The Politics of the Global HIV/AIDS Pandemic PLSC 120: Global Issues Instructor: Laurel Sprague Office hours: M/W 3:30-5:00 (Wednesday hours held at Sweetwater Café on Cross Street) Office location: 601E Pray-Harrold Email: lspragu2@emich.edu Fall 2013 Class hours: M/ W 11:00-12:15 Class location: Marshall 119 Office phone: 734 487 6970 COURSE OVERVIEW This course is designed to introduce students to the political and social aspects of the global HIV/AIDS pandemic and other global diseases. The course examines the current status of the epidemic world-wide, including the latest science about HIV transmission and treatment for people living with HIV. In this course, students will explore the climate of optimism (characterized by statements that an AIDS-free world is within reach) mixed with dread (due to the drastic drop in funding commitments) that characterizes the global response to the pandemic at present. Questions to be explored include the following: What are the origins of the AIDS pandemic and why have many governments been slow to respond? What is the role of human rights in a public health disaster, such as the HIV/AIDS pandemic? How do stigma and discrimination against people with HIV, as well as biases against affected communities (such as women and girls, gay men, racial and ethnic minorities, migrants, people who use drugs, and sex workers) interact with the HIV/AIDS response? How, if at all, should criminal justice systems be used in the HIV/AIDS response? Why was the early response by people living with HIV in North America, and their friends, families, and communities, so fervent (i.e. ACT UP) and how did these self-empowerment movements shape the response to the pandemic to this day? How destructive has the pandemic been in Sub-Saharan Africa and how have governments and communities responded? What has been the effect on women and girls? What can be done to address the epidemic in Eastern Europe, the only region in the world in which new HIV infections are continuing to rise? How have Asian and Pacific people living with HIV and from affected communities organized to protect access to medication and fight for human rights? Has the criminalization and bias against gay men and lesbians in many Caribbean countries hindered the public health response? What is happening in Latin America and why do we hear so little about the pandemic there? What is the current state of the international response? Will this help to turn the tide of the pandemic? Current research advances: Is there hope for a cure? This course fulfils a Gen Ed requirement for Perspectives on a Diverse World, Global Awareness. From the Course Catalogue: People of diverse cultural and national backgrounds and experiences are relating to each other much more frequently and intensively, all around the world, than ever before. Global trade, the internet, climate, migration, terrorism, and concepts of human rights are just a few of the many types of interactions that are bringing distant people together in ways that may involve conflict or collaboration. This course will help develop awareness of the changing global context in which we live, of the importance of appreciating diverse perspectives, and of the need for building bridges of communication and tolerance to address shared global challenges. Many global issues are controversial and subject to varying perspectives. Each semester, the course will focus on a particular contemporary global issue (such as terrorism, genocide, human rights, global gender issues, ethnic identity and conflict, migration, and democratization), not to find a single “correct” solution, but rather to develop skills in analyzing diverse interpretations and considering our own roles and civic responsibilities on a global scale. Required Texts Whiteside, Alan. 2008. HIV/AIDS: A Very Short Introduction. Oxford University Press. ISBN-10: 0192806920 Joao Biehl and Adrian Petryna. 2013. When People Come First: Critical Studies in Global Health. Princeton University Press. ISBN-10: 0691157391 Farmer, Paul. 2012. Haiti After the Earthquake. Public Affairs (Publisher). ISBN-10: 1610390989 Additional texts as provided in class or on-line Students are expected to read the assigned texts before each class period and come prepared to ask questions and discuss the readings. Evaluation Your grade in the class will be based on the following: Participation Quizzes (3) Autobiography analysis 20% 20% 25% Country report 40% (15% for country group meetings, 25% for the final report) Participation Participation is critical for a class on politics. To engage in political analysis, it is necessary to hear a