Oxford Centre for Enablement INFORMATION BOOKLET Neurological Rehabilitation Service CORE VALUES We believe that disabled people should be respected and treated as full members of society. They should expect equal opportunities and the services will respect individual differences in culture, religion, race, age and ability, including: Access to effective and efficient health and social care. Information that is appropriate, accessible, accurate, timely and relevant. To enable individuals to make informed choices and to participate in decisions that affect their lives. Choice about every aspect of their lives and if necessary, assistance with the expression and implementation of their wishes. Participation in society and responsibilities, commensurate with their abilities. Consultation and involvement in the planning of services along with users families, voluntary organisations with specialist expertise and other appropriate groups. CONTENTS About the Oxford Centre for Enablement. What is rehabilitation? Rehabilitation team roles. Rehabilitation team roles continued. How long does rehabilitation take? How is my rehabilitation programme co-ordinated? How can I make the most of my rehabilitation? How long will I stay? The importance of family and friends. Discharge planning. What are my rights and responsibilities? Giving consent. Access to information – your medical record. Your responsibilities. Comments or complaints. Further information about the Neurological Rehabilitation Service. Contact details. The aim of this booklet is to provide information about the Neurological Rehabilitation Service at the Oxford Centre for Enablement. It is written for patients, families, friends and for professionals. It is designed to help answer some of the questions you may have. If your questions are not addressed in this booklet or the accompanying leaflets, a member of staff will be more than happy to talk with you. ABOUT THE OXFORD CENTRE FOR ENABLEMENT The Oxford Centre for Enablement (OCE) is a purpose built centre which provides specialist neurological rehabilitation and disability services within Oxford. The OCE is part of the site of the Nuffield Orthopaedic Centre NHS Trust in Headington. The services included are the: Neurological Rehabilitation Service Continuing Disability Management Service Posture, Independence and Mobility Service Prosthetics Service Orthotics Service The Neurological Rehabilitation Service provides in-patient and outpatient services for adults with disabilities following neurological injury or illness, (for example, strokes and head injuries) for the people of Oxfordshire and beyond. When writing or speaking to the Hospital, please quote your NHS number. THE REHABILITATION PROCESS WHAT IS REHABILITATION? Neurological rehabilitation is a process which starts following your injury or illness. We use a system which puts you and your goals at the centre of your rehabilitation programme. As a team we work with you and your family towards reaching your maximum level of functioning in daily life. We assist you to relearn or to find new ways of doing activities. Your rehabilitation programme is based upon rehabilitation goals that are set with you and your family/carers, following a detailed assessment looking at all different aspects of your care and needs. Assessment will be on-going throughout your stay and will be reviewed and regularly updated. A team approach will be taken at all times and your goals are central to the process. REHABILITATION TEAM ROLES Staff and volunteers within the Centre are identified by their name badges. Medical Doctors oversee your rehabilitation programme; investigate and treat medical issues, monitor your progress and provide information about medications, test results and follow up. Nursing You will have a primary nurse who, with your nursing team, will be responsible for your care on the ward. Nurses are available 24 hours a day to assist you and will actively promote independence by teaching, coaching and supporting you to do as much for yourself as possible. Occupational Therapy The Occupational Therapists aim to enable you to maximise your participation in aspects of your life that are most important to you. This may include looking at domestic and personal care tasks, social skills, work, leisure and community activities. The Occupational Therapists will also assess any equipment needs that you might have, to ensure your safety and independence at home and in the community. Physiotherapy The Physiotherapists aim to help you to improve your movement and physical abilities. This may involve work on muscle strength, balance and co-ordination. This is done through individual programmes, which will include treatment, the use of mobility equipment, practice of functional tasks and, in some cases, hydrotherapy. Clinical Psychology Clinical/Counselling Psychologists and other Psychological therapists apply psychology to a range of problems that can occur after head injury, stroke or other neurological conditions. They see people who may be depressed, anxious or worried about how they are coping, as well as those who are having difficulties with memory, concentration or problem solving. They are also available to provide support and counselling to assist you and your family members (adults and children) during the rehabilitation period. A Relationship and Psychosexual