstream populations are tested and modified for the specific cultural needs of ethnic minorities such as Asian Americans. Furthermore, Chu and Sue states that culturally adapted EBPs methodically consider language, culture, and contextual issues consistent with client’s cultural values, beliefs, and practices, and have demonstrated beneficial outcomes in diverse populations. These innovations are showing considerable promise to provide treatment options that are culturally congruent with the needs of Asian Americans. Summary There is very limited literature on the Iu-Mien, and little to none is known about them in this country. In many mental health studies, the idiosyncratic needs of Southeast Asian ethnic groups are frequently overlooked or subsumed under the larger global category. Asian Americans have routinely been treated as a single ethnic group resulting in misunderstanding, stereotyping, and overgeneralization (Kim, 2006). Studies conducted on Southeast Asians only consisted mostly of Cambodians, Vietnamese, 29 Laotian, and Hmong. If the Iu-Mien were mentioned at all, they were often clumped together into one homogenous group with Southeast Asians, which resulted in erroneous conclusions. Despite the fact that the Iu-Mien share similar experiences with other Southeast Asians, they are still a different ethnic group with their own culture, language, traditions, values, and customs and their need of mental health service could be very different compared to the needs of other Southeast Asians. The different culture of each ethnic group also moderates the predisposition, interpretation, experience, manifestation, and responses to mental illness; therefore, making it necessary to understand geo-political and sociological aspects, as well as the cultural factors of each group in order to grasp the association between ethnicity and mental health (Kim, 2006). Some resources found to be beneficial to the Iu-Mien community are to provide socialization opportunities to help alleviate the worries that they undergo. Many express their stories of trauma through singing while others find support in dance groups and weekly social group meetings. Sitting with a health professional and disclosing their thoughts and feelings is just not a familiar territory nor may it be comfortable for them; therefore, having these activities incorporated and available as part of mental health services would greatly help to increase service utilization by Iu-Mien people. More studies and research on the Iu-Mien people in general is needed to have a better understanding of how to best provide appropriate health care service to this population. With such limited literature on this ethnic minority group current services provided may not be culturally appropriate. In completing this research project, the researcher hopes to shed light on an underserved population and their mental health 30 needs. The researcher also hopes that this project can provide a better understanding to help bridge the gap of Iu-Mien people and their mental health service disparities. 31 Chapter 3 METHODOLOGY Study Objectives To reiterate, the purpose of this research study is to investigate the knowledge and perceptions Iu-Mien adults have regarding mental health service utilization. This research study hypothesized that the Iu-Mien people possess limited or inadequate knowledge and awareness regarding mental illness and mental health services throughout the greater Sacramento region. As the researcher is a member of the Iu-Mien community, knowledge gained will be used to educate the Iu-Mien people about mental illness and mental health service. The methodology of this research include the study design, sampling procedures, data collection procedures, measurement instruments, data entry and data analysis procedures, and discuss protection of human subjects. Study Design The design of this study is exploratory due to the limited literature on the Iu-Mien population. According to Engel and Schutt (2013), the exploratory research involves learning how people get along in the setting under question, what meanings they give to their actions, and what issues concern them. Engle and Schutt report that the goal of exploratory research is to learn “what is going on here” and to investigate social phenomena without expectations. The exploratory method is appropriate for this study as it will provide further insight for health and human service professionals to better understand the ongoing mental health needs within the minority groups including the IuMien people. Most importantly, researchers will need to identify views, knowledge, and 32 perceptions that the Iu-Mien people have towards mental health and mental illness in order to implement proper programs and services that can be tailored to meet the needs of this population group. Data Collection Procedures To conduct this study, the researcher has developed a survey questionnaire that consists of four main components: (1) background data; (2) knowledge; (3) access; and (4) communication barriers. The researcher intends to recruit 40 Iu-Mien adults in Sacramento County, age 30 and older to participate as research subjects. Adult participants will be recruited conveniently using the snowball sampling such as relative, friends, and acquaintances. Since some Iu-Mien adults do not read/write English, the researcher will conduct all the data collection. The researcher is fluent in Iu-Mien dialect, so participants that cannot read/write English, the researcher will orally translate the questions and answers to the respondents and ask him/her to reply to the questions. The researcher obtained participants phone numbers through relatives