HMONG ELDER’S SOCIAL AND CULTURAL BARRIERS TOWARD SEEKING WESTERN HEALTHCARE A Project Presented to the faculty of the Division of Social Work California State University, Sacramento Submitted in partial satisfaction of the requirements for the degree of MASTER OF SOCIAL WORK by Chue Neng Xiong SPRING 2012 HMONG ELDER’S SOCIAL AND CULTURAL BARRIERS TOWARD SEEKING WESTERN HEALTHCARE A Project by Chue Neng Xiong Approved by: __________________________________, Committee Chair Dr. Serge Lee, Ph.D., MSW ____________________________ Date ii Student: Chue Neng Xiong I certify that this student has met the requirements for format contained in the University format manual, and that this project is suitable for shelving in the Library and credit is to be awarded for the project. __________________________________, Graduate Coordinator, _________________ Dale Russell, Ed.D., LCSW Date Division of Social Work iii Abstract of HMONG ELDER’S SOCIAL AND CULTURAL BARRIERS TOWARD SEEKING WESTERN HEALTHCARE by Chue Neng Xiong This research study explores the social and cultural barriers that Hmong elders faced in seeking western healthcare. It is the understanding of the researcher that Hmong elders lack adequate healthcare; therefore contributing to the gab in healthcare disparity among the Hmong population. To explore the barriers to Hmong elders’ resistance of western healthcare, the researcher conducted interviews on 50 Hmong participants who were 60 years of age or older living in the greater Sacramento region. The researcher recruited participants using the snowball sampling procedure and conducted the interviews in the Hmong dialect using a survey consisting of open-ended and closed ended questions. . The study indicated that there is still a strong cultural and religious influenced especially, among those who are still traditional in their religious belief when it comes to their health seeking behaviors. ____________________________, Committee Chair Dr. Serge Lee, Ph.D., MSW _______________________ Date iv DEDICATION I would like to dedicate this project to my loving parents Lao Xiong and Nhia Yang for their constant support, to my precious grandparents See Vue Xiong and Pha Moua for their unconditional love and support of my children, and finally my wonderful hard working wife Mai Chang and three adorable children Andy Xiong, Angelina Xiong and Alex Xiong. Thank you all for being there for me and giving me the energy and courage to continue my educational dream. v ACKNOWLEDGEMENTS First, I would like to thank my parents, Lao Xiong and Nhia Yang for their unconditional love, encouragement and financial support throughout my entire educational career. Dad, it is because of your hard work and inspiration that has helped me succeeded this far in the pursuit of my educational dream. I greatly appreciate the time that you spend day and night working to make sure that your family especially, your children are able to attend school. Next, I would like to thank my grandparents See Vue Xiong and Pha Moua for their endless support and love for me and my children while I’m at school. I understand that it is because of your precious time and energy taking care of my children that I am able to concentrate in school. Thank you so much for all the things that you two have done for me. Next, I would like to give special thanks to my precious wife Mai Chang and all my three children Andy Xiong, Angelina Xiong, and Alex Xiong for being there for me during stressful times and standing by my side. I appreciate the fact that you all have come into my life and given me the most inspiring reasons to continue my education. I cannot find enough ways to tell you all how grateful I am to have everyone in my life. Lastly, I would like to give my sincere thanks to my wonderful advisor Dr. Serge Lee. I cannot imagine myself being able to complete the thesis project if it was not for your consistent guidance and support. Despite all the other things that you are busy with, you have put a lot of effort in helping me on this research project. Thank you. vi TABLE OF CONTENTS Page Dedication ..................................................................................................................... v Acknowledgments....................................................................................................... vi List of Tables ................................................................................................................ x Chapters 1. THE PROBLEM…………………………………………………. .........................1 Introduction ........................................................................................................1 Background of the problem ...............................................................................3 Statement of the Research Problem ...................................................................4 Purpose of the Study ..........................................................................................5 Theoretical Framework ......................................................................................5 Assumptions.......................................................................................................7 Justification ........................................................................................................8 Definition of Terms............................................................................................8 2. LITERATURE REVIEW ......................................................................................10 Introduction ......................................................................................................10 Healthcare Disparity in America .....................................................................11 Western Concept of Health ..............................................................................13 Healthcare Accessibility ..................................................................................15 Hmong Origin Theories ...................................................................................16 vii Hmong and the Secret War of Laos .................................................................18 Refugees in a New Land ..................................................................................20 Clan and Family Structures ..............................................................................22 Demographics ..................................................................................................24 Shamanism and Alternative Healing ...............................................................25 Hmong Health Concept....................................................................................28 Healthcare Challenges for Hmong ...................................................................31 Conclusion .......................................................................................................33 3. METHODOLOGY ................................................................................................35 Research Design...............................................................................................35 Data Collection Procedures..............................................................................35 Protection of Human Subjects .........................................................................37 Instrumentation ................................................................................................40 Data Analysis ...................................................................................................41 Limitations .......................................................................................................42 4. DATA ANALYSIS ................................................................................................44 Introduction ......................................................................................................44 Section 1: Demographics .................................................................................44 Section 2: Social Factors ..................................................................................50 Section 3: Cultural Beliefs and Healthcare Practices ......................................54 Significant Findings .........................................................................................59 5. CONCLUSION AND RECOMMENDATION ...................................................64 viii Introduction ......................................................................................................64 Summary ..........................................................................................................65 Social Work Implications ................................................................................68 Recommendations for Future Research ...........................................................69 Conclusion .......................................................................................................71 Appendix A. Interview Questions...............................................................................72 Appendix B. Oral Consent to Participate in the Research Study................................77 Appendix C. Human Subjects approval form .............................................................78 References ....................................................................................................................79 ix LIST OF TABLES Tables Page 1. Table 1. Age of participants ............................................................................. 45 2. Table 2. Gender of participants ........................................................................ 46 3. Table 3. Able to Speak Thai ............................................................................ 46 4. Table 4. Able to speak Laotian ........................................................................ 46 5. Table 5. Marital status...................................................................................... 47 6. Table 6. Religious preference .......................................................................... 48 7. Table 7. Amount of time living in the U.S. ..................................................... 49 8. Table 8. Number of Children ........................................................................... 50 9. Table 9. Attend school in Laos ........................................................................ 51 10. Table 10. Number of years attended school..................................................... 51 11. Table 11. Insurance/Income ............................................................................. 52 12. Table 12. Children with degree ........................................................................ 53 13. Table 13. Decision making .............................................................................. 54 14. Table 14. Children help decide medical care ................................................... 54 15. Table 15. Take advice from Physician ............................................................. 55 16. Table 16. Take advice from Shaman ............................................................... 55 17. Table 17. Take advice from herbalist .............................................................. 56 18. Table 18. Take advice from someone who had the illness before ................... 56 19. Table 19. When you are sick, who do you seek for help first? ........................ 57 x 20. Table 20. Do you think prescription medications do more harm than good? .. 57 21. Table 21. Do you think your inability to speak English is a barrier? .............. 58 22. Table 22. Prefer a primary care physician that speaks Hmong........................ 58 23. Table 23. Comfortable with a Hmong physician ............................................. 59 24. Table 24. Decision making and gender............................................................ 61 25. Table 25. Time in the U.S and taking advice from a physician ....................... 61 26. Table 26. Healthcare preference and religious preference ............................... 62 27. Table 27. Healthcare preference and having Medi-Cal ................................... 63 xi 1 Chapter 1 THE PROBLEM Introduction Healthcare among minority elders are becoming a major issue facing the United States, especially, with the increasing population of older Americans. According to Byrd, Fletcher, and Menifield (2007), minority elders will make up about 50% of the overall elderly population by the year 2050. This is half of the total elderly population here in the United States, which includes several main groups such as African Americans, Hispanics, Pacific Islanders and Asian descent. This could mean that healthcare disparity among half of the elderly population could put a burden on taxpayers in the long run. Research has shown that minority elders are less likely to receive routine medical care and tends to receive lower quality of care compare to their white counterparts (Baldwin, 2003). Among a portion of the minority elders who are experiencing health disparity, are former elderly Hmong refugees. It is no wonder why Hmong elders experienced such high health problems such as tuberculosis, hepatitis B carrier status, sudden unexpected nocturnal death syndrome, posttraumatic stress disorder, injuries related to agricultural occupation, cardiovascular disease, diabetes, lower immunization rates, and cancer (Pinzon-Perez, 2006). Since Hmong elders have a higher health challenge and less likely to seek medical attention , they are most likely will experience higher rates of inadequate treatments and lacking the quality of care that they should get compare to other groups. As a member of the Hmong community, it has been the researcher’s understanding that many of the Hmong elders usually lacks adequate access to healthcare 2 and most of the time resorts to using traditional healings as a way of finding cure for whatever their illness may be (Lee & Pfeifer, 2010). Healthcare disparity is of an important issue that the researcher is interested in, especially when it comes down to the fact that many Hmong elders are dying from treatable diseases such as hypertension and cancers. Some of these diseases could have been easily treatable, especially if they were detected in the earlier stages. The researcher has personally witnessed a relative who would rather not see his doctor and prefer traditional healings from herbal medicines and spiritual healings through a shaman. Another relative also came down with tuberculosis and was reluctant to see his doctor. When he did, it was when he had depleted all of his alternative options such as asking the help of a shaman and herbalist. Even after he was able to see his primary care physician, the differences between eastern and western culture created mistrust, leaving him hesitant to take the prescribed medications given to him. Partially, the physician might have been a bit ignorant of Hmong cultural values; hence, the physician was not willing to listen and make sense of the Hmong patient’s perspective on the illness. Over the years, the researcher have found himself questioning the cultural and socioeconomic factors that might have hindered Hmong elders from seeking medical care from western healthcare providers. For this reason, the researcher was wondering what cause their hesitation. How could the lack of utilizations of western medical care correlate with