THE CASH AND COUNSELING QUALITATIVE STUDY:
NEW JERSEY PERSONAL PREFERENCES PROGRAM
INDEX
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Careworker
Family
Former
NJ1 NJ5 NJ6 NJ7 NJ12 NJ19 NJ20 NJ23
Future plans
Most important service
NJ5; 68 NJ6; 73
Paid
Hours per week
NJ1;8,14 NJ3; 33 NJ5; 62-63, 65 NJ6; 74 NJ7;77 NJ8; 80 NJ9; 90 NJ12; 119
NJ13; 125 NJ15; 135 NJ16; 140,141 NJ19; 161 NJ20; 172 NJ23; 213-214
NJ24; 221
Salary
NJ1;14 NJ5; 65 NJ6; 74 NJ7; 77 NJ9; 90 NJ12; 119 NJ13; 125 NJ15; 136
NJ16; 140-141 NJ19; 160 NJ20; 175 NJ23; 213-214 NJ24; 221-222
Unpaid
Hours per week
NJ1; 13,14 NJ3; 33 NJ5; 64, 68 NJ6; 74 NJ12; 119 NJ13; 125 NJ15; 135 NJ16;
141 NJ20; 174 NJ24; 221
Race/ Ethnicity
African American
NJ1 NJ9 NJ13 NJ16 NJ19
European American
NJ5 NJ15
Eastern European
NJ3 NJ7
Hispanic
NJ6 NJ12 NJ20 NJ23 NJ24
Other
Relationship
Children
Daughter
NJ1 NJ3 NJ5 NJ6 NJ12 NJ13 NJ24
Son
NJ7 NJ9 NJ16
Grandparents)
Grandfather
Grandmother
Parents
Father
NJ15 NJ20
Mother
Siblings
THE CASH AND COUNSELING QUALITATIVE STUDY:
NEW JERSEY PERSONAL PREFERENCES PROGRAM
INDEX
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Careworker
Family Relationship
Brother
Sister
Spouse
Husband
Wife
NJ19
Other
Aunt
Brother in law
Daughter in law
NJ23
Granddaughter
NJ23
Grandson
Grandniece
Nephew
Niece
Son in law
Sex
Male
NJ7 NJ9 NJ15 NJ16 NJ20
Female
NJ1 NJ3 NJ5 NJ6 NJ12 NJ13 NJ19 NJ23 NJ24
Supervision
NJ6; 74 NJ13; 126 NJ15; 136 NJ20; 174
Training / Previous experience in Care (see also Tasks, Skilled Medical Care)
Non-Professional
NJ1 NJ12 NJ19 NJ20 NJ23
Professional
NJ3 NJ6 NJ13 NJ16 NJ23
Non-family careworker
Former
NJ4 NJ8 NJ13 NJ14 NJ17 NJ18
Future Plans
Most important service
NJ4; 41 NJ9; 94 NJ11; 113 NJ25; 227
Paid
Hours per week
NJ2;25 NJ4; 44 NJ8; 85 NJ9; 90, 98 NJ10; 105 NJ11; 112 NJ13; 125
NJ14; 128, 130 NJ17; 155 NJ18; 152, 155 NJ21; 181 NJ22; 195 NJ25; 229
Salary
NJ2;25 NJ4; 45 NJ8; 85 NJ9; 90, 98 NJ10; 105 NJ11; 112 NJ13; 125 NJ14; 130
NJ17; 155 NJ18; 155 NJ21; 181 NJ22; 197,202 NJ25; 229
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NEW JERSEY PERSONAL PREFERENCES PROGRAM
INDEX
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Non-family careworker
Unpaid
Hours per week
NJ11; 112
Relationship
Acquaintance
NJ9 NJ2
Agency (see also Operation of Program Previous Experience Agency)
NJ4 NJ14 NJ17 NJ18
Friend
NJ8 NJ10 NJ11 NJ13 NJ21
Neighbor
Non-acquaintance
NJ22
Other
NJ25
Sex
Female
NJ2 NJ4 NJ8 NJ9 NJ10 NJ13 NJ14 NJ17 NJ18 NJ21 NJ22 NJ25
Male
NJ2 NJ11
Supervision
NJ4; 46 NJ8; 86 NJ9; 98-99 NJ13; 125-126 NJ14; 131 NJ16; 141-142 NJ17; 148
