IMPACT OF THE 2009-2010 CALIFORNIA BUDGET CRISIS ON PUBLIC HEALTH AFFECTING MEDICALLY INDIGENT WOMEN Jennifer Marie Whitby B.A., California State University, Sacramento, 2008 PROJECT Submitted in partial satisfaction of the requirements for the degree of MASTER OF SOCIAL WORK at CALIFORNIA STATE UNIVERSITY, SACRAMENTO SPRING 2010 IMPACT OF THE 2009-2010 CALIFORNIA BUDGET CRISIS ON PUBLIC HEALTH AFFECTING MEDICALLY INDIGENT WOMEN A Project by Jennifer Marie Whitby Approved by: ____________________________, Committee Chair Teiahsha Bankhead, PhD, L.C.S.W. ____________________________ Date ii Student: Jennifer Marie Whitby I certify that this student has met the requirements for format contained in the University format manual, and that this project is suitable for shelving in the Library and credit is to be awarded for the Project. ________________________, Division Chair Robin Carter, DPA, L.C.S.W. Division of Social Work iii _______________________ Date Abstract of IMPACT OF THE 2009-2010 CALIFORNIA BUDGET CRISIS ON PUBLIC HEALTH AFFECTING MEDICALLY INDIGENT WOMEN by Jennifer Marie Whitby This qualitative exploratory study examines the impacts of the 2009-2010 budget crisis on public health agencies that provide physical health services to medically indigent women. The purpose of the study was to explore the fiscal impacts on public health agencies in Sacramento County and the degree to which medically indigent women are affected. The researcher conducted 12 face-to-face interviews with administrators from local public health agencies. Analysis of the findings from the experiential narratives resulted into common themes, namely, longer wait periods, increase in caseload; the impact on preventative services; and the long-term effects of the budget crisis. iv Implications for future research, social work practice, policy, and practice are explored. _____________________________, Committee Chair Teiahsha Bankhead, PhD, L.C.S.W. _____________________________ Date v DEDICATION I dedicate this project to my husband, my life partner, my Baby. You have always been the shining light that sheds tremendous love and encouragement even in the darkest of times. You have been my rock, my pillar, and my support. I love you baby! vi ACKNOWLEDGMENTS This project became a reality through the countless support and help that I have received in my life. Most of all, I give all praises to God without whose presence, mercy, and guidance, nothing is possible. I would like to thank Dr. Teiahsha Bankhead, my thesis advisor, for helping me complete the final phase in my MSW career. Many thanks to Prof. John Davis for his kind words and classic jokes in the classroom and halls that brought a smile to my face and made my days bright. I heartily acknowledge Dr. Susan Eggman for her compassion and dedication to the profession and her students. She has always inspired me. She has made a lasting impression on my heart. I will forever be grateful to her. I will never forget the encouragements and care to help me realize my personal and professional goals. To all my friends, especially, Melissa, Renee, Kelli and Cheryl, my constant support through the trial and tribulations over the years, much love and many thanks. To my family for their continuous love and support, my appreciation for you goes beyond words. To my dad Todd and my father Mike, thank you for always encouraging me to do my best. To my father-in-law Rick, though we struggled with Plate Tectonics he never gave up on my education. Thank you for the small talks and words of encouragement. More significantly, my dearest mother Peggy, my best friend, confidant, and no. 1 fan, thank you and much love! You have been by my side, believing in me every step of the way and I will be forever grateful. I love you! vii TABLE OF CONTENTS Page Dedication .................................................................................................................... vi Acknowledgments...................................................................................................... vii Chapter 1. THE PROBLEM ......................................................................................................1 Introduction ....................................................................................................... 1 Background of the Problem ............................................................................. 2 Statement of the Research Problem .................................................................. 3 Purpose of the Study ..........................................................................................4 Theoretical Framework ......................................................................................4 Definition of Terms............................................................................................6 Assumptions.......................................................................................................7 Justification ........................................................................................................7 Limitations .........................................................................................................7 Summary……………………………………………………………………… 8 2. REVIEW OF THE LITTERATURE .......................................................................9 Introduction ........................................................................................................9 How Does California Compare ..........................................................................9 Proposition 13 ..................................................................................................10 Medi-Cal ..........................................................................................................10 Prenatal Care ....................................................................................................12 viii Hospitals ..........................................................................................................14 Clinics ..............................................................................................................15 Preventative Care .............................................................................................16 Immunization Services.....................................................................................17 Title X ..............................................................................................................17 California’s Safety Net ....................................................................................19 Women in Need ...............................................................................................21 Elderly Women ................................................................................................23 Sacramento Demographics ..............................................................................25 Emergency Care ...............................................................................................27 Sacramento County Clinics..............................................................................28 Sacramento Health Care Improvement Project................................................29 Summary ..........................................................................................................29 3. METHODS ............................................................................................................32 Introduction ......................................................................................................32 Collaborative Elements ....................................................................................32 Research Design...............................................................................................32 Measurements ..................................................................................................33 Sampling Plan ..................................................................................................34 Instrumentation ................................................................................................34 Data Collection ................................................................................................35 Data Analysis ...................................................................................................35 ix Human Subjects ...............................................................................................36 Summary ..........................................................................................................37 4. FINDINGS .............................................................................................................38 Introduction ......................................................................................................38 Demographics ..................................................................................................38 Presentation of the Findings.............................................................................39 Longer Wait Periods ........................................................................................40 Increased Caseload...........................................................................................41 Cuts to Preventative Services...........................................................................44 Long Term Effects of the Budget Crisis ..........................................................46 Summary ..........................................................................................................47 5. CONCLUSIONS, IMPLICATIONS, AND RECOMMENDATIONS .................50 Introduction ......................................................................................................50 Conclusions to the Study .................................................................................50 Barriers to the Research Process ......................................................................54 Implications for Future Policy .........................................................................56 Implications for Social Work Practice .............................................................57 Implications for Practitioners ...........................................................................57 Summary ..........................................................................................................57 Appendix A: Approval by the Committee for the Protection of Human Subjects .................................................................................59 Appendix B: Informed Consent Forms .......................................................................61 x Appendix C: Interview Questions for Health Administrative Professionals/Staff ............. 66 Appendix D: Interview Questions for Clients ..................................................................... 71 Appendix E: List of Resources ...................................................................................75 References ....................................................................................................................77 xi 1 Chapter 1 THE PROBLEM Introduction The 2009-2010 current budget crisis in California raises numerous questions and concerns about the impacts it might have on public health care services for Sacramento’s most indigent women. The issues surrounding access to health care are magnified by California’s rising unemployment rate, exorbitant costs of private health insurance, and cuts to public health care. California’s historical and recent budgetary actions have complicated the health care system at the state and local level (Kelch, 2005). Being a woman and sharing in the struggles of obtaining insurance, I have a deep interest in this topic. As a full-time graduate student with limited financial resources, I am often faced with health dilemmas. Though my health is considered good at this point, I still require regular check-ups. I am cognizant of the possibilities of getting involved in a car accident or facing a major health crisis and not having the financial resources to obtain the needed services. I currently suffer from migraines. On one occasion I had a prescription for the migraines that was covered through my spouse’s employer-based health plan; however he was recently laid off from his job and subsequently lost our health coverage. I have since depleted my prescription and cannot get it refilled because of the exorbitant cost. It is a very helpless and frustrating feeling. This topic is meaningful in other ways as well. In the coming months I hope to obtain my Master’s degree of Social Work. As a social worker, I pledge to serve the 2 underserved, vulnerable and disenfranchised populations. I commit to ensure that my clients are getting their needs met and are treated with respect and dignity. I will advocate for policy and social change through research which will be an effective vehicle for the needed change. With such task at hand as a social worker, I need to be knowledgeable of the complex issues facing my prospective clients. The 2009-2010 budget calls for additional cuts from the Proposition 99 funding stream and will affect programs supporting prenatal care and health and wellness (Health Access, 2009). Proposition 13 and Proposition 99 have impacted health care funding for the uninsured. The passage of Proposition 13 in 1975 drastically reduced local revenues derived from property taxes by 52 percent (Kelch, 2005). Proposition 13 limited revenues acquired through property taxes to one percent of the property value. The loss in revenues had a direct impact on the amount of monies appropriated for public health. Proposition 99 was passed by California residents in 1988 and was intended to provide new funding for public health through the taxation of tobacco products. Unfortunately this funding stream has been on a steady decline as less money is being spent on tobacco products (Kelch, 2005). Both propositions are small examples of the complex nature and impact of the budget crisis on people’s welfare. Evidently, reform is much needed. Background of the Problem Each year the state legislature enacts a budget that delineates the state’s revenues and expenditures for the following year. When the state has more expenditures than incoming revenue it has no choice but to cut funding from its programs. The current 3 budget crisis called for numerous cuts to many very important programs and adversely affected the low-income and vulnerable residents in California (California Budget Project, October, 2009 & Health Access, 2009). The California Budget Project (CBP) (1996) argued that, “The annual state budget reflects the priorities and values of the Governor and the Legislature for the upcoming year” (p. 1). Deep cuts to public health care, as a result of the current budget crisis, attest