BRIDGING THE COMMUNICATION GAP: EDUCATING, INFORMING, AND UNDERSTANDING THE DEAF COMMUNITY Patricia A. Boyd B.A., California St ate University, Sacramento, 2008 PROJECT Submitted in partial satisfaction of the requirements for the degree of MASTER OF ARTS in EDUCATION (Gender Equity Studies) at CALIFORNIA STATE UNIVERSITY, SACRAMENTO SPRING 2011 © 2011 Patricia A. Boyd ALL RIGHTS RESERVED ii BRIDGING THE COMMUNICATION GAP: EDUCATING, INFORMING, AND UNDERSTANDING THE DEAF COMMUNITY A Project by Patricia A. Boyd Approved by: __________________________________, Committee Chair Sherrie Carinci, Ed.D. Date iii Student: Patricia A. Boyd I certify that this student has met the requirements for format contained in the University format manual, and that this project is suitable for shelving in the Library and credit is to be awarded for the Project. , Graduate Coordinator Deidre Sessoms, Ph.D. Date Department of Teacher Education iv Abstract of BRIDGING THE COMMUNICATION GAP: EDUCATING, INFORMING, AND UNDERSTANDING THE DEAF COMMUNITY by Patricia A. Boyd Statement of the Problem Both Deaf men and women in Sonoma County are not adequately serviced in equal portions as the hearing community when it comes to Health and Human Services, especially, the little to no services and resources regarding domestic violence and sexual assault resources for Deaf woman and their children. Agencies such as law enforcement and fire officials have little to no training with regard to the Deaf population and Deaf culture. As a result, they feel unsafe and misinformed. “The lack of interpersonal violence education for Disabled women and their providers and lack of emergency back up providers have been identified as key obstacles to maintaining their safety” (Powers, Curry, Oschwald, Maley, & Saxton, 2002, p. 2). Consequently, both Deaf men and women are underserved, which leads to not only unequal treatment, but segregation. The hearing community in general does not understand that the Deaf community comes from a culture that has their own community, belief v system, and language. The hearing attitude and mindset of seeing both Deaf men and women as “handicapped,” “disabled,” and “broken” may account for not only why the Deaf are ignored, marginalized, and oppressed but for how they are serviced because the hearing community play a critical role in the teaching of how the Deaf are viewed and served in society. Consequently, the Deaf are seen as a disabled group rather than a cultural linguistic minority, and that encourages the biased terms often used that allows the continuation of oppression, discrimination, and marginalization. The way both Deaf women and men are viewed can effect how they receive Health and Human Services, information, and resources from agencies including law enforcement and the fire department. As long as the hearing continue to see the Deaf as “broken,” they will continue to try to fix them. Other factors have also led to a gap of inadequate services and the lack of availability to information and resources for both Deaf men and women in Sonoma County. Purpose of the Project The purpose of this two-part project is to 1. educate the hearing, especially federal, state, and county agencies such as the law enforcement and fire department in Sonoma County by developing and distributing a four-fold brochure to be used as a “one-stop shop” educational tool, and vi 2. the creation of a PowerPoint presentation on Deaf culture and a list of resources and services for domestic and sexual abuse for Deaf women and their children. The brochure consists of information on Deaf culture, effective communication, and ways in which the hearing population can better serve the Deaf community. The brochure also provides a list of services and resources available to Deaf victims of violence. It explains the success of a recent town hall meeting in hopes other cities will implement informational town hall meetings to bridge the communication gap as well. The brochure mentions that the implementation of town hall meetings and forming advisory committees was an opportunity to bridge the communication gap between the Deaf community and local agencies. The development of the training brochure was designed by using samples of brochures designed by the CSUS Students with Disabilities office at California State University, Sacramento. It refers to Deaf agencies who service the Deaf such as Deaf Counseling Advocacy & Referral Agency (DCARA), Deaf Hope, Norcal, Deaf Hood, and Disability Services and Legal Center and by using the anti-oppression methodology approach. Throughout the process of gathering information and resources for the brochure and generating enthusiasm for the town hall meetings, the Deaf community was actively engaged in volunteering to be leaders in their community in hopes they will continue to motivate and encourage others to participate. The PowerPoint consists of information on Deaf culture, audism, myths vii and misconceptions about the Deaf, ADA law, and information and statistics on domestic and sexual abuse, including resources. The use of anti-oppression methodology was critical to the development of the brochure content of and the implementation of the town hall beings and forming advisory committee. Project Description This project is based on samples of brochures from the Disability Services for Students with Disabilities at California State University, Sacramento, Disability Services and Legal Center in Santa Rosa, and Disability Rights Advocates Agency in Sacramento and created as a one-stop educational tool. The brochure was developed for both the Deaf community and hearing community for easy access to resources for the Deaf community and an educational tool for the hearing community. Along with the four-fold brochure, a PowerPoint is also available for training agencies and organizations such as domestic violence agencies, shelters, organizations, District Attorneys, and law enforcement on Deaf culture, audism, hearing privilege, and available resources and services for Deaf women who are victims of domestic violence and sexual assault. The PowerPoint presentation is based on information provided by Deaf Hope and National Online Resource Center on Violence. The instructor, brochure, PowerPoint presentation, and other materials comprise the training portion of this project. The type of educational information, services, and resources enables both the hearing community and the Deaf community to be educated on culture, services, and resources. The hearing will gain an understanding of Deaf viii culture and audism and the Deaf. Deaf women will have a list of resources in case a dangerous situation arises such as domestic violence or sexual assault. __________________________________, Committee Chair Sherrie Carinci, Ed.D. ____________________________ Date ix DEDICATION This project is dedicated to all of Deaf and Hard of Hearing Community Member’s in Sonoma County without which I would never have recognized how you struggle every day with discrimination, humiliation, and exclusion. The Deaf community has inspired me to make a difference in our world. And last but not least, Dr. Carinci, without your persistence, patience, and support and the constant reminder to always go back to the “funnel,” I would still be struggling to find my way. Your direction and guidance has led me down a path that has changed my life. Thank you. x ACKNOWLEDGMENTS I would like to acknowledge my wonderful supportive husband, Bill without whom none of this would be possible. His unconditional, and never ending financial and emotional support has been an inspiration and I am truly grateful for all that he has sacrificed and contributed especially driving me to class from Sonoma County to Sacramento for the last five years. I would also like to recognize my three children, Kim, Maryann and Ryan, including their spouses, Michelle Hamilton and Terry Hagerman who constantly gave me their unconditional love and support. And last but not least, my terrific grandson Michael who inspires me everyday by the way he faces the challenges and obstacles life presents with determination and optimism that he will succeed in college and be and do the best he can. You will always be my “Mikie.” xi TABLE OF CONTENTS Page Dedication..................................................................................................................... x Acknowledgments ....................................................................................................... xi Chapter 1. INTRODUCTION ................................................................................................... 1 Purpose of the Project ....................................................................................... 4 Statement of Problem ....................................................................................... 6 Significance of the Project................................................................................ 8 Theoretical Basis for the Project ...................................................................... 9 Methodology of the Project ............................................................................ 12 Limitations of the Project ............................................................................... 14 Definition of Terms ........................................................................................ 15 Organization of the Project ............................................................................. 21 Background of the Researcher ........................................................................ 22 2. REVIEW OF RELATED LITERATURE ............................................................. 24 Introduction .................................................................................................... 24 The History of Deaf Communication in the United States ............................. 24 Actions Speak Louder Than Words: “Audism” ............................................. 29 Misconceptions That Continue to Oppress the Deaf ...................................... 30 Myths That Continue ...................................................................................... 32 xii Inclusion: Not Always a Good Thing ............................................................. 34 Deaf Children and Deaf Victims of Violence Have a Commonality ............. 36 The Deaf Community and Domestic Violence .............................................. 37 Self-identifying ............................................................................................... 47 Cultural Minority: Deaf Children Can Pave the Way for Others ................... 48 Conclusion ...................................................................................................... 50 3. METHODOLOGY ................................................................................................ 53 Introduction .................................................................................................... 53 The Target Audience ...................................................................................... 54 A Content Analysis of a Training Guide as a Visual Guide ........................... 54 Summary......................................................................................................... 56 4. DISCUSSION, CONCLUSIONS, LIMITATIONS, AND RECOMMENDATIONS ....................................................................................... 57 Discussion....................................................................................................... 57 Conclusions .................................................................................................... 66 Limitations ...................................................................................................... 69 Recommendations for Further Study.............................................................. 70 Reflections ...................................................................................................... 70 Appendix A: Brochure ............................................................................................... 72 Appendix B: PowerPoint Presentation ....................................................................... 75 Appendix C: Resources for Deaf Women Victims of Violence ................................. 86 xiii Appendix D: Evaluation Form ................................................................................... 98 References ................................................................................................................ 103 xiv 1 Chapter 1 INTRODUCTION The Deaf, by nature, have a fighting spirit and it shows with regard to the Deaf community in Sonoma County, California. Recently, the Deaf community in Sonoma County united and voted unanimously that public safety was their number one issue with law enforcement. They want to bridge the communication gap with law enforcement by educating and informing them of the culture and language difference, which also includes teaching the law enforcement community how the Deaf communicate and the many ways they obtain information. The Deaf community, including Deaf women who are victims of domestic violence and sexual assault, has struggled with accessibility issues and inadequate services, information, and resources suited for their needs for centuries. According to Nosek and Howland’s Applied Research document (1998), generally speaking, there is a serious current and long standing shortage of services for disabled women who are victims of violence. However, when narrowing the problem down to counties, or more specifically cities like Santa Rosa, California, it being the largest city in Sonoma County, there is a noticeable shortage of the above services. According to the “Census Bureau Quick Find” (U.S. Census Bureau, 2010), there is an estimate of 154,212 residents living in Santa Rosa not including the Deaf community’s because the Deaf are not counted in the census; they go uncounted and unseen. The census issue causes a problem for not only Sonoma County, but for the 2 country as a whole when trying to estimate the Deaf count population to determine how to service this community. According to the Survey of Income and Program Participation (SIPP), one of a few national surveys that regularly collect data indentifying the American population of persons with hearing loss or Deafness, fewer than 1 in 20 Americans are currently Deaf or Hard of Hearing. In round numbers, in the U.S., there are nearly 10,000,000 persons with some degree of hearing loss and close to 1,000,000 are functionally Deaf (Mitchell, 2005). Hence, some Deaf and Hard of Hearing have profound to severe Deafness. Cities, states, and counties with an understanding of and appreciation for the Deaf culture, language, and customs will be able to bridge the gap of inadequate services of unequal portions between the Deaf and hearing communities faster than the areas without a strong foundation in Deaf culture. Unfortunately, when comparing cities and counties such as Sonoma County and the City of Santa Rosa in California, it is clear they both need improvement when they are compared to cities such as Rochester, New York and Nashville, Tennessee, which have many more Deaf friendly resources available (Berke, 2010). Sonoma County has had a long history of Deaf oppression and marginalization, and, as a result, both the Deaf men and women have had unequal portions of inadequate human services in Sonoma County. Consequently, Deaf women and their children who are victims of violence suffer due to the lack of resources are feeling fearful, isolated, and unsafe. 