‘Performing Research using EthnoDrama’: A Rehearsed Reading of
‘Passing On’
IATL Strategic Project: Final Report, September 2011
Professor Gillian Hundt, Claudette Bryanston, Dr Anne-Marie Slowther, Dr
Ann Jackson, Dr Judith Purkis, Dr Christine Harrison
This award of £10,000 was utilised to produce and perform a rehearsed
reading of a play ‘Passing On’ which was commissioned from Mike Kenny
with funding from Open Space Learning (£5,000) after developmental
research through a CAPITAL Centre fellowship held by Bryanston. The play
was developed from transcripts on interviews with health professionals and
bereaved relatives which were part of the data set of a completed research
study on the experiences of families where a relative died in hospital within 48
hours of admission that was undertaken by some of the applicants on this
award (Jackson, Hundt, Purkis) with funding from the Burdett Nursing Trust.
The award enabled the play to be developed in the main by Bryanston
working with the writer and the actors with input from the academic staff. The
play was developed in collaboration with Little Angel Theatre and a life size
puppet represented the dying person. The play was performed as a rehearsed
reading in June 2011 in two performances at the Arts Centre Studio Theatre.
The audience consisted of students from across the university (with a large
group of social work and medical students), health and social care
professionals and the wider public. The performances were followed by a post
show discussion with a multidisciplinary panel of theatre practitioners, social
researchers and health and social care professionals.
The evaluations were informative and in the main positive in terms of the
content and impact. The play has been revised in the light of the evaluation
and debriefing with the theatre director and is going to be performed in
London as part of the Suspense Festival of Adult Puppetry at the end of
October (see flyer) with post show discussions and a pre-show symposium.
This will be supported by an Impact Award from the Institute for Advanced
Study and other additional funding. In addition, an Incubation Award has been
awarded for the development of a programme of research on Performing
Research using Ethnodrama. An abstract has been submitted to a meeting in
France in May 2012 on Innovations in Pedagogy. Digital resources from the
rehearsed reading are being prepared with further support from IATL.
Reflections on the process of collaboration have been written for the Open
Space Learning website and are included within this report with the material of
the evaluations. The budget was fully used and the Financial Report is
attached in Appendix 3.
This award met the objectives outlined and the work is being taken forward
both as a performance in London, as pedagogy using digital resources and as
a developing programme of work on Performing Research.
Appendix 1 Reflections ( not for distribution)
PASSING ON - Performing Research as Ethnodrama
Claudette Bryanston
Senior Associate Fellow Institute of Health/Theatre
Director.
Prof Gillian Lewando Hundt , Professor of Social Sciences in Health, CoDirector Institute of Health, School of Health and Social Studies, University of
Warwick
Background
Applied Theatre such as that developed by Boal (1979,200 ), and by the field
of Theatre in Education (O’Toole 1977) and reviewed by Prentki and Preston
(2009) has a history of stimulating social action. More recently, ethnodrama is
a way to perform research on key social issues that engages diverse
audiences both cognitively and emotionally ( Akroyd & O’Toole 2010). Within
health and social care, this is an effective and innovative way to engage
stakeholders in the complexities and dilemmas of difficult contested areas. It
is performance that is artistic but also critical social pedagogy (Shor 1992).
This is part of an ongoing collaboration between us – an experienced theatre
director CB and an applied anthropologist working in the field of health
research (GLH). Each project has been developed from multidisciplinary
research carried out by research teams of which GLH was a member.
Working within the Institute of Health at the University of Warwick has enabled
us to utilise the findings from the primary qualitative research to develop
applied theatre through ethnodrama. The first drew on understandings of
stroke in South African rural villages ( (Stuttaford et al 2006), the second on
the dilemmas and understandings of prenatal genetic screening of women
and health professionals (Lewando Hundt et al 2011) and PASSING ON
funded by OSL and IATL, developed from a study of end of life care (Jackson
et al 2011). The research data in this study consisted of semi structured
interviews with health professionals and bereaved relatives of people who had
died within 48 hours of admission to a hospital (Jackson et al 2011).
Performing research enables the dissemination and transfer of knowledge
beyond the writing of books and papers as well as providing a rich teaching
and learning resource in both live and e learning contexts. The post show
panel discussions involving academics, health professionals and theatre
practitioners engage with ethical, conceptual and personal issues. A member
of the audience said of our last collaboration.
It has come out of research but it is a piece of theatre and therefore it has a
life of its own.’
The work of David Bradby and David Williams (1988) puts forward the case
for the theatre director as author of the performance as an ‘ecriture scenique’
and indeed the transformative work of the theatre director in taking research
and developing it into theatre is in line with this approach.
The development of Passing On stemmed directly from the work undertaken
by CB in 08-09 when she was awarded a CAPITAL Centre Fellowship to
explore the potential for creating theatre for learning and social change on
issues related to end of life care and death in hospital from this completed
study. The Fellowship afforded time to research and develop a new play for
performance based learning through drama workshops and collaboration with
the Institute of Health and health professionals. This was a multi-disciplinary
collaboration in which we explored and worked in a number of different ways
but predominantly in the drama studio where we could begin to explore the
social meaning given to actions and events enabling us to reflect iteratively
and capture contemporary social discourses debates and dilemmas on end of
life care and dying in hospital. CB developed collaboration with a playwright
Mike Kenny and with Peter Glanville, the Artistic Director of Little Angel
Theatre since it was felt that a puppet could represent the dying person more
effectively as a theatrical device.
The Open Space Learning funded the playwright to deliver a script working
closely with CB and the Institute for Advanced Teaching and Learning funded
two rehearsed readings of Passing On each with a post show panel
discussion which took place on 7.6.2011 at the Warwick Arts Centre. The
performed reading was filmed so that therecording can be edited into
vignettes to become an e- teaching resource for medical and social work
students and health professional development and training accompanied by
notes for the facilitator and research findings.
The rehearsed reading of this verbatim piece was a narrative through the
voices of selected interviewees testimonies performed by 4 Midlands based
actors who spent 3 days rehearsing. This choice allowed the puppet to be
incorporated into the reading and for small moments of exploration of the use
of the puppet to represent the dying person to be shared with an audience.
