The University of Texas at Austin School of Information Information Resources in the Health Sciences INF 382K Spring 2006 (Unique Number 26165) Tuesdays, 6:00-9:00pm SZB 556 Professor Glynn Harmon gharmon@ischool.utexas.edu Office: SZB 562D; Phone: (512) 471-3972 Office Hour: Immediately after class Fax: 471-3971 Campus Mail Code: D7000 Assistant Instructor: Don Drumtra Drumtra@aol.com Office: None Office hours: Thursdays, 4:00-5:00 pm, at Prufrock’s (by the main Library, or by appointment Home phone: 291-0315 I. COURSE DESCRIPTION A seminar-oriented introduction to online and offline health information resources, useful to both consumers and health care professionals, for understanding health promotion and disease/disorder prevention, epidemiology, diagnosis, treatment, prognostic assessment, and management. Includes allopathic and alternative/complementary/integrative information approaches, as well as genetic and evidence-based approaches and resources. Resources of the National Library of Medicine (NLM), other NIH agencies, and the Medical Library Association (MLA) are emphasized. Requirements include (1) completion of assignments involving familiarization with medical terminology and common disease management patterns, formulation of search strategies, searching various resources, and a comprehensive examination on these topics; (2) completion of an individualized health reference guide for future career use; (3) completion of one or more extensive and intensive information searches on a major disease or disorder. II. COURSE OBJECTIVES 1. To acquire initial working knowledge of the following health topics, concepts or entities and their corresponding information resources: basic medical terminology and the characteristics of major diseases and disorders, including preventive measures, etiology, epidemiology, diagnosis, treatment, and prognosis; key health organization services, including those of NLM, NIH, CDC, DHHS, WHO, MLA, Cochrane, Healthfinder, and major health science center libraries Information Resources in Health Sciences 1 2005 January 27 (especially such nearby resources as Briscoe Library at UTSCSA, and the Texas Department of State Health Services Library); hard copy printed health reference resources (books, journals, dictionaries, encyclopedias, monographs, etc.); evidence-based health web sites, including those for complementary/ alternative/integrative health care; genetic and bioinformatics information resources; information retrieval thesauri subject headings, search strategies, and key, related guides; major bibliographic databases, including MEDLINE and others. 2. To compile an individualized health reference resource guide that incorporates the kinds of information resources mentioned in the first objective (above) for future career and personal use. 3. To conduct an in-depth search or a series of searches on one or more assigned, major health problems Examples include an idiopathic (of unknown origin) disease, or cancer, cardiovascular disease, arthritis, etc. III. COURSE REQUIRMENTS AND GRADING 1. Completion of a comprehensive open book examination on the health resources and venues included under the first objective above (30% of course grade). 2. Completion of an individualized Health Reference Guide for future career use, including preparing for job interviews, finding information for health professionals or consumers. The Reference Guide should include the topics and sources of the kind mentioned in the fist objective above (30% of grade.) 3. Submission of the results of a comprehensive (extensive, intensive, long term) information search on an assigned, major category disease or disorder. The search should appropriately utilize the kinds of approaches, entities, or resources mentioned in the first course objective above: relevant terminology; organizational resources; print, online and web resources; evidence-based, complementary, and genetic sources; information retrieval aids; other bibliographic resources (30% grade). 4. Positive, constructive and proactive class participation and the sharing of insights and information with classmates (10% of grade). IV. REQUIRED AND OPTIONAL BOOKS AND KEY WEB SITES 1. Boorkman, J A., Huber, J. A. and Roper, F. (Eds.), (2004). Introduction to Reference Resources in the Health Sciences, 4th edition. Edison, NJ: Neal Schuman. The book’s emphasis is on hard-copy resources, and its organization is by information Information Resources in Health Sciences 2 2005 January 27 resource categories instead of health problem categories (the latter typically drive information searches). You should summarize its key content but we will employ both a health problem disease category approach and an information resource approach to information searching. The book is not yet available via online vendors, but must be ordered from Neal-Schuman (order form and information available via the MLA website). The cost is $75 ($67.50 for members; student membership is $40) plus shipping. 2. Detwiler, S.M. (2000). Supersearchers on Health & Medicine. Medford, NJ: Information Today, Inc. ISBN: 0-910965-44-7. Note the Internet resources on the http://www.infotoday.com site for this book. You may purchase it from an online vendor (used price: $3 to $5 plus shipping). The book is dated, but lots of its expert advice is still useful. 