Additional file 1 Disability Index (Scleroderma Health Assessment Questionnaire) Disability Index (Scleroderma Health Assessment Questionnaire) Visit number: 1 2 3 Date: ______/______/______ Research ID number: ____________________ Please check the answer that best describes your usual abilities in the past 7 days. Are you able to: Without any Difficulty With Some Difficulty With Much Difficulty Unable to do Dress yourself, including tying shoelaces & doing buttons? Office Use Dressing & Grooming Shampoo your hair? Arising Stand up from an armless straight chair? Get in and out of bed? Eating Cut your meat? Lift a full glass to your mouth? Open a new milk carton? Walk outdoors on flat ground? Walking Climb up five stairs? Wash and dry your entire body Hygiene Take a bath Get on and off the toilet Are you able to: Reach and get down a heavy Object (such as bag of sugar, or a large book) from just over Without any Difficulty With Some Difficulty With Much Difficulty Unable to do Office Use Reach your head? Bend down and pick up clothing off the floor ? Open car doors? Grip Open jars that have been Previously opened? Turn taps on and off? Activity Run errands and shop? Get in and out of a car? Do household cleaning such as vacuuming or sweeping? FOR OFFICE USE: Transfer the worst score Without any difficulty= 0 With some Difficulty=1 With much Difficulty=2 Unable to Do=3 TOTAL=