PERCEPTIONS OF HEALTH CARE AMONG HMONG AMERICANS A Project Presented to the faculty of the Division of Social Work California State University, Sacramento Submitted in partial satisfaction of the requirements for the degree of MASTER OF SOCIAL WORK by Stacy Thang Yang SPRING 2012 © 2012 Stacy Thang Yang ALL RIGHTS RESERVED ii PERCEPTIONS OF HEALTH CARE AMONG HMONG AMERICANS A Project by Stacy Thang Yang Approved by: __________________________________, Committee Chair Serge C. Lee, Ph.D. ____________________________ Date iii Student: Stacy Thang Yang I certify that this student has met the requirements for format contained in the University format manual, and that this project is suitable for shelving in the Library and credit is to be awarded for the Project. __________________________, Graduate Coordinator Dale Russell, Ed.D., LCSW Division of Social Work iv ________________ Date Abstract of PERCEPTIONS OF HEALTH CARE AMONG HMONG AMERICANS by Stacy Thang Yang The Hmong immigrated to America as a result of various life threatening conditions that prevented them from being able to live an ordinary life. Despite the huge population of Hmong who have settled in California, Minnesota, Wisconsin and Michigan, they still experience challenges when utilizing the modern health care system and its services. This study explores Hmong Americans’ perceptions toward both traditional and modern health care and their utilization of these services. Participants in this study were Hmong American adults who are former refugees and immigrants from Laos and Thailand. The findings of this research study reveal that there are indeed challenges and obstacles that have prevented Hmong Americans from utilizing modern health care, as well as its services, such as different philosophies toward health and illness, providers’ lack of understanding about the Hmong’s cultural beliefs and/or practices, and lack of sufficient English comprehension skills to communicate with health care providers. _______________________, Committee Chair Serge C. Lee, Ph.D. _______________________ Date v DEDICATION I would like to dedicate the completion of my Master’s Project to my mother, Zang Thao (Zaag Thoj) for her insurmountable struggles and sacrifices that she has endured while being both a mother and a father figure for all her children, and for raising me to be the decent person that I am today. If not for her genuine heart, unwavering support, patience, determination, and perseverance, my life path would have been very different today. Words cannot express my gratitude for what she has done for me, and I am forever grateful that I have a strong mother like her in my life. Mom, I know that you are battling with cancer at this current time, but with your resiliency and strong spirits you will be able to overcome your illness. I believe in your courage and ability to fight against your illness, and there is no doubt that a strong person like you will be able to do so. No matter how the future unfolds, I will be by your side to provide my support, encouragement and unconditional love. Mom, I love you very much and I have no doubt that you will get better soon. vi ACKNOWLEDGEMENTS First of all, I would like to thank my father, Txawj Tooj Yaaj, for his love, struggles, and sacrifices that he has endured in bringing my family and I to America, where we were given the opportunity not only to receive an education, but to also pursue higher education. Father, although you are not able to celebrate and witness my accomplishments (obtaining a Master’s degree), I know that you would have been proud of me as is my mother and siblings too. My deepest appreciation is extended to my parents Nkaaj Muas Yaaj and Zaag Thoj for their unconditional love, support, encouragement and for always emphasizing the importance of education. If not for both of your continual inspirations and believing in me, I would not be where I am today. Thank you very much and I love you both dearly! To my grandparents, Tsaav Kum Yaaj and Phuab Xyooj, for their nurturing, guidance, and love. Thank you grandma (Phuab Xyooj) for your patience in teaching me how to sing traditional Hmong songs (Lug Txaj). Grandma, although you are no longer here to witness my achievement, I know that you would have been proud of me as is the rest of the family. To my siblings, JeFong, Lou, Zoua, Sheng, Jenny, Julie and Melody, and my sister-in-law, Xe for their encouragement, support and love that they all have provided me throughout my educational years. I would not be where I am today without your vii countless patience and understanding, especially when I am not able to help around the house. I love you all very much! I would like to express my appreciation to my thesis advisor, Dr. Serge C. Lee, for his patience, guidance and support throughout this research project. Without his help and support, I would not have completed this research project. To Jamie Brezinski for her encouragement, patience and understanding. Thank you for your genuine heart, friendship, emotional support and for being my partner in “crime” throughout our two-years in the graduate program, which I truly appreciate. I would like to thank my writing tutor David Reynolds for his time, effort, and patience while supporting me in completing my thesis. Lastly, I would also like to convey my appreciation and thanks to all the Hmong participants who voluntarily participated and contributed to this research project. Without their support and willingness to share their views of both traditional and modern medical care, as well as their utilization of such services, this research project would not have been possible. viii TABLE OF CONTENTS Page Dedication .......................................................................................................................... vi Acknowledgements ........................................................................................................... vii List of Tables .................................................................................................................... xii Chapter 1. THE PROBLEM ............................................................................................................. 1 Introduction ........................................................................................................... 1 Background of the Problem ................................................................................... 2 Rationale ................................................................................................................ 6 Theoretical Framework ......................................................................................... 7 Limitations............................................................................................................. 9 Definition of Terms ............................................................................................... 9 2. REVIEW OF THE LITERATURE .............................................................................. 10 Introduction ......................................................................................................... 10 An Overview of Health Care ............................................................................... 11 History of the Hmong .......................................................................................... 12 Hmong Cultural Beliefs and/or Practices as Related to Modern Health Care .... 14 Prevalence Rates of Illnesses .............................................................................. 16 Education ............................................................................................................. 18 Language ............................................................................................................. 19 ix English as a Second Language ............................................................................ 21 Mistrust in Providers ........................................................................................... 21 Decision Making ................................................................................................. 22 Mental Health ...................................................................................................... 23 Current Health Care Policies and Procedures ..................................................... 24 Common Health Care Models Practiced by Asians ............................................ 27 Types of Hmong Health Care .............................................................................. 29 Local Health Care Programs and Services Serving the Hmong Community...... 34 Summary ............................................................................................................. 35 3. METHODS ................................................................................................................... 36 Introduction ......................................................................................................... 36 Research Design .................................................................................................. 36 Data Collection Procedures ................................................................................. 37 Research Subjects ................................................................................................ 39 Instrumentation .................................................................................................... 39 Human Subject Protection ................................................................................... 40 Data Analysis Plan .............................................................................................. 41 4. RESULTS ..................................................................................................................... 42 Introduction ......................................................................................................... 42 Demographic Characteristics .............................................................................. 43 Key Findings Related to the Research Purpose................................................... 51 x Qualitative Responses by the Participants........................................................... 64 5. CONCLUSION AND IMPLICATION ........................................................................ 73 Introduction ......................................................................................................... 73 Summary ............................................................................................................. 73 Conclusion ........................................................................................................... 74 Implications for Social Work Practice ................................................................ 78 Recommendations for Service Providers ............................................................ 80 Recommendations for Future Research .............................................................. 82 Appendix A. Consent Form .............................................................................................. 85 Appendix B. Questionnaires in English ............................................................................ 87 Appendix C. Questionnaires in Hmong ............................................................................ 95 References ....................................................................................................................... 103 xi LIST OF TABLES Table Page 1. Table 1 Age Category of Participants ........................................................................... 43 2. Table 2 Sex of Participants ........................................................................................... 43 3. Table 3 Birthplace of the Participants ........................................................................... 44 4. Table 4 Marital Status of Participants ........................................................................... 44 5. Table 5 Highest Level of Education ............................................................................. 45 6. Table 6 Where Education was received ........................................................................ 46 7. Table 7.1 Numbers of Years Participants Have Lived in the U.S. ............................... 46 8. Table 7.2 Numbers of Years Participants Have Lived in the U.S. ............................... 47 9. Table 8 How Well Do You Understand English? ......................................................... 48 10. Table 9 How Well Do You Speak English? ............................................................... 49 11. Table 10 How Well Do You Read in English? ........................................................... 49 12. Table 11 How Well Do You Write in English? .......................................................... 50 13. Table 12 Religious Preference .................................................................................... 50 14. Table 13 Family Member for Treatment Decision ..................................................... 52 15. Table 14 Most Likely to be First Person to Help When a Family Member Becomes Ill ................................................................................................................. 53 16. Table 15 Ever Reluctant to Utilize Modern Medical Care in the Past........................ 53 xii 17. Table 16 Encountered Problems or Concerns with Previously Sought Modern Medical Care ............................................................................................... 54 18. Table 17 Modern Medical Doctor Knowledgeable of Cultural Background ............. 54 19. Table 18 Felt Disrespected by a Modern Medical Doctor .......................................... 55 20. Table 19 Felt Devalued by a Modern Medical Doctor ............................................... 55 21. Table 20 Modern Medical Doctors Have Knowledge/Understanding of Cultural Beliefs/Practices .......................................................................................... 56 22. Table 21 Sought Help From a Traditional Healer Such as a Shaman ........................ 56 23. Table 22 Sought Help From a Healer/Soul Caller ...................................................... 57 24. Table 23 Sought Help From an Herbalist ................................................................... 57 25. Table 24 Sought Help From a Modern Medical Doctor ............................................. 58 26. Table 25 Has Your Understanding of Illness Changed in Recent Years .................... 58 27. Table 26 (a) How Well Understands English * Highest Level of Education ............. 59 28. Table 26 (b) Symmetric Measures .............................................................................. 60 29. Table 27 (a) How Well Understands English * Ever Reluctant to Use Modern Medical Care in the Past .............................................................................. 61 30. Table 27 (b) Chi-Square Tests .................................................................................... 61 31. Table 28 (a) Ever Reluctant to Use Modern Medical Care in the Past * Sought Help From a Modern Medical Doctor .................................................................. 62 32. Table 28 (b) Chi-Square Tests .................................................................................... 62 xiii 33. Table 29 (a) Has Your Understanding of Illness Changed in the Past Years * Encountered Problems/Concerns with Previously Sought Modern Medical Care ............................................................................................................. 63 34. Table 29 (b) Chi-Square Tests .................................................................................... 63 xiv 1 Chapter 1 THE PROBLEM Introduction The United States is a culturally diverse society which is home to a large population of immigrants and refugees from around the world. Thousands of these immigrants and refugees have settled in the U.S. for various reasons including economic advancement, educational opportunities, and flight from religious and political persecution (Warmer & Mochel, 1998). Hmong Americans began emigrating to the U.S. from Laos after the Vietnam War ended in 1975, entering the US as political refugees. The 2000 U.S. Census Bureau enumerated the Hmong population to be 186, 310, with the largest concentration of Hmong in California at just over 65, 000, followed by Minnesota (41, 800), Wisconsin (33, 791), North Carolina (7, 093) and Michigan (5, 383). However, it is believed that the Hmong people may have been under counted for the census, as many Hmong may have identified themselves as Laotian while others retain their identity as Hmong (Pfeifer & Lee, 2004). According to the 2010 census, the total Hmong population is estimated to be 245, 807, which has increased by approximately 60 thousand from the 2000 census (U.S. Census Bureau, 2010). In the United States, the medical care trend has shifted first from inpatient care to outpatient care to preventive health care, which has allowed the scope of health services to broaden. As a result, it has included not previously considered related medical care such as weight-reduction programs, counseling, birthing classes, and lifestyle and stress 2 management instead of relying solely on formal services such as physicians and hospitals (Ma, 1999). Thomas (1993) defines health care as any means that may have direct or indirect association with safeguarding, maintaining, and/or improving the health status which involves activity such as visiting the physician and/or selecting an appropriate diet or exercise (as cited in Ma, 1999). Medical care is the provision of care to all, which is medically authorized by doctors that rely on clinical emphasis of the “germ theory” and the biomedical model (Ma, 1999). Although the Hmong have settled in the United States for more than thirty years, they still encounter barriers and challenges as a result of their different cultural beliefs and practices regarding health and illness when accessing and receiving services from modern health care. Warmer and Mochel (1998) explain that American health care providers do not look at the individual as part of a broader social setting; instead they focus on the disease and illness of the individual. In contrast, when a Hmong is sick, the family seeks an herbalist first, and if those remedies fail the shaman becomes the preferred form of treatment approach for physical or mental ailments. The Hmong believe that when illness becomes untreatable, it is caused by their ancestors or evil spirits. Western health care models become the last source of care for some Hmong individuals and families. Background of the Problem Modern health care views illnesses as having organic or psychological causes; however, disease in traditional Hmong health