3 To become a “Deaf friendly city” such as Rochester and Nashville and close the gap between the two communities, an education-based, hands-on approach can be developed. Education can influence the hearing people’s perceptions, societal attitudes, mindsets, myths and misconceptions, and perceived notions the hearing population have of the Deaf. Education can close the gap of unequal treatment in services, resources, and information. First, however, the hearing must understand how their perceptions and behavior can affect the Deaf community adversely in order to be able to take responsibility for their actions perpetuating the oppression and marginalization of the Deaf community. To become a “Deaf friendly city” does not mean the Deaf and hearing need to co-mingle. What it means is that the Deaf would have equitable services to the hearing population and would be allowed to make their own decisions and choices. On a local level, DCARA, a Deaf advocacy agency in San Leandro, California who serve the Deaf and Hard of Hearing community, stated as of May 27, 2010, there are a total of 227 Deaf and Hard of Hearing people living in Sonoma County. The breakdown is as follows: 125 Deaf, 31 Hard of Hearing, 22 Late Deafened adults, five Deaf-blind, three mentally developed disabled, and 42 others who did not identify themselves in the sub-categories. This total is of those DCARA served and the rest of the numbers are underestimated. This project, the development of an educational training brochure and presentation, includes available resources for the Deaf community. The purpose of this 4 project was to (a) educate the hearing population on Deaf culture, and (b) foster interest in the hearing community through teaching methodologies and strategies to implement town hall meetings in their community. Also, it will inform the Deaf community members on local services, information, and resources, including those for Deaf victims of violence. The purposes will be accomplished with the design of a four-fold training brochure specially designed for federal, city, and state agencies, from which all members of both the hearing and Deaf communities can learn and benefit. In order to close the communication gap between the Deaf and hearing community, the hearing in general need to: (a) modify their attitudes and mindset regarding the Deaf, (b) realize how the hearing in general oppress the Deaf, (c) learn and understand what ineffective communication looks like, and (d) understand many deliberately and unintentionally ramifications of audism and the detrimental harm effect it has on the Deaf community. Purpose of the Project According to Dr. Sharon Dawson (personal communication, April 27, 2010), the County of Sonoma has not been receptive to the needs of the Deaf/Hard of Hearing community, especially Deaf women. Services provided by Disability Services and Legal Center and other small isolated community service providers, as well as three local sign language interpreting agencies are all that is available to the Deaf community. There are no comprehensive service agencies in Sonoma County focused on Deaf Culture, Language and Communication, Community Outreach or Advocacy, 5 specifically designed for and by the Deaf community (S. Dawson, personal communication, April 27, 2010). The disparity includes the lack of services and resources for Deaf women and their children who are victims of domestic violence and sexual assault. Nosek and Howland (1998) provided a “snapshot” of the first research performed on the severity of the lack of accessible domestic violence and sexual assault services and resources for disabled women (p. 1). Hence, the goal of this project is to design a four-fold educational training brochure and a PowerPoint presentation to be used as a training tool to not only educate the hearing on Deaf culture, but to inform Deaf women of the resources available to them. Two visual PowerPoint presentations that come from two different perspectives are being modeled in this project. One presentation is about Deaf culture, oppression, and values, and the other is about Deaf victims of domestic violence and sexual assault. One model was created using Lance Forshay’s (2009) Deaf Culture Part 3, the Oppression, Values and Identity. He covers such topics as cultural attitudes, What’s a Healthy Deaf Identity?, Deaf culture, and audism. The second model was presented in EDTE 266 class on November 17, 2010 and was created by Julie Rems-Smario, Executive Director of Deaf Hope. Like Lance Forshay’s presentation, similar topics on Deaf culture are covered, but Ms. Smario’s presentation is Deaf survivor centered. She uses examples of domestic violence in the Deaf community and shares Deaf survivor centered services. 6 Both visual presentations are not only used as tools to train and outreach to both the Deaf and hearing communities but to also achieve effective communication. According to the United States Department of Labor (1996), the benefits of a visual presentation is it is an effective way to communicate to the audience on ideas, the purpose of the presentation, and the goals the presenter is trying to achieve (p. 1). It is especially true for the Deaf as their vision is particularly honed due to the hearing loss. However, in general, some people are visual learners while others are aural learners. There are methodologies and strategies that support educating the hearing and the need for resources for services for Deaf women who are involved in a domestic violence situation. Statement of Problem The Deaf community, including Deaf women, in Sonoma County does not have access to committees, public hearings, commissions, town hall meetings, or auxiliaries as the hearing population do because the language is just not as easily accessible and often they were not informed. In 2006, Brenda Jo Brueggerman and Susan Burch wrote Women and Deafness: Double Visions. In “Part One: The Extended Family: Deaf Women in Organizations,” they talked about how important it is for “the Deaf, particularly women, to belong to groups such as auxiliaries, societies, organizations, and commissions for intellectual stimulation, information, and ‘social outlets’” (p. 40). The authors point out, “A gendered interpretation of Deaf organizations offers especially vivid evidence of women’s agency and of their specific 7 role in cultural transmission” (p. 40). According to a personal interview with Dr. Sharon Dawson, In Sonoma County both Deaf women and men do not participate in Commissions, Councils or County Committees and other public processes that are intended to enhance the lives of the Deaf community don’t accomplish this goal because of flawed accessibility to the public service system. (personal communication, April 27, 2010) The Deaf community is also struggling with accessibility issues and inadequate services suited for their needs specifically in Santa Rosa. A major accessibility issue is that they are unable to communicate with local law enforcement and fire officials (S. Dawson, personal communication, April 27, 2010). Such a lack of communication will ensure real problems in both non-emergency and emergency situations. Due to cost of American Sign Language Interpreters, agencies are not willing to pay for them so consequently, the Deaf community is discouraged from applying and interviewing for public service jobs. The Deaf are not specifically recognized on the Census so they are not counted. Thus, Deaf women who are victims of sexual assault and domestic violence do not have services to meet their needs in the county. Without an accurate count, it is impossible to justify services due to the fear of under serving or over serving. Najarian (2006) points out Deaf women still struggle in their everyday lives as they negotiate their family, education, and work. They face various obstacles put before them as well as how they work to negotiate their identities as Deaf women in 8 the Deaf community, hearing world, and the place in between. Deaf women have a unique place in society because many of them see themselves as part of a linguistic bicultural community. Their unique place causes the Deaf women to play a balancing act living between both the hearing and Deaf worlds because they want to stay true to their identity and culture yet to survive, they have to co-mingle in both worlds. Significance of the Project As it was in the hearing world, sexual assault and domestic violence is an unconscionable form of oppression, destructive to the lives of ALL survivors, their families, and friends. “What keeps disabled women from escaping ‘interpersonal violence’ includes not having anyone to trust, to talk to, or believe them” (Powers, Curry, Oschwald, Maley, & Saxton, 2002, p. 2). According to Powers et al. (2002), “When interpersonal violence is reported, Disabled women are fearful of losing their independence and connections with family or friends and fear of retaliation” (p. 2). Recent studies confirm earlier findings that, compared to women without disabilities, women with disabilities are more likely to experience physical and sexual violence (Brownridge, 2006; Martin et al., 2006; Powers et al., 2002; Smith, 2008), increased severity of violence (Brownridge, 2006; Nannini, 2006; Nosek et al., 2001b), multiple forms of violence (Curry et al., 2004; Martin et al., 2006; Nosek et al., 2001b), and longer duration of violence (Nosek et al., 2001b). (Powers, Hughes, & Lund, 2009, para. 4) 9 At the time of this project, Sonoma County had no available information that could be used as a “one-stop-shop” educational tool for the hearing to understand Deaf culture and the issues they face. Also, in Sonoma County, there were four agencies who served the hearing women victims of sexual assault and domestic violence – the YWCA, United Against Sexual Assault (UASA), Disability Services and Legal Center, and Purple Berets, who are California certified Domestic Violence/Sexual Assault counselors or ways for the Deaf to achieve effective communication. There was not a Deaf agency specifically in Sonoma County working in partnership with the community as a whole, striving to eliminate all forms of violence, with a special focus on sexual assault and abuse in the Deaf community. Theoretical Basis for the Project There are numerous anti-oppression scholars that offer a solid foundation to the construct of oppression and anti-oppressive education. To understand oppression theorists like Paulo Freire, it is important to first see the problem. The Deaf is an oppressed minority group as a whole. In his Pedagogy of the Oppressed (1970), Freire points out how degrading it is to be grouped as a minority because people in minorities are classified as being “different” or as the “other.” According to Albert Linderman (1994), “This involves a focus on the trait that makes them different from the rest of the society (skin color, national origin, handicap, social class and caste)” (p. 75). However, regardless of what is said, Deaf women have it worse than Deaf men because Deaf women belong to more than one oppressed minority group, so they have 10 “two strikes against them.” Deaf men do not have the same challenges as women simply because they are men. The first strike is women are female, and the second strike is they are seen by society as “disabled.” Deaf women have a common thread with minority women. Deaf women are similar to minority women whose language most often is not English; they have unique cultural and linguistic issues that understandably affect their experiences. But what separates the Deaf woman from other minorities is their inability to hear. The other difference between Deaf women and other minority women is that most minority women are visibly recognized and are from an accepted group. The Deaf are not. They are still struggling with self-identifying as a linguistic, cultural minority. According to Cheryl Najarian (2006), “the hearing world does not understand that Deaf/Deaf people want to be seen as having their own culture that has its own belief system and language” (p. 3). A review of the Theory of Anti Oppression Education illustrated that Kevin Kumashiro (2000) reviewed literature on education that works against oppression. As he articulated the dynamics of oppression and ways to work against it, it was obvious how the Deaf is easily identified by a definition of an oppressed group. His philosophy is that creating “safe places” for the marginalized only “feeds into the oppression” (p. 27). Kumashiro (2000) identifies terms relating to oppression including “duality, self depreciation, horizontal violence, mistrust, a fatalistic attitude toward life, emotional dependence on the oppressor, fear of freedom and backlash” (p. 27). Until the hearing 11 population is educated and recognized as well as and respect the oppression, the Deaf/Deaf will never escape the “o” they wear on their backs for “other” because the word “other” will always associate itself with traditionally marginalized and oppressed groups who do not fit into the social construction mold (Kumashiro, 2000). Like Kumashiro, Oscar Lewis was familiar with oppression, but his framework focused on the cycle of poverty. In La Vida (1965) and Children of Sanchez (1961), he presented the concept of a culture of poverty. He wrote of a unique design for living that included structure, rationale, and defense mechanisms that produced similarities in family structure, interpersonal relations, time orientation, value systems, spending patterns, and a sense of community. Lewis asserted that these cultural patterns have developed as an adaptation and reaction of the poor to their marginal position in society. According to Lewis (as cited in Linderman, 1994), “A society of poverty represents an effort to cope with feelings of hopelessness and despair, which develop from the realization of the improbability of achieving success in terms of the values and goals of larger society” (p. 78). In other words, as long as the hearing continue to label the Deaf as disabled, the Deaf will suffer the effects of poverty. Lewis (as cited in Linderman, 1994) rejects the idea of a capitalistic society, but believes it is part of life for the Deaf even though the Deaf community continues to live within a society that still labels them disabled and handicapped. Lewis (as cited in Linderman, 1994) explains, 12 Deaf people have to adapt to a larger society that does not understand the Deaf language and culture but prefers to label them as “handicapped.” This serves as a convenience to hearing society and further reduces the hope of pulling Deaf society out of the oppressed state. (p. 78) The three anti-oppression theorists, Friere (1970), Kumashiro (2000), and Lewis (1961, 1968), support the development of an educational tool to educate the hearing based on hands-on inquiry methods and strategies, which encourages the hearing to learn ways to discontinue the oppression and marginalization. Methodology of the Project The methodology in this project applies a content analysis approach in developing an educational packet containing a PowerPoint presentation and brochure. The educational packet is a training outreach course since this course includes a fourfold brochure compared to typical courses offering just a PowerPoint presentation. The training is also unique in that it offers resources at the local, state, and federal levels. The reason for creating/developing this informational outreach training packet is two-fold. First, law enforcement and other agencies need an option of attending the training that will not only prepare them to service the Deaf but will give them the tools for understanding Deaf culture. The attendees will know how to separate fact from fiction and how we as part of the dominant society continue to marginalize and oppress them by what we say and how we think. Secondly, the training will educate the Deaf on national, state, and local resources regarding the growing field of Deaf 13 domestic and sexual assault services. The training course focuses on current models of gender inclusion practices that Deaf woman may experience as victims of sexual assault and domestic violence along with an application of these methods being incorporated into the training course. Therefore, the brochure looks very different from anything else available as an educational tool because it was designed to proved hands-on implementation of the techniques and methods needed when working with the Deaf community. It is a onestop shop of information. The brochure also describes the myths and misconceptions law enforcement officials should know to better service the Deaf. The brochure will be available to all state, federal, and city agencies within California. The primary audience is law enforcement agencies, but it can also be used by any agency that has contact with the Deaf or has the responsibility of keeping the Deaf safe. The brochure will also provide law enforcement and agencies with research data from studies providing examples on how other law enforcement agencies have improved their services to the Deaf. The purpose of that information is so they have a better understanding of the Deaf culture, language, and community. The research collected could be disseminated to law enforcement, educators, agencies, legislators, and the general public, including the Deaf community by using the visual aid of a PowerPoint and a brochure. 