Are We There Yet? Distance to Pediatric Subspecialty Care in the US Michelle L. Mayer, PhD, MPH Research Assistant Professor Department of Health Policy and Administration and Research Fellow CG Sheps Center for Health Services Research This work was funded by the Agency for Health Care Research and Quality grant 1-K02-HS013309-01A1 Access to Pediatric Subspecialty Care • There is currently debate about the adequacy of the pediatric subspecialty (PSS) workforce. • To date, there are few studies that adequately assess the availability of PSS care. • We do know that the majority of PSS are highly centralized in – academic medical centers – urban areas Research Questions • How far do children travel for PSS care? • What county characteristics are associated with greater distances to PSS care? • What are the provider to population ratios across pediatric subspecialties? • How many children are needed to support pediatric subspecialists? Data Sources • 2003 Diplomate File from the American Board of Pediatrics – Individual level file that contains gender, date of medical school graduation, and certification and expiration dates for all subspecialty certifications • 2003 data from the Bureau of Health Professions’ Area Resource File – County level composite file of data from multiple sources • 2003 population estimates from the Census Bureau Research Question 1 Distance to Care • For each PSS, we calculated the straightline distance between each county in the USA and the nearest provider. • We merged pediatric population data to distance data at the county level and estimated – population weighted average distance to care – % of the under 18 population living within selected distances of a provider Table 1: Mean Population Weighted Distance to Care by PSS, US Counties Number of Providers Pediatric Subspecialty Neonatal Perinatal Medicine Cardiology Hematology Oncology Critical Care Medicine Endocrinology Pulmonology Infectious Diseases Allergy Immunology Gastroenterology Emergency Medicine Nephrology Adolescent Medicine Developmental Behavioral Pediatrics Rheumatology Neurodevelopmental Pediatrics Sports Medicine 3588 1503 1553 1013 889 627 838 514 712 1075 530 396 296 173 185 82 Population Weighted Distance to Care, in Miles Mean 75%ile 95%ile 13 20 59 19 29 83 24 30 90 24 35 92 24 37 95 28 39 106 29 38 102 29 36 106 30 39 106 33 45 123 34 46 142 40 54 140 42 60 145 58 75 221 71 85 208 77 101 240 Table 2: Percent of Under 18 Population Living within Selected Distance by PSS, US Counties Neonatal and Perinatal Medicine Pediatric Cardiology Pediatric Hematology/Oncology Critical Care Medicine Pediatric Allergy Pediatric Endocrinology Pediatric Infectious Disease Pediatric Pulmonology Pediatric Gastroenterology Pediatric Emergency Medicine Pediatric Nephrology Adolescent Medicine Development Behavioral Pediatrics Pediatric Rheumatology Neurodevelopmental Disabilities Pediatric Sports Medicine Percent of Under 18 Population Within 50 Miles of a 100 or More Miles from Provider a Provider 92.9% 1.5% 87.5% 3.1% 85.8% 3.9% 83.8% 4.1% 83.6% 5.6% 82.1% 4.4% 81.5% 5.2% 81.4% 5.7% 81.3% 5.9% 77.2% 8.1% 76.6% 8.8% 73.1% 10.2% 70.9% 11.5% 64.6% 18.1% 58.5% 20.6% 53.0% 25.2% Research Question 2 Identification of Areas Facing Geographic Access Barriers • Specialty-specific logit models • Dependent Variable: – Located 50 or more miles from a provider • Independent Variables of Interest: – Metropolitan Status (MSA) – Census Division • Models control for number of children under 18, per capita income, population density, and sociodemographic characteristics of the county Counties “At-Risk” for Geographic Access Barriers • For all PSS, increased likelihood of being 50 or more miles from a provider associated with – Lower population density & smaller under-18 population – In West North Central region – In a non-metro area or MSA of less than 1 million people • Counties in the Pacific and Mountain regions were also at risk for a majority of specialties • The presence of a COTH facility was associated with a decreased risk for a handful of specialties Research Question 3 Provider to Population Ratios • For each PSS, we calculated – Percent of MSA with one or more providers – Mean