care is believed to be understood as a 3 disruptive interaction of souls, spirits and persons, which are balanced and dynamic in nature (Platnikoff, Numrich, Wu, Yang & Xiong 2002). As Uba (1992) and Parker and Kiatoukaysy (1999) state, traditional Hmong believe that the primary cause of illness is “soul loss,” and a person is believed to have a certain number of souls. It is believed that “a person’s soul may leave the body when he or she is depressed, lonely, has experienced a personal loss, or is frightened” (Parker & Kiatoukaysy, 1999, p. 512). As a result of the Hmong’s cultural practices and beliefs about the body and the soul, there have been clashes between the Hmong and Western health care practitioners, and problems in how services were viewed by some Hmong. Although some doctors and healthcare practitioners may feel that Hmong patients are neglecting to follow through with western healthcare’s guidelines, often times this is due to cultural differences rather than compliance issues. Upon entering the United States, refugees and immigrants are provided with health examinations to identify potential medical conditions, such as active TB, mental health issues, HIV/AIDS, and other conditions that may pose a danger to themselves and others. There are many significant health issues among refugees and immigrants, and over 70% of refugees in California were found to have at least one significant health problem. The Hmong, in particular, are found to have high incidences of hypertension, kidney stones, and diabetes, especially among the elderly population, who have little or no English language skills (Allen, Matthew & Boland, 2004). Other major health concerns, identified by the Queensland Government (2003) and Nicholson (1997), among 4 the Hmong population include tuberculosis, cardiovascular disease, hepatitis B carrier status, asymptomatic splenomegaly, sudden unexpected nocturnal death syndrome, diabetes, and posttraumatic stress disorder (as cited in Pinzon-Perez, 2006). Furthermore, the Queensland Government (2003) found that Hepatitis B carrier status has reached endemic portions within the Hmong population, and that their rates of asymptomatic splenomegaly are three times higher than that of general Southeast Asian population (as cited in Pinzon-Perez, 2006). In addition, there have been higher rates of nasopharyngeal carcinoma, gastric, hepatic and cervical cancer found in the Hmong population. Important contributors for cancer mobility and mortality in the Hmong population are due in part to genetics, problems with accessing health care services and diet-related issues (Pinzon-Perez, 2006). Despite the prevalence of these health problems that the Hmong encounter within their communities, they appear to have conflicts when communicating with health care professionals, and utilizing modern health care. As a result, a majority of Hmong Americans fail to follow through and/or comply with orders from doctors and other health care professionals. The Spirit Catches You and You Fall Down by Fadiman (1997) is an example of the disconnect that discusses the collision of two different cultures, a Hmong family and the staff at a Merced hospital, when a Hmong girl named Lia Lee is diagnosed with epilepsy. The treatments required for Lia’s epilepsy became a struggle for her family as a result of the Hmong’s cultural beliefs about the body and the soul. The hospital failed to recognize the family’s strong cultural beliefs of shamantic healing 5 rituals, which caused miscommunication and misunderstanding between the family and the hospital in regards to the necessary treatments for Lia. As a result of their strong rooted cultural beliefs about the sources of illness and appropriateness of treatments, Lia’s family preferred to seek a shaman first before utilizing modern health care. Another case story, which is found in Healing by Heart: Clinical and Ethical Case Stories of Hmong Families and Western Providers by Cullhane-Pera, Vawtex, Xiong, Babbitt and Solberg (2003), demonstrated a doctor’s lack of understanding of the Hmong’s cultural beliefs and a family’s desire to perform khawv koob (magic healing), as well as the parents’ refusal to allow life-saving biomedical treatments to treat their son, Neng’s fever. Neng is a three-month-old boy whose parents brought him to see his doctor and asked the doctor for medicine to reduce his fever because of a cold that he had. Even though Neng had a fever of 103°F and was fussy, he was easily consoled. As a result of the doctor’s concern of possible bacterial meningitis or bacterial infection in the blood, Neng’s parents were told they needed to draw Neng’s blood, get a urine sample with a catheter, and lumbar puncture to identify whether there was any indication of bacteria in his blood, urine, or spinal fluid. Neng’s parents were alarmed at the doctor’s evaluation, and they refused the doctor’s recommended interventions. Despite the risk of Neng dying from meningitis or bacteremia, the family still refused and wanted to take him home. A security guard was immediately called by the doctors to escort Neng’s parents to the emergency room, a police hold was obtained and a court order was issued for Neng to undergo treatment. By the time Neng’s grandparents arrived, Neng 6 was alert and playful as his temperature had decreased to 100.8° F. Neng’s grandfather wanted to take Neng home for khawv koob but the doctor refused, wanting to examine Neng’s blood and spinal fluid. While the security guard was distracted, the family took Neng and drove away in a car. The police came to Neng’s home, but Neng was nowhere to be found. Because of this traumatic cultural encounter with the doctor, Neng’s parents questioned “Why did the doctors want to do such awful things to their son when he was not very sick? Why did the doctors treat them like dogs, without rights and responsibilities toward their beloved son?”(Culhane-Pera, Vawter, Xiong, Babbitt & Solberg, 2003, p. 118). Consequently, the culture gap created tension and misunderstanding between Neng’s parents and the doctor in providing effective treatments for Neng’s fever. Rationale As a Hmong woman who immigrated to America as a young child, the author of this study has encountered and seen many challenges that prevented Hmong families, including my own family, from successfully accessing the modern health care system. I have noticed the different cultural belief systems, the insufficient understanding of the English language, the lack of healthcare professionals’ cultural competency, and different views and understanding of approaches and treatments within modern health care. The author’s interests are to understand perceptions that Hmong Americans have in regards to modern health care, as well as barriers and/or challenges that may have prevented Hmong families from seeking and utilizing modern medicine or its services. 7 More importantly, this author hopes to gain a better understanding of the reasons behind the Hmong’s cultural beliefs and practices, in order to increase health care professionals’ and social workers’ knowledge when working with the Hmong population and to improve the relationship between practitioners and Hmong patients. Moreover, this author’s intent is to create a friendly and understanding environment in which the Hmong feel comfortable in expressing and addressing their concerns in regards to health and illness in relation to their cultural beliefs. The results that the author is hoping to find are that the influence of Hmong Americans’ cultural beliefs, their lack of knowledge about treatment procedures, their lack of a sufficient understanding of the English language, and modern health care professionals’ lack of cultural awareness and understanding are the contributing factors to Hmong Americans’ challenges when utilizing modern health care. Theoretical Framework The Ecological perspective and cultural competency approach will be utilized in this research project. The ecological perspective identifies the individual/person as an active agent in his or her environment (Schriver, 2004). This perspective is an integrative framework that takes into account the individual’s environmental factors, enabling the individual to transition, maneuver and develop as the individual comes into contact with different systems. It also emphasizes the importance of relationships, adaptations, interactions, and the behavior of the individual in his or her environment as related to oppression (Kirst-Ashman & Hull, 2006; Robbins, Chatterjee & Canda, 2006). The 8 ecological perspective’s core focus has to do with the interrelatedness between the environment and the individual. Similarly, the Hmong are interconnected with their cultural beliefs regarding the cause of illness and treatment procedures which are viewed differently from modern health care practices. Dill (1999) defines the cultural competency approach as “the experiential awareness of the worker about culture, ethnicity, and racism; knowledge about historical oppression and related multicultural concepts; development of skills to deal effectively with the needs of the culturally diverse client” and the continuous acquisition of knowledge regarding multicultural skills (as cited in Schriver, 2004, p. 126). According to this approach, not having an understanding of the theoretical foundation of cultural competence can potentially affect how professionals provide and deliver care to clients/patients of diverse cultures. The lack of cultural competency within modern health care has created barriers and challenges for Hmong American families who are seeking medical treatments and are attempting to comply with medical advices. Because of the complexity of Hmong Americans’ cultural beliefs and/or practices as related to health and illnesses, it is imperative that these two approaches are taken into consideration. These approaches will enable health care providers and health professionals to gain a better understanding and be culturally sensitive to Hmong Americans’ cultural beliefs and/or practices, as well as the many challenges that they may have endured while settling in America. 9 Limitations Only 30 Hmong Americans participated in this research study and a majority of those participants are in Sacramento County. Therefore, data collected and issues discussed and analyzed in this study may not be generalized to the larger Hmong population in the United States. Secondly, some participants felt they did not know how to respond to the questions that were being asked or were fearful that the study might intrude into their private lives. Lastly, a majority of the Hmong Americans who participated in this research study are 61 years of age or older, which limits the views and perceptions that younger Hmong American individuals have toward both modern and traditional health care. Definition of Terms Nocturnal Death Syndrome: Adler (1995) describes nocturnal death syndrome as being “attributed to a nightmare or attack by an evil spirit that threatens to press the life out of its terrified victim” (as cited in Yee, 2011, p, 8). Khawv Koob (magic healing): Cha (2003) explains that magical healing “is performed to frighten, negotiate with, or trick the spirits into leaving the patient alone, and to relieve pain, swelling, vomiting, and bleeding, and it is, by and large, men who learn and practice this technique” (p. 115). 10 Chapter 2 REVIEW OF THE LITERATURE Introduction There are more than 30 million immigrants and refugees currently living in the United States; however, they often have difficulty getting appropriate health care services (The Robert Wood Johnson Foundation, 2011). Further, they encounter high rates of chronic health problems and poor access to adequate health care (Asgary & Segar, 2011). In the United States immigrants and refugees have distinct legal statuses, and may be entitled to access different levels of public benefits, such as health insurance (Massachusetts Department of Public Health [MDPH], 2007). Allen, Matthew and Boland (2004) state that legal immigrants are those admitted for humanitarian reasons, which include refugees and asylums. According to the Refugee Act of 1980, a refugee is defined as a person who fears persecution from their own country/homeland due to their race, nationality, or political opinion (Hsu, Davies & Hansen, 2004). An immigrant, on the other hand, is defined as a resident who has gained legal permanency under the U.S. immigration law (MDPH, 2007). Asgary and Segar (2011) defined asylum as an individual who applies for protection and has been granted permission by their host country government. Asylees and refugees are similar except that Asylees receive their status post immigration to the U.S. (MDPH, 2007). Due to limited information on Hmong immigrants and refugees, this author plans to incorporate relevant literature on other closely related Southeast Asian immigrant groups. 11 This chapter reviews previously conducted research about Hmong Americans’ perceptions of traditional and modern health care, as well as utilization of services. Furthermore, the review of literature will examine significant findings, and it will include the following themes: 1) an overview of health care; 2) history of the Hmong; 3) Hmong cultural beliefs and/or practices as related to modern health care; 4) prevalence rates of illnesses; 5) education; 6) language; 7) English as a second language; 8) mistrust in providers; 9) decision making; 10) mental health; 11) current health care policies and procedures; 12) common health care models practiced by Asians; 13) types of Hmong health care; and 14) local health care programs and services serving the Hmong community. An Overview of Health Care Kleinman (1978) clarified that the Western health care system has a distinct biomedical viewpoint in which practices are “based upon particular Western explanatory models and value orientations, which in turn, provide a very special paradigm for how patients are regarded and treated” (as cited in Warmer & Mochel, 1998, p. 6). As Specter (1994) asserted, biomedical view is believed to have no alternative forms of healing and/or healers. This is the belief that Western biomedicine is remotely superior to other medical system in the world (as cited in Warm & Mochel, 1998). As a result of these insensitive beliefs about the principles of causation, diagnosis, and treatment of disease, Western biomedicine’s considerations of cultural differences are nonexistent (Warmer & Mochel). 12 Biomedicine focuses on the germ theory of disease, as well as the biomedical model, in which causes of diseases are determined through the use of blood tests and other diagnostic procedures (Ma, 1999; Warmer & Mochel, 1998). Sperstad and Werner (2004) stress that there are philosophical differences between Hmong culture and the Western world regarding causes of illness. Unlike Western germ theory, the Hmong believe that illness may be caused by four major forces: natural, supernatural, social, and personal. As Warmer and Mochel (1998) state, most non-Western cultures believe that the causes of illness are the result of soul loss, spirit possession, or breach of taboo rather than germ theory. History of the Hmong The Hmong in Asia. The Hmong, which translates “free men,” are a tribal group from the mountainous regions of Laos (Raidan & Higgs, 1992). According to Parker and Kiatoukaysy (1999), the Hmong are believed to have left China about 400 years ago to resettle in Burma, Laos, Thailand, and Vietnam. Since the Hmong only resided in the mountains, and lived in isolation, they were without a language and had no formal schooling until 1951. Xiong (1994) and Duchon (1993) state that even after schooling was made available for some Hmong it was provided in the Laotian language because the Hmong’s written language was not yet developed by missionaries until the 1950s in Laos and Thailand (as cited in Parker & Kiatoukaysy, 1999). After the French withdrew from Laos, Vietnam and Cambodia in the late 1950s, the United States Central Intelligence Agency (U.S. CIA) arrived in Laos and learned that 13 the Hmong were suitable for military use. As a result of the Hmong’s bravery and reputation as military personnel among the French, they were recruited, trained, and armed as guerillas for the United States Army’s secret war in Laos. More than 30, 000 Hmong were recruited to support the anticommunist government in Laos and fight along the Ho Chi Minh Trail to prevent the Communists from passing through Laos into South Vietnam. The Hmong soldiers not only fought on the ground and directed air strikes by American pilots, but they also rescued American pilots when they were shot down by the Vietcong in Northern Vietnam and Northern Laos (Xiong, 1994; Fadiman, 1997). The Hmong in the U.S. In 1975 the U.S. CIA withdrew from the Vietnam War, and, as a result, the Communist Pathet Lao took over (Parker & Kiatoukaysy, 1999). See (2003) reported that nearly two thirds of the Laotian Hmong soldiers died from starvation, disease, and combat resulting from the war. After Laos came under the control of Communist rule, the Hmong’s economic social stability was severely disrupted (Xiong, 1994). In spite of the Hmong’s strong collaboration and alliance with the U.S., the Hmong were abandoned by the U.S. and isolated themselves within the high mountainous regions Laos to avoid retaliation from the Communists (Xiong, 1994; Hamilton-Merritt, 1993). As a result of being targeted by the Communists, the Hmong left their homeland and crossed the Mekong River into Thailand and settled in refugee camps (Rairdan & Higgs, 1992; Perez & Cha, n.d). After many years of settlement in the refugee camps in Thailand, the Hmong had to be relocated to a different place due to the closing of the refugee camps. The only solution for the Hmong residing in the refugee 14 camps was to immigrate to the United States, as agreed to by the American government during the Hmong’s collaboration with the U.S. CIA during the Vietnam War. The Hmong immigrated to the United States from the 1980s through 1995 because of the closing of the refugee camps in Thailand. They eventually settled in other Western countries, including Australia and France, but the majority remained in the United States (Johnson, 2002). Hmong Cultural Beliefs and/or Practices as Related to Modern Health Care Practitioners are often frustrated with ethnic patients who do not seek regular or preventive care. This leads to the misconception by practitioners that minority groups do not care about their health; however, practitioners fail to recognize that minority groups have different beliefs, priorities, and access to regular health screenings. Furthermore, many people are reluctant to seek medical care unless necessary, as it interferes with their daily life. For example, oftentimes Hmong immigrants believe that discussing a health problem which they don’t have may potentially increase its likelihood of occurring. As a result of different beliefs about health, diabetes may not be detected at an early stage, but may only be detected when care is sought for other problems. Having a heavier physique, which Western health care considers unhealthy, is a sign of good health among ethnic groups such as the Navajo and Utes who believe it is indicative of health and happiness, and some Chinese see it as an indication of blessing relating to wealth and prosperity (Tripp-Reimer, Choi, Kelley & Enslein, 2001). 