Collaborative care for chronic illness and information technology Introduction AcademyHealth 2005 David A. Dorr, MD MS OHSU Chronic illness care: problems Chronic illness care: VA transformation Chronic disease Effective treatments for chronic illness care only given 54% of the time. 100 VA Medicare Misuse State of collaborative and chronic physical and mental illness care Framework for collaborative care and Information Technology (IT) use Successes and challenges Underuse % adherent Objectives Preventable, injurious outpatient AEs occur in 19% of patients. Overuse 50 25 Up to 30% of treatments provided for some illnesses (low back pain) are inappropriate. 0 Diabetes testing Diabetes control Terms from Chassin MR. JAMA. 1998; Sources: EA McGlynn, NEJM; Rothman, Annals; Wennberg; Forster, 2003; Dorr 2004. Root causes of problems with chronic illness care 75 Hypertension control Jha 2003. Root causes: information based 12000 12000 first RCT published: 1952 (Daniels and Hill in the British Medical Journal, comparing treatments for tuberculosis) “Tyranny of the urgent” Art and craft of medicine Complexity Individual versus population focused Financial Information/knowledge needed is Enormous Challenging to find 10000 Number of RCTs Culture / History first five years (66-70): 1% of all RCTs published from 1966-1995 last five years (91-95): 49% of all RCTs published from 1966-1995 10000 (Medline search as of 1 June 98) 8000 8000 6000 6000 4000 4000 2000 2000 0 0 19 6 19 6 6 19 7 6 19 8 6 19 9 7 19 0 7 19 1 7 19 2 7 19 3 7 19 4 7 19 5 7 19 6 7 19 7 7 19 8 7 19 9 8 19 0 8 19 1 8 19 2 8 19 3 8 19 4 85 19 8 19 6 8 19 7 8 19 8 8 19 9 9 19 0 9 19 1 9 19 2 9 19 3 9 19 4 95 Year Chassin, Mark R. Is health care ready for six sigma quality? Milbank Quarterly 1998; 76(4) Lacking In the wrong form Difficult to communicate 1 Information system: definition Any system to store / retrieve / display / aggregate / or otherwise touch information Not just computers or charts in broad sense Our focus is primarily on computer-supported information systems More successes Results management Chronic conditions Medications Preventive care summary Information System domains (IOM) Health information / data Communication and connectivity Results management Patient support Order entry Administrative process Decision support Reporting and population health Individual categories: successes Patient worksheet Pertinent labs Decision support Order entry 30-66% improvement in adherence to preventive care and acute care guidelines. Corollary orders and order sets improve safety, can reduce cost, and improve outcomes. Savings of up to $44 billion dollars per year. Pertinent exams But … chronic illness has mixed results. Patient support Congestive heart failure Passive reminders Organized by illness Wilcox 2005; CITL report 2003. IT and domains: hierarchy Access Best Practices Communication Health information / data Results management Order entry Decision support Communication and connectivity Patient support Administrative process Reporting and population health Care management packages to Improve Quality of Care: Information System focus Chronic Care Model Hartford / Intermountain Health Care generalist care management Disease management Veterans’ Administration transformation QUERI (reTIDES, EQUIP, PAS, CHIACC) 2 Improving Care for Chronic Illness Community Health System Generalist care management system Resources and Policies ------ Organization of Health Care SelfManagement Support Informed, Activated Patients & Caregivers Delivery System Design Decision Support Collaborative Care Clinical Information Systems Prepared, Proactive Practice Team Functional and Clinical Outcomes From: E.H. Wagner & RWJF Improving Chronic Illness Care Initiative Disease management Companies external to health workers provide Improvement in diabetes, depression, and congestive heart failure outcomes. Dorr et al, HSR, in press; Dorr et al, Disease management, in press. Final thoughts IS use can help solve chronic illness performance issues. Advanced information system use only 1525% in US, and still difficult to know what will work. Financial, implementation, and workflow barriers significant. Technology (e.g. monitoring devices) System (e.g. 24 hour nursing support) To reduce utilization and cost. Thanks! Amy Cohen, PhD Adam Wilcox, PhD Laurie Burns Paul D. Clayton, PhD Larry Casalino, MD PhD 3