Obstetric reporting in association with the
Royal College of Obstetricians and
Gynaecologists
Quarterly update
April 2015 • Newsletter 102
More than 19,500
pregnancies have been
reported since the NSHPC
was established in 1989;
between 1300 and 1600
have been reported
annually since 2005. As
shown here, in recent
years most pregnant
women with HIV were
already aware of their
diagnosis before they
became pregnant. This
graphic is available as one
of our standard slides on
the website – see
www.ucl.ac.uk/nshpc/slides
* latest years subject to reporting delay
Green card e-reporting pilot
This quarter we are piloting an online tool for reporting the number of women seen in obstetric
units in the most recent quarter in the hopes of rolling it out later in the year. It should be
straightforward to use and if you are one of the units selected for the pilot please try it out. We
appreciate any ideas or feedback you have.
IDPS Programme Regional Consultation
Workshops 2015
Some of you will have seen and spoken with
Helen Peters, Laura Byrne and Kate Francis
from the team who attended the “Play a part &
have your say” IDPS Programme Regional
Consultation Workshops earlier this year in
London, Birmingham and Leeds.
They presented summary data from the NSHPC
on mother-to-child transmission and preliminary
findings from the Perinatal HIV Audit.
Forthcoming conference presentations
based on NSHPC data
BHIVA, Brighton 21-24 April.
Laura Byrne (oral) Antiretroviral drug resistance
in pregnant women living with HIV in England &
Wales: preliminary results from the matching of
three national HIV surveillance databases
British Maternal and Fetal Medicine Society
London 23-24 April.
Kate Harding (poster) Invasive Procedures in
Pregnancy and at Delivery among HIV-Positive
Women
Perinatal HIV Audit update
All perinatally infected infants born in the UK since the beginning of 2006 onwards were eligible to be
included in our audit of recent perinatal HIV infections. The Expert Review Panel had its final
meeting in March to prepare recommendations for the National Screening Committee (NSC), which
funded the audit. A report on the findings will be available later this year.
nshpc@ucl.ac.uk
020 7905 2815
www.ucl.ac.uk/nshpc
page 1
NSHPC, Population, Policy and Practice Programme, UCL Institute of Child Health, 30 Guilford Street, London, WC1N 1EH
NSHPC Quarterly Update • April 2015
Children born to HIV positive women
Table 1 includes data from the paediatric reporting scheme, run in parallel with the obstetric scheme.
Paediatric data are collected via the RCPCH’s British Paediatric Surveillance Unit, through its orange card
system, and directly from some larger paediatric units.
Table 1. Year of birth and infection status for children born in the UK & Ireland to women
diagnosed by the time of delivery (reports to the end of March 2015)
Year of birth
UK
infected indeterminate uninfected
Ireland
infected indeterminate uninfected
Total
(UK & Ireland)
pre 1990
14
18
104
6
0
40
182
1990-99
2000-01
87
13
117
87
691
704
4
4
6
2
63
125
968
935
2002-03
16
101
1352
5
9
252
1735
2004-05
23
99
1990
1
10
205
2328
2006-07
18
105
2356
0
5
222
2706
2008-09
12
122
2396
2
4
237
2773
2010-11
8
275
2212
2
3
193
2693
2012-13
5
1068
1113
0
9
181
2376
2014-15
2
647
260
0
8
24
941
198
2639
13178
24
56
1542
17637
Total
780 infected children born in the UK or Ireland to women undiagnosed at the time of delivery have also been reported.
Outstanding cards and forms
SOUNDEX
Please get in touch if you have any suggestions or
questions about the study, and please return green
cards promptly. We are waiting for over 400 mauve,
and almost 200 yellow outcome forms, so please
complete and return those too.
Please complete the surname scrambler Soundex on
the forms. It was completed on 43% of recent mauve
forms (but only 17% of paediatric forms). This
anonymised identifier, along with date of birth, helps
us flag up duplicate reports and link subsequent
pregnancies. Some units provide calculators which
translate a family name to its Soundex
representation. We have a calculator on our website
so you can look up the code for any surname;
information entered is not retained or stored in the
calculator. See www.ucl.ac.uk/nshpc/soundex
Contact us if you are behind with the reports, or are
having problems providing the information, and we’ll
try to find a way to help nshpc@ucl.ac.uk
National Screening Committee newsletter
The latest newsletter from the NSC’s
Infectious Diseases in Pregnancy
Screening Programme is available at
www.screening.nhs.uk/screeningmatters
NSHPC website
Our updated slide set, and full study details including
forms etc. are at www.ucl.ac.uk/nshpc
ETHICS approval MREC/04/2/009
Current NSHPC funding, gratefully acknowledged, is
primarily from Public Health England and the National
Screening Committee
NSHPC team
Mario Cortina-Borja (co-investigator/statistician)
Pat Tookey (principal investigator)
Helen Peters (data manager/statistician)
Claire Thorne (co-investigator)
Angela Jackson (research assistant)
Icina Shakes (administrative assistant)
Graziella Favarato (research assistant)
Kate Francis (administrative assistant)
Laura Byrne (Clinical Research Training Fellow)
nshpc@ucl.ac.uk
020 7905 2815
NSHPC Population, Policy and Practice Programme
www.ucl.ac.uk/nshpc
UCL Institute of Child Health
page 2
30 Guilford Street London WC1N 1EH