Study Number: BRITISH REGIONAL HEART STUDY 2007 QUESTIONNAIRE Thank you very much for taking the time to complete this questionnaire, which will bring us up to date with your present health and lifestyle. All the information will be treated as strictly confidential and will only be seen by the Research Team. Most questions can be answered by ticking the correct box ; Please check that you have answered as many questions as you can and return it to us in the envelope provided – you do not need to use a stamp. If you have any trouble answering the questions, or would like a large-print copy, please phone us on 020 7830 2335 and give us your telephone number. We will then call you back to answer your query. THANK YOU FOR YOUR HELP Department of Primary Care & Population Sciences Royal Free & University College Medical School University College London Hampstead Campus Rowland Hill Street London NW3 2PF DATES 1.0 Please enter today’s date ______ _____ 2007 day month 1.1 Please give your Date of Birth ______ ______ 19 ______ day month year (This information is necessary for us to ensure that you are the correct recipient). Conditions affecting the heart or circulation 2.0 Have you ever been told by a doctor that you have or have had any of the following conditions? If Yes, please give the year this last happened. Yes No Year of last occurrence (coronary thrombosis or myocardial infarction) ________ b Heart failure ________ c Angina ________ d Other heart trouble ________ e High blood pressure ________ f High blood cholesterol ________ g Aortic Aneurysm ________ h Narrowing or hardening of the leg arteries ________ ________ ________ Yes No Year ________ a Heart attack (including claudication) i Deep Vein Thrombosis (clot in the deep leg vein) j Pulmonary Embolism (clot on the lung) 2.1 Do you have any other problems of the heart and circulation Office Use If Yes, please give details: Stroke 3.0 3.1 3.2 3.3 Have you ever been told by a doctor that you have had a stroke? If Yes, Did the symptoms last for more than 24 hours? Have you made a complete recovery from your stroke? Following your stroke, do you still need any help in carrying out everyday activities? Yes No Year of last occurrence ________ Investigations and special treatment for conditions affecting the heart and circulation 4.0 Have you ever had one of the following? Yes No Year of last occurrence a A referral to a heart specialist ________ b A referral to a chest pain clinic ________ c An exercise ECG (“stress” or “treadmill”) test ________ (using a dye) ________ Angioplasty (balloon treatment of coronary artery for angina) ________ (“heart bypass” or “CABG”) ________ Other tests, investigations or operations on the heart, arteries or veins? ________ d Angiogram or X-ray of coronary arteries e f Coronary artery bypass graft operation g Office Use If Yes, please give details: Diabetes 5.0 5.1 Have you ever been told by a doctor that you have or have had diabetes? If Yes, Do you have any complications of diabetes affecting your Yes No Year of diagnosis ________ (Please tick whichever apply) feet 1 kidneys 1 nerves 1 eyes 1 Cancer 6.0 6.1 Have you ever been told by a doctor that you have or have had cancer? If Yes, please give the Cancer Site (parts of the body affected) Yes No Year of diagnosis ________ Office Use Liver Disease 7.0 Have you ever been told by a doctor that you have an illness or disease affecting the liver? Yes No Year of diagnosis ________ Office Use If Yes, please give the name of the condition Other medical conditions 8.0 Have you ever been told by a doctor that you have or have had any of the following conditions? If Yes, please give the year this last happened. a Asthma Bronchitis Cataract Depression Emphysema Gall bladder disease Gastric, peptic or duodenal ulcer Glaucoma Gout Osteoporosis Parkinson’s disease Pneumonia Prostate trouble Chronic Kidney disease Other conditions, please give details b c d e f g h i j k l m N o Yes No Year ________ ________ ________ ________ ________ ________ ________ ________ ________ ________ ________ ________ ________ ________ Office Use ________ ________ Arthritis 9.0 9.1 Have you ever been told by a doctor that you have or have had arthritis? No Year of diagnosis ________ If Yes, please give the type of arthritis if known,: Osteoarthritis Rheumatoid arthritis Other (please give details) 9.2 Yes 1 2 Which joints are affected: (Please tick whichever apply) Knees 