Therapist is also available to help you adjust to the impact your illness or injury has had on your relationship. Speech and Language Therapy Provides individually tailored rehabilitation programmes for you if you have speech, language, cognitive, voice or swallowing problems. Dietetics The Dietician will assess your nutritional needs and provide support and advice on any dietary issues while you are in the centre and for the future. Social Work Provide assistance with financial, accommodation and legal concerns and are involved in organising community support services. Pastoral Care Chaplains are available to help you and your relatives in your personal and spiritual response to your situation. Chaplains and pastors of most faiths can be asked to visit you. Please ask a member of staff to arrange a visit for you if required. The centre has close links with voluntary agencies involved with people with conditions such as head injury and stroke. Information is available on notice boards around the centre or do ask a member of staff for information. A Family Support Worker from Headway visits regularly and is happy to meet with patients and or their families at their request. Research The Oxford Centre for Enablement is also a centre for research into, and development of, rehabilitation services. Some patients may be asked to take part in a research project. If you are asked to participate, the purpose and what it will entail will be explained and your permission sought. All such projects are registered with, and approved by, the local Research Ethics Committee. Whether or not you choose to take part will not have any influence in your personal treatment or rehabilitation programme. If you do take part you may be helping to benefit future patients. HOW LONG DOES REHABILITATION TAKE? Rehabilitation begins while you are in hospital and continues after you go home, taking place over months and even years. There may be changes in what you are able to do over time. Each person progresses through rehabilitation at his or her own pace, and it is difficult to provide definite answers about your expected progress in rehabilitation as each person’s pattern of injury or illness and potential for recovery is different. We will however, always work towards your best ability. HOW IS MY REHABILITATION PROGRAMME CO-ORDINATED? You will be assigned a team on admission who are primarily responsible for your therapy, treatment and discharge planning. This team may include a nurse, doctor, occupational therapist, physiotherapist, clinical psychologist, dietician, speech and language therapist and social worker, as required. You can complete details at the end of this booklet. You and your family will be included in the planning of your programme by taking part in meetings to look at your life goals. This goal planning process will be used throughout your rehabilitation. The therapists that are involved with your programme will put together a weekly timetable of your sessions. You will receive a copy of this timetable each week. As you progress with your rehabilitation, and if it is appropriate, the staff will arrange for you to go home with your family for weekend leave. This leave is part of your rehabilitation and will be carefully planned by everyone involved in your care. HOW CAN I MAKE THE MOST OF MY REHABILITATION? It is important that you take an active role in your therapy and rehabilitation by: Following your daily schedule and attending therapies and meetings on time. Your timetable for the week ahead will be given to you on the Friday of the previous week. Staff will assist you with your timetable if you have any difficulty. Working towards increasing your independence by using skills you have learnt in therapy in your daily routine. Practising some exercises in your own time if your therapist suggests that you should do so. You will receive the necessary support in carrying these out. Raising any concerns or problems that you may have with the relevant therapist or your primary nurse. HOW LONG WILL I STAY? During your initial assessment and goal-planning period a possible discharge time will be discussed. Everyone makes progress at their own pace; some people will stay for shorter or longer periods than others. THE IMPORTANCE OF FAMILY AND FRIENDS Family members and friends frequently provide valuable support and encouragement during rehabilitation. We will consult with you to ascertain how you would like us to communicate with and involve your friends and family and keep them informed of your progress in rehabilitation. With your permission, family and friends can attend and participate in family conferences and/or goal planning meetings in order to understand your treatment goals and discharge plans. You may also wish to have family members assist you with exercises and self-care tasks (under the guidance of staff) or to join in with outings etc. DISCHARGE PLANNING Planning for your discharge from the centre commences from day one. We work in partnership with you and family or your carers to plan for your discharge. This planning ensures that you leave rehabilitation as soon as you and your rehabilitation team feel you are ready. WHAT ARE MY RIGHTS AND RESPONSIBILITIES? The Oxford Centre for Enablement is committed to delivering the highest possible standard of rehabilitation and care. Our staff will look