It is not gloomy, some is funny, and some sad but it is told with forensic detail
by Joyce the daughter of a dying woman, and her heroic husband Jim with
extraordinary insight and such courage, of which they both seem
unconscious. The narrative is interspersed with the voices and viewpoints
from a number of health professionals covering a wide range of issues,
ranging from the frustration of an oncologist who finds he is unable to talk
about death with his patients but is trying to offer professional support; to the
porter who sees so much but generally whose voice is unheard and is there
right to the end when a body is removed from the ward to the mortuary.
‘The only thing that we can do …is that we can treat that patient… the
deceased patient with as much respect as we would a living one……the way
we move the patient…the way we treat them when we get down to the
mortuary. There might not be anybody watching… but it’s in your mind….how
you treat that patient. You know I couldn’t live with myself if I was to mistreat
a deceased patient in any kind of way when you got them to the mortuary …it
would be like slapping a living patient’. (Porter)
Collaborations between arts and the academy are complex and time
consuming and issues arise which are unexpected, or contested. Some of the
issues that arose in this ongoing collaboration are touched on here.
Use of puppetry
The use of puppetry in the piece was an artistic decision. It was felt that a life
size puppet could be manipulated on stage in and out of bed in a way that
was not possible with an actor and could be androgenous, representative and
symbolic allowing the audience to use their imagination and engage in
different ways. The puppet was made by a free lance puppeteer
recommended by The Little Angel Theatre with whom CB worked closely in
the research and development phase. A mock up version was used during
the prelimnary workshops. It was critical to involve the puppeteer from the
early stages as the design and structure of the puppet was critical and the
movement language of the puppet was agreed and shared. For example CB
wanted to feature the hands as the hands become so important being held
continuously in the final hours by relatives and giving such comfort to both the
dying and the carer at that time. The audience evaluation showed that its
mere presence and the manner of its handling evoked considerable reaction.
The two quotes below are are examples from members of the audience.
‘Cast did a super job of manipulating puppet. The process of live
actors making the inanimate become animate, while it retains a distance
and a symbolic quality.
Skeletal features, gender vagueness, wobbliness of head, seemed bit
smaller than life-sized (excellent decision that), greyness, blobby
legs - all these are verv effective elements.
I remembered the feeling of moving my mother when she was very ill – the
hands were incredible.
Ethics and copyright
The research had ethics approval from the NHS Research Ethics Committee
and this requested consent for use of the material for educational purposes.
The playwright having discussed the main themes and issues from the
research decided to develop a script using verbatim text from a range of
interviews. This was not expected and was a source of concern and we
contacted the Chair of the Ethics Committee who felt that the consent
originally sought and given covered this. However, in addition, we wrote to
every interviewee in the original study, requesting their consent and made
adjustments to the text to ensure anonymity. Such theatre has in recent years
been used particularly when working with real life situations when the
importance of authenticity and legitimacy are the most potent elements.
Producing the text and performance as a collaborative iterative process
The research team met with CB and the playwright and the Artistic Director
from Little Angel Theatre to discuss summarised themes from the research.
Discussions included not only the data but participants personal experiences.
CB then worked iteratively on the dramaturgy with Mike Kenny and the first
read through involved two members of the research team one of whom was a
health professional as well as the actors and CB. The final version of the
script reflected the feedback from the rehearsed reading from the audience,
the advisory group, the research team and panel members.
The copyright of the play belongs to the playwright although the University of
Warwick has the rights to utilise it for three years. These contractual
arrangements, common in the world of theatre and intellectual copyright do
not reflect the negotiated complex collaboration between the research
participants, the researchers and the theatre practitioners.
Audience and Panel Discussions
The audience for these rehearsed readings included medical and social work
students, and health professionals as well as others interested in the topic
and one research participant. The feedback was engaged and useful and the
panel discussions engaged with the ambiguity of decision making in end of life
care. There was reflection on how the ways in which care is organised and
delivered in nursing and residential homes, hospices, at home, in the
community, by ambulance teams or in the hospital may be caring on the
individual level but occurs within organisational constraints that may not meet
families’ preferences or needs. Experiences, choices, policies and their
implementation in practice were discussed. There was also engagement with
the use of the puppet, the artistic experience for the playwright and actors of
delivering a verbatim piece of theatre in terms of giving voice.
.This is an ongoing collaboration and funding permitting, the play will be
performed at the Suspense Festival in London in November 2011. We are
grateful to the Open Space Learning in Real World Contexts and the Institute
for Advanced Teaching and Learning for their support.
References
Akroyd J, O’Toole J. (2010) Performing Research: Tensions and Tradeoffs
of Ethnodrama, Stoke on Trent, Trentham Books
Boal. A. (1979 and 2000) Theater of the Oppressed , London, Pluto Press
Bradby D. Williams D. (1988) Directors’ Theatre, London Macmillan
Jackson, J., Purkis, J., Lewando Hundt, G., Blaxter,L. & Burnham,L. (2010).
Views of relatives, carers and staff on end of life care pathways. Emergency
Nurse . 17(10) 22 -26.
Gillian Lewando Hundt, Claudette Bryanston, Pam Lowe, Saul Cross, Jane
Sandall, Kevin Spencer (2011) - Inside ‘Inside View’: Reflections on
stimulating debate and engagement through a multimedia theatre production
on the dilemmas and issues of prenatal screening policy and practice Health
Expectations 14;1:1-9
Prentki T. Preston S. (2009) The Applied Theatre Reader, Oxford and New
York, Routledge
Shor, I. (1992) Empowering Education: Critical Teaching for Social
Change Chicago, University of Chicago Press
Stuttaford M., Bryanston,C., Lewando Hundt G., Connor M. Thorogood M.
Tollman S. (2006)The Use of Applied Theatre in Health Research
Dissemination and data validation : A Pilot study from South Africa Health
10:31-45
Appendix 2 Evaulations from the audiences attending the two rehearsed readings
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
student
email/word of
mouth
occasio no
nally
yes
member of
public
mouth/email
regular no
ly
yes
If yes
It isn't
something
I've thought
about in
depth before.