variety of thoughts and opinions and to put your own thoughts into the marketplace of ideas. Your participation grade is based on the overall quality, rather than quantity, of your contributions throughout the semester. Quality of contributions will be based on your willingness to: raise questions from the text and lectures share your thoughts and ideas think critically about your own opinions listen thoughtfully to the ideas of others engage actively, consistently, and responsibly with your regional group evaluate, respectfully, the ideas and opinions put forward in the class Participation includes the presentation of a short summary (5 minutes) in class of the main points of one article or chapter. Quizzes (3) Three quizzes will be administered throughout the semester. The quizzes are designed to evaluate your mastery of the basic information that is needed in order to write and speak intelligently about the issues that surround the HIV/AIDS pandemic and global health more broadly. Your lowest quiz grade will be dropped. You will not be allowed to make up quizzes except under exceptional circumstances. Autobiography analysis Students will be provided with a list of autobiographies of people living with HIV from different parts of the world. For this assignment, students will read one autobiography from the list and write a short analysis (35 pages) applying the concepts studied in class to the autobiography. Country reports This class is project-oriented and students will conduct their own research on the HIV epidemic in one country. Students will use data from the U.S. government and the United Nations Joint Programme on HIV/AIDS (UNAIDS) and other global bodies to complete a report (approximately 4-5 pages) describing the HIV epidemic and response. A key component of the country reports will be the creation of country recommendations based on the information available about the HIV epidemic in that country. Students will be placed in groups based on country regions and meet with me in regional groups to craft these recommendations. Grades The grading scale for the class is as follows: A 93-100 percent B80-82.9 percent D+ 67-69.9 percent A90-92.9 percent C+ 77-79.9 percent D 63-66.9 percent B+ 87-89.9 percent C 73-76.9 percent D60-62.9 percent B 83-86.9 percent C70-72.9 percent F <59.9 percent If an assignment is turned in late, a reduction of ½ grade will be levied for each day that it is late. Useful websites The United Nations Joint Programme on HIV/AIDS: www.unaids.org AIDSInfo: http://www.unaids.org/en/dataanalysis/tools/aidsinfo/ The Global Fund to Fight AIDS, Tuberculosis, and Malaria: http://www.theglobalfund.org/en/ US Centers for Disease Control and Prevention: http://www.cdc.gov/hiv/default.htm Avert, International HIV/AIDS Charity: www.avert.org Human Rights Watch: http://www.hrw.org/hiv/tb The Global Network of People Living with HIV (GNP+): www.gnpplus.net International Treatment Preparedness Coalition: http://www.itpcglobal.org/ The Global Forum on MSM and HIV: http://www.msmgf.org/ Communicating with the Instructor It will be easiest to contact me via email. I respond to all email messages during the week within 24 hours. It may be longer over the weekend. If you need to speak with me during my office hours or to leave a message, contact the political science department office at: 734 487 3113. You are urged to use your EMU email address. I will use the EMU email addresses if I need to communicate information to the class, for example, if there is an unexpected class cancellation. If you choose to communicate with me using another email address, identify yourself clearly in the subject line. You should know that I delete messages when I do not know the sender to protect my system from email viruses. Discussion Guidelines Listen closely to one another. This includes trying to verify that you understand what the other person is saying, particularly when you disagree. Speak respectfully, in agreement and disagreement. Do not interrupt each other. Allow each other to change. No one is bound to any one statement. Anyone can change her or his mind. Understand that no student in this class can be asked to speak for her or his racial, ethnic, religious, or any other, group. No group is homogenous. Each of us speaks as a unique individual with our own opinions and experiences. General Guidelines for Behavior in College Classrooms Turn off your cell phone and computer before class starts. If you need to leave early, let the instructor know ahead of time. Arrive a few minutes before class so that class can start on time without interruptions. Do not engage in side conversations during