Information Technology: Putting the Patient at the Center of the Information Flow 25th Annual Rosalynn Carter Symposium on Mental Health Policy November 6, 2009 Robert M. Kolodner, MD The Ultimate Reason for Health IT Perspective for you to consider: What quality and value of health care services do you demand? What quality of health do you want and deserve? Carter Symposium -- Kolodner 2 November 6, 2009 Topics For My Brief Remarks I. Current Health Care Challenges II. Future of Health and Care III. Health Information Technology (IT) IV. And then there was $$$$ V. Potential New Health IT Direction VI. Caveats Regarding Change Carter Symposium -- Kolodner 3 November 6, 2009 Section 1 Current Health Care Challenges And Health IT Carter Symposium -- Kolodner 4 November 6, 2009 Why is Health IT a Central Strategy for Health Care? Current Lack of Information: • Higher Costs – Leads to 1 in 7 hospital admissions* • When care providers do not have access to previous medical records – – 12% of physician orders are not executed as written* 20% of laboratory tests unnecessary* • Requested because previous studies are not accessible • Avoidable Errors – Drug errors • Complicate 1 in 6.5 hospitalizations • Occur in 1/20 outpatient Rxs * Revolutionizing Health Care Through Information Technology President’s IT Advisory Committee (PITAC), 2004 Carter Symposium -- Kolodner 5 November 6, 2009 Problems with Both Safety and Quality To Err is Human: 98,000 patients die from avoidable errors The Quality Chasm: Every Patient “Crossing the Quality Chasm” 2001: IOM Americans receive on average 55% of the evidence-based care** ** N Engl J Med 2003;348:2635-45. Carter Symposium -- Kolodner 6 November 6, 2009 Quality/Reliability Challenges Remain in Health Care • • • • Immunization: 55 – 94% B-Blocker after an MI: 70 – 98% Airline Baggage Handling: > 99.99% Airline Safety: > 99.9999% 10-1 10-2 10-3 10-4 10-5 10-6 Frequency of Failures Occurring From Dr. Jonathan B. Perlin. Used with permission. Carter Symposium -- Kolodner 7 November 6, 2009 New Freedom Commission on Mental Health Final Report: Achieving the Promise: Transforming Mental Health Care in America Carter Symposium -- Kolodner 8 November 6, 2009 Privacy and Security: Concerns • • • • Control of information and flow Breaches of security and violations of privacy Technology leading policy Identity Theft/ De-identification • Secondary uses of data • Ability to aggregate data • Lack of understanding about how info is currently used • Genomic data and family history affect family members • Consequences (loss of insurance, work, or other forms of discrimination) Carter Symposium -- Kolodner 9 November 6, 2009 Katrina: Impact Of Privacy on People with MH & SA Disorders www.katrinahealth.org/patients.html Carter Symposium -- Kolodner 10 November 6, 2009 Community Health: Hurricane Katrina Relief • 50,000 New Orleans VA Patients did not lose their medical records, even when they lost their City - Their VA Electronic Health Records followed them around the U.S.! Carter Symposium -- Kolodner 11 November 6, 2009 Section 2 The Future of Health and Care Transforming Health Care: Moving from Treating to Preventing to Predicting 1. Adapted from Perlin, Dr. Jonathan B, Healthcare 1015 & beyond: Some Thoughts on Planning Ahead, p. 95 Carter Symposium -- Kolodner 13 November 6, 2009 Perspective of People on Their Future Health Care • Stay Healthy • Prevention • Increased Self-Care • Personal Health support • Convenient Care • Minimize time and travel • Tele-care • Tele-monitoring • High Quality, Coordinated Care • Enable care across providers & sites • Allow access to a lifetime of information – wherever and whenever They choose Better Health Carter Symposium -- Kolodner 14 November 6, 2009 Future Health ^ Care Direction Person-Centered Patient-Centric Carter Symposium -- Kolodner Consumer-?? 