15 Although biomedicine is a minor part in Hmong ideologies of health and illness, it is minimally considered for treatment of certain illnesses and injuries. According to Hurlinch, Holtan and Munger (1986) and Kirton (1985), biomedicine, in some cases, has its part in Hmong health care; however, it is thought to be potentially dangerous (as cited in Capps, 1994). A common fear among Southeast Asian Refugees is invasive medical procedures such as venipuncture because it does not exist in the Hmong traditional medical practice. For example, venipuncture brings about the fear of disturbing the balance between hot and cold within the body such as drawing of blood for medical purposes. Southeast Asian Refugees associate the drawing of blood with the military need for blood that was given to American troops. However, this is a misconception among refugees who lack the education, knowledge, and awareness that the body can compensate and reproduce the amount of blood lost in the body. Western medicine is generally classified as hot, and perceived as very effective, which often times is too effective for Southeast Asians’ physiology (Muecke, 1983). Due to the lack of understanding that Hmong have regarding invasive procedures, medical attention and a hospital stay may be avoided. For example, the Hmong fear surgical treatment of diseases because it could weaken spiritual health, souls may leave the body during surgery, or it may leave the soul miserable or unwhole in the next reincarnation (Her & Culhane-Pera, 2004; Cobb, 2010). Many Hmong also take issue with end of life decisions about organ donation, as it is believed that the donor may be reborn in the next life without all of their vital organs. Furthermore, a family member’s 16 donation of the dying elder’s organs is viewed as a form of disrespect that may anger the ancestor, who, in turn, may create mischief for those who are still living (Yee, 2011). Prevalence Rates of Illnesses There are many health issues among Southeast Asian Americans, particularly within the Hmong American population. Mills, Yang and Riordan (2005) found that during 1988-2000, cancer incidence of the stomach, liver, cervix and nasopharynx was elevated among Hmong in California, compared to non-Hispanic whites. Mills and Yang (1997), conducted a study using reported cancer data from the Cancer Registry of Central California (CRCC), found that the age-adjusted cancer-incidence for liver cancer among the five cases found in this study was 7.1 per 100,000 amongst the Hmong population. This is in between the rate for the All Races group and the Asian/Other group. The rate for age-adjusted cancer-incidence for all cancer sites combined was 275 per 100,000 in the Hmong population, which was slightly higher than in the Asian/Other groups, yet not as high as in the All Races Combined group of 380 per 100,000. However, overall the rates of prostate, breast, lung, and colorectal cancers were much lower in the Hmong than other Asian Pacific Islanders. Another cancer study done by the Wisconsin Comprehensive Cancer Control Program (WCCCP) and the Wisconsin United Coalition of Mutual Assistance Association (WUCMAA) report that in this study cancers are diagnosed among Hmong at later stages in comparison to Caucasians. During 1995 to 2007, only 27% of Wisconsin’s Hmong who had cancer were detected at the early local stage, compared with 46% for whites. Hmong patients tend to be diagnosed with cancer 17 at younger age than whites, even though that diagnosis tends to find the cancer at a more advanced stage (Foote & Matloub, 2010). Mills and Yang (1997) affirm that cultural factors that may have contributed to advanced stages of cancer is due in part to avoidance of Western medical care, as well as fear of participation in screening programs. Yang, Mills and Riordan (2004) reported that cervical cancer is the second leading cause of fatality among women around the world, and is another prevalent cancer among Hmong women. In an earlier study conducted by Mills and Yang (1997), they found that the rate of cervical cancer age-adjusted cancer-incidence among Hmong women was found to be higher than the Asian/Other group; however, it was about the same rate as for the All Races Combined group. Nevertheless, the Hmong have a considerably higher rate of invasive (at all sites) cervical cancer, compared to the All Races Combined group and/or the Asian/Other group. In another study that looked at early detection Pap test screening among Hmong women, Fang, Lee, Stewart, Ly, and Chen (2010) found that 74% of Hmong women in this study indicated they had ever had a Pap test, while 61% of the total participants indicated they were screened in the past three years. Additionally, the result of Hmong women with abnormal Pap tests or who did not know their test results was10%. Lack of awareness issues, such as never having heard of the test or not knowing the test was needed, were among the reasons listed for never having been screened, which was the main reason for never having been tested. Hepatitis B virus (HBV) has been identified as a human carcinogen and has caused 60-70% of liver cancer worldwide, causing approximately 700,000 people deaths 18 each year from liver cancer or liver disease (DHHS-OMH, 2011). According to Sheikh et al., (2011), chronic HBV is prevalent in the Asian-Pacific region. Furthermore, they found that among 534 Hmong age 18 and over in Fresno County approximately “one out of every six Hmong immigrants screened was infected with HBV” (p.1). Of the 534 screened Hmong in this study, nearly 62.4% indicated they were not vaccinated or were unsure of their vaccination status, as well as having no primary care physicians to provide further treatment and/or preventive measures to stop the transmission of HBV to their families (Sheikh et al., 2011). According to Grytadal et al., (2009) and Shiraki (2000), studies have suggested that transmission of HBV was due in part to vertical transmission from mother to newborn, especially among those with low vaccination rates (as cited in Sheikh et al., 2010). As a result of low vaccination rates, many children remain unvaccinated while many adults are chronically infected with hepatitis B throughout the world, including in the U.S, despite the availability of the HB vaccine since 1982 (DHHS-OMH, 2011). Education Chung and Lin (1994), report that Hmong and Cambodians are less educated and have low literacy in both their native language and English, as compared with Laotians and Vietnamese. The Hmong and Cambodians were the least exposed to Western ideas and concepts in their homeland, compared to Vietnamese and Laotians (as cited in Hsu et al., 2004). Mattson (1993) describes two waves of Southeast Asian immigrants: the first wave was more likely to be university educated, high-ranking, and wealthy compared to 19 the second wave which was more likely to be illiterate in their own language, unfamiliar with Western technology, and live on subsistence farming and fishing (as cited in Hsu et al., 2004). Tanjasiri et al., (2007) point out during a needs assessment among 200 Hmong women that literacy levels were remarkably low: 46% did not speak any English, 71% could not read any English, 50% could not read in Hmong, and 71% could not read in Lao. These findings demonstrated that Hmong have the lowest literacy rate and educational attainment among their Southeast Asians counterparts. Language The language barrier is contributing factor to the difficulty Southeast Asian immigrants have accessing the health care delivery system. A large number of Southeast Asian refugees have limited understanding of the English Language. Because physicians and health care professionals typically do not know Southeast Asian languages, this creates a major obstacle when providing care to Hmong Americans (Cobb, 2010). The Hmong language is called Hmoob, and is pronounced Hmong in the English Language. According to the U.S. Census Bureau 2000, 58.6% of Hmong households reported they do not have family members who speak English well, and only 4.4% of Hmong households actually reported English as their only spoken language in the home (as cited in Cobb, 2010). As a result, family, friends, and interpreters often help families who have limited English proficiency, however, due to the lack of medical vocabulary or terms available in the Hmong Language, interpreters oftentimes create as many problems as they solve (Chang, Feller & Nimmagadda, 2009; Warmer & Mochel, 1998; Cobb, 20 2010). For example, the Hmong language does not have medical terminology to describe symptoms and signs, as well as certain internal organs in the body because they were not common knowledge in Laos. This can lead to “frequently committed stereotypical errors” such as omissions, editing, substitutions and the interpreters’ unwillingness to provide quality interpretation as a result of an unpaid burden, which may add to crucial mistakes or problems during the translation processes (Chang et al., 2009; Warmer & Mochel, 1998). Children’s Hospitals and Clinics of Minnesota (2002) further explain that complicating communication issues are due in part to the fact that the Hmong had not had a written language until the late 1960s (as cited in Cobb, 2010). However, this written language was developed by missionaries and based on the Latin alphabet (Xiong, 1994). As a result of this, older Hmong refugees are not able to read or write in their own language so written materials available for Hmong patients are somewhat useless (Cobb 2010). Parker and Kiatoukaysy (1999) and Johnson (2002) state that the Hmong language lacks compatibility with Western language, as they do not have the same concept of understanding of anatomy, physiology, various system of illnesses and/or treatment procedures (as cited in Perez & Cha, n.d.). According to Xiong (1994), today in Western countries only about 20% of Hmong people can read and write in Hmong, typically those who have converted to Christianity. 21 English as a Second Language Not having an understanding of the English language is a fundamental problem for immigrants and refugees, as it prevents them from making vital connections with other communities in this country. Focus group participants reported in the Robert Wood Johnson Foundation study that they face language difficulty when they see a doctor, at the public library, at their child’s school, and when they are lost and seeking directions. For example, due to the language barrier, an Arab immigrant was not given medication or treatment while she was in the hospital emergency room after she fainted. This was due to her inability to communicate about her health condition with the providers (Robert Wood Johnson Foundation, 2006). In addition, many Southeast Asians avoid seeking Western health care due to their inability to clearly communicate their symptoms and concerns to the physicians. According to Van Deusen (1982), about 40% of Southeast Asians have difficulties in obtaining medical services due to not being familiar with the process of making appointments, language problems, and not understanding the physician (as cited in Uba, 1992). Mistrust in Providers Uba (1992) points out that Southeast Asians will only seek Western Healthcare after traditional remedies are sought out and have failed due to the negative experiences that patients encounter with Western health care. Johnson (2002) shared a story of a sobbing elderly woman and her negative experience while waiting in the emergency room with thoughts of dying and enduring dreadful pain. The elderly woman stated she 22 saw the American doctor treating other patients in the emergency room with respect, but when the American doctor came to her, she felt he began to mock her by mimicking her demeanor of distress and crying sounds. While many refugees agreed that health professionals are nice and most have done their best, others felt that doctors acted out of monetary interest not care for patients. Similarly, an immigrant woman stated, “They don’t pay much attention to immigrants, see us fast just to finish and don’t listen” (Asgary & Segar, 2001, p. 509) because they know we are undocumented. Moreover, some participants believed that legal citizens’ health information was protected at a higher standard compared to non-citizens (Asgary & Segar, 2001). Decision Making The Hmong culture places a high emphasis on the value of family and the clan system, which often includes medical decisions made by the family and/or clan leaders (Barrett et al., 1998). The Center for Cross-Cultural Health (1998) notes that medical care decisions are generally not made solely by the Hmong individual alone (as cited in Parker & Kiatoukaysy, 1999). The husband generally makes all the welfare decisions for the family such as health care and finances in a traditional Hmong family household. Traditionally, a family’s overall welfare is the responsibility of the husband, while the wife provides care for the children and in-laws, in addition to other household duties. They further explained that the spouse, in this case the husband, also gains approval from grandparents, adult siblings and great uncles, as well as clan leaders in clinical decision making situations (Parker and Kiatoukaysy (1999). According to the Center for Cross- 23 Cultural Health (1998), decision making is often a shared process amongst families, clan leaders and others in their immediate community, an integral part of the Hmong culture especially in times of crises (as cited in Parker & Kiatoukaysy, 1999). However, this is often difficult for doctors when recommending patients to make quick medical decisions in times of emergency. For instance, in a case that involved a Hmong patient who needed an emergency Caesarian section in the middle of the night, the doctor was told to notify the clan before any medical decision was made by the patient, even though the patient grew more sick (Barrett et al., 1998). This form of decision making includes families asking questions to gain a better medical understanding and learn available options, which requires a great deal of patience and understanding from the physicians, as well as other health care professionals (Parker & Kiatoukaysy, 1999). Mental Health Many immigrants and refugees arriving in America have developed various mental health illnesses, but they are rarely given the opportunity to identify then and receive services (Walter, 2001). A study was done by Asgary and Segar (2011) using focus groups and comprehensive interviews with 35 refugee asylum seekers. They found that participants failed to recognize psychiatric symptoms as a result of abuse or mental illness when accessing care. Although one participant was found to have received services, she did not refill her antidepressant prescription because she did not understand the need for a refill, could not afford to pay for a follow up exam, and disliked the minor side effects that she encountered. Mental illness was a major obstacle in seeking care, as 24 it was considered a burden of shame and stigma to share psychological trauma or histories of abuse with providers. As Sperstad and Werner (2004) and Culhane-Pera and Xiong (2003) emphasize, Hmong refugees in particular had endured many years of deprivation under communist control. Many suffered incarceration while in the refugee camps, faced death and disabilities, were bombed in their homes and repeatedly fled to the jungle, witnessed the rape and murder of family members, and risked drowning in the Mekong River to escape Laos. Culhane-Pera and Xiong (2003) describe the profound after effects on the Hmong as“…suffer[ing] from depression, posttraumatic stress disorder, and culture shock. They share a sense of alienation, vulnerability, and powerlessness--which often translate into self-protective mistrust of others’ intentions” (p. 26). This affected the well-being of Hmong refugees because social policies and implementation labeled them as pathologised individuals (Watters, 2001). Current Health Care Policies and Procedures The ability to provide cross-cultural medical treatment is critical, especially as U.S. medical providers interact with consumers from different cultural and linguistic backgrounds. It is imperative to take into account culturally and linguistically diverse patients as culture and language are important factors in providing health care services (U.S. Department of Health and Human Services [DHHS], Office of Minority Health [OMH] (2001). However, if linguistically and culturally diverse medical personnel are not accessible, it may hinder how refugees and immigrants develop trust and respect for Western medicine. This is why effective communication such as knowing the patients’ 25 medical history, current needs, beliefs and personal heath practices is necessary in order to prevent miscommunication, the possibility of being misdiagnosed, and inappropriate usage of medical services (co-dependency of emergency room) from taking place (Burgess, 2004). The National Standard for Culturally and Linguistically Appropriate Services in Health care (CLAS) was established to address the most immediate and necessary need for foreign born individuals. CLAS was developed by the U.S. Department of Health and Human Services, Office of Minority Health (New Mexico Department of health, n.d.). Most importantly, CLAS’ purpose is to address the needs of culturally and linguistically diverse populations who experience disproportionately inferior access to health services (DHHS-OMH, 2001). According to Burgess (2004), CLAS standards are directed at health care groups, but individual providers are encouraged to incorporate the same standards in order to accommodate a culturally and linguistically diverse population. The Refugee Act of 1980 created The Federal Refugee Resettlement Programs to provide refugees with effective resettlement assistance, as well as to support them in achieving economic self-sufficiency soon after their arrival in the United States (DHHS, 2010). The enactment of the Refugee Act of 1980 would not have been possible if there were no modifications to the Immigration and Nationality Act of 1965,which enacted “…a seventh immigration preference under the newly adopted hemispheric quotas system permitting 6 percent of all ordinary immigrants to enter as refugees” (Leibowitz, 1983, p. 164). The Refugee Act of 1980, as stated by Leibowitz (1983) was