Timothy D. McBride, Ph.D., Washington University tmcbride@wustl.edu Shirley L. Porterfield, Ph.D., University of Missouri-St. Louis porterfields@umsl.edu Katie Stone, MPH, Washington University A. Clinton MacKinney, MD, MS, RUPRI and Stroudwater Associates (This project was funded in part by AHRQ grant 1-R03-HS017368-01A1) Study Purpose To investigate the influence of comorbid conditions, family income, and aspects of the medical home on health care utilization by children with emotional, developmental, or behavioral (EDB)* conditions Why? Annual costs of medical care for children with EDB conditions as estimated to be as much as seven times higher than those for children with no disabilities, possibly affecting utilization About 40% of children with EDB conditions have comorbid conditions *EDB conditions include conditions that affect mental functioning or behavior, including children with mental retardation, autism spectrum disorders (ASD), anxiety/depression, learning disabilities, emotional/conduct disorders, attention deficit/hyperactivity disorder (ADHD), and bipolar disorder. Research Questions Are children with multiple EDB conditions more likely to reduce utilization than children with one EDB condition and comorbid non-EDB condition(s)? Does the medical home moderate the influence of comorbidities on health services utilization for children with an EDB diagnosis? Research Questions Do children with EDB conditions and comorbidities reduce utilization of needed services because they cannot afford to pay for them? Analytical approach How comorbidities affect utilization is difficult to determine without further empirical study. Children with comorbidities may consume more medical care services, than a child with each condition by itself, because the additional medical conditions create additional needs for services. Or a child with multiple conditions may use fewer medical care services than would be expected if the family faces affordability constraints, forcing the family to cut back on utilization Or there may be economies of scale that come with medical care for comorbidities Which of these situations applies? How this varies by the child’s and family’s characteristics is therefore one of the key empirical questions to be explored here? Background Literature Health services utilization is higher among children who have comorbid conditions (Boulet, Boyle & Shieve, 2009; Richardson, Russo, Lozano et al., 2008 ; Guo, Keck, Li et al., 2007; Guevara, Lozano, Wickizer et al., 2001) Use of the care coordination services in a medical home reduces unnecessary health services utilization (Antonelli, Stille & Antonelli, 2008) Data Population (drawn from 2000-2006 MEPS, a nationally representative survey) Children ages 2-17 diagnosed with at least one of the EDB conditions of interest (nunw=2,351) Models were based on weighted data to account for complex sampling design of the MEPS survey Information from the MEPS Full-Year File & Health Conditions Datasets was merged to create the analytical dataset Methods Variables created to address research questions: ICD-9 codes were used to identify subjects with EDB conditions and physical comorbidities ○ These subjects were then categorically classified based on EDB and physical condition status MEPS insurance variables used to identify children with gaps in insurance MEPS Access to Care supplement variables were used to create an index to classify subjects as having /not having a medical home Model Focus is on effects of comorbidities and medical home on utilization Explored impact on several utilization variables: ○ Office-based visits, inpatient and outpatient admissions, therapy visits, emergency room visits, and prescription utilization ○ Results shown here only for Office-based visits, emergency room visits, and prescription utilization; all other categories had low utilization Model Model: Use = f(Conditions, Comorbidities, Medical Home, X) where X=socioeconomic and demographic control variables ○ Such as: age, gender, ethnicity, region, marital status of parents, health insurance status and change in status, health status and changes in health status) Censoring of dependent variable ○ Significant number of zeroes (censoring) leads to need to use Tobit model to estimate model ○ Censoring: 11% for office-based visits, 17% for prescriptions, 83% for ER visits Marginal effects on annual utilization Variable Office-based visits ER visits Prescriptions One EDB condition only 11.3 1.04 11.7 One EDB and one non-EDB 12.3 1.15 12.9 One EDB and multiple nonEDB 14.8 1.38 19.9 Multiple EDB conditions 13.8 1.18 13.9 Multiple EDB and one nonEDB 14.6 1.22 17.0 Multiple EDB and multiple non-EDB 16.1 1.20 21.9 All other variables set at their mean except variable shown Comorbidities add to utilization, all else equal About five more office-based visits, about 10 more prescriptions Presence of non-EDB comorbidities tends to have stronger effect than comorbid EDB conditions Effect of medical home on utilization Variable Office-based visits Prescriptions No Medical home Medical Home No Medical home Medical Home One EDB condition only 10.7 11.3 11.1 12.1 One EDB and one non-EDB 12.1 13.1 12.3 13.8 One EDB and multiple nonEDB 14.5 15.3 18.9 17.5 Multiple EDB conditions 13.5 13.8 13.1 16.8 Multiple EDB and one non-EDB 14.3 14.3 16.2 16.8 Multiple EDB and multiple nonEDB 15.8 21.0 20.8 24.4 All other variables set at their mean except variables shown Some evidence that presence of medical home leads to efficiencies in prescriptions for children with EDB, unless there is presence of non-EDB conditions. Conclusions Are children with multiple EDB conditions more likely to reduce utilization than children with one EDB condition and comorbid non-EDB condition(s)? Children with EDB comorbidities do increase utilization, but not as much as children with multiple non-EDB conditions Change in utilization is definitely non-linear as comorbidities occur This finding does suggest that there is something different about the EDB comorbidities, as compared to comorbidities of other types Does the medical home moderate the influence of comorbidities on health services utilization for children with an EDB diagnosis? Utilization is slightly higher for children with medical home than not across the board (about one office-based visit and one prescription) However, children with a medical home and multiple EDB and multiple non-EDB comorbidities have much higher use, all else equal Conclusions Why might the presence of comorbidities with EDB conditions moderate medical care utilization? These effects might be due to economies of scale, or the burden of spending on these increased needs We see some evidence to support the economies of scale hypothesis – for some related conditions the increase in utilization is moderated We have just started to explore the relationship between out of pocket costs and utilization, though Implications and Future Work To increase the efficiency and effectiveness of the delivery of medical care for children with special health care needs it is important to focus on the children with comorbidities Important way of controlling health spending for a rapidly rising population Future work: look more closely at the relationship between financial burden, utilization and costs for children with SHCN