National Heart Failure Audit Newsletter This month’s newsletter is quite a long one, so please bear with me! The purpose of the National Heart Failure Audit newsletter is to provide regular communication to keep local users of the audit up to date with audit developments and events. Please get in touch is there’s anything you would like included in the next newsletter. Contact details are on page 5. 2012/13 data entry deadline Issue 5 April 2013 In this issue 2 Admission & readmission forms 2 Changes to contact details 3 Updates on data definitions 4 Pro forma problems 4 Patient friendly report distribution 5 National Heart Failure Audit road show programme failure are required to submit 20 patients per month to the audit (240 over the whole year). If your Trust admits fewer heart failure patients than this in the year, please an submit data on the full number of patients. that As of April 2013, you will be required to the enter data on all patients discharged with a can primary diagnosis of heart failure. The deadline for submitting records for patients discharged between 1 April 2012 and 31 March 2013 will be 31 May 2013. If your hospital imports data from existing local database, please check your import files are valid before deadline, to ensure that any problems be ironed out well in advance. Please get in touch in advance to inform us In 2011/12 all Trusts which admit acute if you are having any problems uploading patients with a primary diagnosis of heart your data. accessed via the National Heart Failure Audit application on Lotus Notes, along with The National Heart Failure Audit has a pro forma. developed a survey of hospital facilities, comprising around 20 questions, in order to Some hospitals have had trouble saving the obtain more information about the specialist survey, although this problem appears to be cardiology and heart failure services sporadic, and it is not yet clear why it is provided at each of the hospitals submitting happening in some cases but not others. If you have not been able to save the survey, data to the audit. please send the completed pro forma to Please complete the survey by 31 May Polly Mitchell. 2013, so that the results can be used in conjunction with the data collected for the Apologies for any inconvenience caused by 2012/13 Annual Report. The survey can be problems saving the form. Survey of hospital facilities Page 1 National Heart Failure Audit Newsletter Issue 4 Standing: changes to admission and readmission forms’ Admission and readmission forms A number of hospitals have found that they are unable to enter an admission record which predates an existing admission on the audit database. You may have encountered a pop-up message saying that you can only have one admission per patient, or that the date of admission for a readmission record cannot predate the date of discharge for the admission record. Include in the message: a. The patient’s hospital number b. The date of admission for the new admission you wish to enter c. The date of discharge for the new admission record. Marion will change the existing admission into a readmission record, and create a new admission record with the admission and discharge dates that you have provided. She will contact to let you know when this has been done. The new record will be saved as a draft; you can then go back into Lotus Notes and fill in the remaining information. We have recently created a tool to fix this issue. If you find a heart failure admission for a patient which predates an admission which you have already entered onto the system for that patient, you should do the Please note that patient identifiable data, following: including case record numbers, must be Send a message via the drop box on sent via the drop box and not via email. the NICOR portal to Mary Jacob. If you have any questions about this Give the message the title ‘FAO Marion process, don’t hesitate to get in touch. NICOR helpdesk (details on p.5) in the instance of any changes to database users Please continue to keep us updated of any or contact details. changes to the contact details of those people involved with the audit, so that we can keep you informed of changes to the database and important updates relating to the audit . Changes to contact details If someone with access to the National Heart Failure Audit database leaves the Trust, goes on maternity leave or is no longer responsible for the audit, the name on the Lotus Notes licence and ID file will need to be changed. Please contact Polly Mitchell and the Page 2 National Heart Failure Audit Newsletter Issue 5 addition to the lead specialist: Heart Failure Specialist Nurse, other consultant, district or The definition of some data fields have been primary care nurse, pharmacist, dietician, queried by multiple people, so more physiotherapist, psychologist, primary care information about some of these fields is provider, social worker. provided below. *** If there are any data items about which you would like clarification, please contact Polly Field 2.04ai: Which of the following did Mitchell. If a query about a particular data the patient see item is recurring, a clarification will be Option ‘1. Consultant Cardiologist’ should included in the next newsletter, and the be selected if the patient saw a Consultant application notes will be updated at the next Cardiologist or a Cardiology SpR. opportunity to include the additional Ideally a heart failure patient should see the information. Consultant as well as the SpR. Updates on data definitions *** *** Field 2.04a Did the patient receive input Field 15.07 Cardiology follow-up from a multidisciplinary HF team? Similarly, if the patient had a follow-up A heart failure multidisciplinary team (MDT) appointment with a Cardiology SpR, this is defined in line with the NICE quality question can be answered ‘1.Yes’. standard for chronic heart failure (http:// Again though, ideally cardiology follow-up www.nice.org.uk/qs9). should be with the Consultant Cardiologist. Quality statement 11: People admitted to *** hospital because of heart failure receive input to their management