Revised April 18, 2005 RESPONDENT’S DEMOGRAPHIC PROFILE Country Name Age Gender Occupation Highest Educational Attainment Address Phone Number Email Group/Institutional Affiliation Years of service at present work QUESTIONNAIRE ON STATUS OF MENTAL HEALTH RESEARCH (For Professional Associations, Consumer Associations and Family Groups) Number Question 1. Demographics 1.1 ID Number 1.2 Type of user group 1.3 Membership 1.4 Focus of group (please tick all that apply) 1.5 Duration of existence 2. Status of mental health research 2.1 In your assessment, how relevant is mental health research to your group? 2.2 In what ways is your group involved in mental health research activities? Please tick all that apply. Response Categories Support group Advocacy group Research group <10 10-20 20-100 100-1000 >1000 Psychosis Dementia Learning Disability Depression Alcohol and drugs Mental health/issues in general Social justice of people perceived as having a mental health problem Other, please specify <1 year 1-5 years 5-10 years >10 years Very Moderate Not at all Don’t know None Occasional consultation or briefing by researchers Participating (or facilitating participation) as subjects Involvement in planning/designing mental health research conducted by others 1 Revised April 18, 2005 Involvement in interpretation/dissemination of mental health research conducted by others Direct conduct of mental health research Ethical review of mental health research Other, please specify 2.3 Has your group ever been involved in activities aimed at ensuring the implementation of mental health research findings? If yes, how? Please tick all that apply. Yes No Don’t know 2.5 In your view, in what ways could your association/group be involved in mental health research activities? Please tick all that apply. Mental Health Research priority setting Mental Health Research planning As subjects Implementation of mental health research finding Dissemination of mental health research findings Fund raising Direct conduct of mental health research Ethical review of mental health research proposals Other, please specify 2.6 Based on your experience and knowledge, are there any policies, programmes, advocacy movements, or practices that have resulted from the evidence of mental health research findings done in your country? If yes, please give one important example Yes No Don’t know Based on your experience and knowledge, is there any established research evidence that should have influenced policy, programme, advocacy or practice but has not done so? 2.9 If yes, please give one important example 3. Role of media 3.1 In your experience and to your knowledge, are the media in your country involved in any of the following activities in the area of mental health research? (Please tick all that apply). Yes No Don’t know 2.4 2.7 2.8 4. Mental Health Research Priorities 4.1 Over the next five years, what in your opinion are the most important mental health research priorities in your country? Please indicate your top three for each of the following categories of research priorities: (1 = First priority, 2 = Second priority, 3 = Third priority) Please do not mark more than one choice with the same rank. Advocacy Lobbying policy makers Raising funds for implementation Any other, please specify Dissemination of results Advocacy for implementation Popularization of research culture No activity at all Displaying basic information or news about general health services delivered Sensationalizing mental illness in a negative way Emphasizing a medical (as opposed to psychosocial) model of mental illness Type of Mental Health Research Epidemiological studies of burden and risk factors Clinical Trials Social science research e.g. illness beliefs, measurement Health systems research e.g. services evaluation, policy and economic studies Basic sciences research, including genetics and neuroimaging 2 Revised April 18, 2005 Mental Health Issues Psychoses Depression/Anxiety Substance use Childhood disorders Dementia Epilepsy Personality Learning disabilities Eating disorders Suicide Other, please specify Specific Populations Women Children and Adolescents Poor Refugees Minorities Elderly persons Persons exposed to Violence/Trauma Prisoners Disabled persons Other, please specify Criteria for Prioritizing Burden of disease in the population Availability of funds Personal interest Policy maker request Social justice/equity Commissioned by external agency Other, please specify Please refer other researchers or stakeholders in your country who are also involve in mental health research and practice: Name Mailing Address Phone/Fax/Mobile Email Kindly attach your CV if possible. THANK YOU FOR YOUR VALUABLE TIME AND CONTRIBUTION! 3