NJ19; 163 NJ21; 181-182 NJ22; 196-198 NJ23; 214-215 NJ25; 229-230
Training / Previous experience in Care (see also Tasks, Skilled Medical Care)
Non-Professional
NJ4 NJ16 NJ21 NJ22
Professional
NJ8 NJ9 NJ14 NJ17 NJ18
Number of careworkers
Multiple
NJ2 NJ4 NJ8 NJ9 NJ13 NJ22 NJ23
One
NJ1 NJ3 NJ5 NJ6 NJ7 NJ10 NJ11 NJ12 NJ14 NJ15 NJ16 NJ17 NJ18
NJ19 NJ20 NJ21 NJ24 NJ25
Primary careworker
Family
NJ1 NJ3 NJ5 NJ6 NJ7 NJ12 NJ13 NJ15 NJ16 NJ19 NJ20 NJ23 NJ24
Non-Family
NJ2 NJ4 NJ8 NJ9 NJ10 NJ11 NJ14 NJ17 NJ18 NJ21 NJ22 NJ25
Qualities and skills
Careworker perspective
NJ1; 18 NJ3; 34 NJ4; 50 NJ5; 67-68 NJ6; 75 NJ7; 79 NJ8; 86 NJ9; 96 NJ11; 114
NJ12; 120 NJ13; 127 NJ15; 136 NJ16; 142 NJ18; 157 NJ20; 172 NJ21; 184
NJ22; 199-200 NJ23; 216-217 NJ25; 230-231
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NEW JERSEY PERSONAL PREFERENCES PROGRAM
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Qualities and skills
Consultant perspective
Representative perspective
NJ18; 156-157 NJ21; 184
Tasks
Medical Treatment
NJ8; 84
Monitor Health
NJ19; 162
Nutrition
NJ8; 85 NJ9; 93 NJ19; 162 NJ25; 226-227
Personal Care
ADL’s
NJ1; 11-13 NJ3; 30, 32, 33 NJ4; 38-41 NJ6; 73-74 NJ8; 81, 84-85 NJ9; 92, 93
NJ11; 113 NJ12; 119 NJ13; 124-125 NJ14; 129-130 NJ15; 134-135 NJ16; 139-140
NJ17; 146-147 NJ18; 153-154 NJ19; 162 NJ20; 173-174 NJ21; 180 NJ22; 191-193
NJ23; 208-209, 211-213 NJ24; 221-222 NJ25; 226-227
IADL’s
NJ1; 10-13 NJ2;24-25, 29 NJ3; 30, 32-33 NJ4; 38-41 NJ5; 62-63 NJ6; 73-74
NJ7; 77 NJ8; 84-85 NJ9; 93 NJ10; 105-106 NJ11; 112-113 NJ12; 119
NJ13; 123-124 NJ14; 129-130 NJ15; 134-135 NJ16; 139-140 NJ17; 146-147
NJ18; 152-154 NJ19; 162 NJ20; 173-174 NJ21; 180-181 NJ22; 191-193
NJ23; 211-213 NJ24; 221-222 NJ25; 226-227
Skilled Medical Care (see also Careworker Training)
NJ3; 32 NJ4; 42 NJ9; 96 NJ12; 119 NJ16; 140 NJ20; 173-174 NJ22; 192
Special Needs
NJ3; 32 NJ4; 38-42 NJ20; 173-174 NJ22; 192, 193-194 NJ25; 226-227
Transportation
NJ1; 10-11 NJ2;25, 29 NJ3; 30, 32 NJ5; 64 NJ7; 77 NJ9; 94 NJ10; 107 NJ12; 119
NJ14; 130 NJ15; 134 NJ16; 141 NJ17; 146 NJ18; 154 NJ19; 162 NJ20; 173
NJ22; 194 NJ25; 226-227
Other
NJ5; 65 NJ22; 191-195 NJ25; 229
Children with Developmental Disabilities (see also Consumer Demographics)
Age
Under 18
Over 18
NJ20 NJ22 NJ25
Family Relationships
NJ20; 172, 174, 176 NJ25; 225
Parents of Children with Developmental Disabilities
Plans for future
Responsibility
NJ20; 172, 174
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NEW JERSEY PERSONAL PREFERENCES PROGRAM