15 November 6, 2009 Section 3 Health Information Technology (IT) Carter Symposium -- Kolodner 16 November 6, 2009 Health IT – Role in Health Care Transformation ^ Health Care Transformation Population Health (Higher Quality, More Efficient, PatientFocused) (Public Health, R&D, Quality Improvement, Emergency Preparedness) Health IT solutions must support the needs of BOTH “perspectives” Carter Symposium -- Kolodner 17 November 6, 2009 Key Health IT Components to Enable Transformation A Robust, Interoperable, Health IT Environment: • Electronic Health Records (EHR / EMR) • Personal Health Records (PHR) • Population Health Information (Public Health, Biosurveillance, Quality Improvement, Research, Emergency Preparedness) • Standards (Data, Technical and Security) • Interoperable Health Information Exchange Network (Nationwide Health Information Network - NHIN) Carter Symposium -- Kolodner 18 November 6, 2009 Health IT User populations Individuals Care Providers Population Health Carter Symposium -- Kolodner 19 November 6, 2009 Person-centered Individuals Care Providers Population Health Carter Symposium -- Kolodner 20 November 6, 2009 However This is NOT about technology… It is about RESULTS: • Improved Health Care Quality • Containing Health Care Costs • Improved Health Care Outcomes • Improved Health Carter Symposium -- Kolodner 21 November 6, 2009 Section 4 And then there was $$$$ Carter Symposium -- Kolodner 22 November 6, 2009 The American Recovery and Reinvestment Act of 2009 American Recovery and Reinvestment Act (ARRA) Health Information Technology for Economic and Clinical Health Act [HITECH Act] in H.R.1 http://www.whitehouse.gov/the_press_office/ARRA_public_review/ Carter Symposium -- Kolodner 24 November 6, 2009 American Recovery and Reinvestment Act (ARRA) Carter Symposium -- Kolodner 25 November 6, 2009 American Recovery and Reinvestment Act (ARRA) Estimated $17,200,000,000 net over 10 years starting in 2011 Carter Symposium -- Kolodner 26 November 6, 2009 Key Acronyms and Phrases for U.S. Health IT Meaningful Use Carter Symposium -- Kolodner 27 November 6, 2009 Section 5 Potential New Health IT Direction and Impact Carter Symposium -- Kolodner 28 November 6, 2009 Disruptive Changes Are the “Norm” Carter Symposium -- Kolodner 29 November 6, 2009 Clay Christensen’s Statement “Head on competition drives prices up. Disruption drives cost and prices down.” HIT Platform Meeting – Boston Sept 30, 2009 Carter Symposium -- Kolodner 30 November 6, 2009 Disruptive Innovations in (Health) IT GENERAL TRENDS: • Users have more capabilities at lower cost • Users can create their own individual “environment” • Simple-to-use • Configuration settings • Downloads • Rearrangements of application locations • Users are creating more of their own content and posting it on the web for all to see • Web 2.0 • Web 3.0 • Health 2.0 Carter Symposium -- Kolodner 31 November 6, 2009 Disruptive Innovations in (Health) IT New Business Models: • More “Open Source” solutions available • Changing business models – “user-centered” • Business opportunities through support services rather than “vendor lock” • Enables users to share solutions more widely and accelerate innovation HOWEVER • “Open Source” ≠ Free Carter Symposium -- Kolodner 32 November 6, 2009 Transforming Health The “locus of control" is changing. Carter Symposium -- Kolodner 33 November 6, 2009 Section 6 A Few Caveats Regarding the Pattern of Change Carter Symposium -- Kolodner 34 November 6, 2009 How Transformational Change Occurs EHR Adoption Transformational Change in Health Care Delivery & Health Health IT Tipping Point TIME Carter Symposium -- Kolodner 35 November 6, 2009 Opportunities Created by the World Wide Web Carter Symposium -- Kolodner 36 November 6, 2009 A Repeating, Predictable Cycle… Cited in Paykel, ES and Coppen A, Eds. Psychopharmacology of affective disorders. Oxford University Press. 1979, page 160. Carter Symposium -- Kolodner 37 November 6, 2009 Carter Symposium -- Kolodner 38 November 6, 2009 In Summary Carter Symposium -- Kolodner 39 November 6, 2009 Health IT “Success”: A Vision for 300 Million You have • Safe, high quality, efficient, convenient care wherever you are • Health IT is woven into the fabric of health care delivery nationwide • Your health information available to you or whomever YOU choose – anytime, anywhere • The information to make informed choices to improve your health and well-being • Timely, personalized, context-sensitive health information serves as a valuable and useful resource • Trust that your privacy is protected • And that your health information can be aggregated with that of others – without compromising your privacy Carter Symposium -- Kolodner 40 November 6, 2009 The Ultimate Reason for Health IT Health IT is a key enabler for us ALL to get: The quality and value of health care services we demand The quality of health we want and deserve Carter Symposium -- Kolodner 41 November 6, 2009