The POLST Paradigm for Patients with Advanced, Irreversible Illness: Is There A TJ Basis for Legal Codification Marshall B. Kapp, JD, MPH Center for Innovative Collaboration in Medicine and Law Florida State University (USA) marshall.kapp@ med.fsu.edu Agenda POLST Paradigm – Concept – Implementation thus far – Florida’s experience Need for Legal Action? TJ – Concept – Applied to POLST Paradigm FSU COLLEGE OF MEDICINE Plan of Action—Using TJ to Support Legal Action that Promotes POLST Implementation – Research agenda – Implementation strategy FSU COLLEGE OF MEDICINE POLST Paradigm—The Concept Physician Orders for Life-Sustaining Treatment (nomenclature varies) Logical next step beyond advance directives Both stimulates and grows out of patient/physician conversation— form is just the culmination FSU COLLEGE OF MEDICINE POLST—Implementation Thus Far www.POLST.org As of July 2013: – 2 Mature States (Oregon, W.Va.) – 14 Endorsed States – 27 Developing States (Florida) Legislation Regulation Clinical consensus FSU COLLEGE OF MEDICINE POLST—The Florida Strategy http://med.fsu.edu/medlaw/polst Fla. Stat. ch. 765—Advance directives, surrogate and proxy decision making Fla. Stat. ch. 709—Durable power of attorney Fla. Stat. ch. 744—Guardianship Florida Stat. §401.45 (3)—Do Not Resuscitate orders, implemented by Fla. Admin. Code r. 64B8-9.016 (DOH Yellow Form) FSU COLLEGE OF MEDICINE 5+ pilot programs around state Continual conversations and communications among institutional, academic, and community leaders Professional and public education efforts Where next? Changing the law?? FSU COLLEGE OF MEDICINE The Need for Legal Action? Statutory changes? Placement? – Chap. 765? Failed House Bill 1017, 2006 Leg. Reg. Sess. (Fla. 2006) (identical to S. 2572, 2006 Leg. Reg. Sess. (Fla. 2006)). – Chap. 401.45? Regulatory changes? Alternative or supplement to statutory changes? Legislative authorization? Which agencies should have authority? Interagency coordination? FSU COLLEGE OF MEDICINE Clinical consensus – Fla. Stat. § 765.106 Preservation of existing rights— The provisions of this chapter are cumulative to the existing law regarding an individual’s right to consent, or refuse to consent, to medical treatment and do not impair any existing rights or responsibilities which a health care provider, a patient, including a minor, competent or incompetent person, or a patient’s family may have under the common law, Federal Constitution, State Constitution, or statutes of this state. FSU COLLEGE OF MEDICINE So Why Is Legal Change Needed? – Provider legal anxieties in the absence of explicit statutory and/or regulatory provisions guaranteeing criminal, civil, and professional discipline immunity for acting within a defined safe harbor. Physician reluctance to write POLSTs Provider reluctance to honor POLSTs FSU COLLEGE OF MEDICINE Can Therapeutic Jurisprudence (TJ) Be the Basis for Legal Action Leading to POLST Implementation? TJ concept: Analytic, interdisciplinary lens that inquires into the psychological effects of legislation, regulation, or judicial decisions on the law’s intended beneficiaries FSU COLLEGE OF MEDICINE Applying TJ lens to POLST – What are the therapeutic goals of POLST? – Are those goals being met by POLST in practice? Empirical evidence? – How would legislation or regulation enhance promotion of the POLST goals? FSU COLLEGE OF MEDICINE Therapeutic goals of POLST for patient and family – – – – – Sense of being communicated with Sense of control, autonomy Sense of satisfaction with the experience Reducing guilt feelings Minimizing stress by minimizing resort to the courts and adversary process(es) FSU COLLEGE OF MEDICINE Empirical Evidence on POLST— Process measures as proxy for Outcome measures – High rate of document completion – High rate of document implementation (i.e., patients get the care they said they would want, die where they say they would prefer) FSU COLLEGE OF MEDICINE How would legislation or regulation enhance promotion of the POLST goals? Encourage communication with patients/families Encourage the writing and implementation of POLSTs by reducing providers’ legal anxieties FSU COLLEGE OF MEDICINE Action Plan Using TJ to Support Legal Action that Promotes POLST Implementation – Research Agenda Process measures Outcome measures – Implementation/Advocacy strategy Codification of a proven, widespread practice FSU COLLEGE OF MEDICINE