lectures and discussions. Do not read newspapers, magazines, web pages, or any other materials not related to class during class time. Arrive ready to discuss the day’s topic and readings. Use class email addresses and instructors’ email addresses only for class-related questions and information. If you are absent, it is your responsibility to get the information from the class you missed from another student. Make friends. Accessibility If you have a disability and are registered with the Student s with Disabilities office, please see me during the first week of class. We will set up a meeting to determine how we can best work together to ensure that you are able to fully and fairly participate in all aspects of the class. Please bring your paperwork from EAS to our meeting. To contact the Students with Disabilities Office, go to http://www.emich.edu/drc/index.html. Academic Honesty Students are expected to know and abide by all University rules on academic honesty and deportment. If you are uncertain of your responsibilities as a student, consult the Student Conduct Code. The full text is available at http://www.emich.edu/policies/chapter8/8-1_policy.pdf. Any violation of provisions on academic honesty will be prosecuted to the full extent allowable. Here are some examples of the kinds of actions that constitute academic dishonesty: “Plagiarizing—willfully presenting the language, ideas, or thoughts of another person as one’s original work; Revealing the form or content of an examination or quiz; attempting to secure a copy of or information about a future examination or quiz without authorization from the instructor; Copying another’s answers in an in-class or take-home examination, paper, laboratory work, or class assignment; using crib notes, prepared blue books, or other types of unauthorized materials; Discussing answers during an in-class examination or a take-home examination without the instructor’s permission; Submitting work completed for a previous course for a subsequent course without the permission of the instructor; submitting the same paper in two or more concurrent courses without the informed consent of the instructors; Stealing, damaging, or concealing materials or equipment necessary to the academic well-being of the college community, such as library books, computer files, and audiovisual equipment.”1 Registration Information and Dates Incomplete grades are not a matter of right. An "I" grade will be granted only in the most highly unusual circumstances. University policy requires all incompletes to be completed within one year. If you need to drop this class, you must do so by the official drop date. If you fail to drop this class officially by the last official drop date and you are failing to class, you will be given a grade of F for the course. NOTE: The University (as per federal guidelines) requires all instructors to indicate whether any students who received an F grade stopped attending classes. If you stop attending the class and receive an F, your financial aid may be at risk. Disclaimer: I reserve the right to make changes to the syllabus, examination, and/or grading policy if required during the course of the semester. 1 These examples are taken from Washington College’s Honor code: http://catalog.washcoll.edu/17_honor.html READING SCHEDULE Week 1 Sept 4 Introduction Week 2 Sept 9 and 11 The language of public health and illness Guest speaker: Todd Heywood, Senior Reporter, American Independent News Network on the history of public health Sontag, Susan (1989) AIDS and its Metaphors, Chapters 1-3, 5 and 8 Farmer, “Writing about Suffering” Week 3 Sept 16 and 18 History of HIV and HIV transmission McNeil, D. G. Jr (2011) “Chimp to Man to History Books: The Path of AIDS” The New York Times, October 17, 2011. Whiteside, Chapters 1-2 Farmer, Chapters 1-2 Week 4 Sept 23 and 25 Current HIV prevalence UNAIDS World AIDS Day Report, 2012 http://www.unaids.org/en/media/unaids/contentassets/documents/epidemiology/2012/gr2012 /JC2434_WorldAIDSday_results_en.pdf HIV/AIDS in the U.S.: At a Glance http://www.cdc.gov/hiv/pdf/statistics_basics_factsheet.pdf HIV/AIDS in the U.S. by Geographical Distribution http://www.cdc.gov/hiv/pdf/statistics_geographic_distribution.pdf Whiteside, Chapters 3-4 Guest speaker: Jimena Loveluck, Executive Director, HIV/AIDS Resource Center Week 5 Sept 30 and Oct 2 Responses by people living with HIV The Denver Principles (1983) http://www.actupny.org/documents/Denver.html Strub, Sean (2011). The Denver Principles and the PLWHIV Self-Empowerment Movement. GNP+, UNAIDS. 