14 Limitations of the Project There are a few limitations in this project that can threaten the outcome of this project. The hearing population such as law enforcement personnel, continue to oppress the Deaf community by making decisions for them. When law enforcement makes decisions for the Deaf, they are standing in the way of the Deaf community making their own decisions and that will keep the Deaf community oppressed and the two communities from benefitting from this project. City, County and State agencies including law enforcement continue to take the easy way out by selecting Hard of Hearing community members to be the spokesperson for the Deaf community so they can save money on interpreters. That exclusion divides the Deaf community rather than unites the group. The division could limit the success of this project. Decision makers may fear the continuation of informational town hall meetings is an opportunity to make them look bad rather than see it as a legitimate resource to the Deaf community and not attend. Law enforcement officials or any possible attendees do not want to be intimidated or have their policies questioned. The Deaf have not had a voice within many social service agencies, so when they are given one, what will they say? Possible attendees do not want to appear unprepared or caught off-guard. Often, the Deaf do not want to sign their name to anything that has to do with “research,” which may limit the researcher from getting the information she needs for any study. The hearing community need to be motivated and want to understanding 15 Deaf culture through workshops and training or they will continue to stand in the way of the Deaf community moving forward. The success of the project requires the hearing community’s desire to participate. Most hearing agencies do not understand the ADA law and are reluctant to hire interpreters for meetings so the Deaf are unable to achieve effective communication. The lack of effective communication is a huge limitation for the researcher as town hall meetings are the prime source of information retrieval from the Deaf community. To close the gap in services, the researcher must know what the precise gaps are. Lastly, the researcher creating this project is hearing, not Deaf, and whereas it does not affect the researcher’s education of the hearing community, but it does that of the Deaf. The hearing community’s argument is that the researcher is educating people about something that she has not personally experienced but only read about. Definition of Terms Accessibility Typically defined as having the use of assistive devices or physical accommodations such as a ramp for people who use wheelchairs or Braille labeling on elevator buttons. The Deaf need access to video phones, pagers, and interpreters (Accessing Safety, 2010a). Accommodations Understanding your responsibility as service providers when working with Deaf or Hard of Hearing individuals as delineated in the American with Disability 16 Act, Section 504 of the Rehabilitation Act, and Fair Housing Act (Accessing Safety, 2010c). American Sign Language A unique language with its own grammatical rules and syntax. (Moore & Levitan, 2001) Americans with Disabilities Act (ADA) The Act gives individuals with disabilities protection under the law similar to that granted to persons of certain gender, race, age, etc. It also guarantees equal opportunities for persons with disabilities in public accommodations, public transportation, telecommunications, and others (Define That, 1991). Audism According to Gallaudet University, the Deaf term “audist” is defined the following way: “Audism (from the Latin word “audire,” to hear, and ism, a system of practice, behavior, belief, or attitude) has been variously defined as: The notion that one is superior based on one’s ability to hear or behave in the manner of one who hears. The belief that life without hearing is futile and miserable, that hearing loss is a tragedy and the scourge of mankind, and that Deaf people should struggle as hearing people as much as possible (Harrington, 2002). 17 Bi-Bi educated Describes a bilingual, bicultural approach to Deaf education developed in the 1980s (Ladd, 2003). Cochlear Implants From 1980s onwards, growing numbers of Deaf children have been surgically implanted with an electro-magnetic device intended to directly stimulate the auditory nerve (Ladd, 2003). Collectivism Deaf people consider themselves of a group that includes all Deaf people of different backgrounds and ethnicities. They perceive themselves as a close-knit and interconnected group (Ladd, 2003). Deaf This term refers to members of the Deaf community who share common values, norms, traditions, language, and behaviors. Deaf people are considered a linguistic minority within the American culture. They have their own culture and at the same time live and work within the dominant American culture (Beattie, 2001). deaf This term refers to the audio-logical grouping of hearing losses. The Deaf are those “unable” to fully perceive sounds in their environment with or without the use of hearing aids or perhaps unable to use a hearing aid as a primary way to absorb information (Beattie, 2001). 18 Deaf Culture The American Deaf Culture is a unique minority that uses American Sign Language (ASL) as their primary language and primary mode of communication (Northeast Technical Assistance Center [NETAC], n.d.). Deaf, Hard of Hearing, and Deafened Within the Deaf culture these words refer to a person’s audio-logical status. People who consider themselves “Hard of Hearing” or “Deafened” do not see themselves as members of the Deaf culture. Some may know sign language but their primary language is English (NETAC, n.d.). Deafhood This term represents a process, a struggle by every Deaf child, Deaf family, and Deaf adult who share not only community but their own existence in the world (Ladd, 2003). Dependency Duet Whenever the Deaf or hearing enter the relationship by choice, it is because the one seeks to be a provider and the other seeks to be provided for (Lane, 1992). Duality The first characteristic of an oppressed group. This term focuses on the trait that makes them different from the rest of the society (skin color, national origin, handicap, social class, and caste) (Linderman, 1994). 19 Etiquette While norms may change from community to community, there are some behaviors in a hearing group that would be considered rude, but are actually quite acceptable within the Deaf community (Accessing Safety, 2010e). Hearing Within the Deaf culture, the term “hearing” is used to identify people who are members of the dominant American culture. One might think the ASL sign for “hearing” is related to the group’s ability to hear (e.g., pointing to the ear). However, the sign for “hearing” is related to the ability to “talk.” The act of talking is clearly visible to Deaf people, whereas listening or hearing is not. From the Deaf culture perspective, it is the act of “talking” that clearly separates the two groups (NETAC, n.d.). Hearing Impaired These terms often are used by the media and society in general to refer to people with a hearing loss. A more acceptable generic phrase is “Deaf and Hard of Hearing” to refer to all people with a hearing loss. Within the Deaf culture, the term “hearing impaired” is often considered offensive. It suggests that Deaf people are “broken” or “inferior” because they do not hear (NETAC, n.d.). 20 Hearing Privilege When a hearing partner emotionally abuses their Deaf partner, such as keeping them from effective communication either from the Deaf or hearing community (Reis, 2007). Individuals with Disabilities Education Act (IDEA) 2004 IDEA is a Federal law that mandates how government agencies provide services to children with disabilities that also included early intervention. IDEA included “Special Education” that means there are services specifically for a child with disabilities who has unique needs and these services will be provided to them in the least restrictive environment (National Resource Center on AD/HD, n.d.). Interpreters An Interpreter is a bilingual-bicultural professional who: (a) interprets while (b) being sensitive to the environmental factors that foster or impede the message and (c) conducts himself/herself in a professional manner (Berke, 2009). Language and Communication The sharing of a language (American Sign Language) bridges racial, gender, class, and ethnic differences among the American Deaf community. Not all Deaf people use ASL or other sign languages (Berke, 2009). Native Competence When a hearing child of Deaf parents begins to sign at birth and then becomes His/her parents’ “ears” (Stokoe, 1980). 21 Profound Deaf Totally Deaf; unable to hear at all and without use of hearing aid (Profound Deaf, n.d.). Self-depreciation When a person is constantly ignored and told he/she is not equal because the majority does not understand his/her culture, the person begins to believe that negative stigma (Linderman, 1994). Self-fulfilling Prophecy A statement that alters actions and therefore comes true (Self-fulfilling prophecy, n.d.). An example referring to the Deaf is how the Deaf are made to believe that they are inferior to the hearing. Tactile Spelling (Deaf Blind Alphabet) The two-handed manual alphabet (i.e. the one used in British Sign Language) is adapted to fingerspell letters onto the palm of the client’s hand. Most Deaf Blind people in the United States use the standard ASL alphabet; however, interpreters may encounter clients who know and prefer the Deaf Blind alphabet. (Michigan Deaf and Hard of Hearing, 2002, para. 5) Organization of the Project This project is organized into four chapters with appendices and references. Chapter 1 introduces topics, which will be covered and explains why this project is important. Chapter 2 consists of a review of all relevant literature on the topic and 22 justifies why this research is important. Chapter 3 focuses on the methodology of the project and explains the procedures utilized in the study. Chapter 4 includes the conclusions drawn from the study followed by the proposed recommendations for further study. Background of the Researcher Patricia Boyd earned her Bachelor of Arts degree in Ethnic Studies, with a minor in Sociology from California State University, Sacramento in 2008. Currently, she is a graduate student in the Masters of Arts in Education-Behavioral Science Option-Gender Equity Program at California State University, Sacramento. She is President and Founder of a Social Justice Advocacy Organization called “Open Doors.” Her deep-rooted passion to help the underserved and overlooked started as a child growing up in the 1960s in New Jersey where desegregation, segregation, discrimination, and bigotry were all around her in school, in neighborhoods, and in her community. She witnessed first-hand how innocent people were discriminated against and hated because of their religion, gender, sexual orientation, and skin color. Because of her formative experience, she has always known fighting for the rights of the marginalized would always be an integral part of her life’s work; hence, she has extended her voice, resources, and writing to help the hearing and Deaf communities. It was when Boyd was invited to a Census Bureau Open House event in Sonoma County in November 2009 that she realized the Deaf community was excluded from the Census; she subsequently chose to research this topic for her thesis. 23 The researcher plans to share her findings with the hearing community as well as with city, county, federal, and state agencies. She is also planning on sharing the findings with her Congresswoman in hopes she will push legislation in Washington to ensure the Deaf are included on the next Census. Boyd aims to pursue an Ed.D. in Education Leadership so she can resume her research on and the disparity of education opportunities between the hearing and Deaf community and the effects it has on achieving success for Deaf students. 24 Chapter 2 REVIEW OF RELATED LITERATURE Introduction The History of Deafness in the United States has been misunderstood for centuries due to the fact that the hearing population cannot get past the fact that the Deaf do not hear; therefore, there must be something wrong with them. They have placed stigmas on the Deaf and labeled them as “handicapped,” “disabled,” and broken, thus allowing the hearing to treat the Deaf as though they always need help and are not capable of making decisions on their own. But the Deaf in their own way fight back with determination and self-determination, hanging on to their culture, language, and the right to self-identify as a cultural linguistic community. The History of Deaf Communication in the United States According to Parasnis (1998), the Deaf still struggle with their self-identity and do not see themselves as “disabled” or medically challenged. The idea that the Deaf community have their on language is not a new concept. There are some in the medical work that still believe that the Deaf are “disabled” but there are educators that believe on the contrary. As early as the last century educators of the Deaf have all agreed that the Deaf have their language, values and social norms that are unique. The Deaf were allowed to use American Sign Language including in school right up until 1880. It was 25 during that time that 50% of the teaching staff was Deaf themselves. (Parasnis, 1998, pp. 5-6) Deaf children having deaf teachers was an advantage because the teachers could understand the barriers the children faced and communication between student and teacher was as easy as that between hearing teacher and hearing student. In 1880, life as the Deaf knew it changed. At the International Conference of Education for the Deaf Milan, Italy changed the way American Sign Language would be used in the American Schools. Oral speech was introduced and the decline of Deaf teachers continued to 12% by 1960. Since 1960, a controversial debate with regard to students using speech and sign language in the classroom has gone on. There have been many studies done on communication methods such as speech, cued speech, simultaneous communication, total communication, and invented sign systems (Parasnis, 1998). Due to all the attention the communication methods were getting, American Sign Language (ASL) and the Deaf culture were receiving very little attention. However, in spite of the lack of attention, the Deaf community continued to thrive and grow. Between 1960 and 1970, linguistics made a remarkable discovery that ASL not only had its own grammar but it also met universal requirements to be a human language (Klima & Bellugi, 1988), and slowly but surely ASL was back in the mainstream again. Since the temporary set back, ASL has been thriving and making its way to the attention of educators and researchers. As a result of all of the positive attention, several books have been published on the sociocultural context in ways the Deaf 26 community live (Cohen, 1994; Monaghan, Schmaling, Nakamura, & Turner, 2003; Wilcox, 1989) and on communication and ASL (Baker-Shenk & Cokely, 1980; Bragg & Olson, 1993; Marschark & Spencer, 2003). When the Deaf lose their right to define who they are and are excluded from the educational process to express their needs to the dominant hearing, oppression and marginalization occurs. However, there was one place where the Deaf students finally said, “enough is enough.” According to Mills (2003), the Deaf community needed to feel liberated, empowered and free to not only to make their own decisions but to have choices about their educational needs. Harlan Lane, an educator and Deaf advocate, stated the following regarding Deaf and education, “Typically, Deaf persons have not been involved in making decisions for their own educational placement and language policy in schools” (p. 43). The first Deaf university in the United States, Gallaudet University in Washington, DC, had never had a Deaf president. The Deaf President Now campaign not only included the Deaf community but Deaf students and Deaf advocates. But to be able to understand the dimension of the issue the Deaf were fighting, one has to understand Deaf culture. The Deaf have always fought for their equal portions of human rights for centuries. But over the years, the Deaf became convinced that nothing would change so they gave up trying until 1988. The Deaf have a fighting spirit and it shows even as far as Sonoma County, California. Recently, the Deaf community united and came together in Sonoma County and voted unanimously for a California Association for the Deaf Chapter that 27 will not only make them cohesive but will empower them to make decisions for their future. The Deaf community, including Deaf women, is beginning to make a stand and demand that they make their own decisions. Because of the controversy of the “Deaf President Now” movement in 1988, a Deaf person was selected as president at the Gallaudet University in Washington, DC. Now people including the media have become interested in Deaf culture, their rights, and are beginning to see them as a cultural and linguistic community. There has been a “small revolutionary shift” in regard to how people see the Deaf as a sociocultural group with their own language and culture as opposed to the medical model portraying the Deaf as being “disabled” (Cummins & Danesi, 1990). There has been a reported survey by Walter (1992) that there has been an increase of Deaf teachers that have gone from 12% in 1960 to 18% reported in 1992. The status of the Deaf improved first in 1991 with the Americans with Disabilities Act, then further with the Individuals with Disabilities Act of 2004. Title II of ADA enforces strict guidelines and requirements all state and city agencies and local governments must meet to ensure they have effective communication with people with disabilities, as effective as they would with people without disabilities, which is referred to as “effective communication.” The requirement stands unless there are reasons such that (a) state or local government can prove that effective communication would financially be a burden, or (b) if they can prove that effective 28 communication would modify the nature of the program or service in question (Office of the Attorney General, 1991). According to ADA, “Effective Communication” means regardless if the communication is written or spoken, both methods must be precisely clear and people with disabilities must be able to understand as people without disabilities do. The level of understanding is a must because there are people whose communication is affected by their disability. People with disabilities consisting of blindness; Deafness; speaking; or reading, writing, or comprehending may select other ways to communicate. When regarding “Effective Communication,” ALL members of the general public who may apply for programs, employment, any activities, or seek information are included. When regarding the Deaf, there are different ways to communicate: (a) Video Remote Interpreting (VRI), or (b) Video Interpreting Service (VIS). VRI is when an interpreter appears on a videophone over high-speed internet lines. When the videophone is used appropriately, it can be used for emergency purposes and effective communication seven days a week, 24 hours a day. VIS is not the same as Video Relay. The City of Alameda, California was sued and sanctioned by the Department of Justice (DOJ) for not providing effective communication. Mr. Bonner, who is deaf, was taken from his home and sat in jail for three days without an interpreter. He is Deaf and blind and to this day does not know why he was literally pulled out of his 29 bed at 3 o’clock in the morning with no explanation. Charges were dropped (Department of Justice, 2010). Actions Speak Louder Than Words: “Audism” Since we live in a world where there are people who do not tolerate or accept diversity, there are many terms that have been invented to describe negative attitudes, mindset, and behaviors towards a certain race, ethnicity, disability, or sexual orientation. When a person hates a race other than his/her own, that is racism. When a male acts superior to a female that is called sexism. If one is a supporter of Hitler and his Nazi atrocities, they are participating is Nazism. If an employer does not hire an older person due to their age, that is an act of ageism. If someone exhibits hostility or discriminates against a Jewish person, that is anti-semitism. The commonality of all the words is not only that they end with “ism,” but they all refer to bigotry of some sort. There is another “ism” to add to the list, “Audism,” which means discrimination against Deaf people. Another term very similar to Audism is “hearing privilege” (Harrington, 2002). “Audism is an attitude based on pathological thinking that results in a stigma toward anyone who does not hear; like racism, audism judges, labels, and limits individuals on the basis of whether a person hears and speaks” (Waech, 2004, p. 7). Audism is an attitude that the Deaf people are “broken” and must be fixed. Audists can be either hearing or Deaf. Examples of Audism are: 30 1. Helping or assisting a Deaf person to communicate 2. Insisting a Deaf read lips or write notes when that is the not his/her choice 3. Communicating for the Deaf person because they cannot 4. When an interpreter is needed, refusing to provide or call for one 5. Looking at those who do not speak and treating those who do as superior 6. Asking a Deaf person to stop using facial expressions because they are making people uncomfortable 7. Excluding the Deaf from a conversation or laughter by telling them that you will tell them later 8. Devoting a significant amount of instructional time for a Deaf child to lipread and get lipspeech therapy rather than learn educational subjects (Waech, 2004, p. 7). Misconceptions That Continue to Oppress the Deaf As long as Deaf women continue to be seen as “disabled,” conflict between the hearing and the Deaf community will exist. That is evident when we look back in history at the way Deaf women have been treated by the hearing society. Historically, Deaf woman are not strangers to oppression, marginalization, and discrimination. They have to deal with what is known as “double jeopardy” (Schaefer, 2000, p. 46). They are not only oppressed as women but they are looked down on as being Deaf as well. Deaf mothers are often harshly judged. Deaf women have been questioned and 31 ridiculed by hearing society for centuries whether they are competent and capable or not to raise their hearing children (Described and Captioned Media [DCMP], 2006). Deaf women are not only discriminated against and taunted by the hearing society for being women and Deaf but a negative image has been carried over to the Deaf community as well. As a result, Deaf woman in general have not been able to lose the negative gender role image Deaf men hold. The men still believe women belong in the kitchen and not as leaders, directors, rulers, or managers. Therefore, women are expected to be servers and hostesses at social events. Because of the stereotypes, traditionally Deaf women have not been allowed to join national societies, which has been carried from generation to generation. As a result, the intolerance and prejudice against them and isolation they feel have brought Deaf women closer together for support and companionship (DCMP, 2006). Most of the hearing world does not understand that the Deaf community comes from a culture that has its own community, belief system, and language. The hearing mindset may account for why the Deaf are not adequately serviced or are not offered ways to obtain effective communication in Sonoma County. Siple (n.d.) states the following: Most Deaf do not perceive themselves as lost something (i.e., hearing) and do not think of themselves of being handicapped, impaired or disabled. They celebrate and cherish their culture because it gives them the unique privilege of sharing a common history and language. (p. 1) 32 Until the hearing are educated and recognize and respect that Deaf people are not broken, the Deaf will never escape the “o” they wear on their backs for “other.” As previously mentioned, Kevin Kumashiro (2000) states, “The word “other” always associates itself traditionally with marginalized and oppressed groups” (p. 1). As a result they are considered a disabled minority group. Myths That Continue (1) All Deaf People Wear Hearing Aids, and Hearing Aids Restore Hearing Some Deaf people have residual hearing. They are the ones who can use hearing aids effectively. Hearing aids do not make sound, they amplify it. Thus, if sound is not being heard at all, there is no use for a hearing aid. Even if a Deaf person could use a hearing aid, he/she may or may not wear it. “The National Institute on Deafness and other Communication Disorders (NIDCA) provides more in depth information on hearing aids, their purpose, functionality and limitations” (Waech, 2004, p. 6). (2) All Deaf People Read Lips Lipreading is such a precise science that lipreaders can understand what is being said across the room. There are some Deaf who can read lips, but many cannot. Because of the many identical mouth movements, only of about 30% of English can be read on the lips. Body language and environmental cues are also important and many people are not clued into those (Tyler Junior College, n.d.). 33 (3) All Deaf People Use Sign Language American Sign Language (ASL) is a recognized language but there are other ways Deaf people communicate that result in effective communication such as Signed English (SEE), fingerspelling, lipreading/speechreading, writing, gesturing, writing notes, and speaking. There are several ways to communicate and not all Deaf communicate the same way (Waech, 2004). (4) All Deaf are Mute Never assume that Deaf people cannot speak. Many Deaf can speak but they choose not to for many reasons. One of the reasons is due to embarrassment of the tone of their voice. Only people who do not have the physical ability to speak are mute, which is not the case for all Deaf (Tyler Junior College, n.d.). (5) All Deaf Read and Write ASL is the native language for many Deaf and it has no written form. Many hearing still do not believe the Deaf have their own language so they assume all Deaf can read and write. It is still difficult for hearing people to understand that not all Deaf read and write, which causes issues when the hearing try to communicate with the Deaf. One out of four profound Deaf write or read English because their profound language is English (Davis, 2010). (6) People who are Deaf are Deaf and Dumb Whether a person can hear or not has nothing to do with his/her IQ. Being Deaf has nothing to do with being dumb or mute. The Deaf people take offense to the 34 stereotype and it is often written in police reports and newspapers. Stereotyping and labeling result from misconceptions and myths only makes it more difficult for the Deaf victim to not be believed but also to be “heard” because the hearing are too preoccupied about information that has no merit. Inclusion: Not Always a Good Thing Inclusion is a frequent buzzword that social justice advocates rally around when fighting for the rights of the disabled, LGBT community, immigrants, and any minority groups who are oppressed and marginalized. But inclusion is not right for everyone, including the Deaf community. When society speaks of inclusion, it is usually thought to mean one-size-fits-all; but inclusion can often hurt more than then it can help. “There are consequences that not only have a burden on the Deaf but the group they are supposed to fit in with” (Waech, 2004, pp. 4-5). It has an effect on Deaf children mainstreaming and Deaf survivors of violence. One of the most prevalent places full inclusion can be seen is in school. “Nearly three-fourths of an estimated eighty thousand Deaf children in the United States now go to local schools with local hearing children" (Lane, 1992, p. 135). The hearing disparity causes isolation for deaf students, and they miss getting the same educational experiences as hearing children. "Most Deaf children are in schools where there are only two other Deaf children in class" (p. 136). Inclusion for the Deaf or hard of Hearing in regular school classrooms did not become as issue in American life until the early 1970s. Before the early 1970s, 35 inclusion was discussed, thought about, or considered by educators and policymakers. However, not until the 1975 law, Individuals with Disabilities Education Act (IDEA) was it made an educational reality. The law was designed to give all children “free and appropriate pubic education” in the least restrictive environment” (Cohen, 1995, p. 2). Many advocates of inclusion support mandatory full inclusion of all children with disabilities in regular classrooms. The law is often used to give their argument validity that all children have the right to an education in the same form as the hearing children. Though children have a right to an equal and fair education, the advocates rarely consider the fact that full inclusion may not be the best for the child (Cohen, 1995). More and more Deaf children now mainstreamed as it becomes the norm. Special classes for Deaf and Hard of Hearing students are decreasing due to the budget restraints, thus, the number of mainstreamed Deaf students will no doubt increase (Hall, 2005). Nunes, Pretzlik, and Olsson (2006) discovered that social integration of Deaf students should be a consideration alongside that of cognitive gain when determining whether to mainstream or not. They studied the social adaptation of nine Deaf students from two mainstream schools. They state, “If Deaf pupils are rejected or feel isolated in mainstream schools, their education may ultimately suffer” (Nunes et al., 2006, abstract). Since the school experience is also about socialization and being accepted by others, if Deaf pupils feel rejected, they may 36 have trouble with their studies. There are two issues the advocates do not understand about how can inclusion can hurt more than help. 1. How can the Deaf child learn when he/she has to stay put with eyes glued on the interpreter while his/her classmates have full access to the visuals in the classroom and he/she does not? 2. Deaf children are isolated from their hearing peers because they are glued to their interpreter all day. “Deaf children immersed in a hearing, Englishspeaking environment, the Deaf child frequently drowns in the mainstream” (Lane, 1992, p. 136). Inclusion may not only hurt the deaf child in the classroom, it may also take a toll on them as adults. Deaf Children and Deaf Victims of Violence Have a Commonality Like Deaf children, Deaf victims of violence have not had a positive experience with inclusion. “Deaf advocates have been against inclusion because even though equal access is a human right for all, the one size fits all model does not apply when dealing with the Deaf community” (Waech, 2004, p. 5). It is the same when Deaf children experience inclusion in the classroom. According to Hall (2005) from the Rochester Institute of Technology, when mainstreaming Deaf children in the classroom, it is not likely that the children will learn social skills they need for everyday life. The amount of communication the children miss out on with their hearing peers is immense, such that inclusion of Deaf women victims of violence can 37 cause not only anxiety but isolation. Because the Deaf and hearing children experienced “educational and social development” in different ways, the Deaf child experiences unfavorable circumstances and, thus, so does the Deaf adult. The biggest problem and root cause of the increase of isolation and anxiety is communication difficulties fostered by the mainstreaming setting. A study showed that rather than being actively disliked, Deaf children were neglected by the hearing students in terms of socialization. (Martin & Bat-Chava, 2003, as cited in Hall, (2005 para. 8) The above experience is what happens in the shelters for Deaf women and it is why they leave the shelter within 24 hours. The people at the shelter need to be aware of the lack of companionship and communication, thus the sense of isolation, Deaf women may experience there at the shelter. The Deaf Community and Domestic Violence Overview The term “Hearing Privilege” is associated with domestic violence, hearing, and control when a Deaf person’s abuser is hearing. According to DEAF HOPE (Reis, 2007), an advocacy group for the Deaf, hearing privilege is when the hearing partner excludes the Deaf man or woman from the following or does the following: 1. Phone messages 2. Social events 3. Access to Deaf friends, community, or culture 38 4. Takes advantage of the system, which is not fully accessible to Deaf people. For example, the restraining order hearing gets postponed because there are no interpreters. 5. Puts the Deaf person down by saying he/she is no good because he/she is Deaf. 6. If the police are called, the hearing partner tries to interpret and take control of the situation (Reis, 2007). Domestic violence is something no one should experience. It is a form of violence in which intimidation and threat are imposed on a victim against his/her will. Domestic violence is all about power, control, and domination. However, being Deaf puts a person in more danger when experiencing any kind of violence simply because they cannot hear, which alone makes them an easy target as a victim of crime (Reis, 2007). Thus, the perpetrator can have more control over the victim by doing things such as cutting off communication to their friends, law enforcement, and community (Reis, 2007). The abuser makes the victim feel as though he/she is at fault and it is easy for the abuser to influence the Deaf victim to believe things that are not necessarily true. Such control not only affects spouses but friends, family members, boyfriends, girlfriends, and children. Domestic violence is not only physical abuse as most think; it can also be emotional, sexual, psychological, and economical abuse. The crime controls, manipulates, intimidates, and destroys victims’ self worth, self-esteem and self-confidence. Domestic violence does not discriminate when it comes to whom it 39 affects with regard to ethnicity, gender, or sexual orientation; this includes women with disabilities. “Abusers use various tactics to achieve power and control, including behaviors that intimidate, manipulate, humiliate, isolate, frighten, terrorize, coerce, threaten, blame, hurt, injure, or wound someone” (Accessing Safety, 2010d, para. 1). Abusers’ tactics go so far as to be in the courtroom when they tell the judge that pounding on the wall and kicking furniture is to get the victim’s attentions. They abusers hope the judge will believe the violence is part of Deaf culture. The courtroom advocates are there to inform the judge of the untruths in the above instances. Eighty-five percent of the disabled women population is a victim of domestic violence. They have a twice the greater risk of being raped, abused sexually, verbally and emotionally than women without disabilities. Other barriers women with disabilities face that women without disabilities do not face is feeling trapped and isolated from social interaction due to their lack of accessibility to the outside world. The fear of being institutionalized is a great fear as well. Research shows the abuse is not the same for women for women with disabilities including Deaf women, as women without disabilities (A Safe Place, 2009). Disabled women are more vulnerable to domestic violence because some may have physical disabilities that keep them from fighting back. However, this research also shows that for women with disabilities and Deaf women, the abuse is different. For example, it is often more severe, goes on for 40 longer periods of time, and occurs at the hand of a larger number of perpetrators. (Accessing Safety, 2010e, para. 6) Women in general are marginalized for just being women but disabled Disabled/Deaf face “double jeopardy” because they are not only women, but they are disabled. According to Kumashiro (2000), people/students with disabilities are part of an oppressed group. Public Resources Every 10 years when there is a census taken, the information is used for the federal government to determine how much money is allocated to communities based on the data extracted from the census. An estimated $400 billion is used for communities including new schools, hospitals, housing developments, and other community facilities (U.S. Census Bureau, 2010). The information is used to determine the demographics, including the size of the community. But since the Deaf have been excluded from being recognized on the census, they are excluded from getting money they could use for their community (Lollar, 2002). The money could be used for additional ASL classes in universities and community colleges including telecommunication equipment to enhance their quality of life. The Deaf community currently faces a lack of public and emergency services, information, and resources. In Sonoma County, for example, the closest agency with services exclusively for the Deaf is more than 60 miles away in San Leandro. In Sonoma County, the Deaf community has only one resource they can count on, but 41 that agency is not equipped to serve the Deaf community exclusively. An example is that in Sonoma County there are three agencies who service the hearing female victims of sexual assault and domestic violence but there is not one local agency who service the Deaf women. It is a problem because hearing agencies focus on the fact that a woman cannot hear rather than focusing on her need. Marilyn Smith (2003) expresses how important it is for Deaf women who are victims of sexual assault and domestic violence to be serviced by Deaf agencies, I talked to a few hearing agencies who were trying to serve Deaf victims, but it wasn’t working. We the Deaf know what works for us, we know what works, and we know what cultural rules need to be addressed. When clients go to Deaf agencies they don’t have to worry about their Deafness. We focus immediately on the abuse they’re experiencing. (p. 2) If the idea of inclusion is not embedded within the acknowledgement of each person’s individual needs, the consequences for Deaf survivors can be devastating. According to Gretchen Waech (2009), The survivor will typically experience such severe isolation (due to lack of or difficulty in communication both with staff and other residents) that she will often return to an abusive situation where she at least has communication access (if her abuser signs) within twenty-four hours. (Waech, 2009, p. 5) Many Deaf women often return to an abusive situation when they have no one with whom to communicate in a shelter environment or if her abuser also signs. 42 Cockram (2003) studied abused women’s experiences with assistance as well as the assisting agencies’ abilities to respond. Not only did many of the agencies lack the funding and resources to help the number of disabled women seeking refuge, the women often felt worse because of such a disparity. Cockram noted explicit feelings of confusion for many of the participants, especially when an intimate partner was the perpetrator. Low self-esteem and negative body images were common themes among the women. Since Deaf are included in the group labeled “disabled,” they are prone to similar feelings. If one is disabled, her body must not be ideal. Hence, she must be grateful that her partner would be willing to be with someone with a disability. Such low self-esteem and feelings of self-deprecation will keep many victims from helping themselves (Cockram, 2003). A recent study performed by the National Institute of Justice regarding Deaf women who are sexual assault victims showed their issues are unique in terms of the barriers they face. Researchers Obinna, Kruegar, Osterbaan, Sadusky, and Devoer (2006) at the Minneapolis Council on Crime and Justice interviewed members of the community who were impacted by sexual assault whether they were victims or police officers investigating the crime. They were all involved in some capacity. A total of 51 Deaf citizens were interviewed, along with 15 service providers who serviced both the hearing and the Deaf and 10 police officers who were connected with the investigation. 43 Obinna et al. (2006) explained that when a Deaf victim of sexual assault is identified, it is important that her experiences are not associated with other victims of the same nature. When Deaf women who have been sexually assaulted report, there are stereotypes associated not only with being a sexual assault victim but also being Deaf. The term “rape” is a full of finger pointing and judgments that causes the victim to feel guilty that maybe she caused it. There is a social stigma attached to being a rape victim. Because the Deaf community is extremely small, everyone knows everyone and, as a result, it is very difficult to keep their anonymity. Deaf victims also found that once the word gets out to the Deaf community that a woman has been raped, especially if the perpetrator was Deaf, there is not only a lack of support but isolation (Obinna et al., 2006). Another issue is the lack of understanding of Deaf culture on the hearing people’s part. The hearing get so caught up on the fact that the women are Deaf, they forget the Deaf are from a unique cultural with their own language and belief system. Obinna et al. (2006) found that many of the Deaf women they interviewed did not see themselves as having a medical condition; they viewed themselves as coming from a linguistic community that has not yet been accepted by the hearing community. Yet another issue the researchers encountered was the fact that because the Deaf women came from their own unique culture, their experience may be different from hearing women’s (Obinna et al., 2006). The different experiences may still exist even though their reactions or experiences are similar. It is the culture differences that 44 dictate whether they tell someone or if they do, who that person will be (Obinna et al., 2006). Another issue the researchers (Obinna et al., 2006) pointed out was the way the hearing treat the Deaf victim. Communication sometimes became very uncomfortable and awkward for both the Deaf victim and the hearing person, which could be a reason why the Deaf women do not seek help. The language is also an issue because not may hearing people realize that English is not the same as ASL, thus creating a communication barrier. Obinna et al. (2006) also stated that the Deaf women had several communication styles and those styles varied from person to person. Some Deaf people lip read, others could read and write, but some Deaf people could not read and write. Deaf victims were hesitant to go to hearing shelters or agencies because most of the providers were hearing and they could not provide effective communication. It is unlikely that agencies will be set up with a TTY system, not to mention a staff member who knows how to work the system. Another option is having an interpreter but that can be very uncomfortable, even though the interpreter is there to be their ears only, it can be very uncomfortable for a woman to tell someone her business (Obinna et al., 2006). When discussing improving police response, there was a mixture of opinions on whether the police were helpful and if the Deaf would ever call them back after they were victimized (Obinna et al., 2006). One would not expect to be victimized by 45 police officers but it happens. Deaf women claim that police officers have actually accused them of being drunk or mentally ill, or they misread their body language as being violent and dangerous. Another issue the women mentioned was the fact that the 911 operators did not know how to operate the TTY (teletypewriter). Both the Deaf community and service providers all agreed that law enforcement must improve their practices when communicating with the Deaf community, regardless if they are victims of sexual assault, domestic violence, or suspects of a witness to a crime. Training was also emphasized by the Deaf victims. Interpreters were on the list as well as very clear and precise agency policies. An example was given that even though there may be available interpreters, the police officers did not know how to contact them. Regardless of the flaws of the Minneapolis Police department, the Obinna et al. (2006) commended them for their sensitivity toward the Deaf community and recognizing them as a group of people with a distinct language and culture. The officers also go through a 10-week training course on ASL. Hearing people serving the Deaf/Deaf have become silent about the fundamental divergence between their views of Deafness and that of Deaf people they profess to serve. They rarely discuss these disagreements with one another or with Deaf leaders; life is more pleasant that way. This silence of hearing professionals is an adaptive response to an old age feud, a wearying struggle that seems to never end it, because it is the inexhaustible struggle of a linguistic and cultural minority for self determination. (Lane, 1992, p. 4) 46 It is easier to submit than to fight the argument with the hearing professional who knows they will not win because at the end of the day, they know nothing about struggling for their identity, their culture, or self-determination. Training Law Enforcement to Communicate with People Who Are Deaf or Hard of Hearing According to the American Disability Act (ADA) Guide for Law Enforcement Officers (U.S. Department of Justice, 2006), it is a matter of time before a police officer will come into contact with a Deaf or Hard of Hearing person. The ADA claims approximately 9% of all citizens have an issue with hearing so there is no doubt that the number will increase as the population ages. The ADA also states that all Deaf and Hard of Hearing are entitled to the same services as everyone else; hence, law enforcement must make efforts to ensure effective communication. According to the ADA, the Deaf are entitled to effective communication. For it to be achieved, law enforcement must provide certain communication aides and services unless providing the aide or service becomes a financial burden to the agency. The decision regarding what aides or services to provide can only be made by the head or official of the agency. Devices and services available to achieve effective communication would be pad and pencil and a teletypewriter (TTY also known as a TTD). The TTY device can be used to send messages back and forth over the telephone, while another available listening aide is an amplifier that can be placed on the telephone receiver. A sign language interpreter may also be an option for better 47 communication, and there is an oral interpreter for the Deaf or Hard of Hearing trained to read lips (i.e., as speech reading). Because only one-third of the Deaf and Hard of Hearing community read lips, it should not be assumed that lip reading will classify as effective communication. Self-identifying It would make a difference if the Deaf were allowed to self-identify as a Cultural Linguistic Minority Group. It matters to the Deaf whether they are seen as disabled or a member of a minority; they do not want to be considered disabled. It would have an impact on the Deaf community image if the Deaf were allowed to selfidentify as a cultural bilingual minority. The Deaf are seen by the hearing society as being disabled, broken, and handicapped. Hence, the Deaf have suffered inequality, disempowerment, and discrimination. As a result of the Deaf not being able to hear, they have suffered inequality and discrimination and a lack of empowerment. Lawrence (n.d.) notes the deleterious effect the discrimination has had on their image from a hearing person’s perspective, “Historically hearing people viewed Deafness of the mind and body and they did not afford the Deaf to an education, own property or sign contracts. There is no question that the Deaf have felt the ramification of this condition” (para. 5). Thus, the term “disabled minority” pigeonholes the Deaf into a category that makes them appear as being less than. Lollar (2000) notes the negative effects such a term has on the Deaf, “The term disability is not an outcome, it’s an input, a variable just like age, sex, racial ethnicity and it needs to be seen that way, as 48 opposed to a negative health outcome” (para. 1). As long as the term disability continues to correlate with low education, poverty, and communities and individuals with low resources, the Deaf will never escape their oppressed state. The label of being “disabled” begins at a very young age for the Deaf; however, there is another way of looking at the label when referring to education and the Deaf child. The argument is, rather than classifying the child as “Disabled” why not allow them to self-identify as a Cultural Linguistic Minority and set a precedent for those who follow? The Deaf would have benefited from self-identifying as a Cultural Linguistic Minority on Census 2010. A recent petition on CARE 2 was posted online to generate support and get signatures from the pubic to rally around the idea that the Deaf should be listed on the 2020 Census as a Cultural linguistic Minority group. The Deaf would not only have the opportunity to change their image but to generate money in their community from the census as other sub-groups. Funds could be used for the Deaf and by the Deaf to create Deaf schools, build community centers, shelters for Deaf men, women, and children who are victims of violence and create support from the county to start a Deaf commission. Cultural Minority: Deaf Children Can Pave the Way for Others If Deaf school children were allowed to self-identify as a Cultural Linguistic Minority group they would grow up with rights and acceptance their Deaf parents and grandparents never experienced. Hence, the negative images of being “disabled” and 49 “handicapped” have overshadowed the fact that they come from a linguistic community. Charrow and Wilbur (1975) note, Traditionally, Deaf children have been regarded as a handicapped group, whose inability to hear impose severe limitations on how they could learn. It cannot be denied that Deaf children, compared to hearing children, are in fact handicapped: they lack the ability to hear spoken language. (pp. 352-359) However, as Charrow and Wilbur (1975) explain in the following statement, there is another way of looking at Deaf children in terms of self-identifying as a cultural linguistic minority; compare them to other minority groups who do not speak English. When looking at other non-native minority groups such as Mexican-Americans or Chinese Americans, what the Deaf have in common with both is that they do not speak English. Pre-lingually, Deaf children, after all, are not really aware of this ‘handicap,’ since they do not know what ‘normal hearing’ is. (Charrow & Wilbur, 1975, p. 352) Because they have adapted to Deafness not knowing anything different, they do not know they are handicapped. It is very difficult for the Deaf to understand why the hearing think they are “handicapped” because, to the Deaf, they are a cultural linguistic community. “It is only when they were required to look, perform, behave, and achieve like hearing children that they begin to see themselves as ‘not normal’ – as opposed to merely Deaf” (Charrow & Wilbur, 1975, p. 352). So if the only “issue” 50 the Deaf children have is that they do not hear and they are “normal” in every other way, then we could say they were just like the minority child whose second language is English. Charrow and Wilbur (1975) say, “The catch is that the Deaf child’s normal modality for language is not auditory and oral, but visual and manual” (p. 352). If the Deaf children were considered a Cultural Linguistic minority group, it may take the pressure off the fact that they cannot hear because as long as the Deaf are seen as “disabled,” they will be seen as broken and having to be fixed. If they are accepted as a Linguistic minority group, they may not only be accepted as individuals, but the fact that they have their own culture, community, and language may defuse the problem regarding learning how to speak as their peers. Future firefighters and law enforcement officials are in those classrooms. Relationships between the children change leading to changed relationships as adults. Conclusion Inclusion of the Deaf community with the hearing is not the answer as so many advocates may want to believe. Often inclusion isolates and continues to make the Deaf feel different and stand out more. Having social organizations, clubs, and auxiliaries of their own is crucial to the Deaf. The organizations and social activities help the Deaf grow socially by being in a setting in which they feel comfortable and do not feel isolated or alone. According to Lane (1992), the majority of the hearing still sees the Deaf as being “Deaf and dumb” and stereotyping holds them back (p. 8). 51 It is believed by many hearing that the Deaf community lacks social skills, cannot understand other hearing people, and cannot communicate. But those things are apparent usually when they are with the hearing. What the Deaf have in common with other cultural stereotypes is they “appear” to lack social and cognitive skills when dealing with their emotions and behavior. According to Linderman (1994), the Deaf are seen as an oppressed group and also competition to the hearing. He believes as long as the Deaf are treated as though they are emotionally defective and broken, the Deaf start to believe that (p. 76). The only place away from that rhetoric and biased thinking is being with others from the same group. Many in the hearing world do not understand that the Deaf have their own language, culture, and community. The mindset of the hearing may contribute to why the Deaf are not adequately serviced or at least not offered ways to obtain effective communication in at the same level as the hearing in Sonoma County (Lane, 1992). There have been numerous obstacles from social, political, educational, and cultural aspects to hinder both Deaf women and men from receiving services equal to those of the hearing. The communication gap between the Deaf and hearing needs to be bridged. To close the gap in the area of the Deaf having adequate and equal human services and access to having their own county commissions and boards, something needs to be done. Obinna et al. (2006) concluded that training is the key to not only educate about the Deaf culture but to learning Deaf mannerisms and how to respect them as human beings. Educating the hearing should be employed for two reasons: (a) 52 the Deaf need to have their own services tailored for their needs, and (b) the Deaf should be allowed to self-identify as a Cultural Linguistic Minority to change their image from disabled and handicapped to a group that has their own language, which would be an opportunity to generate money for their community. A methodology that has been shown to encourage both the hearing and Deaf to become more involved and aware is to offer an education tool from inquiry-based, cooperative hands-on techniques. The employment of the teaching methodologies will lower the barriers both Deaf men and woman have faced in Sonoma County. The benefits of the inquiry-based model for the Deaf is that the hearings’ mindset and attitude regarding the Deaf will improve. The Deaf community will see the opportunities and benefits of an open dialogue to bridge the communication gap, and engagement of the hearings’ interest in the Deaf obtaining effective communication. As the hearing become educated with exposure to Deaf culture, resulting from town hall meetings and the brochure, the hearing will have more resources and knowledge to provide services and information equally to bridge the gap of inequity both Deaf men and women face in Sonoma County. 53 Chapter 3 METHODOLOGY Introduction This project was designed around anti-oppression methodologies that benefit all human beings, especially Deaf men and women. This project has two components: 1. An educational brochure with a focus to bridge the communication gap and open a dialogue between the Deaf and hearing communities (see Appendix A), and 2. a PowerPoint presentation that will educate the hearing about bridging the communication gap in the Deaf community. It is a guide to deaf culture including the myths and misconceptions and available resources for Deaf victims of violence (see Appendix B). The development of this educational project came from a petition signed by 101 Deaf community members, and the current status of resources and services offered to the Deaf by the hearing community in Sonoma County. There is a gap in the available services and resources offered to the Deaf community due somewhat to the communication gap between the Deaf and hearing community. To close the gap would mean to create an open dialogue between law enforcement and fire officials with the Deaf community. There seems to be a great deal of concern for safety and welfare on both sides, not just from the Deaf community, but from city law enforcement including the Sheriff’s dept and local fire departments as well. 54 The Target Audience The target audience for this educational project includes both hearing and Deaf communities, including law enforcement, fire protection, and other service agencies. Because of the communication challenges, there must be certified interpreters including tactile interpreters and Deaf facilitators during the presentation to provide effective communication for the Deaf. A Content Analysis of a Training Guide as a Visual Guide A content analysis approach was used in the development of this educational project including a PowerPoint and brochure for both the Deaf and the hearing communities. Content analysis is an obstructive method of examining journals and books in which the researcher imposes his/her own predetermined categories (Babbie, 1998; Bogdan & Biken, 1998). Content analysis, when organizing the data, shows that the approach is reliable because it can be recognized and categorized again if needed (Babbie, 1998). Furthermore, when using the content analysis approach, excellent results can be achieved to analyze material because the material has been occurring over periods of time as in the analysis of this training guide and PowerPoint. A content analysis approach is also secure and effortless since there are no human subjects or an examination of written records used in the development of this training material (Babbie, 1998). 55 The following samples of PowerPoint presentations were used as a model and resource for this project: 1. Entering the World of Deaf Survivors By Julie Rems-Smario, MS, MA Deaf Hope-Deaf Counseling Advocacy and Referral Agency Oakland, CA, No Date 2. Deaf Culture, Part 3: Oppression, Values, Identity By Lance Forshay ASL 305, Intro to Deaf Studies University of Washington, May 4, 2009 For the brochure content, numerous textbooks, journals, and articles were analyzed for accuracy. The topics were analyzed as well as the depth of the topic, readability, accurateness, credibility, and appropriateness of the topic. The following topics are included in the brochure: Demographics, Deaf Culture, a study about domestic violence and Deaf women, ADA Guide-Model Policy-For Law Enforcement Officers, and the myths and misconceptions the hearing have about the Deaf community. Deaf inclusion approaches were used in developing this educational training guide and visual presentation, specifically using the anti oppressive framework by focusing on the myths and misconceptions that cause the continuation of oppression and marginalization. The resources for the brochure are located in Appendix C. 56 Summary A comparative analysis approach was used to analyze resources, and other styles of brochures best suited for this project. The brochure and PowerPoint presentation was designed around educating the hearing about the Deaf culture and ways to eliminate the oppression and providing resources for the Deaf community. This project is a hands-on approach and targets people with strong interests to end discrimination against the Deaf culture. 57 Chapter 4 DISCUSSION, CONCLUSIONS, LIMITATIONS, AND RECOMMENDATIONS Discussion To close the communication gap between the hearing and the Deaf communities, the hearing have to be educated to understand the Deaf are not “handicapped,” “disabled,” or are any “different” from people who are able to hear. According to Parasnis (1998), the Deaf community still struggle with their selfidentity and do not see themselves as “disabled” or medically challenged. The idea that the Deaf community has their own language is not a new concept in the Deaf community, but the hearing society still does not understand their reality. However, some in the medical field still believe the Deaf are “disabled.” Fortunately, there are some who believe the contrary. As early as the last century, educators of the Deaf have all agreed that the Deaf have their own unique language, values, and social norms. According to Mills (2003), the Deaf community needs to feel liberated, empowered, and free to not only make their own decisions but to have choices about their educational needs. Harlan Lane (1992), an educator and Deaf advocate, stated the following regarding Deaf and education: “typically, Deaf persons have not been involved in making decisions for their own educational placement and policy in schools” (p. 43). But to understand the dimension of the issues the Deaf were fighting, one has to understand Deaf culture. The Deaf have fought for their equal portions of human rights for centuries. However, 58 the effects of oppression and disempowerment caused the Deaf to resign to the fact that nothing would change so they gave up the fight. When a person is constantly ignored and told he/she is not equal because the majority does not understand his/her culture, the person begins to believe that negative stigma (Linderman, 1994). Many people say the status of the Deaf community improved first in 1991 with the American Disabilities Act, then further with the Individuals with Disabilities Act of 2004. Title II of the ADA enforces strict guidelines and requirements all states and city agencies and local governments must meet to ensure they have effective communication with people with disabilities, as effective as they would with people without disabilities, which is referred to as “effective communication.” The requirement stands unless there are reasons such that (a) state or local government can prove effective communication would be a financially burden or (b) if they can prove effective communication would modify the nature of the program or service in question (Office of the Attorney General, 1991). According to the ADA, “Effective Communication” means regardless if the communication is written or spoke, both methods must be precisely clear and people with disabilities must be able to understand as well as people without disabilities. Understanding is a must because there are people whose communication is affected by their disability. People with disabilities consisting of blindness; Deafness; speaking; or reading, writing, or comprehending may select other ways to communicate. When regarding “Effective Communication,” this includes ALL members of the general 59 public who may apply for programs or employment, any activities, or seek information. The City of Alameda was sued and sanctioned by the Department of Justice for not providing an interpreter for a Deaf-blind man who sat in jail for three days and had no idea with what he was being charged (Department of Justice, 2010). The city of Alameda, and law enforcement in general, must attempt to consider the notion that providing effective communication is essential to the survival of the Deaf community. The hearing society must continue to be aware and knowledgeable there is a communication gap that contributes to the issue of public safety when it comes to the Deaf community. Most importantly, they need to assist whenever they can in bridging the communication gap to ensure the Deaf, including Deaf women victims of sexual assault and domestic violence, have resources and access to effective communication. An Evaluation Questionnaire on a PowerPoint Presentation and Brochure The evaluation questionnaire (see Appendix D) and this project were presented to 11 students, three faculty members from California State University, Sacramento (CSUS), and one Police Officer. There were a total of 15 people who attended the presentation. The group was asked to respond honestly to the questions within the evaluation and either fill it out in person or e-mail their responses. Some of their comments and suggestions were incorporated into this project including the PowerPoint presentation and the brochure. 