then to what is deemed important, or unimportant, to the Governor and the Legislature. Many of the clinics and agencies that offer public health services to the medically indigent have already felt the effects since the enacted budget in July 2009. Funding streams to these agencies have been drastically reduced resulting in reductions of staff and their hours of operations, longer wait periods for the clients, and a decline in services for women (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). Women’s health is a complex issue due to the specific needs of the population, and the policies surrounding access to health care. Since women typically have lower incomes than men, they are more likely to be affected by health-related policies and the rising costs of private health care. These factors increase the disproportionate rate at which women utilize public health clinics (Wyn, & Ojeda, 2003). Medically indigent women are in desperate need of health care, and the enacted cuts only amplify the problem. Statement of the Research Problem The massive budget shortfall appears to be affecting one of the most vulnerable segments of the population, medically indigent women. Systemic changes to public 4 health care need to take place so that women’s health is not jeopardized. Reductions in funding for public health may place women’s health at risk and will likely prove to be more costly for the government in the end. Purpose of the Study The purpose of this research study is to explore the consequences in health services when medically indigent women are unable to access health care. This is an exploratory study which is qualitative in nature based on information received from face to face interviews with the representatives of agencies and the medically indigent clients. This study will explore and discuss the effects of the budget crisis on medically indigent women and their access to care through Sacramento public health agencies. Agencies were identified through a systematic approach and contacted to schedule face to face interviews regarding the changes in services. Clients from these agencies were identified with the permission of the selected agency. In the end, this study will provide the reader a glimpse into the negative impacts of the state budget on the health care and the lives of the target population. It will demonstrate the importance of women’s health and the need for adequate public health services within agencies that support medically indigent women. Theoretical Framework In this study, the researcher finds that the social theory of Karl Marx serves as an appropriate theoretical framework in order to better understand the motivation and inspiration behind this study. Having witnessed the seeming endemic oppression of the lower social classes, Marx argued that one’s political, ethical, philosophical, religious, 5 and ideological views were influenced by social and economic class (McClelland, 2000). Furthermore, for him, the social class that possesses material goods, such as wealth, will intellectually dominate the public media such as the communications media and the political arena (McClelland, 2000). His idea supports the truth on the dynamics of our society. In the United States, as a capitalist country, there are essentially three class systems: the upper class, the middle class, and the lower class. The upper class tends to oversee and influence policies that typically benefit them. Financial corporations and legal institutions, where the upper class members are mainly found, lobby intensely for their interests before lawmakers who make policies for the society, which translated into the major interests of the upper class. Karl Marx believed that the dominant culture in its effort to retain control in society utilizes systems, such as religion and government, to reinforce the status quo, or their dominance in power. In addition, he argued that when people feel abandoned and helpless, they become withdrawn and succumb to social institutions such as government (McClelland, 2000). In essence, when people feel as though they cannot compete against the dominant culture or status quo, they surrender to the oppression. Medically indigent women are vulnerable, oppressed, and controlled by the values, views, and monetary goods of the dominant culture. Applied to the situation on current health policies, this subordinate population is vulnerable because they do not have monetary goods or political power to affect change. 6 Definition of Terms To help the reader understand the discussion better, the following terms which are often used in this study are clearly defined in their meanings. Agency/Clinic: public organization partially or completely funded by Sacramento County that offers health services to the general public. Budget: an attempt to itemize future income and expenses of a given entity for a given time. For instance, this study discusses the 2009-2010 California budget. Budget crisis: it describes California’s economic climate due to the lack of income and revenues needed to support the various programs which the state of California serves. For instance, California does not have enough income or revenues to financially pay for services and expenditures of the medically indigent women. Low income: income that is 200% or more below the federal poverty line (FPL). Federal poverty guidelines are issued each year by the Department of Health and Human Services and are used to determine financial eligibility for certain federal programs. Medically indigent: it describes a segment of the population that is without private or public health insurance and cannot afford to pay for medical care. Public health: government-funded health services offered to the general public for the purposes of prevention, health education, and control of illness and disease. Underinsured: it describes minimal coverage in insurance payment. For instance, an insurance plan may cover only one procedure but not another, thus rendering an incomplete and possibly ineffective solution or treatment. 7 Uninsured: not covered by insurance. Women: for purposes of this study, this term is used to describe women who are 18 years and older. Assumptions This study assumes that not all women have equal access to health care. It should also be assumed that the political arena plays a major role in implementing policies that may inherently affect vulnerable populations. Arguably, the current economic crisis has affected health care services for medically indigent women. Furthermore, it is anticipated that the overall viability of the clinics and the quality of care provided to medically indigent women will be threatened as funding streams are drastically reduced and possibly eliminated due to the current budget crisis. Justification This study will provide a further understanding of California’s current economic crisis and its effects on poor women who lack health care. It is vital to recognize the limitations and risks that are imposed on vulnerable populations due to decisions made as regards the state budget. This study may have implications for the current and future state budgets. It may also have implications for the rationale of clinics and the medically indigent women they serve. Limitations This research is being conducted solely in Sacramento, California. Therefore, findings of the study cannot be generalized to unduly apply to any other area. Given the fact that the budget crisis is occurring now, it is difficult to determine the long term 8 effects of the economic crisis and the impact it may have on public health care and the target population. At this point, there is limited research on how the agencies and medically indigent women will be affected. Summary This introductory chapter outlined the issues surrounding the 2009-2010 budget crisis and its direct impact on Sacramento’s medically indigent women. It indicated that the purpose of the study focused on exploring the effects of the budget crisis on women’s health. The next chapter broadens the base towards understanding the crisis situation through a pertinent review of the literature on the given topic. 9 Chapter 2 REVIEW OF THE LITERATURE Introduction On July 28, 2009 California State Governor Arnold Schwarzenegger approved the 2009-2010 fiscal budget. The budget crisis of 2008-2009 was large and more complex than California has endured, but sadly, the consequences of the 2009-2010 budget were more drastic than the previous year’s budget (California Budget Project, May, 2009). This was the largest deficit the state had encountered and the ramifications undoubtedly affected California’s most vulnerable residents (Health Access, 2009). The budget crisis presented challenges and placed vulnerable low-income women’s health at risk. Drastic program changes were made as a result of the $60 billion shortfall. Health care lost over $2 billion and the loss in funding largely impacted the public health care system in California. The enacted cuts eliminated or reduced funding for low income residents, clinics, providers and rural and minority communities (Health Access, 2009). How Does California Compare The Public Policy Institute of California assessed California’s health services by exploring the similarities and differences between California and other states, such as New York, Illinois, Florida and Texas with regard to revenues and expenditures. Data pertaining to the 2001-2002 fiscal year reported that California and these states shared a large diverse population and a large percentage of poor people. Though these states are similar in many ways, the data also revealed a few major differences. One of the 10 biggest reported differences between California and other states was the legislation regarding income taxes and property taxes (Gordon, Alderete, Murphy, Sonstelie, & Zhang, 2007). Proposition 13 California relies on revenues generated mainly through income taxes and less on property taxes, while other states depend heavily on property taxes and less on income taxes (Gordon, et al., 2007). California voters passed Proposition 13 in 1978 placing a cap on property taxes. Property taxes could not exceed one percent of the full cash value of the property (Cal-Tax Research, 1993). According to the California Budget Project (CBP) (2004), California had suffered a steep decline in revenues due to drastic tax cuts in 1991. CBP (May, 2009) also suggested the state had lost approximately $12 billion between 1993 and 2008 from tax cuts (California Budget Project, May, 2009). In essence, the decrease in income taxes and property taxes likely contributed to California’s economic crisis. With the rise in unemployment, many people have lost their homes. In turn, the housing market has plummeted and property taxes have been on the decline. These factors have created a larger deficit and may play a major role in California’s budget crisis. Medi-Cal Medi-Cal, one of the largest federally funded programs stemming from Medicare, supplies health care to medically indigent women. Medi-Cal has faced major changes as a result of the budget crisis. In order to close the historically massive budget gap of $60 billion, California legislation instituted drastic cuts to health care and Medi-Cal. 11 The 2009-2010 budget called for a decrease in Medi-Cal coverage for nearly two million adults (Health Access, 2009, & California Budget Project, May, 2009). MediCal eligibility, preventative programs such as prenatal care and vaccinations, hospitals and clinics will feel the devastation from the financial breakdown of the Medi-Cal program. California’s recessional economy has intensified the need for public assistance (County Welfare Directors Association of California, California State Association of Counties, 2009, & California Budget Project, May, 2009). For example, as more employees become laid off, they will lose their employer-based coverage. The consequences of this may require the once covered employee to pay the high cost of private health care, seek out public health care or go without until they can hopefully obtain employment that includes health insurance benefits. Payments made to counties for the purposes of reviewing applications and determining Medi-Cal eligibility were considerably reduced by $85.3 million (Health Access, 2009). The reduction in payments will likely impact the number of employees undergoing the application review process. The delay in reviewing the applications may leave more indigent women without health care for longer periods of time. In addition, counties that offer individual assistance to clients with the Medi-Cal application process lost $4.6 million (Health Access, 2009). The decrease in funding will inevitably change the eligibility process for many prospective Medi-Cal recipients. The application process is perplexing and not easily understood. Without the assistance from county employees, many prospective Medi-Cal recipients may feel defeated and overwhelmed by the challenging process. This may inhibit countless applicants from 12 completing the application and obtaining health care. Along with the cuts to Medi-Cal eligibility, preventative programs supported by Medi-Cal funding streams were impacted. Prenatal Care Programs servicing low-income pregnant women may have to reduce the number of clients they serve due to the decrease of Medi-Cal funds. Access for Infants and Mothers (AIM), a program providing low-income pregnant women with prenatal care services lost $4.9 million from tobacco taxes established through Proposition 99 (Health Access, 2009). Not only is the reduction of Medi-Cal funding affecting this program but the revenue streams from Proposition 99 have been on a steady decline since 1989 as tobacco sales decrease and therefore, have not been able to keep up with the financial demand to support the services (Ta & Wulsin, 2005; Kelch, 2005). This will drastically impact the health care needs of women and their unborn children. The Maternal, Child and Adolescent Health (MCAH) grant operates as a financial umbrella to various programs, such as Black Infant Health (BIH), that serve women, children and families. Programs such as these help to educate, provide quality health care and offer resources to low-income and uninsured pregnant women. Resources such as BIH are unique to specific ethnic groups as they strive to provide culturally appropriate services to women and their families. BIH attempts to reduce the disturbing infant mortality rate among African American infants by providing indigent pregnant African American women proper education and health care during their pregnancies (California Health and Human Services Agency, 2009). 