HSE Survey of Consumers’ Experience of the Health Services in Ireland May 2007 Data Dictionary Version 1.2 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 UCD School of Public Health and Population Science Prepared by D.O’Mahony D.O’Mahony Page 2 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Data Dictionary for Health Service Executive Consumer Experience of the Health Service in Ireland 2006-2007 Overview of data table: Sample = 3032 Questionnaire length: 20 minutes Sample definition: representative of population aged 18+ in the Republic of Ireland. Quotas – set on sex, age, social class and the 4 HSE regions. Additional quotas – over-sampling of those aged 50+ in a separate dataset Number of Sampling points: 188 Source of Data: data captured in November-December 2006, January-February 2007 in all 26 counties of Ireland via face-to-face interview in the home. Format: Single SPSS table, 315 variables Sources of questions: National Survey on Lifestyles, Attitudes and Nutrition (SLAN 2002) (www.ucd.ie/issda/dataset-info/slan.htm ) Irish Society for Quality and Safety in Healthcare (ISQSH www.isqsh.ie ) UK National Health Service (NHS) with the UK Healthcare Commission and the Picker Institute (PI 2005 www.nhssurveys.org ) Patient Satisfaction Survey: Audit of Inpatients, Oct 2005-06. Admission Unit, Donegal Mental Health Service McCardle, J (2006) Variable Name: X1 Label: Interview number Source: Lansdowne Market Research (LMR) Variable Name: X2 Label: QUESTIONNAIRE NUMBER Source: LMR Variable Name: X3 Label: SEX Source: LMR 1 Male 2 Female Variable Name: X4 Label: RESPONDENT IS... Source: LMR 1 Chief Income Earner 2 Not chief Income Earner D.O’Mahony Page 3 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X5 Label: SOCIAL CLASS Source: LMR 1 AB 2 C1 3 C2 4 D 5 E 6 F50+ 7 F500 DK\Not Stated Variable Name: X6 Label: EXACT AGE Source: LMR integer 0 DK\REF\NOT STATED Variable Name: X7 Label: AGE CATEGORY Source: LMR 1 15 2 16-17 3 18 4 19-24 5 25-29 6 30-34 7 35-39 8 40-44 9 45-49 10 50-54 11 55-59 12 60-64 13 65+ Variable Name: X8 Label: COUNTY Source: LMR 1 Carlow 2 Cavan 3 Clare 4 Cork 5 Donegal 6 Dublin 7 Galway 8 Kerry 9 Kildare 10 Kilkenny 11 Laois 12 Leitrim 13 Limerick D.O’Mahony Page 4 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 14 Longford 15 Louth 16 Monaghan 17 Mayo 18 Meath 19 Offaly 20 Roscommon 21 Sligo 22 Tipperary 23 Waterford 24 Westmeath 25 Wexford 26 Wicklow 0 Not Stated Variable Name: X9 Label: DATE OF INTERVIEW e.g. 5th = 05 (day of the month) Source: LMR integer 0 DK\REF\NOT STATED Variable Name: X10 Label: ASSIGNMENT NUM Source: LMR Description: This number corresponds to the 188 contact points, each of which corresponds to an electoral division. Variable Name: X11 Label: INTERVIEWER NUM Source: LMR Variable Name: X12 Label: FRONT COVER COLOUR Source: LMR 1 Blue (corresponds with Hospital as an in-patient or day patient) 2 Pink (corresponds with Hospital as an out-patient or A & E) 3 Yellow (corresponds with utilisation of GP services) 4 Green (corresponds with utilisation of other community health services) Equal numbers of booklets with each of the 4 different coloured covers were printed. The written instructions to interviewers are indicated in the diagram below: D.O’Mahony Page 5 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Fig1. Is survey front cover Blue? Yes 1. Is Section B Question 1 or 2 (Hospital as an In-patient or daypatient) coded 2 (used once) or 3 (used more than once) ? Yes Go to Section C: “Experience of Inpatient or Day patient hospital service” No No Is survey front cover Pink? Yes No 2. Is Section B Question 3 or 4 (Hospital as an Out-patient or A&E ) coded 2 (used once) or 3 (used more than once) ? Yes Go to Section D: “Experience of Outpatient or hospital service” No Is survey front cover Yellow? Yes No 3. Is Section B Question 5 (GP services) coded 2 (used once) or 3 (used more than once) ? Yes Go to Section E: “Experience of GP services” No Is survey front cover Green? Yes 4. Is Section B any Question from 6 (Mental Health services) to 29 (Home support) coded 2 (used once) or 3 (used more than once) ? Yes “Experience of Community Health Services” No Is nothing coded 2 or 3 in Section B? Go to Section F: Go to Section G: Yes “Stories” No Go to Instruction 1 above. D.O’Mahony Page 6 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Section A – General Health Status The source for Section A, Variables X13 to X45, is the national Survey on Lifestyles, Attitudes and Nutrition (SLAN 2002) Variable Name: X13 Label: A.1 In general, would you say your health is ...? Source: SLAN 2002 1 Excellent 2 Very good 3 Good 4 Fair 5 Poor 0 Not Stated Variable Name: X14 Label: A.2 Thinking about your physical health, which includes physical illness and injury, for how many days during the past 30 days was your physical health not good? IF NONE RECORD AS:00 RECORD USING 2 DIGIT CODE E.G 5=05 Source: SLAN 2002 integer 99 DK\REF\NOT STATED Variable Name: X15 Label: A.3 Thinking about your mental health, which includes stress, depression and problems with emotions, for how many days during the past 30 days was your mental health not good? IF NONE RECORD AS:00 RECORD USING 2 DIGIT CODE E.G 5=05 Source: SLAN 2002 integer 99 DK\REF\NOT STATED Variable Name: X16 Label: A.4 During the past 30 days, for about how many days did poor physical or mental health keep you from doing your usual activities, such as work or recreation? IF NONE RECORD AS:00 RECORD USING 2 DIGIT CODE E.G 5=05 Source: SLAN 2002 integer 99 DK\REF\NOT STATED Variable Name: X17 Label: A.5 Is your daily activity or work limited by a long term illness, health problem or disability? Source: SLAN 2002 1 Yes 2 No 3 DK 0 Not Stated D.O’Mahony Page 7 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Question A.6: Where do you get your information about health? [MULTIPLE ANSWERS ALLOWED] Source: SLAN 2002 Variable Name: X18 Label: A6. General Practitioner 0 = Not mentioned 1 = Mentioned [Same answer options for all of the following variables X19 to X30] Variable Name: X19 Label: A6. Other Health Professionals Variable Name: X20 Label: A6. Health Promotion Service\HSE Variable Name: X21 Label: A6. Health Promotion Unit Variable Name: X22 Label: A6. Department of Health & Children Variable Name: X23 Label: A6. Health Organisations Variable Name: X24 Label: A6. Internet \ World Wide Web Variable Name: X25 Label: A6. Family \ Friends Variable Name: X26 Label: A6. Media(TV, radio, newspaper, magazines) Variable Name: X27 Label: A6. Helplines (e.g. national information line) Variable Name: X28 Label: Other (SPECIFY) Variable Name: X29 Label: Label: Don't know Variable Name: X30 Label: Label: Not Stated (Note: answer sets for Question A6 are duplicated) A.6: Where do you get your information about health? [MULTIPLE ANSWERS ALLOWED] 0 = Not mentioned 1 = Mentioned [Same answer options for all of the following variables X31 to X42] Variable Name: X31 Label: General Practitioner Variable Name: X32 Label: Other Health Professionals Variable Name: X33 Label: Health Promotion Service\HSE Variable Name: X34 Label: Health Promotion Unit\ Department of Health & Children Variable Name: X35 Label: Health Organisations Variable Name: X36 Label: Internet \ World Wide Web Variable Name: X37 Label: Family \ Friends Variable Name: X38 Label: Media(TV, radio, newspaper, magazines) Variable Name: X39 Label: Helplines (e.g. national information line) Variable Name: X40 Label: Other (SPECIFY) Label: Variable Name: X41 Label: Don't know Variable Name: X42 Label: Not Stated Variable Name: X43 Label: A.7 When you look for information, how likely or unlikely are you to call a telephone helpline such as the HSE National Information