VERSION 4 28/5/14 residents short version
ROYAL FREE AND UNIVERSITY COLLEGE
MEDICAL SCHOOL DEPARTMENT OF MENTAL
HEALTH SCIENCES
University College London
Charles Bell House
London W1W 7EJ
Tel: 0207 679 9367
Quality of life in care homes study
We are finding out about the quality of life of people with memory problems who live in care
homes. We will use this to try to think of ways to improve resident’s quality of life.
We are inviting all residents with memory problems in your care home to take part. We are
asking you and ________________ whether this is something you would like to do. If you
would rather not take part, that is up to you and you don’t need to give a reason.
What will happen to me if I take part?
A researcher will visit you at your care home and ask you some questions about your quality
of life. They will visit four more times over then next 18 months to ask you these questions
again to see if things have changed. This will take around 15 minutes each time. We would
also like to ask a family member or friend about how they see your quality of life, and care
home staff questions about your background, health and social care and wellbeing. We will
collect long term data from the Office of National Statistics about your future health.
If you would like to talk to someone about how you feel after taking part, you can speak to
one of our team, or ring the Alzheimer's Society National Dementia Helpline on 0300 222
1122. It is usually open 9am-5pm Monday to Friday and Saturday and Sunday 10am-4pm.
Will my taking part in the study be kept confidential?
All interviews are confidential and you will not be identified in any report/publication. If anyone
tells us that they or someone else is being harmed we will ask their permission to disclose
the information to the care home manager or other appropriate responsible person. We
respect confidentiality but cannot keep it a secret if anyone is being harmed.
What are the possible benefits of taking part?
We cannot promise the study will help you but the information we get might help us develop
ways to improve the quality of life of people with memory problems living in care homes.
What if there is a problem?
If you would like to complain about the study, you can ask _________________ to help you.
Contact
Please contact Adam Kadri, Administrative Assistant on 0207 679 9367 or at
a.kadri@ucl.ac.uk for more information.
Division of Psychiatry
Charles Bell House, 67-73 Riding House Street, University College London, W1W 7EJ
Tel: +44 (0)20 7679 9367
r.bedder@ucl.ac.uk
http://www.ucl.ac.uk/psychiatry