2011. Positive Health, Dignity and Prevention: A Policy Framework. Amsterdam, GNP+. http://www.gnpplus.net/images/stories/PHDP/GNP_PHDP_ENG_V4ia_2.pdf Film: How to Survive a Plague Week 6 Oct 7 and 9 Global response Biehl and Petryna, Chapter 1, “A Return to the Magic Bullet?” by Marcus Cueto Political Declaration on HIV/AIDS: Intensifying our Efforts to Eliminate HIV/AIDS Resolution adopted by the General Assembly on 10 June 2011 http://www.unaids.org/en/media/unaids/contentassets/documents/document/2011/06/20110 610_UN_A-RES-65-277_en.pdf Whiteside, Chapters 5-6 Farmer, Chapters 3-4 Week 7 Oct 14 and 16 Global response and human rights Biehl and Petryna, Chapter 6, “The Struggle for a Public Sector” by James Pfeiffer International Declaration of Human Rights Farmer, Chapters 5-6 Week 8 Oct 21 and 23 Human rights Biehl and Petryna, Chapter 3, “The Right to Know or Know Your Rights?” by Joseph Amon Biehl and Petryna, Chapter 12, “Legal Remedies” Farmer, Chapter 7-8, Epilogue, and Afterword Week 9 Oct 28 and 30 Stigma and Discrimination F Kohi, Thecla W, Makoae, Lucy, et al., (2006). HIV and AIDS Stigma Violates Human Rights in Five African Countries. Nursing Ethics, 13(4), 404-15. Aggleton, Peter and Kate Wood, et al., (2005) HIV-Related Stigma, Discrimination and Human Rights Violations: Case Studies of Successful Programmes, Geneva: UNAIDS, April 2005, Selections TBD. http://data.unaids.org/publications/irc-pub06/jc999-humrightsviol_en.pdf Cameron, E., Burris, S., and Clayton, M. (2008) HIV is a virus, not a crime: ten reasons against criminal statutes and criminal prosecutions. Journal of the International AIDS Society. http://aidslex.org/site_documents/CR-0023E.pdf Film: HIV is not a Crime, The Sero Project (2011) Week 10 Nov 4 and 6 Human rights and women; Human rights and children UNAIDS Statement: Integration of the Human Rights of Women and the Gender Perspective (Geneva 27: Joint United Nations Programme on HIV/AIDS, 2005), 1-2. Violence Against Women and HIV: Informational Fact Sheet, Global Coalition on Women and AIDS and World Health Organization. http://www.who.int/gender/en/infosheetvawandhiv.pdf Film: Positive Women: Exposing Injustice, Canadian HIV/AIDS Legal Network (2012) Biehl and Petryna, Chapter 4, “Children as Victims” by Didier Fassin Nolen, S. (2007), 28 Stories of AIDS in Africa, Toronto: Alfred A. Knopf (selections to be provided). Week 11 Nov 11 and 13 Human rights and LGBT people, sex workers, and people who use drugs United Nations (2012). Born Free and Equal: Sexual Orientation and Gender Identity in International Human Rights Law. Pp. 1-13. http://www.ohchr.org/Documents/Publications/BornFreeAndEqualLowRes.pdf Ralf Jürgens, Joanne Csete, Joseph J Amon, Stefan Baral, Chris Beyrer (2010). People who use drugs, HIV, and human rights. The Lancet; 376: 475–485. UNAIDS (2000). Female sex worker HIV prevention projects: Lessons learnt from Papua New Guinea, India and Bangladesh. http://data.unaids.org/Publications/IRC-pub05/JC438FemSexWork_en.pdf (Selections) Week 12 Federation of Woman Lawyers Kenya (2008). Documenting Human Rights Violations of Sex Workers in Kenya. http://www.opensocietyfoundations.org/sites/default/files/fida_20081201.pdf Nov 18 and 21 Country group meetings Week 13 Nov 25 and 27 Access to treatment Treatment Action Campaign (2010) Fighting for our lives: The history of the Treatment Action Campaign 1998-2010 Galvão,J. (2005) Brazil and Access to HIV/AIDS Drugs: A Question of Human Rights and Public Health. American Journal of Public Health. Washington: Jul 2005. Vol. 95, Iss. 7; pg. 1110-1117. No classes on November 27, Thanksgiving Break Week 14 Dec 2 and 4 Access to treatment TAC Open Letter to USTR Regarding Concerns with US Pressure to Restrict India’s Generic Medicines Industry, 23 July 2013. http://www.tac.org.za/news/tac-open-letter-ustrregarding-concerns-us-pressure-restrict-india%E2%80%99s-generic-medicines-industry Médecins sans Frontières Access Campaign Briefing Note. Trading away Health: The Trans-Pacific Partnership Agreement (TPP). http://www.msfaccess.org/sites/default/files/MSF_assets/Access/Docs/Access_Briefing_ TPP_ENG_2013.pdf Bollyky TJ (2013) Access to Drugs for Treatment of Noncommunicable Diseases. PLoS Med 10(7): e1001485. doi:10.1371/journal.pmed.1001485. http://www.plosmedicine.org/article/info:doi%2F10.1371%2Fjournal.pmed.1001485 Biehl and Petryna, Chapter 10, “Labor Instability and Community Mental Health” by Clara Han Week 15 Dec 9 and 11 Research for a cure No readings Quiz 3: Monday, December 18, 11:00 to 12:30 Due Dates October 2 October 28 November 6 Quiz 1 Quiz 2 Autobiography analysis due November 18 and 21 December 9 December 18 County group meetings Country report due Quiz 3