plan from a Field 9.01 Haemoglobin On 1 April 2013, Pathology Harmony multidisciplinary heart failure team. NICE definitions for quality statement 11 changed the standard unit of measurement can be found on the NICE website: for haemoglobin concentration from g/dL to g/L. www.nice.org.uk/qs9. In the audit, this question can be answered ‘1.Yes’ if there is a heart failure MDT at your hospital—i.e. a team led by a consultant with a specific interest in heart failure— and the patient was seen by any member of the MDT. This does not have to be the Consultant Cardiologist; field 2.04ai captures whether the patient has been seen by the Consultant. The National Heart Failure Audit cannot change the units in which it records Hb until the next dataset revision, planned for April 2014. Therefore please continue to record Hb in g/dL. To convert from g/L to g/dL, divide the value by 10. The acceptable range for Hb values in the National Heart Failure Audit is 5 to 20 g/dL. The heart failure MDT may include, in Page 3 National Heart Failure Audit Newsletter Issue 5 The audit pro forma should be used in conjunction with the application notes It has been brought to my attention that (available on the same web page as the pro some hospitals have not been using the forma), which give more detailed data latest version of the pro forma for the definitions, in order to ensure that accurate National Heart Failure Audit dataset. data are being captured. The correct version of the pro forma is on The pro forma has been updated in an the NICOR website: www.ucl.ac.uk/nicor/ attempt to clarify the data definitions. The audits/heartfailure/dataset. There are excel form now also includes space to record drug and word versions of the pro forma dosages. These are not core data items, but available. do provide important information about the Please note that height, weight, heart rate, benefits of up-titration, so please include blood pressure and the results of blood them if possible. tests, ECG and echo are all to be recorded If you have any comments about the design on discharge, or the last recorded or content of the form, or any questions measurement. about data definitions, please get in touch. Pro forma problems suggestion is for the reports to be distributed through existing hospital- and community-based heart failure outpatient In the last newsletter, we reported that the clinics. audit has, for the first time, published a We would like to know whether you would version of the annual report aimed be willing and able to distribute patient specifically at heart failure patients and their reports to heart failure patients at your families. This year the report was only hospital, or if you have any other published online, as a pdf, but in future suggestions as to how hard copies could years we would like to print copies of the be distributed. If possible could you give a report to distribute to patients. The pdf of rough estimate of how many reports you the 2011/12 patient report can be found at: might give to patients. This will help us to www.ucl.ac.uk/nicor/audits/heartfailure/ determine the feasibility of printing the additionalfiles. reports, and how many we should print. The BHF has generously offered to fund the We also plan to distribute copies of the printing and distribution of these reports, if report to hospital PALS and to CCGs, along the audit can develop a suitable logistical with copies of the main annual report. plan for their distribution. We would be very interested to hear your One possibility is that the reports could be thoughts and comments about the best way given to patients on discharge, at the same of getting the message about the treatment time as they are given discharge information of heart failure and its outcomes across to and any other leaflets and advice. Another patients and their families. Patient friendly report distribution Page 4 National Heart Failure Audit Newsletter Issue 5 National Heart Failure Audit road change and improve clinical practice, or how data collection processes have been show programme The audit is keen to continue its road show programme across England. If you are based in any of the following regions, and would like to help plan a road show , please get in touch: North West Yorkshire and the Humber East Midlands West Midlands East of England South West South Central Road shows usually involve an update from NICOR and from the National Heart Failure Audit and a presentation of the latest audit findings. They also include case studies from hospitals in the region, showing how heart failure teams have used audit data to streamlined and enhanced. Road shows may also involve workshops to discuss technical queries or ideas for the development of the audit, as well as lots of time for Q&A. If you, or any of the nurses, cardiologists or audit staff at your Trust have a case study that you think could be useful to other Trusts, please get in touch. If you have any suggestions for a venue, or can help put together a list of potential participants, your input would be much appreciated. Previous road shows have been very well received: as well as providing an opportunity to discuss good practice and share successes, road shows give you a chance to address any queries you have about the audit and discuss obstacles to participation and high data quality. Contact the audit General enquiries Contact Polly Mitchell with any clinical queries, general questions about the audit, or regarding any of the articles in this newsletter. Email: polly.mitchell@ucl.ac.uk Tel: 0203 108 3927 Technical enquiries For any technical questions, or problems using Lotus Notes or importing data, please contact the NICOR helpdesk. Email: nicor-helpdesk@ucl.ac.uk Tel: 0203 108 1978 Why have I received this newsletter? You have been sent this newsletter because you are either registered as a user of the National Heart Failure Audit database, or because your name is on the National Heart failure Audit distribution list. If you wish to be removed from the list, please inform Polly by reply. 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