the Hmong’s traditional cultural values and their previous medical practices and beliefs? The researcher believes that being able to identify these cultural 3 barriers would make it possible for health and human service professionals to intervene, in turn, proper medical care programs can be setup to serve this group of population. Background of the problem The documentation of healthcare disparity is extensive, but there has not been any thorough examination of the issue. The Center for Diseases Control and Prevention (CDC, 2010), reported that there has been little done in terms of trying to solve the issue of healthcare disparity among majority and minority Americans. Seeing healthcare disparity as a problem, the federal government’s Healthy People 2020 program has included this issue as part of its goal in eliminating and improving the overall health of all groups. According to Byrd et al. (2007), minority elders are less likely to receive a good quality routine care compared to their White counter parts. Since many elders within the ethnic minority population are reluctant to seek care and distrust western medical practice due to cultural beliefs; it leaves them vulnerable to a higher risk of diseases and lower quality of care from medical professionals. Dhami (2009), states that ethnic minorities will have a higher rate of developing wide range of conditions, with poorer health outcomes. Former Hmong refugees being a portion of this minority population are no exceptions. Hmong are one of the most recent arriving refugees to the United States from Southeast Asia following the Vietnam War. The exposure of Hmong elders within this population to western healthcare providers and the U.S healthcare system creates cultural challenges in seeking healthcare and the accessibility of the health system. Pinzon-Perez, (2006) stated that the medical model of western healthcare are not congruent to the 4 traditional practices of the Hmong’s cultural belief. The difference in cultural belief creates misunderstanding and misperception of the healthcare system here in the United States among former Hmong refugees, especially the elders. These cultural barriers stands in the way of receiving timely and appropriate healthcare needs; thus, contributed to the overall healthcare disparity among minorities in this country. Statement of the Research Problem The increasing healthcare disparity among Hmong elders creates challenges in closing the healthcare gaps among minorities in the United States. With basic understanding of the Hmong’s cultural belief and as a member of the Hmong community, it is this researcher’s recognition that the lack of cultural and social awareness by healthcare professionals is associated with the current healthcare disparity within this population. To help bridge the healthcare gaps, this study will be focus on the cultural and social factors that are barriers to seeking western healthcare among Hmong elders in the greater Sacramento region. Some of the cultural and social factors being explore in this study will include but not limited to cultural barriers, language barriers, lack of health insurance, poverty, rate of acculturation and lack of education. Even though there have been numerous studies on cultural and social barriers among other minority groups in their association to the disparity of healthcare; however, there has not been much studies done specifically about the older Hmong population here in the United States. There is a definite need to identify the barriers that are the roadblock of Hmong elders’ inability or reluctance to utilize the healthcare system here in this country. 5 Purpose of the Study The primary purpose of this research project is to explore and obtain information pertaining to the cultural and socioeconomic factors that are barriers in seeking western healthcare for former elderly Hmong refugees. This will provide the necessary understanding and awareness for western healthcare professionals to efficiently be able to address the ongoing disparity of healthcare within this population. It will allow social workers and medical professionals alike to see the reasons why Hmong elders are reluctant to seek health treatments from western healthcare providers. In grabbling with this issue, it will open up a clearer picture of the gaps in healthcare disparity among minority elders in this country. The second purpose of this study is to increase the cultural sensitivity of healthcare professionals in working with Hmong elders in the greater Sacramento regions and other parts of the country. The hope is that by being more culturally sensitive, it will open up more opportunities for professionals to work collaboratively with this population in addressing their health needs. At the same time to allow opportunity for the incorporation of Hmong traditional healings as a dual process in treating illnesses within this population. The researcher hope that with a holistic approach to healthcare, professionals can adequately decrease the gap of healthcare disparity and encourage Hmong elders to increasingly utilize the healthcare system in the United States. Theoretical Framework In order to understand how the cultural and socioeconomic factors impact the decision among Hmong elders toward seeking western healthcare and how it correlates 6 with healthcare disparity among this population; the researcher will utilize the ecological perspective (McCleroy, Bibeau, Steckler, & Glanz, 1988) as the overall guiding principle of this study. It will be follow by the empowerment theory and health belief model, which will help give a holistic explanation of the meanings behind Hmong elders’ perception and resistance to western health treatments. The conceptual framework of ecological perspective is based on the fact that one’s environment has an impact on one’s life, which includes multiple levels such as micro, mezzo, and macro level of the social environment (McCleroy et al, 1988). Through the use of this theoretical frame work, it allows the researcher to see how taking into consideration the holistic factors such as living environment, cultural beliefs, practices, family structure, social network and social status could have an impact on Hmong elder’s reluctance to seek western medical care. The understanding of the ecological perspectives is crucial for other professionals to understand the cultural and socioeconomic systems in which Hmong elders are embedded. The empowerment theoretical framework (as cited by Shriver, 2011) is based on the process in which individuals have the ability and power to improve their own lives, if given the necessary resources. This framework will help explain the feelings of powerlessness among former Hmong refugees who came to this country not speaking the language and living in a society that differs dramatically from what they are used to. I hope that with this research it will allow social workers and medical professionals to utilize this theory and help empower this population through collaboration and cultural awareness. When Hmong elders feel that their inputs matter and that their cultural 7 practices means something in the medical field, it would empower them to feel more comfortable in seeking western healthcare. The health belief model explains that “people will engage in health-related behaviors if they believe that a negative health condition can be avoided, expect that taking a recommended action will avoid a negative health condition” (Hutchison, 2008, pp. 53). To put this in context of health related behaviors, it is the desire to avoid illness and belief that a certain type of heath related behaviors will lead to prevention of illness or lessen the degree in which it can negatively influence the individual (Janz & Becker, 1984). Through this frame work, it allows the researcher to see why many Hmong elders will turn to cultural practices and see that this type of health behaviors will lessen the degree of illness compare to seeking western healthcare treatment, which Hmong elders sees as making the situation more complicated. Assumptions This study examines the cultural and social barriers affecting older Hmong individual’s reluctance to seek medical attention from western healthcare providers; therefore, the researcher assumes Hmong elders are resistant to seeking help from their primary care physician when they are ill. The researcher assumes that culture and social status are the influencing factor that hinders Hmong elders’ ability to seek western healthcare services. Considering this, the researcher assumes that Hmong elders’ underutilization of the healthcare system here in this country directly contributes to the overall healthcare disparity within this population. 8 Justification This research is important to social work because it will allow social workers working with this population to get an understanding of the factors contributing to the lack of access to healthcare and high rates of health challenges among this population. This population being an ethnic minority group and recent refugees makes them vulnerable, so addressing the issue of healthcare disparity among this population would allow social workers to carry out their core value of social justice. Since social workers strive to ensure access to services and equality for all people, this research would enable social workers and other medical professionals to explore and address proper social service programs in collaboration with the medical field that could allow for better healthcare access among former Hmong refugees. To be culturally sensitive is to be holistically accepting of people’s differences and allowing for incorporation of alternative ways of seeing healthcare; therefore, healthcare disparity among any group is a social injustice and it is the duty of social workers to make sure all groups of people have equal opportunities and access to healthcare. Definition of Terms 1. Healthcare: the preservation of mental and physical health by preventing or treating illness through services offered by the health profession 2. Hmong: An ethnic group traditionally living in mountain villages in southern China and adjacent areas of Vietnam, Laos and Thailand; many have immigrated to the United States as refugees. 3. Disparity: The lack of similarity or equality; inequality; difference. 9 4. Elder: An older person who is consider to be 6o years or older. 5. Poverty: The state or condition of having little or no money, goods, or means of support; condition of being poor; indigence. 6. Shaman: A spiritual healer who performs traditional rituals and is believed to possess the ability to communicate with the spirit world (Vue, 2002). 7. Herbalist: Individual who employs herbal medicines to treat both physical and mental ailments (Cha, 2003). 10 Chapter 2 LITERATURE REVIEW Introduction In this chapter, the researcher examines existing literature review, focusing on different themes that will help provide basic understandings to the healthcare disparity among Hmong elders. This chapter is divided into three major themes. The first section is mainly focused on healthcare disparity in the United States, which includes: (1) Healthcare disparity in America; (2) Western concept of health and (3) Healthcare accessibility. The second section emphasized on the history of the Hmong people and their origin, which includes: (1) Hmong origin theories; (2) Hmong and the Secret War in Laos; (3) Refugees in a new land; (4) Family structures and; (5) Demographics. The third section is mainly focused on the Hmong culture and perception of healthcare, which includes: (1) Shamanism and alternative healing; (2) Hmong health concepts, (3) and healthcare challenges within the Hmong population. HEATHCARE IN THE UNITED STATES There has not been much research done about Hmong elders and their healthcare in this country, so this section mainly covered the overall healthcare disparity and utilization in the United States. The section examined accessibility of western healthcare and the barriers they faced in seeking healthcare. It briefly covers some of the different western concepts of health and the health model that dictates the health system here in the United States. The section provided basic understanding to the underlying health problems that minorities faced in this country. 11 Healthcare Disparity in America The topic of healthcare in the United States has been an ongoing debate among all Americans. The United States continues to remain one of the industrialized nations that does not provide healthcare to all of its citizens (Rashford, 2007). Racial disparities have been documented extensively and still are a major political agenda especially, the socalled Healthy People 2020. The objective of the Healthy People 2020 is to eliminate healthcare disparities that determine eligibility based on social, economic and environmental factors. With the cost of healthcare beyond the reach of many Americans, lower class Americans will find themselves, unable to afford for adequate healthcare. As stated by Reinhard and Relman (1986), the American health system is run by the law of economics, where healthcare is essentially based on one’s ability to pay. People that are unable to pay for their healthcare will have to rely on the basic care provided by the government through Medicare. Good healthcare should not be dependent on one’s ability to pay and it makes no exception for a resourceful nation as the United States to lack a basic necessity such as healthcare for its’ citizens. According to Congressman Jesse Jackson (as cited by Williams, 2007), he reported that in 2005 the federal government spends over one quarter of the federal budget on healthcare cost alone. Fiscal healthcare spending during that year was over $2 trillion, yet the United States has one of the highest uninsured rates of about 16%. High spending rates and with many Americans without health insurance really generates concerns about the huge gap in healthcare disparity among minority groups. Based on a study done by Johns Hopkins Bloomberg School of Public Health and University of 12 Maryland, Mr. Hopkins reported that the federal government’s pricey expenditure of $229.4 billion from 2003 through 2006 attributed to the cost of racial healthcare disparity (La Veist, Gaskin, & Richard, 2009). By ignoring the disparity in healthcare, it has cost the government more money in the healthcare industry than expected. This could mean that by addressing healthcare disparity, it could potentially help safe unnecessary spending. According to a study reported by the National Conference of State Legislatures, the Joint Center for Political and Economic Studies found that the federal government could have reduced medical expenditure by about $229.4 billion between 2003 and 2006, if it had eliminated healthcare disparity among minorities. Healthcare disparity has always been part of American’s long racial history with its roots from the time of slavery (Williams, 2007). Since many of the slaves of African descents were seen as part of an inferior race, those ideologies have guided the health treatments of racially different groups (Williams). Despite the huge improvements in our health system, there are still disparities in access across ethnic and racial groups in the United States (Zuvekas, & Taliaferro, 2003). When closely examining all the facts, Whites still have the highest insured rates and are at a higher rate to have private insurance (Zuvekas, & Taliaferro). One major