Person-Centered Planning (PCP) Strategies for Postsecondary Students with Intellectual Disabilities: Facilitating Participation in PCP Meetings Valerie L. Mazzotti, Ph.D. Kelly R. Kelley, Ph.D. Cassie M. Coco, B.S.Ed. NCDCDT 2012 Spring Conference Greensboro, NC – May 3, 2012 What is the UP Program? The University Participant (UP) Program is a two year, inclusive transition program for college-aged individuals with intellectual disabilities. Operated as a pilot program from 2007 to 2010; 2 participants completed the program by 2010. Expanded to 4 participants in 2010, 4 additional in 2011 for a total of 8 participants. Funded as a model demonstration site in 2010 by U.S. Department of Education. What do UP Participants do? Live in campus residence halls and experience college life with same age peers Have an individual plan that would allow personal development for postUP success Attend and audit a limited number of classes Participate in social events and activities Five UP Program Components Personal Development Course Auditing Social Participation and Learning Community Participation Vocational Preparation Participants must pay current university fees for auditing courses UP Certificate Requirements *Individual Plan for College Participation (IPCP) Perspectives about UP Program Person-Centered Planning and UP 8 Supports are centered around person/goals Hold formal biweekly/monthly PCP meetings with various key providers Participants lead the meetings with guiding questions and picture prompting cues: Stories of Success What is Working Well? (strategies) What Could be Improved? Next Steps Questions and Other Items Facilitating PCP with UP Participants: Participating via SOP Statement of Problem A lack of interagency collaboration often exists between schools, communities, and adult service providers, which may create problems for students with disabilities as they transition from school to post-school life (Benz, Lindstrom, & Latta, 1999; Johnson, Bruininks, & Thurlow, 1987; Katsiyannis, Zhang, Woodruf, & Dixon, 2005) The Individuals with Disabilities Education Act of 2004, now requires LEAs to communicate with adult service agencies via a Summary of Performance (SOP) for each child with a disability Despite the new requirement, federal mandates do not include explicit instructions regarding completion of SOPs for transitioning students with disabilities 10 Summary of Performance (SOP) IDEA (2004) initiative “provides the child with a summary of the child's academic achievement and functional performance, which shall include recommendations on how to assist the child in meeting the child's postsecondary goals.” (IDEA, 2004, section 614 [c]5ii). Can provide a bridge into post-school life for young adults with disabilities, Whether moving from high school into post-school employment, education, and independent living settings Or from postsecondary settings into post-school employment, education, and independent living settings 11 Statement of Problem For the SOP to be useful, students must be familiar with the purpose and contents in an SOP Teachers should provide students with instruction that includes: 12 purpose of the SOP contents of the SOP steps to participate in the SOP process (e.g., SD-SOP) detailed information on how students should use the SOP as a self-advocacy tool in postsecondary environments (Richter & Mazzotti, in press) Statement of Problem Given that no experimental research currently exists to evaluate efforts surrounding the SOP, researchers should (Richter & Mazzotti, in press): begin to investigate effectiveness of various SOP procedures investigating the efficacy of various procedures for involving students in the development of SOPs, particularly focusing on the Student-Directed SOP (Martin et al., 2007) 13 Purpose To examine the effects of the Self-Directed Summary of Performance on participation in Person-Centered Planning meetings with young adults with intellectual and developmental disabilities (IDD) Self-Directed SOP 14 Research Questions What was the effect of Self-Directed Summary of Performance on participation in Person-Centered Planning meetings for young adults with IDD? To what extent will young adults with IDD generalize use of the Summary of Performance document to untrained locations? 15 Research Questions What are participants’ perceptions of using the Summary of Performance as a tool for participating in Person-Centered Planning meetings and advocating for accommodations in the workplace? What are interagency service providers' and employers' perceptions of the Summary of Performance as a method for participating in PCP meetings and advocating for accommodations in the workplace? 16 Participants Participants 17 3 young adults with IDD 2 males, 1 female 3 Caucasian Aged 27, 22, and 23 All participated in the University Participant Program on a University Campus Setting University Campus in Southeast United States Postsecondary education program designed to provide on-campus living and learning experiences for college-age persons with intellectual disabilities Instructional Setting: 18 Career Development Coordinator’s office located on university campus Dependent Variables Primary Dependent Variable: Student participation in person-centered planning meetings measured using a 30-point probe Student participation operationally defined as: independently leading their PCP meetings based on the steps of the Summary of Performance document Secondary Dependent Variable: Student use of the SOP document to advocate for accommodations in a work setting 19 Intervention Approximately four 15-45 min sessions per week Probes used to evaluate participation during mock PCP meetings Summary of Performance Lessons 20 11 scripted lesson series to teach components of SOP using prompting tool Administered by Career Development Coordinator Model, lead, test format, including role play at end of each lesson Intervention: SOP Prompting Tool SOP Prompting Tool 21 Intervention: SOP Lessons 22 Lesson 1: Beginning my meeting Lesson 2: Introducing everyone Lesson 3: My living goals Lesson 4: My learning goals Lesson 5: My working goals Lesson 6: My disability and challenges Intervention: SOP Lessons 23 Lesson 7: The supports I need Lesson 8: My jobs at WCU Lesson 9: Being a good employee Lesson 10: What my employer likes Lesson 11: My future employment goal and closing my meeting Participating in MY SOP: Elizabeth SOP Prompting Tool 24 Participating in MY SOP: Conroy – Pre/Post Pre – PCP Post – PCP 25 Results 26 Additional Preliminary Results Interrater reliability is 99.2% (range=93.3% -100%; collected on 63% of probe sessions) Treatment integrity is 100% 27 Social Validity Results Coming soon….. 28 Discussion Points Findings support using the Self-Directed SOP to teach young adults with IDD to participate in their PCP meetings First experimental study to investigate the effects of the Self-Directed SOP on participation in PCP meetings Study addressed need for an effective intervention that instructors can use to teach students with IDD to actively be involved in IEP/PCP meetings Provides students with a method for advocating with employers 29 Limitations Small number of participants (n=4) Lack of long-term maintenance data Include strategies to promote generalization to using SOP with employers 30 Suggestions for Future Research Conduct research with other student populations (i.e., high school; other postsecondary settings) in other geographic locations Collect maintenance data over an extended period of time (e.g., 3 months, 6 months) Continue to refine intervention to ensure relevance for students 31 Implications for Practice May provide a method for promoting self-advocacy skills of students with IDD May provide a method for teaching students with IDD about the SOP and participation in both IEP and SOP meetings Visual or picture cues could help with increasing self-advocacy skills for individuals with IDD Explicitly teach participation in IEP and PCP process to ensure students with IDD are actively engaged in the process 32 Questions? 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