1
Bibliography of
Community-Based Participatory Research and Ethics
prepared by Julie Hollowell and Gregory Carr
Prindle Institute for Ethics, DePauw University
A Resource for the Workshop on Community-based Participatory and Research Ethics at
the Prindle Institute for Ethics, April 19-21, 2009
BOOKS AND BOOK CHAPTERS
Denzin, Norman, Yvonna Lincoln and Linda T. Smith. Handbook of Critical Indigenous
Methodology. Thousand Oaks: Sage, 2008.
Battiste, Marie. “Research Ethics for Protecting Indigenous Knowledge and Heritage:
Institutional and Researcher Responsibilities.” In Handbook of Critical
Indigenous Methodology, edited by N. Denzin, Y. Lincoln and L. T. Smith, pp.
497-510. Thousand Oaks: Sage, 2008.
Jones, Alison with Kuni Jenkins. Rethinking Collaboration: Working the IndigeneColonizer Hyphen. Handbook of Critical Indigenous Methodology, edited by N.
Denzin, Y. Lincoln and L. T. Smith, pp. 471-486. Thousand Oaks: Sage, 2008.
Green, L.W., et al. “Background on Participatory Research.” In Doing Community-Based
Research: A Reader. Knoxville: The Loka Institute, Amherst/The Community
Partnership Centre, 1997.
Harrison, Barbara. Collaborative Programs in Indigenous Communities, From Fieldwork
to Practice. AltaMira Press, Walnut Creek, 2001.
Ibánez-Carrasco, Fransico. “Desire and Betrayal in Community-Based Research.” In
Public Acts: Disruptive Readings on Making Curriculum Public, edited by
Fransico Ibanez-Carrasco et al. Routledge, 2004.
King, Nancy M. P. Henderson Gail, and Jane Stein. Beyond Regulations: Ethics in
Human Subjects Research. Chapel Hill, NC : University of North Carolina Press,
1999.
Lutz, John S. and Barbara Neis (eds.). Making and Moving Knowledge: Interdisciplinary
and Community-based Research In a World on the Edge. McGill-Queens
University Press, Montreal, 2008.
Mauthner, Melanie L. Ethics in Qualitative Research. London ; Thousand Oaks, CA :
Sage Publications Ltd, 2002.
McIntyre, Alice. Participatory Action Research. Sage, 2007.
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Reason, Peter. “Learning and Change through action research.” In Creative Management,
ed. J. Henry. London: Sage Publications, 2001.
Reason, Peter, and Kate Louise McArdle. “Brief Notes on the Theory and Practice of
Action Research.” In Understanding Research Methods for Social Policy and
Practice, edited by Saul Becker and Alan Bryman. Bristol: The Polity Press,
2004.
Stoecker, Randy. Research Methods for Community Change: A Project-Based Approach.
Sage Publications, 2006.
Strand, Kerry. Community-Based Research and Higher Education: Principles and
Practices. Jossey-Bass higher and adult education series. San Francisco, CA:
Jossey-Bass, 2003. DePauw ROW Library / Campus Life: LC237 .C613 2003
Stringer, Ernest T. Community-Based Ethnography: Breaking Traditional Boundaries of
Research, Teaching, and Learning. Mahwah, N.J.: Lawrence Erlbaum Associates,
1997.DePauw ROW Library / General Collection: GN345 .C643 1997
-----. Action Research. 2nd ed. Thousand Oaks, CA: Sage Publications, 1999.
-----. Action Research: a Handbook for Practitioners. Thousand Oaks, CA: Sage
Publications, 1996.
-----. Action Research in Education. Upper Saddle River, NJ: Merrill/Prentice Hall,
2004.
-----. Community-Based Ethnography: Breaking Traditional Boundaries of Research,
Teaching, and Learning. Mahwah, NJ: Lawrence Erlbaum Associates, 1997. :
Trimble, Joseph E. and Celia B. Fisher The Handbook of Ethical Research with
Ethnocultural Populations and Communities. Thousand Oaks, CA, Sage
Publications, 2006.
Zlotkowski, Edward. 1999. “Pedagogy and Engagement.” In Colleges and Universities
as Citizens, edited by Robert Bringle et al., 96-120. Boston: Allyn & Bacon.
Conservation
Brosius, J. Peter, Anna L. Tsing, and Charles Zerner. Communities and Conservation:
Histories and Politics of Community-Based Natural Resource Management.
Walnut Creek, CA: AltaMira Press, 2005.
Russell, Diane and Camilla Harshbarger. Groundwork for Community-Based
Conservation : Strategies for Social Research. Walnut Creek, CA : Rowman &
Littlefield, 2002.
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Wilmsen, Carl, William Elmendorf, Larry Fisher, and Jacquelyn Ross (eds.).
Partnerships for Empowerment: Participatory Research for Community-based
Natural Resource Management. London: Earthscan Publications, 2008.
Archaeology
Nicholas, George P. “Education and Empowerment: Archaeology with, for and by the
Shuswap Nation, British Colombia.” In At a Crossroads: Archaeology and First
Peoples in Canada, edited by G.P. Nicholas and T.D. Andrews, pp. 85–104.
Archaeology Press, Burnaby, B.C., 1997.
Watkins, J and TJ Ferguson. “Working With and Working For Indigenous
Communities.” In Handbook of Archaeological Methods, Vol. II. edited by H. D.
G. Maschner and C. Chippindale, pp. 1372-1406. Lanham, MD: AltaMira, 2005.
Health
Blumenthal, Daniel S., and Ralph J. DiClemente, eds. Community-Based Health
Research: Issues and Methods. New York : Springer Pub., 2004.
Brugge, Doug Hynes H. Patricia. Community Research in Environmental Health: Studies
in Science, Advocacy, and Ethics. Aldershot, Hants, Eng.; Burlington, VT:
Ashgate, 2005.
Israel, Barbara A., et al. Methods in Community-Based Participatory Research for
Health. Jossey-Bass, San Francisco, 2005.
Minkler, M., and N. Wallerstein (editors). Community-Based Participatory Research for
Health: From Process to Outcomes. 2nd Ed. Jossey-Bass, San Francisco, 2008.
Israel, B.A., et al. “Critical Issues in Developing and Following Community Based
Participatory Research Principles.” In Community-Based Participatory Research
for Health, ed. M. Minkler and N. Wallerstein, pp. 263–288. Jossey-Bass, San
Francisco, 2003.
Springett, J. Issues in Participatory Evaluation. In Community-Based Participatory
Research for Health, ed. M. Minkler and N. Wallerstein, pp. 263–288. JosseyBass, San Francisco, 2003.
Themba, M. N., and M. Winkler. Influencing Policy Through Community Based
Participatory Research. In Community-Based Participatory Research for Health,
ed. M. Minkler and N.Wallerstein, pp. 349–370. Jossey-Bass, San Francisco,
2003.
Murphy, E., and R. Dingwall. Qualitative Methods in Health Services Research. In
Health Services Research Methods: A Guide to Best Practice, edited by N. Black,
J. Brazier, R. Fitzpatrick and B. Reeves, pp. 129–138. BMJ Books, London, 1998.
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Stringer, Ernest and William Genat. Action Research in Health. Upper Saddle River, NJ:
Merrill/Prentice Hall, 2004.
Youth
Leadbeater, Bonnie J. Ross. Ethical Issues in Community-Based Research with Children
and Youth. Toronto: University of Toronto Press, 2006.
ARTICLES and REPORTS
Alexander, Leslie B., and Kenneth A. Richman. "Ethical Dilemmas in Evaluations Using
Indigenous Research Workers." American Journal of Evaluation 29.1 (2008): 7385.
The Australian Institute of Aboriginal and Torres Strait Islander Studies (AIATSIS).
Guidelines for Ethical Research in Indigenous Studies, Canberra, AUS. (May)
2000.
Ayala, Jennifer. “Split Scenes, Converging Visions: The Ethical Terrains Where PAR
and Borderlands Scholarship Meet.” Urban Review 41(2009):66–84.
Barazangi, Nimat H. “An Ethical Theory of Action Research Pedagogy.” Action
Research 4.1 (2006):97-116.
Boser, Susan. "Ethics and Power in Community-Campus Partnerships for Research."
Action Research 4.1 (2007): 9-21. [ABSTRACT]
----- “Power, Ethics, and the IRB: Dissonance Over Human Participant Review of
Participatory Research” Qualitative Inquiry 13.8 (2007): 1060-1074
[ABSTRACT]
Brown L, and W. Vega. “A protocol for community-based research.” Am J Prev Med 12
(1996): 4-5.
Brydon-Miller, Mary and Davydd Greenwood. “A re-examination of the
relationship between action research and human subjects review processes.”
Action Research 4.1 (2006): 117-128.
Brydon-Miller, Mary, Davydd Greenwood, and Olav Eikeland. “Editorial.” Action
Research 4.1 (2006): 5-8
Brydon-Miller, Mary, Davydd Greenwood, and Olav Eikeland. “Conclusion: Strategies
for Addressing Ethical Concerns in Action Research.” Action Research 4.1
(2006): 129 - 131
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Burthansstipanov, Linda et al. “Lessons Learned From Community-Based Participatory
Research in Indian Country.” Cancer Control (November 2005): 70-76.
Cahill, Caitlin et al. “Participatory Ethics: Politics, Practices, Institutions” ACME: An
International E-Journal for Critical Geographies 6.3 (2007): 304-318.
Chavis DM, Stucky PM, Wanderman A. “Returning basic research to the community:
A relationship between scientist and citizen.” Am Psychol 38 (1983):424-434.
Christopher, Suzanne, Vanessa Watts, Alma Knows His Gun McCormick, and Sara
Young. Building and Maintaining Trust in a Community-Based Participatory
Research Partnership 98.8 (August 2008).
Collier, Connie S. and Hal A. Lawson. “Toward Academically Based Community
Scholarship: Ideals, Realities, and Future Needs.” Quest 49 (1997): 380-393.
Dewhurst, C. Kurt, Narissa Ramdhani, and Marsha MacDowell. “Lessons Lived and
Learned in Developing and Managing a Bi-National Cultural Heritage Sector
Project in South Africa.” Museum Anthropology Review 2.1(Spring 2008)
Dickert, Noel, and Jeremy Sugarman. “Ethical Goals of Community Consultation in
Research.” American Journal of Public Health 7 (July 2005): 1123-1127.
Dove, Michael R. Indigenous People and Environmental Politics. Annual Review of
Anthropology 35.1 (2006): 191.
Firehock, Karen. “Protocol and Guidelines for Ethical and Effective Research of
Community Based Collaborative Processes.” Community Based Collaboratives
Research Consortium (November 2003).
First Nations Centre. OCAP: Ownership, Control, Access and Possession. Report
sanctioned by the First Nations Information Governance Committee, Assembly of
First Nations. Ottawa: National Aboriginal Health Organization, 2006
Flicker, Sarah, et al. "If you could change one thing... What community-based
researchers wish they could have done differently." Community Development
Journal 43.2 (2008): 239-239.
Genat, Bill. “Building Emergent Situated Knowledges in Participatory Research.” Action
Research 7.1 (2009): 101 – 115.
Giese-Davis, Janine. "Community/Research Collaborations: Ethics and Funding."
Clinical Psychology: Science & Practice 15.2 (2008): 149-52.
Greenwood, Davydd, Mary Brydon-Miller and Carla Shafer. “Intellectual Property and
Action Research.” Action Research 4.1 (2006): 81–95.
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Jacobson, Maxine. “Community-Based Participatory Research: Group Work for Social
Justice and Community Change.” Social Work With Groups 30.4 (2007) :21-39.
Johnston, Charlotte, and Sheila Woody. "Ethical Challenges in Community-Based
Research: Introduction to the Series." Clinical Psychology: Science & Practice
15.2 (2008): 115-17.
Kesby, Mike “Retheorizing Empowerment-through-Participation as a Performance in
Space: Beyond Tyranny to Transformation.” Signs: Journal of Women in Culture
and Society 30.4 (2005): 2037 – 2064.
Kidon, Sara and Sarah Elwood. “Introduction: More than Methods—Reflections on
Participatory Action Research in Geographic Teaching, Learning and Research.”
Journal of Geography in Higher Education; 33.1 (2009):19 -32. [ABSTRACT]
Krimerman, Leonard. “Participatory Action Research: Should Social Inquiry be
Conducted Democratically?” Philosophy of the Social Sciences 31.1 (2001): 60-82.
Lofman, Paivi, Marjaana Pelkonen, and Anna M. Pietila. “Ethical issues in participatory
action research” Scandinavian Journal of the Caring Sciences 18 (2004): 333–
340.
Mackenzie, Catriona, et al. "Beyond 'Do No Harm': The Challenge of Constructing
Ethical Relationships in Refugee Research." Journal of Refugee Studies (2007):xx
Mayo, Kevin, Komia Tsey, and the Empowerment Research Team. “The research
dance: university and community research collaborations at Yarrabah, North
Queensland, Australia.” Health and Social Care in the Community 17.2
(2009):133–140.
