Evaluation of a multidisciplinary community intervention following acquired brain injury: A case series exploring community integration Clare Thomas1,2Student (Doctorate in Clinical Communication Science) clarethomas@homerton.nhs.uk Supervisors: Prof Jane Maxim1 and Dr Carol Sacchett1 1 University College London, UK 2 Homerton University Hospital Foundation Trust Case Example: Introduction: Intervention: History This study is a case series, exploring community integration in a group of adults who have returned to living at home following a severe acquired brain injury (ABI). The poster presents the background, development of the intervention and proposed study design. There is significant research evidence to support the benefits of multidisciplinary rehabilitation following ABI. 1 Historically research has focussed on the benefits of inpatient rehabilitation but more recent research has demonstrated the benefits of community rehabilitation. 2 This is line with current healthcare policy which advocates provision of care closer to home and offering choice about healthcare decisions. 3 In neurological rehabilitation this has led to the following trends: • Shorter stays in hospital • Increase in community rehabilitation provision • Increased choice about long term care and home environment • Increase in number of people choosing to live in the community following severe ABI • Increased focus on community integration as the ultimate goal of rehabilitation 23 year old man with a hypoxic injury secondary to assault and cardiac arrest Received 12 months of inpatient rehabilitation before being discharged to live in his own flat, near to family with live-in paid carer On discharge: • Complex physical disability requiring specialist wheelchair and daily stretching and positioning programme • Assistance from two carers for all care/ transfers • Severe dysarthria and reduced speech intelligibility • Cognitive impairment, characterised by impaired planning, attention and executive function 60 Goal Attainment Scores Pre and Post Therapy 48.49 50 GAS T Score Pilot of support programme for clients with complex/ severe disability following ABI living on their own in the community 31.9 30 20 10 Team review of progress to goals 0 Feedback from clients and close family members Pre therapy Post therapy • My carers will understand my needs (communication, stretches, positioning, medication, planning day) • I will be able to get from lying to sitting with assistance of 1 carer • I will be able to shower in a chair 4 times per week • I will have a less supportive wheelchair • I will feed myself using adapted cutlery • I will use a written timetable and computer to support communication • I will join the gym and play football • I will attend a day centre for younger people • I will write my own rap lyrics using the computer The service is an established community multi-disciplinary neurorehabilitation team in Hackney, London, comprising: • Speech and Language Therapists • Physiotherapists • Occupational Therapists • Clinical and Neuropsychologists • Rehabilitation Assistants • Support form a Consultant Neurologist. References: 1. Turner Stokes L. Evidence for the effectiveness of multidisciplinary rehabilitation following acquired brain injury: A synthesis of two systematic approaches. In Journal of Rehabilitation Medicine 2008: 40, 691 – 701 2. Geutsen GJ, Van Heugten CM, Martina JD and Geurts AC (2010) Comprehensive rehabilitation programmes in the chronic phase after severe brain injury: a systematic review. Journal of Rehabilitation Medicine. February: 42 (2): 97-110 3. Department of Health (2005) The National Service Framework for Long Term Conditions. Accessed at: www.doh.gov.uk/publications Intervention 2 Core goals Prepare for discharge: • Inpatient team to prepare detailed guidelines for care staff and family • Determine equipment requirements • Detailed handover between inpatient and community teams Maximise independence in the home: • Ensure all equipment is in place • Ensure care staff receive training and support in all areas, e.g. communication, positioning, daily exercises • Identify activities that the client wants to participate in and explore options for community access Maximise community integration: • Explore barriers to accessing activities and social interaction in the community • Identify supports available to access community • Provide graded support to access activities • Encourage independent access to community with family and carers. • I will telephone friends and family • I spend time playing on the floor with my son • I will visit family locally Successes of intervention Team reflection on process and identification of and challenges to successful support Intervention 1 Goals 40 Developing an intervention focussing on community integration : Stage of intervention Pre discharge from hospital Study Design: Challenges/ lessons learned Remained living in flat and gained increased independence. Including improvements to function beyond those predicted on discharge Accessed local Sure Start Centre, Ability Gym, No Limits sports club and Headway Young People’s Group Length of time taken to train carers and supply all necessary equipment – identified need to prepare more during inpatient placement Changes in care staff led to difficulty providing training – identified need to work closely with the care agencies to achieve this Increased access to community, Home set up and carer training family interaction and range of social essential to facilitate goals of activities community access and integration Acknowledgements: The author’s Doctorate in Clinical Communication Sciences is supported by the Adult Community Rehabilitation Team, Homerton University Hospital Foundation Trust The study is a case series design based on repeated measures: • Participants: 6- 8 clients returning home to live after severe ABI. • Intervention: the intervention will be delivered by the multidisciplinary team in participants' homes and in the community. Each participant’s close relative will also participate in an interview to collect additional information about the intervention. • Outcome Measures: • Northwick Park Dependency Score • Brain Injury Community Rehabilitation Outcome Measure • Community Integration Measure