The Declining Work and Welfare of Working-Age People with Disabilities 11th Annual Joint Conference of Retirement Research Consortium August 10-11, 2009 Richard V. Burkhauser, Cornell University Mary C. Daly, Federal Reserve Bank of San Francisco The findings and conclusions expressed are solely those of the authors and do not represent the views of the SSA, any agency of the Federal Government, the RRC, or the Federal Reserve Bank of San Francisco. MRRC papers and… MRRC Papers Dutch disability reforms and their effects on caseloads, employment, and income Trends in employment and income of people with disabilities in the U.S. Book on disability policy in the U.S. How is it working? What are its shortcomings? How might it be changed? Divergent trends in caseloads SSDI, SSI-disabled adults, and AFDC/TANF benefit roll populations Number in millions 8 SSDI 1996 Welfare 7 6 5 SSI-disabled adults 4 3 2 AFDC/TANF families 1 0 1974 source 1980 1986 1992 1998 2004 Surprising closure of income Trends in Household Size-adjusted Income for Vulnerable Working-age Persons Thousands of $ (2006) 45 All working Age-Persons 40 35 30 25 Men with Disabilities Women with Disabilities 20 15 Never Married Single Mothers 10 5 0 1975 1978 1981 1984 1987 Source: Authors' calculations using March CPS data 1990 1993 1996 1999 2002 2005 Critical difference in employment Employment Rates Percent 100 90 All Working-age Persons 80 70 Single Mothers 60 50 Men with Disabilities 40 30 Women with Disabilities 20 10 0 1975 1978 1981 1984 1987 Source: Authors' calculations using March CPS data 1990 1993 1996 1999 2002 2005 Motivation for the book U.S. Disability Policy: Goals and Outcomes ADA—most people with disabilities can work and would do so if given the opportunity. The share of working age people on federal disability programs has risen and the employment rates of people with disabilities have fallen. What happened? Goals were not matched by policy changes, leaving little room for behavioral shifts. Change is possible, as demonstrated by reforms to U.S. welfare and the Dutch disability system. Disability is not always limiting Simplified Conceptual Model of Disability Using ICF Concepts Health Condition Disability Impairment Activity Limitation Participation Restriction Health status relatively constant Panel A Percent Reporting Fair or Poor Health, by Age Group Percent 20 55-64 15 45-54 10 All Ages 25-44 5 18-24 1997 1998 1999 2000 2001 2002 2003 2004 2005 Source: Centers for Disease Control and Prevention, National Center for Health Statistics, National Health Interview Survey. 0 2006 As are work limitations Panel B Prevalence of Work Limitation, by Age Group Percent 20 18 55-61 16 14 45-54 Overall 12 10 8 35-44 6 4 25-34 2 0 1981 1983 1985 1987 1989 1991 1993 1995 1997 1999 2001 2003 2005 2007 Source: Table 5 from Houtenville et al (forthcoming) Literature suggests a role for policy Potential for influence Evidence of influence Impairment and work limitation not one for one Work limitation and work effort are not one for one Not all people with severe impairments say they are work limited Many people with work limitations are employed Variation in allowance rates by state Growing percentage of DI/SSI awards due to mental & musculoskeletal Growing number meeting vocational criteria Growing number qualifying at the ALJ stage Lessons from welfare reform Trends in Benefits and Work Among Working-age Never-married single Mothers Percent 100 90 80 70 Working at Least 30 Hours per Week During Weeks Worked 60 50 40 Receiving Public Assistance 30 20 10 0 1979 1982 1985 1988 Source: Authors' calculations using March CPS data 1991 1994 1997 2000 2003 Reforms did not lower income Changes in Income of the Median Vulnerable Income(1982=100) Working-age Person 150 Single Mothers 140 130 120 All Working-age Persons 110 Men with Disabilities 100 Women with Disabilities 90 80 70 1975 1978 1981 1984 1987 Source: Authors' calculations using March CPS data 1990 1993 1996 1999 2002 2005 Arguments for disability reform People with disabilities are falling behind the rest of the population, even other vulnerable groups Work is a key determinant of household income and its trends Current work effort of people with disabilities reflects policy as well as health/impairment Welfare reform highlighted the ability for even vulnerable populations to work Changing incentives will require reforms to U.S. disability programs like those for welfare and the Dutch disability system Themes for potential reform U.S. Disability Policy Reform Follow the spirit of the ADA and make work the priority of U.S. disability policy. Redirect resources from post-benefit work programs to pre-benefit work support/initiatives Allow states and other agents to experiment and innovate as in pre-welfare reform trials For SSDI, shift part of the costs to firms/private insurers to motivate them to focus on work first For SSI, treat the program like TANF and devolve the program to the states (like TANF) and allow for experimentation and innovation.