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Parents of Children with Developmental Disabilities
Special needs
NJ20; 172, 174
Work
Children
NJ22; 192 NJ25; 224
Parents
NJ20; 172
Consumer Demographics (see also Children with Developmental Disabilities)
Age
< 18
18-34
NJ10 NJ20
35-44
NJ15 NJ18 NJ22 NJ25
45-54
NJ2 NJ19 NJ21
55-64
NJ4 NJ5 NJ9 NJ16 NJ17
65-74
NJ1 NJ3 NJ8 NJ11 NJ12
75-84
NJ6 NJ7 NJ13 NJ14 NJ23 NJ24
85+
Household composition
Alone
NJ3 NJ4 NJ5 NJ14 NJ16 NJ17 NJ21
Family
NJ1 NJ2 NJ6 NJ7 NJ8 NJ9 NJ12 NJ13 NJ15 NJ18 NJ19 NJ20 NJ22 NJ23
NJ24
Non Family
NJ10 NJ11 NJ25
Marital Status
Divorced
NJ2 NJ5 NJ11 NJ12 NJ15
Married
NJ18 NJ19
Single
NJ4 NJ10 NJ16 NJ17 NJ20 NJ21 NJ22 NJ25
Widowed
NJ1 NJ3 NJ6 NJ7 NJ9 NJ13 NJ14 NJ23 NJ24
Race/ Ethnicity
African American
NJ1 NJ9 NJ10 NJ13 NJ16 NJ17 NJ18 NJ19
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NEW JERSEY PERSONAL PREFERENCES PROGRAM
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Race/Ethnicity
Eastern European
NJ3 NJ7 NJ14 NJ15
European American
NJ2 NJ4 NJ5 NJ22 NJ25
Hispanic
NJ6 NJ8 NJ12 NJ20 NJ21 NJ23 NJ24
Other
NJ11
Self reported disabilities
Cognitive
Alzheimer's Disease
NJ23
Autism
Cerebral Palsy (see also Physical)
Dementia / Memory loss
NJ11
Depression, Anxiety, Bipolar Disorder
NJ1 NJ2 NJ21 NJ23
Developmental Disabilities (see also Physical)
NJ25
Down’s Syndrome
Other
Physical
Accident
NJ5 NJ19 NJ20
AIDS
NJ15
Amputation
NJ17
Arthritis
NJ6 NJ9 NJ10 NJ11 NJ13
Arteriosclerosis
Asthma, Bronchitis, Pneumonia, Breathing difficulties
NJ4 NJ7 NJ9 NJ11 NJ14 NJ20 NJ24
Back problems
NJ3 NJ5 NJ9 NJ15 NJ19
Brain damage
Cancer
NJ14
Cerebral Palsy (see also Cognitive)
Chronic Obstructive Pulmonary Disease
Communication impairment
NJ18 NJ20 NJ22
Developmental Disabilities (see also Self reported disabilities, Cognitive)
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NEW JERSEY PERSONAL PREFERENCES PROGRAM
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Self reported disabilities
Physical
Deaf, hearing difficulties
NJ1 NJ6 NJ16 NJ22
Diabetes
NJ1 NJ3 NJ6 NJ8 NJ9 NJ12 NJ16
Dialysis / Kidney failure
NJ8 NJ16 NJ19
Digestive tract problems
NJ25
Epilepsy
NJ21
Heart condition
NJ1 NJ7 NJ9 NJ13 NJ14 NJ24
Hepatitis C
NJ15
High blood pressure
NJ6 NJ7 NJ8 NJ9 NJ15 NJ17 NJ18
Hydrocephaly
Mobility difficulties
NJ1 NJ5 NJ9 NJ13 NJ15 NJ18 NJ22
Multiple sclerosis
NJ5
Muscular Dystrophy
NJ3 NJ20 NJ22
Osteoporosis / Brittle bone syndrome
NJ9 NJ23
Overweight
NJ4 NJ9
Parkinson's syndrome
NJ23
Paralysis
NJ4 NJ8 NJ12 NJ18 NJ20 NJ22
Seizures
NJ21
Stroke
NJ2 NJ8 NJ12 NJ13 NJ18