1 Back 1 Hips 1 Neck 1 Feet 1 Shoulders 1 Other (please specify) Hands and / or wrists 1 Office Use Office Use Joint pain, swelling or stiffness 10.0 During the past year have you had pain, aching, stiffness or swelling on most days for at least one month, in your: (Please tick whichever apply) Knees Hips Feet Hands and / or wrists Back Neck Shoulders 1 1 1 1 1 1 1 Office Use Other (please specify) Lower back pain Yes 11.0 11.1 Have you ever had pain in your lower back on most days for at least one month? If Yes, have you had this in the last year? No Fractures and falls Yes No Please give year Have you ever fractured your wrist? ____________ ____________ Have you had a fall in the last year? 12.0 Have you ever fractured your hip? 12.1 12.2 12.3 If Yes, how many times 12.4 Did you receive medical attention for any of these falls? ___ ___ Yes No Operations 13.0 Have you had any major operations in the last 2 years? If Yes, please give details: Yes No Office Use Chest Pain Yes No 14.0 Do you ever have any pain or discomfort in your chest? Yes No Unable to walk on level 14.1 If Yes, When you walk at an ordinary pace on the level, does this produce the pain? 1 2 3 Yes No Unable to walk uphill 1 2 3 14.2 When you walk uphill or hurry, does this produce the pain? Breathlessness Yes No Unable to walk 15.0 Do you ever get short of breath walking with other people of your own age on level ground? 1 2 3 15.1 On walking uphill or upstairs, do you get more breathless than people of your own age? 1 2 3 15.2 Do you ever have to stop walking because of breathlessness? 15.3 In the past year have you at any time been awoken at night by an attack of shortness of breath? Yes No Cough and Wheeze 15.4 Do you usually bring up phlegm (or spit) from your chest first thing in the morning in the winter? 15.5 Do you bring up phlegm like this on most days for as much as 3 months in the winter each year? 15.6 In the past two years have you had a period of increased cough and phlegm lasting for 3 weeks or more? Yes, once 1 Yes, twice or more 2 Never 3 Yes No 15.7 Does your chest ever sound wheezy or whistling? 15.8 If Yes, does this happen on most days or nights? 15.9 How many times in the past year have you had a chest infection requiring antibiotic treatment from your doctor? None 1 Once 2 More than once 3 Eyesight Yes No Using glasses or corrective lenses if needed, can you see well enough to recognise a friend at a distance of 12 feet/ four yards (across a road)? 16.1 If No, can you see well enough to recognise a friend at a distance of one yard? 16.2 In the past two years has your sight: 16.0 deteriorated 1 improved 2 stayed the same 3 Hearing Yes No 16.3 Is your hearing good enough to follow a TV programme at a volume others find acceptable (using a hearing aid if needed)? 16.4 If No, can you follow a TV programme with the volume turned up? 16.5 In the past two years has your hearing: 16.6 deteriorated 1 improved 2 stayed the same 3 Do you use a hearing aid? Yes No Occasionally 1 2 3 Leg Pain 17.0 17.1 Do you get pain or discomfort in your leg or legs when you walk? If Yes, Do you know the cause of the pain? Yes No Office Use If Yes, please state cause 17.2 Does this pain ever begin when you are standing still or sitting? Yes No Yes No Unable to walk 17.3 Do you get the pain if you walk uphill or hurry? 1 2 3 17.4 Do you get the pain walking at an ordinary pace on the level? 1 2 3 17.5 What happens to the pain if you stand still? Usually continues more than 10 minutes 1 Usually disappears in 10 minutes or less 2 17.6 Please mark on the diagram below where you get the pain. FRONT BACK Office Use L R RIGHT SIDE LEFT SIDE LEFT SIDE RIGHT SIDE Weight 18.0 What is your present weight (indoor clothes, without shoes)? ___ ___ Stones ___ ___ Pounds 18.1 18.2 ___ ___ ___ Kilograms If you have no scales and have made an estimate please tick here or Have you tried to lose weight in the last two years? If Yes, did you: Yes No (Please tick whichever apply) Change your diet? 1 Take more exercise? 1 18.3 Have you been advised by a doctor or other health professional to lose weight in the last two years? 18.4 Has your weight changed in the last two years? Not changed Increased Decreased Both increased and decreased Don’t know Yes No 1 2 3 4 5 If your weight has changed in the last two years… 18.5 By what amount has your weight changed? 18.6 Was this change intentional? 