End of life
care should
be almost
'advertised' as
a preparation
we all have to
go through to
help our
families as a
whole receive
the best care
It is not
something I
have really
considered so
really I found
it interesting
Words aspect of
perform
Artistic choices
aspect
Content or issues
Attend
discussi
on
I liked the
interview
extracts
Those who
have passed on
are now
voiceless and I
think this was
a fantastic
representation
no
I liked this, it
really felt that
what was
being
portrayed was
an honest
I thought that
this worked
well to
highlight the
fact that all
these decisions
yes
Yes
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
and honest
portrayal of
different
viewpoints
member of
public
from one of
the actors
member of
public
other
one of
the
actors
Words aspect of
perform
account of
individual
experiences
Artistic choices
aspect
were being
made for and
not by the
person at end
of life
absolutely
brilliant-very
moving
regular no
ly
no
Very well
done- I was
impressed to
see that the
mutual care
was high
regular no
ly
no
Have had
answer several
experiences
like this
myself and
found this
production to
be a realistic
interpretation
Very good to Very
get truthful,
interesting,
yet different good
points of
representation,
view. Great to very lifelike,
see a piece if made the
insightful
aspect of
theatre making life/death more
people to
realistic+movi
discuss.
ng
Content or issues
Attend
discussi
on
Yes
The issues raised yes
are very relevant
and each and even
one of us has had to
face lack of care
either for ourselves
or our elderly
relatives
very
constructive
and informati
yes
very good, id
for the creato
of this piece t
take on board
some of the
comments+po
ible make
changesthought the
piece would
only need
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
student
sociology email
occasio no
nally
yes
student
social
work
occasio no
nally
yes
student
health and emailsocial
attendence of
studies(S course
W)
occasio no
nally
yes
email
If yes
Words aspect of
perform
Artistic choices
aspect
This play was Authenticated Perhaps
brought to
the views
trivialised the
life the
expressed; any person-but
context of
frustrations at really
countless
the healthcare emphasised
books I have system may the
read on the have seemed dependency
topic for a
too political she has on her
sociology
had the
carers. Not
module. I
material been sure what the
have not
written
effect would
really had any specifically
have been had
experience of for the play. you had a real
this myself.
old person to
act the role
Interesting to I thought it
I thought the
hear multiple was effective use of the
perspectivespuppet was
patient
excellent, very
relatives,
realistic
medical staff.
general
enjoyed itvery good
awareness at think it-it
thought she
issues at end made the
was very lifeof life care- performance lite+portrayed
Content or issues
Attend
discussi
on
I think people in
yes
the audience found
that they could
connect and relate
to the process
carers had to go
through for dying.
I thought a little
yes
unjust that social
worker/ social
services were
shown in the worst
light-as usual
was there at some yes
positives about
social work and
research?! We
Yes
tweaking
very interesti
very useful to
hear reasons
and ethos
behind the pl
interesting to
hear+
understand th
reasons
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
never had
close
personal or
work
experience at
it so found
the different
aspects(
family,
hospital,
chaplain,
porter etc.)
enlightening.
student
social
work
other
member of
public
compuls rarely no no
ory
attendan
ce
Gillian Hundt
occasio yes no
nally
student
other
tutor
occasio yes yes
nally
already
familiarize
with issues
in regard to
patients/
family
Words aspect of
perform
Artistic choices
aspect
more personal, the fraility at
however some her wel
of the
monologues
were difficult
to follow in
context with
the play.
Content or issues
Attend
discussi
on
always get
portrayed
negatively!
Yes
behind+
development
the
play/research
perhaps fewer very life-like
'you knows'this distracted
my a little
excellent
inspired
yes
real life
situations
aided
no
yes
Seemed to he
audience to
understand
purpose of th
plan-so, very
helpful
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
choices
student
student
student
social
work
social
work
from our
course
other
social
work
lecturer
health
professional
student
health
professional
other
medical
school
tutor
rarely no
yes
occasio no
nally
yes
occasio no
nally
staff
regular yes yes
ly
intranet
occasio no
nally
email/word of
mouth
regular no
ly
no
made it more
realistic
personal
accounts
Words aspect of
perform
Artistic choices
aspect
Content or issues
Attend
discussi
on
understanding
of issues
no
realistic/
showed
fragility
made it life
very
like
representative
of how little
voice and
control an
elderly person
has.
raised issues very good
very powerful interesting different no
perspectives ie D,
chaplain, family
very relevant relevant and
no
and effective effective
impact, good
poppet!
Good. Perhaps I think the
no
a bit long- the puppet was
order arising very powerful
was a
Yes
I am
student dept
student
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
other
tutor
occasio no
nally
yes
tutor
never
no
student
social
work
other
student
social
work
email
student
social
work
other
no
rarely no
Tony
yes
rarely yes yes
student
email
occasio no
nally
yes
student
word of
mouth
regular no
ly
yes
If yes
the issue for
au people
individual
and
emotional.
awareness
and respect+
family
thought
process of
family
Words aspect of
perform
laboured
fantastic!personal
emotional.
interesting
interesting to
realise they're
people's
opinions
with regards interesting to
to different realise they
types of care are peoples
expenses
experiences
Artistic choices
aspect
very good-life
like
Content or issues
Attend
discussi
on
no
I was confused by no
what was going onshe was dead, then
alive.
eye opener, bit
yes
sorry
bit scarymoved well
thought
yes
I understood
why and found
it effective and
symbolic also
quite
(harrowing)
It was very
touching and
no
no
Yes
I am
student
student dept
life
sciences
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
email
regular no
ly
sudent
email
regular yes yes
ly
student
psycholog email
y
occasio yes yes
nally
sudent
social
work
rarely yes yes
email
yes
If yes
Words aspect of
perform
Artistic choices
aspect
even better
from a real
person.
I like this very Clever seemed
much became odd at first but
this it
quickly got
expresses the used to it
opinions.
varied
made it
perspectives confusing at
times
I would
I liked it, it
considered it was natural
a few times speech and so
from the POV accurate- it
go the dying made it 'real'
person and
rather than an
the relatives, impression of
but not from what goes on.
a professional
point of view
Great
slightly
awareness of confusing.
this was
effective
Content or issues
Attend
discussi
on
I did not felt at all no
upset by it, a bit sad
at points but never
upset, which
surprised me with
te context.
no
The puppet
no
was brilliant,
found it really
conveyed what
was going on.