13 The 2009 budget slashed nearly $18.5 million from the Maternal, Child and Adolescent Health (MCAH) grant (Health Access, 2009). In addition, the General Fund will not provide funding to the grant which supported 58 counties and three city health departments due to the decrease in state revenues (California Health and Human Services Agency, 2009). These services not only help to achieve proper health for pregnant women by providing preventative health services but also promote a healthy pregnancy to ensure their infants are born healthy. BIH recognizes the importance of family planning and provides education and counseling to their clients to prevent unwanted pregnancies (Partners In Care Foundation, 2009). The BIH program lost $3 million due to the budget crisis (California State Association of Counties, 2009). Resources such as Black Infant Health are culturally competent and highly respected due to their ability to provide specialized services. Prenatal care is crucial in terms of women having a successful pregnancy. Women of all income levels are more likely to develop complications during their pregnancies and deliver at risk infants if they do not engage in prenatal services (Francis et al., 2009). When compared to upper class white women, low income women and women of color have a higher probability of developing complications during their pregnancy and delivering premature, low birth weight infants (Franci, Berger, Giardini, Steinman, & Kim, 2009). The infant mortality rate is also much higher for this population (Francis, et al., 2009). Research suggests that there is an increase in the likelihood of infant mortality, low birth weight and premature birth if the mother does not obtain prenatal care during her pregnancy (Adequacy of prenatal-care utilization -California, 14 1989-1994, 1996). With the establishment of clinics, some pressure from the hospitals is relieved. Clinics play a key role in supporting women’s health with the delivery of its services that are easily accessible to their clients, especially indigent women. Hospitals Public hospitals, also known as safety net hospitals, and private hospitals lost approximately $100 million from cuts to Medi-Cal payments in 2009-2010 (California State Budget, 2009). Many hospitals receive supplemental financial support through the Distressed Hospital Fund (Health Access, 2009). The Distressed Hospital Fund provides financial compensation to hospitals that specifically serve uninsured patients (Health Access, 2009). Nearly 25 percent of women report public hospitals to be one of their sources of care. One percent of women rely on hospitals for their primary source of care (Wyn, Hastert, & Peckham, 2008). As hospitals bear the financial burden from the cutbacks, indigent women relying on emergency services may be impacted. Wait periods may increase and the quality of care may diminish. Furthermore, rural hospitals that frequently act as the sole resource for emergency care to rural communities also lost financial support (Health Access, 2009; California State Budget, 2009). Many lowincome indigent women lack the resources needed to obtain health care. Transportation issues and inadequate income are just two of the many factors hindering indigent women from accessing health care (Health Access, 2009). Clinics play a key role in supporting women’s health and help to relieve some of the pressure from the hospitals. 15 Clinics Community clinics providing programs such as the Expanded Access to Care Program, Rural Health Services Development Program, Seasonal Agricultural and Migratory Workers Program and Indian Health Program are deeply affected by the loss of $35.1 million within the 2009-2010 fiscal year (Health Access, 2009, & California Budget Project, October, 2009). The Expanded Access to Care Program operates in at least 535 clinics and provides low-income families with preventative care such as primary health and dental care. This program lost $13.5 million under the 2009-2010 budget (Health Access, 2009, & California Budget Project, October, 2009). The Rural Health Services Development Program provides funding to rural primary care centers to assist with primary and preventative health services. This program helps to support approximately 109 clinics and provides care to patients in rural communities who are typically older and poorer than residents residing in urban communities (Health Access, 2009; California Budget Project, October, 2009; California Department of Health Care Services, 2007). Unlike urban communities, residents residing in rural areas are often at a disadvantage in terms of access to health care. Health care resources are typically limited in rural communities and the climate and location of the rural areas play a factor in the supply of physicians (California Department of Health Care Services, 2007). This program lost $8.2 million in the 2009-2010 fiscal year (Health Access, 2009, & California Budget Project, October, 2009, & California Department of Health Care Services, 2007). 16 Seventy-four clinics participate in the Seasonal Agricultural and Migratory Workers Program. This program provides care to agricultural workers and lost $6.9 million (Health Access, 2009, & California Budget Project, October, 2009). Lastly, the Indian Health Program provides services and aims to improve the health of over 600,000 American Indians and American Natives in at least 75 clinics. This program lost $6.5 million (Health Access, 2009, & California Budget Project, October, 2009). Primary and preventative health care is crucial to women’s health and it is imperative that the state of California provide resources to assist in funding programs that meet the needs of uninsured women of all ethnicities. California is an exceptional state when it comes to welcoming diversity; however cuts to culturally appropriate services will impact this population in a negative way. The clinics may be financially burdened by the crisis but the women will have to bear the uncertainty surrounding their health. As preventative services diminish in an effort to sustain the budgetary needs, the quality of women’s health will become more unpredictable. Preventative care for women’s health is an equally important health care service. Preventative Care Preventative services generally consist of prenatal care as well as postnatal care, services surrounding postpartum and immunization. If preventative services are cut, the state will undoubtedly foster a reactive system that will be more costly in the long run. If women are not able to routinely access primary health care, chronic health conditions will arise. The cost of treatment for chronic conditions outweighs the cost of preventative care. In a climate such as the one facing California, the demands for 17 services will significantly increase. It is likely that many women will lose their jobs and their employee-based health care. Unemployed women will depend upon public health agencies for their health care needs (County Welfare Directors Association of California & California State Association of Counties, 2009). Immunizations play a key role in preventative care and are crucial to the health of medically indigent women. Preventative care relies much on the role of immunization services for women, as it is crucial to health maintenance of medically indigent women. Immunization Services Immunization services lost approximately $18 million due to budget cuts. This service aids in preventing and controlling the spread of communicable diseases (Health Access, 2009, & California Health and Human Services Agency, 2009). Immunizations are crucial to medically underserved women. Cuts to this service may be detrimental to single mothers who are working and raising children. Annual influenza immunizations may prevent single mothers on a low, fixed income from missing work or having to pay to go see a doctor. Cuts to immunization services will not only jeopardize women’s health but it will also cost the state more money to treat women when they become ill because they were not able to access routine immunizations. Programs such as Title X assist low-income women in obtaining preventative care and other health related services. Title X Since the 1970’s, indigent women have relied on Title X funding for services such as birth control, pelvic examinations, cancer screening, breast examinations and pap smear 18 testing. Former President Nixon first introduced the federally funded program in the 1970’s encouraging low-income Americans to participate in family planning (Nelson, 2005; 2009). Funding from this program provides services such as physical examinations, cancer screening, testing for HIV and other sexually transmitted diseases, blood pressure and cholesterol checks and pregnancy testing for poor women (Nelson, 2005; 2009). In the last two decades, health centers that were partially funded through the Title X program have avoided approximately 20 million unplanned pregnancies and nine million abortions, aided in preventing 5.5 million adolescent pregnancies and conducted 54.4 million breast exams along with 57.3 million Pap smear tests which prompted the early detection of at least 55,000 cases of cervical cancer (Nelson, 2005; 2009). Title X funding plays a vital role in providing family planning services to many lowincome women (Dalton, Jacobson, Berson-Grand, & Weisman, 2005). Reducing Title X funding may increase the risk for unintended pregnancies, sexually transmitted diseases (STD’s) and cancer (Dalton, Jacobson, Berson-Grand, & Weisman, 2005; Nelson, 2005; 2009). Services are offered in many facets of the health care system including health departments, community centers and private centers (Dalton, Jacobson, Berson-Grand, & Weisman, 2005). Clinics are often times the main source of care for reproductive health services. They provide many of the basic services specific to women and are critically important to indigent women who reside in rural communities. In 2006, six out of ten clinics were partially funded by Title X (Frost, J., Sonfield, A., Benson-Gold, R., Ahmed, F., 2006). 19 Clinics receiving Title X funding are able to make improvements to their facilities, educate their communities through outreach services and create programs that will attract clients who are not already receiving family planning services. Though many women are fortunate to receive such services, there are still many more women who are left without them. Some of these obstacles include lack of health insurance, increases in health care costs and changes to the system of care, such as the eligibility criteria (Frost, Ranjit, Manzella, Darroch, & Audam, 2001). Unfortunately, the funding for the various programs has not been able to withstand the demand for services. With the increasing numbers of uninsured low-income women in need of family planning services and the increase of cost for contraception, clinics are struggling to provide adequate services. Funding for family planning has been steadily decreasing each year since 2002. As of 2007, the Title X program was under funded by $442 million (Dalton, Jacobson, Berson-Grand, & Weisman, 2005; 2009). Clinics that operate within California’s safety net will be affected by the reduced funding. California’s Safety Net Uninsured and low-income women have historically relied on public clinics and hospitals to provide care when needed. California’s safety net consists of community centers and clinics, public hospitals, for-profit and non-profit clinics and provides care at little or no cost to millions of women residing in California each year (Gatchell, Lavarreda, & Ponce, 2007; Wyn, Hastert, & Peckham, 2008; Saviano, Esq., 2009 ). 20 Public clinics and hospitals have banned together to create a safety-net that would provide needed services to this population. The safety net provides preventative services and routine care for long standing illnesses to low-income and uninsured women who vary in age, ethnicity, race, culture, language, family size, income, health need and social status. Much of the funding that supports the safety net stems from Medi-Cal reimbursement and unfortunately, the budget crisis includes a drastic reduction in Medi-Cal funding. Consequently, the safety net is financially weakening and will most likely be unable to provide the extent of services that were offered before the reduction in Medi-Cal funding. Given the fact that these services are going to be impacted, there will likely be an increase in demand for emergency care, which is ultimately more costly to provide (California Association of Public Hospitals and Health Systems, 2009). In essence, ignoring the problem will only exasperate the issue. Besides the basic preventative health care needs, women have specialty needs that may routinely arise and require medical attention such as gynecology services, reproduction and prenatal care, pregnancy care, pap smear tests and mammograms, acute and chronic disorders such as, reproductive disorders, arthritis, diabetes, heart disease, high blood pressure and cancer (Kjerulff, Frick, Rhoades, & Hollenbeak, 2007). Women who typically utilize clinics for services may develop chronic medical conditions over time and will have no choice but to seek out medical attention through emergency service at hospitals. This places hospitals in a vulnerable position 21 financially as they will ultimately endure the high cost of treatment services without adequate reimbursement funding from Medi-Cal. Many women who utilize the safety-net have incomes 200 percent below the federal poverty level (Wyn, & Ojeda, 2003; Wyn, 2006; Holtby, Zahnd, Chia, Lordi, Grant, & Rao, 2008). Some of the reasons women are uninsured include lack of income, job loss, employer does not offer insurance, recent job change, citizenship or immigrant status or they do not qualify for public health services (Wyn, & Ojeda, 2003). Other barriers that inhibit indigent women from obtaining health insurance include lack of transportation, communication barriers, limited services, lengthy waiting periods, odd hours of operation at the clinics and patient’s uneasiness about their immigrant status (Family PACT “Increasing access to health services”). Women in Need In 2001the California Health Interview Survey (CHIS) (2001) investigated the barriers which low-income non-elderly women face when trying to access health care (Wyn, & Ojeda, 2003). The survey’s aim was to explore the nature of the respondents’ insurance coverage and their current health condition. CHIS randomly selected 55,428 households from each county in California to participate in their study. They obtained the data through random digital telephone surveys. One adult, one adolescent ages 1217 and one child under age 12 in each household were surveyed. The interviews which were done in English, Spanish, Chinese (Mandarin and Cantonese dialects), Vietnamese, Korean and Khmer took place between November 2000 and September 2001. The collected data was then compared to the 2000 Census. 