18.7 Was it the result of 18.8 Do you consider your present weight to be ____ Stones ____ Pounds Yes No or ____ Kilograms Personal choice 1 Medical advice 1 Illness or ill health 1 about right 1 too high 2 too low 3 Cigarette smoking 19.0 19.1 Do you smoke cigarettes at present? If yes, How many cigarettes a day do you smoke at present? Yes No ___ ___ Pipe and cigar smoking 20.0 20.1 Do you currently smoke a pipe? Do you currently smoke cigars? Yes No Alcohol Intake 21.0 Would you describe your present alcohol intake as Daily/most days Weekends only Occasionally once or twice a month Special occasions only None 1 2 3 4 5 Alcohol Intake, continued One drink is HALF A PINT of beer/lager/cider, a SINGLE whisky, gin, etc. or ONE GLASS (small, 125ml) of wine or sherry 21.1 How much do you usually drink on the days when you drink alcohol? More than 6 drinks 5-6 drinks 3-4 drinks 1-2 drinks 21.2 How many alcoholic drinks do you have during an average week? 21.3 What type of drink do you usually take? ___ ___ Beers, Lagers Wines, Sherry Spirits Combination of Beers, Wines or Spirits Low alcohol drinks 21.4 1 2 3 4 1 1 1 1 1 What is your usual consumption of these alcoholic beverages? (please tick boxes) PER WEEK Never / hardly ever Less than 1 1-6 7-13 14-20 21+ Beer or Lager pints Red Wine single glass White Wine single glass Spirits 1 drink / shot Type of Drink 21.5 Is the alcohol which you drink usually taken…… (Please tick whichever apply) before meals with meals after meals separate from meals 1 1 1 1 Yes No Have you reduced your alcohol intake in the last two years? Was this due to: (please tick whichever apply) Personal choice 1 Doctor’s advice 1 Illness or ill-health 1 Health precaution 1 Being on medication 1 Financial reasons 1 Other 1 Yes No 21.8 Have you ever felt you ought to cut down on your drinking? 21.9 Have people annoyed you by criticizing your drinking? 21.10 Have you ever felt bad or guilty about your drinking? 21.11 Have you ever had a drink first thing in the morning (eye-opener) to steady your nerves or get rid of a hangover? 21.6 21.7 Your overall health Please indicate which statements best describe your health TODAY. Please tick only one box 22.0 General Health 22.1 Pain/Discomfort 22.2 Mobility 22.3 Anxiety/Depression 22.4 Excellent Good Fair Poor 1 2 3 4 I have no pain or discomfort 1 I have moderate pain or discomfort 2 I have extreme pain or discomfort 3 I have no problems in walking about 1 I have some problems in walking about 2 I am confined to a chair/wheelchair 3 I am not anxious or depressed 1 I am moderately anxious and/or depressed 2 I am extremely anxious and/or depressed 3 Sleeping patterns On average, how many hours of sleep do you have in a 24 hour period? ___ ___ Please include day-time and night-time sleep 22.5 During the last month, did you have difficulties falling asleep? almost never 1 sometimes 2 often 3 22.6 During the last month, how often did you wake up during the night? almost never 1 sometimes 2 often 3 22.7 22.8 Your Memory In the past year, how often did you have trouble remembering things? never rarely sometimes often hours 1 2 3 4 Health Scale We have drawn a health scale (rather like a thermometer) on which perfect health is 100 and very poor health is 0. Please put a cross (X) on the scale to reflect how good or bad your health is today. Worst Imaginable Health State 0 Best Imaginable Health state 10 20 30 40 50 60 70 80 90 100 Office Use Physical activity 23.0 Do you make regular journeys every day or most days either walking or cycling? No 1 Walk 2 Cycle 3 Both 4 23.1 How many hours do you normally spend walking e.g. on errands or for leisure in an average week? 23.2 ___ ___ hours Which of the following best describes your usual walking pace? Slow 1 Steady average 2 Fast 3 ___ ___ 23.3 How long do you spend cycling in an average week? 23.4 Compared with a man who spends two hours on most days on activities such as: walking, gardening, household chores, DIY projects, how physically active would you consider yourself? Much more active 1 More active 2 Similar 3 Less active 4 Much less active 5 23.5 Do you take active sporting physical exercise such as running, swimming, dancing, golf, tennis, squash, jogging, bowls, cycling, hiking, etc.? No 1 Occasionally less than once a month 2 Frequently once a month or more 3 23.6 If you ticked frequently please state type of activities: 23.7 hours Office Use How many times a month on average do you take part in these activities? (please give overall total) In winter ___ ___ times In summer ___ ___ times Yes No 23.8 Do you engage in exercises to increase muscle strength and endurance such as lifting weights, doing push-ups, using exercise machines? 