The role of professional associations in promoting ‘the right to health’ and other human rights Julian Sheather BMA ethics department The BMA believes that professional associations have ethical duties to provide leadership, support and guidance for doctors and other professionals involved in promoting and protecting human rights, whether this involves defending violations of individual human rights, or in promoting the ‘right to health’ and other social, economic and cultural rights. Much of the BMA’s work that falls under the rubric of the ‘right to health’ has traditionally been undertaken via its public health responsibilities. RESPONSIBILITIES OF MEDICAL ASSOCIATIONS National medical associations have somewhat different roles in different countries. The BMA, for example, is a professional body which, as a trade union, represents doctors' interests but does not have powers to fulfil disciplinary functions, register or de-register doctors or examine their fitness to practise. In the UK, such regulatory and disciplinary functions are the domain of the General Medical Council. In some other jurisdictions, the picture is different and the professional body may also be the regulatory authority. In this section, we set out the general moral responsibilities which are common to all medical associations, most of which are also applicable to nursing associations and other organizations of health professionals. Providing Leadership Most professional associations can provide effective leadership in routine matters. A far harder task, however, is to take a stand in situations of great risk or civil crisis. As ‘the right to health’ inevitably engages with issues about the allocation of extensive public goods, its promotion can result in political conflict, and this can provide considerable difficulties for some national medical associations. Not all professional bodies face such challenges but they should, nevertheless, fulfil an effective leadership role in the sphere of medical ethics and human rights, including: establishing clear standards of ethical practice; disseminating information about good practice and ensuring that appropriate disciplinary procedures are in place (even if they are not responsible for administering them); ensuring the existence of monitoring systems for the way medicine is practised in different contexts, including those situations where doctors are most likely to be put under pressure to deviate from ethical standards, such as prison medicine, care in closed institutions and police stations, forensic medicine and medicine in the armed forces; ensuring that they do not support, financially through investment or otherwise, organizations or industries whose activities cause harm to public health, such as the arms industry; and striving to change laws or government policies that appear unjust and whose foreseeable end is prejudicial to public health or likely to prevent doctors from caring appropriately for patients. 1 Providing Guidance and Promoting Awareness As previously mentioned, a key function of a national medical association is to ensure that doctors have clear guidance about legal and moral standards. One way of ascertaining where there is a need for such guidance is by consulting doctors about their current knowledge and attitude on specific issues. As well as clarifying whether further detailed guidance is needed and where there are misconceptions about doctors' duties, such an exercise also raises awareness within the profession about the range of issues upon which doctors ought to take an interest. When a need for guidance has been identified, associations can meet that need by producing publications, contributing to the development of medical curricula and playing a role in continuing medical education. Ready-made guidance, such as the various declarations of the World Medical Association (WMA), should not only be disseminated to doctors, in their own language by medical associations, but efforts should also be made to ensure that it is implemented in practice. There is a great deal that professional associations can do to promote awareness about ethics and human rights issues, among their own members and a wider public, through their journals, seminars and conferences. Professional bodies can also support voluntary medical groups that undertake human rights activities and letter campaigns. Professional bodies can support exchange programmes and voluntary overseas medical work or help medical students find posts in developing countries during their training. They can publicize the work of humanitarian organizations such as Medecins sans Frontieres and Medecins du Monde. Ethics and Human Rights Training Ethics teaching is a key sphere in which professional bodies can make a contribution. Medical associations should encourage medical schools to incorporate ethics into the core undergraduate curriculum. They should also disseminate international declarations and statements on standards of medical ethics and human rights. Again ready-made collections are already available, such as Amnesty International's Ethical Codes and Declarations Relevant to the Health Professions, the WMA's Handbook of Declarations and the index of International Guidelines on Bioethics published by the Council for International Organizations of Medical Sciences (CIOMS). Medical bodies should support doctors undertaking some type of formal commitment or oath to observe ethical standards. The BMA also supports the involvement of medical associations in the provision of human rights training at undergraduate level and as part of continuing professional development. Liaison with Student Organizations Some of the organizations that are most active in raising awareness of human rights are national and international medical student organizations. In many parts of the world, they organize symposia, the production of teaching materials and support networks. Clearly, the campaigning activities of medical students are particularly important since they influence the attitudes of future doctors and future members of national medical associations. 