social root to healthcare disparities in this country is the reliance of one’s social hierarchy in relationship to their accessibility to healthcare. Barr (2007), states that it is in one’s social, economic and cultural circumstances that people will be able to find the secrets of longevity and good health. Barr states further that since economic means is a main component of the health system, the question of who shall live relies heavily on one’s social hierarchy. This is no wonder 13 why minorities in this country who are on the lower end of the economic spectrum, are at the highest risk from lacking adequate healthcare. As a group, Asian Americans, Native Hawaiians and Pacific Islanders are the ones that are most likely uninsured; especially, noting the fact that many of the Asian Americans are employed in non-healthcare coverage jobs (Kaiser & APIAHF, 2008). This leads to a lesser degree of one’s capability to seek health treatment; thus, leading to higher array of health problems. The number one leading cause of death for minorities are chronic diseases, with heart disease and cancer ranking first among Asians and Pacific Islanders (Williams, 2007). It is reported that Asian American women with breast cancer is 1.4 to 1.7 times higher than those of their White counter parts (Chappell, 2007). According to Jang et al, this is because Asian American women have a very low screening rate. The Agency for healthcare Research and quality (AHRQ) reported that Asian Americans received worst quality of healthcare when compared to Whites for about 20 percent of measures (AHRQ, 2010). Western Concept of Health American medicine during the nineteenth century was highly pluralistic. It was a time when western physicians depended heavily on techniques such as bleeding, leeching and cupping (Baer, 2001). According to Baer the different medical systems were divided based on religious affiliation and thus became the heterodox and orthodoxy. During this time, physicians treated disease through administering remedies like antimony, purgatives, and often encouraged diarrhea as a means of letting out any poisonous substances (Baer). It wasn’t until the late 1900’s that the modern day medical system 14 begin to emerged as a success and most desired approach to healthcare. Baer further elaborated that even though biomedicine has always been popular, it never fully established hegemony since other alternative medicines still exist during this time. Based on the definition of health from the World Health Organization (WHO), the organization defined health as “being in the state of complete physical, mental and social well-being and not merely the absence of disease or infirmity”. However, in the sense of policies and the ability for developed countries like the United States to achieve such health stance is difficult (Barr, 2007). Using the medical model, which is solely grounded in a biomedical perspective, western concept of health is guided by one’s understanding that health is a physical state. Barr explained that from this perspective, illness is characterized by the presence of abnormal signs or symptoms. This concept defines that if western health professionals identify no abnormal signs, than an individual would be consider as healthy. According to Nordenfelt (2006), contemporary view of health has been to determine illness and disease from a scientific point of view; therefore, the detection of illness can only be obtain through observation and scientifically validated procedures. This would mean that any observations taken other than from a scientific approach would not be taken into consideration as symptoms of illness. In the United States, the biomedicines are considered the most dominative system within the medical field (Baer, 2001). Since medical model dominates the medical field, it leaves other forms of alternative healing very little space. According to Baer, the rise of biomedicine during the late nineteenth century in the fullest sense is a reflection of the rise of capitalism. 15 Healthcare Accessibility Despite the fact that this country has one of the best healthcare systems and equipment, a huge portion of the United States population lacks access to a good quality healthcare (Williams, 2007). Since the United States is inhabited by a huge array of different racial groups, the inability to speak English could hinder one’s access to healthcare. Language barriers have been linked to people’ ability to effectively utilized healthcare and a number of studies have shown the connection between language barrier and low numbers of health visits (Yeo, 2004). With diverse groups of minorities, it is important to be able to communicate effectively with different groups. A research indicated that providers and patient’s communication has a direct impact on patient’s satisfaction and health outcome (Betancourt, Green, Carrillo, & Ananeh-Firempong, 2003). Based on a research conducted by Ponce, Hays, and Cunningham (2006), older adults who had limited English speaking ability were 1.68 to 2.49 higher risks at access to care and health status. Based on a study done by Betancourt et al. (2003), they found that one major component that had been an obstacle in providing healthcare accessibility to minority groups is the organizational barriers. To a certain degree the leadership and workforce of health professionals does not reflect the general composition of racial and ethnic groups. Betancourt et al. asserted that despite the fact that African Americans and Latinos make up 28 percent of the population, which represented only three percent of medical school faculties. 16 It is found that cultural differences are a major barrier to the accessibility of healthcare among minorities. Since one’s culture greatly effects how an individual’s ability to make sense of his/her health conditions or illnesses, treatments provided by professionals could be culturally inappropriate; therefore, potentially hindering accessibility and effectiveness of interventions (Schaafsma, Raynor, & Berg, 2003). By definition, most minority groups fall at the low socio economic status, with limited education; thus, influencing their knowledge of healthcare and information pertaining to treatments (Schaafsma et al). Reyes (2001) stated that poor education and poverty can result in one’s inability to gain access to a quality healthcare. This is why it could be potentially difficult to minorities especially, older minorities who are uneducated to gain proper access to healthcare. HMONG HISTORY This section focused on the history of the Hmong people from the past to the present, with emphasis on who the Hmong people are and their status in the United States. It briefly examines the demographics of Hmong in this country. Hmong Origin Theories The Hmong is an ethnic group found throughout Southwestern China and Southeast Asia such as Thailand, Vietnam, Burma and Laos (Lee, 2007). The Hmong people have a long difficult history and many of the oral history that passed down from generation to generation has mentioned China as a core origin. However, scholars and the Hmong people have multiple theories describing the origin of where the Hmong truly came from. Based on literatures and the research of scholars, the Hmong people have a 17 very long history, spanning over five thousand years, dating back to 2497 B.C. (Quincy, 1995). It is proposed that there are four theories of origin, explaining where the Hmong came from (Thao, 2004). According to Savina, one of the early missionaries who encountered the Hmong people indicated that Hmong might have originated from a land behind China (Patch, 1995). Savina claimed that Hmong folk stories are similar to those from the bible such as the great flood and the Towel of Babel; thus, linking the Hmong with an origin in Mesopotamia (Lee, 2007). According to Quincy, Savina indicated that it is the Aryans that had forced the Hmong out of the area, indicating the reason for their migration to China. According to another theory, the Hmong have settled in the southern regions of the basin of the Yellow River before the Chinese (Mottin, 1980). Research shows that most of the ancient roots of Hmong heritage are found throughout modern day provinces of Yunna, Guizhou, Sichuan, and Hunan (Chan, 1994). According to Lee, an origin in China makes the most sense, especially with the DNA traces that is available. It is believed that the Hmong people had a king named Sonom, who was brutally killed by the Chinese emperor following his surrender that peace would come (Hamilton-Merritt, 1993; Quincy, 1995). It is believed that King Sonom sparked a very long war with the Chinese emperor and became a symbol of heroism and resistance to Chinese oppression (Hillmer, 2010). Yet, with this believed, it is highly criticized by Ententmann (2005), stating that Sonom was never Hmong and the Jinchuan Wars had had nothing to do with the Hmong people; thus, renouncing the accuracy of the stories behind King Sonom. 18 Even though there are conflicting beliefs of King Sonom and its relationship to the Hmong people; however, there are written records dating way back to 2479 B.C., indicating that there is a group of people known as Miao by the Chinese (Patch, 1995). The word “Miao” refers to modern day Hmong and is seen by many Hmong people outside of China as a demeaning term (Lee, 2007). As Hmong begin to migrate out of China and into neighboring countries to the south such as Thailand, Vietnam and Laos, their identity towards the term “Miao” changed. Later during the American involvement in Southeast Asia, it officially changed to Hmong, meaning free people. Hmong and the Secret War of Laos Due to persecutions and oppressions from the Chinese government, the ethnic Hmong migrated south to neighboring countries such as Thailand, Burma, Vietnam and Laos between 1810 and 1820 (Hamilton-Meritt, 1993; Mottin, 1980; Patch, 1995). Out of all the countries, there is a larger population of Hmong who settled in Laos. Most of them settled in small villages throughout the northeastern portions of Laos (Hillmer, 2010). Hamilton-Meritt explained that in Laos, the Hmong people practiced slash and burn farming as a mean of living and never quite integrated with the low land Laotians. When the Hmong began coming to neighboring Vietnam and Laos, the French had already established a strong colonial role (Smalley, Vang, & Yang, 1990). The Hmong was peaceful with the French and submitted to their rule of Laos. However, with harsh treatments and high taxation, a majority of the Hmong population in Laos rose up and fought against the French in 1919 under the leadership of Paj Chai (Quincy, 2000). The war that Paj Chai fought with the French was a harsh and brutal war, but it eventually 19 ended with his death. For the most part, the Hmong people assisted the French during World War II and all the way until the end of French colonialism in Laos (Chan, 1994). Fearing for the domino effects of communism takeover of Laos, the United States decided to send in American CIAs to recruit the Hmong. The Hmong formed the backbone of the fighting force against Communist North Vietnamese on behalf of the United States (Quincy, 2000). It is during this time, that Vang Pao emerged as a heroic leader for the Hmong people because of his ability to lead the Hmong people against the well-equipped Pathet Lao Army and North Vietnamese Amy (Hamilton-Meritt, 1993). At the peak of the conflict in Lao, the small Hmong guerilla force grew from a few thousands to approximately 30,000 soldiers (Kaufman, 2004). By the time the war was coming to an end, so many Hmong soldiers have been loss that thirty percent of the new recruits were consisted of fifteen and sixteen year old boys (Fadiman, 1997). It is estimated that around 40,000 Hmong lives were loss because of their direct involvement in the conflict (Lee & Pfeifer, 2005). Hamilton-Meritt asserted that the Hmong assisted the American CIA and fought hard for more than ten years until the withdrawal of U.S forces in 1975. The Americans following their defeat in the Vietnam War left behind the Hmong people. The Hmong were on their own to defend against the victorious Pathet Lao Army and North Vietnamese Army. Since many of the Hmong had assisted the Americans during the war, the Communist Pathet Lao government targeted them as traitors (Vang, 2005). Fearing for their own lives and their families, a majority of the Hmong who had been with General Vang Pao left Laos. Following General Vang Pao’s departure to 20 Thailand, nearly 40,000 Hmong men and women made their way slowly out of the country (Fadiman, 1997). Many of them eventually made their ways through the treacherous jungles of Laos and arrived in Thailand as refugees. For those families that did not make it to Thailand, many had either been ambushed or killed by Pathet Lao soldiers. Those that remain behind in Laos faced harsh treatments and death; thus, many of them joint the Hmong resistance group known as Chao Fa (Hamilton-Meritt, 1993). Refugees in a New Land As the secret war in Laos ended, refugee camps were set up in Thailand to accommodate Hmong refugees by the late 1970s. One of the best-known camps was Ban Vinai (Lee & Pfeifer, 2010). By 1976, Hmong refugees were allowed to enter the United States in huge numbers, estimating at over 10,000 in 1979 and reaching a peak of 27,000 in 1980 (Lee & Pfeifer, 2005). Even though the United States and other Western countries have opened the doors to Hmong refugees, many of the Hmong were hesitant to take the opportunity to migrate to western countries. As Hillmer (2010) puts it, “I always used to think they were the most deserving refugee population, yet the ones that wanted to come the least (pg.195).” Since so many of the Hmong refugees still had hopes of returning to Laos, it was difficult for them to take the option of migrating to a different country. Hillmer stated that it is in the refugee camps that many of the young Hmong professionals in Western countries today grew up. One must credit the experiences of the Hmong during this crucial period in their history as a period of grief and loss, but also a period of hope. The huge majority of Hmong eventually entered the United States and 21 many of them have resided in California, Minnesota, Wisconsin and other states until this day. Life as new refugees in the United States was not easy at all for many of the older Hmong who did not speak English or understood American culture. According to Fadiman (1997), many Hmong lost their pride of self-sufficiency, especially living in the United States and having to rely on assistance. In America, many of the Hmong lost their way of life. They no longer were able to practice slash and burn farming nor have Air America drop them food like during the war (Chan, 1994). Fadiman explained that the Hmong were used to living in mountains and their exposure to urban life and separation from traditional supports exhibited high levels of stress and depression among the Hmong population. America felt so different to many of the older Hmong population that many of them yearn to return to Laos. Hillmer (2010) indicated that during the 1970s and 1980s one could easily senses the energy surrounding the Hmong’s desire to return to Laos. For the most part the Hmong people in the United States have persevered and have improved greatly in the areas of education and political participation. One of the most subversive social changes that took placed in the United States was the greater freedoms of Hmong women in America. Chan elaborated that in traditional Hmong society, the women should always be submissive to the husband’s chain of command; however, the taste of freedom in America gave Hmong women more rights. Besides all the other conflicts that Hmong faces in the United States, they also continued to face major religious conflict within the Hmong communities. There are disagreements among Hmong Christians and those who are still traditional (Thao, 2006). 