ANTHROPOLOGY OF HEALTH, ILLNESS, AND MEDICINE Ethnocentrisms: Disease-Illness distinction • DISEASE — as a bio-scientific concept – Abnormalities in the structure & function of body organs & systems • ILLNESS -- lay concepts – Illnesses are “experiences” of disvalued changes in states of being & in social function • Cartesian Legacy “health defined”? • • • • Disease – abnormalities Illness – experience of Suffering – sickness episodes Health? – Ability to function & Independence – Both are crucial features of labor in capitalist society • Medicine works to restore & remedy labor disruptions • Emic Knowledge – ethno(s) – Ability to function – culturally, social, historically anchored definitions – Flows and blockages EXPLANATORY MODELS OF ILLNESS/DISEASE • offer explanations of sickness & treatment to guide choices among available therapies & therapists and to cast personal & social meaning on the experience of sickness – – – – causes of the condition timing & mode of onset the physiology of the condition the natural history of the condition-its course & outcome (including severity) – appropriate treatments • practitioners & patients EMs “It’s Not the Germs!” • Etiology – disease causation – Germs, nature, society, individual factors, super-nature • Ethnoetiology – local knowledge & practices related to theories of disease causation – human - breaking taboo, social or moral transgressions, behavioral control, pollution – spiritual/supernatural - possession, magic, spells, God's punishment, presence in spiritual power places/persons – natural - humors, noxious miasmas, dry-wet, germs, hygiene, environment – Agents (personalistic): contextual (naturalistic) – Internalizing (physiological/internal mechanisms): externalizing (events outside the body/external pathogenic agencies Social labelling • Order & disorder – normal & abnormal • Social labeling & illness, disease, disability – Who is to be called ill, diseased, disabled is determined by the individual’s social position and society’s norms rather than by universal and objectively defined signs and symptoms • A person is labeled in the course of social negotiations • de-labeling difficult • At each decision point it may be possible to return to the normal label STRUCTURE-FUNCTION & MEDICINE • Practitioner-patient relationship – Institutional integration • Institutions defined as a society's recurrent patterns of activity – The “sick role” (T. Parsons) • Illness as a form of “deviance” – Physicians & return to equilibrium – Alcoholism? Poverty related health issues? – Compliance as solution? – Local healthcare system Abnormality/Deviance & the Sick role (T. Parsons) • Rights: – The sick person is exempt from “normal” social roles. • relative to the nature and severity of the illness – The sick person is not responsible for his or her condition. • An individual’s illness is usually thought to be beyond his or her own control • A morbid condition of the body needs to be changed and some curative process apart from person will power or motivation is needed to get well. • Obligations: – The sick person should try to get well. The first two aspects of the sick role are conditional upon the third aspect – The sick person should seek technically competent help and cooperate with the physician. medicalization • the process by which health or behavior conditions come to be defined and treated as medical issues • the process by which certain events or characteristics of everyday life become medical issues, and thus come within the purview of doctors and other health professionals to engage with, study, and treat • The process of medicalization typically involves changes in social attitudes and terminology, and usually accompanies (or is driven by) the availability of treatments The social production of health • Shift from disease focus of medicine • Shift from focus on medicine • Same emphasis on power, inequality, social relationships/organization/structure • Social characteristics play a predominant role in determining sickness and health status • Occupation related to health • Social position: class, ethnicity, gender, age • disease & feelings of sickness not determined solely by underlying biology Society and health • Social relations of sickness which produce forms and distributions of sickness in society • Sickness is the process through which worrisome behavioral and biological signs, particularly ones originating with disease, are given socially recognizable meanings resulting in socially significant outcomes • Sickness is a process for socializing disease and illness • The social order is embedded in medical beliefs “SOCIAL FORCES AND PROCESSES EMBODIED AS BIOLOGICAL EVENTS” THE CRITICAL PERSPECTIVE • Paul Farmer: • “Inequality itself constitutes our modern plague – inequality is a pathogenic force” • “Social inequalities often determine both the distribution of modern plagues and clinical outcomes among the afflicted” Life Expectancy & Ethnicity in the US Canada, Health, & Inequalities Non-Medical Determinants of Health • In First Nations communities only 56.9% of homes were considered adequate in 1999--00. • 33.6% of First Nations communities had at least 90% of their homes connected to a community sewage disposal system. • In 1999, 65 First Nations and Inuit communities were under a boil water advisory for varying lengths of time-an average of 183 days of boil water advisories per affected community. • Many communicable diseases such as giardiasis and shigellosis (both acute infectious diseases characterized by diarrhea, fever and nausea) can be traced to poor water quality Cultural Capital & Health World-Wide Health Inequalities WORLD SYSTEMS World Systems (I. Wallerstein) • A world-system is a social system – one that has boundaries, structures, member groups, rules of legitimation, and coherence. • made up of the conflicting forces which hold it together by tension