Also it let me
think about all
people in that
position, not
just that
individual
character.
really liked the relevant interesting no
puppet
issues raised
Yes
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
student
social
work
email
rarely no
student
social
work
email
occasio yes yes
nally
student
education word of
mouth
student
social
work
other
occasio no
nally
tutor
never
yes
yes
yes no
If yes
DNR in terms
of ambulance
response to
patients
without one.
families
wishes for
where the
patient dies
Words aspect of
perform
Artistic choices
aspect
Content or issues
Attend
discussi
on
Yes
Good idea but
not too
flowering at
times
very powerful again realistic
as realistic and because of as
true.
facial
expression,
height and
build
was a more
allowed ir to
honest
be realistic but
approach
also distancing
allowed,
from the topic
greater
understanding
The fact that That's what I trumps vr from It's not just the
they have to found good as MT
elderly, my mother
keep
well
died of cancer at 62
resuscitating
and the issues
with the
weren't all that
doctor
different.
arrives.
good
good
no
yes
no
no
honest and
informative
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
health
professional
email
occasio yes yes
nally
researcher
email/word of
mouth
rarely yes yes
If yes
provided an
opportunity
to reflect in a
supportive
enviroment a
good way to
present
research like
immediately
Words aspect of
perform
Artistic choices
aspect
I think this an very powerful
excellent idea, strong
however I
presence.
hadn't realised
this until I
read the
question. I feel
this should be
highlighted
moreapologies it,
have missed
some preperformance
inf.
360 degrees important,
I found this a
views from a sometimes
very
range of
confusing,
disturbing/
people
thought
distracting.
concerned.
because of
each actor
playing a
variety of
roles. I would
be just happy
just with text,
Content or issues
Attend
discussi
on
Yes
I really wanted the yes
discussion of
comments made by
paramedic and
mortuary worker.
interesting
although it
wasn't easy to
hear any
questions/com
ments made.
Important and
interesting. How
was me 'cage'
selected? I would
like maybesome
more 'cases'.
interesting,
hard to hear
thought!
yes
I am
student dept
health
professional
student
social
work
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
word of
mouth
occasio no
nally
yes
lecture
occasio no
nally
yes
If yes
Words aspect of
perform
perhaps a
book or
booklet.
Closer to me
original
speaker.?
How
I think it
important it is worked well
for all
concerned to
have
discussions
about what a
person wants.
general
Was a bit
awareness of confusing
family views where@what
and feeling stage of life
the mother
was. Some of
the
monologues
were difficult
to follow.
Artistic choices
aspect
again- I think
this worked
well
Content or issues
Attend
discussi
on
Yes
yes
interesting to
hear different
people's view
about what th
have seen.
I thought the Why is social work yes
puppet was
shown in a bad
very life like light?
and gave a
representation
well, I don't
think you
needed the real
life speech of
the mother.
interesting to
hear about th
regards and th
reason for
making the p
and what is
hoped to be
archived
through the
play- maybe
not enough
time.
I am
student
student dept
SHSS
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
poster
never
no
yes
student
email
occasio yes yes
nally
student
email
occasio yes yes
nally
If yes
in terms of
care from
relatives and
expectations
from
professionals
and power
shifts and
some times
the help
pleases felt
by relatives.
actually the
most
impressing
thing was the
idea of
showing the
research
resulting in
this way
finding.
Children.
Letting go -
Words aspect of
perform
Good, more of
these mode of
shows of
research
should be
acceptable.
Amazing. I
had read the
research
abstract before
performance
and it really
made into one
picture.
Artistic choices
aspect
Content or issues
I know the
no
research about
carers and
health
professionals
but he end of
life program
should have
had more face
I think this
special care
elder adult
patients
becomes like a
puppet and it
alto filled the
gap of patient's
voicewith
memory scene
( I find it very
realistic)
Authenticated Very Good the
brought home
Attend
discussi
on
Yes
yes
informative,
interacting an
emotional
It was really
yes
emerging issue to and
… about the laid
no
will- I wonder how
often people writhe
or accept it.
It really
beautifully
resumed the
play quite
interesting as
well
Home 'end of life'
inappropriate.
Illuminated th
issues of
yes
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
Words aspect of
perform
the
performance
resuscitation
side of it DNR useful
student
social
work
member of
the public
student
social
work
email
occasio yes yes
nally
word of
mouth
rarely yes no
email
occasio yes no
nally
Pressure on
families
Artistic choices
aspect
the frailty of
old age
Content or issues
Attend
discussi
on
Thoughtful about
end of life needing
to not be a taboo
issue especially so
people understand
DNR
Good
Interesting but A good way of
yes
I was
initiating debate
wondering
and thinking about
whether it
death
dehumanised
ill person
I thought parts Fine
I wondered what
were
was the purpose of
disrespectful
the story.And why
and excl
a drama
sensitivities.
presentation. What
BUT daughter
was it supposed to
conversation
achieve?
was
disrespectful
of mother and
undignified
Came across I liked the
Valid issues yes
very well,
puppet,
would be interested
very realistic thought the
insocial work role
Yes
societal attitu
to wors death
which is oddl
ignored
Very useful a
informative
I did not like
went on far to
long. Aspects
were
inappropriate
Very interest
could have
been longer
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
student
life
sciences,
Oxford
Brookes
word of
mouth
student
SHSS
other
dept
student
social
work
other
dept.
regular yes no
mandato ly
ry
attendan
ce was
part of
course
If yes
Words aspect of
perform
occasio no
nally
yes
Made me
think of the
available
options and
the difficult
choices for
patients and
carers
never
yes
There is not Good
much suitable
care. Its
better for
people to die
at home
It made the
play lack a bit
of drama to
the emotion;
though
realistic,
despite the
no
Fantastic
Artistic choices
aspect
Content or issues
Attend
discussi
on
facial
more
expression was
very good
Very clever
Emotive and real
yes
Good
yes
It was the best
bit, though
made it
problematic
when
switching to
actor to voice
Why was there no
service care/work
professionals
dialogue in the
show as well as
medical
yes
Yes
Good insight
into the
research and
why it was
carried out.
Essential to
completing th
theatre
experience an
interpreting i
Was good to
hear feedback
but some of t
questions
seemed
unfocussed
I am
student dept
student
student
student
social
work
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
email
occasio yes yes
nally
email
never
other
universit rarely
y
lecturer
yes no
yes
If yes
Words aspect of
perform
harrowing
story it was
hard to
connect fully
with the
situation and
play
In terms of
I think it was
quality of
brilliant and
care of older thought
people who through
are so frail
and dying
Good
Lack of
control
family
members
have during a
relatives final
Artistic choices
aspect
Content or issues
Attend
discussi
on
Yes
person and end
of life scene
It was
It was quite long
excellent and
well presented
I think an
acual person
would hav
ebeen more
hard hitting.
