Evaluating the Impact of CBR: work in progress on developing an innovative participatory approach to impact evaluation in Uganda and Malawi Mary Wickenden and Lyness Manduwa with Huib Cornielje, Rachel Gondwe, Steven Msowoya, Anneke Maarse, Marguerite Schneider, Erik Post & colleagues from Malawi and Uganda Introduction Plan for today • Brief Overview of the project • The first round of fieldwork – a review of some tools • Lessons learned so far • Future plans Background to the study • There is a gap in theory and practical tools for m&e for CBR • Aims of this research project:To design a model of impact evaluation for CBR and develop an evaluation toolkit for use in diverse contexts globally. In the context of new international and local disability policies, this participatory project will develop tools to evaluate the impact of CBR on the wellbeing of disabled people and families; assessing the contribution of both service delivery and inclusive community support. The toolkit will be piloted with CBR programmes in Uganda and Malawi in partnership with local NGOs ,disability experts and local research teams • Timescale – 2 ½ years ( May 2013- Oct 2015) • Lead by University College London, funded by Australian Gov Aid prog, with support from NAD and with local partners MACOHA and NUDIPU Practical Wish list for CBR M&E What the evaluation model and tools need to do ? • deal with multiple types of data • be applicable a variety of contexts and types of CBR programme • have a basic common structure but also flexibility • enable some comparisons across CBR progs in diverse settings and across time • be do-able by busy CBR staff and evaluators with only 2-4 weeks for the process • bring out the real impact of CBR on PWDs’ lives • generate recommendations for changes/future planning Theoretical ingredients/influences • CBR matrix • CBR principles (Inclusion, Equal access to services and resources, Participation, Creating equal opportunities, Meeting basic needs, Improved quality of life, Empowerment, Sustainability) • Outcome mapping (looks at contribution of different actors bringing about change) • Looking at organisational capability (5Cs evaluation)(of ‘CBR team’) • Participatory approaches (eg MSC , PADEV) CBR Matrix (WHO 2004) Outcome mapping? What’s that? • An approach used increasingly in a range of development sectors but not yet much in disability • A qualitative and participatory approach to planning and for evaluation • Focuses on change and change agents Changes in behavior as ‘outcomes’ Inputs, activities, outputs Sphere of control Outcomes: Changes in behavior Sphere of influence Impact: Changes in state Sphere of interest Who are your boundary partners? Programme Beneficiaries Outcomes: behaviour change of boundary partners!!! Stakeholders Boundary Partners What to focus on in the evaluation? We decided on 3 key aspects? • Access • Quality • Impact 6 Stages in our evaluation process (using a combination of tools) 1 2 3 4 5 6 • Situational analysis – Collecting contextual info and overview of CBR • CBR programme core team capability and performance review • Listening to groups of stakeholders • Listening to people with disabilities/carers, individually and in groups • Community meeting to validate findings and look forward • Analysing & summarising findings, reporting and dissemination Overall structure of the draft toolkit (used in fieldwork 1) Stage Tools 1. Big mapping, stakeholder mapping, timeline Document review 2. CBR team 5Cs evaluation (5 organisational capacities) CBR manager interview 3. Focus Group Discussions with Boundary Partners Community Stakeholders DPOs/Parents of CWD Children with Disabilities 4. Individual Interviews with People with Disabilities 5. Community meeting: validation and forward planning A reflection on some of the tools Mapping the district Stakeholder mapping Timeline Stage 3 . Listening to groups of people Focus group discussions with:• • • • Boundary Partners Community Stakeholders People with disabilities / parents of CWDs Children with disabilities Positive aspects of FGDs Challenges with FGDs Stage 4. Listening to Individuals • Individual interviews with people with disabilities Positive aspects Challenges Most Significant Change Stories Were collected at the end of individual interviews or at the end of focus groups Positive aspects Challenges Challenges with Evaluation Process • People didn’t always know what ‘CBR’ is or who is doing it – though they can describe activities • Not being able to identify impact on their life specifically • Terms like ‘social’ and ‘empowerment’ are difficult to translate • People found evaluating quality difficult – no benchmark for this (ie often something is better than nothing) • Monitoring data & Documentary evidence quite weak/absent • Sampling to get really inclusive overview very difficult – some people left out • Power issues within structures and within disability community • Difficult to get evidence re coverage and those not reached • How to capture change over time? Refinements needed • Need for much better monitoring data to feed into evaluation • Usefulness of impairment data about individuals? • More specific ?s re impact – need better probes and better recording of responses • Better way to summarise/analyse data • ?CBR Matrix can be the framework for analysis for the evaluation – but doesn’t need to be explicit to the participants • More specific focus on the CBR principles? • More visual methods – eg symbols/visual analogues • Better explanation of the use of Outcome mapping and feeding into planning in the evaluation instructions Overview of some key findings of the evaluations Lack of awareness of CBR as a concept and of the matrix but plenty of evidence of activity and of impact Lack of clarity about who is doing what , who is responsible in CBR Exposed lack of monitoring and of documentation Gaps in perceptions between the CBR team and the beneficiaries Evaluation tools do tell us what is going on on the ground The tools collected a mass of rich group and individual data The process precipitated linkages and conversations between organisations locally Impact of health, education and livelihoods work is easier to capture than social and empowerment, but there is activity in all 5 components The more mainstreamed CBR is, the more difficult it is to evaluate! Next stages in the research project (1 year left!) • A second round of fieldwork to try out a refined version of the tools • Consultation with a wider group of CBR practitioners