22 Wyn and Ojeda (2003) reported information based on data collected by CHIS regarding 25,558 women between the ages of 18-64. Their analysis of the data showed that Latina women are almost three times more likely to be uninsured than white women and had the highest probability of being uninsured compared to other ethnic groups (Wyn, Hastert, & Peckham, 2008; Wyn, & Ojeda, 2003; Holtby, Zahnd, Chia, Lordi, Grant, & Rao, 2008; Wyn, 2006; Wyn, Hasert, & Peckham, 2008; “Increasing access to health services”; Chabot, Lewis, & Thiel de Bocanegra, 2009). Latina, Asian, American Indian, and African-American women were all more likely to have fair to poor health and as a result have a higher need of medical care than white women. Single women are more susceptible to being uninsured than married women. Younger women between the ages of 18-29 are more likely to be uninsured. The authors stated this may be true due to the fact that this age group is least likely to be covered through employment. The majority of uninsured women have family incomes at least 200 percent below the federal poverty level (Wyn, Hastert, & Peckham, 2008; Wyn, & Ojeda, 2003; Holtby, Zahnd, Chia, Lordi, Grant, & Rao, 2008; Wyn, 2006; Wyn, Hasert, & Peckham, 2008; “Increasing access to health services”; Chabot, Lewis, & Thiel de Bocanegra, 2009). Regarding specific ethnic groups, foreign born Latina women were more likely to lack coverage than U.S. born Latina women. Mexicans and Central Americans were more likely to be uninsured than other Latino group members and Korean women were more at risk than other Asian group members to be uninsured (Holtby, Zahnd, Chia, Lordi, Grant, & Rao, 2008). Just like the unmarried women, the elderly women who 23 may be widows also risk being neglected and badly affected in their health care by the 2009-2010 budget crisis. Elderly Women The California Endowment Center for Healthy Families funded a report on older women and discussed the numerous obstacles and challenges that older and elderly women face trying to access medical care while living in poverty (Estes, Goldberg, & Fineman, 2007). As stated earlier, older and elderly women of color are more likely to experience barriers to health care than white women (Estes, Goldberg, & Fineman, 2007). Low-income older women ages 55-64 are reportedly at a greater risk for having untreated health problems (Estes, Goldberg, & Fineman, 2007). This age group tends to be in more need of health care due to health complications such as diabetes and hypertension that tend to arise at an older age (Estes, Goldberg, & Fineman, 2007). With a higher risk of medical complications, rising health costs and high costs of prescriptions, many women in this age group are left untreated and vulnerable to major health issues. Cuts to programs and agencies that provide services to this population will only create more health related problems for older indigent women. Women tend to need preventative care and treatment as they increase in age. Agencies such as Family PACT and Every Woman Counts provide specialized services such as treatment for sexually transmitted diseases, cervical dysplasia and screening for breast cancer for older women but there is a continuing need for clinics that provide primary care and specialize in women’s basic health needs. 24 Another age group at risk is women 65 years and older. Many of these women will receive some sort of health insurance through Medicare as they become eligible by age, but for elderly women who are uninsured with little financial resources they are anguished by the financial burden to cover expenses that are not covered under Medicare. A majority of women in this age group do not have the financial security to obtain private health care and they must rely on the public health care system to support their medical needs. Unfortunately, our system is not stable enough to help elderly women and often times their medical needs go untreated. If this age group does not receive proper medical care, by the time they become eligible for Medicare the state will be spending more money in treatment costs for their untreated medical issues. At this point, California is ill equipped to respond to current demands. The 20092010 budget called for deep cuts to Medi-cal and these cuts will likely impact the aging population as well. As the older population grows, more and more elderly women are going to be in need of medical care. By cutting programs and services, reducing staff levels and ultimately closing clinics, California is relaying the message that the state cannot care for the women who need these services (Estes, Goldberg, & Fineman, 2007). Both the older and elderly populations are in dire need of preventative services. One of the most common and important preventative service needed by this vulnerable population is the annual influenza vaccine (Estes, Goldberg, & Fineman, 2007). As people age, their immune systems can weaken. Older women rely heavily on the annual influenza vaccine to prevent illness and possibly death. Older women with only Medi- 25 Cal coverage are at the greatest risk for not receiving the vaccination. It is sad to think that one simple procedure such as getting the flu vaccination is restricted from so many just because our government does not view public health as a priority. Another preventative service that older women are in need of is routine mammogram screening. Nearly half of uninsured women age 55-64 residing in California were not screened for breast cancer compared to less than 12 percent of similarly aged insured women (Estes, Goldberg, & Fineman, 2007). This statistic clearly portrays the risks uninsured women face when they do not have access to routine preventative care. If uninsured women are not vaccinated and provided treatment for basic and routine care they may utilize the hospitals for emergency services when they become ill (Estes, Goldberg, & Fineman, 2007). This is just one of the many examples of how the lack of preventative care may ultimately lead to more costly treatments and procedures in the long run. Sacramento County is at risk and may have to endure these consequences as well. Sacramento Demographics As of January 2009, Sacramento County comprised of more than 1.4 million residents (County of Sacramento, California, 2010). Slightly more than half of the residents were female (U.S. Census Bureau: State and County QuickFacts, 2009). According to 2007 U.S. Census Bureau statistics, nearly 63 percent of the population was between the ages 18-64 years old and 11.1 percent was 65 years or older (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). 26 Sacramento is one of the most diverse counties in California in terms of its racial and ethnic make-up (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). The ethnic population consisted of 59.7 percent White non Latino, 6.4 percent AfricanAmerican non-Latino, 18.9 percent Latino, 10.4 percent Asian non-Latino, 4.6 percent other race non-Latino, 15.1 percent foreign-born and 28.5 limited/ non English speaking adults (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). As of 2005, 13.6 percent of Sacramento’s residents were below the federal poverty line (County Welfare Directors Association of California and California State Association of Counties, 2009). Approximately 25 percent reported incomes at 200 percent below the federal poverty line and as of January 2009 the unemployment rate was 10.7 percent (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). Though the 10.7 percent unemployment rate may seem fairly steep, Sacramento ranks somewhat lower than the state average of 10.9 percent (Employment Development Department, 2009; Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). Sacramento’s median household income was approximately $57 thousand a year as of 2007 compared to the state’s median household income of nearly $60 thousand a year (U.S. Census Bureau: State and County QuickFacts, 2009). Nearly a quarter of Sacramento residents have obtained higher education of at least a Bachelor’s degree compared to the state average of 26 percent (U.S. Census Bureau: State and County QuickFacts, 2009). Sacramento ranks slightly lower than the state average on education status and income level (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). 27 Statistics for health insurance consisted of the following; 66.8 percent of the Sacramento residents had private insurance; 9.4 percent had Medicare, 15.1 percent had Medi-Cal or relied on other programs; and 8.6 percent were uninsured (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). Approximately 12 percent of Sacramento residents reported fair/poor health status (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). Sacramento residents reported their health to be better on average than California residents as a whole (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). Residents in Sacramento are less likely to be uninsured or have Medi-Cal coverage and are more likely to have private health insurance than other residents throughout California. Between the diverse ethnic composition, educational and income levels, slightly lower than state average unemployment rate and amount of residents who have insurance Sacramento appears to be a desirable place to live. Despite the positives, there is still room for improvement. The need for a county hospital is highlighted in the possible influx of people for emergency care as subsidies to various health care programs are cut. This becomes another pressure point for the California health care system. Emergency Care As legislators and county officials attempt to restore the budget, the demand for emergency care continues to rise in Sacramento. For many years, Sacramento County contracted with UC Davis to provide health care for medically indigent patients (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). In 2008 Sacramento County, 28 in hopes of reducing county costs, sought out a third party administrator to provide services for medically needy patients and terminated their contract with UC Davis (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). Though the county anticipated a savings, the new contract had a negative impact on the budget (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). County officials underestimated the cost of integrating a third party administrator. The county estimated the average cost for health services for one month and annualized that cost to get an approximate figure for their annual budget. Faulty estimates placed an additional financial burden on the budget and strain on the county. While the county makes attempts to rectify the contract issue, patients will continue to be served and will benefit from the additional choices in care providers. However, a solution to mend the budgetary issues has not yet materialized (Lewis, 2009). If the budget is not stabilized the quality of care may be jeopardized, services may be cut, access to care may be restricted and indigent women may be vulnerable to significant health issues. Sacramento County Clinics In February 2009, the county closed three part-time clinics, leaving three clinics available for Sacramento’s medically indigent women (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). As the number of clinics decrease, the need for care grows. In 2002, the Office of Statewide Health Planning and Development (OSHPD) reported that 70 percent of the uninsured population who utilized community clinics was women (Ta and Wulsin, 2005). With minimal staffing levels and limited 29 service hours, many indigent women will be forced to seek out care through the emergency department. Emergency room staff will likely see an increase in case load and chronic health related issues. Sacramento Health Care Improvement Project Numerous attempts have been made to address the dilemmas surrounding public health. Various organizations, hospitals and clinics joined forces in 2007 through Sacramento Health Care Improvement Project (SHIP) to reform Sacramento’s safety net (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). One of SHIP’s goals is to recruit and retain specialized physicians within community clinics to serve indigent residents who are in need of specialty care. Other goals include making services more accessible, expanding clients’ options for providers and stabilizing the safety-net system by providing consistent care for the medically needy (Tu, Felland, Ginsburg, Liebhaber, Cohen, & Kemper, 2009). Programs such as SHIP offer hope to the medically indigent population through collaboration and advocacy. Effective changes occur through a team approach and may have long standing effects. SHIP has the opportunity to make significant changes in Sacramento’s public health care system and ultimately the legislature, paving the way for other counties and states. Summary This literature review attempted to broaden the knowledge base of the problem in health care for the medically indigent women in Sacramento County with a review of facts and figures based on evidence-based research. The review of literature attempts to portray the adverse impact of budget cuts on health care of medically indigent women. 