who referred researcher to their friends. The researcher contacted participants through the telephone for participation as human subjects. The researcher then scheduled meeting time with participants based on their availability and preference in location. All meetings took place in the participant’s home. Upon face-to-face meeting, the researcher introduced herself and explained the purpose and procedure of this study. The researcher also explained the option of not participating and opting out throughout the process at any time as well as not answering questions that he/she may feel uncomfortable with. 33 Participants were informed of confidentiality. After receiving implied consent from participants, the researcher began the interview questionnaire. Most participants do not read or write English, therefore, the researcher translated each question as needed and participant’s responses were hand recorded onto the interview questionnaire form. Questions asked were categorized into four sections consisting of the participant’s demographic background; knowledge, perception, and understanding of mental illness; access to mental health service; and the communication and language barriers faced in mental health service. In concluding the interview, the researcher reviewed all answers with participant to insure answers were what participants shared. A total of 40 individuals were recruited for participation as human subjects and only 25 participants agreed to participate. Human subjects were recruited during researcher’s winter break and all interview questionnaires were obtained in the participant’s home within a month span. Instruments The research instrument used in this study was developed by the researcher with the assistance of her Thesis Advisor. No standardized instrument is used for the research study. The researcher did not pretest the instrument either; therefore, it has no reliability or validity. Each question is structured to reflect knowledge, views, and perceptions the participant has about mental illness and mental health services so to avoid putting the participant to minimal social and psychological risk. 34 The research instrument contains interview questionnaires that are categorized into four parts. The first part seeks to explore the participant’s background information. Participants are asked to identify their age, gender, marital status, highest education level, primary language, and country of birth. The second part seeks to explore the participant’s knowledge regarding mental illness. There are four exploratory open-ended questions, which encourage participants to share their knowledge and understanding of mental illness. The third part explores the participant’s access to mental health service. This sections includes questions regarding participants health insurance, knowledge on how to access mental health service, and experience of accessing mental health services. Lastly, the fourth part explores the participant’s communication and language barriers. This section asks questions pertaining to whether there are available interpreters in mental health profession and if there are sufficient information provided in Iu-Mien. Human Subject Protection In order for data collection to begin, the researcher had to complete a human subject form with the support of her Thesis Advisor. The human subject form entails the purpose of the study, design of the study, procedure of the study, plan for data analysis, and plan for the protection of human subjects. The human subject form was completed by the researcher during the month of September 2013 and was emailed to her Thesis Advisor for review and somehow got lost in the process of email. The researcher reemailed the human subject application form to her Thesis Advisor in the month of November 2013 along with interview questionnaires to be submitted for review by Sacramento State Committee for the Protection of Human Subjects. The committee 35 reviewed the researcher’s application and found this project to be of minimal risk to participants. The researcher’s human subject application was approved on December 11, 2013 and the approval number for this research project is 13-14-054. The researcher began collection data after notification of application approval. The application approval will expire on December 11, 2014. The implied consent will state that the researcher will orally explain the research purpose, the voluntary nature of the research study, and confidentiality of information shared by the participants. The obtained information gathered from participants will be kept strictly confidential in a locked file cabinet. No identifiable information such as home address, social security number, and date of birth will be collected. The researcher will further explain that once the information gathered is entered into a computer format, the original packet will be destroyed. In addition, the research data will be destroyed six months after the completion of the research study. In addition, only aggregate information will be reported and there will be no incentive for participation. Data Analysis The data collected from the survey questionnaires were entered into SPSS and hardcopies were destroyed. There were no identifying factors entered into SPSS to identify participant’s name. The final report includes only the variables of gender, marital status, education, primary language, health insurance, reliable transportation, service options, service utilization, mental illness terminology, and language support that will be applied to determine the knowledge on mental health service utilization amongst Iu-Mien adults. Questionnaires were categorized into four parts: part one included 36 questions pertaining to participant’s background; part two contained open-ended questions regarding participant’s knowledge of mental illness; part three included participant’s access to mental health service; and part four explored the communication and language of mental health service and mental illness. All questions were coded as A to 1, B to 2 and so on and so forth. The researcher analyzed eleven questions through SPSS system and explained the narrative to remainder of open-ended questions. There were a couple variables that the researcher wanted to talk about but was unable to include in findings section due to limitation of participants. 37 Chapter 4 STUDY FINDINGS AND DISCUSSIONS This chapter reports findings from the participants about their knowledge and understanding of mental health/mental illness, access to mental health service, and the communication and language barriers that prevent participants from utilizing mental health services. The data was conducted in Iu-Mien and outreach was targeted at drawing out the Iu-Mien residing in Sacramento. Overall Findings This research surveyed twenty-five (25) participants from the Iu-Mien community who were ages thirty and older. Table 1 Gender of Participants Frequency Female Male Total Valid 19 6 25 Percent 76.0 24.0 100.0 Valid Percent 76.0 24.0 100.0 Cumulative Percent 76.0 100.0 One of the interests in any research study is background information of the respondents. This research study is interested in knowing the gender of the respondents. As shown in table one, 76.0% (n = 19) were female and 24.0% (n = 6) were male (see Table 1). 38 Table 2 Marital Status of Participants Frequency Single never married Married Divorced Valid Separated Widowed Living w/partner Total Percent Valid Percent 1 16 2 4.0 64.0 8.0 4.0 64.0 8.0 Cumulative Percent 4.0 68.0 76.0 3 12.0 12.0 88.0 2 1 25 8.0 4.0 100.0 8.0 4.0 100.0 96.0 100.0 The marital status of participants is presented in Table 2. Of the twenty-five participants surveyed, 4.0% (n = 1) marked single never married, 64.0% (n = 16) marked married, 8.0% (n = 2) marked divorced, 12.0% (n = 3) marked separated, 8.0% (n = 2) marked widowed, and 4.0% (n = 1) marked living with partner (see Table 2). Table 3 Participant’s Highest Level of Education Frequency none Some college or technical school Undergraduate Valid Post-graduate or professional Prefer not to say Total Percent Valid Percent 10 6 40.0 24.0 40.0 24.0 Cumulative Percent 40.0 64.0 5 3 20.0 12.0 20.0 12.0 84.0 96.0 1 4.0 4.0 100.0 25 100.0 100.0 39 With regards to education level, 40.0% (n = 10) participants marked “none,” 24.0% (n = 6) marked “some college or technical school,” 20.0% (n = 5) marked “undergraduate,” 12.0% (n = 3) marked “post-graduate or professional,” and 4.0% (n = 1) marked “prefer not to say” (see Table 3). Table 4 Participant’s Primary Language Frequency English only Mien only English and Mien Total Valid Percent 3 13 9 25 12.0 52.0 36.0 100.0 Valid Percent 12.0 52.0 36.0 100.0 Cumulative Percent 12.0 64.0 100.0 The participants were surveyed on their primary language and 12.0% (n = 3) of the respondents marked English only, 52.0% (n = 13) of the respondents marked Mien only, and 36.0% (n = 9) of the respondents marked English and Mien (see Table 4). Table 5 Do Participants Have Health Insurance? Frequency Valid Percent Valid Percent Yes 21 84.0 84.0 No Total 4 25 16.0 100.0 16.0 100.0 Cumulative Percent 84.0 100.0 When asked whether participants have health insurance 84.0% (n = 21) of the respondents marked “yes,” and 16.0% (n = 4) of the respondents marked “no” (see Table 5). 40 Table 6 Does Participant Have Reliable Transportation? Frequency Yes No Total Valid Percent 24 1 25 Valid Percent 96.0 4.0 100.0 96.0 4.0 100.0 Cumulative Percent 96.0 100.0 With regards to reliable transportation 96.0% (n = 24) participants marked “yes,” and 4.0% (n = 1) participant marked “no” (see Table 6). Specific Findings One of the purposes of this research is to study the knowledge and perceptions IuMien people have towards mental health service utilization. The survey implemented contained three different variables used to measure access to mental health service. Table 7 Does Participant Think There Are Enough Good Service Options? Frequency Valid Yes No Total Percent 5 20 25 20.0 80.0 100.0 Valid Percent 20.0 80.0 100.0 Cumulative Percent 20.0 100.0 When asked whether participants thought there are enough good mental health service options 20.0% (n = 5) of the respondents marked “yes,” and 80.0% (n = 20) of the respondents marked “no” (see Table 7). 41 Table 8 Participant’s Family Who Sought Service in Past Three Years Frequency Valid Percent Valid Percent Yes No Don't know 4 20 1 16.0 80.0 4.0 16.0 80.0 4.0 Total 25 100.0 100.0 Cumulative Percent 16.0 96.0 100.0 In regards to whether participants had/have any family members who sought mental health service in the past three years 16.0% (n = 4) respondents answered “yes,” 80.0% (n = 20) respondents answered “no,” and 4.0% (n = 1) respondent answered “don’t know” (see Table 8). Table 9 Does Participant Think Iu-Mien Utilize Mental Health Service Correctly? Frequency Valid Yes No Don't know Total 3 16 6 25 Percent 12.0 64.0 24.0 100.0 Valid Percent 12.0 64.0 24.0 100.0 Cumulative Percent 12.0 76.0 100.0 Table 9 inquired into whether participants thought Iu-Mien people utilize mental health service correctly. Of the twenty-five participants 12.0% (n = 3) answered “yes,” 64.0% (n = 16) answered “no,” and 24.0% (n = 6) answered “don’t know” (see Table 9). 