after you with care and skill in keeping with recognised standards, practices and ethics. You have a right to considerate, respectful care at all times and under all circumstances, with recognition of your personal dignity and your right to privacy. Your care and treatment will be sensitive to your cultural and religious values and beliefs, sexual orientation and disability issues. All the staff at the OCE are legally and ethically obliged to keep information on your health confidential. Only health staff who are authorised can have access to information about you. If any person outside the OCE requires information, such as other doctors, or social workers, we will ask your permission before releasing the information. You are entitled to receive information about all services that may be beneficial to you and information about strategies to help you in your rehabilitation. You will be involved in the development of your rehabilitation plan. You will have the opportunity to discuss your continuing health care with staff before you are discharged. GIVING CONSENT Before you give consent for treatment, staff will clearly explain your treatment and any risks or side effects which you may experience. ACCESS TO INFORMATION – YOUR MEDICAL RECORD The Trust has a policy regarding patients access to their medical records – please see your doctor to discuss this. YOUR RESPONSIBILITIES Please consider the rights of other patients and staff members and be considerate towards them. Follow instructions given to you by staff and participate actively in your therapy programme, keeping appointments or letting staff know if you are unable to attend a therapy session. Ask questions if you are unsure about your programme or treatment. Rights and responsibilities / respect for other patients needs. If You Have Comments or Complaints Your comments are important to us and should be directed to the Rehabilitation Services Manager, the Medical Director or the Head of Nursing, in the first instance. If you feel your concern has not been fully addressed please contact The Patient Advice and Liaison Service on 01865 227459 or bleep 459. INFORMATION ABOUT YOU AND HOW WE USE IT Your Health Record Information about you, your medical treatment and family background may be recorded either on paper or computer, or both, as part of providing you with health care services. The information forms part of your Health Record and will be kept in case we need to see you again. How We Use Your Information Staff at the Trust need to use information about you so that you will receive the best possible care and treatment. We may need to share information about you with other people involved in your care, such as your GP, dentist, health visitor, community nurse or social worker. We may also need to share some of this information, by law, or to prepare statistics for research and management. YOUR RIGHTS You have the right to access your Health Record. If you are staying in the hospital, you can usually look at your Health Record folder. Your consultant will arrange for a member of staff to be present to explain medical terms and answer your questions. Sometimes this can take a little time to organise. If you would like to see your own notes, please speak to your consultant or one of the nurses on the ward. You can also look through your folder of nursing notes that is usually kept by your bed. If you would prefer, we can keep your nursing notes at the nurses station. If you would like to see your Health Record after you leave hospital, or if you would like copies of your Health Record, you will need to send a written request, called a Subject Access Request, to the Health Records Team Leader for the Trust. Please tell us clearly who you are, how you can be contacted, what it is you wish to see and why you wish to see them. You may want to see your complete record, or only things related to recent care. There is a charge of £10 for Subject Access Requests. Further charges (up to a total of £50) are made for providing copies. When we receive your completed form and the fee we aim to respond to the request in 40 days or 21days if your records have been updated within the last 40 days. You have a right to ask for your information to be changed or blocked if the information we are holding about you is incorrect. FURTHER INFORMATION REHABILITATION SERVICE ABOUT THE NEUROLOGICAL Individual leaflets are available with more detailed information about parts of the service described in this booklet. Staff will be happy to answer any questions you may have or refer you to someone who will be able to help you. Contact Details: Rivermead Ward Neurological Rehabilitation Service Oxford Centre for Enablement Nuffield Orthopaedic Centre NHS Trust Windmill Road Headington Oxford OX3 7LD Ward Manager Nurses Office Nurses Station Fax - (01865) 737355 (01865) 737346 (01865) 737340 / 737343 (01865) 227294 Your Therapy Team Doctor Primary Nurse Nursing Team Occupational Therapist Physiotherapist Psychologist Social Worker Speech and Language Therapist Other Notes Phone PALS (01865) 227459 Patient Advice Liaison Service Contact Details Oxford Centre for Enablement Nuffield Orthopaedic Centre NHS Trust Windmill Road Headington Oxford OX3 7LD Main Reception Tel: 01865 227600 Main Reception Fax: 01865 227294 ©Nuffield Orthopaedic Centre NHS Trust May 2003 Version 1.0 Fiona Turner