2 The BMA recommends that medical associations maintain strong links with organizations of medical students, encourage their campaigns on behalf of human rights and ensure that the guidance and support available to practising doctors also be made available to students. Establishing a Human Rights Committee One measure which can promote awareness in countries where human rights are particularly at risk is the establishment of a specific committee on human rights within the medical association. The Kenya Medical Association's Committee on Human Rights, for example, was established in 1998 and undertakes a range of activities, such as documenting cases of alleged torture, publishing a newsletter explaining where abuses are most likely to occur, organizing meetings and petitions and providing information on issues such as how doctors can lobby ministers on human rights issues. In 1999, one of the activities of the human rights committee was to visit the Kenya Medical Association Divisions all over the country talking to doctors, encouraging them to become involved in human rights activities and advising them on lobbying. Campaigning Against Harmful Practices From a ‘right to health’ perspective, 'health' is increasingly viewed as a multidimensional concept that includes far more than the absence of disease. Prejudice and unfair discrimination impede an individual's ability to enjoy good health and can also impact gravely on the wellbeing of society. The WMA has considered at length the moral responsibilities of medical associations to campaign against discriminative practices, particularly but not only, those which involve doctors. By raising issues which are political, social or cultural as well as medical, the WMA has made clear its expectation that medical associations will play a campaigning role to support health promotion in its widest sense. Medical associations should also monitor legal developments in their country which might have implications for medical practice, and lobby legislators if such legislation contravenes standards of public health or principles of medical ethics and human rights. Campaigning for Equitable Access to Quality Health Care In most countries there are some sectors of the population which do not enjoy equitable access to good quality health care. Among such marginalized groups are the poor, prisoners, migrants, asylum seekers, indigenous and homeless people. The World Medical Association has published a number of consensus statements on public health issues, emphasizing the duty of medical associations to campaign, in conjunction with others, to promote equitable and good quality health care. By their health campaigns, medical associations can draw attention both to the human rights issues arising from inequity and the public health consequences of ignoring the health needs of some populations. In addition in some countries, rehabilitation services are not sufficient for the numbers of people who have suffered trauma and violence. This is another area in which medical associations can be influential. Promoting Measures to Improve Health and Welfare 3 Closely allied with the responsibility to campaign against harmful discrimination is the role of professional medical bodies in benefiting the health of their own community and of people in other countries. Health organizations have an obligation to oppose measures that damage health, such as the proliferation of armaments, the existence of unsafe work practices, unsafe research, unregulated use of noxious substances such as pesticides and the improper disposal of toxic materials and the inclusion of medicine in economic trade embargoes. Again, the World Medical Association has published consensus statements on a wide range of such issues, including condemning the use of landmines and the practice of female genital mutilation. IMPEDIMENTS TO ACTION BY MEDICAL ASSOCIATIONS Most medical associations fulfil some of the above-mentioned functions but some experience impediments of various kinds. Political Repression Unfortunately, in countries where torture and other gross violations of human rights are commonplace, medical associations rarely seem able to address this abuse even though their own members are likely to be harassed, threatened or even killed. Some of the reasons for this situation are self-evident. Medical associations themselves may become the target of repression, as in the case of the Syrian Medical Association whose brave attempt to stand up for basic human rights resulted in catastrophe for prominent doctors. Its actions indicate the potential scale of danger faced by individual doctors even when they band together with colleagues and with other professionals, such as lawyers. Lack of Resources Some medical associations are so devoid of funds and other material resources as to have great difficulty in achieving basic tasks, such as providing a clear code of ethical guidance for their members. This, for example, was the situation of the Albanian Medical Association after its establishment in 1990, in probably the poorest country in Europe. At that time, Albania was a country in transition, lacking infrastructure, and its medical profession had long been isolated from contact with colleagues abroad. During the previous Hoxha regime, traditional Hippocratic values had been labelled as undesirably bourgeois. Doctors had been expected to obey party cadres without question and some reported having been beaten if they objected. Training in medical ethics and in international standards was almost non-existent despite valiant efforts by a few doctors to teach themselves and follow developments abroad. An early priority of the Albanian Medical Association, therefore, was to raise awareness of ethical standards. Production and dissemination of an Albanian Code of Medical Ethics absorbed half of its income, leaving very few resources for basic functions such as the establishment of even a meagrely equipped central office. Tremendous variations exist in the capabilities and resources that such organizations can command to tackle the tasks outlined in preceding chapters as essential elements in effective human rights strategies. Regrettably but predictably, the medical associations facing the biggest challenges in human rights terms are often those with the least resources and support themselves. In many cases, they acquit themselves with great credit despite the lack of funding and material resources. Nevertheless, it is with this awareness of the challenge outrunning resources that we ask supra-national bodies, such as the World Medical and World 4 Psychiatric Associations, to consider fostering schemes such as the development of 'partnerships' between developed