and INGOs • Expected outputs – some kind of manual/toolkit – format as yet undecided! • Further trials ? And dissemination • Links with WHO CBR m&e initiatives Many Thanks To all those who have contributed to the project so far……. The 2 incountry Technical Advisory Committees & consultants Our local logistics partners NUDIPU/Min of Gender and MACOHA NAD The two districts who hosted the 1st round of fieldwork Machinga in Malawi and Kayunga in Uganda The 2 incountry research teams Uganda: Priscilla Nkwenge, Joel Kawanguzi, Kristie Oroma, (Collins Kafeero) Malawi: Aron Mapondera, Lyness Manduwa, George Chiusiwa (Sebastian Katamula) And most importantly! Thanks to……. People with disabilities and their families, boundary partner organisations and other community stakeholders who contributed their valuable views to the evaluation process References and resources on CBR evaluation . • Cornielje H, Velema JP, Finkenflugel H. (2008) Community based rehabilitation programmes: monitoring and evaluation in order to measure results. Lepr Rev; 79:36–49. • Earl S, Carden F, Smutylo T. (2010) Outcome Mapping Facilitation manual. http://outcomemapping.ca/resource/resource.php?id=269 • Finkenflugel H, Wolffers I, Huijsman R (2005) The evidence base for community-based rehabilitation: a literature review. Int J Rehabil Res 28:187–201. • Hartley S (ed) (2002) CBR- A Participatory Strategy in Africa. UCL, Bangalore: India • Helander E, Mendis P, Nelson G (1980). Training Disabled People in the Community. An Experimental Manual on Rehabilitation for Developing Countries. Geneva: WHO. • Mont D (2007) Measuring Disability Prevalence, Human Development Network Social Protection, (Disability and Development Team) World Bank • United Nations (2006). Convention on the rights of persons with disabilities. http:// www.un.org/disabilities/convention/conventionfull.shtml • Wirz S L and Thomas M (2002) Evaluation of Community-based rehabilitation programmes: a search for appropriate indicators. International journal of rehabilitation research, 25, 163-171. • WHO (2002) International Classification of Functioning, Disability and Health. Geneva. WHO • WHO/ILO/UNESCO (2010). Community Based Rehabilitation Guidelines. Geneva. WHO 5C organisational capability evaluation (Uganda example) overview of the 5 capabilities Comparison of performance on the 5CBR components (Malawi) Comparison of the 5CBR components between BPs and CSs BP 3 health 3 CS 2.5 2 2 1.5 3 Empowerment 1 2 2 0.5 0 2 Social 3 2 livelihoods 3 education • The study revealed that both BPs and CSs are involved in all the 5 CBR components. • The extent of their involvement was somewhat different. Stage 5. Community meetings: Validating findings and Looking Forward Analysing and summarising data Draft report Validation meeting with stakeholders Selection of Most significant change stories Discussion re community recommendations and future actions Positive aspects of CBR Challenges for CBR Final report edited in the light of the community meeting In Theory – in designing our evaluation we aimed for these important aspects An equity focus Inclusion of a wide view of perspectives Involvement of communities as a whole not just PWDs breadth of info and depth of information to aid learning within the CBR programme as much as to evaluate performance to know IF change has happened and also HOW it has happened to know about unsuccessful/negative changes as well as positive unexpected/ unpredicted changes to know what the barriers and constraints to change are to collect useful info for a purpose not just facts for their own sake to know about changes in ‘informal’ aspects such as people’s behaviour(showing change of attitudes) and also changes in formal structures – such as the way of change of law has been implemented or how a service works differently now A look at Outcome Mapping • A participatory method for planning, monitoring and evaluation • Focused on changes in behaviour of those with whom the programme works • Oriented towards social & organizational learning • Looks at the ‘bigger picture’ • Recognizes changes as: continuous, multidimensional, complex, non-linear • Learning as you go – iterative/flexible • Looks for contribution rather than attribution Abstract for AfriNEAD 2014 SYMPOSIUM IN MALAWI Authors/presenters Mary Wickenden, Huib Cornielje, Marguerite Schneider, Erik Post, Rachel Gondwe, Steven Msowoya and colleagues from Malawi and Uganda Research title Evaluating the impact of CBR: progress report on a study developing an innovative participatory approach to impact evaluation in Uganda and Malawi Background Community based rehabilitation is promoted by WHO as the intervention model of choice to achieve increased wellbeing, participation and access to rights and equality of disabled people, particularly in under-resourced settings. This strategy for multisectoral inclusive development has been reconceptualised during the last decade, as described in the WHO CBR guidelines (2010). CBR is widely used throughout Africa, although in different forms. However evaluation of the impact of CBR is problematic. There is a lack of consistency of approach which makes assessment of the value of CBR and comparison across programmes challenging. Objective(s) The paper will present the findings so far from an on-going study in Uganda and Malawi. The research aims to develop an innovative and flexible model for outcome and impact evaluation of CBR, which will be usable in a variety of contexts and types of CBR programme. Methodology The research team have developed a model and toolkit for impact evaluation, based principally on Outcome Mapping. This mixed methods approach recognises the nonlinear and complex nature of community interventions and provides ways of making processes participatory. This has not previously been used in the disability arena and we are combining it with other approaches, such as Most Significant Change, PADEV, Sensemaker and the 5Cs method. Initial pilots in Malawi and Uganda will yield preliminary data on which to base a more refined and finalised version of the tool. Results This paper will present the analysis from the initial fieldwork. It will discuss the successes and challenges experienced so far and the proposed adaptations to be trialled in the second stage of the study. Conclusion The potential of Outcome Mapping alongside other methods to provide a new participatory approach to impact evaluation of CBR as a strategy for inclusive development will be described and critiqued.