Maiter, Sarah, et al. "Reciprocity: An Ethic for Community-Based Participatory Action
Research." Action Research 6.3 (2008): 305-25.
Manderson, Lenore and Ruth P. Wilson. “Negotiating with Communities: The Politics
and Ethics of Research” Human Organization 57.2 (Summer 1998): 215-16.
Marullo, Sam, et al. “Community-Based Research Assessments: Some Principles and
Practices.” Michigan Journal of Community Service Learning 9.3 (2003): 5768.
McDonald, J. A. “The Tsimshian Protocols: Locating and Empowering Communitybased Research.” Canadian Journal of Native Education 28 (2004): 80-91.
McMullen, Ann. “The Currency of Consultation and Collaboration.” Museum
Anthropology Review 2.2 (Fall 2008): 54-87.
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Menzies, Charles R. “Putting Words into Action: Negotiating Collaborative Research in
Gitxaala.” Canadian Journal of Native Education 28 (2004): 15-32.
Minkler, M. 2004. “Ethical challenges for the ‘outside’ researcher in community-based
participatory research.” Health Education & Behavior 31.6 (2004): 684-697.
[ABSTRACT]
Petras, Elizabeth McLean and Douglas V. Porpora. “Participtory research: three models
and an analysis.” The American Sociologist (2001): 107-26.
Prinsloo, Mélani. “Community-based participatory Research: A case study from South
Africa.” International Journal of Market Research 50.3 (2008): 339-354.
Reason, Peter. Political, Epistemological, Ecological and Spiritual Dimensions of
Participation. Studies in Cultures, Organizations and Societies 4 (1998): 147-167.
---. “Choice and Quality in Action Research Practice.” Journal of Management Inquiry
15.2 (2006): 187-203.
Reason, Peter, and John Heron. “A Participatory Inquiry Paradigm.” Qualitative Inquiry
3.3 (1997): 274-294.
Reason, Peter, and William R. Torbert. The Action Turn: Toward a Transformational
Social Science. Concepts and Transformations 6.1 (2001): 1-37.
Salmon A. Walking the talk: how participatory interview methods can democratize
research. Qualitative health research 17.7 (2007): 982-93.
Santiago-Rivera, Asara L, Gayle Skawennio Morse, Anne Hunt, and Henry Lickers.
Building a Community-Based Research Partnership: Lessons From the Mohawk
Nation of Akwesasne. Journal of community psychology. 26.2 (1998): 163.
Sherman JA and JB Sheldon. “Values for community research and action: do we agree
where they guide us?” J Appl Behav Anal 24 (1991):653-5.
Shore, Nancy, Kristine A. Wong, Sarena D. Seifer, Jessica Grignon, and Vanessa
Northington Gamble. Introduction to Special Issue: Advancing the Ethics of
Community-Based Participatory Research. Journal of Empirical Research on
Human Research Ethics 3.2 (2008): 1-4.
Silverstein, Michael, Mary Banks, Susan Fish, and Howard Bauchner. Variability in
Institutional Approaches to Ethics Review of Community-Based Research
Conducted in Collaboration with Unaffiliated Organizations. Journal of Empirical
Research on Human Research Ethics 3.2 (2008): 69-76.
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Stoecker, Randy. "Challenging institutional barriers to community-based research."
Action Research 6.1 (Mar. 2008): 49-67.
---. “Community-Based Research: From Practice to Theory and Back Again.” Michigan
Journal of Community Service Learning 9.2 (2003): 35-46.
---. “Are academics irrelevant? Roles for scholars in participatory research.” American
Behavioral Scientist 42 (1999):840-854.
Strand, Kerry, et al. “Principles of Best Practice for Community-Based
Research.”
Michigan Journal of Community Service Learning 9.3 (Summer 2003): 5-15.
Trimble, Joseph E. “Commentary: No Itinerant Researchers Tolerated: Principled and
Ethical Perspectives and Research with North American Indian Communities”
EHOS 36.3 (2008): 380-383.
Tuck, Eve. “Re-visioning Action: Participatory Action Research and Indigenous
Theories of Change.” Urban Review 41(2009):47–65.