22 Many of the traditional practices such as shamanism and other rituals were met with harsh enforcements from the local neighbors and law enforcements. Thao explains of a case where the neighbor called the local police on a Hmong shaman while he was performing his rituals. Things like this happen all the time and in a way create fears and frustrations among Hmong shamans, feeling like they do not have a sense of freedom to practice their own cultural beliefs. Besides religious conflicts, Hmong Americans also faced a sense of disconnection from the youth that grew up here in the United States. Thao further stated that some of the Hmong elders’ concerns are younger children and their rebellious behaviors toward parents and Hmong traditions. Many of the older parents feel that they have no authority to discipline their children and feel a sense of hopelessness (Thao). Yang (2001) concluded that through hundreds of years of adversity, the Hmong have bred a strong spirit of independence and success. As many of the older generations who have been a part of the Vietnam War era are dying off; the questions is will the Hmong people be able to overcome their own internal challenges and continue to be a successful group within the melting pot of this country. Clan and Family Structures Traditionally Hmong are divided into patrilineal clans. Kinship in the Hmong society is to establish some sort of guidance on cultural traditions within each clan (Thao, 2006). According to Lee & Pfeifer (2010) there are eighteen Hmong clans consisting of : Chang, Chue, Cheng, Fang, Her, Hang, Khang, Kong, Lee/Ly, Kue, Lor, Moua, Pha, Thao, Vang, Vue, Xiong and Yang. Within each clan group, decisions are made based on 23 a hierarchical scale where the oldest male makes the decision with consultation to other male members of the clan (Johnson, 2008). In the patrilineal systems, when a woman marries, she moves in with her husband’s family and becomes a part of the husband’s kinship (Fang, 2008). Johnson explains that in these kinds of systems, women generally do not have any rights to make decisions; therefore, the husband or oldest son must be consulted for major decision-making. For the purpose of major medical decisions, the head of the household, which is the husband, must also consult the clan leader for recommendations (Lee & Pfeifer). For example if a physician diagnosed a major illness for a family member, the head of the household must set up a clan meeting to allow clan leaders and elders to discuss the final decision. This is why Johnson indicated that a Hmong person’s identity is based on his/her membership of a family or clan. Thao (2006) explains that clan memberships are established through marriages, so when the woman marries, they keep their own clan name, but the child inherits their father’s clan name. Thao further explains that once a male figure marries and has a kid, he is considered a man. According to Yang (1993), women are not allowed to be involved in any kinds of politics, even though sometimes the discussion directly affects them. To a certain degree, the Hmong people see marriage as a way of building connection to different clan groups (Tatman, 2004). It is considered taboo for a Hmong individual to married within his/her own clan and once a woman is married, it is a taboo to divorce the husband (Lee & Pfiefer, 2010). Moua (2003) emphasized that there are two functions for marriage and the first reason is for procreation and economic production within the family. The second 24 function is to create reciprocal economic and political ties. In the Hmong tradition, when a man marries a woman, he will have to pay the woman’s parents a set dowry amount. To many Hmong parents, they viewed the dowry as payments for the pains they endured giving birth to the child and raising her to adulthood. According to Moua, in the Hmong tradition, there is also the possibility of arranged marriages; however, in the United States Hmong parents no longer practiced arrange marriage any longer. In the Hmong culture, there are two ways that a man and woman could get married and the first is through begging. This is when the groom’s family requests the bride’s parents for permission (Moua). The Second is through regular courtship, which is the most common way for most people. Demographics Based on the U.S. Census (2010), the Hmong American Partnership estimated that there are about 260,076 Hmong in United States, with approximately 91,224 residing in California, 66,181 in Minnesota, 49,240 in Wisconsin, 10,864 in North Carolina, 5,924 in Michigan, and the rest scattered throughout the other states. According to the U.S. Census (2010), Asian Americans in Sacramento County made up a total population of 203,211, with Chinese American at 39,865, Filipino at 41,455, Japanese at 10,708, Korean at 6,049, Vietnamese at 25,030, Asian Indians at 26,560, and other Asians at 53,544. Even though there are no actual numbers indicating the total amount of Hmong population in this result, the U.S. Census (2000) reported the Hmong population in Sacramento County at about 17,646. A research done by Fong and Kim-Ju (2006) informed that Hmong has one of the fastest growth rates of 164.5 percent in Sacramento. 25 Using the 2000 U.S. Census, Niedzwiecki, Yang, and Earm (2003) reported that there are approximately 6,415 Hmong elders fifty-five years and older living in California. When compared to other Asian Americans, Hmong and Laotian have the lowest percentage of at least a bachelor’s degree, with Hmong being at 4.8 percent and Laotian 3.2 percent (Fong & Kim-Ju, 2006). The study reports that 31.5 percent of all Hmong elders sixty-five and older were living under the poverty line in 1999; thus, 5.2 percent of them were receiving social security income and 10.1 percent public assistance (Niedzwiecki et al). According to Lee and Pfiefer (2010) based on the 2008 American Community Survey, there is an estimated 25 percent of Hmong families living under the federal poverty line compared to the overall 9.5 percent of the total U.S population. HMONG CULTURE AND RELIGIOUS PRACTICES This section examined the cultural aspects of the Hmong people and the effects on their perception of health and wellbeing. It looked at the alternative traditional healthcare practices that the Hmong people utilized besides the mainstream medical model. This section helps expanded better insights into Hmong elders’ view of their illnesses. Shamanism and Alternative Healing The Hmong people still have a very strong sense of their spiritual beliefs and unlike the western versions of well-being, one’s spiritual well-being is connected to the overall health of each individual (Gerndner, Xiong, & Cha, 2006). Hmong continues to practice shamanism within their communities as part of a healing process to cured sickness and chase away the evil spirits (Helsel, Mochel, & Bauer, 2004). Helsel et al., further stated that many times Hmong Shamans are resentful of western medical 26 professionals, especially when they feel a sense of disrespect from the medical community. One good example of the traditional practices clashing with western medical healthcare is the case of Lai Lee in Fadiman’s 1997 The Spirit Catches You and You Fall Down. Here you have a Hmong girl whose parents had a different perception of the child’s illness compare to the western concept of health and illness; thus, created misunderstanding and confusion in the treatment of the child’s illness. The result was resistance to all treatments requested by western physicians. There are approximately 70 percent of the Hmong population in the United States still practicing traditional animalism and Shamanism, with one third of them being Christians (Lee & Pfeifer, 2010). The Hmong people believe that in order to be a shaman, one must be chosen and through the chosen process, the individual becomes encroached with what the Hmong calls “dab neeb-da neng” (Cha, 2003). Here the chosen individual will become very sick and he/she must accept the calling for his/her well-being. The Hmong believed that shamanism was passed down from generation to generation, originating from the very first shaman by the name “Shi Yee” (Fadiman, 1997). Shi Yee threw upon his skills and talents to the Hmong people, allowing them to carry on his healing. Some of the equipment’s used by the shaman includes a gong, gong stick, finger bells, a sword and a shaman bench (Pinzon-Perez, Moua, & Perez, 2004). The Hmong strongly believe that a shaman could communicate with the spirit world and that the spiritual world coexists with the physical world (Lee & Pfeifer, 2010). It is known that shaman has the power to find souls that have been lost and bring them 27 back to the person (Cha, 2003). Usually when someone is sick, the individual’s family will call upon the shaman to perform a ritual. The ritual involves the shaman covering his/her face with a black cloth and going into a trance; thus, allowing the shaman to contact the spirit world (Helsel, et al, 2004). Unlike a western medical doctor who focuses on physical illness, the Hmong Shaman is a respected healer, whose mean focus is to do spiritual healing (Fontaine, 2000). As part of the process of healing and trying to appease the angry spirits, the shaman usually sacrifices an animal such as a big, chicken or a cow (Pinzon-Perez et al, 2004). The sacrificed animals are then cooked and invited relatives and friends will join and enjoyed a nice meal as part of the healing process (Vang, 2005). Besides shamanism, Hmong traditional practice also relies on the use of traditional herbal medicines to treat illnesses and injuries. Hmong people have always lived far away from modern medical facilities; thus, they have become used to utilizing different variety of herbal medicines. Many of these herbal medicines come from natural plants found throughout Laos and China (Cha, 2003). Traditional herbs continued to be popular among Hmong elders, especially among women, who continue to passed down their knowledge to others they trust (Corlett, Dean, & Grivettie, 2003). According to Capps (1994), even though Hmong have incorporated some of western healthcare procedures into their lives, a majority of the Hmong population continues to utilize a type of medical pluralism where they incorporate different healing procedures from traditional shaman, to herbal medicines and western medical treatments as needed. 28 Hmong Health Concept Hmong people have a very different conceptual view of their overall health status compared to western concepts. In Laos, Hmong was never much exposed to modern medicine, the complexity of the human body parts and its functions are unknown to them (Johnson, 2002). Even though Hmong people have adopted different practice of health treatments from other people and beginning to accept some forms of western health concept, a majority of the Hmong population continues to rely heavily on traditional health concepts as a mean to understand illnesses. The lack of words for chronic diseases within the Hmong language further complicates the difference in health and health concepts among the Hmong population and western providers (Plotnikoff, Numrich, Wu, Yang, & Xiong, 2002). The Hmong people view their health from a holistic perspective, taking a strong consideration of both spirits and their physical body. The Hmong describes a healthy person to be one who is outgoing, active and happy (Rairdan & Higgs, 1992). Hmong believes that sickness are caused by spirits, imbalance of one’s souls, germs, wind, bad food and water, which is very similar to that of the Chinese’s concepts of yin and yang (Culhane-Pera, Her, & Her, 2007). Plotnikoff et al. explains that traditionally, Hmong understood diseases as an imbalance of souls, spirits and person. Unlike western biomedical concept where illness is associated with a physical feature or cause by a type of virus; the Hmong’s concept of illness relies heavily upon spiritual means. Henry (1999) gave a good case example of how parents of Hmong children with measles explained the causation for the illness. Henry stated that many Hmong parents asserted 29 the cause of measles as being caused from the seasonal cycle and the bad spirits that roams in the air. Hmong believe strongly in the different types of spirit internally and externally that can influence one’s well-being. Some of those spirits includes ancestral spirits, house spirits, spirits that resides in the natural world such as regions and estates, as well as evil spirits that roamed in the night (Cha, 2003). According to Culhane-Pera, Vawter, Xiong, Babbitt and Solberg (2003), there are many types of spirits that causes illnesses such as ancestral sprits, household spirits, evil wild spirits and unsettled ghosts. It is believe that one must provide adequate worships to ancestors, especially from the father’s side of the family. Hmong believes that a person can become sick if ancestors are not properly attended to especially, if a deceased elder is not given a proper burial. According to Bosher and Pharris (2009), those deceased elders would create distress and sickness to family members and in this case a shaman will be ask to perform rituals with burnt offering of monetary papers to appease the restless ancestral spirits. Culhane-Pera et al., asserts that wild spirits bring illnesses in many different forms and most are done by stealing one’s soul. Culhane-Pera et al., further explains that people usually dies if the shaman’s power is unmatched to those of the evil spirits causing the illness. Another strong belief in the cause of illness among people is what Culhane-Pera et al., calls social etiologies such as stressful social interactions and curse. In this case, illnesses are either cause through talking to other human beings or with spirits. For example, a person could become sick or give birth to a disable child if he or she mocks or makes fun of other people who are disabled (Culhane-Pera et al.). There are also 30 personal etiologies that Hmong belief influences one’s health, which Culhane-Pera et al., strongly emphasis as not following Hmong traditional food custom. Culhane-Pera et al., explains that after a woman goes through delivery and she does not follow the expected routine of eating only boiled chickens, restraining from sex and physical activities, future illnesses with headache, joints and back problems could be associated with the failure to observe postpartum customs. Hmong’s view of life is seen as a continuous circle of birth and rebirth with two worlds, one being the spiritual world and the other being the physical (Plotnikoff et al., 2002). It is the coexistence of these two worlds that Hmong believe each individual person has three souls. Culhane-Pera et al. (2003), explains that since life and death are joined in a continuous circle, humans are able to travel between these two worlds either, through birth or death. When a person dies, one of them will journey to the ancestral world, while one will remain in the home as guardians and the other