42 Table 10 Does Participant Think Iu-Mien Understand Mental Illness Terminology? Frequency Valid Percent Valid Percent Yes No Don't know 1 20 4 4.0 80.0 16.0 4.0 80.0 16.0 Total 25 100.0 100.0 Cumulative Percent 4.0 84.0 100.0 In regards to Iu-Mien’s understanding of mental illness terminology 4.0% (n = 1) of the respondent reported “yes” Iu-Mien people understand mental illness terminology, 80.0% (n = 20) of the respondents reported “no” Iu-Mien people do not understand mental illness terminology, and 16.0% (n = 4) of the respondents reported they “don’t know” if Iu-Mien people understand mental illness terminology (see Table 10). Table 11 Are There Sufficient Iu-Mien Interpreters to Meet the Needs of Iu-Mien? Frequency Yes Valid No Don't know Total Percent Valid Percent 3 12.0 12.0 17 5 25 68.0 20.0 100.0 68.0 20.0 100.0 Cumulative Percent 12.0 80.0 100.0 When asked if participants feel there are sufficient Iu-Mien language interpreters to meet the needs of the Iu-Mien people, 12.0% (n = 3) answered “yes,” 68.0% (n = 17) answered “no,” and 20.0% (n = 5) answered “don’t know” (see Table 11). 43 The participants in the survey were asked to indicate which following Southeast Asian group they thought knew best about mental illness and mental health service. Participants were asked to rank the group from a scale of 1 to 5 with 1 as knowing least about mental illness and mental health service to 5 as knowing best about mental illness and mental health service. The researcher tallied the scores and the results indicate the Vietnamese population as knowing best about mental illness and mental health service and the Iu-Mien population as knowing least. The same scale was used to rank which Southeast Asian group understand and are able to utilize mental health service best to fulfill their mental illness needs. The participant’s results indicate that the Vietnamese population understand and are able to utilize mental health service best to fulfill their mental illness needs. The Iu-Mien population was ranked as least to understand and utilize mental health service to fulfill their mental illness needs. 44 Chapter 5 SUMMARY Overall Summary As a member of the Iu-Mien community who has worked in the mental health field in Sacramento, this researcher is aware of the mental health disparities within the community and the lack of utilization of mental health services. Even though there has been some progress made to reduce the disparities in mental health service utilization for Asian Americans, there still is a low utilization by the Southeast Asian population specifically the Iu-Mien. The researcher conducted this study to gain better insight into the cause of underutilization by Iu-Mien and their current knowledge of and perceptions towards mental health service utilization. The findings of this research suggest that knowledge and perceptions of mental illnesses within the Iu-Mien community are still inadequate. A common Iu-Mien perception of mental illness is one who is crazy or has a brain disease. This suggests that the Iu-Mien people still associate mental illness with the negative connotation of crazy, which may deter one from seeking mental health services due to fear of being stigmatized. The findings also propose that mental illness is caused by bad spirits, genetics, one who is cursed, past life doings, bad luck, and soul loss. These results indicate that the Iu-Mien people still continue to uphold their traditional views regarding causes of mental illness. Other factors causing mental illness identified by participants were stress, family, work, life experience, accidents, school, generational gap issues, and 45 worrying. These findings suggest that perhaps the Iu-Mien people are also aware of the environmental causes of mental illness. Although the findings indicate that a majority of the Iu-Mien have health insurance and reliable transportation to access mental health services, they also indicate that the Iu-Mien do not think there are good enough mental health service options to choose from here in Sacramento County. A majority of participants reported that the IuMien people do not understand mental illness terminologies and do not utilize mental health services correctly. These could be factors associated with education level as ten out of the twenty five participants identified as having no education, or lack of English proficiency, as fifteen out of the twenty five identified Iu-Mien as their primary language. There were only four participants who reported that they have family members who have sought mental health services within the past three years. Their response to the family’s mental health service experience was mostly negative, and the main reason for the negative experience related to language barriers and language support. It is evident that there are just not enough Iu-Mien interpreters to meet the needs of the Iu-Mien people, mostly due to loss of their native language in the younger generation or the older generation not having the education to provide interpreting services that are English proficient. These findings supplement the literature review on causes of underutilization of mental health services by the Iu-Mien community based on their current knowledge of mental illness, access to mental health services, and communication barriers. The IuMien still possess inadequate knowledge and awareness of mental illness and mental 46 health service throughout the greater Sacramento region. It is evident that the Iu-Mien people continue to associate the causes of their mental illness with their traditional views such as mental illness is caused by soul loss. Although there have been improvements in access to mental health services such as health insurance and reliable transportation most Iu-Mien people continue to face challenges