considered the most 26 comprehensive law enacted in the United States concerning refugee admissions and resettlement. The enactment of The Refugee Act of 1980 addressed four significant provisions: (1) To establish federal policy for the continuation of the admission of refugees; (2) To redefine the term refugee to meet the international U.N. Convention definition; (3) To establish the asylum principle in U.S. statutory law; and (4) To establish the idea of resettlement assistance for refugees. This enactment provided a mechanism for how to allocate federal funds to refugees, as well as how to reimburse local governmental agencies, states, and private voluntary agencies for related refugee expenses and/or disbursements (Leibowitz, 1983). The Immigration and Reform Control Act (IRCA) of 1986 was signed into law on November 6, 1986 to address provisional immigration regulations into the U.S., as well as to address vulnerable undocumented immigrants’ plights in American society. This act offers employers sanctions to legally hire undocumented workers and to expand federal enforcement of undocumented aliens at the U.S borders (U.S. Citizenship and Immigration Services, 2011). The current health care act signed into law by President Barack Obama on March 23, 2010 is called the Patient Protection and Affordable Care Act of 2011 (ACA). This comprehensive health reform has “…provisions to expand coverage, control health care costs, and improve health care delivery system” (The Henry J. Kaiser Family Foundation, 2010, para. 1). Under the ACA, U.S. citizens and legal residents are required to have health insurance. Through the American Health Benefit Exchange, individuals can 27 purchase premium and cost-sharing coverage for individuals/families with income between 133% and 4900% of the federal poverty level, as well as allowing small businesses to purchase separate Exchanges of coverage. This act will allow U.S. citizens and legal residents to have qualifying health care coverage (The Henry J. Kaiser Family Foundation, 2010). Common Health Care Models Practiced by Asians Traditional Medicines. Traditional medicines are often used in Taiwan, China, Japan, and other Asian countries (Ma, 1999). Herbal medicines are popular and are mainly prescribed by older women with knowledge about their use. In the US, herbal medicine is limited by the availability of herbs even though herb gardens are still kept among some people in Richmond. A study done amongst the Mien population in Richmond confirms that herbal medicines were found to treat 12% of reported illnesses, particularly for respiratory symptoms. While three (21%) of the participants in the study indicated they grow their own herbal ingredients and only one (5%) reported that herbal medicines were obtained in Chinatown (Gilman, Justice, Saepharn & Charles, 1992). It was found in a survey study conducted in Houston by Chan and Chang (1976) that Chinese medicine was commonly used as a form of home treatment. 93% of respondents stated they used Chinese drugs for self-treatment, while the remaining 7% had no association with Chinese drugs (as cited in Ma, 1999). The extensive use of herbal medicine as a healing approach is a common practice among Chinese and other Asian groups in the Houston community. The popularity of traditional medicine is due in part 28 to the fact that it has no adverse side effects due to the naturalness of the herbal medicines (Ma, 1999). Traditional healers. As a result of the minimal exposure that refugees had toward modern medicine in their homeland, services of traditional healing by traditional healers had been utilized for centuries. In particular, the Hmong and Iu Mein seek out help from traditional healers before they turn to Western medicine, as their traditional healing rituals have served them well for thousands of years (Warmer & Mochel, 1998). As stated by Lemoine (1982), Mein is also called “Iu Mein or Yao” which are a highland group of people who inhabit the hills of Vietnam, Thailand, Laos, Burma, and China (as cited in Gilman et al., 1992). For instance, the Mien also practices healing that involves the calling of traditional spirits or ancestors except the use of home remedies and herbal medicine as related to humoral theory of interventions. Not only was traditional healing practiced among the Hmong and Mein, but also among other groups such as the Somali Bantu from Kakuma camp in Kenya. They believe that some illnesses may be the result of being cursed or targeted by evil spirits. As a result, they will not seek medical attention; however, they will seek a traditional healer to eradicate the curse and/or to cast out the spirit (Burgess, 2004). Many of the immigrants and refugees are confident and have trust in these rituals. Consequently, they are suspicious of Western biomedicine such as medical procedures, diagnostic tools, and treatment plans (Warmer & Mochel, 1998). 29 Cupping/Coining. According to Canino and Spurlock (2000), Southeast Asian Refugees employ indigenous practices such as cupping, coining, and moxibustion which are traditionally used to heal minor illnesses. These practices may leave bruises, marks, or scars that can be interpreted as a form of child abuse. The practice of cupping is defined as placing a small heated cup on the skin of the individual. These healing practices will result in the emergence of circular red bruises on the surface of the individual’s skin. Coin rubbing is also known as “Cia cio” which requires constant rubbing of warm oil on the skin with a coin or spoon. Because of the repetitive linear rubbing, bruises may appear to be symmetrical and linear looking (as cited in Hsu et al., 2004). Moxibustion, according to Feldman (1987), consists of various acupuncture tools such as sticks of incense or other materials burned at specific therapeutic points near or on the skin. These practices may result in the skin appearing red or burning (as cited in Hsu et al. 2004). Types of Hmong Health Care The pluralities of biomedicine are included in Hmong medical culture and are available in the country of Laos. In Laos the Hmong first encountered biomedicine through their contact with Westerners during the Southeast Asian War. There are a number of biomedical resources that are available in Thailand such as mobile clinics, locally based clinics and other hospitals located in Chiang Mai and Chiang Ria, as well as in the refugee camps in Thailand (Capps 1994). However, these health care facilities located in the lowland areas are scarce and not easily accessible to the Hmong. 30 The Hmong’s traditional religious beliefs are based on animism, including spirits, souls, birth, and death which are parallel to other animistic cultures around the world. Additionally, in traditional Hmong communities, all aspects of life such as births, deaths, illnesses, funeral, kinship relations, and appropriate relationships between people are intertwined with animistic beliefs and values (Culhane, Vawtex, Xiong, Babbitt & Solberg, 2003). Life to the Hmong is believed to coexist between the physical and spiritual worlds, and birth and rebirth are joined in a continuous circle of life (Plotnikoff et al., 2002; Sperstad & Werner 2004). Shamanism. The shaman (txiv neeb) is a spiritual healer who has the ability to communicate directly with the supernatural spirits and has “clairvoyant powers” in the Hmong culture (Cobb 2010, p. 80; Cha, Vue & Carmen, 2004; Yee, 2011). Shamanism (ua neeb), according to Eliade (1964), is “a range of traditional beliefs and practices pertaining to communication with the spirit or metaphysical world” (as cited in Capps, 2011). The role of the shaman is to leave the material world to identify the spiritual causes of illness, communicate with the spiritual world for the purpose of separation of souls (weakness, fright or soul loss) as souls are easily detachable in the young or old, or actions of malicious or generous spirits which are not seen in the human world, and to retrieve the wandering or lost souls and reunite them with the ill person’s body (Cobb, 2010; Plotnikoff et al., 2002; Capps, 2011). As state by Bliatout (1986) and Helsel et al., (2004), the shaman’s fundamental goal is to restore harmony between the spiritual and the physical world when a person is ill or distressed, as soul loss (poob plig) is a common 31 apprehension among Hmong individuals who may seek treatment from a txiv neeb for their symptoms rather than biomedicine (as cited in Capps, 2011). There are two main types of traditional Hmong shamans. The first type is called neeb muag dawb, which must be chosen by the neng (shaman) spirits based on the person’s circumstance, fate or destiny, and not just the desire to become one. The second type is called neeb muag dub, which is one’s desire to become a shaman. Only traditional shamans (neeb muag dawb) will be discussed; however, both neeb muag dawb and neeb muag dub’s processes and practices are similar. The process of a neeb muag dawb is accomplished through making the individual seriously ill, appearing in dreams or refusing to allow the individual to become better, unless the individual agrees to become a shaman at the request of the neng spirits (Cha, Vue, & Carmen, 2004; Quincy 1995). A txiv neeb is expected to be capable of diagnosing and treating illness, as they are responsible for two things: first, to join forces with the patient in fighting for life and health; and, second, to restore the patient’s wholeness by bringing back the wandering soul or souls. The txiv neeb serves as a bridge between the physical and the spiritual world for the individual’s physical and spiritual well-being (Cha et al., 2004). The txiv neeb serves people of both sexes and of all ages, and can treat a variety of symptoms perceived as spiritual illness such as depression, chronic pain and infertility (Her & Culhane-Pera, 2004). Soul caller. Soul calling (hu plig) is a very common ceremony in the Hmong culture, and people become familiar with it at a young age. Anyone can perform the soul 32 calling ceremony, but craft skills must be learned from a soul caller. A shaman can also perform the soul calling ceremony as well (Hickman, 2007; Her & Culhane-Pera, 2004). A soul caller (tus hu plig) performs a ceremony which sacrifices chickens or eggs in order to call the soul/s back to the ill person’s body for reasons such as being frightened, or falling from the body (poob plig), fatigue, pallor, or dry lips (Kruger, 2002; CulhanePera, K.A. & Xiong, 2003). It is considered a serious situation when souls are lost because it requires certain measures to call the lost souls back to the ill person’s body and to restore good health (Bliatout, 1991; Kruger, 2007; Her & Culhane-Pera, 2004; Cha et al., 2004). According to Her and Culhane-Pera (2004), incense and chanting are involved during this soul-calling (hu plig) ceremony where the soul caller lures the lost souls to return to the body with loving words and promises of a good life. Oftentimes the missing or lost soul may have wandered away to nearby places or it may have wandered too far to a place where spirits and other disembodied beings exist. If the soul cannot be easily retrieved by hu plig or the situation becomes complicated, the shaman (txiv neeb) must be called upon to solve the complicated problems through the performance of shamanism (ua neeb) (Cha et al., 2004; Hickman, 2007). A soul-calling ceremony is not only performed when an individual becomes ill, but it is performed as a preventive measure and for good health, three days after a baby is born, whenever someone will take a long journey, and for recently married newlywed couples. For example, during the Hmong New Year, a soul calling ceremony usually takes place for the entire family which is to prevent wandering souls from becoming lost. 33 Although this ceremony can be performed by anyone, it is usually performed by a shaman, an elderly person, or other healers (Cha et al., 2004; Kruger, 2007). Herbalist. Herbalists (kws tshuaj) provide treatments for illnesses that are due to natural causes, but not illnesses that are spiritually based. Women are generally the practitioners who diagnose and treat illnesses; very few are men. Some herbalists may have helping spirits (dab tshuaj), and were trained under a well known specialist. Plants are collected from Asia or grown by herbalists and other herbalists, which are made into poultices or teas to treat a variety of ailments or illnesses. Herbal remedies typically involve the use of plants and roots found in the mountains of Laos when treating stomach problems (Her & Culhane-Pera, 2004; Hickman, 2007). Health problems within the expertise of the herbalist include infertility, headaches, diarrhea, menstrual irregularity and impotence. A study conducted by Duffy, Harmon, Ronard, Thao, Yang, and Herr (2004), found that women were responsible for preparing and growing plants. Furthermore, herbal medicine can be used for treating food poisoning and other digestive illness, broken bones, as well as an energy imbalance (as cited in Krueger, 2007). In addition, Hmong herbalists consult and use herbs from the Chinese, and have adopted other homeopathic practices such as cupping (Hickman, 2007). Cupping and coining are used when physical illnesses are considered less severe. To draw out fever and pain, cupping is used to suction the skin. In contrast, scraping the skin to draw out evil spirits is called coining. However, to Western providers, this may be mistakenly considered physical abuse due to the bruising that occurs with both rituals (Kruger, 2007). 34 Magic Healer. Magic healers (tus ua khawv koob) work with naturally based illnesses and are not chosen by the spiritual world like the txiv neeb. However, tus ua khawv koob use the same spiritual chanting language as the txiv neeb to call upon helping spirits with incense through blowing air and water onto the sick person’s body (Her & Culhane-Pera, 2004; Hickman, 2007). Magic (khawv koob), for example, is widely known to fix broken bones much quicker than the cast the hospital places on the individual (Hickman, 2007). Further, these healers are skilled at attending to burns, eye infections, wounds, and hyperstartle (ceeb) in children, as well as childhood fevers that are accompanied by rashes (ua qoob). Some healers have claimed to have the ability to remove kidney stones from the individual’s body or stones are placed in the patient’s body through black magic (Her & Culhane-Pera, 2004). According to Faderman (1998), a healer named Nao Kao Xiong shared a few examples of his healing that impressed Western doctors. For example, he stopped a women’s uncontrolled bleeding after she underwent surgery and he was called by the patient’s family. He tied a “sher qeng” around the patient’s neck with a healing khaws koob that he performed. An x-ray was done the following morning and the x-ray showed that the bleeding had stopped (as cited in Krueger, 2007). Local Health Care Programs and Services Serving the Hmong Community There are several local health care programs and services in the greater Sacramento region that serve the Hmong population. The following Community-based organizations (CBO) are non-profit organizations that currently provide health care 35 education and services to the Hmong population: Health Right Hotline, Independent Assistance for Health Care Consumers, Valley Vision, Hmong Women's Heritage Association, Hmong Health Collaborative, Sacramento Asian Assistance Center, Asian Resources, Asian Community Nursing Home, and Asian Pacific Community Counseling Center. Summary Although Hmong Americans have settled in the United States for many years, they still encounter challenges when utilizing and accessing modern health care. Some of these challenges are due to different cultural beliefs and practices, limited understanding of the Western biomedicine, different perspectives on health and illness, and traumatic histories that prevented Hmong Americans from receiving the best possible care when interacting with the U.S. health care system. Despite the many policies and procedures that are in place to assist immigrants and refugees, particularly Hmong Americans, they lack sufficient English comprehension skills to navigate or communicate with health care providers. As a result, it creates challenges and obstacles for many Hmong Americans in receiving adequate health care. 36 Chapter 3 METHODS Introduction This chapter will discuss the research design, data collection procedures, research subject, and instrumentation used in this study. The chapter will also discuss the data analysis plans in completing the research process, as well as the safeguards undertaken to protect human subjects in the study. Research Design To reiterate, this research project is an exploratory study, both qualitative and quantitative in nature that explores views and perceptions about modern medical care, decision making, and comprehension of both traditional and modern medical care. Rubin and Babbie (2011) assert that an exploratory study is a form of research that examines new interests, especially when areas of interest are relatively understudied. The purpose of this research is to explore views and perceptions Hmong Americans have toward both traditional and modern medical care, and their utilization of such services. The study’s rationale is to gain a better understanding of the reasons behind Hmong cultural beliefs and practices and, more importantly, to increase health care professionals and social workers’ knowledge and understanding when working with Hmong Americans in California, Sacramento County. Quantitative and qualitative research methods were applied throughout this research study. Quantitative methods were applied to demographic characteristics 37 including age, sex, marital status, highest level of education and religious preference. Open-ended questions were asked regarding the utilization of health care services in traditional and modern medical care, as well as medical providers’ knowledge and/or understanding of Hmong Americans’ cultural belief system. The intent was to focus on Hmong individuals’ understanding of illness and the importance of integral decision making among families, clan leaders, and immediate community leaders. Data Collection Procedures The data collection process began on July 5, 2011, a few weeks after the application for the Protection of Human Subjects was reviewed and approved by the Committee for the Protection of Human Subjects at California State University, Sacramento, Division of Social Work. The author informed the Sacramento Community Clinic prior to the data collection process. The research participants were selected randomly to participate in this research study, as they all were either new or existing patients of Sacramento Community Clinic who appeared to be in good health, friendly, and approachable. After the patients were called into their rooms, the author approached the prospective participants individually to maintain confidentiality by gently knocking on each patient’s door, and asked if the author could have a couple seconds to speak to the prospective participants. Once the author was granted permission to speak to the prospective participants, the author then introduced herself, explained the purpose of the study, informed the prospective participants that the author was granted permission from Sacramento Community Clinic to conduct the research project, spoke about its voluntary 38 nature and asked if the patients would be interested in participating in this research study. Once the prospective participants agreed to participate in this research study, the author then asked if the prospective participants wanted to complete the interview process afterward or whether an appointment needed to be made for a different time. Those prospective participants who were able to complete the questionnaire survey immediately after their doctor visit were escorted by the author to the conference room, and those who were not available were provided with an appointment based on their availability. Before consent was obtained from the individual, the author provided an introduction statement regarding the purpose of the study, the importance of confidentiality, and how confidentiality would be maintained throughout the study, as well as the voluntary nature of the study. Prospective participants were informed that no incentives (financial or otherwise) would be offered in exchange for their participation. A written oral consent was read and explained in the Hmong language, as a majority of participants did not have a sufficient understanding of the English language (written or oral). In addition, the consent form included a list of resources and additional contact information if additional counseling were needed after participation in this study. After the survey questionnaires had been completed by the participants, the author answered any additional questions the participants may have had and thanked them for their time and participation in this research study. 