remaining at the gravesite (Her, 2005). Since the Hmong people strongly believe in a person having more than one soul, it is the understanding that souls and one’s physical body function as one unit in order for a person to remain healthy. According to Hickman (2008), soul calling (Hu Plig) is a common technique used to call back lost souls. Hmong usually utilized soul calling when an individual becomes traumatized and it is assumed that they lost their soul. Soul calling is used as a healing process as well as a preventive approach such as during a ceremony to honor a newborn or one’s graduation (Hickman). According to Hickman, three factors indicate an illness as purely the cause of spiritual means such as the regularity, longevity and spiritual visions or manifestation. If 31 the illness indicates any of these factors, most Hmong will associate them with the cause of spirits. For example, Hickman explains that if a headache occurs around the same time every day or an illness has been present for quite some time and it is not cure through western medicine; then, most Hmong will affiliate it with spiritual caused. This would mean that they would most likely seek traditional healing instead of seeing their primary care physician. Based on a research done by Plotnikoff et al. (2002), it is found that out of the 22 participants, one’s perception of the cause of illness will determine the type of health treatments; therefore, individuals utilized a shaman for spiritual illness and a physician for physical illness such as high blood pressure and dizziness. Healthcare Challenges for Hmong Since Hmong people are not used to western medical practices and retains a huge portion of their own cultural background, it has been difficult for the overall Hmong population to adjust to the American Healthcare system here in the United States. According to Pinzon-Perez (2006), Hmong faced health issues of Tuberculosis, hepatitis B carrier status, sudden unexpected nocturnal death syndrome, and post-traumatic stress disorder. One of the major concerns is of the high reported incidences of cancer among Hmong Americans. Pinzon-Perez found that many of the Hmong with a diagnosis of cancers did not received treatment until later into the advance stages, which was contributed to the avoidance of western medical care. It is reported that the mortality rate of stomach cancer for Hmong Americans is 3.5 times higher than the rest of the Asian groups. This again correlates with the fact that Hmong Americans tends to received later stage treatments (Lee & Vang, 2010). The high rate of cancer mortality rates among 32 Hmong has to do with their low screening rates. Based on Lee and Vang’s finding, the percentage of Hmong women undergoing mammography was 30 percent compared to 49 percent of Korean American women. It is found that a healthcare challenge among Hmong Americans is heavily dependence on public insurance such as Medi-Cal and Medicaid. Lee and Vang (2010) found that consumers with public insurance had only a limited pool of healthcare providers and many of the Hmong reported feeling stigmatized from using Medicaid. It makes sense why those that had private insurance felt more comfortable to seek medical attention comparing to those that relied on public insurance. Another potential challenge for Hmong is the level of acculturation. According to Maxwell, Bastani, and Warda (2000) Filipino and Koreans were more likely willing to participate in screening if they had spent a longer time in the United States. Even though there are no research done on behalf of the Hmong people to see if acculturation will have an impact; it could be a possibility that with more time, Hmong will be more willing to undergo screening. Among other challenges, Health literacy is one of the major challenges posed to the Hmong population here in the United States (Pinzon-Perez, 2006). Since Hmong who had migrated here had no prior educations, many of them find themselves in a state of hopelessness when it comes to communicating with health professionals. Rairdan and Rae (1992) indicated that Hmong are only familiar to healthcare directly related to the exact symptoms of their illness; thus, any other preventive or tests will be avoided. According to Lee and Vang, this is probably why Hmong American’s attitude towards preventive healthcare in the absence of symptoms is viewed as unnecessary. One other 33 major challenge identified by Lee and Vang was Hmong’s mistrust of western medical systems. The research indicated that the mistrust had to do with Hmong’s unfamiliarity with the western healthcare systems. Since Hmong are new to the healthcare systems, they are very suspicious as to how much can the health system benefit them. Conclusion Healthcare disparity among minorities in this country has affected the quality of care that all Americans deserve to receive. It is important that communities and leaders from all disciplines work together as a team to tackle the inequality in healthcare. It is crucial that we properly addressed the issue of healthcare disparity so that the federal government will not have to spend thousands of dollars. Based on the literatures, there is sufficient evidence to show that healthcare disparity is a problem among minorities and that western concept of health dramatically differs from many of the diverse racial groups found throughout the United States, especially among the Hmong population. The Hmong people are recent arrivals from Southeast Asia to this country and many of them carried with them their rich cultural traditions. Even though they have faced challenges in adapting to the new environment of this country, they are also slowly acculturating with the new cultures found here. Since many of the older Hmong Americans are unable to speak English and lack the educational means to seek healthcare in this country, one must remember to consider older Hmong’s cultural and spiritual perception of health when providing culturally sensitive healthcare services. It is important that anyone working with the Hmong population should try to understand Hmong’s concept of health and wellness, especially when trying to diagnose a Hmong 34 individual. Through culturally sensitive work with an opened mind will allowed for a smooth transition of effective health treatments for the Hmong people; thus, eliminating the healthcare disparity among Hmong and other minorities in the greater Sacramento region. 35 Chapter 3 METHODOLOGY Research Design This research project applied an exploratory research design. The researcher collected the data through a quantitative and qualitative research method. The general research study was administered through a series of interview questionnaire consisting of open-ended and closed-ended questions. According to Rubbin and Babbie (2010), an exploratory research is appropriate when one wants to conduct research on a study, relatively new or test the feasibility of undertaking a more careful study. Even though there has been studies done about the Hmong community and issues related to social and cultural factors affecting their health seeking behaviors; however, there has been little research specifically on the older Hmong population and the barriers encountered by them in accessing western medical healthcare. Due to the limited research available on Hmong elders, the researcher utilized research that has been done on the general Asian population to provide better insights into the overall issue of social and cultural barriers to western healthcare. The research project explored, investigated and analyzed factors that may have been an influencing factor in Hmong elders’ willingness to seek healthcare from western medical providers. Data Collection Procedures After the researcher was able to secured approval from the Committee for the Protection of Human Subjects, the researcher started calling potential participants whom the researcher knew. All interview sessions were conducted at the participant’s home and 36 most were done during the weekend due to time constraint on the part of the researcher. The researcher was able to conduct data collection on fifty Hmong participants who were 60 years or older and currently residing in the greater Sacramento region. There are a total of 28 females and 22 male participants interviewed by the researcher. The researcher recruited all the participants using convenience and snowball sampling. Through this process, the researcher was able to interviewed individual Hmong elders whom the researcher already knows. The majority of participants were referred by friends and relative of those that had already been interviewed by the researcher. All participants were contacted by way of phone and permission to conduct the interview was given through oral consent over the phone. The majority of the participants were not proficient in the English language, so consent to participate and administering of the interview questionnaires were all done in the Hmong dialect. Since the majority of them were not literate in English or Hmong, no written translations of the interview questionnaires were made. The researcher took the following steps and procedures to conduct the research appropriately: 1) the researcher contacted the participant and asked for permission to be interview for the project, 2) the researcher explains the research concept, purpose, and objective in the Hmong dialect to all potential participants over the phone, 3) those that were willing to participate were asked to orally consent to be a participant of the research project, 4) Once the participant gave permission to be interview, the researcher scheduled an appointment with the participant over the phone. For those that were scheduled a few days ahead, the researcher made friendly phone calls the night before to confirm 37 interview appointments, since many of the seniors tend to forget. 5) Once the researcher meets with the participant at his/her home, the researcher introduces himself and briefly re-explained the research concept, purpose and objective. the researcher explained to the participants that all the collected data will be confidential, which means all materials collected on behalf of them will not be shared with anyone except with the thesis advisor for the purpose of this research, 6) the researcher informed all participants of their rights to terminate their participation at any time during the research process, 7) the researcher conducted the whole interview process in the Hmong dialect and interpreted each questions to the participants. Since each of the questions had to be interpreted in different ways within the Hmong dialect to allow participants to have a clear understanding of what’s being ask; therefore, each interview took about a good 20 to 30 minutes. The interview time varies depending on how talkative the individual participant is. 8) After the interview, questionnaires were conducted with each participant, the researcher provided contact information of the researcher and thesis advisor, 9) at the end of each interview, the researcher provided the participants with local community resources in case the interview created distress or discomfort for the participants. Since the committee for protection of human subject assigned the project as minimal risk, the researcher expected there to be no major concerns or discomfort on the part of the participant because of their participation in the research interview. Protection of Human Subjects The researcher filled out the Protection of Human Subjects application with the assistance of the thesis advisor Dr. Serge Lee. The researcher submitted the human 38 subject application multiple times to the thesis advisor and made multiple corrections to the wordings and procedures of the steps to protect all participating subjects. The first time the human subject application was submitted to Dr. Lee for review, it came back with suggestions to modify the consent forms to oral consent. Dr. Lee explained that most of the participants would be least likely willing to participate if signature was required; therefore, the researcher changed the written consent form into an oral consent. With the oral consent, participants would just have to orally consent without signing any forms. The second time, Dr. Lee suggested that since most of the participants in the Hmong community knows each other, the researcher needed to make sure other participant’s participation in the research be kept confidential. The researcher modify the wordings in question three of the human subject application so that if any of the participants happen to ask about other member’s, the researcher will not share participant’s information with any of the participating subjects. The third time that the human subject application was resubmitted to Dr. Lee for review, minor formatting and the correct form of the human subject application was suggested. Once the changes were made, the only major concern was the interview questionnaire. Dr. Lee assisted the researcher in modifying the wordings and structure of the questionnaires to be understandable by the participating subjects. The questionnaire started with 41 questions and due to the content of certain questions and the lengthy questions, it was cut down to 29 questions. Once the questionnaire was approved by Dr. Lee, both the human subject application along with the interview questionnaire and consent form was submitted for 39 review by the Committee for Protection of Human Subjects in the Social Work department. The Committee for Protection of Human Subjects in the Division of Social Work at California State Sacramento reviewed and responded back to the researcher on Dec. 7, 2011 with three conditions that needed to be modified before the human subject application was approved. The first condition was to make sure there are procedures set aside to protect the identity of all participating subjects especially, since the researcher will know most of them. To make this correction, the researcher went ahead and stated that no names or identity of individual participants will be collected, even if names were given, it will not be recorded or shared with anyone. The second condition was to fix minor grammatical errors, which the researcher quickly fixed all the indicated errors. The final condition was for the researcher to modified question 9 on the interview questionnaire since most elder participants are assumed to have some sort of health insurance in the United States. After all required conditions were fixed; the researcher resubmitted the human subject application to Dr. Lee for review and signature. The Committee for Protection of Human Subjects at California State University, Sacramento, approved the research project and indicated it to be at “minimal risk.” It was approved on Dec. 12, 2011 with reference number 11-12-045. The protection of human subject is crucial to the research; therefore, the researcher took all steps necessary to protect the safety and identity of all interviewed subjects. As part of the agreement with the Protection of Human Subjects, the researcher did not collect any identifiable information and securely kept all collected materials in a highly secure cabinet. All 40 research was done according to the approved guidelines of the Protection of Human Subjects application. The researcher believed that the questions asked in the interview would not do any physical harm to the participants since they are not required to perform any physical task as part of the research. When it comes to psychological harm, the researcher does not believe that participants will react in a discomfort way or emotionally impacted from the questions asked. Instrumentation The researcher utilized an interview questionnaire consisting of 29 questions that included opened and closed ended questions. All of the questions in the interview questionnaire were develop by the researcher with the exception of the demographic portion, which was adapted from models of previous student researchers. Most of the ideas in developing the questions were based on literature reviews that had indicated certain criteria such as health insurance, acculturation and language as barriers to health. The questionnaire started with a total of 41 one questions, but with the inputs and assistance of the thesis advisor Dr. Lee, most of the questions were modified and eliminated in order to be direct and inclusive of both Christians and traditional participants. Due to the limited nature and time of the study, the researcher did not perform a validity nor reliability test on the questionnaire before administering them to all the participants. The researcher realized that this puts a major limitation on the outcome of the overall research project. 