accessing services with language support. IuMien people continue to experience restricted access to available mental health service due to limited English proficiency and lack of providers with appropriate language matched abilities. As a result, many of them rely on family members and friends to translate for them. Implications This research project highlighted the mental health disparities within the Iu-Mien community and found a predominant reason for underutilization is the lack of culturally competent services. On the micro level the development of culturally and linguistically competent services should be of the highest priority in providing mental health care for the Iu-Mien population. By providing mental health services in the Iu-Mien language it helps to build trust and allows for one to feel comfortable in expressing their needs in their own words. There is already such a fear of stigma for one who is mentally ill, and having services provided in the Iu-Mien language helps reduce the stigma as it makes one feel as though they are not alone. The ethnic matching of therapists with clients can also assist in more positive mental health outcomes, especially for a population who is relatively less acculturated to U.S. society. Ethnic matching of therapists can help 47 increase length of treatment, as Asian Americans are known to leave treatment prematurely. On a mezzo level, to help increase utilization of mental health services it is important to understand the hierarchy system of the Iu-Mien community. Within each clan of the Iu-Mien people there are Iu-Mien leaders of their community. The community leaders often offer guidance for their clan and most Iu-Mien people highly value their leader’s opinion. By establishing a strong relationship with the Iu-Mien community leaders, one can help launch awareness of mental illness into the community to increase adequate knowledge of mental illness and mental health service utilization. In addition, providers may want to consider support groups in the community tailored to their client’s cultural activities such as gardening. Gardening was one of the means of survival for the Iu-Mien as they lived in the mountainous regions of Laos. They survived off of the crops they grew and this was their way of life. Providing Iu-Mien clients with a sense of a familiar way of life can assist with more positive mental health outcomes as it helps them feel normal in a society in which they have difficulty acculturating. Support groups that allow the Iu-Mien to preserve their traditions may also benefit one’s mental health. One of the environmental attributes of mental illness for the Iu-Mien was the generational gap. Younger generations have lost sense of the Iu-Mien’s tradition, culture, and language. Iu-Mien parents currently face challenges of communicating with their children and worry that their children will not be able to continue with traditions when they pass away and fear that their souls will not be honored properly in the afterlife. 48 At the macro level, perhaps providers can advocate for the development and implementation of programs and services that are ethnic-specific. Asian Americans represent such very diverse populations in terms of ethnicity, language, culture, education, income level, English proficiency, and sociopolitical experiences that it is important to recognize the differences among the groups. Advocating for the development and implementation of programs that best cater to the needs of specific subgroups such as the Iu-Mien can help increase mental health service utilization as well as increase the likelihood that mental health services will be effective for the individual. Suggestions for Future Research Currently, there is some literature examining the mental health needs of Asian Americans, but most literature does not focus specifically on subgroups such as the IuMien. Given the limitations of literature on the Iu-Mien people, additional empirical research investigating the mental health needs of this population is necessary in many areas. First, it is important when diagnosing Iu-Mien individuals to avoid using the traditional mental status exam. Iu-Mien typically do not express their psychological problems the way individuals from the Western culture would; therefore, there is a need for culturally sensitive assessment tools to be developed and validated for use with IuMien clients. Secondly, there have been generational gap issues within the Iu-Mien families. Future research needs to examine the social and familial context as family members acculturate at different rates that can often stress the family system. Thus, an important area to examine is the long-term adjustment of Iu-Mien youth and how it affects the family dynamics with their parents who are first generation refugees. Another 49 recommendation for future studies is to examine the complex multidimensional interaction of the experiences endured by Iu-Mien to better address the mental health needs of this population. Studies suggest that each Southeast Asian group has different pre-immigration and post-immigration factors that are related to levels of depression, anxiety, and psychosocial dysfunctions. Moreover, further research could examine the presence of somatic complaints in Iu-Mien who are not suffering from psychiatric disorders to distinguish this syndrome from that occurring in association with depression and PTSD. Finally, future studies can focus on the unique resilience of this population that plays a vital role in successful adjustment. Examining the strengths and resiliency of this population has direct implications for the development of prevention and intervention programs