Angie Fletcher, MSEd Human Development Specialist, University of Missouri Extension Putting Things Back Together…Effects of Disability on Farm & Ranch Families By the end of our time today… Define family and disability Clarify what roles exist within a family and how disability can change and redefine roles Identify characteristics of a strong family Explore the implications of disability on farm and ranch families By the end of our time today… Review the grieving process and its effect/affect on individuals Explore ways AgrAbility professionals can identify and support families adjustment to disability What Is A Family? A family is defined as two or more persons who share resources, share responsibility for decisions, share values and goals, and have a commitment to one another over time. American Association of Family and Consumer Sciences Who does what? Housekeeper Provider Child Care Kinships Help-giver Recreational What makes a family strong? Caring & appreciation Time together Encouragement Commitment Communication Spirituality Community & family ties Clear roles What makes a family strong? Coping with change—all families develop habits, routines and rules. These contribute to continuity and stability. In strong families, this pattern remains flexible or adaptable enough to cope with crises or change. May require changes in habits, rules, power structure, roles and division of labor. What Is Disability? An individual with a disability is defined as a person who: has a physical or mental impairment that substantially limits one or more major life activities a record of such an impairment or is regarded as having such an impairment Source: Disability Information & Statistics http://www.joniandfriends.org/disability_ stats.php Impact of Disability on Rural Families Rural Location Long drives to medical facilities, physical therapy, etc. Fewer services offered vs. those located in town or urban locations Impact of Disability on Rural Families Financial Decrease in income Medical bills and costs associated with care/rehabilitation Costs of adaptations http://extension.missouri.edu/explore/h esguide/famecon/gh3830.htm Impact of Disability on Rural Families Responsibility Reassignment of chores/responsibilities Who is there or who is able to take over those responsibilities If no one in the family is available—added stress of finding/paying someone to do chores Impact of Disability on Rural Families Challenges Feelings of the disabled family member of being a burden Feelings of other family members being overwhelmed by new/added responsibilities Stress Hopelessness Fear Impact of Disability on Rural Families Challenges (continued) May see disability as a threat rather than an opportunity Encouragement Renewed commitment Satisfaction Opportunity Disabled Individual “To us what matters is an individual…We ourselves feel that what we are doing is a drop in the ocean. But if that drop was not in the ocean, I think the ocean would be less because of that missing drop.” Mother Teresa Family AgriAbility The Grieving Process Grief is necessary Provide a “safe” place for interaction Validate feelings Grief Expectations Grief time frame Identifying resources and support The Grieving Process Stage Stage Stage Stage Stage I—Shock II—Recovery Expectations III—Mourning IV—Defense V--Adjustment The Grieving Process Stage I—Shock Numbness Disbelief Denial that anything serious has occurred The Grieving Process Stage II—Recovery Expectations Hope that this is only temporary Things will get back to normal with a little time The Grieving Process Stage III—Mourning Grieving the loss The Grieving Process Stage IV—Defense Anger Aggression The Grieving Process Stage V—Adjustment Acceptance Interested in making adaptations Goal setting Communication Communicating—Common Pitfalls Judging Labeling Moralizing Advising Communicating—Listening Most people… Talk at about 125 words per minute Listen at a rate of about 400 words per minute This Means… We think ahead of the person who is speaking Communicating--Listening Putting aside your own thought and opinions Openness and respect for what the other person is sharing Sensitivity, listening for feelings and meaning Balancing Responsibility How to Have a Really Bad Day… Over schedule yourself Be inflexible Expect perfection Worry about everything Try to do it all Take everything personally Procrastinate Leave your sense of humor at home Factors That Cause Imbalance Job Family Taking on too much Stress! Getting a Grip on Stress Communicate Delegate Say no Simplify Laugh Exercise Plan ahead Getting a Grip on Stress Identify specific stressors Stress Management--You can change… how you think some of the ways your body reacts situation Referral Disabled Individual “To us what matters is an individual…We ourselves feel that what we are doing is a drop in the ocean. But if that drop was not in the ocean, I think the ocean would be less because of that missing drop.” Mother Teresa Family AgriAbility