Line? Source: SLAN 2002 1 Very likely 2 Likely 3 Neither likely nor unlikely 4 Unlikely 5 Very unlikely 6 Don't know 0 Not Stated D.O’Mahony Page 8 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X44 Label: A.8 How good or poor would you rate your quality of life? Source: SLAN 2002 1 Very poor 2 Poor 3 Neither poor nor good 4 Good 5 Very good 0 Not Stated Variable Name: X45 Label: A.9 How satisfied or dissatisfied are you with your health? Source: SLAN 2002 1 Very satisfied 2 Satisfied 3 Neither satisfied nor dissatisfied 4 Dissatisfied 5 Very Dissatisfied 0 Not Stated D.O’Mahony Page 9 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Section B – Profile of Service Users Variable Name: X46 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Hospital as an inpatient (STATEMENT1 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X47 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Hospital as a day patient (STATEMENT2 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X48 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Hospital as an out-patient (STATEMENT3 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X49 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. A&E (Accident and Emergency) (STATEMENT4 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X50 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. GP (General Practitioner) services (STATEMENT5 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X51 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Mental Health Services (including non-acute Psychiatric hospitals) (STATEMENT6 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated D.O’Mahony Page 10 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X52 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Public health nurse (STATEMENT7 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X53 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Physiotherapist (STATEMENT8 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X54 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Occupational therapist (STATEMENT9 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X55 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Psychology services (STATEMENT10 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X56 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Social worker (STATEMENT11 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X57 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Community Welfare Officer (STATEMENT12 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated D.O’Mahony Page 11 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X58 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Home Help Services (STATEMENT13 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X59 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Chiropody\Podiatry (STATEMENT14 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X60 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Drug\Alcohol Outreach Services (STATEMENT 15 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X61 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Speech Therapy (STATEMENT 16 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X62 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Dietician (STATEMENT17 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X63 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Ophthalmology (STATEMENT18 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated D.O’Mahony Page 12 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X64 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Audiology (STATEMENT 19 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X65 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Dental Services (Public only Not Private) (STATEMENT 20 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X66 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Palliative care e.g.(care of the dying) (STATEMENT 21 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X67 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Residential services for older people (STATEMENT 22 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X68 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Day services for older people (STATEMENT 23 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X69 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Respite services for older people (STATEMENT 24 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated D.O’Mahony Page 13 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X70 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Home support for older people (STATEMENT 25 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X71 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Residential services for the intellectual/physical/sensory disabled (STATEMENT 26 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X72 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Day services for the intellectual\physical or sensory disabled (STATEMENT 27 OF 29) 1 2 3 0 Not Used Once More than Once Not Stated Variable Name: X73 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Respite services for the intellectual\physical or sensory disabled (STATEMENT28 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated Variable Name: X74 Label: B.1 Which, if any, of following services have you used in the last 12 months? IF USED, PROBE TO ESTABLISH IF USED ONCE OR MORE THAN ONCE. Home support for the intellectual\physical or sensory disabled (STATEMENT29 OF 29) 1 Not Used 2 Once 3 More than Once 0 Not Stated D.O’Mahony Page 14 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Section C – Experience of In-Patient or Day-Patient Hospital Services Variable Name: X75 Label: C.1a Which was your most recent experience of hospital, was it as a day patient or in-patient? 1 Day patient 2 In-patient Variable Name: X76 Label: C.1b You say you have been an in-patient at a hospital in the last 12 months. With regard to your most recent hospital in-patient visit, how many nights did you spend in the hospital? IF NONE RECORD AS:00 RECORD USING 3 DIGIT CODE E.G 5=005 99 DK\REF\NOT STATED C.2 Why were you in for your last stay in hospital during the last 12 months Source: Davis & Davis 1991 0 = Not mentioned 1 = Mentioned [Same answer options for all of the following variables X77 to X83] Variable Name: X77 Label: Accident in the home\in the street\at work Variable Name: X78 Label: Childbirth Variable Name: X79 Label: For an operation Variable Name: X80 Label: For an illness Variable Name: X81 Label: For a check-up or test Variable Name: X82 Label: For some other reason (SPECIFY) Variable Name: X83 Label: Not Stated C.3 How were you admitted to the hospital? Source: ISQSH 2004 0 = Not mentioned 1 = Mentioned [Same answer options for all of the following variables X84 to X93] Variable Name: X84 Label: A&E (Accident and Emergency) Variable Name: X85 Label: On a waiting list, but came in via A & E Variable Name: X86 Label: GP referral, urgent admission Variable Name: X87 Label: Waiting list Variable Name: X88 Label: Out-Patient clinic - Same day admit Variable Name: X89 Label: National Treatment Purchase Fund Variable Name: X90 Label: Direct transfer from another hospital Variable Name: X91 Label: Other (SPECIFY) Variable Name: X92 Label: Don't know Variable Name: X93 Label: Not Stated D.O’Mahony Page 15 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X94 Label: C.4 After admission, were you given an indication of the length of stay in hospital you required? Source: Picker Institute 2005 (PI 2005) 1 Yes 2 No 3 DK 0 Not Stated Variable Name: X95 Label: C.5 How much advance notice were you given