23.9 If Yes, on average how many hours per week do you engage in these exercises? ___ ___ Hours Disability 24.0 Do you have any long-standing illness, disability or infirmity? Yes No “long-standing” means anything which has troubled you over a period of time or is likely to do so If Yes, a b 24.1 Yes No Does this illness or disability limit your activities in any way? Do you receive a disability allowance? Do you currently have difficulty carrying out any of the following activities on your own as a result of a long term health problem? a b c d e f 24.2 Yes No Yes No 1 2 Going up or down stairs Bending down Straightening up Keeping your balance Going out of the house Walking 400 yards Is your present state of health causing problems with any of the following:- a Job at work paid employment Household chores Social life Sex life Interests and hobbies Holidays and outings b c d e f Does not apply 3 Present circumstances 25.0 Are you at present:- 25.1 If you are widowed or divorced/separated, please give the year when this occurred:- ________ 25.2 25.3 single married widowed divorced or separated other Are you at present:- living alone living with a partner or spouse living with other family members living with other people Your accommodation Are you:an owner occupier renting privately living in a nursing home other please give details 1 3 5 7 1 2 3 4 5 1 2 3 4 renting from the local authority 2 living in a residential home 4 living in sheltered accommodation 6 Office Use During the winter, is your accommodation usually: Very warm Warm Medium Cold Very cold 1 2 3 4 5 Yes No 25.5 Do you have a car available for your own use? 25.6 Do you have private medical insurance? 25.7 Which of the following phrases best describes how you are managing financially these days? manage very well 1 manage quite well 2 get by alright 3 don't manage very well 4 have some financial difficulties 5 have severe financial difficulties 6 25.8 What type of financial support do you currently have? 25.4 State pension 1 Private Personal Pension Stakeholder pension Group Personal Pension Earnings from paid employment 1 1 1 1 (Please tick whichever apply) Employer provided occupational pension scheme Retirement Annuity pensions pre 86 PPPs S226 plan self-employed personal pension Other retirement saving scheme 1 1 1 1 Your family - grandparents We would like to know a bit more about your family history. When were your grandparents born? And where? And at what age did they die? If you do not know precisely please give as much detail as possible Place of birth: a) Year b) City or town c) County d) Country e) Age at of birth or village death 26.0 Your grandmother (father’s side) 26.1 Your grandfather (father’s side) 26.2 Your grandmother (mother’s side) 26.3 Your grandfather (mother’s side) Office use Time spent on various activities 27.0 Approximately how many hours each week (if any) do you spend: Hours per week a Looking after wife/partner ____ ____ b Looking after other adult family member or friend ____ ____ c Looking after grandchildren ____ ____ d Spending time with family, friends and neighbours ____ ____ e Talking with friends/relatives on the telephone ____ ____ f In paid work ____ ____ g In voluntary work ____ ____ h On housework ____ ____ i On gardening ____ ____ j In a pub or club ____ ____ k Attending religious services ____ ____ l Playing cards, games, or bingo ____ ____ m Visiting the cinema/restaurants/sporting events ____ ____ n Watching television/videos/DVD’s ____ ____ o Reading ____ ____ p Attending class or course of study ____ ____ q Using a computer ____ ____ 28.0 Do you go on day or overnight trips? Never Sometimes Often 28.1 Have you been on holiday in the last year? 28.2 Do you use the internet and or email? 1 2 3 Yes No Yes No Activities of daily living The following questions will help us to understand difficulties people may have with various everyday activities 29.0 What is the furthest you can walk on your own without stopping and without discomfort? 