Walsh, Christine A. et al. “Unraveling Ethics: Reflections from a Community-based
Participatory Research Project with Youth” The Qualitative Report 13.3 (2008):
379-393.
Williams, L. “Participatory research, knowledge, and community-based change:
Experience, epistemology, and empowerment.” Research in Community
Sociology 9 (1999):3-40.
Zlotkowski, Edward “Community On and Off Campus.” Metropolitan Universities: An
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Conservation
Carter, Jennifer, and Greg Hill. “Indigenous community-based fisheries in Australia.”
Journal of Environmental Management 85.4 (2007): 866-875.
McCall, M. K., and P.A. Minang. “Assessing Participatory GIS for Community based
Natural Resource Management: Claiming Community Forests in Cameroon.” The
Geographical Journal, 171.4(2005): 340-356.
Medeek, Wuyee Wi (John Lewis). “Forests for the Future: The View from Gitkxaala.”
Canadian Journal Of Native Education 28 (2004): 8-14.
Mercer, Jessica, Dale Dominey-Howes, Ilan Kelman, and Kate Lloyd. “The potential for
combining indigenous and western knowledge in reducing vulnerability to
environmental hazards in small island developing states.” Environmental Hazards
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Minkler M, Vu’asquez VB, Tajik M, and Petersen D. “Promoting environmental justice
through community-based participatory research: the role of community and
partnership capacity.” Health education & behavior: the official publication of the
Society for Public Health Education 35.1 (2008): 119-37.
Archaeology
Atalay, S. Global Application of Indigenous Archaeology: Community Based
Participatory Research in Turkey. Archaeologies 3.3 (2007):249–270.
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Health
Arcury TA, SA Quandt, L. McCauley “Farmworkers and Pesticides: Community-Based
Research.” Environ Health Perspect 108 (2000):787-792.
Aronson, Robert E., et al. "Ethnographically Informed Community Evaluation: A
Framework and Approach for Evaluating Community-Based Initiatives." Maternal &
Child Health Journal 11.2 (Mar. 2007): 97-109.
Baker EA, S Homan, R Schonhoff, and M Kreuter. “Principles of practice for
academic/practice/community research partnerships.” Am J Prev Med 16
(1999):86- 93.
Brown, Micaela. “Research, Respect and Responsibility: A Critical Review of the TriCouncil Policy Statement in Aboriginal Community-Based Research.” A Journal
of Aboriginal and Indigenous Community Health 3.2 (2005): 79-103.
Buchanan, David R., Franklin G. Miller, and Nina Wallerstein. “Ethical Issues in
Community-Based Participatory Research: Balancing Rigorous Research With
Community Participation in Community Intervention Studies” Progress in
Community Health Partnerships: Research, Education, and Action 1.2 (2007):
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Cargo, Margaret and Shawna L. Mercer. “The Value and Challenges of Participatory
Research: Strengthening Its Practice.” Annu. Rev. Public Health 29 (2008):325–
50.
Cargo, Margaret, Treena Delormier, Lucie Le´vesque, Kahente Horn-Miller, Alex
McComber and Ann C. Macaulay. “Can the democratic ideal of participatory
research be achieved? An inside look at an academic–indigenous community
partnership.” Health Education Research (2008): 1-11.
Couzos, Sophie, et al. "’We Are Not Just Participants, We Are in Charge’: The Naccho
Ear Trial and the Process for Aboriginal Community-Controlled Health
Research." Ethnicity & Health 10.2 (2005): 91-111.
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Emmett, Edward Anthony, et al. "Development and Successful Application of A
"Community-First" Communication Model for Community-Based Environmental
Health Research." Journal of Occupational & Environmental Medicine 51.2
(2009): 146-56.
Flicker, Sarah, et al. "Community-Based Research in Aids-Service Organizations: What
Helps and What Doesn't?" AIDS Care 21.1 (2009): 94-102.
Higgins DL, B. Maciak B, and M. Metzler. “CDC Urban Research Centers: Communitybased participatory research to improve the health of urban communities.”
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Macaulay, A., and L. Commanda. Participatory Research Maximizes Community and
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Malone, Ruth E, Valerie B Yerger, Carol Mcgruder, and Erika Froelicher. "It's Like
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Myser, Catherine. "Whose History? Whose Future? Expanding the Exploration of Lived
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Technology
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Youth
Harper, Gary W., Omar Bashir Jamil, and Bianca D. M. Wilson. "Collaborative
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Youth-Health
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