41 The questionnaire is consisted of three major sections. The first section of the interview questionnaire is consisted of 8 closed ended questions on the demographics of the participants, with 1 opened ended question on employments. This section is to help the researcher identify the origin, age and gender groups of all participants participating in this research project. The second section is consisted of 11 questions, with 10 closed ended questions and 1 opened ended question. The questions in this section are designed to assess for the social factors of the participants in this study. The section asked questions about education, employment, income, medical insurance and decision making to allow insights into the social factors that might be barriers in seeking western healthcare. The third section included 9 closed ended questions on cultural belief of the participants. The design of the questions in this section is to measure the cultural factors that might have an impact whether or not a participant will seek medical care from western physicians. All of these questions combined will assist the researcher to see if there are any association between the participant’s demographics, social factors and cultural beliefs as it relates to barriers in seeking healthcare from western medical providers. Data Analysis The researcher utilized the SPSS computer software program for the statistical analysis of the data collected from the research project. Descriptive statistics were used to summarize, present and describe the data that was collected. As part of the descriptive statistics, tables and measures of central tendency were utilized to provide representation 42 of the data for each of the different sections in the interview questionnaires. The researcher used chi-square to compute and see if there was any association between the amounts of time participants had been living in the United States and the participant’s willingness to seek healthcare from a primary care physician. Cross-tabulation was also used to distinguish the relationship between gender and decision making person in the family. The researcher further utilized cross-tabulation to analyze the relationship between gender, religious preferences, and the participant’s willingness to seek help from a primary care physician first. Limitations The researcher identified multiple limitations to this study. First, the study was only based on a limited number of fifty Hmong elders in the greater Sacramento region; therefore, the number is not large enough to establish a strong finding in order to relate it to other Hmong elders in other parts of the country. Second, all participating Hmong elders are not fluent in English; therefore, all question had to be translated into the Hmong dialect, making it difficult to explain each question and how much of the elders actually understood the full meaning of what is being ask. Since the questionnaire was not tested for validity or reliability, it is unsure how accurate the intended outcome would be. The fact that many of the elder participants were willing but hesitant to answer some of the questions, the researcher felt that some of the participants might not have been fully honest on some of their answers to certain questions. In addition, because the procedure used to recruit participant was based on a snowball sampling, it limits the 43 degree of a randomly selected research group; therefore, opinions could have been limited to a small selected group instead of random participants in the community. 44 Chapter 4 DATA ANALYSIS Introduction This chapter explores and presents the results obtained from the 29 interview questions that were administered to 50 Hmong elders living in the greater Sacramento Region. To reiterate, this is an exploratory study on the social and cultural barriers that prevents Hmong elders from seeking western healthcare, so better access to and a more culturally sensitive healthcare treatments can be provided to this population group. The first section of this chapter will examine the demographic portion of the research using descriptive statistics to present a visual representation of the results collected from the study. The rest of the survey materials, including section 2 and section 3 will also be examined using descriptive statistics. The following questions from section 3 of the questionnaire are analyzed using cross-tabulation to see if there are any relationships with the participant’s social factors or demographics. 1) When you get sick, who do you seek for help first, 2) When you are sick, who do you most likely take healthcare advise from, 3) Do you think that your inability to speak English is a barrier in seeking help from American Doctors, and 4) if your primary care physician was Hmong, would you feel more comfortable seeking medical care from him/her? Section 1: Demographics Based on the results, the age of all 50 participants varies between 60 and 89 years of age. There are 20% (n=10) between 60 and 64 years of age, while the highest concentration of all the participants are in the 65 to 69 year old range with a total of 34% 45 (n=17). The second highest concentration which is 26% (n=13) falls between the age of 70 and 74 years old. The rest of the participants are between the age of 75 to 79 at 12% (n=3), 80 to 84 at 6% (n=3) and 85 to 89 at 2% (n=1) (see table 1). Table 1 Age of Participants Valid 60-64 65-69 70-74 75-79 80-84 85-89 Total Frequency 10 17 13 6 3 1 50 Percent 20.0 34.0 26.0 12.0 6.0 2.0 100.0 Valid Percent 20.0 34.0 26.0 12.0 6.0 2.0 100.0 Cumulative Percent 20.0 54.0 80.0 92.0 98.0 100.0 Out of all the participants that participated in the research there are a total of 44% (n=22) who are male and 56% (n=28) who are female. The researcher expected to have more female participants than male participants because of the researcher’s experience with the Hmong community. The researcher understands that Hmong males tend to decline research more often than Hmong females. The outcome of gender participants coincides with the researcher’s expectation (see table 2). Out of the 50 participants 20% (n=10) indicated that they spoke Thai and 38% (n=19) stated that they can speak Laotian (see table 3 & 4). This is interesting because the researcher would assume that most of the participants would be able to speak Laos; however, the results showed that the majority are able to speak Thai. It could be that those who are able to speak Laos can 46 speak Thai because of the similarity of the language; however, since there are also a few of the participants who are recent refugees coming from Thailand in 2004 and 2005; these could be the ones making up the majority of those who could speak Thai. Table 2 Gender of Participants Frequency Percent Valid Male Female Total 22 28 50 44.0 56.0 100.0 Valid Percent 44.0 56.0 100.0 Cumulative Percent 44.0 100.0 Table 3 Able to Speak Thai I speak Thai Valid Yes No Total Frequency Percent 10 20.0 40 80.0 50 100.0 Valid Percent 20.0 80.0 100.0 Cumulative Percent 20.0 100.0 Valid Percent 38.0 62.0 100.0 Cumulative Percent 38.0 100.0 Table 4 Able to speak Laotian I speak Laotian Valid Yes No Total Frequency Percent 19 38.0 31 62.0 50 100.0 47 When asked to see the marital status of the participating subjects, 64% (n=32) responded that they are currently married, with a small 2% (n=1) who responded as being single. Obviously with the participating subjects being of older age, the results shows 30% (n=15) of participants as widows. This could also be that many of them probably loss their loved one during the secret war in Laos and was never remarried. There was only a small 4% (n=2) who considered themselves divorced (see table 5). The result overwhelmingly shows that older Hmong adults have a very small percentage of divorced within their family and this could be because of the traditional belief of the Hmong culture in regards to marriages. Older Hmong adults tend to stay within their marriages no matter what happens, unlike those of the younger generation. Table 5 Marital Status Valid Married Single Divorced Widowed Total Frequency Percent 32 64.0 1 2.0 2 4.0 15 30.0 50 100.0 Valid Percent 64.0 2.0 4.0 30.0 100.0 Cumulative Percent 64.0 66.0 70.0 100.0 As part of the demographic portion of the interview, participants were asked to identified their religious preference and out of the overall participating subjects, there were an overwhelming 70% (n=35) participants who identified themselves as being Shamanism. The rest of the other participants consisting of 30% (n=15) responded as being Christians. No other religious preference was identified even though there were 48 other types of religious beliefs different from the ones identified here in this research project. This does not show that majorities of Hmong are Shamanism, but only shows that a majority of those that happen to have been recruited to be participants in this research came from the traditional belief of Shamanism (see table 6). Since the research was done through a snowball sampling; therefore, random sampling was absent from the recruitment process. It could be that most of the people interviewed by the researcher only know more of those who are still traditional compare to those who have been converted to Christians. Table 6 Religious Preference Frequency Percent Valid Shamanism Christianity Total 35 15 50 70.0 30.0 100.0 Valid Percent 70.0 30.0 100.0 Cumulative Percent 70.0 100.0 To get an ideal of how long many of the participants had been living in the United States, all participants were asked to indicate the amount of years they have been living in this country. Table 7 shows that most of the participants had been living in the country for about 21 to 25 years, which is 32% (n=16) of the total participants. The second group consisted of 28% (n=14) who indicated that they have only lived in the country between 6 to 10 years, which these participants were presumably part of the most recent arriving Hmong refugees to this country in 2004 and 2005. The third group which is 22% (n=11) indicated that they have resided within the country between 26 to 30 years, making them 49 the folks who have been in the United States the longest of all the 50 participating Hmong elders. These groups of participants are probably those who came right after the end of the Vietnam War. The 18% (n=9) of the remaining Hmong elders stated that they have been here between 16 to 20 years (see table 7). Table 7 Amount of time living in the U.S Valid 6-10 16-20 21-25 26-30 Total Frequency Percent 14 28.0 9 18.0 16 32.0 11 22.0 50 100.0 Valid Cumulative Percent Percent 28.0 28.0 18.0 46.0 32.0 78.0 22.0 100.0 100.0 To have an idea of the family size of the participating Hmong elders, the researcher asked the participants to list the number of children that they had. A majority of them, which is 50% (n=25) have between 4 to 6 kids and the average mean is about 4 kids. This result seems about right with what the researcher has observed in the Hmong community. It is not a surprise to the researcher that 24% (n=12) of the participants indicated having between7 to 9 children, which was common among Hmong families. Since many of these older Hmong adults grew up in Laos, the belief of the benefits of having a huge family strongly influences their family sizes. There was a total of 20% (n=10) whom stated that they have between 1 to 3 children. The last remaining few of 6% (n=3) had between 10 to 12 children, which was quite a high number of children (see table 8). 50 Table 8 Number of Children Frequency Percent Valid Cumulative Percent Percent Valid 1-3 10 20.0 20.0 20.0 4-6 25 50.0 50.0 70.0 7-9 12 24.0 24.0 94.0 10-12 3 6.0 6.0 100.0 Total 50 100.0 100.0 Section 2: Social Factors To get an idea of the socio economic and educational backgrounds of the Hmong elders, the researcher asked all participants to indicate rather or not they had some form of education in Laos. Results indicated that out of the 50 Hmong elders, only 18% (n=9) responded that they had some form of education in Laos. The other 82% (n=41) stated they had no education at all. The 18% (n=9) that had an education, only 16% (n=8) was in school between 1 to 3 years and only 2% (n=1) indicated going to school between 4 to 6 years. Since the 82% (n=41) had indicated that they did not have any form of education in Laos, they did not check the number of school years, leaving the results as missing (see table 9). It is not a surprise that an overwhelming majority of the participants did not have some form of education because in Laos it was impossible for a majority of the 51 Hmong ethnic groups to be able to obtain any kind of formal education. For those that were able to attend school, it was probably because their family had money. Table 9 Attend school in Laos Valid Yes No Total Frequency Percent 9 18.0 41 82.0 50 100.0 Valid Percent 18.0 82.0 100.0 Cumulative Percent 18.0 100.0 Table 10 Number of years attended school Frequency Percent Valid 1-3 4-6 Total Missing 999 Total 8 1 9 41 50 16.0 2.0 18.0 82.0 100.0 Valid Percent 88.9 11.1 100.0 Cumulative Percent 88.9 100.0 When it comes to the type of insurance that the participants had, all 50 participants indicated having both Medi-Cal and Medicare coverage with an overwhelming 100% (n=50). The result shows that 100% of the participants are not currently working and receives SSI as their main sources of income (see table 11). Since many of the participants did not work while in this country, it is not a surprise that all of the participants in this group are on Medi-Cal and Medicare as their main source of health insurance. Even for those that did work a few years, it was not long enough for 52 them to receive any social security income. This result indicates that none of the participants had any private insurance to cover their healthcare and is dependent on governmental health coverage. Table 11 Insurance/Income Frequency Percent Valid SSI 50 Valid Percent 100.0 Cumulative Percent 100.0 100.0 Valid Percent 100.0 Cumulative Percent 100.0 I have Medi-care Valid Yes Frequency Percent 50 100.0 I have Medi-Cal Valid Yes Frequency Percent 50 100.0 Valid Percent 100.0 Cumulative Percent 100.0 When the Hmong elder participants were asked to report children of theirs that have obtained a college degree and based on table 10, 32% (n=16) indicated having at least one children with a college degree. The majority of the participants consisting of 68% (n=34) had no children who had completed a college degree (see table 12). This result shows that a huge percentage of the children belonging to these participants lack a formal college degree in this country. This could be associated with the fact that many of these older Hmong adults have not been here as long as other Asian groups. 