3. Goldberg, B., Anderson, J. W. and Trivieri, L. (2002). Alternative Medicine: The Definitive Guide (2d ed.). Berkeley, CA: Ten-Speed Press. ISBN: 15876111414. You may buy the book from an online vendor. Amazon ships the book separately because of weight. Be careful of ordering from alternate online vendors; they might send the 1st ed. rather than the 2d. ed. Partners may share this book. We will skim and selectively read its content. Cost is about $19-$24 used, plus shipping. 4. Previously, an Internet guidebook to health web resources was required for this course. But, given the recent availability of online web resource directories that screen for the validity of the content of listed sites, the purchase of a guidebook is not now as necessary. Instead, we will use the following web directories to health resources: http://www.mla.net.org; includes the “MLA Top Ten” sites and the Consumer and Patient Health Information Section (CAPHIS) “Web Sites You Can Trust” or the “Top 100;” [Note that the MLA also publishes Anserson, P.F. and Allee, N. J. (eds.), (2004). The MLA Encyclopedic Guide to Searching and Finding Health Information on the Web. NY: Neal-Schuman Publishers. Three volumes.] http://www.lib.uiowa.edu/hardin/md/index.html, the “Hardin Meta Directory of Internet Resources,” and similar meta-directories. 5. Additionally, we will rely heavily on such sites as the following ones: http://www.nlm.nih.gov, especially the National Library of Medicine’s database resources, including MedlinePlus; http://www.cochrane.org, the Cochrane Library, which compiles evidence-based findings as either systematic reviews (literature meta-analysis) and results of controlled clinical trials; http://www.merck.com, which contains The Merck Manual of Diagnosis and Therapy (latest professional edition), its Home edition, and other Merck manuals. Information Resources in Health Sciences 3 2005 January 27 V. EXAMPLES OF OTHER USEFUL SOURCES (Not required) 1. Please note the availability of various MLA books, monographs, journals, news media, bibliographic sources, etc. (see the MLA online bookstore). 2. Egger, M., Smith, G. D. and Altman, D. G. (2001). Systematic Reviews in Health Care: Meta-Analysis in Context. (2d ed). London: BMJ Publishing Group. Book’s web site is http://www.systematicreviews.com. 3. Mulrow, C. and Cook, D. (Eds.). (1998). Systematic Reviews: Synthesis of Best Evidence for Health Care Decisions. Philadelphia: American College of Physicians. 4. Kaptchuck, T. J. (2000). The Web That Has No Weaver. Chicago: Contemporary Books. ISBN: 0-8092-2840-8. 5. Pizzorono, J. E., Murray, M. T. and Joiner-Bey, H. (2002). The Clinician’s Handbook of Natural Medicine. NY: Churchill Livingston.Kellerman, F. R. (1997). 6. Introduction to Health Sciences Librarianship: A Mnagement Handbook Westport, CT: Greenwood Press. This book is likewise useful for learning about reference resources despite being a bit out of date. 7. Barclay, D. A. and Halsted, D. D. (2001). Consumer Health Reference Service Handbook. Edison, NJ: Neal-Schuman Publishers. How to create and maintain consumer health programs, web sites and links to other resources. 8. Davis, J. B. (ed.). (2003). Healing & Medicine on the Internet(4th ed.). Los Angeles: Practice Management Information Corporation. 9. Spencer, J. W. and Jacobs, J. J. (2003). Complementary and Alternative Medicine: An Evidence-Based Approach. St. Louis: Mosby. 10. Campbell, T. C and Campbell, T. M. (2004) The China Study…. Dallas: Benbella Books. VI. GUIDELINES FOR COMPLETING REQUIRMENTS 1. Open Book Exam: We will cover the various topics listed under the first objective in class and also in the required books and readings. The exam will test your familiarity with the services and resources of NLM and other key organizations; reference sources; the usefulness of various web sites; evidence-based approaches; genetic resources; search strategies; bibliographic databases; the potential use of electronic medical libraries; alternative/integrative medicine concepts; and general disease categories. The exam will consist of a several short-answer questions. Because the PubMed tutorial is not too clear, several dozen supplementary or alternative Information Resources in Health Sciences 4 2005 January 27 PubMed tutorials have been developed by libraries and individuals, and may be found by using search engines. Examples: See http://www.nlm.nih.gov PubMed Quick Tours on “Searching,” “MESH database” and “My NCBI.” http://www.library.dal.ca/kellog/guides/pubmed/ http://healthlinks.washington.edu/howto/pubmed/ http://galter.northwestern.edu/tutorials/pubmed/index.cfm http://www.library.tmc.edu/newpubmed.html http://www.library.health.ufl.edu/pubmed/pubmed2/ 2. Health Reference Guide: A few medical reference operations develop their own customized guides to improve their searching capability, as do other groups or individual health information professionals. The Guide that you prepare should demonstrate broad coverage of health information resources and demonstrate a good start in organizing information resources for joint professional use and rapid searching throughout your career. The Guide may be prepared in electronic format or in a binder that accommodates standard 8 ½ x 11 inch photocopied papers and carefully screened, downloaded print outs. You should state the specific objectives of your Guide and include a table of contents. The organization of the Guide should sub-serve the Guide’s objectives. Guides should be organized primarily on the basis of