39 Research Subjects Participants in this research study were Hmong American adults who were former refugees and/or immigrants from Laos and Thailand. The author conducted a total of 31 surveys, of both males and females age 21 and over. It took approximately 60 minutes for participants to complete the questionnaire survey. However, one of the subjects did not answer the majority of the questions so the author decided not to include the survey in the author’s data collection. At the time of the study, participants were individual adults who were either new or existing patients of Sacramento Community Clinic. Participation in this study was completely voluntary, and no incentive (financial or otherwise) was offered to the participants. All completed survey questionnaires were kept confidential and secured in a locked file cabinet, and no one other than the author and her thesis advisor had access to it. In addition, the author informed participants that if in any case the author decided to use any specific quotes or examples, the author would make sure that the identity of the source used would not be identified. This researcher took notes during all interviews. All completed questionnaire surveys were destroyed after data entry was entered and analysis was completed. Instrumentation This project employed a survey questionnaire, consisting of a total of forty-nine questions, to explore views and perceptions that Hmong Americans have toward both traditional and modern medical care, and their utilization of such services. The questions were developed by the author with assistance from the author’s thesis advisor Dr. Serge 40 Lee. The survey questionnaire in this study encompassed both closed-ended and short answer questions that explored views and perceptions of demographic characteristics, decision making, perceptions of modern medical care, understanding of traditional and modern medical care, cultural, and traditional beliefs, as well as utilization of health care services. The set of questions were written in both English and the Hmong language, but were asked verbally in the Hmong language. The author did not have her questionnaire pretested. These questionnaires were constructed with the hope that they would benefit professional social workers, the Hmong community, health care professionals, and anyone who would be interested in conducting further studies about perceptions that Hmong Americans have regarding contemporary health care modalities. Human Subject Protection The Protection of Human Subjects was completed according to the required protocol by California State University, Sacramento. The author completed the Protection of Human Subjects with the assistance of the author’s project advisor, Dr. Serge Lee. Then the Protection of Human Subject application was turned into the author’s thesis project advisor for review. Once changes were made and reviewed to the author’s project advisor, the author submitted the Protection of Human Subjects application for review to the Committee for the Protection of Human Subjects of the Division of Social Work of California State University, Sacramento. The Committee notified the author of the approval of the research proposal, however, with conditions. Once the necessary changes were made as instructed by the Committee and reviewed 41 again by the author’s project advisor; the application was resubmitted for final approval. The study was approved on May 13, 2011. The Human Subject’s approval number for this research is: 10-11-112. The approval number expires one year from the date it was approved. After approval was granted, this author began her data collection on July 5, 2011. This research proposal was approved at minimal risk, though some participants might have a strong reaction to modern medical health care questions due to the mistreatment and misunderstandings of modern medical doctors toward them. The author also ensured that subjects who were willing to participate in this research signed a consent form (See Appendix A). Data Analysis Plan The data was processed through the program IBM Statistical Package for Social Sciences (SPSS), version 19. Descriptive statistics, content analysis and statistical analysis were all employed to analyze the data. Descriptive statistics of frequencies were used to capture the demographic characteristics and key variables of the study population (e.g. age, highest level of education, decision making, and understanding of illness). Cross-tabulations were utilized to examine any further significant relationships between different variables. Charts and tables were utilized to provide a graphic summary of the quantitative analysis. Further, Microsoft Office Word 2010 was also used to analyze and compile the qualitative portion of participants’ responses. 42 Chapter 4 RESULTS Introduction This research project explored views and perceptions of both traditional and modern medical care among Hmong Americans, as well as utilization of such services. The selected population for this study was Hmong Americans who were either seeking care or current patients of Sacramento Community Clinic. The survey questionnaire used in this study encompassed both closed-ended and open-ended questions that explored demographic characteristics, decision making, perceptions and understanding of both traditional and modern health care, cultural and traditional beliefs, as well as utilization of health care services. A total of 31 participants were interviewed; however, one of the survey questionnaires was not counted, as a majority of its survey questions were not answered. Therefore, the total number of participants was 30. 43 Demographic Characteristics Table 1 Age Category of Participants Frequency Valid Percent Valid Percent Cumulative Percent 21-28 5 16.7 16.7 16.7 29-36 3 10.0 10.0 26.7 37-44 3 10.0 10.0 36.7 45-52 6 20.0 20.0 56.7 53-60 5 16.7 16.7 73.3 61 or over 8 26.7 26.7 100.0 30 100.0 100.0 Total Table 1 represents the age distribution of 30 Hmong American adults from Sacramento County, California who participated in this research study. Due to the small sample size, age distributions were as follows: five (16.7%) were between the age of 21 to 28, three (10.0%) were between the ages of 29 to 36, three (10.0%) were between the ages of 37 to 44, six (20.0%) were between the ages of 45 to 52, five (16.7%) were between the ages of 53 to 60, and eight (26.7%) were age of 61 or over. Looking at the frequency distribution, the majority of participants are 61 or over. Table 2 Sex of Participants Frequency Valid Percent Valid Percent Cumulative Percent Male 12 40.0 40.0 40.0 Female 18 60.0 60.0 100.0 Total 30 100.0 100.0 44 Among the 30 participants, twelve (40.0%) were male and the remaining eighteen (60%) were female. Unfortunately, the sample distribution was not evenly distributed as participants were randomly selected to participate in this project. Table 3 Birthplace of the Participants Cumulative Frequency Valid Percent Valid Percent Percent U.S. 5 16.7 16.7 16.7 Outside of U.S. (Thailand) 3 10.0 10.0 26.7 Outside of U.S. (Laos) 22 73.3 73.3 100.0 Total 30 100.0 100.0 When asked about their birth place, the participants reported their country of birth as illustrated in Table 3 above. Among the 30 participants in this study, five (16.7 %) indicated they were born in the US, while the others were born outside of the U.S with three (10.0%) born in Thailand and twenty-two (73.3 %) born in Laos. Table 4 Marital Status of Participants Cumulative Frequency Valid Married Percent Valid Percent Percent 18 60.0 60.0 60.0 Separated/Divorced 2 6.7 6.7 66.7 Widowed 4 13.3 13.3 80.0 Single 6 20.0 20.0 100.0 Total 30 100.0 100.0 45 Marital status for participants is illustrated in Table 4. Eighteen (60.0%) of the participants are married, two (6.7%) are separated/divorced, four (13.3%) are widowed, and six (20.0%) are single. More than half of the participants in this study are married. Table 5 Highest Level of Education Cumulative Frequency Valid Less Than High School Percent Valid Percent Percent 21 70.0 70.0 70.0 Some College Units 6 20.0 20.0 90.0 Associate or Community 1 3.3 3.3 93.3 2 6.7 6.7 100.0 30 100.0 100.0 College Graduate College Graduate Total Table 5 shows the participants’ response to the highest level of education attained, with twenty-one (70.0%) participants reporting less than a high school education. Six (20.0%) participants reported some college units were completed, one (3.3%) received an associate or community college degree, two (6.7%) indicated they graduated from college, and no participants indicated that they have obtained a post-graduate degree. 46 Table 6 Where Education Was Received Cumulative Frequency Valid U.S. Percent Valid Percent Percent 10 33.3 33.3 33.3 Outside of U.S. 4 13.3 13.3 46.7 More Than One Country 1 3.3 3.3 50.0 None 15 50.0 50.0 100.0 Total 30 100.0 100.0 As seen in Table 6, the study asked the participants where they received their education. Ten (33.3%) of the participants indicated they received their education in the U.S., followed by four (13.3%) who studied outside of U.S., while the remaining fifteen (50.0%) reported “none,” meaning that they did not receive any formal education at all. Table 7.1 Numbers of Years Participants Have Lived in the U.S. N Mean Total Number of Years in U.S. 30 Valid N (listwise) 30 23.8667 Std. Deviation 7.32842 Table 7.1 represents the numbers of years participants have lived in the U.S. ranging from 6 to 35 years with a standard deviation of 7.328 and an overall mean of 23.86. 47 Table 7.2 Numbers of Years Participants Have Lived in the U.S. Frequency Valid Percent Valid Percent Cumulative Percent 6 2 6.7 6.7 6.7 15 1 3.3 3.3 10.0 17 2 6.7 6.7 16.7 18 1 3.3 3.3 20.0 19 2 6.7 6.7 26.7 20 3 10.0 10.0 36.7 22 1 3.3 3.3 40.0 23 2 6.7 6.7 46.7 24 1 3.3 3.3 50.0 25 2 6.7 6.7 56.7 28 1 3.3 3.3 60.0 29 1 3.3 3.3 63.3 30 6 20.0 20.0 83.3 31 3 10.0 10.0 93.3 32 1 3.3 3.3 96.7 35 1 3.3 3.3 100.0 30 100.0 100.0 Total Table 7.2 shows that study participants have lived in the U.S. for a long time, with 11 (36.6%) participants having lived here for over thirty years, and 22 (73.2%) having lived here longer than 20 years. Only two (6.7%) participants have lived in the U.S. less than 15 years. 48 Table 8 How Well Do You Understand English? Cumulative Frequency Valid Percent Valid Percent Percent Do not understand it well 12 40.0 40.0 40.0 Somewhat understand it 11 36.7 36.7 76.7 Understand it well 3 10.0 10.0 86.7 Understand it very well 4 13.3 13.3 100.0 30 100.0 100.0 Total When looking at the ability to understand English in Table 8 above, twelve (40.0%) participants reported they do not understand English well, while eleven (36.7%) reported they somewhat understand English, followed by three (10.0%) who indicated they understand English well, and four (13.3%) stated they understand English very well. As presented in Table 9, thirteen (43.3%) participants indicated that they do not speak English well at all, ten (33.3%) stated they somewhat speak English well, two (6.7%) reported they speak English well, and only five (16.7%) participants reported they speak English very well. 49 Table 9 How Well Do You Speak English? Cumulative Frequency Valid Percent Valid Percent Percent Do not speak well at all 13 43.3 43.3 43.3 Somewhat speak it well 10 33.3 33.3 76.7 Speak well 2 6.7 6.7 83.3 Speak very well 5 16.7 16.7 100.0 30 100.0 100.0 Total Participants were asked to indicate how well they can read English in Table 10. Of the 30 participants who participated in this study, more than half, or (56.7%, n=17) stated they do not read well at all, while seven (23.3%) participants reported they somewhat well, followed by one (3.4% ) participant who reported reading English well, and only four (13.8%) reported they read English very well. In addition, one participant did not respond to this question. Table 10 How Well Do You Read in English? Cumulative Frequency Valid Do not read well at all Valid Percent Percent 17 56.7 58.6 58.6 Somewhat read well 7 23.3 24.1 82.8 Read well 1 3.3 3.4 86.2 Read very well 4 13.3 13.8 100.0 29 96.7 100.0 1 3.3 Total Missing Percent System 50 Cumulative Frequency Valid Do not read well at all Valid Percent Percent 17 56.7 58.6 58.6 Somewhat read well 7 23.3 24.1 82.8 Read well 1 3.3 3.4 86.2 Read very well 4 13.3 13.8 100.0 29 96.7 100.0 1 3.3 30 100.0 Total Missing Percent System Total In response to how well participants write in English as presented in Table 11, seventeen (56.7%) participants revealed they do not write well at all in English, seven (23.3%) reported they somewhat write well in English, one (3.3%) writes English well, and five (16.7%) participants reported they write very well in English. Table 11 How Well Do You Write in English? Cumulative Frequency Valid Do not write well at all Percent Valid Percent Percent 17 56.7 56.7 56.7 Somewhat write well 7 23.3 23.3 80.0 Write well 1 3.3 3.3 83.3 Write very well 5 16.7 16.7 100.0 30 100.0 100.0 Total Table 12 Religious Preference Cumulative Frequency Percent Valid Percent Percent 51 Valid Shamanism 23 76.7 76.7 76.7 Christianity 7 23.3 23.3 100.0 30 100.0 100.0 Total Participants were asked to indicate their religious preference in Table 12. The results show that in terms of religious preference, twenty-four (76.7%) participants stated their religious preference is Shamanism while seven (23.3%) indicated their religious preference is Christianity. No participants indicated a different religious preference other than Shamanism and/or Christianity. Key Findings Related to the Research Purpose This section will analyze and identify the key findings based on the participants’ responses to the “yes” and “no” survey questionnaires. In response to who makes the decision regarding modern medical care when it comes to treating illness among family, Table 13 revealed that twelve (40.0%) participants revealed that modern medical decisions are made by fathers when it comes to treating illness, two (6.7%) participants reported that decisions regarding treating illness is made by mothers. Two (6.7%) participants stated decisions regarding modern medical treatment when it comes to treating illness are made by siblings, three (10.0%) participants reported that decisions are made by elders in the family while one (3.3%) left decisions to the clan leader. Ten (33.3%) participants indicated “other,” which indicates that medical decisions are made collectively among family members when it comes to treating an illness. 