about the date of your discharge? Source: Picker Institute 2005 (PI 2005) 1 I was told on day of discharge 2 1-3 days 3 4+ days 4 Don't know\can't recall 0 Not Stated Variable Name: X96 Label: C.6 Overall, from the time you were first told you needed to be admitted to hospital, how long did you wait to be admitted? Source: Picker Institute Admission to Hospital Survey 2005 (PI 2005) 1 No wait, admitted immediately 2 Up to 1 month 3 Over 1 and up to 3 months 4 Over 3 up to 6 months 5 Over 6 months and up to 9 months 6 More than 9 months 7 Don't know\Can't remember 0 Not Stated Variable Name: X97 Label: C.7a Were you told why you would have to wait? Source: PI 2005 1 Yes 2 No 0 Not Stated Variable Name: X98 Label: C.7b Would you have liked an explanation? Source: PI 2005 1 Yes 2 No 0 Not Stated Variable Name: X99 Label: C.8 When you first saw the person you were referred to, did he\she seem to have all the necessary information about you and your condition\treatment? Source: Picker Institute 2005 (PI 2005) 1 Yes, completely 2 Yes, to some extent 3 No 0 Not Stated D.O’Mahony Page 16 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X100 Label: C.9 Did you have confidence and trust in the people\health professionals treating you? Source: Picker Institute In-patient Core Survey 2005 (PI 2005) 1 Yes, always 2 Yes, sometimes 3 No 0 Not Stated Variable Name: X101 Label: C.10 Were you given a choice about where you were referred, that is which location? Source: Picker Institute 2005 (PI 2005) 1 Yes 2 No, but I would have liked a choice 3 No, but I did not mind 0 Not Stated Variable Name: X102 Label: C.11 Were you given enough time to discuss your health\medical problem with the healthcare professionals? Source: Picker Institute 2005 (PI 2005) 1 Yes, Completely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X103 Label: C.12 Were you involved as much as you wanted to be in decisions about your care and treatment? Source: Picker Institute 2005 (PI 2005) 1 Yes, Completely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X104 Label: C.13 Did a member of staff give you information about your condition\treatment...? Source: Care & Treatment Survey PI 2005 1 In writing 2 Verbally 3 Both 4 None at all 0 Not Stated Variable Name: X105 Label: C.14 How much information about your condition\treatment was given to you? Source: Care & Treatment Survey PI 2005 1 Not enough 2 The right amount 3 Too much 4 None 0 Not Stated D.O’Mahony Page 17 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X106 Label: C.15 Did you have any operations or procedures in the hospital? Source: Operation & Procedures Survey PI 2005 1 Yes 2 No 0 Not Stated Variable Name: X107 Label: C.16 Did a member of staff explain what would be done during the operation or procedure? Source: Operation & Procedures Survey PI 2005 1 Yes, completely 2 Yes to some extent 3 I did not want an explanation 4 No 0 Not Stated Variables X108 to X113 are from ISQSH 2004 Variable Name: X108 Label: C.17 How would you rate the following hospital facilities...? Contacting the hospital by phone (STATEMENT1 OF 6) 1 Very Good 2 Good 3 Fair 4 Poor 5 Very Poor 6 Don't Know 0 Not Stated Variable Name: X109 Label: C.17 How would you rate the following hospital facilities...? Availability of car parking facilities (STATEMENT2 OF 6) 1 Very Good 2 Good 3 Fair 4 Poor 5 Very Poor 6 Don't Know 0 Not Stated Variable Name: X110 Label: C.17 How would you rate the following hospital facilities...? Ease of finding your way around the hospital (STATEMENT3 OF 6) 1 Very Good 2 Good 3 Fair 4 Poor 5 Very Poor 6 Don't Know 0 Not Stated D.O’Mahony Page 18 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X111 Label: C.17 How would you rate the following hospital facilities...? Adequacy\cleanliness of public toilets (STATEMENT4 OF 6) 1 Very Good 2 Good 3 Fair 4 Poor 5 Very Poor 6 Don't Know 0 Not Stated Variable Name: X112 Label: C.17 How would you rate the following hospital facilities...? Adequacy of shop facilities (STATEMENT5 OF 6) 1 Very Good 2 Good 3 Fair 4 Poor 5 Very Poor 6 Don't Know 0 Not Stated Variable Name: X113 Label: C.17 How would you rate the following hospital facilities...? Wheelchair access (STATEMENT6 OF 6) 1 Very Good 2 Good 3 Fair 4 Poor 5 Very Poor 6 Don't Know 0 Not Stated Variable Name: X114 Label: C.18 How would you rate the standard of food you received in hospital? Source: McCardle 2004-5 1 Excellent 2 Good 3 Fair 4 Poor 5 Very poor 6 Don't know 0 Not Stated Variable Name: X115 Label: C.19 How satisfied or dissatisfied were you with the range of foods available? Source: McCardle 2004-5 1 Very satisfied 2 Mostly satisfied 3 Not very satisfied 4 Not at all satisfied 5 Don't know 0 Not Stated D.O’Mahony Page 19 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X116 Label: C.20 If you had special dietary requirements, were you satisfied with the meals you received? 1 Yes 2 No 3 Not relevant\No special requirements 0 Not Stated Variable Name: X117 Label: C.21 Would you agree or disagree that the ward facilities (e.g. bed, wardrobe, room, bathrooms) were of a clean standard? Source: ISQSH 2004 1 Strongly agree 2 Agree 3 Disagree 4 Strongly disagree 5 Don't know 0 Not Stated Variable Name: X118 Label: C.22 Did the healthcare team treat you with respect and dignity? Source: PI 2005 1 Yes, all of the time 2 Yes, some of the time 3 No 0 Not Stated Variable Name: X119 Label: C.23 Were you given enough privacy when discussing your condition or treatment? Source: PI 2005 1 Yes, always 2 Yes, sometimes 3 No 0 Not Stated Variable Name: X120 Label: C.24 Were ministers or priests of your faith available to you as frequently as you required? Source: ISQSH 2004 1 Always 2 Very often 3 Sometimes 4 Rarely 5 Never 6 No faith\religion 0 Not Stated D.O’Mahony Page 20 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X121 Label: C.25 Did the healthcare teams give your family or someone close to you, all the information they needed to help you recover? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No family or friends involved 4 My family did not need\want information 5 I did not want my family or friends to talk to a doctor 6 No 7 Don't know 0 Not Stated Variable Name: X122 Label: C.26 If your family wanted to talk to the healthcare team, did they have enough opportunity to do so? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No family or friends involved 4 My family did not need\want information 5 I did not want my family or friends to talk to a doctor 6 No 7 Don't know 0 Not Stated Variable Name: X123 Label: C.27 Were you involved in decisions regarding your discharge from hospital? Source: PI 2005 1 Not at all involved 2 Not very involved 3 Fairly involved 4 Very involved 5 Don't know 0 Not Stated Variable Name: X124 Label: C.28 After discharge, was there good continuity of care and support given by the hospital? Source: PI 2005 1 Yes 2 No 3 I did not need it 0 Not Stated Variable Name: X125 Label: C.29 If your illness\injury meant you could not work, were you given support and advice in relation to this? Source: PI 2005 1 Yes 2 No 3 I did not need it 0 Not Stated D.O’Mahony Page 21 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X126 Label: C.30 Overall, how would you rate the quality of care you received while in hospital? Source: PI 2005 1 Excellent 2 Very good 3 Good 4 Fair 5 Poor 6 Very poor 7 Don't know 0 Not Stated Variable Name: X127 Label: C.31 Would you recommend the hospital where you were treated most recently to someone else? 1 Yes 2 No 3 DK 0 Not Stated D.O’Mahony Page 22 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Section D – Experience of Out-Patient Hospital Services Variable Name: X128 Label: D.1 How often have you been to an Out-Patient clinic or A+E department in hospital in the last 12 months? 