Vertigo/ Dizziness
NJ1 NJ3 NJ9 NJ12
Vision difficulties, blindness
NJ3 NJ6 NJ14 NJ15 NJ16 NJ22
Wheelchair/bed bound
NJ4 NJ8 NJ12 NJ17 NJ20 NJ21 NJ22
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NEW JERSEY PERSONAL PREFERENCES PROGRAM
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Sex
Female
NJ1 NJ2 NJ3 NJ5 NJ6 NJ7 NJ8 NJ9 NJ10 NJ11 NJ12 NJ13 NJ14 NJ16
NJ22 NJ23 NJ24 NJ25
Sex
Male
NJ4 NJ15 NJ17 NJ18 NJ19 NJ20 NJ21
State
NJ
Suburban
NJ3 NJ7 NJ11 NJ15 NJ20 NJ22 NJ25
Urban
NJ1 NJ2 NJ4 NJ5 NJ6 NJ8 NJ9 NJ10 NJ12 NJ13 NJ14 NJ16 NJ17 NJ18
NJ19 NJ21 NJ23 NJ24
Operation of Program
Advice to others/ Opinion
NJ1; 19, 23 NJ3; 35 NJ4; 46, 57 NJ9; 102 NJ10; 110 NJ11; 117 NJ12; 120
NJ13; 127 NJ15; 137 NJ18; 158 NJ19; 168-169 NJ21; 189 NJ25; 233-234
Benefits
For careworker
Family
NJ1; 23 NJ8; 85, 89 NJ9; 95-96 NJ12; 118-119 NJ13; 127 NJ16; 144
NJ19; 163-164 NJ20; 172 NJ23; 215-216, 218-219 NJ24; 220
Non-family
NJ4; 45 NJ11; 117 NJ17; 147, 151 NJ25; 233-234
For consumer/Family
NJ1; 15-16, 22 NJ2; 26-27, 29 NJ3; 35 NJ4; 45, 47-48 NJ5; 71 NJ6; 73, 75
NJ8; 88-89 NJ9; 102 NJ10; 105-106 NJ11; 111-112, 114, 117 NJ12; 118-119
NJ13; 127 NJ14; 129, 132 NJ15; 137 NJ16; 137 NJ17; 145, 147, 151
NJ18; 157-158 NJ19; 160-161, 166-167 NJ20; 172, 176 NJ21; 188-189
NJ22; 191, 204 NJ23; 215-216 NJ24; 221 NJ25; 233-234
Enrollment
NJ1; 9 NJ2; 24 NJ3; 32 NJ4; 38 NJ5; 58-59 NJ7; 78 NJ8; 82 NJ9; 92, 94
NJ10; 104-105 NJ11; 111-112 NJ12; 118 NJ13; 123 NJ14; 129 NJ15; 133,134
NJ16; 139 NJ17; 145 NJ18; 152 NJ19; 160 NJ20; 172 NJ22; 190 NJ23; 209-210
NJ24; 220 NJ25; 225-226
Language issues
Careworker
NJ4; 40, 53-54 NJ24; 223
Consultant
NJ3; 34
Consumer
NJ3; 32, 34 NJ4; 40, 53-54 NJ7; 76 NJ11; 111, 114 NJ12; 119 NJ15; 133
NJ24; 223
Representative
NJ4; 54-55
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NEW JERSEY PERSONAL PREFERENCES PROGRAM
INDEX
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Other uses of cash allowance
Home modifications
NJ1; 21 NJ11; 116 NJ16; 139
Home Appliances
NJ4; 55 NJ9; 100 NJ14; 129
Medications
NJ17; 149-150
Medical equipment
NJ9; 100 NJ12; 120 NJ21; 186
Personal care
NJ1; 21 NJ9; 100 NJ19; 165-166
Supplies
NJ2; 25-26 NJ19; 165-166
Transportation
NJ9; 100 NJ11; 116 NJ17; 150 NJ21; 181, 186
Other
NJ4; 55 NJ8; 88 NJ9; 101 NJ13; 127 NJ19; 165-166 NJ22; 203-204
Previous Experience (see also Children with Developmental Disabilities)
Former careworker
Family
NJ1; 21 NJ5; 60, 63 NJ6; 73-74 NJ7; 77 NJ9; 91-93 NJ12; 118 NJ19; 161
NJ20; 172 NJ23; 212, 215 NJ24; 220
Non-Family
Agency