52 Table 13 Family Member for Treatment Decision Cumulative Frequency Valid Percent Valid Percent Percent Father 12 40.0 40.0 40.0 Mother 2 6.7 6.7 46.7 Siblings 2 6.7 6.7 53.3 Elders in the family 3 10.0 10.0 63.3 Clan leader 1 3.3 3.3 66.7 Other 10 33.3 33.3 100.0 Total 30 100.0 100.0 The results in Table 14 shows the results of participants who were asked to indicate who is most likely to be the first person that they go to for help when a family member becomes ill. Of the 30 participants, six (20.0%) reported the shaman is the first person they will go to for help when a family member becomes ill, one (3.3%) participant reported he/she will first seek a healer/soul caller for help while two (6.7%) reported they will first seek an herbalist, thirteen (43.3%) indicated a western physician is the first person from whom they will seek help when a family member becomes ill, and eight 53 (26.7%) indicated other as the first person to seek help from when a family member becomes ill. Although the literature and studies have reported that modern health care treatment is often the last source of care for some Hmong individuals and families. According to this study Western or modern medical health care is actually the first choice that Hmong Americans seek help from when a family member becomes ill. Table 14 Most Likely to be First Person to Help When a Family Member Becomes Ill Cumulative Frequency Valid Percent Valid Percent Percent Shaman 6 20.0 20.0 20.0 Healer/Soul Caller 1 3.3 3.3 23.3 Herbalist 2 6.7 6.7 30.0 13 43.3 43.3 73.3 Other 8 26.7 26.7 100.0 Total 30 100.0 100.0 Western Physician Table 15 Ever Reluctant to Utilize Modern Medical Care in the Past Frequency Valid Percent Valid Percent Cumulative Percent Yes 11 36.7 36.7 36.7 No 17 56.7 56.7 93.3 2 6.7 6.7 100.0 30 100.0 100.0 Refused Total In terms of Hmong Americans’ reluctance to utilize modern medical health care in the past, among the 30 participants, eleven (36.7%) revealed they had been reluctant to 54 utilize modern medical health care in the past, while seventeen (56.7%) stated they had never been reluctant to utilize modern medical health care in the past. This result indicated that more than half of Hmong Americans surveyed had never been reluctant to utilize modern medical health care in the past. Table 16 Encountered Problems or Concerns with Previously Sought Modern Medical Care Frequency Valid Percent Valid Percent Cumulative Percent Yes 13 43.3 43.3 43.3 No 16 53.3 53.3 96.7 1 3.3 3.3 100.0 30 100.0 100.0 Refused Total As shown in Table 16, only thirteen (43.3%) participants indicated they encountered problems or concerns when they previously sought modern medical care while sixteen (53.3%) stated they did not encounter problems or concerns, and one (3.3%) participant refused to respond to this question. As seen in Table 17, the study asked the participants if their modern medical doctors are knowledgeable about their cultural background. A large majority (70.0%, n=21) of participants stated that their doctors are knowledgeable about their cultural background, followed by seven (23.3%) participants who reported their doctors are not knowledgeable about their cultural background. Table 17 55 Modern Medical Doctor Knowledgeable of Cultural Background Frequency Valid Percent Valid Percent Cumulative Percent Yes 21 70.0 70.0 70.0 No 7 23.3 23.3 93.3 Refused 2 6.7 6.7 100.0 30 100.0 100.0 Total As the result indicated in Table 18, eleven (6.7%) of the participants stated they felt disrespected by a modern medical doctor while nineteen (63.3%) reported that they never felt disrespected by a modern medical doctor. Table 18 Felt Disrespected by a Modern Medical Doctor Frequency Valid Percent Valid Percent Cumulative Percent Yes 11 36.7 36.7 36.7 No 19 63.3 63.3 100.0 Total 30 100.0 100.0 When asked if participants have ever felt devalued by a modern medical doctor in recent years as illustrated in Table 19 below, eight (26.7%) participants had felt devalued by a modern medical doctor in recent years while more than half (60.0%, n=18) indicated they have not felt devalued by a modern medical doctor in recent years. Table 19 Felt Devalued by a Modern Medical Doctor Frequency Percent Valid Percent Cumulative Percent 56 Valid Yes 8 26.7 26.7 26.7 No 18 60.0 60.0 86.7 4 13.3 13.3 100.0 30 100.0 100.0 Refused Total As presented in Table 20, nearly all (93.3%, n=28) of the participants reported that it is necessary for modern medical doctors to have knowledge and understanding of their cultural beliefs and/or practices, while only two (6.7%)indicated it was not necessary for modern medical doctors to have knowledge and understanding of their cultural beliefs and/or practices. This finding revealed that modern medical doctors’ knowledge and understanding of Hmong’s cultural beliefs and/or practices is highly imperative, especially when treating Hmong individuals. Table 20 Modern Medical Doctors Have Knowledge/Understanding of Cultural Beliefs/Practices Frequency Valid Percent Valid Percent Cumulative Percent Yes 28 93.3 93.3 93.3 No 2 6.7 6.7 100.0 30 100.0 100.0 Total The results in Table 21 indicated more than half (70.0%, n = 21) of the participants had sought help from a traditional healer such as a shaman, while nine (30.0%) have never sought help from a shaman. This implies that traditional healers such as a shaman are is highly utilized in the Hmong culture. Table 21 57 Sought Help From a Traditional Healer Such as a Shaman Frequency Valid Percent Valid Percent Cumulative Percent Yes 21 70.0 70.0 70.0 No 9 30.0 30.0 100.0 30 100.0 100.0 Total Table 22 Sought Help From a Healer/Soul Caller Frequency Valid Percent Valid Percent Cumulative Percent Yes 20 66.7 66.7 66.7 No 10 33.3 33.3 100.0 Total 30 100.0 100.0 As illustrated in Table 22 above, twenty (66.7%) participants indicated they have sought help from a healer/soul caller while ten (33.3%) participants reported they have never sought help from a healer/soul caller. However, this finding may not be entirely accurate as only seven participants stated that their religious preference was Christianity, or this could be due in part to participants not wanting to provide further explanation when they indicated “yes” to this question. In Table 23 below, two-third (66.7%, n = 20) have sought help from an herbalist while ten (33.3%) have never sought help from an herbalist. Table 23 58 Sought Help From an Herbalist Frequency Valid Percent Valid Percent Cumulative Percent Yes 20 66.7 66.7 66.7 No 10 33.3 33.3 100.0 Total 30 100.0 100.0 In response to whether participants have ever sought help from a modern medical doctor, Table 24 shows that all but one (96.7%, n = 29) of the participants stated they have sought help from a modern medical doctor while only one (3.3%) participant indication that he/she has never sought help from a medical doctor. This finding revealed that Hmong Americans sought help from modern medical doctors at a higher rate, when compared to seeking help from a shaman (70.0%, n=21), a healer/soul caller (66.7%, n=20), and/or an herbalist (66.7%, n=20). Table 24 Sought Help From a Modern Medical Doctor Frequency Valid Percent Valid Percent Cumulative Percent Yes 29 96.7 96.7 96.7 No 1 3.3 3.3 100.0 30 100.0 100.0 Total Table 25 Has Your Understanding of Illness Changed in Recent Years Frequency Valid Percent Valid Percent Cumulative Percent Yes 19 63.3 63.3 63.3 No 7 23.3 23.3 86.7 59 Refused Total 4 13.3 13.3 30 100.0 100.0 100.0 In response to whether participants’ understanding of illness has changed in recent years, especially among those who were born and raised in Laos or Thailand, Table 25 shows that more than half (63.3%, n = 19) of the participants stated that their understanding of illness has changed in recent years while seven (23.3%) participants indicated that their understanding of illness has not changed in recent years. Table 26 (a) Crosstabulation How Well Understands English * Highest Level of Education Highest Level of Education Associate or How Well Do not understand Count Understan it well % of Total Somewhat Count understand it % of Total Understand it well Count ds English % of Total Total Understand it very Count well % of Total Count % of Total Less Than Some Community High College College College School Units Graduate Graduate Total 12 0 0 0 12 40.0% .0% .0% .0% 40.0% 9 2 0 0 11 30.0% 6.7% .0% .0% 36.7% 0 3 0 0 3 .0% 10.0% .0% .0% 10.0% 0 1 1 2 4 .0% 3.3% 3.3% 6.7% 13.3% 21 6 1 2 30 70.0% 20.0% 3.3% 6.7% 100.0% 60 26 (b) Symmetric Measures Asymp. Std. Value Error a Approx. Approx. T b Sig. Ordinal by Kendall's tau-c .551 .113 4.889 .000 Ordinal Spearman Correlation .781 .073 6.612 .000c Interval by Pearson's R .856 .043 8.745 .000c Interval N of Valid Cases 30 a. Not assuming the null hypothesis. b. Using the asymptotic standard error assuming the null hypothesis. c. Based on normal approximation. The Spearman Correlation indicates that there is not a significant relationship between highest level of education and how well the participants understand English (Spearman = .781, p > .073). As table 26 (a) shows, participants that have less than high school level of schooling tend to not understand English well (40%). Only two participants graduated from college and stated that they understand English very well (6.7%). However, Table 27 (a-b) show that understanding English is not associated with Hmong being reluctant to use modern medical care (chi-square = 3.452, df = 6, p > .750). 61 Table 27 (a) Crosstabulation How Well Understands English * Ever Reluctant to Use Modern Medical Care in the Past Ever Reluctant to Use Modern Medical Care in the Past Yes How Well Do not understand Count Understands it well % of Total English Somewhat Count understand it % of Total Understand it well Count % of Total Understand it very Count well % of Total Total Count % of Total No 7 0 12 16.7% 23.3% .0% 40.0% 4 6 1 11 13.3% 20.0% 3.3% 36.7% 1 2 0 3 3.3% 6.7% .0% 10.0% 1 2 1 4 3.3% 6.7% 3.3% 13.3% 11 17 2 30 36.7% 56.7% 6.7% 100.0% Chi-Square Tests Asymp. Sig. (2df Total 5 Table 27 (b) Value Refused sided) 62 Pearson Chi-Square 3.452a 6 .750 Likelihood Ratio 3.617 6 .728 Linear-by-Linear 1.245 1 .265 Association N of Valid Cases 30 a. 10 cells (83.3%) have expected count less than 5. The minimum expected count is .20. Table 28 (a) Crosstabulation Ever Reluctant to Use Modern Medical Care in the Past * Sought Help From a Modern Medical Doctor Sought Help From a Modern Medical Doctor Yes Ever Reluctant to Use Yes Count Modern Medical Care in the Past % of Total No Count % of Total Refused Count % of Total Total Count % of Total No 11 0 11 36.7% .0% 36.7% 16 1 17 53.3% 3.3% 56.7% 2 0 2 6.7% .0% 6.7% 29 1 30 96.7% 3.3% 100.0% Table 28 (b) Chi-Square Tests Asymp. Sig. (2Value df Total sided) Pearson Chi-Square .791a 2 .673 Likelihood Ratio 1.162 2 .559 63 Linear-by-Linear .262 1 .609 Association N of Valid Cases 30 a. 4 cells (66.7%) have expected count less than 5. The minimum expected count is .07. Table 28 (b) also shows that modern medical care doctors’ knowledge are not associated with reasons why Hmong patients are reluctant to use modern medical care (chi-square = .791, df = 2, p > .673). Similarly, Table 29 (a-b) show that the Hmong’s knowledge of illness in past years are not associated with health problems encountered by them (chi-square = 7.234, df = 4, p < .124). Table 29 (a) Crosstabulation Has Your Understanding of Illness Changed in the Past Years * Encountered Problems/Concerns with Previously Sought Modern Medical Care Encountered Problems/Concerns with Previously Sought Modern Medical Care Yes Has Your Yes Understanding of Illness Changed in Count % of Total No the Past Years Count % of Total Refused Count % of Total Total Count % of Total Table 29 (b) No Refused Total 8 11 0 19 26.7% 36.7% .0% 63.3% 3 4 0 7 10.0% 13.3% .0% 23.3% 2 1 1 4 6.7% 3.3% 3.3% 13.3% 13 16 1 30 43.3% 53.3% 3.3% 100.0% 64 Chi-Square Tests Asymp. Sig. (2Value df sided) Pearson Chi-Square 7.243a 4 .124 Likelihood Ratio 4.918 4 .296 Linear-by-Linear .203 1 .652 Association N of Valid Cases 30 a. 7 cells (77.8%) have expected count less than 5. The minimum expected count is .13. Qualitative Responses by the Participants Participants’ responses. The following section presents findings based on survey responses of participants which include open-ended and closed-ended questions. However, some closed-ended questions asked participants to provide an explanation to their “yes” or “no” responses in the next question that followed. Perspective on modern medical care. Participants were asked to provide their general perceptions about modern medical care. There were some common themes that emerged from participants’ responses to this question. Among the responses provided, participants reported modern medical care is considered beneficial when they are provided with medication to treat illnesses such as fever, headache and stomach pain. Others perceived modern medical care as fact, science and technology. Some feel that modern medical care has some good and bad benefits depending on the condition of the illness. While others feel that because they do not speak English modern medical care doctors do not want to provide them with quality services and medications. 65 Ever reluctant to utilize modern medical health care in the past. Of the participants who answered “yes” to whether they have ever been reluctant to utilize modern medical health care in the past, reported that modern medical doctors do not treat them well when they do not have an interpreter with them, and that it takes more time and longer for them to schedule a medical appointment, as they do not speak the English language. Others expressed that they do not believe what modern medical health care professionals said about their illnesses, as it is based on fact and not their illnesses. Some feel that their illness is not a result of disease, but of soul and/or spirit loss so they will seek traditional health care first. For example, a participant shared that his wife went to the hospital to get a pregnancy test done, but the doctor told her she was going to die that night so she was forced to stay overnight at the hospital. Another participant revealed that while she was 7 months pregnant she was admitted to the hospital for a fever of 109 °F, she was later diagnosed with having H-pylori. On the other hand, those participants who stated “no” to this question expressed that they believe and have trust in modern medical care. Others stated that modern medical care will be able to tell them what is going on with their health. An older participant shared, for instance, that “…as I age, modern medical care will be able to help me with my illness.” Another participant stated “Because I do not know the real cause to my illness so I need to seek modern medical care first then seek traditional health care. Another one stated “I grew up in America so western medicine seems to work best for me.” 66 Encountered problems/concerns with previously sought modern medical care. As for problems or concerns with previously sought modern medical care, participants stated “yes” that they have encountered problems and/or concerns when modern medical care forced them to undergo certain procedures that had no connection or association with their illness, but as a result of their inability to understand and speak English. Others believed it was their “ntsuj plig” (soul/spirit) and not an illness. One frustrated participant stated “the doctor told me that my dad had cancer on his neck, arms, and groin just based on his assumption, and not on any test results.” Another participant stated that the doctor wanted to do surgery to remove his wife’s uterus, but he said “no” because he had never heard of such a thing as cancer. Participants who stated “no” to this question revealed that they have never encountered problems/concerns with previously sought modern medical care, and feel that modern medical doctors just do what they have to do and that modern medical care is good. A participant, for instance, stated “Because there are rules and regulations that doctors must follow when treating patients.” Modern medical doctor knowledgeable of cultural background. In terms of modern medical doctors’ knowledge about the Hmong’s cultural background, a majority of participants indicated that some doctors are aware of their cultural background and have allowed them to perform rituals for individuals when necessary. A participant shared that when his daughter-in-law fell and hit her stomach while she was still pregnant, the doctor asked if the family would like to perform any ritual to help her. Another participant stated that sometimes doctors allow them to use their traditional 67 beliefs and/or practices before submitting to modern medical care. Of those who stated “no,” they believe that modern medical doctors need to understand their cultural background before treating their illnesses and/or diseases, and some were not sure if their doctors were even knowledgeable of their cultural background at all. One participant stated “some doctors never heard of Hmong people before.” Another participant reported “if they (doctors) were knowledgeable about my culture then they would have allowed me to seek other alternatives.” Ever felt disrespected by a modern medical doctor. According to those participants who had indicated they were disrespected by a modern medical doctor, they stated doctors do not want to listen to what they have to say about their illness or care for them. For example, a participant explained an incident where he was told by the doctor that his little brother had cancer two days after being kicked in the eye. Another felt disrespected when the doctor told her that her daughter was going to die as a result of the rashes on her body. Those who never felt disrespected by a modern medical doctor indicated modern medical doctors whom they have met have been grateful and understanding toward them. They reported doctors also talk nicely to them, which means that they are being respected by modern medical doctors. Ever felt devalued by a modern medical doctor in recent years. Participants who felt devalued by a modern medical doctor in recent years reported that doctors did not listen to their needs and illnesses. Others stated that because they do not have an education, doctors talk mean to them. For example, a participant reported that she took 68 her husband to the doctor, and the doctor said to her that he is not sick, but only faking his illness to qualify for benefits. Of those who indicated they never felt devalued by a modern medical doctor, they stated they were treated well. Last time sought help from a modern medical provider such as a doctor. At the time of the interview a majority of participants indicated that they had recently sought help from a modern medical doctor. For example, more than half of the participants stated the last time they sought help from a medical doctor was within the last month. There were only three participants who stated the last time they saw a medical doctor was a year ago and another one stated three years ago. This implies that a majority of Hmong Americans do seek help regularly from a modern medical doctor. Modern medical doctors have knowledge and understanding of cultural beliefs and/or practices. In terms of cultural competency with the Hmong population, a majority of the participants stated “yes” it is necessary for modern medical doctors to have knowledge and understanding of their cultural beliefs and/or practices in order for doctors to treat and understand their illnesses. Those participants who indicated “yes,” stated that understanding the Hmong’s cultural beliefs and/or practices allow doctors to become more open minded to alternative treatments that are available in their culture. While a few revealed modern medical doctors do not need to know or understand their cultural beliefs and/or practices in order to treat their illnesses. Ever sought help from a traditional healer such as a Shaman. In response to whether participants have ever sought help from a traditional healer such as a shaman, a 69 majority of participants indicated “yes” that they have utilized a shaman. Participants reported that the benefit of seeking help from a shaman is that he or she is able to restore the individual’s soul and/or spirit back to its body. After the soul is restored it makes the individual feel better, and the shaman is able to get rid of evil spirits. For example, a participant indicated that the shaman is always the first person on her mind while another reported that if you feel fatigue prior to the shaman’s performance, you will feel better after the performance is completed. Ever sought help from a Healer/Soul Caller. Participants who answered “yes” to having sought help from a healer/soul caller stated that the benefit of seeking a healer/soul caller is to bring the individual’s soul back to its body, as a result of being frightened (poob plig) or scared by something. Others indicated that the spirit and the soul are very important to the Hmong. For instance, a participant revealed that when she got into a car accident, it made her very scared. She got sick after her car accident because she lost her soul at the place where the accident took place. A soul caller had to perform a spiritual calling ceremony to bring her soul back to her body, as a result of her soul loss. The participant stated she felt better and had the energy to do her usual activities afterward. Another participant stated a soul caller is able to help call the soul that was lost back to the “virtual or real world” and back into the physical body. Ever sought help from an Herbalist. According to participants who have sought help from an herbalist, they stated the benefit of seeking help from an herbalist is that it is 70 very helpful in treating fever and rashes, but it must have no association with the evil spirit. Another benefit is using herbal medicines to massage painful areas of the body. Ever sought help from a Modern Medical Doctor. Almost all participants reported they have sought help from a modern medical doctor; however, they did not all provide any explanation as to the benefits of using a modern medical doctor. Those participants who provided explanations regarding the benefits of seeking help from a modern medical doctor expressed that modern medical doctors are able to prescribe medications to treat their illnesses such as fever, headache and/ or stomach pain. While others revealed that modern medical doctors are able to use the latest technologies to evaluate and pinpoint exactly where the disease is located and how big in size it has become. A participant, for example, articulated that modern medical doctors have helped improve and prolong her life because of the illness that she has and that she has been taking medications for 9 years. Suggestions for the Hmong community after seeking traditional health care, and if illness is still present. In terms of providing suggestions for the Hmong community after traditional health care has been exhausted, almost all participants indicated modern medical care must be considered and not disregarded it. This implies that Hmong Americans are more likely and more willing to seek modern medical care only after traditional healthcare is exhausted for the individual’s illness. Value of traditional medicine. Regarding the value of traditional medicine, a majority of participants found traditional medicine to be very valuable. Many 71 participants reported that traditional medicine is good for the soul and mind. A participant, for example, expressed that she had witnessed the benefit of using traditional medicine. While another participant stated “Traditional medicine is as valuable as modern medicine, the only difference is that modern medicine has the modern tools to assess my illness such as x-ray machines.” Understanding of illness. Although five people did not respond to this question regarding their understanding of illness, those participants who responded to this question interpreted the understanding of illness as related to the soul being lost (poob plig) especially when the soul has wandered off to other places beyond the human world. Other participants associated the understanding of illness to the soul, body and physical self of the individual. For instance, a participant shared that illness could be in the mind, soul and/or body. Further, some participants attributed the understanding of illness to the processed food that is being consumed by individuals which causes chemical imbalances in the body. A participant revealed that “In Laos, the food that we eat is organic, but now, many of the food that we eat here have fertilizer/pesticides, which makes our health bad.” Understanding of illness changed in recent years. Of the participants who answered “yes” to whether their understanding of illness has changed in the recent years said it was due in part to the existence of hospitals and advanced technologies. A majority of participants expressed that in Laos there were no hospitals so only traditional rituals and medicines were used to treat illnesses and there were no alternative options 72 like a hospital. Other participants stated their understanding of illness has changed as a result of the food that is being consumed in the United States. For instance, a participant reported liking organic versus chemical food. Those participants who stated “no” suggested that their understanding of illness has not changed in the recent years, as the only difference is the existence of hospitals and advanced technologies. Illness, according to these participants, is a mixture of spiritual, physical, mental and other factors. For example, a participant shared his belief that traditional shamanism can set your mind at ease, but western medicine is the only way to treat your body’s illness. Another participant stated “Traditional shamanism cannot treat diabetes, high blood pressure and a broken leg, only western medicine can. On the other hand, only shamanism will set your mind at ease if you feel that spiritually something is wrong. In conclusion, you need both in the Hmong community. You should never disregard both types of treatments.” 73 Chapter 5 CONCLUSION AND IMPLICATION Introduction This chapter will present a summary of the research project findings regarding views of both traditional and modern health care among Hmong Americans. In addition, conclusions of the overall research key findings and the literature review will be compared and contrasted. Lastly, implications for social work practice, recommendations for service providers as it relates to two theoretical frameworks presented in Chapter 1, as well as recommendations for future research will be discussed. Summary According to data gathered from both quantitative and qualitative questionnaires, it was confirmed that Hmong Americans still have not abandoned their cultural beliefs and/or practices, and they are still a very traditional group of people. The Hmong refugees are a nomadic group of people who left their homeland as a result of their collaboration with the United States during the Vietnam War in the 1960s. Although the Hmong have settled in the United States for more than three decades, they still encounter barriers when accessing and utilizing the modern health care system and its services. Many of the barriers are as a result of the cultural and traditional beliefs that are currently being practiced within the Hmong community. Also, many Hmong lack the education and/or do not have a sufficient understanding of the English language, which prevents them from being able to understand treatment procedures or to simply follow through 74 with advice from health professionals. On the other hand, health care professionals also lack the training and education to become culturally sensitive practitioners in effectively meeting the needs of Hmong Americans. As a result, it creates greater miscommunication and mistrust between healthcare professionals and the Hmong people. As tensions increase, Hmong Americans become more reluctant to seek modern medical treatments and/or services even when they become ill. This leads them to seek traditional modalities including shamanism, herbalists, healer/soul caller and healing practices. Conclusion Key findings. The author examined the highest level of education attained by the 30 participants of this research study, as well as where they received their education. The findings in Table 6 showed that half (50.0%) had never received any form of education, and 33.3% indicated they received their education in the U.S, followed by 13.3% outside of U.S while only 3.3% stated more than one country. In addition, Table 5 revealed that of the 30 participants, 93.3% of them received less than a high school education and/or had never received a college degree, while only 6.7% had received a college degree. This implies that not having an education is a contributing factor, as it prevents Hmong Americans from having sufficient knowledge and understanding of the modern health care system. These findings proved to be consistent with the data from the literature review, as Chung and Lin (1994) reported that Hmong Americans are one of the groups who are less educated and have lower literacy rates compared to Laotians and Vietnamese. 75 English as a second language is another theme that emerged from this study in regards to understanding, speaking, reading, and writing in English. The finding in Table 8 revealed that 76.6% of participants either did not understand or only somewhat understood English well while only 23% reported they either did understand English or understood English very well. Table 9, showed that 76.6% of participants indicated they either did not speak or only somewhat spoke English well, followed by only 23.3% who either did not read or only somewhat read English well. Table 10 indicated that 80.0% of participants either did not write or only somewhat wrote English well, and only 16.6% indicated they either read or read English very well. Lastly, Table 11 results showed that 80.0% of participants either did not write or only somewhat wrote well in English, followed by only 20.0% who reported they either write or write very well in English. Not having the ability to understand, speak, read and write in English are major factors, as it prevents Hmong Americans from being able to communicate their symptoms and concerns to health care providers. This finding is similar to the literature review, as a large number of Southeast Asian refugees have limited understanding of the English language (Cobb, 2010). Furthermore, the finding from the 2000 U.S Census Bureau showed that over 50% of households reported they do not have family members who speak English well, while only 4.4% of households reported English as their only spoken language in the home (as cited in Cobb, 2010). It is imperative that Hmong Americans have an understanding of English in order to effectively communicate and access the modern health care system successfully. 76 Another considerable theme is decision making. Participants indicated that decision making is mostly made by fathers when it comes to modern medical treatment. Table 13 revealed that 40.0% of decision making regarding modern medical treatments are made primarily by the father, but are still made in conjunction with such persons as the mother, siblings, clan leaders and others. This finding coincides with the literature review, as fathers generally make all the welfare decisions in the household. However, fathers also base their decision making on the opinions of grandparents, siblings, and clan leaders. Because decision making is a shared process in the Hmong culture, it usually takes longer for the family to make quick medical decisions when a medical procedure is needed for an ill Hmong individual (Parker and Kiatoukaysy, 1999). Another finding is regarding who would most likely be the first person to seek help from when a family member becomes ill. Table 14 shows that 43.3% of participants reported they would seek help from a Western physician first when it comes to illness, while 30.0% indicated that they would first seek tradition health care such as a shaman, a healer/soul caller or an herbalist, followed by 26.7% of participants who reported others (e.g. husband and son, father, mother, and siblings, and son and daughter in law). In contrast, the literature review indicated that modern medical health care models are the last source of care for some Hmong individuals and families (Warmer & Mochel, 1998). However, this research study found that modern doctors are most likely the first person (health care provider) sought by Hmong families when an illness arises. 77 Another key finding is cultural competency, which asks participants about their modern medical doctors’ knowledge of their cultural background. Table 17 revealed that that 70.0% of participants who reported doctors who are knowledgeable of their cultural background, followed by 23.3% reported their doctors are not knowledgeable of their cultural background, while 6.7% refused to answer the question. Of the 30 participants who indicated that their modern medical doctors are knowledgeable of their cultural background, six expressed that some doctors have allowed them to perform rituals for Hmong individuals when necessary. For example, one participant shared that doctors sometimes allow him to use his traditional beliefs and/or practices before agreeing to modern medical care. In contrast, other participants stated their modern medical doctors are not knowledgeable of their cultural background. For instance, one participant reported that some doctors had never heard of Hmong people before. Another participant explained that if her doctor was knowledgeable of her cultural background, then he (doctor) would have allowed her to seek other alternatives. In contrast, another a question also asked if participants thought it was necessary for modern doctors to have knowledge and understanding of their cultural beliefs and/or practices. A majority (93.3%) of participants indicated it was necessary for modern doctors to have knowledge and understanding of their cultural beliefs and/or practices, while the other 6.7% indicated it was not necessary for doctors to have knowledge and understanding of their cultural beliefs and/or practices. Participants who indicated it was necessary for their doctor to have knowledge and understanding of their cultural beliefs 78 and/or practices stated that in order to treat and understand their (Hmong Americans) illnesses, doctors must have knowledge and understanding of their cultural beliefs and/or practices. Similarly, the literature review shows that Hmong Americans still rely heavily on their traditional beliefs and practices of shamanism, soul calling, and traditional remedies. The findings related to understanding illnesses are not only significant, but coincide with data found in the literature review as illness is viewed as a distraction of souls and spirits, which are balanced and dynamic in nature (Platnikoff et al., 2002). According to this research finding, participants interpreted the understanding of illness as related to the soul being lost (poob plig), especially when the soul has wandered off to other places beyond the human world, while others attributed the understanding of illness to the body and physical self of the individual, as well as the soul. As stated by Uba (1992) and Parker and Kiatoukaysy (1999), traditional Hmong believe that the primary cause of illness is soul loss. This implies that Hmong Americans, although, a majority have been in the U.S. for more than twenty years, are still a very traditional group of people. Implications for Social Work Practice Although the health care system in the United States is complex and multidisciplinary in nature, health care professionals have not yet been able to fully help Hmong Americans ease their difficulties when utilizing modern health care. This is due in part to healthcare providers’ lack of cultural competency skills. Because of their 79 difficulties and challenges with the modern medical health care, this research study is intended to gain a better understanding of the reasons behind Hmong cultural beliefs and practices and, more importantly, to increase health care professionals’ and social workers’ knowledge and understanding when working with Hmong Americans. Moreover, this author’s intent is to create a friendly and understanding environment in which the Hmong feel comfortable expressing and addressing their concerns in regards to health and illness in relation to their cultural beliefs. The implications for social workers at the micro level includes understanding Hmong Americans’ evolution of sociocultural upbringing, geographical environment, familial factors that impact how they view and understand modern health care systems, as well as their utilization of services, as it relates to the ecological perspective mentioned in Chapter 1. The ecological perspective allows health care providers and others to understand the range of physical, emotional, and environmental factors that have affected the well-being of Hmong individuals. Health care professionals and social workers must be culturally sensitive and competent in respectfully affirming the worth and dignity (NASW, 2005, p. 8) of Hmong Americans as a group whether or not health care professionals agree with what has been expressed to them. In addition, they must have a basic knowledge and understanding of the different life threatening situations that Hmong Americans have encountered in order to understand their struggles and challenges while settling in the United States. Further, it is crucial for service providers to acknowledge the language and cultural differences, religious beliefs, and other diverse features that are 80 found within the Hmong American population. Social work implications at the mezzo level include changing larger systems, such as communities and organizations. By doing this, social workers will be able to address the necessary skills and training in order to promote greater cultural competency within modern health care system to address barriers that Hmong Americans encounter as they utilize modern health care services. Lastly, on a macro level, health care professionals and social workers must be able to develop community programs to evaluate the strengths and assets that Hmong Americans have within their communities and neighborhoods to bring about greater change with local initiatives. As a result of social workers’ proactive skills and knowledge, they will be able to empower Hmong Americans as well as to strengthen the relationship between healthcare professionals and Hmong Americans who struggle with understanding the modern health care system, as well as utilization of services. Most importantly, the constant and continual education and training in the ecological perspective, practice in human diversity and cultural competency are vital skills needed in working collaboratively with diverse group of people within the U.S. Recommendations for Service Providers As indicated in this research study, even though the average Hmong American has settled in the United States for 23.8 years, they are still a very traditional group of people due to their distinct perceptions of health and illness, as well as their traditional cultural beliefs and/or practices. Therefore, it is imperative that service providers (doctors, health 81 professionals and educators) receive sufficient training and education on how to address Hmong Americans’ concerns regarding health and illness. By having a better understanding about Hmong Americans’ health care beliefs and/or practices, it will enable health care providers to relate sensitively to meeting the needs of Hmong Americans. As a result, it will enable Hmong Americans to be more willing to seek and utilize modern medical care, and illnesses will likely be detected at earlier stages compared to later stages. Another recommendation is that health care academia should adopt culturallysensitive approaches in order to assist and provide the necessary care for diverse people, especially for Hmong Americans. Service providers who are culturally competent and sensitive regarding Hmong Americans’ social and cultural perceptions and practices will be able to address Hmong patients’ needs and concerns, which will decrease the likelihood of creating tension and miscommunication between Hmong patients and health care providers and professionals. Further recommendation is that health care providers and professionals should view themselves as advisers and presenters of information, and not authoritarian figures to their patients and families. Hmong patients favor providers with a caring and respectful demeanor; therefore, patients’ cultural beliefs and/or practices, as well as decision making processes, must be taken into consideration before a patient agrees to medical procedures. This is due in part to the fact that the Hmong are a patriarchal culture, where decisions are made primarily among male family members and/or male clan leaders. 