Find us at Prospect Park Hospital Electro convulsive therapy The help and treatments available at Prospect Park Hospital, Reading This booklet was produced by the ECT Department, Pimpernel Suite, Prospect Park Hospital. If you need this information in another language or format please contact us on 0800 0281215. L037/V1/January 2012 © Berkshire Healthcare Foundation Trust, 2012 What is Electro Convulsive Therapy (ECT)? Does ECT work? Is ECT safe? Electro convulsive therapy (ECT) can be part of the treatment for severe episodes of major depression, mania, and catatonia, in line with guidance from the National Institute for Health and Clinical Excellence (NICE). It is rarely used in schizophrenia. Although there have been many advances in the treatment in mental disorders in recent years, ECT remains effective, fast and safe in most cases, particularly when alternatives such as medication aren’t working. All treatments have risks and sideeffects. The same can be said for having no treatment at all. ECT uses a brief electrical current to produce a seizure within the brain. This is believed to bring about biochemical changes that may cause your symptoms to diminish or even disappear. Your doctor will discuss with you why ECT has been recommended and what alternatives might be available. Generally between six and 12 treatments, given at the rate of two a week, are required to produce such an effect. You can have ECT either as an in-patient or as an out-patient. We might see improvement after four or five treatments. You will be reassessed after every two treatments. However, treatment will stop if you recover or if you withdraw your consent. The treatment itself is given by a team of doctors and nurses with specialist training and experience. Treatment is given in the Pimpernel suite at Prospect Park Hospital, Reading. This unit was assessed by the ECT Accreditation Services who awarded the clinic with Excellence in 2010. ECT is most effective in depression, especially among older people, who see major benefits. Success rates can be as high as 80-90%, though this depends on the individual. Still, there is no guarantee that ECT will work for every patient. And although ECT may bring an episode of illness to an end, it will not in itself prevent another episode from occurring weeks, months, or years later. For this reason, you and your doctor will need to consider additional treatment to follow any ECT. This generally means medication, psychotherapy or – occasionally– further ECT. We will advise with you about the risks and benefits before you agree to have treatment. Serious complications, which are also quite rare, include: • Reactions to the medications used at the time of the treatment • Injuries to muscle, bone or other parts of the body • Greatly prolonged seizures, or seizures recurring after the ECT, which may need to be treated. However, ECT does not cause epilepsy. For most patients, the side-effects of ECT are relatively minor. Between 10% and 50% of people may experience side-effects, though we don’t know for certain. They include: • Headaches, the most common side effect, can be treated with paracetamol or ibuprofen • Memory problems, which are also relatively frequent • Muscle soreness and nausea though these are rare • Confusion for a few hours following treatment - this is more common in older people When memory problems do occur, they vary considerably from patient to patient. They are usually worse when more ECT treatments are given or when both sides of the head are stimulated (bilateral ECT). If memory loss is a problem, bilateral ECT may be changed to unilateral. You will be asked for consent to this change in treatment. ECT-related memory problems can be of two types: 1. Difficulty remembering new information 2. The loss of some memories, particularly from the recent past (such as during and just before ECT) Your ability to learn and remember new information commonly returns to its normal level over a period of days after ECT. Surveys indicate that most patients receiving ECT are not greatly disturbed by memory effects. NICE, in its recent guidance on ECT, says: “ECT may cause short- or long-term memory impairment for past events (retrograde amnesia) and current events (anterograde amnesia). As this type of cognitive impairment can also be a feature of many mental health problems it may sometimes be difficult to differentiate the effects of ECT from those associated with the condition itself.” The extent of memory loss after ECT, and the perception of this loss, also varies from person to person. However, some people do find their memory loss very damaging and feel this outweighs any benefit from ECT. Some patients feel their personality has changed. We recommend that important life decisions be postponed during the course of ECT and until any major effects of ECT on their memory have worn off. Please seek advice from your Doctor. You are also advised not to drive during this time and until advised by your doctor. Finding out about ECT and giving your consent We can only give you ECT with your consent. The only exception to this is if you lack the capacity to consent to this treatment. In this event the treatment will be discussed at length with all involved including you, prior to treatment commencing and may involve a second psychiatrist opinion. If you do give your consent, you may withdraw it at any time later. Even if you do give your consent on ECT, please do find out more about it. Please feel free to ask your doctor or nursing staff any questions. A wide variety of information is available, including leaflets, videos and material on the internet. Websites such as www.nice.org.uk/guidance/TA59 provide detailed information on ECT. However, please