30 The literature presents the issues and offers the reader a better understanding of the problem. The review covers a wide spectrum of women’s health care such as prenatal care to care in hospitals and clinics, from preventative care to immunization services. Moreover, the clients who are affected range from the women in need to elderly women. With an overarching impact on the target population, there could emerge new demographics at the Sacramento County with an abundance of clients in need of emergency care. At this time, it is unclear as to the magnitude of the ramifications that will materialize once this storm settles. After presenting a brief background on California’s economic crisis and the budget cuts on various social services programs, the chapter focused on the different programs that have been negatively impacted. The massive reductions to Medi-Cal gradually led to the closure or reduction of health care programs and medical institutions that serve medically indigent women. Prenatal care, preventative care, and immunization services are basic health care needs. Hospitals and clinics are important institutions where health care services can be provided (Saviano, 2009 & Frost, et al., 2001). By attending to medically indigent women through maintenance of the programs and services for their health care needs, the benefits may outweigh the costs in the long run. Otherwise, lacking in these types of services, emergency care in hospitals becomes the main alternative. The effect could be counterproductive in the long run. Indigent uninsured women are in desperate need of health care. Their needs are magnified during economic hardships such as the current budget crisis. Many women 31 may have relied on employer based insurance or Medi-Cal funding in order to get their health needs met but in a recessional economy where unemployment is high and social services are being slashed, women are forced to obtain health care through community based clinics and hospitals. It is time for our system to take a proactive stance and form a budget that is conducive to times such as this. Through this qualitative research design, the researcher hopes to touch base with the administrators representing health care agencies and the clients of health care services. It is interesting to verify from their concrete life experiences how the budget cuts impact them and the quality of their life. Their insights and voices could help the reader and the policy makers in seeing a clearer picture of the situation. The review of literature which anticipates the adverse impact of budget cuts on health care of women tends to clarify the research problem in this study. The plummeting economy has played a major role in the state budget deficit. The loss of revenues from sales and property taxes force Sacramento County to make complex and grueling decisions that affect its residents (California Budget Project, 2004; California Budget Project, May, 2009; Gordon et al., 2007). It is during times of crisis that social service programs should be the first line of defense. It is hard to believe that an industrialized country of this magnitude cannot provide its residents with comprehensive public health care. 32 Chapter 3 METHODS Introduction The purpose of this chapter is to discuss the methods used to conduct this research. To describe the methodology, this chapter contains subsections consisting of collaborative elements, research design, variables, participants, sampling plan, instrumentation, data collection, data analysis, and human subjects. Collaborative Elements This researcher along with two other researchers shared a common research subject but differed in their subtopic interests. One researcher focused on undocumented immigrants. The other centered the interest on children ages zero to five. This researcher studied the impact of the budget crisis on medically indigent women. The researchers collaborated throughout the project. They developed a common survey that contained questions relevant for each selected population. Any crossover of subject matter was due to the sharing of research data. Each researcher interviewed representatives coming from a total of 12 agencies. Data reported in this study reflect pertinent information which was obtained by the three researchers, not only by this researcher, concerning women’s health. Research Design This research study is qualitative and exploratory in its design. A qualitative study allows for a descriptive analysis of the topic and further exploration of its subsets 33 particularly through contacts with participants who share their experiential narratives. Information for the study was obtained through interviews with target participants with the use of questionnaires (Appendix C and D). Two sets of questionnaires were utilized that were specific to the subjects being interviewed. One set with 38 questions pertaining to the health agency was used for health administrators (Appendix C). The other set with 26 questions was used for the clients (Appendix D) on their knowledge and views on the budget cuts to public health. Measurements The instrument designed for agency administrators employed 36 open-ended qualitative questions and two closed-ended questions. The questions intended to measure the effects of the 2009-2010 budget crisis on the agencies. Five of the said questions were ordinal and inquired about the demographics of the agency. The questionnaire aimed to measure the methods utilized by the agencies in order to continue serving clients. It examined the means by which agencies have adjusted their programs in order to continue to serve their clients. Furthermore, this researcher measured the financial impact of the crisis on the agencies in their ability to achieve their objectives. The instrument of measurement designed for the clients employed 17 open-ended qualitative questions, four nominal questions, and five ordinal questions. These questions intended to measure the types of health care programs which the client utilized, the challenges they faced when accessing services and their experience with regard to the change in services. 34 Sampling Plan The agencies identified for this study were selected from the list of the Community Services Directory (2007) which was published by the Community Services Planning Council of Sacramento. A stratified sampling method was utilized to determine which agencies would participate. Every other agency from the published list of health agencies in the Community Services Directory was chosen and contacted via telephone to inquire about whether the agency fit the criteria of providing services to low-income populations, specifically women, and of receiving county/state funding. There were not enough agencies available for interviews after the first sample as many agencies were no longer operating, did not fit the criteria or were not available for interviews due to personal reasons such as lack of staff or time. The list was exhausted and in the end 12 agencies were selected based on the set criteria and the availability of the administrators. During the telephone calls with the various agencies, the researchers initially explained the purpose of the study being conducted and asked whether a Director, Administrator or Secretary might be available and interested to be interviewed for the study. Agency representatives were chosen based on the specific criteria. They should have worked closely with the clients and had substantial knowledge about the services offered by the agency, the history of agency or its funding streams. Instrumentation The instruments employed were two sets of questionnaires, one for health administrators consisting of 38 questions, and the other for clients with 26 questions. 35 The questionnaire for the administrators focused on the effects of the 2009-2010 budget crisis on the agency, such as program cuts, changes in services, staff reductions, and changes in the hours of operations. The questionnaire for the clients asked basic demographic questions and inquired about the client’s perception of public health care and how the budget crisis had affected their health care needs. The three researchers formulated the questionnaires in a collaborative work. Data Collection This researcher conducted interviews with health administrators from local public health agencies over the telephone and through face to face interviews with the use of the questionnaire specific to administrators (Appendix C). Agencies were contacted, and interview times were scheduled. Some of the interviews dates were more difficult to establish than others due to conflicting schedules between the researchers and participants. The interviews averaged one and a half hours to two hours. The participants were initially briefed about the study. Informed consent forms (Appendix B) were presented to them for signing which indicated their consent to participate voluntarily in the research study, their right to terminate the interview in any case, and the assurance of safeguarding the confidentiality of their responses to the questions. Data Analysis Data obtained from the interviews were analyzed in a collaborative manner by the three researchers. Each researcher sorted out the information which pertained to one’s 36 particular subtopic of interest, namely, on undocumented immigrants, on children ages zero to five, and on women’s health. Human Subjects An important element considered in this study was a careful consideration of the human subjects or the participants in the research work. After having determined the topic for the study and the intended human subjects, the researchers presented their proposal and application for approval of human subjects to the Division of Social Work’s Human Subjects Review Committee at California State University, Sacramento. The application was reviewed and subsequently approved by the Review Committee with its approval number 09-10-031 (Appendix A). The Committee determined this study to be of minimal risk to the participants. The participants who were interviewed over the phone verbally consented to participate in the study. During the face to face interviews the informed consent form was presented to each of them for signing. The consent form indicated the participant’s willingness to voluntarily participate in the study research, their right to terminate the interview and the assurance of keeping the responses to the questions asked confidential. Interviews began once a signed consent form from each participant had been collected. Separate interview questions for each participant were used and signed consent forms were kept separate from the interview form by placing the consent forms in one envelope and the completed interview forms in another. There was not any identifying information on the interview form. Therefore, each participant was able to 37 opt out of the interview at any time without penalty. The participant’s information was stored in a locked cabinet in the researcher’s place of residence. The researcher was the only one who had access to the secured cabinet. Once the thesis is submitted and accepted by the California State University, Sacramento Office of Graduate Studies, all the collected data for the research project will be shredded and disposed of. Summary This chapter of the research study presented the methods used in identifying the topic and the selection of the participants with the approval of the human subjects by the Division of Social Work’s Review Committee. As a qualitative and exploratory study, it explored the impacts of the 2009-2010 California budget crisis on public health and medically indigent women based on the responses of the participants through telephone and face to face interviews with the selected public health administrators and clients within those agencies. Two sets of questions were directed to the specific group in eliciting desired responses. In the next chapter, the findings from these interviews are to be presented for subsequent analysis of the gathered data. 38 Chapter 4 FINDINGS Introduction This chapter presents the findings on the impacts of the budget crisis in California on public health agencies that provide services to medically indigent women. As mentioned previously, three researchers interviewed 12 participants who represented 12 health agencies that fit the two key categories set for the study. The agencies of the participants provided services to low-income populations, especially women, and they received state and/or county funding. The agencies were chosen from the Community Services Directory. This researcher focused on the impacts of the budget crisis on medically indigent women. Interestingly, from the experiential narratives of the participants, four major themes affecting the women with trailing effects on the employees and the agencies surfaced. The themes included longer wait periods for the clients, increased caseloads for the employees, adverse impacts on preventative services and the long-term effects of the budget crisis itself on the medically indigent population. Demographics Two types of participants are prominent here: those who focused on the political aspects of delivering public health care to the medically indigent population, and those who delivered direct services to the medically indigent clients. There were initially 14 prospective participants in the list of respondents. They represented a broad range of 39 service providers as well as service recipients. The 14 interviewees included three Executive Directors, two Program Managers, a Clinic Coordinator/Professor, a Licensed Clinical Social Worker, a Director of Client Services, a Public Affairs Director, a Chief Executive Officer, a Practice Manager, a Development Director, and two clients. The two clients were both women aged 61 years and above. One reported being of White/Caucasian descent, while the other reported being of African American/Black descent. After interviewing the two clients, the three researchers discussed the results of their interviews with one another and decided that the clients did not meet the criteria. One client had federal insurance that was secured while she was working for the state. The other client reported that she had insurance through SSI and Medi-Cal. She did not report any noticeable changes to her health care or prescriptions since the budget crisis. With the two clients having been excluded, the final number of research participants was reduced to 12. The questionnaire that was used may be found in Appendix B. Presentation of the Findings The findings from the research study are presented in the sections below and focused on the impacts of the budget crisis on the medically indigent women as reported by the participant-representatives of the agencies. The interview results are grouped together into themes. Each respondent was respectively coded with an alphabetical letter. Though the name of the participating agencies will remain confidential, there will be an attempt to portray the impacts on the clients and agencies by describing the services and population in which each agency serves. 40 Longer Wait Periods The participants were asked about the quality of care which the patients received in the context of the economic crisis which the County is experiencing. Question # 7 in the questionnaire was presented to the respondents. Interestingly, 67% of the participants responded that a clear adverse impact of the crisis on the clients was the longer wait periods. One respondent, a Clinic Coordinator/Professor noted that in their agency, their waiting list numbered 300-400 clients eager to get services. In another agency, a Project Manager reported that with these longer wait periods clinics and Emergency Departments of hospitals also accumulate long waiting periods. To highlight the severity of the problem a Program Manager informed the researchers that in their agency, previously patients were seen by an ear/nose/throat (ENT) doctor within four weeks. With the crisis, the wait time has considerably increased to eight months. Moreover, the respondent added that this intense wait period led to “losing patients” in the process. For instance, it happened that once the patient reached the top of the list to be seen, the agency was unable to contact the patient any longer. The agency was unaware whether the patient had moved, changed their number or sought out services elsewhere. One agency representative reported their clinics were “over crowded.” He correlated the increase in caseload with longer wait periods. A coping strategy by one agency that was reported was to provide health services for a set amount of people each day. Unfortunately, even a coping strategy such as this has a direct effect on the wait time 41 clients have to endure before they are seen. Depending on the nature and extent of their illnesses, clients’ health may have been jeopardized by the lengthy wait periods. An Executive Director for an agency that provided prenatal and gynecological services to women and teens reported that their agency “had to close for a few days in order to save money.” The patients were thus affected by the limited hours of operation and had to endure longer wait periods to receive care. A Public Affairs Director at an agency that provides reproductive health, prenatal care, primary care services and health education, reported that patients had to wait longer to get an appointment and that it had become significantly difficult to obtain an appointment. Additionally, the respondent reported that the increase in patients requiring services and the inability to hire more staff had also contributed to the lengthy wait periods. Another Executive Director of an agency that advocated to the Legislature and policy makers on behalf of people in need of health care also reported that their agency had seen an increase in wait periods for people seeking medical services within the community. Increased Caseload Question # 6 pertained to how the agency’s program, employees or clients have been affected by California’s current budget crisis. Of the 12 respondents, two-thirds (8) reported an increase in caseloads. One agency that mainly provided services for the undocumented population believed they had seen a remarkable increase in the number of clients because of the fact that more people were losing their jobs, and subsequently, 42 their insurance. The agency noted that the increase in the number of their clients who were mainly in the undocumented population stemmed from the fact that other public health clinics had cut their services that were previously offered to undocumented immigrants. It left these clients nowhere to go but to this particular agency whose services were primarily aimed towards clientele who were undocumented. In a dominolike effect, there had been an increase in the number of undocumented clients at the agency because former and current clients were referring other undocumented individuals to this agency because of its commitment and objective to serve them. Another agency that provided services primarily to low-income women reported that more women who lost their insurance benefits tended to travel from other counties to obtain services in Sacramento. With this movement of new clients, the agency observed another possible reason for the increase in the caseloads of clients whose origin have gone beyond the boundaries of the Sacramento County. Another respondent, a Chief Executive Officer, reported that their agency’s increase in medically indigent clients rose up to 5% in the last three months. An Executive Director of an agency which provided health services to women and teens reported that they had seen an increase in the number of clients who were Medi-Cal eligible. Furthermore, the respondent reported that with the increase in the number of clients, there was a corresponding rise in the number of their employees’ caseloads which, in effect, has caused more stress for the employees as they were required to work more efficiently. On the other hand, a Public Affairs Director reported that the increased caseload has motivated their employees to work “harder and faster”. 43 One agency that provided physical and mental health services to the HIV and AIDS population has also seen an increase in the number of clients requesting HIV/STD testing. The Director of Client Services also reported that with the increase of clients there was also an increased demand by clients for mental health treatment. This noticeable increase in clients and clientele demands for treatment was attested by an agency that recruited and placed volunteer physicians within the community to do general and specific medical practices. The Program Manager of this agency associated this phenomenon with the loss in county funding and the closures of county clinics. Lastly, the representative of an agency that supported and advocated for public health at the local and state levels reported that they too have seen an increase in caseload as county clinics have closed. The respondent stated that the clinics that remained open were becoming “over crowded” and “hundreds of people were being turned away.” With the reported information on case overloads by agencies, respondents indicated that a number of medically indigent women were turned away. As more women are denied the needed services, the risk of developing chronic health conditions may intensify and prove to be fatal. As medically indigent women seek out other solutions to get their medical needs met, emergency care costs may increase and become expensive and demanding on the state budgetary needs. The intended cost-benefit moves through the enacted budget may be more expensive in the long run and result in the loss of innocent lives. 44 Of the four agencies (33%) that did not see an increase in their caseloads, one respondent stated that they were not affected by the budget crisis because their funding streams were not linked to funds that were getting cut by the budget. The other three agencies specialized in specific care services compared to those agencies which provided more general services to increasing number of clients. Cuts to Preventative Services Sixty-seven percent (8 out of 12) of the respondents reported that clients were being impacted by the cuts to preventative services when asked if client eligibility had changed (Question #3), if services may have been eliminated or reduced due to the budget crisis (Question #23), and how female clients may have been impacted by the elimination or reduction of services (Question #24). Half of these respondents (4) reported that their female clients could no longer obtain mammogram tests as preventative services unless they were 50 years old or older due to the drastic cuts to public health. One reporting agency indicated that another qualification to be able to obtain such a test must be a doctor’s notation of the client’s concerns, such as a lump or mass in the breast. With such a requirement, the agency representative reported that the employees felt “helpless” when they were not able to provide preventative services. Another respondent indicated the inconsistencies in preventative services which their agency was allowed to provide, for instance, as seen in cases of birth control and mammogram tests. She remarked, saying, “Free birth control is great but you cannot discriminate between breast exams.” She added that for her, birth control was just as important as mammograms, and that she noted her 45 alarming concern about the consequences that this new policy would have on medically indigent women. The participant from an agency which specialized in attending to HIV and AIDS patients commented, “Prevention is hugely important.” For her, prevention was a significant key to decreasing the risk in the transmission of HIV virus. She also reported that indigent women were the “most reluctant group to seek out services.” On the other hand, those who sought out services at her agency received gynecology services as well as free testing. The loss of preventative services impacted undocumented immigrants as well since they could only receive care for communicable diseases. Unfortunately, since other services for the undocumented clients have been cut off with the closure of the clinics, the participant from the agency could not refer this population to other clinics. A further alarming revelation from this respondent was that among minority ethnic groups, “Hispanics move to AIDS faster than any other group because they cannot get care.” Whether this trend was largely due to the fear that many feel when trying to access services or because there were no longer services available for this population is an interesting question to ask. The respondent reported that the agency had a surplus in its budget and was therefore able to continue offering preventative services but it was unsure as to what the next year’s budget would offer, especially because the agency expected deeper cuts. Four respondents did not report any concerns over preventative services. Three of these agencies provided specialized services and the other agency stated that it was doing well and was “currently growing” as it had recently hired employees and 46 relocated to a nicer building. This agency was recently accepted as a Federally Qualified Health Center (FQHC) and was entitled to a wider range of grant funding and enhanced reimbursement rates from Medicare and Medicaid. The respondent reported that this new status allowed the agency to serve more clients without feeling the effects of the budget crisis. Luckily, its clients could continue to benefit from this agency’s services. Long Term Effects of the Budget Crisis Two important questions that were asked of the respondents were these: What may be the long-term effects of the state’s current tightening of the budget in relation to health care (Question # 8 ) and How may women’s health be impacted in the long run if the services are cut (Question # 30)? One respondent expressed fear at the likelihood of their agency being closed. Three other respondents argued that the clinics and Emergency Department at the hospitals would suffer the most, and that the public would have to supplement the rising costs of social service programs, essentially through an increase in taxes. Another respondent indicated that as people lose their jobs and employer-based insurance plans, they would have to “look outside the typical medical model for help.” One respondent feared that the current situation would get worse before it could get better. Another respondent assumed that the decrease in preventative services would increase the need for Emergency Room services. This may trigger more consequent problems, including costs and quality of services. The agency that provided services mainly for undocumented immigrants strongly believed that more people would become 47 sick and that health conditions would get worse due to the lack of services offered to this population. The representative of the agency that advocated for and supported public health on the local and state levels noted the different adverse effects on the health care system. He specified the negative impacts as the following; an increasingly ineffective system of care in regards to the health care system, the Medi-Cal application process would become more rigorous, and that the homeless would increasingly have difficulties in accessing health care. The participant from the agency that specialized in HIV and AIDS services feared that their clinic would be forced to provide more generalized services and ultimately lose their specialty component. One respondent who reported that their agency did well despite the harsh economic conditions advised by saying, “Clinic administrators need to learn how to be business savvy.” He recommended that clinics should seek out other funding streams, such as grants and donations. Summary Overall, the representatives of agencies that were interviewed reported that they were acutely aware of the budget crisis and the impact it has had on public health agencies in Sacramento. The common themes among the respondents consisted of longer wait periods among clients, increased caseloads for the employees, considerable cuts to preventative services, and adverse long term effects on health care. 48 Two-thirds of the respondents (8 out of 12) reported that their clients had experienced longer wait periods at their agency due to the closing of other clinics and the increase in the number of people without private health insurance. As to case overloads, two-thirds of the respondents replied that their caseloads had increased significantly. One unexpected finding from all the participants was that the quality of care in services has not diminished, despite the major adjustments experienced by the employees. Many reported that their employees had to work more diligently to meet the needs of these clients but that the quality of care remained the same. Cuts to preventative services were a concern for 67% of the respondents. Many felt that this was a key component to maintaining good health and that the lack of preventative care would ultimately place client’s health at risk. Respondents also reported their concerns for the undocumented population as they now can only be treated for communicable diseases. The twelve respondents expressed concern about the long term effects of the budget crisis. Many felt that the cuts to public health would create more health complications for the medically indigent, while others feared that tax payers would end up paying the ultimate price if social services were cut. In general, cuts to public health were perceived to be detrimental to medically indigent women whether they had to wait longer to receive care, were denied care such as mammogram testing or became more ill due to the closure of county-funded clinics. 49 The following chapter will recap the important findings of the study. This researcher will also discuss the implications for future research, policy, social work practice and practitioners. There will also be a discussion pertaining to the limitations of the data collection and in essence, what may be known about the non-responders. 50 Chapter 5 CONCLUSIONS, IMPLICATIONS, AND RECOMMENDATIONS Introduction This chapter discusses the conclusions of the study and its implications on various aspects of social work, such as, future research, policy making, and social work practice. Furthermore, it compares the themes found within the literature review and the themes that emerged from the face-to-face interviews. The themes that surfaced from the interviews on the impact of the budget crisis on health care agencies, their employees, and the clients included longer wait periods for the clients, increased caseload for employees, cuts to preventative services, and the long term effects of the budget crisis on the targeted population. Moreover, this chapter discusses in detail the limitations in the study and data collection due to the barriers that were present in the course of the research process. Implications for future research is addressed as it relates to the current budget crisis and its effect on public health agencies that provide health related services to medically indigent women. This researcher is hopeful that through an in depth discussion of the implications of this study for social work policy, social work practice, and the practitioner, the reader will gain a richer understanding of the issues pertaining to the budget crisis. Conclusions to the Study In an effort to address the magnitude of the 2009-2010 fiscal budget crisis in California and the devastating effects it has had on the lives of medically indigent 51 women and the delivery of services by health care agencies, this researcher attempted to embark on this study despite the barriers encountered in the process of selecting the participants and the collection of data. Additionally, this study may act as a vehicle for change through the promotion of awareness for the benefit of the target population and the health care services in which they need. California was not alone in the economic crisis that impacted other states, the whole country, and the other nations of the world have experienced this crisis. It shares with other states, like New York, Illinois, Florida and Texas, in having diversified population groups and economically poor people (Gordon, et al., 2007). These states relied on income taxes and property taxes to boost their economic resources. However, California was financially impacted with the passage of Proposition 13 in 1978 which put a cap on the taxation of properties. The state suffered a tremendous loss in taxes, up to $12 billion between the fiscal years of 1993 to 2008 (California Budget Project, May, 2009). Confronted with the unexpected loss, the legislators and policy makers scrambled for solutions, now seen as quick-fix, through budget cuts on many services, particularly on health care, with tremendous impacts, and damage to a very vulnerable population in need of care and services, medically indigent women. Medi-Cal was hit hard in the budget cuts, thus gradually paralyzing or numbing the delivery of services in health care on the people (Health Access, 2009, & California Budget Project, May, 2009). The medically indigent women were among the targeted populations that were affected. Funding for prenatal care was drastically cut (Health Access, 2009). Hospitals and clinics became limited in the provision of care and 52 services to their patients (California State Budget, 2009, & California Budget Project, October, 2009). Preventative care and immunization services became limited (Health Access, 2009, & California Health and Human Services Agency, 2009). Title X screening services which were helpful for family planning methods were also affected (Nelson, 2005, & National Family Planning and Reproductive Health Association, 2009). In essence, with the limits on Medi-Cal fund flow, California’s safety net through its public clinics and hospitals began to crumble, therefore increasing the health risk for medically indigent women due to the lack of proper health care. Evidently, the vast population of the state felt the effects of the budget cuts. However, it is troubling to witness that in such situation of crisis, the most vulnerable sectors of society are often and continuously the ones most affected. Medically indigent women, who need most of the health care services, sadly take the brunt of economic losses. It is often taken for granted that women, of all ages, need preventative health care services, and have specialty needs too. This study, on the impact of the budget cuts, has its limitations. However, its findings from the narratives of the selected participants confirm what many, especially the medically indigent women, may have long desired to express. The results of the study may serve as proof that those in power are making decisions without proper consultation and consideration of those affected most. One may begin to question what the reasoning was behind the actions on the fiscal budget. Furthermore, one may question the priorities of those in power and to what extent their priorities are beneficial 53 to them versus the social and human capital of the state. Undeniably, health care needs and social services are among the “first lines of defense” within a diverse society. The research findings indicated that the budget cuts affected the proper functioning of health care agencies, their employees, and their clients. These included the following: (1) longer wait periods for clients to obtain health care services from agencies, (2) increase in case loads among the employees, (3) cuts to preventative services, and (4) the long term effects of the budget crisis on the lives of people who are in need of health care services. Of the first three aspects, three-fourths or 67% of the respondents indicated that they felt and suffered the impact of the budget crisis. What is worth paying attention to is that although the employees of the affected agencies experienced increases in case loads, they indicated that the quality of service delivery remained constant. They also sustained their motivation to assist their clients. The other 33% of the respondents noted that their agencies were not so much affected financially due to other sources of funding such as grants for mental health services, donations and fundraising. This did not mean that they did not feel the effects of the budget crisis. On the fourth aspect, all the respondents agreed that the budget crisis would have negative long term effects on everyone. The 33% group acknowledged that they survived the initial waves of the problem, but they also felt unsure as to what the future would bring them, their employees, and their clients. The findings in this study presented data from the narrative reports of 12 participants. Behind the given responses there is a call for action and change in reconsidering the 54 criteria and the priorities chosen for budgetary purposes. This study has considerable implications for future research, policy, social work practice, and the practitioners. Barriers to the Research Process Multiple barriers emerged along the way while the three researchers attempted to collect data from agency representatives and clients. One of the biggest barriers to the research was the scarcity of available literature on the current budget crisis. Much of the literature was still in the publication process as information was gathered about the fiscal impacts on California’s safety net. There was also limited information about the recent impacts on medically indigent women. Furthermore, literature pertaining to the fiscal impact on the Sacramento County’s public health care system and its public agencies was minimal. Another difficulty encountered was in obtaining support for this research study from the County itself. The three researchers met with the Director of Health and Human Services and a number of her colleagues from Sacramento County at the beginning phases of this research study. The researchers mentioned that their goal in the intended studies was to discuss in detail the current budget crisis. The Director seemed pleased with the chosen topics and even confirmed that the budget crisis had devastating effects on Sacramento County’s public health care system, medically indigent women, children ages 0-5, and the undocumented population. The Director further stated that she would support the study and would write a letter of support to give to prospective agencies, on the condition that the researchers obtained approval from the Sacramento County’s Human Subjects Review Board. This posed as a dilemma to the researchers. They had 55 already obtained support and approval from the University’s Human Subjects Review Board and were given the deadlines to complete their studies. Consequently, the researchers were not able to obtain approval from the County’s Human Subjects Review Board. As a result, there were a limited number of agencies available to participate in the study. The County would not allow the researchers to collect data from the County’s three primary clinics or their clients. This restriction affected the scope and depth of the study in that the researchers were unable to get data from arguably the most pertinent resource, the County. This researcher saw a significant implication for further research on the need to obtain support from the Sacramento County’s Director of Health and Human Services upon beginning a study on or related to this topic. Moreover, it was very difficult to locate willing participants from agencies that matched the criteria set. Several agencies referred this researcher to the county clinics. Others reported that they did not have the time to meet or that they did not have the information available for the study at hand. The lists which the researcher utilized to contact agencies were not updated. Many of the agencies had already closed and/or were no longer offering health services to the public. Another critical issue arose when the representatives from the agency were prescreened on the telephone about their agency’s experience with the effects of the budget crisis. Many stated that their agency had not yet experienced layoffs, changes to hours of operation, changes in client eligibility or changes to the number of clientele seeking services. The representatives attributed this to the fact that the enacted cuts had not yet affected the agencies, and that the agency’s current budget was supportive of 56 them. Quite a few representatives reported that they were receiving donations to help supplement their budget or that they were able to access other loop holes, such as, mental health funding to maintain financial stability within the agency. However, they expected changes in the next year’s fiscal budget. Possibly, some agency representatives had some ambivalence about participating in the study out of fear that they may not be able to justly share information, especially since the budget crisis was so current. Lastly, this researcher was unable to interview clients because of the agencies’ commitment to HIPPA (Health Insurance Portability and Accountability Act) regulations. This researcher had approval from the Human Subjects Review Board at the California University of Sacramento’s Social Work Division. Still it made no difference. This researcher was not asking for health information on the clients or for a list of clients receiving care from that agency. The agencies were still very adamant that the researcher should not make any contact with clients at the agency. This ruling further limited the depth of the research data that may have been collected, assessed and related to the current literature. Implications for Future Policy This researcher recommends that the agencies that receive county funding for the purposes of providing health services to the medically indigent population be required to participate actively in research that attempts to assess the quality and quantity of the services rendered to the community. The public should have the right to be informed as to how their tax dollars are spent and to what extent. 57 Research such as this would also enable policy makers to be kept abreast of the effects of previously implemented policies so that, if needed, changes can be made at an earlier stage in the implementation process. Counties should also be open to share in the responsibility of conducting research about their own policies. Implications for Social Work Practice This study attempts to educate social workers about the effects of the budget crisis on their medically indigent clients. In this way, they become more sensitive to how clients may respond to the impacts of the budget crisis. This research also gives way to advocacy opportunities for social workers on behalf of medically indigent women. If social workers have a better understanding of health related policies and how they affect their clients they may be more apt to advocate for their clients’ needs. Implications for Practitioners Practitioners may be interested in this research for several reasons. This research study could inform them of the drastic changes to public health and the short term and long term affects it may have on medically indigent women and the medically indigent population as a whole. Furthermore, it could inform the practitioners of the needs of this population and the best ways to provide care for them even in the current circumstances. Practitioners can be politically involved as well by advocating for the needs of their patients (Haynes, & Mickelson, 2010). Summary The needs of medically indigent women have been evident through the literature review and the data collected from the agencies of health care services. The themes that 58 emerged as patterns from the data collection process pertained to longer wait periods, increased caseload, cuts to preventative services, and the long term effects of the budget crisis. The literature confirmed the validity of these themes by reporting that the effects of the budget cuts increased the probability among medically indigent women becoming more sickly and vulnerable not only to acute illnesses but chronic diseases as well (Estes, Goldberg, & Fineman). In the long run, the budget crisis could possibly increase the financial burdens placed on hospitals as they attempt to provide basic services to women who cannot obtain services through a clinic (California Association of Public Hospitals and Health Systems, 2009). Lastly, after having seen the extent of the problem and the possible solutions to it, this researcher discussed the implications of this study for future research, policy, and social work practice. Many barriers presented themselves as this researcher attempted to collect the data. The lack of support from the County, the possible ambivalence from agency representatives and the inability to interview clients posed as obstacles. However, this researcher hopes that policies could be implemented to create a vehicle of change for future researchers who would want to explore the affects of the current budget crisis or any other policy for that matter. Additionally, this researcher is hopeful that through this study other social workers will be properly informed and made aware of the significant issues relevant to medically indigent women and the medically indigent population as a whole. Positive changes through advocacy for the medically indigent can occur if social work practitioners are informed and consequently positively and devotedly take up the cause of their clients. 59 APPENDIX A Approval by the Committee for the Protection of Human Subjects 60 CALIFORNIA STATE UNIVERSITY, SACRAMENTO DIVISION OF SOCIAL WORK TO: Jennifer Whitby Date: October 27, 2009 FROM: Committee for the Protection of Human Subjects RE: YOUR RECENT HUMAN SUBJECTS APPLICATION We are writing on behalf of the Committee for the Protection of Human Subjects from the Division of Social Work. Your proposed study, “The impacts of California budget crisis on various health agencies” has been __X_ approved as _ _ _EXEMPT _ __ NO RISK __X__ MINIMAL RISK. Your human subjects approval number is: 09-10-031. Please use this number in all official correspondence and written materials relative to your study. Your approval expires one year from this date. Approval carries with it that you will inform the Committee promptly should an adverse reaction occur, and that you will make no modification in the protocol without prior approval of the Committee. The committee wishes you the best in your research. Professors: Teiahsha Bankhead, Chrys Barranti, Andy Bein, Joyce Burris, Maria Dinis, Susan Eggman, Serge Lee, Kisun Nam, Sue Taylor Cc: Dr. Teiahsha Bankhead 61 APPENDIX B Informed Consent Forms 62 Informed Consent Form for Health Administrative Professionals/Staff I _________________________ consent to participate in this voluntary study conducted by Jennifer Whitby, MSW student at Sacramento State University. I understand the purpose of this research study is to explore the effects of the California budget on public health agencies and how the agency and its clients may be affected. I understand this survey may take approximately 60 minutes and that I may choose a confidential and comfortable setting for the survey to take place. I am aware there is no risk of discomfort involved as I will only be asked questions about the agency itself. I understand the benefits from participating in this research study may help educate and inform the researcher, State of California residents, policy makers, public health agencies and ultimately, the clients they serve. I fully understand that my interview will be coded with a number in order to differentiate my responses from other participant responses. I also understand that a master list of all identifying information will be kept in a safe and secure location that will be locked in a cabinet at the researcher’s home at all times except for when the researcher is accessing the data for research purposes. I understand that I am not being forced to participate in this study and that my participation is strictly voluntary. It has been explained to me that I can refuse to participate and withdrawal from this interview at any time up to the time this research study is finalized by the Graduate Studies Department at California State University, Sacramento. I may withdraw my information without any consequences or penalties being placed upon me or the agency. 63 I have read and understand this consent form and understand my rights as a participant. I would like to voluntarily consent to this research study. I understand that I can request and will receive a copy of this consent form at any time I wish. _________________________ Signature of Participant Jennifer Whitby, MSW Student Email: jw123@saclink.csus.edu Phone: (555) 555-5555 Teiahsha Bankhead, Ph.D., LCSW Graduate Program Director Email: bankhead@csus.edu Phone: (916) 278-7177 ______________________ Date 64 Informed Consent Form for Client Participants I _________________________ consent to participate in this voluntary study conducted by Jennifer Whitby, MSW student at Sacramento State University. I understand the purpose of this research study is to explore the effects of the California budget on public health agencies and how the agency and its clients may be affected. I understand this survey may take approximately 60 minutes and that I may choose a confidential and comfortable setting for the survey to take place. I am aware there is minimal risk of discomfort involved because I will be asked questions that relate to women’s health services and my feelings about how my services might be impacted by the budget crisis I understand the benefits from participating in this research study may help educate and inform the researcher, State of California residents, policy makers, public health agencies and ultimately, the clients they serve. I fully understand that my interview will be coded with a number in order to differentiate my responses from other participant responses. I also understand that a master list of all identifying information will be kept in a safe and secure location that will be locked in a cabinet at the researcher’s home at all times except for when the researcher is accessing the data for research purposes. I understand that I am not being forced to participate in this study and that my participation is strictly voluntary. It has been explained to me that I can refuse to participate and withdrawal from this interview without any consequences at any time up to the time this research study is finalized by the Graduate Studies Department at 65 California State University, Sacramento. I may withdraw my information without any consequences or penalties being placed upon me or the agency. I have read and understand this consent form and understand my rights as a participant. I would like to voluntarily consent to this research study. I understand that I can request and will receive a copy of this consent form at any time I wish. I have been provided with a list of therapists that I may contact at my own expense if I feel bothered or upset for any reason after I participate in this interview. _________________________ Signature of Participant Jennifer Whitby, MSW Student Email: jw123@saclink.csus.edu Phone: (555) 555-5555 Teiahsha Bankhead, Ph.D., LCSW Graduate Program Director Email: bankhead@csus.edu Phone: (916) 278-7177 ______________________ Date 66 APPENDIX C Interview Questions for Health Administrative Professionals/Staff 67 1. Please describe the top 3-5 programs/services this agency offers. 2. Please describe the specific populations that benefit from each of these programs. 3. Has client eligibility for health services changed as a result of California’s current budget crisis? 4. How does your agency prioritize which programs or services to keep and which programs to cut? 5. In relation to California’s current budget crisis, which programs within your agency have been (negatively) impacted the most? 6. How has California’s budget crisis impacted the employees of this agency? (i.e. Have employment rates, case loads, and the number of out-referrals changed within the last 12 months? What has been the impact of these changes to employees?) 7. How has the quality of care for patients been impacted due to the state’s budget cuts and decreased funding? 8. What may be the long-term effects of the state’s current tightening of the budget in relation to health care? 9. What was your annual budget for 2008-2009? _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ Less than $50,000 $50,001-$100,000 $100,001-$300,000 $300,001-$500,000 $500,001-$700,000 $$700,001-$900,000 $900,001-$2,000,000 $2,000,001-$3,000,000 $3,000,000 + Unknown 68 10. What is your annual budget for 2009-2010? _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ Less than $50,000 $50,001-$100,000 $100,001-$300,000 $300,001-$500,000 $500,001-$700,000 $$700,001-$900,000 $900,001-$2,000,000 $2,000,001-$3,000,000 $3,000,000 + Unknown 11. Approximately how many patients does your agency currently serve? _____ _____ _____ _____ _____ 100-200 301-400 401-500 501-600 601-700 _____ _____ _____ _____ _____ 701-800 801-900 901-1,000 1,000 + Unknown Children Ages 0-5 Population: (The next section of questions will request information that is specific to this age group.) 12. What type of insurance, if any, does a child need in order to be seen at this agency? 13. How have eligibility requirements for children ages zero to five been affected by the budget crisis? 14. Has this agency seen any changes in outreach services provided to inform potentially eligible participants during the current budget crisis? 15. What services/programs does this agency provide for families with children zero to five years of age? 16. Which services do children zero to five seek most frequently at this agency? 17. How have these services been affected by the current economic situation? 18. How has this agency prioritized its services in order to insure children can receive the care they need during the budget crisis? 19. How do you believe children’s health will be affected in the future due to the recent budget crisis? 69 Women’s Health: (The next section of questions will request information that is specific to this group of people.) 20. How long has this agency provided services specific to women? (Please check the best response.) _____ _____ _____ _____ _____ _____ _____ _____ _____ _____ 1-10 years 11-20 years 21-30 years 31-40 years 41-50 years 51-60 years 61-70 years 71-80 years 81 + years Unknown 21. What is the age range of women who seek out services at this agency? (Please check all that apply to the agency.) _____ 0-17 years _____ 18-24 years _____ 25-30 years _____ 31-40 years _____ 41-50 years _____ 51-60 years _____ 61 & above 22. Please describe the services and/or programs this agency offers specifically for women’s health. 23. How have services specific to women's health been eliminated or reduced due to the recent budget crisis? 24. How have eligibility requirements for women seeking health services been affected as a result of current the budget crisis? 25. How have female patients/clients been impacted by the elimination or reduction of services? 26. How have employees who specialize in women’s health been impacted by the current budget crisis? 70 27. How has the budget crisis impacted your decision-making and the agency’s priorities surrounding programs geared towards women’s health? 28. How may women’s health be impacted in the long run if the services are cut? Undocumented Immigrant Population: (The next section of questions will request information that is specific to this group of people.) 29. Please describe the top five programs and/or services this agency offers specifically to undocumented immigrants. 30. How do undocumented immigrants receive information regarding the services this agency provides? 31. What types of insurance does this population require in order to receive services from this agency? 32. What challenges does this population face when gaining access to health care services at this agency? 33. How do agency employees respond to the needs of undocumented immigrants seeking services? 34. What health needs does this population present that the agency has difficulty managing? 35. How have the programs and/or services offered to undocumented immigrants been impacted by the current economic situation? 36. How is the undocumented immigrant population’s ability to receive adequate care being impacted by any funding cuts within the agency? 37. Where is the agency’s location within the county? 38. What is your job title within the agency? Today’s Date: _______________ Interviewer/Researcher: _______________ 71 APPENDIX D Interview Questions for Clients 72 Children Ages Zero to Five: (The following questions request information that is specific to this group of health care recipients.) 1. Do you have health care coverage for your child? *If yes, what types of coverage do you have? (Continue to question 2) *If no, for what reasons do you not have health coverage? (Skip to question 3). 2. What health care programs does your child utilize? 3. Which two programs do you feel are the most important/beneficial for your child? 4. What challenges are you facing in accessing or maintaining health care for your child? 5. How do you believe the current economic situation is impacting your child’s access to health care? 6. How do you believe the current economic situation is impacting the quality of care your child is receiving? Women: (The following questions request information that is specific to this group of health care recipients.) 7. What types of health services do you feel are most important to women? 8. What are some barriers to health care and medical services women may face? 9. What types of programs specific to women’s health do you use? 10. As a woman, do you feel that you receive quality health care that meets your specific health needs? Please explain. 11. Please describe any changes in your ability to obtain health coverage and/or medical services in the past 5 years. Undocumented Immigrants: (The following questions request information that is specific to this group of health care recipients.) 12. Please describe any health coverage or benefit you receive. If you do not have health coverage, explain why. 73 13. What types of medical services or health programs do you use? 14. Do you use emergency care or primary care for your health needs? Please explain. 15. Do you feel that the medical care you receive is adequate? Please explain. 16. How does health care in the U.S. today compare to the health care you received in your home country? 17. Please describe any changes in your ability to obtain medical services or care in the last 5 years. 18. In what ways is the health care you receive being impacted by the California’s current economic situation? DEMOGRAPHICS: Please respond and check the section that best applies to you. 19. Age: _____ _____ _____ 18-24 25-30 31-40 _____ 41-50 _____ 51-60 _____ 61 & above 20. Sex/Gender: _____ Female _____ Male _____ Decline to Answer 21. Ethnic Identification: _____ _____ _____ _____ _____ _____ African American/Black Asian/Pacific Islander Latino/Hispanic White/Caucasian Other Decline to Answer 22. Citizenship Status: _____ _____ _____ _____ _____ _____ U.S. Citizen Non-citizen of U.S. (Undocumented Immigrant) Work Visa International Student Visa Other Decline to Answer _____ Decline to 74 23. Number of family members in your household: 24. Number of children ages 0-5 in your household: 25. Number of adult women in your household: 26. Yearly Income: ___________ Today’s Date: _______________ Interviewer/Researcher: _______________ 75 APPENDIX E List of Resources 76 Sacramento County Mental Health Offers mental health services, support and referrals for adults and children. (916) 875-7070. Family Service Agency Family Service Agency, located near Watt and Folsom Blvd provides counseling for children, adults and families. MediCal is accepted and a sliding fee is provided based on monthly income. MediCal clients please call (916) 875-1055, all others may call (916) 368-3080. Yolo County Mental Health Provides mental health services as well as drug/alcohol rehabilitation and other services. West Sacramento: (916) 375-6350. Woodland: (530) 666-8630. New Pathways (formerly Catholic Social Services) Provides counseling for children, adults and families of all denominations. Their standard fee is $70, but they also offer a sliding fee based on income. They are located on Newman court in Sacramento. (916) 452-1218. Family Study Center The Family Study Center offers counseling for adults, children and families. They do offer a sliding fee based on income. They are located on X Street in Sacramento. (916) 456-4412. La Familia Counseling Center La Familia offers free short and long term counseling for all ethnicities. Located on 34th Street in Sacramento. (916) 452-3601 77 REFERENCES Adequacy of prenatal-care utilization - California, 1989-1994. (1996). Morbidity and Mortality Weekly Report, 45 (30). 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