Coughing was
poor
Very realistic It was good,
well designed
and a crucial
idea
No
yes
Very good an
informative
yes
Interesting
While informative yes
the perspective of
the play was very
one sided towards
the family
members. I would
The organise
of the play w
rude and didn
seem to be op
to audience
questions as
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
stages of life
student
social
work
other
universit occasio yes no
y lesson nally
student
social
work
email
rarely yes no
email
occasio yes yes
nally
student
Words aspect of
perform
Artistic choices
aspect
Content or issues
Attend
discussi
on
like to have seen
more about the
pressure and stress
professionals can
potentially face on
a daily basis
Good realism Very good
They brought back yes
idea,symbolisi memories of my
ng the way
own work with
many older
older people and
people feel at my involvement
this stage of
when they were at
their life
the end of their life
(however this
was
undermined by
having a scene
when the
actress played
her mum)
yes
A clearer
It should have Human will be
understanding been
better
of the
summarised
hospital
There was no
yes
emotions Minimise the word
'you know'
Yes
interpretation
the play if it
didn't correla
with their
vision of the
play
Informative a
good to know
changes have
been
implemented
because of
research wou
have been go
to have more
time
People more
able to ask
questions
I am
student
student dept
social
work
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
email
rarely yes yes
student
email
rarely yes yes
researcher
word of
mouth
occasio yes no
nally
If yes
procedure
It helped to
make the
issues
regarding end
of life care
much clearer
We need to
continue
supporting
those nearing
the end in a
supportive,
positive
respectful
way
Potentially
good in
juxtaposing
health prof.
views and
carer ones
and starting
to show how
painful care
Words aspect of
perform
Artistic choices
aspect
Content or issues
It should have A human
It was not
been
would have
emotional
summarised in made it for me
the actors own
words
Attend
discussi
on
Yes
yes
ok
Very creative It’s a difficult time no
for the family, it
seems there is still
not much support
and clarity as to
where the patient
should be
wfw was fine
BUT it was so
very
repetitive. I'd
rather have
seen some
DIFFERENT
carers'
experiences
Very realistic but what was
the live dying
person scene
about - seemed
to be a missed
opportunity
Some who was
yes
who issues - took
me ages to figure
out that he chaplain
was the chaplain
V important t
reflect on the
variety of
reactions-the
CONTEXT &
research
findings mad
lot sense of it
handout
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
routines can
be. Good on
the resus
dilemma
student
email
rarely yes yes
member of
public
word of
mouth
occasio yes yes
nally
email
occasio yes yes
nally
student
SHSS
Words aspect of
perform
Artistic choices
aspect
Attend
discussi
on
contrasted. It
was for me much too long
The issues
Good
The puppet
surrounding
was a good
feelings and
representation
concerns of
relatives and
those dying
A difficult
Good, realistic Not sure. The
subject
but the 'you
puppet's face
know' was a very grim
bit too much.
Somewhat
quoting!
Brought
comments
Content or issues
Excellent very I though the
insightful
actual puppet
Yes
perhaps for a
audience on
this? As well
the emotions
health
warning.Also
how to handl
diversity of
responses poi
Makes a good
understanding of
end of life
no
A very necessary
exploration of the
issues. It is clear
that some attraction
should be paid to
the comfort of the
patient. We are too
keen on prolonging
life
no
I am
student
student dept
social
work
How hear about
perform
email
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
regular no
ly
yes
If yes
Words aspect of
perform
and
experiences
of those
involved to
life - more
than just on
paper
Different
Excellent professional naturalistic,
and family
real
viewpoints.
What can be
difficult practicalities,
respite,
wards,
difficulty in
getting
nursing
appointments,
medication,
carer's views
vs person's
views,
communicati
on
Artistic choices
aspect
was brilliant
but thought
was
unnecessary
for the play distracted from
issues
Excellent, well
executed, good
interaction, felt
real
Content or issues
Attend
discussi
on
yes
Yes
Useful to find
out more abo
different
aspects of pla
including
research it wa
based on and
use of drama
disseminate
findings
I am
student
student dept
social
work
How hear about
perform
How hear
about
perform
other
email
rarely no
yes
regular no
ly
yes
student
other
researcher
email
occasio yes yes
nally
email
rarely yes yes
student
student
SHSS
other
course
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
part of
course
never
no
no
If yes
Words aspect of
perform
Artistic choices
aspect
Content or issues
Attend
discussi
on
Yes
Interventions ok
Would prefer a A bit too long
yes
and hospital
humanbeing
support
Make it more Best choice
More input on why yes
authentic
certain services
were helpful and
others were not
The need to How many
Excellent
No attempt to
yes
get people to 'you knows' in puppeteer
introduce better
talk about it the original?
ways
Informative
What issues Very explicit professionals, good to
family and
support facts
others have to
face
I thought this
was very
good, as it
gives us an
insight to
carers
Good
Fair
yes
The puppet
was a good
representation.
I found it
slightly scary,
maybe the face
no
Impossible to
hear
contributors
from the back
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
Words aspect of
perform
perspectives
member of
public
word of
mouth
occasio yes yes
nally
student
Drama and other
Theatre
Education
colloqui regular no
um
ly
student
Drama and other
Theatre
Education
worksho never
p
yes
yes yes
The
difficulties in
trying to
match
peoples'
needs
Varied views
from people
who involve
in the porters,
patients'
relatives,
doctors,
carers
Very true
situation
sometimes
Artistic choices
aspect
Content or issues
Attend
discussi
on
of the puppet
could be a
little softer
These were
Very engaging It highlighted a lot no
very
of poor
informative
management within
and added
hospitals and the
much useful
guilt between
information to
desire and reality
the main
storyline
Its authentic Extremely
I've never come
no
and voracious powerful and across such
experience. It express the
concerns and this
was really
'fading life' in play helped me to
moved when a very subtle raise them
the carer
way
described his
'own'
experience of
taking care of
parents who
were poorly ill
Very good
Quite
no
powerful, but
not too much
Yes
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
conflicted
with ethical
issues
student
email
regular yes yes
ly
researcher/he
alth
prof/member
word of
mouth
regular yes yes
ly
It made me
really think
about the
Words aspect of
perform
Artistic choices
aspect
Content or issues
Attend
discussi
on
movement
The use of
I really liked
no
those words that part
were
because it was
extremely
a medium of
helpful to
enhancing our
audiences in understanding.
order to
I prefer the use
develop a
of puppet
deep
rather than an
understanding actor because
and make
the whole
connections approach
with their own seems less
lives (some
scaring
words
reminded me
of true stories
I've
heard/experien
ces)
Good choice - Brilliant
The play was too
not always
long by about
clear who was
1/3rd. The voice of
Yes
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
of public
If yes
Words aspect of
perform
unsuitability
of the acute
hospital
setting for
dying
member of
public
word of
mouth
occasio yes yes
nally
member of
public
email/poster/
word of
mouth
rarely yes yes
who, and also
might have
ben
strengthened
by having
more than one
'carer' voice.
It took me
I think this
back to my worked. I
own
didn't realise
experience of this was the
a number of case and it
relatives
gave it
dying in a
authenticity.
gentle way
The attention
and will
to the details
stimulate
very much
some
accords with
reflection.
my
experience.
Practical and I really liked
emotional
it. I thought
difficulties of that it
Artistic choices
aspect
Content or issues
Attend
discussi
on
Yes
the patient was
missing and ways
to include this need
to be considered.
I though this
was moving
and effective.
Reminded me
I felt for my
grandmother
who I saw
infrequently. I
guess also a
metaphor for
negative
aspects of
care.
Movements of
puppet were
very effective.
The puppet
I don't think I've
was amazing really ever given
and provoked much thought to
yes
Very insightf
Very interest
to hear what
I am
student
student dept
How hear about
perform
Economics email
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
occasio no
nally
yes
If yes
Words aspect of
perform
Artistic choices
aspect
remaining at therefore
memories of
home. Sadly stayed true to the frame and
all too
the real
demeanour of
common
perspectives a relative of
situation
of the
mine who
where access interviewee
died. I acually
to help is
and also added had empathy
difficult more some humour. for the puppet!
through what
you learn
rather than
what you are
told
(experience)
ie. access to
District
Nurse,
Incontinence
Nurse
A breadth of Made it more Sometimes it
issues
realistic but
was distracting
including
didn't suspect and the actors
relationships, they were
looked
responsibilitie quotations.
somewhat
s, the law,
distracted with
treatment(s)/c
multitasking,
Content or issues
Attend
discussi
on
Yes
where is the best
place to die. What
that entails or how I
will be faced with
such decisions in
the future therefore
very thought
provoking.
other people
took from the
performance.
Sometimes the
yes
script was
somewhat
confusing as to
whether the old
person was dead or
not.
Interesting an
further
insightful of t
audience's
background a
play origin.
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
Words aspect of
perform
Artistic choices
aspect
Attend
discussi
on
Yes
are, the
hospital
environment
and problems.
member of
public
word of
mouth
regular no
ly
yes
member of
public
word of
mouth
occasio no
nally
yes
but overall it
was quite
effectively and
a different way
to act scene.
The
Good up to a Like the work
inadequacy of point. Gave it of the puppet.
present
a very real
Face was very
arrangements. feel. But could thick and
Need for
have been
moving.
much more developed into
though and a more
back up
coherent story.
systems.
Subplots were
not really
developed.
The fact end Profound and Very realistic
of life care
authentic. It as I thought
perspectives enabled the
she was a real
differ yet
play to flow. person!
somehow
overlap.
Content or issues
Important to
yes
emphasise the DNR
form Q of self
funding - ability to
pay (or not) crucial.
Liked the screens
also use of curtain.
Useful
I have known
yes
people who have
had cancer not just
old people and died
and my grandad
who was in a home
who had to be
moved to hospital. I
thought the play
realistically
Although I di
not ask a
question I
found the
questions and
answers give
informative.
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
Words aspect of
perform
Artistic choices
aspect
Content or issues
Attend
discussi
on
Yes
portrayed these
issues regarding
end of life care.
student
Economics other
friend
occasio no
nally
yes
student
English
from
occasio no
partner nally
(social
worker)
yes
other
health
professional
word of
mouth
regular yes no
ly
member of
public
poster, word
of mouth
regular yes no
ly
It helped to
Symbolises
give a
how old
personal
people can be
understanding. treated.
Mainly re my Very good,
Very effective,
own situation but wasn't sure wasn't sure
when the time until the end how this
comes.
whether it was would be until
one case.
the
performance.
Very real.
Excellent.
I think it
would have
been better
with more
editing.
Excellent.
yes
From my own
yes
experience I was
clearly very lucky.
My wife was well
cared for in
hospital.
Said in discussion. yes
Very
interesting!
Some aspects
yes
would have been
improved eg. use of
hoist?
Differentiation
between NSH care
and social care
A good
discussion with commen
on both the
theatrical and
issues
concerning
Good, would
have had mor
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
health
professional
(ex)/member
of public
poster (at Arts
Centre)
occasio yes yes
nally
researcher/he
alth
professional
email/word of
mouth
occasio no
nally
yes
If yes
Recently
cared for my
mother in her
home before
her death. I
knew she
wanted to be
in her home
and am glad
we did not
have the
experience as
shown in this
performance.
Dilemmas re
'best place' to
die.Tensions
between
personal
Words aspect of
perform
Artistic choices
aspect
Content or issues
Attend
discussi
on
Yes
should be clarified,
eg. NSH provide
incontinence pads
and hoisting
(getting to toilet) is
social…..of death
at home.
Complimented Given a truer It is a
yes
- gave other representation misconception that
aspects.
of frailty - how hospices are only
withdrawn
for cancer patients
people may
at the end of their
become lives. Hospices are
advantage to for anybody who
'highlight
has a life limiting
moving'
illness to use at the
patient.
end of life.
dying.
Evocative and Extremely
meaningful.Th powerful.I was
e performance surprised how
came across as life like the
authentic,I
puppet was
Really
interesting to
hear more
information
about the
I was curious to see yes
how this topic
would work as a
theatre piece.
Highly engaging
Very useful hearing other
peoples'
opinions and
experiences.
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
member of
public
word of
mouth
regular yes yes
ly
member of
public
word of
mouth
occasio yes yes
nally
If yes
assumptions
& desires &
'practical
concerns',
how little
voice patients
can have
(through use
of puppet)
It
'dramatically'
reminded me
how awful
hospitals ca
be
particularly
for a dying
person and
also problems
of having to
resuscitate.
Need to talk
to my
children
about my end
of life
Words aspect of
perform
don't think it
matters that it
was a mix of
cases.
Artistic choices
aspect
Content or issues
Attend
discussi
on
and she
and though
reminded me provoking.
of older people
I have worked
with myself.
research
process and t
decisions tha
were made in
creating the
theatre piece.
Understand
Very good
why found the indeed.
repetition
difficult.
Needed
editing.
yes
Made it vivid.
Brought out
complexities
of issues.
yes
Very good. It Spread the word.
enabled me to
concentrate on
the carers
points of view,
Yes
Dangers of
generalisation
from this 'one
case stuck,
stimulating b
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
preferences
and DNR.
member of
public
other
Universi occasio yes yes
ty
nally
intranet
health
professional
poster/word
of mouth
occasio no
nally
no
health
professional
word of
mouth
regular no
ly
yes
Words aspect of
perform
Artistic choices
aspect
Content or issues
Attend
discussi
on
without losing
awareness fo
the person.
Re-awakened Seemed to
Seemed to
Issue of
yes
some issues lack 'word for serve the
resuscitation not
and concerns. word' content purpose.
exposed (enough).
that might
have been
collected from
'professionals',
ie.
Doctors/nurse
s and other
associated
staff.
I thought it
I though it was The point about
yes
was helpful. very effective. resuscitation was
very appropriate there is a prevailing
myth that
resuscitation gives
a change of
prolonging life.
A bit more
Effective but Very effective. Nursing and GPs yes
insight into occasionally
are not always as
some family slightly
portrayed. If this
Yes
tiring.
Interesting.
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
Words aspect of
perform
Artistic choices
aspect
Content or issues
Attend
discussi
on
perspectives disjointed.
every 'case' is
an
opportunity
to learn.
member of
public
student
word of
mouth
Sociology email/poster
occasio no
nally
yes
regular no
ly
yes
play is developed
as show to the
public it may
reinforce
stereotypes. This is
a concern,
resuscitation
important to show
as is important.
The need for Yes a very
Brilliant!
Really great
yes
respect; need good
Puppet
content and range
for change; idea.However, developed a
of perspectives. At
contradictions I was not
persona which the end I remained
between
always sure
at times
baffled about
feelings/need about a
objectified the solutions.
s of family
stereotype
patient but not
carers and
casting
always - made
different
representation sense.
professionals. of very
different
circumstances.
To some
It's
I think it was When people are yes
extent, you understandabl ok but maybe close to the end of
can
e but
an
their lives they
understand
sometimes
actor/actress need is love,
better the
you get tired cojld help to a patience and warm
Yes
Excellent.The
play set up th
discussion,bu
it is in the
discussion th
the play came
to life providing the
best learning
experiences.
Not very
interesting.
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
If yes
different
kinds of
involvement
in this
process, how
many
different
actors play a
role here.
member of
public
email
regular no
ly
yes
researcher
word of
regular no
yes
Words aspect of
perform
with a lot of
roles and
information.T
he
performance
tends to be
plain and
images did not
work well,
they were not
well
integrated.
Thought
Some
provoking,
disjointed
brough some aspects,
emotional
possible
context of
related to
issues.
different
'stories',
sometimes not
sure
perspective
the actor was
speaking
from.
Too many to I could hear
Artistic choices
aspect
Content or issues
Attend
discussi
on
Yes
better
understanding
of this
situation.Her
role was very
passive while
it should be
more active.
environment. I find
horrible the
mobilisation of
elder care.
Very effective.
Wondered
about more
than one
narrative
running
alongside one
another
(different
puppets).
Great material to yes
use for scenarios
for training - DVD.
Lots of issues
covered.
Interesting
issues to hear
around health
perspective.
Brilliant,
The story of the
Valuable.
yes
I am
researcher
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
mouth
ly
word of
mouth
occasio no
nally
If yes
list.
yes
Words aspect of
perform
Artistic choices
aspect
real people,
moving.
repetitive,
thoughtful,
inconsistent with a clear
voice.
Content or issues
Attend
discussi
on
'assessment' and
cope home did not
come over really
clearly - maybe it
was not clear from
the interview
either.
1.Experiences Innovative,
Found this
Respect in end of yes
of carer novel and
very
life. Appreciation
feelings/impa 'real'.
powerful.Real/ of carers quality of
ct. 2.What
Wonderful
true to life.
life/support/psychol
happens after method
The way the ogical support. Did
death-where dissemination. puppet 'died' the actual
you are
Powerful
was incredibly discussion/intervie
home/tin/frid insight from emotional w at the end of life
ge. 3.also
different
allowed me to actually help those
importance of perspectives. reflect on my interviewed.
health
'True'expressi own
professional - on. Didn't feel experiences.
quite often
like the
Resonates to
missed in
research had the physicality
research.
been 'creamed' of my
ie. felt whole grandparents.R
and complete. eally
powerful.Even
more than a
Yes
Could go on
tomorrow, ne
week.
Thought
providing would like to
involved in
further
discussions. I
have plenty to
say on this
topic.Family/
ends reaction
'what are you
going to that
for'. This rela
to our lack of
inability/pref
nce not to
discuss death
I am
student
student dept
Statistics
member of
public
student
How hear about
perform
word of
mouth
other
English
email
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
occasio no
nally
yes
invited rarely yes yes
as
intervie
wee
regular no
ly
yes
If yes
did now
know of all
the
difficulties.
Words aspect of
perform
Artistic choices
aspect
real
person/actor.
Makes it quite Interesting
real, but a bit because person
repetitive at could not
times.
speak for
themselves often case in
real life.
Added
Good. Also
realism, from more lifelike
normal
in aspect than
comments of an actor.
public being
used.
Made me
more aware
of other
peoples' end
of life
problems as
well as my
experiences.
Filled me in Very good,
on the
though
specific
perhaps with
debates of
slightly more
home vs
judicious
hospital care editing or
and the types interspersing
of pressure on to break it up
carers.
(cf. of out
Stunning,
really captured
the fragility of
the life.