treat the internet with caution, as some websites might not be authentic, reliable or run by knowledgeable people. The best way to get a balanced view is to use several sources of information before making your decision to consent to ECT. Alternatives to ECT ECT is rarely the first treatment option and is generally offered when medication has failed. In some cases, counselling or psychotherapy might have also been tried unsuccessfully. However, scientific evidence shows that ECT is still the most-powerful treatment for severe depression. NICE agrees with this. Getting ready for ECT As for any treatment requiring a general anaesthetic, before ECT, we will do a medical check, blood tests and an ECG to make sure the treatment can be carried out in the safest, most effective manner. You will be given information leaflets and be invited to the unit to meet the staff, look around and ask questions. Your medication may also be adjusted to minimize the risk and maximize the effectiveness of the treatment. Preparing you for ECT ECT is usually given twice a week. You must not eat or drink after midnight the night before each treatment. This includes not chewing gum. You may be asked to take relevant pills on the morning of treatment with a small amount of water. Please bring a change of clothing with you, due to the slight risk of incontinence. The anaesthetist will place a small cannula in a vein (usually on the back of your hand) so the medications to put you to sleep and relax your muscles can be given If you are an in-patient, a ward nurse who knows you will bring you to the suite. If you are an out-patient, we’ll ask a friend or relative to do this. The treatment itself is given in a separate area of the suite. The ECT nurse will ask if you are willing to have treatment and check that you are prepared. You will be brought into the treatment room and asked to lie down on a comfortable bed, before we put a blood-pressure cuff on your arm. We will put a number of electrodes on your scalp and chest so that the brain waves (EEG), heart waves (ECG), and body-oxygen levels can be monitored, and so that the electrical stimulus can be given after you are asleep. You will be given oxygen to breathe through a mask, and within a minute of the injection of the anaesthetic medication, you will be asleep. We will then give you medication to relax your muscles. ECT when you are an out-patient If you are an out-patient, you will be given additional forms to sign, as will your relative/carer or supervising adult when you attend the clinic for treatment. You will be asked to arrive about 15 minutes before your appointment. How ECT works When you are asleep, a controlled electrical stimulus is given between two electrodes placed on the temples (bilateral ECT) or on the right temple and the top of the head (unilateral ECT). Unilateral ECT is thought to cause fewer memory problems than bilateral, but may take more treatment to resolve your depression. We will discuss the treatment type with you at consent. Occasionally it may be changed during the course to increase your recovery rate or to reduce memory problems if they occur. The electrical stimulus will trigger a seizure within the brain and throughout the body which typically lasts less than a minute. The relaxing drug greatly reduces muscle movement, so you stay fairly still. ECT without consent Prospect Park Hospital Appointments ECT may occasionally be given under the Mental Health Act, without the patient’s consent. This may be when a patient is too ill, and so lacks the capacity to consent. ECT department 8am-1pm, Tuesday and Friday only 0118 960 5008 Please arrive 15 minutes before your appointment time) Your ward, Bluebell, Daisy or Rowan Via switchboard 01189 605000 Day: This will only be after careful assessment by the patients team and may involve a second opinion from an independent psychiatrist.The patient’s family will have been involved in the decision to treat, and they and the patient will have the right to appeal against treatment. For Wexham Park Ward 10 Via switchboard on References A Programmed Text 2nd Edition. Beyer Weiner Glenn. Within a few minutes of the seizure, when you are breathing well on your own, we will move you to a recovery room where you will wake up with a nurse caring for you. Because of the anaesthetic drug and the effects of the seizure, you will feel a bit groggy for a while. NICE guidelines: National Institute for Health & Clinical Excellence. Usually within 15-25 minutes of leaving the treatment room, you will go to the sitting area where you will be offered something to eat and drink. Further information You will be allowed to leave once you have met the discharge criteria. Scottish ECT Accreditation Network (SEAN) www.sean.org.uk Websites http://www.rcpsych.ac.uk www.nice.org.uk National Institute for Health and Clinical Excellence (NICE) www.nice.org.uk/guidance/TA59 ECT Accreditation Services (ECTAS) www.rcpsych.ac.uk .......................................................... 01753 633000 For St Marks Hospital Charles Ward 01753 638540 Date: In order for us to offer the most effective care, we need to know about the things that may affect your treatment – for example if you are pregnant, have a heart condition or are taking drugs or alcohol. ........................................................... Patient advocacy .......................................................... Leaflets and information are available in the ECT suite. Other languages and formats If you would like this information in another language or format, such as large-type, please contact the ECT team at Prospect Park Hospital. Booklet design Prospect Park ECT team with service user involvement. Review date: January 2013 Time: