International Perspectives
on Spinal Cord Injury
(IPSCI)
Background
 Guided by Convention on
the Rights of Persons
with Disabilities
 Building on WHO/World
Bank World report on
disability
 Will support the WHO
global disability plan of
action 2014 – 2021
Aims of the Report
 To bring together the best-available
information on SCI, in particular
epidemiology, services, interventions and
policies;
 To reflect the lived experience of people
with SCI across the life course and
throughout the world;
 To make evidence-based recommendations
for action.
How was the Report developed?
 Involvement of a large number of stakeholders:
– advisory and editorial committees;
– over 200 contributors from low, middle and high
income countries.
 Review process: regional consultation, peer review.
 People with spinal cord injuries and their
organizations central to the process
 Swiss Paraplegic Research (SPF) provided support to
WHO and ISCOS for report's development
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What does the Report tell us?
• 250 000 – 500 000
• More men than
women ratio 2:1
Causes
• Up to 90% are
traumatic causes
• Main three causes:
road traffic crashes,
falls and violence
• Non traumatic
injuries are growing
in number
Impacts
• 2 to 5 times more likely to die prematurely
• high costs to individuals and society.
– indirect costs generally exceed direct costs.
– costs of SCI are higher than for comparable conditions
– much of the costs are born by individuals
• lower rates of school enrollment and economic
participation
Key messages
Spinal cord injury is:
 preventable;
 survivable;
 liveable.
What works to increase
survival
– Timely, appropriate
pre- hospital care
– Acute care
What works to improve health and
participation
– Access to ongoing
health care,
– Access to
rehabilitation and
mental health services
– Access to appropriate
assistive devices
– Specialized
knowledge and skills
– improve access to
education and
economic
participation
Content Overview
1.
2.
3.
4.
5.
6.
7.
8.
9.
Understanding SCI
A global picture of SCI
Prevention of SCI
Health care and rehabilitation
needs
Health systems strengthening
Attitudes, relationships and
adjustment
SCI and enabling
environments
Education and employment
The way forward
Main recommendations
1.
2.
3.
4.
Improve health sector response to SCI
Empower people with SCI and their families
Challenge negative attitudes to people with SCI
Ensure that buildings, transport and information
are accessible
5. Support employment and self-employment
6. Promote appropriate research and data
collection
Summary
 250,000 – 500,000
people annually
 SCI is preventable,
survivable and liveable
 The Report shows us
how
 Success is within reach
Contact details
Alana Officer –
officera@who.int
Doug Brown –
doug.brown@thesri.org
Jean-Jacques Wyndaele –
Jean-Jacques.Wyndaele@uza.be
Per von Groote –
per.vongroote@paraplegie.ch
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Thank you