Content or issues
Attend
discussi
on
no
no
Very sad, very
no
difficult. But
important, glad it's
being told. The
attention to
physical details was
particularly
important
Yes
I am
student
student dept
English
How hear about
perform
word of
mouth
student/healt WMS(post email
h
grad p/t)
professional
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
occasio no
nally
no
occasio yes yes
nally
If yes
Words aspect of
perform
joints
verbatim
shows).
No-only
It made the
because I am performance
already aware very realistic
of the issues. and made it
easier for me
to emotionally
engage with
the story.
Artistic choices
aspect
Content or issues
Attend
discussi
on
Impressive.
I think it was very no
The fragility informative,
and
educational and
vulnerability realistic.
of the
character was
enhanced and
very well
represented by
the puppet that
needed the
hands of the
puppeteer.
Brought
A little
Excellent.
Excellent
no
home some of distracting but Showed how performance.
the issues
very well
sometimes we Highlighted areas
faced.
performed.
don't listen to that we as
that person and professionals often
they often
take for granted.
have no voice
in what is
going on
around them.
Yes
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
student/healt Education email
h
professional
occasio yes yes
nally
student/healt
h
professional
occasio yes no
nally
word of
mouth
If yes
Possibility
some views
from carer at
home. (I have
30+ years
experience in
acute and
chronic care
setting.)
Words aspect of
perform
Artistic choices
aspect
Content or issues
Attend
discussi
on
Very well
Very effective.
done. Gave
credence to
what was said.
Emotive subject for no
those that have
experienced it.
Brilliant
Performance
sensitively covered.
Brilliant, very Excellent
perceptive.
representation
of how people
are treated and
perceived,
especially the
muteness,
people talking
at the without
regarding a
reply.
Very good
no
interpretation of
peoples
perceptions,
emotions, guilt,
justification of
actions, their
feelings and
interpretations of
the persons dying
feelings without
actually asking or
taking perception
of how that person
feels.
Yes
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
member of
public
word of
mouth
regular yes yes
ly
researcher
email
regular yes yes
ly
student
WMS
word of
mouth
occasio yes no
nally
student
student
WMS
WMS
email
word of
mouth
never no no
occasio yes no
nally
student
WMS
email
occasio no
nally
yes
Attend
discussi
on
Words aspect of
perform
Artistic choices
aspect
Differences It was
between
distracting to
'fighting
have actors
illness' and
reading
accepting end scripts.
of life.
Mirrored
Very good many
realistic.
observations I
have come
across in my
own research.
No - as I have Some
experienced good/some
end of life
bad.
care.
I thought it
worked very
well.
At times I wasn't
no
clear about which
point in the process
their play was in.
Excellent.
Mirrored the
research in a
thought provoking
fashion. Raised
issues that should
be discussed.
If yes
Looked fail in
need of care.
So more
realistic than
many actors
could be.
Good.
Good.
Surprisingly
more easily
related to than
a real actress.
Patients' right Very accurate Surprising at
to die with
and portraying when the
Content or issues
no
One sided, didn't
really provide a
medical
view/angle.
no
no
no
Yes
I am
student
student dept
WMS
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
email/poster/
word of
mouth
rarely no
yes
member of
public
word of
mouth
occasio yes yes
nally
member of
public
word of
mouth
regular yes
ly
If yes
dignity and
respect and
ensure that
they had the
highest
quality of life
nearing the
end of their
life.
The whole
process - hot
it affects
family.
Views of all
concerned.
Words aspect of
perform
patient's
emotions
opinion and
wishes.
Artistic choices
aspect
Attend
discussi
on
puppet got on
stage, but
found that
using the
puppet was
fascinating at
portraying
death.
Good- real
I liked it.
and powerful.
Not everyone
would think it
was portrayed
but good
generally.
Think it was
too long and
repetitive for
purposes of a
theatre piece.
Content or issues
Brilliant!
no
Did not necessarily no
agree with the
sentiment of
preferring to die at
home.
this worked
Very important
no
very well issues for all of us,
very moving not sure about the
and more than focuson one
an actor would experience when
have been.
there are so many
different
experiences.
Yes
I am
student
student dept
SHSS
How hear about
perform
other
How hear
about
perform
other
SHSS
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
rarely no
yes
member of
public
word of
mouth
researcher
other
friend
occasio no
nally
yes
other
Arts
Centre
regular no
ly
yes
student
English
regular yes yes
ly
If yes
Words aspect of
perform
In every
Authentic and
respect.
valuable.
Multiple
perspectives.
Artistic choices
aspect
Authentic and
valuable,
symbolic,
increased
insight.
Sharpened
The transition A good aspect.
awareness of from one story It emphasises
specific
to another was helplessness
hospital
not always
and voiceless.
procedure.
quite clear.
Moving Authenticity specific
important.
without being
a personal
story.
Feeling,
Very good.
Very good and
system,
support the
suffering of
theme of the
patients an
play.
the need of
support for
carers.
The
The fact it
At first it felt
occasionally wasn't learnt difficult to
ugliness of
made it feel a accept as it
death.
tad chunky.
made the ain
But its
subject feel
Content or issues
Authentic,
emotional, not
sentimental.
Challenging
ethically.
These issues must
be addressed!
Attend
discussi
on
no
no
no
Yes
Had other
commitments
I am
student dept
How hear about
perform
How hear
about
perform
other
Carer
Enhanced
Theatrego or
understand
er
been
ing
carer
member of
public
word of
mouth
occasio no
nally
researcher/he
alth
professional
student
Theatre
and
Performan
ce Studies
word of
mouth
rarely yes yes
member of
public
word of
mouth
regular yes yes
ly
poster
regular no
ly
student
English
and
Theatre
Studies
word of
mouth/other
Box
Office
regular no
ly
yes
yes
yes
If yes
Words aspect of
perform
Artistic choices
aspect
Content or issues
language was subjugated and
beautifully
silenced, but it
simple.
worked I
think.
Views from I liked it - felt Absolutely
professionals. real.
wonderful,
brilliant idea.
Staff
I think it was Was right.
knowledge
the right way
and action.
to do so.
It is a taboo Enhanced Represented a Very thought
subject, very not putting
person at that provoking.
rarely
words into
stage of life
addressed.
character.
generallygood.
NHS
Good,
Absolutely
professional authentic but a incredible and
nurses.
little 'wordy'. powerful
metaphor.
Made it very Thought the
believable.
puppet was
great.
Attend
discussi
on
no
no
no
no
no
Yes