and developing national medical associations. Lack of Awareness of the Relevance of Human Rights Many medical associations do not consider that human rights have any real relevance for their work although this view is gradually changing and the ways in which medical ethics and concepts of human rights overlap and complement each other is being increasingly recognised. This congruence of goals is increasingly echoed in codes of medical ethics, issued by national bodies such as the Uruguayan Medical Association and influential international associations such as the Commonwealth Medical Association. Legacy of Past Suspicion Another reason for the failure of some medical associations to work effectively in the human rights sphere is their lack of opportunity or will to collaborate co-operatively with other organizations active in that field. Professional bodies usually see themselves as independent and apolitical rather than as part of a multi-professional alliance. They may feel uncomfortable working with non-governmental organizations (NGOs) that have a very different membership and political focus to that of a medical association. While health organizations may be suspicious of NGOs which are perceived as pressure groups with their own agenda, some of this suspicion may be mutual, as medical associations are sometimes perceived as excessively bureaucratic and traditionalist. Nevertheless, as is mentioned further below, the BMA's strong recommendation is that groups which have common aims in relation to human rights should work together to maximize their effectiveness. POTENTIAL SOLUTIONS A solution which addresses many of these problems can be found in the development of effective networks of health professionals, medical students' organizations, human rights activists, legal experts and national medical associations. Networks of Medical Associations and Medical Groups A good model of such collaborative work can be seen in the campaigns, conferences and educational activities carried out by the International Federation of Health and Human Rights Organisations (IFHHRO). This is a network of medical groups which initially developed out of the establishment in many countries of new branches of the organization Physicians for Human Rights (PHR). During the 1990s, the PHR network found that it had much in common with other well-established medical human rights groups. One of the most notable of these is the Johannes Wier Foundation in the Netherlands which has long implemented an extensive programme of human rights activities, including missions to investigate human rights violations, publication of reports and training manuals and campaigning work. As the IFHHRO network has expanded, national medical associations such as the BMA and the Turkish Medical Association have joined it and benefited greatly from its expertise on all aspects of human rights work. Organizations of medical students are also increasingly involved in the campaigning and educational roles of the network. Partnerships and Exchange of Skills 5 The BMA supports the development of partnerships between well-established and newly developing medical and nursing associations to share expertise and experiences. Professional partnerships can promote exchange schemes of personnel or concentrate on the exchange of materials such as guidelines and ethics teaching materials. We would also strongly encourage organizations of health professionals to pool expertise, not only through traditional mechanisms such as international meetings, conferences and professional exchanges but also through newer means of communication, such as websites. Many organizations have developed helpful guidelines and these can be shared and adapted through the internet rather than each organization having to re-invent similar guidance. Mutual support in the face of ruthless and powerful governments requires associations of health professionals to band together to share guidelines, moral support and information about strategies proved to be effective in other comparable situations. Where medical associations are unable to act for political or other reasons, we expect other medical and nursing associations to lend what support and help they can to colleagues in those countries so that they are not left bereft of help. Networks with other Professions The BMA also strongly advocates the development of alliances between disparate groups, including representative organizations of doctors, nurses, lawyers, journalists and social workers to provide essential mutual support and protection in the human rights sphere. By producing joint strategies, the professions can increase their influence. To be really influential in the human rights field, medical associations and other professional groups also need to have contact with reliable media commentators and investigative journalists who are able to publicize abuses and inequities. Co-operative ventures between health professionals and lawyers are increasing in many countries. Liaison with NGOs It is vital that professional isolationism be countered by the development of new strategies for working with non-governmental organizations and those already well-versed in international human rights law. Of particular importance is effective liaison with non-governmental organizations (NGOs), especially those involved in information-gathering, in obtaining redress for survivors of abuse and in supporting asylum seekers. NGOs are changing and growing in various ways. Western industrialized countries initially provided the grassroots experience of public sector activities to stimulate the development of NGOs. This is changing, as is the way many NGOs are staffed. In the past, health sector NGOs were seen as apolitical deliverers of services to the poor and marginalized. Their staff came predominantly from the developed world and the organizations were often run by expatriates. This pattern too has changed. Many health-related NGOs have moved from a service role to a more consciously influential role, taking up causes of injustice and challenging the authorities. Even though it may not be their primary aim, NGOs are effective in influencing public policy and changing the way that the state operates by obliging the authorities to be publicly accountable. The Danish Medical Association provides a good model of collaboration with NGOs which are active in the human rights sphere. 6