200 yards or more 1 More than a few steps but less than 200 yards 2 Only a few steps 3 29.1 Can you walk up and down a flight of 12 stairs without resting? Yes Only if I hold on and take a rest Not at all 29.2 30.0 1 2 3 Can you, when standing, bend down and pick up a shoe from the floor? Yes 1 No 2 Please indicate if you have difficulty doing any of the following activities: No difficulty Some difficulty Unable to do or need help 1 2 3 a Reaching or extending your arms above shoulder level b Pulling or pushing large objects like a living room chair c Walking across a room d Getting in and out of bed on your own Getting in and out of a chair on your own Dressing and undressing yourself on your own Bathing or showering Feeding yourself, including cutting food Getting to and using the toilet on your own j Lifting and carrying something as heavy as 10 lbs, for example a bag of groceries k Shopping for personal items such as toilet items or medicine by yourself l Doing light housework such as washing up Preparing your own meals by yourself n Using the telephone by yourself o Taking medications by yourself Managing money (e.g. paying bills etc) Using public transport on your own Driving a car on your own Gripping with hands (eg. opening a jam jar) e f g h i m p q r s During the past week 31.0 Below is a list of some of the ways you may have felt or behaved. Please indicate how often you have felt this way during the past week (please tick one box on each line) Rarely or none of the time Some or a little of the Time Occasionally or a moderate amount of the time All of the time (less than 1 day) (1-2 days) (3-4 days) (5-7 days) a I was bothered by things that usually don’t bother me 1 2 3 4 b I had trouble keeping my mind on what I was doing 1 2 3 4 c I felt depressed 1 2 3 4 d I felt that everything I did was an effort 1 2 3 4 e I felt hopeful about the future 1 2 3 4 f I felt fearful 1 2 3 4 g My sleep was restless 1 2 3 4 h I was happy 1 2 3 4 j I felt lonely 1 2 3 4 m I could not “get going” 1 2 3 4 Office use 31.1 Office use Office use If you ticked that you have experienced any of the problems mentioned in the above question at least 1 day this week, please can you tell us how difficult these problems made it for you to do your work, take care of things at home, or get along with other people? Not difficult at all 1 Somewhat difficult 2 Very difficult 3 Extremely difficult 4 Preventive Health Care 32.0 Approximately how many times in the last year have you consulted your GP about a health problem? ___ ___ times 32.1 If none, in what year did you last consult a GP about a health problem? 32.2 Have you had any of the following in the last two years: Yes ______ No a Blood pressure check b Blood cholesterol check c Flu vaccination Medicines 33.0 a Yes No Do you take any regular medication? If Yes, do you take any of the following medicines regularly? Treatment for any form of heart disease Yes No Year started ______ b Treatment to lower blood pressure ______ c Treatment to lower blood cholesterol ______ d Treatment to lower triglycerides 33.1 If you are on treatment to lower your blood cholesterol:Office Use a Please give the name of this medicine: b Please give the amount you take each day: (details of the amount in each tablet should be on the bottle) ___ ___ ___ mg Aspirin 33.2 a b Do you take aspirin regularly? If Yes, Is this prescribed by your doctor? What dose do you take? (details of the amount in each tablet should be on the bottle) c d How often do you take it? Why do you take it? Yes No Year started ______ ___ ___ ___ mg Daily 1 Every other day 2 Weekly 3 Office Use Details of ALL medicines 34.0 Please write down details of all medicines– including tablets, injections, inhalers, eye-drops etc – which you take regularly. Please also include any medications which you buy for yourself. Name of medicine Reason for taking (if known) Year started Is this prescribed? Yes No Yes No Yes No Yes No Yes No Yes No Yes No Yes No Yes No Yes No 1 2 3 4 5 6 7 8 9 10 Office Use Vitamins, minerals and complementary therapies 35.0 Do you regularly take any vitamins, minerals and complementary therapies? Yes No If Yes, please give details: please include homeopathic and herbal treatments Name of medicine Reason for taking (if known) Year started 1 2 3 4 5 6 Thank you very much for completing the questionnaire. Please return it to us in the envelope provided. No stamp is needed. Department of Primary Care & Population Sciences Royal Free & University College Medical School University College London Hampstead Campus Rowland Hill Street London NW3 2PF Office Use