for future refugees. Limitations Due to the small sample size of participants in this research project findings are not reflective and are not a representation of the Iu-Mien community as a whole. Also, the findings of this research project included only participants from the greater Sacramento region; therefore, the results do not apply to other Iu-Mien residing in any other areas. Considering the limited literature on the Iu-Mien people this project was developed by using literature on other Southeast Asian subgroups that had similar war and immigration related experiences. Conclusion This research intended to explore the knowledge on mental health service utilization among Iu-Mien adults. In doing this research project, the finding presents that 50 there are still mental health disparities within the Iu-Mien community here in Sacramento County. Results indicate that the Iu-Mien people have little improvement in utilizing mental health services as their understanding of mental illness continues to deter one from seeking out service. In addition, the Iu-Mien people feel that there are not enough good mental health service options due to lack of ethnic-matching health professionals or providers that provide sufficient Iu-Mien language interpreters. In order to help bridge the gap of mental health service utilization it is important for service providers to consider the Iu-Mien’s culture, traditional belief system, and their understanding of mental illness to help facilitate a more appropriate treatment that meets the needs of the individual. 51 APPENDIX A QUESTIONNAIRE 52 KNOWLEDGE ON MENTAL HEALTH SERVICE PART I: Background data 1. What is your gender? a. Female b. Male 2. What is your age? a) 30-39 b) 40-49 c) 50-59 d) 60+ 3. What is your marital status? a) Single never married b) Married d) Divorced e) Separated f) Widowed g) Living w/ partner 4. What is the highest level of education you completed? a) None b) Some high school c) High school d) Some college or technical school 53 e) Undergraduate f) Post-graduate or professional g) Prefer not to say 5. What do you consider as your primary language to be? a) English only b) Mien only c) English and Mien 6. Where is your birth country? a) Laos b) Thailand c) United States PART II: The following questions ask you for your knowledge regarding mental illness 1. What is the first thing that comes to mind when hearing the word mental illness? Please explain to me how you would define mental illness. __________________________________________________________________ __________________________________________________________________ 2. What do you think causes mental illness? Please explain your thoughts on how mental illness occurs. __________________________________________________________________ __________________________________________________________________ 3. What do you think are some of the symptoms presented in one who is mentally ill? Describe symptoms. 54 __________________________________________________________________ __________________________________________________________________ 4. This question applies only to those who are born outside the United States. If participant is born in the US, skip to part III. Since arriving and living in the United States, does your perception of mental illness change? a) Yes; please explain why/how: ___________________________________ b) No; please explain why/how: ____________________________________ PART III: Access to mental health services 1. Do you have medical insurance/healthcare insurance? a) Yes b) No 2. Do you have reliable transportation to get to where you need to go? a) Yes b) No 3. Do you know where to go for help if you or a family member was in need of mental health service? a) Yes b) No 4. If you or a family member was in need of mental health service, do you think there are enough good service options to choose from? a) Yes b) No 55 5. Have any family of yours ever sought mental health service in past three years? a) Yes b) No c) Don’t remember 6. Incase YES to the above question, describe your experience of that service. Either talk about the positive or negative experience. __________________________________________________________________ __________________________________________________________________ 7. In your personal knowledge, do you think the Iu-Mien people utilize mental health service correctly? a) Yes b) No c) Don’t know 8. Which of the following Southeast Asian groups do you think know best about mental illness mental health services? Please rank them from 1-5 with 1 knowing least and 5 knowing best. ____ The Cambodian ____ The Hmong ____ The Mien ____ The Laotian ____ The Vietnamese 56 9. Which of the following Southeast Asian groups do you think understand and are able to utilize mental health services best to fulfill their mental illness needs? Please rank them from 1-5 with 1 understanding least and 5 understand most. ____ The Cambodian ____ The Hmong ____ The Mien ____ The Laotian ____ The Vietnamese PART IV: Communication and Language 1. Do you think the Iu-Mien understand mental illness terminology? a) Yes b) No c) Don’t know 2. Do you think mental health service providers in the greater Sacramento region provide sufficient information in Iu-Mien to the Iu-Mien people? a) Yes b) No c) Don’t know 3. Do you feel that mental health service providers in the greater Sacramento region provide sufficient Iu-Mien language interpreters to meet the needs of the Iu-Mien people? a) Yes 57 b) No c) Don’t know Do you have any additional comments regarding mental illness in the Iu-Mien community that you would like to share with me today? 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