53 Table 12 Children with degree Valid Yes No Total Frequency Percent 16 32.0 34 68.0 50 100.0 Valid Percent 32.0 68.0 Cumulative Percent 32.0 100.0 100.0 When it comes down to who makes the decision in the household, 42% (n=21) of respondents indicated that they make most of the decision, while 58% (n=29) indicate they did not make the decision in the household. This could be that majorities of the participants are female and females tend to make less decision within the Hmong family structure (see table 13). However, a strong majority of 98% (n=49) indicated that most of their children are involved and helps decide on their medical care. There was only a 2% (n=1) who responded that their children does not help with health care decisions (see table 14). This indicates that the children of these participants are highly involved in their healthcare needs and further supports the fact that Hmong are very family oriented. The researcher understands that individual Hmong elders even if they are the head of household, they will still consult relatives and their grown children for advices and decision-making. The result fits in with the researcher’s experience with local Hmong family especially, dealing with major health concerns. It has always been that Hmong elders will consult their families first before deciding on any major healthcare procedures. 54 Table 13 Decision making Valid Yes No Total Frequency Percent 21 42.0 29 58.0 50 100.0 Valid Percent 42.0 58.0 Cumulative Percent 42.0 100.0 100.0 Table 14 Children help decide medical care Valid Yes No Total Frequency Percent 49 98.0 1 2.0 50 100.0 Valid Percent 98.0 2.0 Cumulative Percent 98.0 100.0 100.0 Section 3: Cultural Beliefs and Healthcare Practices To see where most of the participants in the research were seeking healthcare advice from, the participants were asked to identify rather or not they seek advice from a primary care physician, a shaman, a herbalist or someone who had suffered from a similar illness. A strong majority of the participants 70% (n=35) indicated seeking advice from their primary care physician (see table 15). There were 62% (n=31) stating that they also seek advice from a shaman (see table 16). Table 17 shows a strong 82% (n=41) of participants responded that they take advice from a herbalist and with 74% (n=34) saying that they take advice from someone who has suffered from a similar illness (see table 18). This indicates that a strong majority of the participants are pluralistic in 55 their approach in seeking healthcare advice. This is evidence in the day-to-day practice of many Hmong adults and coincides with the literature review in chapter 2 on how Hmong utilize a pluralistic approach in seeking healthcare for themselves. This is no wonder why Hmong people will seek help from their physician, at the same time take herbal medicines, and seek help from a shaman or prayers from a priest. Table 15 Take advice from Physician Valid Yes No Total Frequency Percent 35 70.0 15 30.0 50 100.0 Valid Percent 70.0 30.0 100.0 Cumulative Percent 70.0 100.0 Valid Percent 62.0 38.0 100.0 Cumulative Percent 62.0 100.0 Table 16 Take advice from Shaman Valid Yes No Total Frequency Percent 31 62.0 19 38.0 50 100.0 56 Table 17 Take advice from herbalist Valid Yes No Total Frequency Percent 41 82.0 9 18.0 50 100.0 Valid Percent 82.0 18.0 100.0 Cumulative Percent 82.0 100.0 Table 18 Take advice from someone who had the illness before Valid Yes No Total Frequency Percent 37 74.0 13 26.0 50 100.0 Valid Percent 74.0 26.0 100.0 Cumulative Percent 74.0 100.0 Respondents were asked to see who they would most likely seek help from first if they were sick, and based on table 17, 36% (n=18) indicated that they would seek help from a Hmong shaman first. Out of the 50 participants, 48% (n=24) would most likely seek help from a primary care physician first, while the remaining 16% (n=8) would prefer help from a herbalist first (see table 19). The results indicated that there are little over 50% of the participants whom are still seeking help from traditional ways such as shaman and herbalist for their healthcare needs. This could point to the fact that many Hmong adults are still dependent on traditional ways of seeking healthcare and are still resistant to seeking help from their primary care physician as their first contact point. 57 Table 19 When you are sick, who do you seek for help first? Valid Hmong Shaman Folk herbalist Frequency Percent 18 36.0 8 16.0 Primary care physician Total Valid Percent 36.0 16.0 Cumulative Percent 36.0 52.0 100.0 24 48.0 48.0 50 100.0 100.0 All participants were asked to see how they felt about medications and an over whelming majority of 66% (n=33) felt medications were harmful to them. The remaining 34% (n=17) indicated that medications were more helpful then harmful (see table 20). This was not a surprise to the researcher because the researcher understands that a majority of older Hmong individuals do not completely follow the recommendations of their physicians. Table 20 Do you think prescription medications do more harm than good? Valid Yes No Total Frequency Percent 33 66.0 17 34.0 50 100.0 Valid Percent 66.0 34.0 100.0 Cumulative Percent 66.0 100.0 When asked to see what the participants would considered as barriers to seeking healthcare needs from western medical doctors, an over whelming 100% (n=50) indicated 58 that the lack of English proficiency as a major barrier to healthcare (see table 21). The result shows that language barrier is a major roadblock for Hmong elders when it comes to seeing their primary care physicians for healthcare needs. Also based on the results in table 20, 100% (n=50) stated that they would prefer a physician that speaks the Hmong language with 86% (n=43) feeling more comfortable is the physician was Hmong (see table 22). This could indicate that if most physicians can speak the Hmong language if is a Hmong person, more of the Hmong elders will likely seek help from their physicians more often. Only a small percentage of 14% (n=7) did not feel comfortable having a Hmong physician (see table 23). Table 21 Do you think that your inability to speak English is a barrier? Valid Yes Frequency Percent 50 100.0 Valid Percent 100.0 Cumulative Percent 100.0 Table 22 Prefer a primary care physician that speaks Hmong Frequency Percent Valid Yes 50 100.0 Valid Percent 100.0 Cumulative Percent 100.0 59 Table 23 Comfortable with a Hmong physician Valid Yes No Total Frequency Percent 43 86.0 7 14.0 50 100.0 Valid Percent 86.0 14.0 100.0 Cumulative Percent 86.0 100.0 Significant Findings As the purpose of the research is to look at the cultural and socio-economic factors that prevent Hmong elders from seeking western healthcare, it is crucial to look at the relationships between gender and the variable that makes the decisions in the family. In this, case cross-tabulation shows that male participants made up 95 % (n=21) of those who said they are the ones making the decisions, while 100% (n=28) of the female participants said no (see table 24). When computed to see if there are any significant relationships between the numbers of years one has been here in the United States and one’s willingness to seek a primary care physician for help first; table 25 shows that there are no significant relationship between how long the Hmong participants had been in the country and their willingness to take healthcare advice from a western physician (r=-.173, p>.228). This is surprising because the researcher expected that with longer time, acculturation of western culture would influence one’s acceptability of western healthcare. One other factor that was look at closely was religion preference in relation to seeking help from a primary care physician when the participants are sick. The cross- 60 tabulation in table 26 shows that of the 35 participants who preferred shaman as their religious preference, 51% (n=18) would seek help from a shaman. As for those who are Christians, 60% (n=9) indicated that they would seek help from a primary care physician first (see table 26). Even though the numbers of shaman participants and Christians are slightly imbalance, the result shows that those who are Christians rely more upon the help of their primary care physicians. Since a majority of the literature review indicated that the type of insurance has an impact on rather or not people will utilize healthcare services; however, the results from this research indicated that healthcare coverage is not a major factor in predicting the participant’s willingness to seek help from a physician. Table 27 shows that of the 50 participants who had both Medi-Cal and Medicare, only 48% (n=24) would seek healthcare from a physician, while the other 36% (n=18) would seek a shaman first and 16% (n=8) would seek a folk herbalist. This reinforces that Hmong elders continued utilize a pluralistic approach to healthcare despite having healthcare coverage. 61 Table 24 Decision making and gender When it comes to decision making, do you make them? Total Yes Count No Count What is your gender? Male Female 21 0 95.5% .0% 1 4.5% 22 100.0% Count Total 21 42.0% 28 29 100.0% 58.0% 28 50 100.0% 100.0% Table 25 Time in the U.S and taking advice from a physician How long have you been in the U.S? How long have you been in the U.S? Pearson Correlation Sig. (2-tailed) N I take advice from a Pearson Primary care physician Correlation Sig. (2-tailed) N I take advice from a Primary care physician 1 -.173 50 -.173 .228 50 1 .228 50 50 62 Table 26 Healthcare preference and religious preference When you are sick, who do you seek for help first? Total Hmong Shaman Count Folk herbalist Count Primary care physician Count Count What is your religious preference? Shaman Christian 18 0 51.4% 2 5.7% 15 42.9% 35 100.0% Total 18 .0% 36.0% 6 8 40.0% 16.0% 9 24 60.0% 48.0% 15 50 100.0% 100.0% 63 Table 27 Healthcare preference and having Medi-Cal When you are sick, who do you seek for help first? Hmong Shaman Count % within I have Medi-Cal Folk herbalist Count % within I have Medi-Cal Primary care Count physician % within I have Medi-Cal Total Count % within I have Medi-Cal a. No statistics are computed because I have Medi-Cal is a constant. I have Medi-Cal Yes 18 36.0% Total 18 36.0% 8 16.0% 8 16.0% 24 48.0% 24 48.0% 50 50 100.0% 100.0% 64 Chapter 5 CONCLUSION AND RECOMMENDATION Introduction In this chapter, the researcher summarized the major findings that are associated with the research purpose, which is to examine the cultural and socio-economic factors that prevent Hmong elders from seeking western healthcare. The chapter will first present a summary of the findings ranging from the demographics to the potential social and cultural barriers found through the research interviews. This is followed by brief recommendations for professionals in working with the older Hmong population, specifically for those residing within Sacramento County. The researcher have found himself questioning the cultural and socioeconomic factors that might have been influential for Hmong elders in their access to western healthcare; therefore, has inspired the researcher to explore the underlying cultural and socio-economic factors that are barriers to Hmong elders in seeking western healthcare. The researcher believes that having an understanding of the cultural and socioeconomic factors behind Hmong elders’ health seeking behaviors. It will not only allow Hmong elders better access to healthcare treatments; but to also bring broader awareness to the medical field in order to be more culturally sensitive; therefore, able to adequately address the problem of healthcare disparity among this population. The hope is that it will improve Hmong elder’s utilization of the healthcare system; therefore, lessening the healthcare disparity gap among this population and better treatment outcomes and diseases prevention among elderly Hmong immigrants in the United States. 65 Summary Based on history, Hmong people are the most recent arriving refugees from Southeast Asia and according to Lee and Pfeifer (2005), the majority of Hmong refugees started arriving here to this country in the mid to late 1970’s. The research indicated that of all the 50 participants, those that had been here the longest consisting of 22% (n=11) have been here between 25 to 30 years, which coincides with about the right time when Hmong refugees were arriving here in the mid to late 1970’s. The research indicates that a majority of participants lack formal education as evidence in the response to question 10 asking participants to see if they attended school in Laos. Only 18% (n=9) attended school in Laos, not to say that of the 18% (n=9), only 2% (n=1) had attended at least 4 years or longer of school. The rest of the 16% (n=8) had only attended between 1 to 3 years of school. This goes to show that many of the older Hmong adults who grew up in Laos lack formal education and therefore are not highly educated compare to other people. The lack of an education could be a social factor that prevents Hmong elders from utilizing western healthcare, which according to the Center for Diseases Control and Prevention (CDC, 2010), education plays a role in access to quality healthcare. The study further indicates that healthcare coverage is not a major factor in rather or not a Hmong elder would seek health services from a primary care physician since all participants had Medi-Cal and Medicare as their primary health insurance. Even though according to Reyes (2001), health insurance is a primary indicator of access to healthcare, however, the results from this study shows that despite have health coverage, there are only 48% (n=24) of the participants who would seek help from a physician first. This 66 could mean that health coverage is not a concern for the other 50% who are not seeking help from a physician. It would take more detail exploration in this area to find out more about the reasons for these other half of the participants who are utilizing traditional practices besides their primary care physician despite having Medi-Cal and Medicare. It is surprising that when the researcher looked at the amount of time spend in the United States and the participant’s willingness to seek healthcare services from their primary care physician, there is no significant relationship between these two variables. It could be that the ratio of those being here over 20 years and those who are recent within the last 7 years are scattered; therefore impacting the results to have an insignificant relationship. The researcher predicts that if there were a strong balance between those participants who were here over 20 years and those who were under 7 years, the results would be able to produce a better picture of whether or not it has a major impact on health seeking behaviors. Although about 70% (n=35) of the participants were still practicing shamanism while the other 30% (15) were Christians, the data shows that over half of those still practicing shamanism