99 DK\REF\NOT STATED Variable Name: X129 Label: D.1b You mentioned having visited both Out-Patient AND the A&E in the Past 12 Months. We would like to ask only about the most recent experience. Which visit was your most recent visit? 1 Out-Patient 2 A&E Variable Name: X130 Label: D.2 Were you given a choice of appointment times? Source: PI Outpatients Core questions 2004-2005 1 Yes 2 No, but I did not need\want a choice 3 No, but I would have liked a choice 4 Don't know 0 Not Stated Variable Name: X131 Label: D.3 Before your appointment, did you know what would happen to you during the appointment? Source: PI Outpatients Core questions 2004-2005 1 Yes 2 No 3 Not sure 0 Not Stated Variable Name: X132 Label: D.4 Was your most recent appointment changed to a later date by the hospital? Source: PI Outpatients Core questions 2004-2005 1 No 2 Yes, once 3 Yes, 2 or more times 4 Yes, 4 times or more 5 Can't recall 0 Not Stated Variable Name: X133 Label: D.5 How long after the stated appointment time did your actual appointment start? Source: PI Outpatients Core questions 2004-2005 1 Seen on time or early 2 Waited up to 5 minutes 3 Waited 6-15 minutes 4 Waited 16-30 minutes 5 Waited 31-60 minutes 6 Waited more than 1 hour but no more than 2 hours 7 Waited more than 2 hours 8 Don't know\Can't remember 0 Not Stated D.O’Mahony Page 23 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X134 Label: D.6a Were you told how long you would have to wait? Source: PI Outpatients Core questions 2004-2005 1 Yes 2 No 0 Not Stated Variable Name: X135 Label: D.6b Was the wait longer, shorter or about the same compared to what you were told? Source: PI Outpatients Core questions 2004-2005 1 Longer 2 Shorter 3 About the same 4 Don't know\Can't remember 0 Not Stated Variable Name: X136 Label: D.7a Were you told why you would have to wait? Source: PI Outpatients Core questions 2004-2005 1 Yes 2 No 3 Don't know\Can't remember 0 Not Stated Variable Name: X137 Label: D.7b Would you have liked an explanation? Source: PI Outpatients Core questions 2004-2005 1 Yes, I would have 2 No, I didn't mind Variable Name: X138 Label: D.8 When you first saw the person you were referred to, did he\she seem to have all the necessary information about you and your condition\treatment? Source: PI 2005 1 Yes, completely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X139 Label: D.9 Did you have confidence and trust in the healthcare professionals examining and treating you? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X140 Label: D.10 Were you given a choice about where you were referred for outpatient services - that is the location of the hospital? 1 Yes 2 No, but I would have liked a choice 3 No, but I did not mind 0 Not Stated D.O’Mahony Page 24 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X141 Label: D.11 Were you given enough time to discuss your health\medical problem with the healthcare professionals? Source: PI Outpatients Core questions 2004-2005 1 Yes, completely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X142 Label: D.12 Were you involved as much as you wanted to be in decisions about your care and treatment? Source: PI Outpatients Core questions 2004-2005 1 Yes completely 2 Yes - to some extent 3 No 4 Don't know\Can't recall 0 Not Stated Variable Name: X143 Label: D.13 Was the information given to you about your condition\treatment too much, not enough or just the right amount? Source: PI Outpatients Core questions 2004-2005 1 Not enough 2 The right amount 3 Too much 0 Not Stated Variable Name: X144 Label: D.14 Did the healthcare team explain the reasons for any treatment or action in a way that you could understand? Source: PI 2005 1 Yes, completely 2 Yes, to some extent 3 No 4 No treatment or action taken 0 Not Stated Variable Name: X145 Label: D.15 If you had questions to ask the healthcare team, did you get answers you could understand? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 I did not have an opportunity to ask questions 4 No 5 I had no questions 0 Not Stated D.O’Mahony Page 25 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X146 Label: D.16 Was it easy to get through the main entrance and move around in the Outpatients Department or A+E area? Source: PI Outpatients Core questions 2004-2005 1 Yes, it was very easy 2 Yes, it was easy 3 Neither easy nor difficult 4 No it was difficult 5 No it was very difficult 6 Don't know\Can't remember 0 Not Stated Variable Name: X147 Label: D.17 In your opinion, how clean was the Outpatient's Department or A+E area? Source: PI Outpatients Core questions 2004-2005 1 Very clean 2 Fairly clean 3 Not very clean 4 Not at all clean 5 Don't know\No reply 0 Not Stated Variable Name: X148 Label: D.18 In your opinion, how clean were the toilets in the Outpatient's Department or A+E area? Source: PI Outpatients Core questions 2004-2005 1 Very clean 2 Fairly clean 3 Not very clean 4 Not at all clean 5 Don't know\No reply 0 Not Stated Variable Name: X149 Label: D.19 Did the healthcare professionals treat you with respect and dignity? Source: PI Outpatients Core questions 2004-2005 1 Yes, all of the time 2 Yes, some of the time 3 No 0 Not Stated Variable Name: X150 Label: D.20 Were you given enough privacy when discussing your condition or treatment? Source: PI Outpatients Core questions 2004-2005 1 Yes, always 2 Yes, sometimes 3 No 0 Not Stated D.O’Mahony Page 26 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X151 Label: D.21 Were you given enough privacy when being examined or treated? Source: PI Outpatients Core questions 2004-2005 1 Yes, always 2 Yes, sometimes 3 No 0 Not Stated Variable Name: X152 Label: D.22 Did the healthcare professionals give your family or someone close to you, all the information they needed to help you recover? Source: PI Outpatients Core questions 2004-2005 1 Yes, definitely 2 Yes, to some extent 3 No family or friends involved 4 My family did not need\want information 5 I did not want anyone to be given information 6 No 7 Don't know 0 Not Stated Variable Name: X153 Label: D.23 If your family wanted to talk to a healthcare professional, did they have enough opportunity to do so? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No family or friends involved 4 My family did not need\want information 5 I did not want anyone to be given information 6 No 7 Don't know 0 Not Stated Variable Name: X154 Label: D.24 Were arrangements made to continue your care or treatment after you left outpatients or A+E? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 4 None were needed 5 Don't know\Can't remember 0 Not Stated D.O’Mahony Page 27 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X155 Label: D.25 Overall, how would you rate the quality of care you received while at the out-patient's clinic or A+E? Source: PI Outpatients Core questions 2004-2005 1 Excellent 2 Very good 3 Good 4 Fair 5 Poor 6 Very poor 7 Did not respond 0 Not Stated Variable Name: X156 Label: D.26 Would you recommend the out-patient or A+E service, where you were treated most recently, to someone else? 1 Yes 2 No 3 DK 0 Not Stated D.O’Mahony Page 28 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Section E – Experiences of GP Services Variable Name: X157 Label: E.1 How many times have you visited your GP in the last 12 months? 99 DK\REF\NOT STATED Variable Name: X158 Label: E.2 Thinking about your most recent GP visit, did you visit the GP as a ... 1 Public patient 2 Private patient E.3 What was the reason for your most recent GP visit for yourself in the last 12 months? 