provider to population ratios across all MSA in the US – Coefficient of variation • MSA-level analysis used to allow for a larger market area Table 3: Provider to under-18 Population Ratios by PSS, MSA Provider : Under-18 Population (in 100,000) % with a COV Pediatric Subspecialty Provider Mean Std. Dev. % Adolescent Medicine 33 0.43 1.18 277 Critical Care Medicine 48 1.52 5.07 333 Developmental Behavioral Pediatrics 32 0.45 1.38 307 Neurodevelopmental Disabilities 21 0.19 0.55 287 Neonatal Perinatal Medicine** 76 10.57 24.40 231 Allergy 51 1.00 2.64 265 Cardiology 60 2.16 4.59 212 Endocrinology 48 1.35 6.76 501 Infectious Diseases 44 1.10 4.47 407 Pulmonology 43 1.03 4.26 413 Emergency Medicine 40 1.08 3.13 290 Gastroenterology 46 0.91 2.02 223 Hematology Oncology 53 1.91 4.71 246 Nephrology 35 0.68 1.88 275 Rheumatology 23 0.22 0.69 315 Sports Medicine 16 0.14 0.53 387 * Statistics calculated at the state level using data from non-metropolitan counties only ** Ratio cacluated using number of births in the county Research Question 4 Population Thresholds • For each PSS, we used ordered logit used to predict – population needed to support a single PSS, and – population increments needed to support additional providers. • MSA-level analysis used to allow for a larger market area • Dependent Variable – Number of providers in the MSA Figure 1: Predicted Population Threshold Needed to Support a Single Provider by PSS, MSA Pediatric Sports Medicine Neurodevelopmental Disabilities Pediatric Rheumatology Pediatric Subspecialty Developmental Behavioral Pediatrics Adolescent Medicine Pediatric Nephrology Pediatric Emergency Medicine Pediatric Pulmonology Pediatric Infectious Diseases Pediatric Gastroenterology Pediatric Endocrinology Critical Care Medicine Pediatric Allergy Pediatric Hematology Oncology Pediatric Cardiology 0 100,000 200,000 300,000 400,000 500,000 600,000 Predicted Pediatric Population Threshold 95% Confidence Interval 700,000 800,000 Figure 2: Population Increments Needed to Support Additional Providers in an MSA, Non-procedural Subspecialties Pop'n < 18 700,000 600,000 Neurodevelopmental Disabilities Rheumatology 500,000 Allergy Immunology 400,000 Dev't Behavioral 300,000 Infectious Diseases 200,000 Adolescent Medicine 100,000 Endocrinology Hematology Oncology 0 1 2 3 Provider 4 5 Figure 3: Population Increments Needed to Support Additional Providers in an MSA, Procedural & Intensivist Subspecialties 700,000 600,000 Pop'n < 18 500,000 Pulmonology Gastroenterology Critical Care Medicine Emergency Medicine Cardiology 400,000 300,000 200,000 100,000 0 1 2 3 Providers 4 5 Figure 4: Population Increments Needed to Support Additional Providers in an MSA, Procedural & Intensivist Subspecialties 200,000 150,000 Pop'n < 18 Pulmonology Gastroenterology Critical Care Medicine 100,000 Emergency Medicine Cardiology 50,000 0 1 2 3 Providers 4 5 Discussion Discussion • There is considerable variation in the population weighted distance to care across pediatric subspecialties. • For most PSS, more than three-quarters of the under-18 population lives within 50 miles of a provider county. • Risk for being more than 50 miles from a provider is associated with living in a – small metropolitan areas & rural areas – Mountain or WNC regions – county with fewer children Discussion, cont. • Distance to care & population increments needed to attract a PSS vary considerable across PSS. – Disease prevalence – Type of specialty (procedural or cognitive) – When certification became available / size of the PSS – Overlap with IM subspecialties Limitations • Some of the addresses may be home addresses, potentially biasing estimates. • Analysis assumes that a provider is involved in patient care. • In urban areas, straight-line distance underestimates the travel time needed to reach providers. Future Research • Repeat distance analysis using zip code level data • More detailed studies needed to assess the adequacy of supply in areas that have providers: – Account for patient demand – Wait time for appointments – Estimates of provider-population ratios that adjust for provider availability for patient care • Qualitative studies of how children in areas distant from PSS receive care.