WHAT DOES MEDICAL HOME
MEAN TO YOUR FAMILIES
Medical Care is just part of our lives
Medical Goals What does it mean for patients
• Accessible
• Family Centered
• Continuous
• Comprehensive
• Coordinated
• Compassionate
• Culturally Effective
• Be there when I need you
• Recognize that I’m the most important member of the team
• Be my partner over time
• Provide or help me with the health care services I need
• Help me navigate the health care system.
• Know me as a person
• Speak to me so I can understand you.
YOU MAY FIND:
• “AFTER HOUR” APPOINTMENTS
• CARE COORDINATORS
• INFORMATION ABOUT COMMUNITY RESOURCES
• INFORMATION IN YOUR OWN LANGUAGE
Medical home care coordination
Practice-Based Care Coordinators
Not always done by the physician
• Makes sure specialists and primary care doctors are communicating
• Coordinates appointments
• Is aware of, and shares with you community resources
• Communicates with schools, mental health, dental
• Refers you to other families for peer to peer support
You may experience:
• More questions about your child’s behavior
• More questions about your social living situations
• More questions about mental health
• More “screening” questionnaires about your child’s development
• More questions about your child’s school experience
Family Centered Care requires family input!
Moving from “They told me…” to “WE decided…”
• Expect to share with your doctor what your child does well
(his strengths)
• Expect to share your concerns
• Expect to participate in decision making and planning care and treatment
• Be prepared before attending a well child visit!
PARENTS SHOULD FEEL MORE
CONFIDENT CARING FOR THEIR
CHILDREN WITH SPECIAL NEEDS AFTER
AN APPOINTMENT,
NOT LESS CONFIDENT!
SOMETIMES OUR KIDS DO AMAZING THINGS