major disease or disorder categories, since most health professionals and consumers will present health and disease problems to you as information queries. It is recommended that you base your Guide primarily on the MedlinePlus broad groups of “Disorders and Conditions-Body Location/Systems,” etc. found at http://www.nlm.nih.gov/medlineplus/healthtopics.html. Such broad groups are compatible with MESH categories and Medline searching, and can be updated in parallel with ongoing NLM revisions. You might well annotate a minimum of 20 of the broad groupings to provide a good start for your Guide. NLM has already annotated each group (overview, anatomy/physiology, diagnosis, treatment, etc.) and you may briefly summarize such annotations. Some of you might wish to experiment by instead using the Section/Chapter format of The Merck Manual of Diagnosis & Therapy as a primary basis for organizing your Guide. But the Merck categories might be less directly compatible with Medline search subject headings than the MedlinePlus group headings. Nevertheless, most physicians and many other health professionals rely on Merck manuals as basic references. In any case, alternative disease categorizations can be different from those of Western biomedicine. Oriental medicine, for example, deploys drastically different disease paradigms and different sets of diagnostic and treatment concepts based on broad sets of holistic relationships between organ systems, energy/moisture flows and environmental relationships. We will address some of these differences. Information Resources in Health Sciences 5 2005 January 27 Secondary bases for organizing your Guides might be by form of literature (as used in the Boorkman textbook); web category; evidence-based rating; integrative/alternative headings; and by other topical concerns listed below the first course objective above. However, when addressing a given major disease category (e.g. cancer or cardiovascular disease), it is often useful to aggregate relevant conventional, alternative, genetic, web, online, print, and search strategy information under that disease category. Other ways to organize the guides might be useful. Organization is largely a creative as well as an analytical process, and we are somewhat free to experiment with innovative approaches to organization. A health reference guide formatting example will be distributed. In any case, you should try to develop a reference guide that will help you provide answers to any query within five minutes. Submitted Guides will be graded on the basis of (a) your statement of each objective and the extent to which your Guide serves stated objectives, (b) coverage of the breadth of relevant sources, (c) the extent of which the Guide treats the various categories of reference resources listed under the first course objective, (d) the Guide’s apparent adequacy as a platform for expanding, adapting and revising it in the future, and (e) the Guide’s apparent helpfulness in answering queries accurately within five minutes. 11. Comprehensive Information Search: A general health problem (e.g., an idiopathic disease) will be assigned/selected in class. Your job is to become the “class expert” on this disease or disorder and share with us the results of your in-depth search on the topic. This is a specialized, in depth exercise, rather than one of breadth (the Health Reference Guide project above is one of breadth). You should consider various approaches for dealing with the problem: Western biomedicine; Oriental, and other integrative/complementary approaches; literature, database and web resources; genetic approaches, prevention, evidence-based findings; etc. You should aim to support both consumers and professionals in their quest for information about the disease or problem. Searchers will be graded according to coverage of major relevant sources for a reasonably extended time period, consideration of conventional, complementary and genetic approaches, evidence-based assessments, and apparent usefulness to health professionals and to consumers. Please be prepared to share your findings and insights with the class as we progress through the semester. VI COURSE POLICIES 1. A grade of Incomplete will be given only for highly exceptional circumstances that can be documented or otherwise verified. 2. In fairness to those who complete work on time, a penalty will be assessed for late submissions. 3. Class breaks are not a good time to raise questions or problems with the instructor, since this can delay resuming the class at the end of very brief breaks. 4. If at all possible, matters pertinent to the course should be raised during the class so that everyone is given the same information. 5. Please generally avoid the use of email to communicate with the instructor, aside Information Resources in Health Sciences 6 2005 January 27 6. 7. 8. 