NJ1; 19, 20, 21 NJ2;26, 28 NJ3; 31 NJ4; 38, 46-47, 48 NJ5; 59-60 NJ6; 74
NJ7; 77 NJ8; 82-83 NJ9; 94-95 NJ10; 106, 110 NJ11; 114 NJ12; 118,119
NJ13; 123-124 NJ14; 131- 132 NJ15; 133-134, 135 NJ16; 139 NJ17; 145
NJ18; 152, 153, 157 NJ19; 160-161 NJ20; 175 NJ21; 179 NJ22; 191 NJ23; 210-211
NJ24220-221, 222 NJ25; 226
Non-Agency
Nursing Home /Rehab Center
NJ8; 83 NJ13; 123 NJ20; 171
Other Program
Program Problems/drawbacks
For careworker
Bureaucratic problems
NJ4; 56 NJ8; 88 NJ9; 103 NJ11; 115-116 NJ15; 137 NJ17; 151 NJ20; 174-175
NJ21; 187 NJ22; 206 NJ24; 223 NJ25; 233
Low Salary
NJ1; 15 NJ22; 209
Reduced amount of hours
NJ20; 174 NJ24; 223 NJ25; 233-234
Other
NJ4; 39, 50 NJ9; 103 NJ20; 172 NJ23; 218
THE CASH AND COUNSELING QUALITATIVE STUDY:
NEW JERSEY PERSONAL PREFERENCES PROGRAM
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Program Problems/drawbacks
For consumer
Getting/Keeping careworkers
NJ2; 28 NJ4; 45-46 NJ9; 99 NJ22; 190, 204-205 NJ25; 227, 233
Reduced amount of allowed money
NJ1;8 NJ5; 66, 70
Reduced amount of hours
NJ5; 70 NJ9; 92, 98 NJ14; 130-131 NJ16; 147
Other
NJ4; 45-46, 54 NJ10; 109 NJ16; 143 NJ19; 163, 165-166, 168 NJ22; 205
Other source of assistance
Adult Care Center
Agency
County Health Department aide
Family
NJ1 NJ2 NJ5 NJ9 NJ11 NJ12 NJ16 NJ18 NJ22
Friends
NJ10 NJ11
Meals on wheels
Neighbor
NJ10
Nurse
NJ8
Religious
NJ22
Senior Citizen Center
NJ5
Other program
NJ21 NJ22 NJ25
Representative
Family
Formal
NJ1 NJ6 NJ8 NJ12 NJ16 NJ18 NJ20 NJ21 NJ23
Informal
NJ25
Relationship
Child
NJ1 NJ6 NJ8 NJ16
Parent (see also Children with Developmental Disabilities)
NJ20 NJ25
Spouse
NJ18
Other
NJ21 NJ23
THE CASH AND COUNSELING QUALITATIVE STUDY:
NEW JERSEY PERSONAL PREFERENCES PROGRAM
INDEX
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Representative
Non-family
Formal
NJ11
Informal
Relationship
Tasks
NJ12; 120 NJ16; 141 NJ23; 217-218
State Consultant
Consultant’s opinion
NJ1; 20 NJ2; 27-28 NJ3; 35-36 NJ4; 43, 48, 49, 54-55 NJ9; 92-93, 99-100, 101
NJ10; 107-110 NJ11; 115 NJ16; 143 NJ17; 149-150 NJ19; 164-165
NJ21; 179, 181, 186-187 NJ22; 197-198, 202-203, 206-207 NJ25; 232-233
Consumer relationship
NJ1; 20 NJ2; 27 NJ3; 35-36 NJ4; 55 NJ5; 70 NJ7; 78 NJ9; 101 NJ10; 107-108
NJ11; 115 NJ12; 120 NJ16; 143 NJ17; 150 NJ18; 158 NJ19; 165 NJ20; 174
NJ21; 178, 185-187 NJ22; 197, 202-203
Problems
NJ2; 27 NJ3; 35-36 NJ16; 143
Tasks
NJ2; 27-28 NJ4; 49, 54 NJ16; 143 NJ17; 150 NJ19; 164-165 NJ21; 185
NJ22; 206-207 NJ23; 213
ADL’s
Toileting
Bathing
Feeding
Transferring
Dressing
IADL’s
Bills
Cleaning
Cooking
Laundry
Shopping
Buying medication