and tear it apart as each group seeks eternally to remold it to its advantage. • a life-span over which its characteristics change in some respects and remain stable in others. • its structures -- at different times strong or weak in terms of the internal logic of its functioning. Medicine as a Cultural System • all human groups develop some set of beliefs, patterns of thought, perceptions consistent with their cultural systems for defining & conceptualizing disease • all societies have medical practices and beliefs based on theories of diseases & disease causation with an internal logic of their own, and should not be dismissed as bizarre, esoteric, illogical, & irrational bits and pieces of belief & practice in exotic cultures Medicine as a Social System • all human groups develop methods & allocate roles congruent with their resources & structures for coping with or responding to disease • norms governing choices and evaluations of treatment - the types of treatment they believe in, and to whom they turn if they do become ill • social statuses, roles, power relationships – patients & healers - basic components of health care system – embedded in specific configurations of cultural meaning and other social relationships • interaction settings - clinic, hospital, with healer, family, society-atlarge • institutions related to health and healing Medicine as Social Construct • Medicine is a set of categories that filters and constructs experience • Medicine produces its own objects and subjects (subjectivity & subject positions) – i.e. body mind dualism – nature is separate from society Materia Medica: Therapies & Medicines • Transformative power put to different purposes – From therapeutic to toxic – Simultaneous noxious & beneficial • Material things used intentionally to achieve and effect in some body • change minds, situations and modes of understanding • Material things that have social lives and cultural biographies • Material things that have the power to transform bodies/minds – the significations of efficacy Hierarchies of Resort & Medical Pluralism • agency - "patients... are reflective actors who review information about health and illness and make decisions based on what makes sense given their experience of bodily changes, the framework of their prior knowledge, and the everyday life situation in which illness is lived and treatment is used." Medical Pluralism and the Cultural • Richard Fox - culture is in a constant state of becoming/inthe-making • unitary set of rules & meanings continually are in-themaking through oppositions & struggles among groups, where groups themselves & the rules that regulate their interactions only develop in the process of ongoing social relations • culture often is taken as a constant & long - lived cultural pattern, a coherent set of cultural meanings is only a momentary & localized product of human action & contest, culture always "is," but it has always just become so Medical Pluralism and the Cultural • "culture as... the fabric of meaning in terms of which humans interpret their experience and guide their actions... "man is an animal suspended in webs of significance he himself has spun, I take culture to be those webs, and the analysis of it to be therefore not an experimental science in search of law but an interpretive one in search of meaning." Medicine as a Cultural System • all human groups develop methods & allocate roles congruent with their resources & structures for coping with or responding to disease • all human groups develop some set of beliefs, patterns of thought, perceptions consistent with their cultural systems for defining & conceptualizing disease • all societies have medical practices and beliefs based on theories of diseases & disease causation with an internal logic of their own, and should not be dismissed as bizarre, esoteric, illogical, & irrational bits and pieces of belief & practice in exotic cultures Medicine as a Social System • norms governing choices and evaluations of treatment - the types of treatment they believe in, and to whom they turn if they do become ill • social statuses, roles, power relationships – patients & healers - basic components of health care system – embedded in specific configurations of cultural meaning and other social relationships • interaction settings - clinic, hospital, with healer, family, society-at-large • institutions related to health and healing Local Health Care Systems & Medical Pluralism • The health care system is a concept, not an entity – a conceptual model held by the researcher • The model of a health care systems derived by the researcher by examining how people think about health care, the ways people act in it and use its components Local Health Care Systems • health care as a system that is social and cultural in origin, structure, function, and meaning • Health care systems are forms of social reality • Clinical practice occurs in and creates particular social worlds – clinical reality – the health related aspects of social reality – attitudes and norms concerning sickness, clinical relationships, and healing activities Indonesia: From an Ethnographic Point of View • Pembangunan – development, lit. “to wake up,” “to structure/form,” “to rise, “to model” • Suharto’s New Order – pembangunan government • 1990s – epi/health transition – Cultural critique Medical Pluralism, Modernity, & Health Transitions Healing the Modern in Indonesia • a theory, a livelihood, or a health condition conjoined in expected and unexpected ways that sometimes are not easily contained by a globalizing “regime of modernity” • process of global integration, a process coined as modernity, producing a “unified history of the world” that shapes “meanings and values as they are actively lived and felt” into now transnationally, globally shared “structures of feeling” – All over progress? Local & Global: The Irony of Progress