0 = Not mentioned 1 = Mentioned [Same answer options for all of the following variables X159 to X168] Variable Name: X159 Label: For a repeat prescription Variable Name: X160 Label: For a doctor's certificate for work due to short illness\injury Variable Name: X161 Label: To consult for a minor ailment or condition Variable Name: X162 Label: For a follow-up visit due to a major chronic illness or condition Variable Name: X163 Label: For a routine check-up or test Variable Name: X164 Label: For a maternity check-up during or after pregnancy Variable Name: X165 Label: To accompany a child Variable Name: X166 Label: Other (SPECIFY) Label: Variable Name: X167 Label: Can't recall\Don't know Variable Name: X168 Label: Not Stated Variable Name: X169 Label: E.4 The last time you saw your GP or practice nurse, how long, if at all, did you have to wait for an appointment? Source: PI 2005 1 No I was seen without an appointment 2 I was seen on the same working day 3 I had to wait one or two working days 4 I had to wait more than two working days 5 It was a pre-planned appointment 6 Can't recall\Don't know 0 Not Stated Variable Name: X170 Label: E.5 Have you ever been put off going to your GP because opening hours at the surgery were inconvenient for you? Source: PI 2005 1 Yes, often 2 Yes, sometimes 3 No 0 Not Stated D.O’Mahony Page 29 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X171 Label: E.6 Were you given enough time to discuss your health\medical problem with the person treating you? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 4 I did not need to discuss anything 0 Not Stated Variable Name: X172 Label: E.7 Were you involved as much as you wanted to be in decisions about your care and treatment? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X173 Label: E.8a In the last 12 months, has anyone at your general practice referred you to a specialist for example a hospital consultant, a dietician, a physiotherapist, a speech therapist, etc? Source: PI 2005 1 Yes 2 No 0 Not Stated Variable Name: X174 Label: E.8b Should you have been referred? 1 Yes 2 No, there was no need in past 12 months 0 Not Stated Variable Name: X175 Label: E.8c Were you given a choice about where you were referred - that is which hospital or which therapist? Source: PI 2005 1 Yes, I was given a choice 2 No 3 Can't remember 0 Not Stated Variable Name: X176 Label: E.8d Would you have liked a choice? Source: PI 2005 1 Yes 2 No, I was happy for the GP to decide 0 Not Stated Variable Name: X177 Label: E.9 Were you given a copy of any letters exchanged between doctors about you? Source: PI 2005 1 Yes 2 No 3 Don't know\Can't remember 4 No letters were exchanged D.O’Mahony Page 30 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 0 Not Stated Variable Name: X178 Label: E.10 Do you feel patients should receive such letters? Source: PI 2005 1 Yes 2 No 3 DK 0 Not Stated Variable Name: X179 Label: E.11 Do you agree or disagree with the following statement... "I am confident I can tell my doctor concerns I have, even when he or she does not ask" Source: How engaged are people in their healthcare? PI 2005 1 Strongly agree 2 Agree 3 Disagree 4 Strongly disagree 0 Not Stated Variable Name: X180 Label: E.12 Did the healthcare professional explain the reasons for any treatment or action in a way that you could understand? Source: PI 2005 1 Yes, completely 2 Yes, to some extent 3 No - did not explain 4 No treatment\action taken 5 Don't know\Can't recall 0 Not Stated Variable Name: X181 Label: E.13 If you had questions to ask the healthcare professional, did you get answers you could understand? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 I did not have an opportunity to ask questions 4 No - did not understand 5 I had no questions 6 Don't know\Can't recall 0 Not Stated The following seven questions are taken from “How engaged are people in their healthcare?” published by the Picker Institute 2005) Variable Name: X182 Label: E.14 How strongly do you agree or disagree with each of the following? My doctor or nurse gave me help and advice on improving my diet (STATEMENT 1 OF 7 Source: PI 2005 1 Strongly Agree 2 Agree 3 Disagree 4 Strongly Disagree D.O’Mahony Page 31 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 5 Don't Know\Not relevant 0 Not Stated Variable Name: X183 Label: E.14 How strongly do you agree or disagree with each of the following? My doctor or nurse gave me help and advice on regular exercise (STATEMENT 2 OF 7 Source: PI 2005 1 Strongly Agree 2 Agree 3 Disagree 4 Strongly Disagree 5 Don't Know\Not relevant 0 Not Stated Variable Name: X184 Label: E.14 How strongly do you agree or disagree with each of the following? I understand the nature and causes of my health problems or condition (STATEMENT 3 OF 7 Source: PI 2005 1 Strongly Agree 2 Agree 3 Disagree 4 Strongly Disagree 5 Don't Know\Not relevant 0 Not Stated Variable Name: X185 Label: E.14 How strongly do you agree or disagree with each of the following? I know about the different medical treatments and self-treatment options for my health problems or condition (STATEMENT 4 OF 7 Source: PI 2005 1 Strongly Agree 2 Agree 3 Disagree 4 Strongly Disagree 5 Don't Know\Not relevant 0 Not Stated Variable Name: X186 Label: E.14 How strongly do you agree or disagree with each of the following? I am confident I can follow through on medical treatments I need to do at home (STATEMENT 5 OF 7 Source: PI 2005 1 Strongly Agree 2 Agree 3 Disagree 4 Strongly Disagree 5 Don't Know\Not relevant 0 Not Stated Variable Name: X187 Label: E.14 How strongly do you agree or disagree with each of the following? I am confident I can follow through on medical recommendations my doctor makes (STATEMENT 6 OF 7 Source: PI 2005 1 Strongly Agree D.O’Mahony Page 32 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 2 3 4 5 0 Agree Disagree Strongly Disagree Don't Know\Not relevant Not Stated Variable Name: X188 Label: E.14 How strongly do you agree or disagree with each of the following? I am able to handle symptoms of my health (or chronic conditions) Label: in my own at home (STATEMENT7 OF 7 Source: PI 2005 1 Strongly Agree 2 Agree 3 Disagree 4 Strongly Disagree 5 Don't Know\Not relevant 0 Not Stated Variable Name: X189 Label: E.15 Was your privacy respected by the doctor? Source: PI 2005 1 Yes 2 No 0 Not Stated Variable Name: X190 Label: E.16 Are you able to get a seat in the waiting room at your GP surgery? Source: PI 2005 1 Yes, all of the time 2 Yes, most of the time 3 Some of the time 4 Never or hardly ever 5 Can't recall 0 Not Stated Variable Name: X191 Label: E.17 In your opinion, how easy or difficult would it be for people with disabilities to move around your GP surgery? Source: PI 2005 1 Very easy 2 Fairly easy 3 Fairly difficult 4 Very difficult 5 Don't know 0 Not Stated Variable Name: X192 Label: E.18 In your opinion, how clean was the GP surgery? Source: PI 2005 1 Very clean 2 Fairly clean 3 Not very clean 4 Not at all clean 5 Can't recall 0 Not Stated D.O’Mahony Page 33 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X193 Label: E.19 Did the healthcare professional listen carefully to what you had to say? Source: PI 2005 1 Yes, all of the time 2 Yes, some of the time 3 No 0 Not Stated Variable Name: X194 Label: E.20 Did the healthcare professional treat you with respect and dignity? Source: PI 2005 1 Yes, all of the time 2 Yes, some of the time 3 No 0 Not Stated Variable Name: X195 Label: E.21 Did you have confidence and trust in the healthcare professional? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X196 Label: E.22 Did the healthcare professionals give your family or someone close to you, all the information they needed to help you recover? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 4 No family or friends involved 5 My family did not need\want information 6 I did not want anyone to be given information 0 Not Stated Variable Name: X197 Label: E.23 If your family wanted to talk to a healthcare professional, did they have enough opportunity to do so? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 4 No family or friends involved 5 My family did not need\want information 6 I did not want anyone to be given information 0 Not Stated Variable Name: X198 Label: E.24 Were arrangements made to continue your care or treatment after you left the surgery? Source: PI 2005 1 Yes, definitely D.O’Mahony Page 34 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 2 3 4 5 0 Yes, to some extent No None were needed Don't know\Can't remember Not Stated Variable Name: X199 Label: E.25 Was the main reason you went to your GP surgery dealt with to your satisfaction? Source: PI 2005 1 Yes, completely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X200 Label: E.26 Overall, how would you rate the quality of care you received while at the GP surgery? Source: PI 2005 1 Excellent 2 Very good 3 Good 4 Fair 5 Poor 6 Very poor 7 Did not respond Variable Name: X201 Label: E.27 Would you recommend the GP you most recently attended to someone else? 1 Yes 2 No 3 DK 0 Not Stated D.O’Mahony Page 35 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Section F – Experience of Community Health Services Variable Name: X202 Label: F.1 You mentioned you used some of the following community services in the last 12 months. Which of these Community Services have you availed of most recently? 1 Mental Health Services (including non-acute Psychiatric hospitals) 2 Public health nurse 3 Physiotherapist 4 Occupational therapist 5 Psychology services 6 Social worker 7 Community Welfare Officer 8 Home Help Services 9 Chiropody\Podiatry 10 Drug\Alcohol Outreach Services 11 Speech Therapy 12 Dietician 13 Ophthalmology 14 Audiology 15 Dental Services (Public only Not Private) Label: 16 Palliative care e.g.(i.e. care of the dying) Label: 17 Residential services for older people 18 Day services for older people 19 Respite services for older people 20 Home support for older people 21 Residential services for the intellectual\physical or sensory disabled 22 Day services for the intellectual\physical or sensory disabled 23 Respite services for the intellectual\physical or sensory disabled 24 Home support for the intellectual\physical or sensory disabled 40 Not Stated Variable Name: X203 Label: F.2 How long have you been in contact with community health services? 1 1 year or less 2 2 - 5 years 3 6 - 10 years 4 More than 10 years 5 Don't know\can't remember 0 Not Stated Variable Name: X204 Label: F.3 Overall, from the time you were first referred to this service, how long did you have to wait for an appointment? Source: PI 2005 1 Did not wait\immediate 2 Up to a month 3 Over 1 and up to 3 months 4 4 - 6 months 5 7 - 9 months 6 More than 9 months 7 Don't know\Can't remember 0 Not Stated D.O’Mahony Page 36 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X205 Label: F.4 Were you told why you would have to wait? Source: PI Outpatients Core questions 2004-2005 1 Yes 2 No 3 DK 0 Not Stated Variable Name: X206 Label: F.5 Would you have liked an explanation? Source: PI Outpatients Core questions 2004-2005 1 Yes 2 No, I didn't mind 3 Don't know 0 Not Stated Variable Name: X207 Label: F.6 Do you think you should have got your appointment a bit sooner, a lot sooner or was it ok? Source: PI 2005 1 A bit sooner 2 A lot sooner 3 It was ok 0 Not Stated Variable Name: X208 Label: F.7 Did the healthcare team treating you listen carefully to you? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X209 Label: F.8 Did you have confidence and trust in the healthcare team treating you? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X210 Label: F.9 Did you have enough say in decisions about your care and treatment? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 0 Not Stated D.O’Mahony Page 37 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X211 Label: F.10 Were you given enough time to discuss your health\medical problem with the person providing the service? Source: PI 2005 1 Yes, completely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X212 Label: F.11 Did you receive copies of letters sent between the person providing the service and your doctor? Source: PI 2005 1 Yes, I received copies of all letters 2 I received copies of some, but not all, letters 3 No, I did not receive copies of any letters 4 I do not know if any letters were sent 5 I asked not to receive copies of any letters 0 Not Stated Variable Name: X213 Label: F.12 Were you given information about the different medical treatments and self-treatment options for your health problems or condition? Source: Care & Treatment Survey PI 2005 1 Yes 2 No 0 Not Stated Variable Name: X214 Label: F.13 Was the information given ... Source: Care & Treatment Survey PI 2005 1 In writing 2 Verbally 3 Both 0 Not Stated Variable Name: X215 Label: F.14 How much information about your condition or treatment was given to you? Source: Care & Treatment Survey PI 2005 1 Not enough 2 The right amount 3 Too much 0 Not Stated Variable Name: X216 Label: F.15 Did you understand the information given to you? Source: Care & Treatment Survey PI 2005 1 Yes 2 No 0 Not Stated Variable Name: X217 Label: F.16 Was your privacy respected by the person providing the service? Source: PI 2005 1 Yes 2 No 0 Not Stated D.O’Mahony Page 38 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X218 Label: F.17 In your opinion, how clean or not were the rooms or clinic where you received the service? Source: PI 2005 1 Very clean 2 Fairly clean 3 Not very clean 4 Not at all clean 5 Can't say 0 Not Stated Variable Name: X219 Label: F.18 In the past two months, how often have you attended day services? 1 Most days 2 Once or twice a week 3 Once or twice a month 4 I have not attended day services in the last two months 0 Not Stated Variable Name: X220 Label: F.19 Did you find the day services helpful? 1 Yes, definitely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X221 Label: F.20 Did the person providing the service listen carefully to what you had to say? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X222 Label: F.21 Did the person providing the service treat you with respect and dignity? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X223 Label: F.22 Has a member of your family or someone else close to you been given enough information from the community health services about your health problems? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No, but they would have liked some information 4 No, but they got information from somewhere else 5 No information was needed 6 I did not want information given to my family 0 Not Stated D.O’Mahony Page 39 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X224 Label: F.23 Has a member of your family or someone else close to you had enough support from the community health services? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No, they have not had any support from the Health services 4 No support was needed 0 Not Stated Variable Name: X225 Label: F.24 If this was an going service, were you involved in the decision about your discharge from the service? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 4 Not applicable 0 Not Stated Variable Name: X226 Label: F.25 Were you satisfied that everyone who needed to be informed (GP, other health professionals, family) got adequate information? Source: PI 2005 1 Yes, definitely 2 Yes, to some extent 3 No 4 Not applicable 0 Not Stated Variable Name: X227 Label: F.26 Have you seen a psychiatrist\doctor\psychiatric nurse in the last 12 months? Source: NHS MH questionnaire 2005 1 Yes 2 No 0 Not Stated Variable Name: X228 Label: F.27 Were various options such as counselling offered to you? Source: NHS MH questionnaire 2005 1 Yes 2 No 3 DK 0 Not Stated Variable Name: X229 Label: F.28 Did you have enough say in decisions about your care and treatment? Source: NHS MH questionnaire 2005 1 Yes, definitely 2 Yes, to some extent 3 No 0 Not Stated D.O’Mahony Page 40 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X230 Label: F.29 In the last 12 months, have you taken any medications for your mental health problems? Source: NHS MH questionnaire 2005 1 Yes 2 No 3 Can't remember 0 Not Stated Variable Name: X231 Label: F.30 Do you have a say in decisions about the medication you take? Source: NHS MH questionnaire 2005 1 Yes, definitely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X232 Label: F.31 Was the main reason that you required community health services dealt with to your satisfaction? 1 Yes, completely 2 Yes, to some extent 3 No 0 Not Stated Variable Name: X233 Label: F.32 Overall, how would you rate the services or care you have received from community health services in the last 12 months? Source: PI 2005 1 Excellent 2 Very good 3 Good 4 Fair 5 Poor 6 Very poor 7 Did not respond D.O’Mahony Page 41 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 INSTRUCTIONS FOR INTERVIEWER ABOUT THE VIGNETTES: If respondent was not eligible for any section C to F so far – i.e. no services used at B1 – show each of the 4 stories below and record answer for each one. If respondent has answered any section C, D, E or F then only show the one story matching the colour of the front cover of the questionnare BLUE COVER : HOSPITAL INPATIENT OR DAY PATIENT Variable Name: X234 Label: G.1 Vincent has a history of chest pain. He usually goes to the public hospital for his check-up. One day, he had severe pain in his chest and had to be rushed to hospital. As soon as he got there, the doctors decided that they had to quickly run tests and take a blood sample. They did not ask him for his permission because of the rush and the because the tests were not dangerous or painful. HOW WOULD YOU RATE VINCENT’S EXPERIENCE? 1 Very good 2 Good 3 Moderate 4 Very bad 5 Bad 6 Don't know 0 Not Stated [Same answer options for the following variables X235 to X237] PINK COVER : HOSPITAL OUT-PATIENT OR A & E Variable Name: X235 Label: G.2 Patricia regularly uses a nearby clinic. She often has headaches. The nurses there gave her little attention during her last visit. The nurse said to Patricia that she doesn't need to come so often; there were sicker people that needed the clinic's attention HOW WOULD YOU RATE PATRICIA’S EXPERIENCE? YELLOW COVER : GP SERVICES Variable Name: X236 Label: G.3 Dora has to stay in hospital for two months after breaking her leg. Her mother could not come to see her as visiting hours coincided with her working hours. On request, the hospital allowed Dora's mother to visit at a more convenient hour. HOW WOULD YOU RATE DORA’S EXPERIENCE? GREEN COVER : RANGE OF COMMUNITY CARE SERVICES Variable Name: X237 Label: G.4 Thomas has noticed that he cannot see very well anymore. He goes to the doctor, who tells him he has cataracts and that he needs an operation. The doctor has explained to Thomas what has to be done. He does not understand everything and asks the doctor to explain more. The doctor takes time to explain the procedure again, but Thomas still does not fully understand. HOW WOULD YOU RATE THOMAS’ EXPERIENCE? D.O’Mahony Page 42 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X238 Label: H.1a The Irish health services have recently been reformed. Do you know what the letters HSE mean or not? 1 Yes - Health Service Executive 2 Yes - Other (Specify) Label: 3 No 0 Not Stated Variable Name: X239 Label: H.1b Do you know what the HSE replaced? 1 Yes - The Health Boards 2 Yes - Other (Specify) Label: 3 No 0 Not Stated Variable Name: X240 Label: H.1c Do you know what the HSE does? 1 No 2 Yes - Manages Health Service 3 Yes - Other (Specify) Label: 0 Not Stated Variable Name: X241 Label: H.1d There are four administrative units in the new HSE. Can you name the one you are living in? 1 HSE Dublin North East 2 HSE Dublin Mid-Leinster 3 HSE West 4 HSE South 5 Don't know 0 Not Stated Variable Name: X242 Label: H.2 Do you know what PCCC stands for? 1 Yes - Primary, Community and Continuing Care 2 Yes - other (Specify) Label: 3 No 4 Did not respond Variable Name: X243 Label: H.3 Do you know what the Department of Health and Children is? 1 Yes - Government Department 2 Yes - A government department with policy responsibility for health matters 3 No 4 Did not respond Variable Name: X244 Label: H.4 Are you registered with a GP? 1 Yes 2 No 0 Not Stated Variable Name: X245 Label: H5 To your knowledge how far do you live from your nearest GP - in Miles ? integer D.O’Mahony Page 43 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X246 Label: H5 To your knowledge how far do you live from your nearest GP - In Kilometers ? integer Variable Name: X247 Label: H6 To your knowledge how far do you live from your nearest general hospital - In Miles ? integer Variable Name: X248 Label: H6 To your knowledge how far do you live from your nearest general hospital - In Kilometers ? integer Variable Name: X249 Label: H.7 Do you think that A&E hospital services should be provided in every county? 1 Yes 2 No 3 DK 0 Not Stated Variable Name: X250 Label: H.8 Do you think that Acute hospital services should be provided in every county? 1 Yes 2 No 3 DK 0 Not Stated Variable Name: X251 Label: H.9 Research evidence indicates that specialist centres provide better outcomes for illnesses such as cancer and better rehabilitation from conditions such as stroke. However this means concentrating services in fewer centres. In such circumstances would you want to be treated in such a centre if you became ill? 1 Yes 2 No 3 DK 0 Not Stated Variable Name: X252 Label: H.10 How important is ease of access to you in accessing such a specialist centre? 1 Very important 2 Somewhat important 3 Not very important 4 Not important at all 5 Don't know 0 Not Stated Variable Name: X253 Label: H.11 To what extent do you feel you have the same, better or worse opportunities to access the following services as everyone else? GP\primary care (STATEMENT 1 OF 3) 1 Same 2 Better 3 Worse 4 Don't Know D.O’Mahony Page 44 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 0 Not Stated Variable Name: X254 Label: H.11 To what extent do you feel you have the same, better or worse opportunities to access the following services as everyone else? Accident & Emergency (STATEMENT 2 OF 3) 1 Same 2 Better 3 Worse 4 Don't Know 0 Not Stated Variable Name: X255 Label: H.11 To what extent do you feel you have the same, better or worse opportunities to access the following services as everyone else? Mental health services (STATEMENT3 OF 3) 1 Same 2 Better 3 Worse 4 Don't Know 0 Not Stated Variable Name: X256 Label: H.12 Compared to other health services, do you feel mental health services are more accessible, less accessible or just as accessible to you and your family? 1 More accessible 2 Less accessible 3 Just as accessible as other health services 4 Don't know 0 Not Stated Variable Name: X257 Label: H.13 Are you aware that the Data Protection Act protects information about you and your medical records? 1 Yes 2 No 0 Not Stated Variable Name: X258 Label: H.14 Are you aware that the Freedom of Information Act allows you to access your patient records? 1 Yes 2 No 0 Not Stated Variable Name: X259 Label: H.15 Are you aware of the Patient's Charter? 