would rather seek healthcare from a shaman first. As for those who were Christians, a majority of them consisting of 60% (n=9) would seek help from a primary care physicians. This result shows that the Christian participants were more willing to rely on their primary care physicians for their healthcare needs. This indicates that the participant’s cultural practices in terms of religious belief have an impact on whether or not they will seek healthcare from a western physician or from traditional ways. 67 Considering decision making within the households of Hmong elders as an important component in deciding healthcare utilization, the researcher looked at gender and the relationship to decision making and to no surprise, an overwhelming 96% (n=21) of male participants indicated being the decision maker of their household. This shows that male figures are the prominent decision makers and their opinions on either themselves or a family member’s healthcare decision matters. As Culhane-Pera et al. (2003), indicated that Hmong men have more status and power over women; thus, making most of the decision within their own family. However, the research further indicates that even though the male participants overwhelmingly makes their own decision, 98% (n=49) of all the participants stated that their children also helps to decide their medical care. The result indicates that decisions regarding medical care are not made alone by the male participants, but are also impacted by the decisions of the participant’s children; therefore, it is a family matter when it comes to any medical decisions. According to Culhane-Pera et al., when social, political or health problem arises, Hmong men turn to their family and extended family members for assistance, which supports the results found in this research. One major finding from this research was the strong indication of language as a barrier to seeking healthcare from western health providers. According to the data, all 50 participants mark language as a major obstacle in obtaining healthcare services from their primary care physician. This shows that many of them are not fluent in the English language and is uncomfortable seeking healthcare services if they do not understand their health providers. Besides this, the results also indicated that all 50 participants also 68 would like to have a physician that is Hmong or at least speaks Hmong so they could understand. One major finding that was not a surprise to the researcher was the question on the benefits of prescription medications. Based on the result, 66% (n=33) of the participants agreed that prescription medications does more harm than good, which could explain the reason for the inconsistent consumption of medication based on physician recommendations. The researcher understands that a majority of Hmong elders does not follow through with taking their prescribed medications and will not take it throughout the whole duration that is recommended. Social Work Implications It is important that professional social workers working with the Hmong population especially, the elders should constantly be aware of the cultural sensitivity of the topics at hand when discussing issues regarding major health concerns. It is crucial that social workers working at the micro level have a basic understanding of Hmong elder’s concept of health and illnesses and should be cautious at how responses from health professionals and the individual’s healthcare experience can impact his/her health seeking behaviors. Through cultural awareness training and social worker’s willingness to listen empathetically to individual’s unique perspective, despite cultural competency will enhance social worker’s ability to advocate on behalf of their Hmong clients. While it is important to be culturally competent working with Hmong clients, it is important that social workers become the voices of their clients and bring about changes at the macro level through educational awareness and policy changes in the healthcare arena. Social workers could influence policies that would provide culturally sensitive 69 treatments to Hmong clients in western healthcare settings and enhance the communication between physicians and their Hmong patients. It could be as simple as recognizing the pluralistic utilization of health treatments among Hmong elders; therefore, developing less restricted policies that incorporates to a certain extent, traditional healings in a medical setting. Recommendations for Future Research One important factor that was strongly indicated in this study was the issue of language barriers, which many of the participants felt was an issue when dealing with western physicians. The recommendation from this is to have in existence a culturally appropriate healthcare interpretation system. The interpretation system would provide well-trained culturally sensitive individuals to help translate for those participants who do not speak English fluently. It is also not just a matter of having an interpreter, but as cited in Culhane-Pera et al. (2003), providers should also acquire some language skills that would allow them to communicate respect to this group of population. By having more culturally sensitive interpreters’ available and culturally appropriate communications between professionals and participants, it would potentially have a positive impact on the relationship and trust of older Hmong adults. Since religious belief and cultural practices play a major role in influencing participant’s health seeking behaviors, it is crucial that professionals working with Hmong elders should have a basic understanding of the health concepts and religious beliefs of their Hmong patients. Understanding how a Hmong elder views the cause of his/her, illness would allow professionals to see their Hmong patient’s perspective and 70 not have to force their own conclusions onto their patients. The recommendation is to develop a manual that would provide all health concepts and health beliefs among the Hmong people in regards to the causations of disease and ways of curing sickness within their cultural beliefs. Based on this study, the results also indicated that Hmong elders are very pluralistic in their approach in seeking healthcare; therefore, professionals should consider this and should not deny or insult these practices. It is crucial that professionals work hand in hand with their Hmong patients and show their respects towards these other alternative traditional healthcare practices. The recommendation is to develop a system in place where hospitals and other healthcare settings would allow traditional healers to provide healthcare assistance as supplemental treatments alongside western medical care for Hmong patients. This exploratory research still has a lot of question that were not answer and only touched the surface of the issues concerning the cultural and socio-economic barriers that prevents Hmong elders from seeking western healthcare. It would take a more detail research of the specific cultural barriers and a larger sampling size in order to have a clearer understanding of the barriers. An example of possible future studies could be a more detail research of the specific Hmong concepts of health and illness in the United States. Through a thorough research on this topic, it could potential open up more questions and understanding of the impact it has on Hmong’s health seeking behaviors. 71 Conclusion Although individual Hmong participants in this research study come from a similar cultural background, they all have different religious beliefs and opinions that influence their perception of health and wellbeing. It is important that even though many of them might believe in the same religion or cultural experiences, they all are unique in their own ways and should not be assuming to have common opinions in terms of seek healthcare from western providers or relying on tradition healthcare practices such as a shaman and herbalist. As the research indicates, there is still a strong cultural and religious influence especially, among those who are still traditional in their religious belief. Therefore, professionals must continue to maintain a respectful and culturally sensitive approach in assisting older Hmong adults with their healthcare needs in order to provide effective health treatments for this population. Utilizing a holistic approach in either the social work or health professional field would be a beneficial approach in working and understanding this population and their health needs. 72 APPENDIX A INTERVIEW QUESTIONS 73 Interview Questions Introduction The purpose of this interview questionnaire is to acquire information pertaining to the social and cultural factors that influences Hmong elders’ reluctance in seeking western healthcare. The information collected will only be used for developing the interviewer’s thesis paper and all information collected on behalf of this project will be strictly confidential. Please respond to all questions to the best of your knowledge. Demographics: 1. What is your age? _____ 2. Gender: Male_____, Female______ 3. Besides the Hmong language, what other languages do you speak? Thai Others (Please specify) Laotian 4. What is your current marital status? Married_____, Single_____, Divorced_____, Widowed_____. 5. What is your country of Origin? Thailand_____, Laos_____, Vietnam_____, Others (Please specify)_____ 6. What is your religious preference? Shamanism_____, Christianity_____, Buddhism_____, Others (please specify)_____ 7. Overall, how many children do you have? 8. How long have you been in the United States? _____Yrs. 9. List any current or past employments that you have had after arriving in the United States? 74 Social Factors 10. Did you attend school in Laos? 1. Yes 2. No 11. If yes, how may schooling years did you completed? _________/years 12. Are you currently employed? 1. Yes 2. No 13. If not currently employed, your source of income? ____________/type of income 14. What kind of health insurance do you have? 1. Medicare 2. MediCal 3. Private (Please specify) 4. None 15. Do you have any children with a college degree? 1. Yes 2. No 16. If Yes, how many of your children have college degree (Associate degree or higher). ____________/No. of children 17. When it comes to decision making, do you make most of the decision? 1. Yes 2. No 18. When it comes to taking care of medical needs, does your children help decide the types of healthcare treatment for you? 1. Yes 2. No 19. Do you have transportation when you need to visit your primary care physician? 75 1. 2. Yes No 20. Do you considered yourself knowledgeable about the healthcare system in the United States? (Please explain) Cultural beliefs and Healthcare Practices 21. Do you have a Western primary care physician? 1. Yes 2. No 22. When dealing with illness, do you also consult Hmong shaman for recommendation? 1. Yes 2. No 23. When you get sick, who do you seek for help first? (Mark any that apply) 1.) Hmong healer (Shaman) _____ 2.) Folk herbalist ____ 3.) Primary care Physician ____ 4.) Others (Please specify)_____ 24. When you that apply) 1. 2. 3. 4. 5. are sick, who do you most likely take healthcare advice from? (Check all Primary care physician Hmong shaman Herbalist Someone who has recovered from a similar illness Others (Please specify) 25. Have you had an experience where you were sick, but your primary care physician was not able to diagnose your sickness? 1. Yes 2. No 76 26. Do you think prescription medications do more harm than good? 1. Yes 2. No 27. Do you think that your inability to speak English is a barrier in seeking help from American Doctors? 1. Yes 2. No 28. Would you prefer to have a primary care physician that speaks Hmong? 1. Yes 2. No 29. If your primary care physician were Hmong, would you feel more comfortable seeking medical care from him/her? 1. Yes 2. No 77 APPENDIX B Oral Consent to Participate in the Research Study I, Chue Xiong, a Masters of Social Work student over at California State University of Sacramento would like to invite you to participate in my research. The purpose of this research is to explore the difficulties experienced by Hmong elders while seeking healthcare from western medical doctors. I realize that there is a healthcare disparity among the Hmong elder population and through this project, I hope to find out why Hmong elders are reluctant to see western medical doctors for their healthcare needs. This research will not benefit you directly, but would help social workers and American Doctors to recognize the cultural differences within the Hmong community and hopefully will use the information in this research to better reach out to the older Hmong populations. This is voluntary so you are not obligated to participate and there will be no monetary gifts or goods of any kind given to you, but your participation will be greatly appreciated by me. There will be a total of 29 questions that you will have to answer and it is estimated to take you about 50 to 60 minutes. Each of the questions will be explain thoroughly to you. If you feel uncomfortable during the interview process or afterward, and would like to end your participation, please let me know and I will discard the data collected from you. Your participation in this research will be strictly confidential, which means that all information collected from you will be kept in a locked cabinet; therefore, only my research advisor and I will be able to access it. I will ask that you do not give your name, address or any identifiable information. There might be a few personal questions that may make you feel uncomfortable; therefore, I do have local community resources that will be given to you if you do need to talk to someone. If you have any questions or concerns, you can reach me at (916) 524-7538 or my research advisor Dr. Lee at (916) 278-5820. I would greatly appreciate it if you would be willing to participate in this research, so will you like to be a participant? 78 APPENDIX C Human Subjects approval form CALIFORNIA STATE UNIVERSITY, SACRAMENTO DIVISION OF SOCIAL WORK TO: Chue Xiong Date: 12/12/2011 FROM: Committee for the Protection of Human Subjects RE: YOUR RECENT HUMAN SUBJECTS APPLICATION We are writing on behalf of the Committee for the Protection of Human Subjects from the Division of Social Work. Your proposed study, “Hmong elder’s social and cultural barriers toward seeking western healthcare.” __X_ approved as _ _ _EXEMPT _ __ NO RISK __X__ MINIMAL RISK. Your human subjects approval number is: 11-12-045. Please use this number in all official correspondence and written materials relative to your study. Your approval expires one year from this date. Approval carries with it that you will inform the Committee promptly should an adverse reaction occur, and that you will make no modification in the protocol without prior approval of the Committee. The committee wishes you the best in your research. Professors: Jude Antonyappan, Teiahsha Bankhead, Maria Dinis, Serge Lee, Kisun Nam, Francis Yuen. 79 REFERENCES Baer, H., A., (2001) Biomedicine and alternative healing systems in America: Issues of class, race, ethnicity, & gender. Madison, Wisconsin: The University of Wisconsin Press. Barr, D., A. (2008) Health disparities in the United States: Social class, race, ethnicity, and health. Baltimore: The Johns Hopkins University Press. Betancourt, J., Green, A., R., Carrillo, J., E., & Ananeh-Firempong, O. 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