82 Lastly, medical providers also need to learn about Hmong Americans’ understanding of causation to illness, patterns of communication, decision making, cultural beliefs and/or practices, traditional medicine, and healings practices when treating illnesses. This requires an acknowledgment of cultural differences and similarities between traditional Hmong and biomedicine perspectives. Recommendations for Future Research As a result of the findings, it is important that future research focus on longitudinal studies of Hmong Americans’ views of both traditional and modern medical health care and how it has changed over the years. In addition, a larger sample size throughout different regions including counties, cities and states are suggested for future study and must be considered in order to gain more in-depth understanding of Hmong Americans’ views of both traditional and modern medical care, as well as its utilization of services. Furthermore, future study should focus on younger Hmong Americans’ views of both traditional and modern health care, as a majority of participants in this research study consisted of participants’ ages 61 years of age or older. Another intriguing future research topic would be to compare and contrast perceptions of newly arrived Hmong refugees from Wat Tham Krabok, an area located in Thailand, and the first and second wave of Hmong refugees to both traditional and modern health care Lastly, another future research suggestion is to focus on the level of acculturation and assimilation of Hmong Americans to see if their views of both traditional and 83 western healthcare will yield a different or more significant result, compared with this author’s findings. 84 APPENDICES 85 APPENDIX A Consent Form I, Stacy Thang Yang, a social work graduate student at California State University, Sacramento is conducting a research study to explore perceptions of Hmong Americans have toward traditional and modern health care, and their utilizations of such services. The study’s rationale is to gain a better understanding of the reasons behind Hmong cultural beliefs and/or practices and, more importantly, to increase health care professionals and social workers’ knowledge and understanding when working with Hmong Americans in Sacramento County. Your participation in this study will take approximately 40-50 minutes and is strictly anonymous. My questions will not collect any personal information from you such as name, address, phone number, or social security number. Verbal consent will be required from you before participating in the study. You will be asked to complete a set of questions exploring views and perceptions that you have toward traditional and modern medical care, and your utilizations of such services. I will interview or administer my questionnaire to you at a private room at Sacramento Community Clinic. Those participants who have difficulty with transportation coming to the scheduled appointments, the author will ask if she could conduct the interview at the participants’ homes. However, interviews will only be conducted at the participants’ homes after permissions have been granted from the participants. In addition, any information collected from you will be kept confidential and secure in a locked file cabinet, and no one other than me and my advisor will have access to the information. Furthermore, all completed survey questionnaires will be destroyed once the study is completed. In my views, this research project is considered to have minimal risk. However, some participants such as yourself may have a strong reaction to certain modern medical care, as a result of your experiences with modern medical care or negative experiences with your doctor. Your participation in this research project is completely voluntary, and you have the right to withdraw or may skip any questions if you are not comfortable answering at any given time without penalty. After participating in my research project, in case you have addition questions, I will provide my email address (faithfulyang@yahoo.com) and a contact phone number (916-393-xxxx), as well as my thesis advisor’s (Dr. Serge Lee) email address (lees@saclink.csus.edu) and his contact phone number (916- 278-5820). Additionally, I am providing you with a list of referral sources and their contact phone numbers where you can receive additional counseling services should you feel the need for it after your participation in this study. Sacramento Community Clinic has granted me permission to 86 approach you at this facility. If you have any questions please contact Sacramento Community Clinic at 916-428-3788 or 916-924-7988. If you consent to what described above, please sign your name here __________________________________ indicating that you agree to participate in this research study. Thank you, Stacy Thang Yang 1). Hmong Women’s Heritage Association 2251 Florin Road, #104 Sacramento, CA 95822 Office: 916-394-1405 Fax: 916-392-9326 2). Asian Pacific Community Counseling Center 5330 Power Inn Road, Suite A, Sacramento, CA 95820, Phone: 916-383-6783 Fax: 916-383-8488 3). Asian Resource 709 Stockton Blvd. Sacramento, CA 95824 Office: 916-454-1892 Fax: 916-454-1895 4). Southeast Asian Assistance Center 5625 24th Street Sacramento, CA 95822-2233 Office: 916-421-1036 Fax: 916-421-6731 87 APPENDIX B Questionnaires in English 1. What is your age category? a. b. c. d. e. f. 21-28 29-36 37-44 45-52 53-60 61 or over 2. Sex a. Male b. Female 3. Where were you born? a. b. In the United States Outside of the United States. If outside of the United States, please specify country: __________________________ 4. What is your marital status? a. b. c. d. Married Separated/Divorced Widow Single 5. What is your highest level of education? a. b. c. d. e. f. Less than high school High school graduate Some college units Associate or community college graduate College graduate Post-graduate 88 6. Where did you receive your education? a. United States b. Outside of the United States. If outside of the United States, please specify country: __________________________ 7. Numbers of years you have lived in the United States: ______________________ 8. How well do you understand English? a. b. c. d. Do not understand Somewhat understand Understand well Understand very well 9. How well do you speak English? a. b. c. d. Do not speak at all Somewhat speak Speak well Speak very well 10. How well do you read in English? a. b. c. d. Do not read at all Somewhat read Read well Read very well 11. How well do you write in English? a. b. c. d. Do not write Somewhat write Write well Write very well 12. What is your religious preference? Would you say… a. Shamanism b. Christian c. If other, please specify: __________________________ 89 13. For your family, when it comes to treating illness, who makes decisions regarding modern medical treatment? Would you say… a. b. c. d. e. f. ______Father ______Mother ______Siblings ______Elders in the family ______Clan leader If other, please specify: __________________________ 14. When a family member becomes ill, who is most likely to be the first person you go for help? (Please select only one source/person). Would you say… a. b. c. d. e. Shaman Healer/soul caller Herbalist Westerner physician If other, please specify: _________________ 15. In the event that a designated family member is not available to make modern medical care decisions for you/the family, who is most likely to make such decisions? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 16. What do you think about modern medical care? Please briefly describe your general perceptions about this type of medical practice. __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 17. Have you ever been reluctant to utilize modern medical health care in the past? a. ________Yes b. ________ No c. ________ Refused 90 18. If YES, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 19. If NO, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 20. In case you had previously sought modern medical care, have you ever encountered problems or concerns with this type of medical care? a. _______ Yes b. _______ No c. _______ Refused 21. If YES, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 22. If NO, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 23. In your view, was your modern medical doctor knowledgeable about your cultural background? a. _______ Yes b. _______ No c. _______ Refused 24. If YES, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 91 25. If NO, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 26. Have you ever felt disrespected by a modern medical doctor? a. ________ Yes b. ________ No c. ________ Refused 27. If YES, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 28. If NO, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 29. Have you ever felt devalued by a modern medical doctor in recent years? a. ________ Yes b. ________ No c. ________ Refused 30. If YES, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 31. If NO, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 32. When was the last time you sought help from a modern medical provider such as a doctor? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 92 33. Do you feel that it is necessary for modern medical doctors to have knowledge and understanding of your cultural beliefs and/or practices? a. ________ Yes b. ________ No c. ________ Refused 34. If YES, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 35. If NO, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 36. Have you ever sought help from a traditional healer such as a shaman? a. ________ Yes b. ________ No c. ________ Refused 37. If yes, could you provide a brief explanation as to the benefits of shamanism? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 38. Have you ever sought help from a healer/soul caller? a. ________ Yes b. ________ No c. ________ Refused 39. If yes, could you provide a brief explanation as to the benefits of a healer/soul caller? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 93 40. Have you ever sought help from an herbalist? a. _________ Yes b. _________ No c. _________ Refused 41. If yes, could you provide a brief explanation as to the benefits of an herbalist? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 42. Have you ever sought help from a modern medical doctor? a. _________ Yes b. _________ No c. _________ Refused 43. If yes, could you provide a brief explanation as to the benefits of a modern medical doctor? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 44. Suppose that, after a Hmong person seeking help from a shaman, a healer/soul caller, and an herbalist, and if the illness is still present, what suggestions do you have for the Hmong community? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 45. In your view, how valuable is traditional medicine? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 46. In your view, what is your understanding of illness? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 94 47. In case you were born and raised in Laos or Thailand, has your understanding of illness changed in past years? a. ________ Yes b. ________ No c. ________ Refused 48. If YES, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 49. If NO, please explain: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 95 APPENDIX C Questionnaires in Hmong 1. Koj lub noob nyoog yog nyob ntawd li cas? a. b. g. h. i. j. 21-28 29-36 37-44 45-52 53-60 61 or over 2. Koj yog: a. Txiv neej b. Poj niam 3. Koj yug rau qhov twg? a. b. Teb chaws Meskas Tsis yog teb chaw Meskas. Thov qhia saib koj yus rau teb chaw twg: __________________________ 4. Koj: a. b. c. d. Muaj txiv los yog muaj poj niam lawm Sib nrauj lawm Poj ntsuam, yawg ntsuag Tsis tau muaj txiv tsis tau muaj poj niam 5. Koj kawm ntawv txog qib twg: a. b. c. d. e. f. Kawm tsis tau tag thawj qib Kawm tag thawj qib Kawm me ntsis qib siab Kawm tas ob xyoo qib siab (Associate Degree) Kawm tag qib siab Kawm dhau qib siab 96 6. Koj kawm ntawv nyob teb chaw twg? a. Teb chaws Meskas b. Tsis nyob rau teb chaws Meskas. Thov sau lub teb chaws ntawd npe: __________________________ 7. Koj nyob teb chaws Mekas tau pes tsawg xyoo lawm? __________________________ 8. Koj nkag siab lus Meskas ntau npaum li cas? a. b. c. d. Tsis nkag siab li Nkag siab thiab Nkag siab zoo Nkag siab zoo heev 9. Koj txawj hais lus Meskas npaum li cas? a. b. c. d. Tsis txawj hais lus Meskas li Txawj hais lus Meskas thiab Txawj hais lus Meskas zoo Txawj hais lus Meskas zoo heev 10. Koj txawj nyeem ntawv Meskas npaum li cas? a. b. c. d. Tsis txawj nyeem li Txawj nyeem me ntsis thiab Txawj nyeem zoo Txawj nyeem zoo heev 11. Koj txawj sau ntawv Meskas npaum li cas? a. b. c. d. Tsis txawj sau ntawv li Txawj sau ntawv me ntsis thiab Txawj sau ntawv Txawj sau ntawv heev 12. Koj txoj kev ntseeg yog dab tsis? Koj yuav hais tias yog… a. Coj kev cai qub b. Coj kev cai tshiab c. Lwm yam, thov qhia: __________________________ 97 13. Ntawm koj tsev neeg, hais txog kev mob nkees, leej twg yog tus yuav sawv cev thiab txiav txim hais txog kev kuaj mob rau sab Meskas? Koj yuav hais tias yog… a. b. c. d. e. f. ______ Leej txiv ______Leej niam ______Cov kwv los cov muam ______Cov neeg laus hauv yus tsev neeg ______Tus thawj coj hauv koj xeem Lwm yam, thov qhia: __________________________ 14. Yog koj tsev neeg ib tus twg muaj mob, koj yuav mus cuag leej twg ua ntej? (Thov khij ib yam xwb). Koj yuav hais tias yog… a. b. c. d. e. Txiv neeb Tus kws khawv koob/hu plig Kws tshuaj ntsuab Kws tshuaj Meskas Lwm yam, thov qhia: _____________________ 15. Thaum tus neeg sawv cev thiab txiav txim hais txog kev mob nkeeg tsis khoom los yog tsis nyob lawm, leej twg yog tus yuav los sawv cev? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 16. Koj txoj kev xav zoo li cas rau kev kuaj mob sab Meskas xwb? Thov qhia me ntsis koj txoj kev xav rau sab kev kuaj mob. __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 17. Puas tau muaj tej lub sij hawm yav tas los uas koj tsis xav mus ntsib kws kho mob Meskas? a. ________Muaj b. ________ Tsis muaj c. ________ Tsis kam teb 98 18. Yog muaj, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 19. Yog tsis muaj, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 20. Yog yav tas los koj tau ntsib kws kho mob Meskas, koj puas tau ntsib teeb meem los yog muaj kev txhawj xeeb dua li? a. _______ Muaj b. _______ Tsis muaj c. _______Tsis kam teb 21. Yog muaj, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 22. Yog tsis muaj, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 23. Ntawm koj txoj kev xav ne, koj tus kws kho mob Meskas puas paub txog koj keeb kwm? a. ________ Paub b. ________ Tsis paub c. ________ Tsis kam teb 24. Yog paub, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 99 25. Yog tsis paub, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 26. Koj tus kws kho mob Meskas puas tau uas tej yam saib tsis taus koj dua los li? a. ________ Muaj b. ________ Tsis muaj c. ________ Tsis kam teb 27. Yog muaj, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 28. Yog tsis muaj, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 29. Ob peb xyoos tas los no, koj tus kws kho mob Meskas puas tau saib koj tsis muaj nuj nqis? a. ________ Muaj b. ________ Tsis muaj c. ________ Tsis kam teb 30. Yog muaj, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 31. Yog tsis muaj, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 32. Zaum tas los no, koj mus ntsib koj tus kws kho mob Meskas yog thaum twg? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 100 33. Koj puas xav hais tias nws tseem ceeb heev uas koj tus kws kho mob Meskas paub txog thiab to taub txog koj tej kab lig kev cai? a. ________ Tseem ceeb b. ________ Tsis tseem ceeb c. ________ Tsis kam teb 34. Yog tseem ceeb, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 35. Yog tsis tseem ceeb, thov piav me ntsis los: __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 36. Koj puas tau mus nrhiav kev pab los ntawm ib tus txiv neeb (kev ua neeb ua yaig) dua li? a. ________ Tau lawm b. ________ Tsis tau li c. ________ Tsis kam teb 37. Yog nrhiav kev pab lawm no, koj sim qhia seb kev ua neeb ua yaig muaj txiaj ntsim li cas? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 38. Koj puas tau mus nrhiav kev pab los ntawm ib tug neeg txawj khawv koob/hu plig dua li? a. ________ Tau lawm b. ________ Tsis tau li c. ________ Tsis kam teb 101 39. Yog nrhiav kev pab lawm no, koj sim qhia seb kev ua khawv koob/hu plig pab muaj txiaj ntsim li cas? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 40. Koj puas tau nrhiav kev pab los ntawm ib tus kws muab tshuaj ntsuab dua li? a. _________ Tau lawm b. _________ Tsis tau li c. _________ Tsis kam teb 41. Yog nrhiav kev pab lawn no, koj sim qhia seb kev siv tshuaj ntsuab muaj txiaj ntsim li cas? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 42. Koj puas tau mus nrhiav kev pab ntawd ib tus kws kho mob Mesksa dua los li? a. _________ Tau lawm b. _________ Tsis tau li c. _________ Tsis kam teb 43. Yog tau nrhiav kev pab lawm, koj sim qhia txog tias tus kws kho mob Meskas muaj txiaj ntsim li cas? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 44. Yog thaum ib tus neeg mob tau txais kev pab los ntawm ib tus txiv neeb, ib tus kws khawv koob/hu plig, thiab ib tus kws muab tshuab ntsuab tiabsis nws tus mob tsis zoo. Koj muaj lub tswv yim li cas los qhia koj haiv neeg Hmoob? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 45. Nyob ntawm koj txoj kev xav, hmoob tshuaj ntsuab muaj nuj nqes npaum li cas? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 102 46. Nyob ntawm koj txoj kev xav, koj to taub thiaj nkag siab li cas txog txoj kev mob nkees? __________________________________________________________________ __________________________________________________________________ __________________________________________________________________ 47. 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