HEART FAILURE AUDIT ANALYSIS AND OUTCOMES (HALO) TERMS OF REFERENCE Version 2 10th August 2015 HEART FAILURE AUDIT ANALYSIS AND OUTCOMES TERMS OF REFERENCE 1. TITLE Heart failure Audit anaLysis and Outcomes (HALO) 2. INTRODUCTION HALO is established to lead on all research activity relating to the National Heart Failure Audit. These terms of reference set out the membership, structure of partnerships, decision-making and accountability, work plan and performance management, confidentiality and the arrangements for the conduct of business of the working group. 3. PURPOSE Its purpose is to promote the use of National Heart Failure Audit data in high quality research projects that have the ultimate aim of improving patient care. HALO is responsible for appraising research applications to use National Heart Failure Audit data and overseeing and collaborating on projects using audit data. HALO will also develop a research agenda for the audit, including submitting grant applications, commissioning or carrying out analysis, and preparing papers for publication. HALO is represented on the NICOR Research Executive and the National Heart Failure Audit Executive Group by the Chair. MEMBERSHIP 3.1. The Chair The Chair of HALO is appointed by the National Heart Failure Audit Executive Group. Their responsibilities include: Inviting specialists and applicants to attend meetings when required by the group; Guiding the meeting according to the agenda and time available; Ensuring all discussion items end with a decision, action or definite outcome; Reviewing and approving the draft minutes before distribution; and Reporting on National Heart Failure Audit research activity to the NICOR Research Executive. 3.2. The Project Manager The National Heart Failure Audit Project Manager will be responsible for supporting the Chair in the management of HALO business. Their responsibilities include: Scheduling meetings and notifying members; Preparing agendas and issuing notices for meetings, and ensuring all necessary documents requiring discussion or comment are attached to the agenda; Distributing the agenda and associated papers seven working days prior to any meeting; Taking notes of proceedings and prepare minutes of the meeting; Brief minutes and action points arising from the meetings to be written and circulated within 14 working days of the meeting; The minutes shall be checked by the Chair and accepted by HALO members as a true and accurate record at the commencement of the next meeting. 3.3. Qualification of membership HALO members shall be appointed by the Chair. HALO must have representation from NICOR and the National Heart Failure Audit Clinical Lead. Eligibility for appointment and reappointment will be considered when members reach the end of their term (three years unless otherwise specified), when non-NICOR representatives terminate their membership, or when members cease to represent their respective stakeholder group. Member Position Stakeholder role End of membership Henry Dargie Honorary Professor of Cardiology (U. of Glasgow) and chair of HALO HALO January 2019 Theresa McDonagh Consultant Cardiologist (KCH) and Professor of Heart Failure (KCL) and National Heart Failure Audit Clinical Lead National Heart Failure Audit January 2019 John Cleland Professor of Cardiology (Imperial College, London) Consultant cardiologist January 2017 Adam Timmis MAG chair and Professor of Clinical Cardiology at London Chest Hospital MAG/MINAP End of membership on MAG Chris Gale NIHR Clinician Scientist Award Associate Professor of Cardiovascular Health Research (University of Leeds), Honorary Reader (UCL) and Honorary Consultant Cardiologist (York Teaching Hospital); NICOR Research Executive and NICOR Research Working Group Co-Chair NICOR research fellow January 2017 Ian Ford Professor of biostatistics and Director of the Robertson Centre for Biostatistics (U. of Glasgow) External statistician January 2017 Akosua Donkor National Heart Failure Audit Project Manager National Heart Failure Audit (non-voting member) Duration of employment 3.4. Quorum membership A quorum is necessary for the transaction of business. A minimum of three members must be present before the meeting can proceed. The following of members must be present before a meeting can proceed: The Chair The National Heart Failure Audit Clinical Lead One other member 3.5. Invitees Internal or external persons may be invited to attend meetings at the request of the Chair on behalf of HALO to provide advice and assistance where necessary. It may not be necessary for an invitee to attend the whole meeting and may be requested to leave the meeting at any time by the Chair. 3.6. End of membership HALO members will cease to be a member of the group if they: Resign from the group Fail to attend three consecutive meetings without providing apologies to the Chair or a representative to attend the meeting Resign from their employment at NICOR Breach confidentiality 4. STRUCTURE OF PARTNERSHIPS HALO reports to the NICOR Research Executive and the National Heart Failure Audit Executive Group. The decisions of the audit Executive Group should take into account the views of HALO. 5. DECISION-MAKING AND ACCOUNTABILITY Decisions will be made by a minimum quorum membership or via email, if a decision is needed within a short time frame. 6. WORKPLAN AND PERFORMANCE MANAGEMENT Overall, HALO is responsible for all research activity within and relating to the National Heart Failure Audit. Specifically, this includes: To have input into the annual report analysis plan; Appraising internal and external applications to use audit data; Overseeing and collaborating on projects using audit data; Nominating members to sit on steering groups or advise on analysis for projects using audit data, where applicable; Developing an internal research agenda for the audit; and Preparing papers for publication using audit data. 7. CONFIDENTIALITY The business of HALO is not confidential, although the Chair reserves the right to censor sensitive information from published minutes in exceptional circumstances. 8. ARRANGEMENTS FOR THE CONDUCT OF BUSINESS In addition to the ways of working highlighted within the roles of the Chair and project manager, the following apply: 8.1. Frequency of meetings The meeting will occur quarterly. Where possible they should occur shortly after the quarterly Executive Group meetings. 8.2. Duration of meetings The meetings will be scheduled for 120 minutes. 8.3. Location of meetings All meetings will be held at UCL. Room availability permitting, all will be held at NICOR, 170 Tottenham Court Road, London, W1T 7HA. Travel expenses can be reimbursed. In line with UCL procedure, all claims for reimbursement of expenses, incurred by an individual in the course of UCL related business, must be supported by official receipts or some other valid form of supporting documentation, providing details of the purpose of expenditure, which will be signed by the claimant and an authorised NICOR staff member. All expense claims must be presented for reimbursement within three months of the expenditure being incurred and will be reimbursed via cheque or BACS to the nominated bank account. All claims should adhere to the UCL Travel policy: http://www.ucl.ac.uk/finance/expensespol/travel_intro.html 9. REVIEW OF THE TERMS OF REFERENCE The terms of reference and membership shall be reviewed annually from the date of approval to ensure the group continues to be fit for purpose. They may be altered to meet the current needs of all HALO members, by agreement by the Chair and the majority of members. 10. TERMS OF REFERENCE – AGREEMENT The terms of reference of HALO have been: Reviewed: 22/01/2014 Agreed: Date for review: [NB: updated 10/08/2015 to account for changes to NICOR staffing]