9. from simple queries. Again, it is best to raise questions in class as they occur, since others might have a similar query and because everyone should be given the same information. Often, if it is necessary to confront a problem outside of class, you may phone either instructor and leave a voice mail. Because the instructor welcomes your comments about the course, one or more informal surveys will be given during the semester, in addition to the formal survey at the end of the semester. Specific comments are more useful than vague ones. You may comment to the instructors directly or indirectly at any time during the semester; comments may be oral or written and submitted anonymously. If you have a good command of English, please do not hesitate to help International students (whose native language is not English and appear to be struggling) with their written assignments or other problems. If you do so, please let the instructor know so that your participation effort can be noted. Please read ahead of time the assigned readings to be addressed in class. Avoiding stress becomes especially important as the semester progresses. November and April are almost always very stressful months for everyone, owing to an accumulation of assignments and other pressures. Any student with a documented disability (physical or cognitive) who requires academic accommodations should contact the Services for Students with Disabilities area of the Office of the Dean of Students at 471-6259 (voice) or 4714641 (TTY for users who are deaf or hard of hearing) as soon as possible to request an official letter outlining authorized accommodations. VII. COURSE CALENDAR. Tuesday January 17 Preview of course Textbook purchasing/ordering Health information career options/certification Major web sites The search process/terminology Introductions Please start gaining a detailed working knowledge of the MLA and NLM sites. Complete the PubMed Overview January 24 Terminology Overview of major web sites MedlinePlus/PubMed Discuss PubMed Overview Hardin Meta Directory, Biosites, CliniWeb, HealthWeb, and MedScape Information Resources in Health Sciences 7 2005 January 27 Read Boorkman, “Preface” and “Brief History,” vii-xiv. Please start learning terminology and becoming familiar with about 10 web sites per week from the MLA Top Ten and Top 100. Complete PubMed, “Using PubMed.” January 31 Terminology and acquiring disease knowledge prior to search MLA Top 10 MESH and other NLM Guides Discuss “Using PubMed”. Discussion of Supersearchers, pages 1-10, (Introduction) Complementary/alternative approaches Evidence-based approaches; Cochrane Library Read Boorkman, Chapter 1 on the reference collection. Please start skimming about 100 pages per week of Alternative Medicine. Become familiar enough with topics so that you can resort to them as necessary during searches. Complete PubMed “Working with Search Results.”. February 7 Read Boorkman, Chapter 2 on monographs. Terminology and disease background MedlinePlus reference sources Discuss PubMed “Working with Search Results.” Discussion of Supersearchers, pages 11-26 (Cavanaugh) MLA Top 100, sites 1-20 Evidence-based approaches; Cochrane Genetic approaches Discuss Alternative Medicine, pp. 1-59. February 14 Read Boorkman, Chapters 3 on periodicals, and 4 on indexing, abstracting and databases Terminology and background Discuss PubMed, “Feature Tabs” CINHAL MLA Top 100, sites 21-40 Discussion of Supersearchers, pages 27-40 (Brahmi) Comprehensive Guides Discuss Alt. Med., pp. 62-161. February 21 Read Boorkman, Chapters 5 on US Government sources, and 6 on conferences, reviews and translations Comprehensive searching Information Resources in Health Sciences 8 2005 January 27 Discuss PubMed, “My NCBI” MLA Top 100, sites 41-60 Web of Science Discussion of Supersearchers, pages 41-56 (Emmett) Capstone and field study options Discuss Alt. Med., pp. 162-251. February 28 Read Boorkman, Chapters 7 terminology and 8 on handbooks and manuals Discuss PubMed, “Links.” MLA Top 100, sites 61-80 Excerpta Medica database Discussion of reference guide projects Discussion of Supersearchers, pages 57-72 (Allen) Discussion of comprehensive, in-depth searches Complementary approaches Discuss Alt. Med., pages 252-350. March 7 Read Boorkman, Chapters 9 on drug information sources and 10 on consumer sources Read Supersearchers, pages 73-100 (Stewart and Allee) Discuss Alt. Med., pp. 351-474. Discuss PubMed, “PubMed Services.” March 14 Spring break; no classes Read Boorkman, Chapters 11 on health statistics and 12 on directories and biographies March 21 Read Boorkman, Chapters 13 on history sources and 14 on grant sources Discuss PubMed, “Search Field Descriptions” and “Final Review.” PubMed Top 100, sites 81-100 Health reference guides Discussion of Supersearchers, pages 73-112 (Stewart and Allee; Eshleman) Other online resources, including web Discuss Alt. Med., pages 476-569. Genetic Home Reference Library DUE: HEALTH REFERENCE GUIDES March 28 Exam review PubMed, “Search Field Descriptions.” Discussion of Supersearchers, pages 113-126 (Geyer) Online bibliographic and web resources Discuss Alt. Med., pages. 570-672. Information Resources in Health Sciences 9 2005 January 27 April 4 PubMed, “Final Review.” Discussion of forthcoming exam Discussion of Supersearchers, pages 127-140 (Levis) Online bibliographic and web resources Discuss Alt. Med., pages 673-749. April 11 OPEN BOOK EXAM Elaboration of Reference Guides Discussion of Supersearchers, pages 141-159 (Snow) Discuss Alt. Med., pages 673-749. April 18 Discussion of Exam answers Comprehensive searches Discuss Alt. Med., pages 750-846. Tentative: Visit to Spring Open House at Academy of Oriental Medicine, 2700 West Anderson Lane. Exact dates and times to be announced. April 25 Discuss Alt. Med., pages 847-951. Discussion comprehensive searches Course survey May 2 Last class Discuss Alt. Med., pages 952-977. DUE: COMPREHENSIVE SEARCH REPORT. Information Resources in Health Sciences 10 2005 January 27