What is the rationale for this research? When & where was this research carried out? • Research is a case study of Trinity College Dublin • Carried out 2010 to 2016 • Interviews with 37 students: March to December 2013 What are the main findings? The playing field is being levelled: • More SWD are entering and graduating than ever before • Real organisational & physical changes have taken place on campus • Most SWD report that supports do make a positive difference The playing field is not yet level: • SWD are still considered under-represented and disadvantaged in HE • Work remains to challenge attitudes, improve access in the curriculum & built environment • Some SWD report that supports did not work for them What was in the literature review? 1. The Concept of Disability 2. Law and Policy relating to SWD in HE 3. Student Retention Disability Retention Law & Policy Law & Policy Disability Retention What is the Concept of Disability? Bodily impairments Social norms Capitalism Discrimination Medical sociology Discourses of power Historical Anthropology Civil rights Shakespeare, French Goffman, Davis Oliver Barnes Bury, Williams Foucault, Tremain Borsay, Gleeson Kasnitz, Murphy Hunt, DeJong, Zola Negative associations… Disability is a post-modern concept: For us, disability is the quintessential postmodern concept, because it is so complex, so variable, so contingent, so situated. It sits at the intersection of biology and society and of agency and structure. Disability cannot be reduced to a singular identity: it is a multiplicity, a plurality. (Shakespeare & Watson 2002, p.519) What Laws and Policies influence Disability Services in HEIs globally & in Ireland? • • • • • • • • Americans with Disability Act 1990 Salamanca Statement 1994 Universities Act 1997 UN Rights of Persons with Disabilities 2007 Employment Equality Act 1998 – 2010 Equal Status Act 2000 - 2011 (EPSEN) Special Educational Needs Act 2004 Disability Act 2005 How are SWD ‘getting on’ in HE? The issue of Student Retention How was the research done? Qualitative & Quantitative ‘Mixed methods’ What is Actor Network Theory? (generalised symmetry) Students - Impairments - Barriers - Reasonable Accommodations New networks What does the quantitative data say? How many students with disabilities are there in Trinity College? Year 08/09 09/10 10/11 11/12 12/13 13/14 14/15 Disability Service Register 585 911 1058 1186 1313 685 818 % of 3.6%registrations 4.2% 4.9% in one 5.4% HEI6.4% 7.7% Student 2008 7.1% to 2013: student pop. How can the progression and withdrawal of SWD be monitored? Progression rates by student number – December 2014 300 277 196 200 100 230 170 227 56 2 0 203 132 119 86 78 197 286 3 6 9 13 25 03 04 05 06 07 08 Reg Graduated 58 09 10 11 Withdrawn 12 13 14 Withdrawn by disability type 2003 to 2013 200 6 8 0 ADD % 6 4 8 2.1% 2.9% 102 20 3 ASD Blind VI DCD Disability Type ADD ASD 277 91 17 26 Deaf HI Mental Physical Health Blind/VI DCD Deaf/HI MH 4 3 20 1.4% 1.1% 7.2% 91 SOI Phys 17 32.8% 6.1% Spld SOI Spld 26 102 9.4% 36.8% How do students who enter below points do? Outcome (%) by entry route 07, 08 & 09 students (%) 50 45 44 46 42 40 35 35 30 28 29 25 Merit 416 20 Supp 114 15 14 15 10 15 12 9 10 No Result or Current Withdrawn / Fail 5 0 1 & 2.1 2.2 & 3 Mature 99 What are the qualitative findings? Disability type Gender Level: Faculty* Status ** Physical 11 8 female 6 UG. 9 Arts, 1 EMS, 1 HS. 2 C. 7 G. 3 male 5 PG. 5 female 5 UG. 5 Arts, 1 male 1 PG. 1 HS. 3 female 4 UG. 5 Arts, 3 C. 2 G. 3 male 2 PG. 1 HS. 1 W. 3 female 3 UG. 2 Arts, 2 W. 2 G. 1 male 1 PG. 1 HS. 1 female 3 UG. 1 Arts, 2 HS, 1 EMS. 2 W. 2 G. 3 male 1 PG. 3 female 5 UG. 3 Arts, 3 HS. 2 C. 3 G. 3 male 1 PG. 37 37 Deaf 6 Visual 6 SOI 4 Mental Health 4 Spld 6 Total 37 2 W. 3 C. 3 G. 1 W. 37 37 What were participants asked? • • • • • Educational Journey Experience of university – academic and social Specific barriers faced Supports and Accommodations used Are reasonable accommodations successful in removing barriers for students with disabilities? • Thoughts of leaving • Remaining concerns/Recommendations What was their educational journey before coming to Trinity? ‘’Secondary school was painful on multiple fronts, limited support, handwriting was difficult, staff under qualified and an atmosphere not supportive of academic achievement’’ What factors influenced choice of Trinity? ‘’Well, I guess Trinity College in the first place because of the prestige associated with it. It would be one of my main reasons to come here.’’ ‘’I put more thought into where I was going rather than what I was doing.’’ ‘’I wanted to go to third level and Trinity was the only one that did the course that I applied for.’’ What was their social experience? I loved just coming in. And I love the whole sense of space you get when you came in under the arch. I just like feeling I’m part of this, you know, the sense of belonging when you walk in and I’m in my own environment, I found college life very difficult to adapt to. I was very lonely, homesick and depressed. I found Dublin city daunting and so much duller compared to (name of home town) What was their academic experience? ‘’The academic side was very good, very interesting. The people who taught were clearly very knowledgeable. I really don’t have anything to complain about there.’’ ‘’I didn’t really feel like my heart was in that, I didn’t really feel comfortable. I never really found my feet in that (first) course.’’ What barriers did students face? ‘’Part of the things with Asperger’s is I think they come at it differently and there’s sort of a certain tolerance for people not having the top level social skills. Last year I was on holiday with this friend who has Asperger’s and his dad talked about how he sleeps a lot. He gets tired, and he just said you know, I think that it’s an effort for him being with all those people all the time, being normal.’’ What supports did they use? ‘’Having an academic assistant has been absolutely brilliant. If I didn’t have them I would never have gotten an essay written…genuinely people are great, you know I think if you don’t have good people nothing else can ever work.’’ Did supports level the playing field? Yeah I think they are very successful. Because if you look at the number of students with disabilities they say it’s been continuously rising. But I really think the more accommodations are put in place, the more they can be worked in different combinations for different people, it’s obviously going to make a huge difference. Did students have thoughts of leaving? ‘’I think I did have some dark moments, revealing to my parents that I hadn’t done any work in third year and there were questions about whether I would be able to continue or not. I was thinking well, is this just a waste, because it did seem a misery to go through it all again, but then I thought, one small thing is, I do like it. Another thing is, if I don’t do it, all that I have done would be a waste, I had done 4 years and that would have gone down the tubes if I didn’t finish it, I did know that based on work I had done in 1st year and 2nd year, I can do this.’’ What did students recommend? ‘’One thing that always strikes me is that as an institution, universities and ITs, generally see disability as a separate issue, I don’t agree with that. I think a holistic view is very much needed. ‘’ ‘’I suppose if there had been things like here is a fourth year, who has done three years here, who has managed but might not even have had the same disability, but just somebody who can understand how your difficulties are different to other peoples difficulties.’’ How can participants be categorised? Strider Struggler Striker Strider/ideal case: Faced barriers and set backs but were able to progress with peers and graduate with 1st or 2.1 Engaged with a range of supports in DS that developed over time More likely to have completed their degrees ‘on time’ Struggler/marginal case Experienced ongoing or recurring challenges that did impact on progress in Trinity (repeat year, offbooks, transfer) Inconsistent use of supports and rarely in a routine or ‘flow’ in Trinity Came close to leaving but persisted to completion (often with pass or 2.2) Striker/critical case: Left their course having experienced challenges that appeared to have no other solution Less likely to have used supports or supports not relevant to ‘wrong course’ or financial problems Some return to HE and do better the 2nd time Striders, Strugglers and Strikers explained 14 12 10 8 6 12 8 4 5 2 3 3 2 0 Strider Struggler Striker Struggler to Struggler to Strider Striker Striker & Struggler 1 2 1 Struggler & Struggler & Striker & Striker Struggler Struggler & Strider Data viewed with Actor Network Theory Networks →→→→ Main: Theories Models Principles Ideas Student Impairment Barrier Astin’s Theory Medical model Social model of involvement Goffman’s Stigma Oppression Chickering’s seven vectors Charity Model Discrimination Lack of resources Tinto’s theory Disadvantaged of student Social integration Disabled construction ↓ ↓ Actor Network Theory ↓ Reasonable Accommodation Pragmatism Equality & Fairness Universal Design Legal compliance ↓ Heterogeneous Networks Student Impairment Barrier Reasonable Accommodation Background: Family, urban, rural, middle class, disadvantaged. Physical Access issues Sensory Physical infrastructure Access works: lifts, ramps, automated doors Demographics: CAO DARE HEAR Mature students Post graduate Undergraduate Ongoing illness Relationships: Faculty staff Peer group Friends Personality Mental Health University organisation Assistive technology Specific learning difficulties Course requirements Medial model Format of information Visible/Non-visible disabilities Disclosed/Nondisclosed disabilities → Additional time: exams, assignments ← Course content requirements Allowances, permissions and waivers Academic support: Library, note taker, tutor, formatter Attitudinal: Stereotyping Prejudice, Discrimination Translation → ← Trinity in Transformation The End Limitations…only go so far • Disability research is highly situational • 37 sample represents 1.48% of SWD in TCD • ANT does not privilege imbalances in power or concepts of oppression or disadvantage • ANT could ‘dehumanise’ disability and create a risk that social justice and equality are ignored • Trinity case study findings are not generalizable but method and approach are