1 Yes 2 No 0 Not Stated ASK IF YES to H15. OTHERS H17 D.O’Mahony Page 45 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 H.16 Which patient charter have you read? Variable Name: X260 Label: The EU Patient's charter 1 Mentioned 0 Not mentioned [Same answer options for all of the following variables X261 to X265] Variable Name: X261 Label: The patient's charter of 1994 for all Irish hospitals Variable Name: X262 Label: Charters specific to the hospital in my area Variable Name: X263 Label: Other (Specify): Variable Name: X264 Label: Don't know\Can't recall Variable Name: X265 Label: Not Stated Name: X266 Label: H.17 Are you aware of the complaints procedure within the hospital\GP practice\community health service? 1 Yes 2 No 0 Not Stated Variable Name: X267 Label: H.18 Did you ever wish to make a complaint about some aspect of the Health Service? 1 Yes 2 No 0 Not Stated Variable Name: X268 Label: H.19 If you wanted to make a complaint, would you know how to make it? 1 Yes 2 No 0 Not Stated H.20 What would prevent you from making a complaint? Variable Name: X269 Label: Wouldn't know how 1 Mentioned 0 Not mentioned [Same answer options for all of the following variables X270 to X274] Variable Name: X270 Label: Afraid to Variable Name: X271 Label: Concerned it would affect my care Variable Name: X272 Label: Other (Specify) Variable Name: X273 Label: Don't know Variable Name: X274 Label: Not Stated D.O’Mahony Page 46 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 Variable Name: X275 Label: H.21 If you ever made a complaint about health services, were you satisfied with the outcome of your complaint? 1 Yes - Satisfied 2 Yes - Somewhat satisfied 3 No - Not satisfied 4 No - Not at all satisfied 5 Never made complaint 0 Not Stated Variable Name: X276 Label: H.22 Are you aware that under the Health Act 2003, there is provision for a complaints procedure to be rolled out in January 2007? 1 Yes 2 No 0 Not Stated Variable Name: X277 Label: J.1 What age were you when you left school? 99 DK\REF\NOT STATED Variable Name: X278 Label: J.2 What did your education include? 1 No schooling 2 Primary school education only 3 Some secondary education 4 Complete secondary education 5 Some third level education at college, university, RTC\IT 6 Complete third level education at college, university, RTC\IT 0 Not Stated Variable Name: X279 Label: J.3 What is your present marital status? 1 Married 2 Cohabiting 3 Widowed 4 Single\Never married 5 Separated 6 Divorced 7 Refused 0 Not Stated Variable Name: X280 Label: J.4 What type of accommodation do you live in? 1 Detached house 2 Apartment block 3 Semi-detached\End of terrace 4 Mid terrace 5 Multi-storey flats 6 Other (Specify) Label: 0 Not Stated Variable Name: X281 Label: J.5 Is your home ...? 1 Owned with mortgage 2 Owned outright 3 Rented privately 4 Rented from Council D.O’Mahony Page 47 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 5 Other (Specify) Label: 0 Not Stated Variable Name: X282 Label: J.6 How many people (including yourself) Label: are there in your household? integer 99 DK\REF\NOT STATED Variable Name: X283 Label: J.7a Are there any children aged 15 years or under in your household? 1 Yes 2 No 0 Not Stated Variable Name: X284 Label: J.7b How many? 99 DK\REF\NOT STATED Variable Name: X285 Label: J.10 What is your current employment situation? 1 Employee 2 Self employed 3 Homemaker 4 Seeking work for first time 5 Unemployed 6 At school, student 7 Wholly Retired 8 Unable to work owing to permanent sickness\disability 9 Other 0 Not Stated Variable Name: X286 Label: J.11 Are you... 1 A manager 2 Foreman\supervisor 3 Other employee 4 Self employed 5 None 0 Not Stated Variable Name: X287 Label: J.12a Do you employ other people? 1 Yes 2 No 0 Not Stated Variable Name: X288 Label: J.12b How many people do you employ? 99 DK\REF\NOT STATED Variable Name: X289 Label: J.13 If you are a farmer, how many acres of land do you\your partner farm? 999 DK\REF\NOT STATED Variable Name: X290 Label: J.14a Do you have a medical card? D.O’Mahony Page 48 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 1 2 3 0 Yes No I applied but was refused Not Stated Variable Name: X291 Label: J.14b Do you have a GP visit card? 1 Yes 2 No 3 I applied but was refused 0 Not Stated Variable Name: X292 Label: J.14c How satisfied were you with how your application was processed? 1 Yes- satisfied 2 Yes - somewhat satisfied 3 No - not satisfied 4 No - not at all satisfied 0 Not Stated Variable Name: X293 Label: J.15 Do you have private health insurance that covers the cost for private medical treatment (for example VHI, BUPA, VIVAS) ? 1 Yes 2 No 0 Not Stated Variable Name: X294 Label: J.16 Do you have the use of a car (including vans, minibuses, etc) ? 1 Yes 2 No 0 Not Stated Variable Name: X295 Label: J.17 Looking at this card, please tell me the letter that corresponds with what is your household's total net income per week, i.e. the take-home family weekly income from all sources (include social benefits, etc) ? 1 A. Under 320 Euro per week 2 B. 320 to under 950 Euro per week 3 C. 950 Euro or more per week 4 Refused 0 Not Stated Variable Name: X296 Label: J.18 What is your nationality? 1 Irish 2 Other nationality (Specify) Label: 3 No nationality 0 Not Stated Variable Name: X297 Label: J.19a Do you currently smoke cigarettes, cigars or a pipe? 1 Yes 2 No 0 Not Stated Variable Name: X298 Label: J.19b Do you smoke cigarettes now? D.O’Mahony Page 49 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 1 2 3 4 5 0 Used to but not now No Yes, regularly (2 plus per day) Yes, occasionally (usually < 1 per day) Not Stated Variable Name: X299 Label: J.20a In a day, how many of the following cigarettes do you usually smoke... Branded integer 99 DK\REF\NOT STATED Variable Name: X300 Label: J.20b In a day, how many of the following cigarettes do you usually smoke... Hand-Rolled integer 99 DK\REF\NOT STATED Variable Name: X301 Label: J.21 For how many years have you been a smoker? integer 99 DK\REF\NOT STATED Variable Name: X302 Label: J.22 Have you ever smoked cigars or cigarillos? 1 No 2 Used to but not now 3 Now smoke occasionally (usually less than 1 per day) Label: 4 Now smoke regularly (2 plus per day) Label: 0 Not Stated Variable Name: X303 Label: J.23 About how many cigars\cigarillos do you smoke per week? integer 99 DK\REF\NOT STATED Variable Name: X304 Label: J.24 Have you ever smoked a pipe? 1 No 2 Used to but not now 3 Now smoke occasionally (usually less than 1 per day) Label: 4 Now smoke regularly (2 plus per day) Label: 0 Not Stated Variable Name: X305 Label: J.25 OUNCES integer Variable Name: X306 Label: J.25 GRAMS integer Variable Name: X307 Label: J.26 As a smoker, do you ever receive information on stopping smoking? 1 Yes 2 No 0 Not Stated D.O’Mahony Page 50 10/05/2007 Data dictionary: UCD School of Public Health & Population Science HSE National Survey of Consumer Experience of the Health Services in Ireland 2007 J.27 Was it from... Variable Name: X308 Label: Quit Smoking helpline 1 Mentioned 0 Not mentioned [Same answer options for all of the following variables X309 to X313] Variable Name: X309 Label: Information leaflet Variable Name: X310 Label: One to one information and support Variable Name: X311 Label: Other (Specify) Variable Name: X312 Label: Don't know\Can't recall Variable Name: X313 Label: Not Stated Variable Name: X314 Label: J28: A national ban on smoking in all indoor public areas and the workplace was implemented in Ireland in April 2004? How strongly do you agree or disagree with the ban? 1 Strongly agree 2 Agree 3 Disagree 4 Strongly Disagree 5 Not relevant 0 Not Stated Variable Name: X315 Label: J.29 Would you agree or disagree with a total site ban on smoking in all health care facilities in Ireland, including the outdoor grounds? 1 Strongly agree 2 Agree 3 Disagree 4 Strongly Disagree 5 Not relevant 0 Not Stated D.O’Mahony Page 51 10/05/2007