60 To validate and support this project further, one Deaf mental health professional and two Deaf advocates were given the opportunity to evaluate this project. The same questionnaire, PowerPoint presentation, and brochure were sent to two university professors, one in Ethnic Studies and the other in Deaf Studies from a Northern California University. The extensive feedback, comments, analyses, and suggestions on Deaf inclusion and the lack of effective communication practices were incorporated into this project. Other Professionals Would Benefit from Presentation All 15 attendees responded with a ranking of a four or a five (agree somewhat and agree strongly) that they felt others in their profession would benefit from the presentation. Of the attendees, one made the comment that “They would like the presenter to come to a domestic violence meeting and perhaps give a presentation at DIVA of Citrus Heights and Citrus Heights Police Department and speak about Deaf culture and effective communication.” A Professor of Gender Equity studies commented, “More teachers and Professors should learn more about the Deaf culture and language.” A Public Safety officer from the University stated, “I would like to know more about resources that are available to law enforcement.” These attendees validate the idea that professionals feel there is a need and an interest in either a presentation or additional resources and information on Deaf culture and further explanation of what effective communication means to a Deaf person. 61 Attendees’ Interest in How Informative the Presentation Was Fifteen of the attendees (with scores of 4 or 5: agree somewhat or agree strongly) said the presentation was informative. One student, and a professional, said she learned a lot about the myths and misconceptions that she believed to be true about the Deaf community and the presentation dispelled the tales. Another attendee said she learned specific difficulties and prejudices against the Deaf community. A student stated, “As an American Sign Language student, it is eye-opening to realize the limited resources available to the Deaf community.” Another said, “I didn’t realize how the Deaf were oppressed and ignored.” An educator stated, “Presentation was very informative, great information. The PowerPoint was helpful along with stories and examples.” The educator’s comments support how effective presentations can be when using appropriate visuals and story telling. A Deaf student made the following comment, The presentation was good; however, I think that hearing individuals would better understand why Deaf/Hard of Hearing are concerned about dealing with the Police Department with more examples. Most do not know why we’re animated, etc.; this is not just a Police Department issue. It even occurs at Gallaudet University. Their campus Police Department did not even know American Sign Language and accidently killed a student because he was trying to sign and they thought he was dangerous. When explaining about the facial expressions, explain that this is part of the language, grammatical markers. 62 Show an example if you can, or point out what the interpreter is doing. It is a way of sharing the story, the spirit of the sentence. It is common and easy for the hearing population to become confused and misread the facial expressions of the Deaf community when the Deaf are communicating because of their animation. Facial expressions are kept to a minimum when the hearing communicate with one another. The Importance of Visual Effects All attendees surveyed felt that visual effects were an important component and were meaningful to the presentation. One attendee stated, “The visuals were good. The presenter was more focused on the speaking rather than following the PowerPoint.” Another attendee suggested, “The presenter should have more pictures in the PowerPoint. Another person said, “I loved the packets the presenter prepared for the audience.” One educator suggested, “The visual effects would have been more effective if the presenter practiced on how to use the PowerPoint.” Because the room was dark and the interpreter was blocking the view of the screen it was difficult to see the PowerPoint on the screen; therefore, the challenges that occurred could not be avoided. The Deaf students said, Regarding PowerPoint and visual effects, if you’re going to be speaking to the Deaf community, you need to explain that the presentation is primarily geared to help hearing individuals better understand. I think that audism needs to be moved under abusing hearing privilege and there are a few other things I 63 would change or move, but it is your PowerPoint and you do it how you feel is best. I’m concerned there may be some confusion via the Deaf community if that makes sense. Police Department suggestions may be best to recap in the conclusion too. Additional Comments/Suggestions Only 3 of the 15 questionnaires had comments or suggestions. One graduate student stated, My son is Deaf and a deputy Sheriff was standing outside one of our windows looking in with a flashlight. When I went outside to see what he wanted, I saw that my ex-boyfriend, a sergeant in the Sacramento Sheriff’s office, was hiding behind a bush. I went in the house and told my oldest son about it and he went outside to inquire what was going on. My son proceeded to ask the deputy questions and because he was rude to my son, he decided to call the deputy’s superior. This was my son’s experience when he tried calling the Sheriff’s department. My son who is Deaf tried to call the relay system to make a complaint. He was able to reach someone at the Sheriff’s department, but in the middle of the complaint, something happened and they were disconnected. When he tried to call the sheriff’s department community line back by using the relay system, no one answered the phone, it was just a recording. My son called several times but could not reach a live person. Eventually, the deputy’s 64 Sgt. called back at midnight on the house phone, no relay service was used so my son was not able to take the call directly. I then spoke to the Sgt and I asked for his supervisor’s name and number. I called him and he told me that the deputy was only looking at my house number. My response was that the house number is on the side that faces the street and the house number was also painted on the curb in front of my house. I said that I would not keep my house number in a window, especially one that is not facing the street. My son was never able to reach an officer and the captain never returned his call. (Graduate student) A Deaf student also commented the following, What people do not realize is that most Deaf do not read or write because many do not have a reading or writing education beyond second to fourth grade when they graduate from high school, especially if they are mainstreamed. There should be more of an emphasis on hearing privilege, which happens amongst friends and it is a form of Audism. The definition of Audism is the notion that one is superior based on one’s ability to hear or behave in the manner of one who hears. A college Professor of Deaf Studies said the following, When looking at your thesis, I wanted to comment on the capitalization of “Deaf.” It has been a long-standing convention that Deaf be capitalized when referring to the culture and community of Deaf people, as well as when 65 referring to people who belong to and participate within the Deaf culture and community, and when referring to audiological standards. Or people should be more properly considered a linguistic and cultural ethnic minority group, all Deaf people, whether they are part of the culture, or even if they do not want to consider themselves to be a part of it or want no part of it, it should be referred to as “Deaf.” It is like with Black people who might have been raised by White parents or who have chosen to disassociate themselves from Black culture, even if they chose to do so or know nothing of Black culture, their biological makeup and birthright is the Black ethnicity. So too is the case for Deaf people, in my view. There are some other reasons why I support doing this as well; it greatly eliminates the decisions one has to make regarding whether to capitalize in this situation or not. I think it has the potential to promote more unity within the community. So I do capitalize D for all people who are not hearing, Deaf, Hard of Hearing, to me, they’re all Deaf. If I need to make the distinction, then I would say “culturally Deaf” or not culturally deaf. Attendees’ Interest in the Brochure Five people out of 15 commented on the brochure. One person said, “The brochure had a lot of great information and data. Another person from law enforcement commented, “This is great information and I plan to share this with other officers. One person commented, “There are a lot of facts, too much to take in or be an effective brochure. But I am not sure of the audience.” One person said, “I like it very 66 much. This is exactly what we need for Sacramento. It is impossible to find a “onestop” brochure such as this that has everything we need at put fingertips.” The purpose of creating the brochure was so the information regarding the Deaf community was organized and readily available to educate and inform the hearing community, including service agencies. Conclusions A recent study performed by the National Institute of Justice regarding Deaf women who are sexual assault victims showed their issues are unique in terms of the barriers they face. Researchers Obinna et al. (2006) at the Minneapolis Council on Crime and Justice interviewed members of the community impacted by sexual assault whether they were victims or police officers investigating the crime. They were all involved in some capacity. A total of 51 Deaf citizens were interviewed along with 15 service providers who serviced both the hearing and the Deaf and 10 police officers who were connected with the investigation. Obinna et al. (2006) explained that when a Deaf victim of sexual assault is identified, it is important that her experiences are not associated with other victims of the same nature. When Deaf women who have been sexually assaulted report, there are stereotypes associated not only with being a sexual assault victim but also with being Deaf. The term “rape” is full of finger pointing and judgments that cause the victim to feel guilty that maybe she caused it. There is a social stigma attached to being a rape victim. Because the Deaf community is extremely small, everyone knows 67 everyone and, as a result, it is very difficult for most to keep their anonymity. Deaf victims also found that once the word gets out to the Deaf community that a woman has been raped, especially if the perpetrator was Deaf, this causes not only a lack of support but isolation (Obinna et al., 2006). Another issue is the lack of understanding of Deaf culture on the hearing people’s part. The hearing get so caught up in the fact that the women are Deaf, they forget the Deaf are from a unique culture with their own language and belief system. Obinna et al. (2006) found that many of the Deaf women they interviewed did not see themselves as having a medical condition; they viewed themselves as coming from a linguistic community that has not yet been accepted by the hearing community. Yet another issue the researchers encountered was the fact that because the Deaf women came from their own unique culture, their experience may be different from hearing women’s (Obinna et al., 2006). The different experiences may still exist even though their reactions or experiences are similar. It is the culture differences that dictate whether they tell someone or if they do, who that person will be (Obinna et al., 2006). Another issue the researchers (Obinna et al., 2006) examine is the way the hearing treat the Deaf victim. How do they communicate? Communication sometimes became very uncomfortable and awkward for both the Deaf victim and the hearing person, which could be a reason why the Deaf women do not seek help. The language is also an issue because not may hearing people realize that English is not the same as 68 ASL, thus creating a communication barrier. Obinna et al. (2006) also stated that the Deaf women had several communication styles and those styles varied from person to person. Some Deaf lip read, some could read and write, some could not. Deaf victims were hesitant to go to hearing shelters or agencies because most of the providers were hearing and they could not provide effective communication. It is unlikely that agencies will be set up with a TTY system, not to mention a staff member who knows how to work the system. Another option is having an interpreter but that can be very uncomfortable, even though the interpreter is there to be their ears only, it can be very uncomfortable for a woman to tell someone her business (Obinna et al., 2006). When discussing improving police response, there was a mixture of opinions on whether the police were helpful and whether the Deaf would ever call them back after they were victimized (Obinna et al., 2006). One would not expect to be victimized by police officers, but it happens. Deaf women claim police officers have actually taken them to be drunk or mentally ill or misread their body language as being violent and dangerous. Another issue the women mentioned was the fact that the 911 operators did not know how to operate the TTY (teletypewriter). Both the Deaf community and service providers all agreed that law enforcement must improve their practices when communicating with the Deaf community, regardless of whether they are victims of sexual assault, domestic violence, or suspects of a witness to a crime. Training was also emphasized by the 69 Deaf victims. Interpreters were on the list as well as very clear and precise agency policies. An example was given that even though there may be available interpreters, the police officers did not know how to contact them. Regardless of the flaws of the Minneapolis Police department, Obinna et al. (2006) commended them for their sensitivity toward the Deaf community and recognizing them as a group of people with a distinct language and culture. The officers also go through a 10-week training course on ASL. Limitations One of the limitations was that there was not enough feedback from law enforcement and the Deaf community due to attendance. An effective approach would have been to personally visit the faculty at Deaf studies and the local police stations to advertise the presentation. The direct approach could have ensured a better turnout. Another limitation was the questions on the evaluation sheet were too general and there was not enough depth reflected from the attendees’ feedback. Analyzing the material and trying to make sense of the answers was difficult. The PowerPoint and the brochure available at the presentation had limitations as well. The Power Point was difficult to see from the podium and, as a result, the presenter had difficulty keeping slides organized. This could have been eliminated had there been ample time to practice and become comfortable with the electronics used. The brochure handed out to the attendees was limited as well. There was too much information in the small the space; hence, the brochure to be not “reader friendly.” 