Integrated Health and Social Care? Of course we need to share information but……. Ken Eason Emeritus Professor Loughborough University The Bayswater Institute London k.d.eason@lboro.ac.uk The Need and the Problem • The Need There are growing numbers of: • Vulnerable elderly people at home • People with long-term conditions at home who may need complex health and social care • The Problem – Health and Social Care are separate services and support is offered through many different agencies – We need integrated person/client/patient-centred care but we get… – Fragmented and uncoordinated services • The Solution – We need to be able to share client/patient information across ‘the team’ to promote integrated person-centred care Who needs to share information? Mental Health Hospital Specialists Friends Family Carers Community Nurses Social Workers Ambulance Services GP Health Services Charities Patient/C lient A&E Police Social Services So what’s the problem? The Target Ideally we need a ‘team’ of people working together and sharing information so that each client/patient can receive person-centred, integrated care Structural Problems Professional/Ethical Issues What is this ‘team’? What can be shared with whom? Many different agencies with different agendas Many different information systems The ‘team’ for each client/patient: • Has permeable boundaries • Is different for each client/patient • Is changeable over time, e.g. ‘stepping up’ in times of crisis • Is virtual (little opportunity for everyone to meet) • Includes the patient/client (selfmanagement opportunities) • Many different kinds of contributors, e.g. family members, health professionals • A range of different legal responsibilities, authority over resources etc • Patient/client records are confidential: who can ‘read’ and ‘write’ issues • Each profession has its own technical language Four Routes to Solutions Approaches Examples 1. Process solutions Diabetic pathway and protocols 2. Macro Organisational Solutions 3. Micro Organisational Solutions Integrating Health and Social Care Integration Facilitators 4. Information System Solutions Shared Electronic Records How to share information? 1. A long-term condition pathway e.g. diabetes Mental Health Friends Family Patient/C lient Benefits e.g. The Diabetic Pathway Hospital Specialists Community Nurses GP Health Services A&E Charities Social Carers Workers • Shares information, as needed, between patient and professionals • Can promote self-management Ambulance • Can include dedicated telehealth Services Issues Social • Leaves Police out all other stakeholders Services • How to cope with multiple long term conditions? • Pathways can be ‘prescriptive’: do they match the reality of patient care? How to share information? 2. Organisational Integration of Health and Social Services Friends Family Charities Mental Health Hospital Specialists Health Services Patient/C lient Community Carers Patient/C Nurses lient Benefits Social Ambulance • Aligned organisation: ‘All singing from the GP Workers Services same hymn sheet’ • Shared electronic information systems A&E Issues • Still leaves out important stakeholders Police Social • Will it actually align the goals of all Services agencies? • It could be a very long time coming… How to share information? 3. Integration Facilitators Mental Health Family Friends Charities Patient/C Community lient Benefits Carers Social Matrons • Community A local agency with responsibility for Workers Hospital coordinating care on a case-by-case basis Nurses Specialists • Can ensure everyone relevant (including MultiAmbulanceinformation Case Primary patient/client) has up-to-date Disciplinary Managers Services Care GP Teams Navigators Issues • Each agency tends to have a partial ‘reach’ Police A&E • What access do they have to relevant Social Health information systems? Services Services • Do not have authority to coordinate services. What strategies can they use? How to share information? 4. Shared electronic patient/client information systems Shared, virtual, up-to-date, case-sensitive, accessible, confidential…. Benefits Issues Friends Charities •Mental Accessible to allFamily stakeholders • Read and write access control: who Patient/C has access to what information? • Health Up-to-date so all know ‘state-oflient • Managing emergent boundaries play’ Social of team in each case Carers Workers Hospital Community Technical Opportunities • Usability: by clients/patients; by Specialists Nurses • Mobile technology ‘mobile’ care staff etc • Patient and client information • Who manages/coordinates the Ambulance systems? GP system for each patient/client? Services • Telehealth and telecare Social Health • Self-management education and Services Services Police A&E support Some tentative conclusions • Need solutions that integrate processes, organisation and information systems • Need macro frameworks that facilitate……. • Local, dynamic, case-by-case solutions – establish the care package and configure the information system – opportunities for team members to build trust and shared understanding • Do it soon (I haven’t got much time!)