70 Recommendations for Further Study This researcher recommends that public agencies expose the hearing culture to the Deaf so the Deaf are seen, valued, and recognized. Educating the hearing is a key component in changing their negative image. This researcher recommends that law enforcement continues to bridge the communication gap with hiring law enforcement and Community Peace Officers who know American Sign Language as well as having certified interpreters on call. Additional training is needed to ensure that hearing agencies, including law enforcement, understand the following issues: ADA law that explains Effective Communication; training on procedures of how to provide service to Deaf women victims of crimes, including domestic violence and sexual assault; and an overview of Deaf culture to include basic American Sign language. This researcher also recommends surveying and conducting focus groups with agencies regarding their knowledge and understanding of the Deaf community to determine if their needs are being met. In addition, there should be more studies statewide and nationwide. Finally, the Deaf community should benefit from funds from the census, which could be used for education and current communication devices such as video phones for their homes and for law enforcement and agencies to ensure effective communication. Reflections My major in college was Ethnic Studies and I have been passionate about this topic ever since I discovered this area of study. After graduating with my B.A., I spent the last three years applying my knowledge in diversity and race relations as a social 71 justice advocate and a Human Right’s Commissioner. As a human rights advocate, I have observed for several years the way the Deaf community have been ignored and underserved along with the discrepancy of services, resources, and information they do not receive. I want to change this alarming trend of the lack of services and resources the Deaf seem to feel they are not entitled to. I am passionate about equal rights for all because I feel everyone has the right to their equal share and the Deaf are no exception. I want to change not only the attitudes of the hearing about the Deaf community, but I also want to change the hearing mindset as well, so they see the Deaf as individuals who do not hear rather than seeing them as broken and needing to be fixed. I want to educate the hearing and, at the same time, share resources, services and information with the Deaf community so they will have the tools and confidence to stand on their own two feet and have the power to control their own journey. 72 APPENDIX A Brochure 73 74 75 APPENDIX B PowerPoint Presentation 76 77 78 79 80 81 82 83 84 85 86 APPENDIX C Resources for Deaf Women Victims of Violence 87 Resources for Deaf Women Victims of Violence The following programs specialize in providing support and services for Deaf, Deaf/blind, and hard of hearing victims of domestic and sexual violence. The information was retrieved from NRCDV (2004, p. 14). National TTY- 800-787-799-SAFE (7233) The national hotline works to provide callers from across the nation with the information they need as soon as possible. Hotline personnel are available 24 hours a day, 7 days a week and will assist you in finding the domestic violence program closest to your location. State Wide California – Oakland www.DeafHope.org DeafHope is a non-profit organization, established for and by Deaf women in January 2003. Their mission at DeafHope is to end domestic and sexual violence against Deaf women and children through empowerment, education and services. Their mission will be achieved on three levels: (1) By providing services to Deaf women and children who are survivors of domestic violence and sexual assault. (2) By educating the Deaf community and service providers about domestic violence. (3) By providing statewide training and technical assistance to establish more Deaf-run services for Deaf survivors. 88 San Diego – info@sddmhs.org Voice-858-410-1061 San Diego Deaf Mental Health Services – provides comprehensive and culturally affirmative mental health and social work services to all Deaf and hard of hearing individuals and their family members, regardless of their social or economic condition, living in the County of San Diego, CA. Iowa – diaabuse@gmail.com V.P. 866-319-8987 Deaf Iowans Against Abuse (DIAA) Cedar Rapids. Vermont – Deaf Vermonters Advocacy Service – The mission of DVAS is to enrich the lives of hearing loss by providing access to services, education and advocacy. Colorado-Denver – info@Deafdove.org 303-831-7874 TTY-VOICE DOVE – Advocacy Services for Abused Deaf Women and Children – provides culturally appropriate and accessible services for Deaf, blind/Deaf and hard of hearing victims of sexual assault and domestic violence. DOVE works to empower victims by providing 24 hr crisis intervention, information and referral, and advocacy. DOVE is also committed to changing attitudes, which foster and perpetuate violence through community education out reach and interagency collaboration. Oregon – 541-754-0273-TTY. Phone Message-541-754-0384. Contact Person – Gwinette E. Hamlett. GwinetteHamlett2000@yahoo.com, State of Oregon Domestic Violence/Disability Abuse Coordinator. Deaf/Hard of Hearing Advocate 89 Washington (Seattle) – hilsmjs@aol.com 206-726-0017 (voice) Abused Deaf Women’s Advocacy Services – for Deaf and Deaf/blind. Also Transitional Housing program: A place of our own: features 19 individual units of traditional housing for very low-income families who are homeless. Wisconsin – Deafunity@gmail.com Services offered to the Deaf (State Wide) When exploring cities in the U.S. who are “Deaf friendly” and offer educational entertainment, religious and human services to the Deaf community, five stand out from the rest. The cities are as follows: Detroit, Michigan; Houston, Texas; Los Angeles, California; Rochester, New York; and Washington, DC. Detroit Michigan: Has a healthy Deaf community, with at least three organizations including, social organizations such as social events, a Chapter of National Black Deaf advocates and farther from Detroit is the Flint Association of the Deaf. Also interpreting agencies. (About.com:Deafness, 2010. Houston, Texas: offers social services, social activities, and interpreting services. (About.com:Deafness.2010). Los Angeles, California: Has a Deaf and hard of hearing society, Greater Los Angeles Agency of Deafness (GLAD) which has a social calendar for GLAD sponsored events. Deaf chat coffee, Los Angeles, which meets at the Coffee 90 Bean & Tea Leaf once a month. Captioned movies. Deaf people can choose either rear window captioned films or open-captioned films at a variety of locations. Ethnic Organizations: (a) Asian- Southern California Asian Deaf Association, a chapter of the National Asian Deaf Congress. (b) Hispanic- California Latino Council of the Deaf and hard of hearing. (c) African American- California Black Advocates, a chapter of the National Black Deaf Advocates. Social Services agencies: Hearing Loss Network. Some social services agencies have units that service the Deaf community, such as the Los Angeles Commission on Assaults against Women. Entertainment: Deaf West Theatre of “Big River” fame, and the L.A. Bridges Theatre Company of the Deaf. Interpreting Services: (a) Good hands interpreting (b) Western Interpreting (c) Life Signs (offered by GLAD) 91 (d) LINKS Interpreting Service (e) Southern California RID Chapter Captioning: (a) NCI Captioning, Burbank (b) Caption Center, Burbank (c) Vitac, North Hollywood, CA Religion: Several churches (About.com: Deafness, 2010). Rochester New York: Rochester has one of the largest Deaf populations per capita, meaning that out of the total of population of Rochester, a substantial percentage are Deaf. The Deaf population is so large there that the local Democrat and Chronicle newspaper has a reporter, Greg Livadas, who frequently writes Deaf related stories. Just about every aspect of life in Rochester is Deaf accessible. Community News: Rochester has their own website for the Deaf community. DeafRocherter.com. Deaf Culture: Rochester has been the birth place of organizations such as Deaf artists of America, the theatre lights on, and Deaf life magazine. 92 Education: National Technical Institute for the Deaf, a technical college on the campus of Rochester Institute of Technology. Younger Deaf students have the choice of the Rochester School for the Deaf (before the early 1820s, there was a shortlives small school for the Deaf; RSD started in 1876 as the Western New York Institution for the Deaf-Mutes, and became RSD in 1919 or mainstreaming with support services provided by the Monroe County Services for Deaf and hard of hearing. Health: Marion Folsom Center, there are professionals skilled in sign language. The University of Rochester hosts PAH MD, Promoting Awareness in Healthcare, Medical and Deaf. Sign Language Classes: ASL at the University of Rochester Rochester School for the Deaf MCAHI Monroe County Adult Education Interpreter Training Programs: The National Technical Institute for the Deaf has an interpreting program. The Registry of Interpreters for the Deaf has a local chapter, the Genesse Valley Region Registry of Interpreters for the Deaf. 93 Interpreting Agencies: FMI Interpreting Services Interpreter M.E. Services Sign Language Connection Strong Connection (Medical interpreting provided by the University Medical Center (About.com: Deaf, 2010). Washington, DC: Captioning Services: Caption Gallaudet Interpreters: DC based interpreter can join the Potomac Chapter. Registry of Interpreters includes: Gallaudet Interpreting Service Partners in Sign, Inc. Viscom Interpreting, Inc Movie Theatres: These theatres have captioning: AMC Mazza Galleria 7 (rear window) AMC Union Station 9 (rear window) Loews Georgetown 14 (rear window) Regal Gallery Place Stadium 14 (open captions) 94 Organizations: District of Columbia Area Black Deaf Advocates (chapter of National Black Deaf Advocates) District of Columbia Association of the Deaf DCHLAA (Chapter of the hearing loss Association of America) Schools and Colleges: Gallaudet University Model Secondary School for the Deaf (high school) Kendall Demonstration Elementary School River School (Private School) Religion: Tifereth Israel Congregation (a synagogue in Northwest, DC that provides services for the Deaf. Services included at the following locations: Gallaudet University Bethesda Baptist Church (near Gallaudet) (About.com/Deafness, 2010). Local Deaf Services in Sonoma County and Neighboring Counties According to THE DIRECTORY, Sonoma County Resource Book there is only three agencies listed specifically for the Deaf: Disability Services and Legal Center: Santa Rosa California and Deaf and Disabled 95 Telecommunications located in Oakland, approximately 60 miles a way. California Telephone Access Program, located in Oakland, California. Educational Resources for the Deaf (state wide) K-12 Because inclusion is very common there are some schools that offer Deaf studies. The options that are offered are: Residential Schools for the Deaf, Day schools (oral or sign). Early intervention & Preschool Programs, Mainstreaming and Inclusion, self-contained classrooms, Home school Environment. Educational Resources for the Deaf Child K-12 in Sonoma County In Sonoma County there is only one private residential School for the Deaf. If a Deaf child is “mainstreamed” there are “special classes” available that provide interpreters, however no special accommodations to ensure the Deaf have the same or equivalent educational experience as the hearing child. College – In California and Out of State Cal State University Northridge More than 220 Deaf and hearing impaired students attend this university. They offer a complete undergraduate program in the field of Deaf studies. The Deaf studies program offers careers in sign language interpreting to government specialists, speech pathologists to program administrators. They offer Deaf 96 workshops, Deafestivals, academic panels, and social gatherings (Disaboom, n.d.) National Technical Institute for the Deaf. Rochester, New York The world’s first and largest technological college for the Deaf and hard of hearing impaired students. These students, who currently number about 1.100, share their educational experience with approximately 14,000 hearing students at the institutes seven other colleges. Special services consist of: Strobe light fire alarms, telephone amplifiers. State of the Art computers and multimedia technologies, digital printing presses, laser optics lad and robotics program. There are other special services offered: note-takers, tutors, and the largest interpreter service in the country. In the classroom there are several ways to achieve effective communication: ASL, finger-spelling, writing, and visual aids (Disaboom, n.d.). Gallaudet University, Washington, DC Captioning services Interpreters Movie Theaters Organizations, Schools and Colleges. Sign Language Interpreters Religious Organizations 97 Sonoma State University, Sonoma County, California There are 58 majors offered. There is not a Deaf studies department Utah Valley University Offers Deaf studies, ASL, Interpreter certification, and Deaf studies Today conference. Human Services Available to the Hearing Community in Sonoma County According to Sonoma County Health and Human Services Resources 2010 Directory, there were over 1,000 referrals connecting the hearing to their community such as: (1) Human Services and Information 7 Referral, (2) Volunteer Wheels (3) Literacy Connection (4) Youth Volunteer Corp (5) Retired & Senior Volunteer Program (6) Human Race (7) Giving Tree (8) Resource Center for Non-profits 98 APPENDIX D Evaluation Form 99 AN EVALUATION & A QUESTIONNAIRE ON A PRESENTATION ON THE HISTORY, MISCONCEPTIONS, AND MYTHS ABOUT THE DEAF COMMUNITY INCLUDING ISSUES THAT AFFECT DEAF WOMAN AND AN EDUCATIONAL BROCHURE. Please answer the following questions about yourself. All information collected from this evaluation form will be kept confidential. Age: _____ Gender: ____ Female______ Male________ Ethnicity____________ Profession/Occupation_______________________ Does your profession require you to work with the Deaf Community?______________________________ Education Level: (Circle highest level completed) High School Some College UndergraduateGraduate AA/AS degree _________________________ (subject) BA/BS degree _________________________ (subject) MA/MS degree _________________________ (subject) Technical/Trade School __________________ (certificate / degree) Please indicate the degree to which you agree or disagree with each statement using the scale below and writing the corresponding number on the lines provided. 0 1 2 3 4 5 disagree disagree disagree agree agree agree strongly somewhat slightly slightly somewhat strongly 100 PART ONE THE PRESENTATION 1. How informative was this presentation? Did you learn anything? Why/Why not? 2. Do you think others in your profession would benefit from this presentation? Why/Why not? ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ 3. Do you think this information was appropriate for this topic? Why/Why not? ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ 4. Was the length of the presentation too long, too short? Comments/suggestion ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ 101 5. How affective were the visual effects? Comments/suggestions ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ 6. The Presentation this evening did the following: Please check those that apply: (a) enlightened (b) respected the deaf community (c) informed (d) inspired Additional Comments/Suggestion ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ ___________________________________________________________________________ 102 PART TWO THE BROCHURE After reviewing educational brochure, is there any feedback that you would like to give to the presenter? 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