THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL SCHOOL OF SOCIAL WORK COURSE NUMBER: COURSE TITLE: SEMESTER AND YEAR: SOWO 836 Examining Health Access and Health Disparities Spring 2012 MEETING TIME/LOCATION: Tuesday, 9-10:30am; Room 101 INSTRUCTOR: Lisa de Saxe Zerden, MSW, PhD Email: Lzerden@email.unc.edu Phone: 919.962.6430 OFFICE HOURS: 425 (Students are always welcome to stop by but appointments recommended so I will be in my office when you need me). COURSE DESCRIPTION: Examines disparities in health outcomes as a function of access to and quality of care for persons disadvantaged by income, ethnicity, sexual orientation, and other factors. Critically evaluates health and social policies related to exacerbation and resolution of health inequities. COURSE OBJECTIVES: The student who successfully completes this course should be able to: 1. Identify the principles, foundation and provisions of the primary social welfare programs that constitute the healthcare safety net in the United States. 2. Demonstrate the analytic, theoretical and value assessment skills that enable social workers to evaluate policies and apply change strategies. 3. Apply concepts and principles of human rights, social justice, and social work ethics to policy analysis, development and change strategies. 4. Describe major disparities in diagnosis, prognosis, and health outcomes in the United States for persons of varying gender, race and ethnicity, sexual orientation, and level of economic advantage. 5. Discuss the historical and political context of contemporary health disparities, including their roots in discriminatory systems and policies. 6. Describe the interrelationships among a range of economic and social factors that result in inadequate access to quality care. 7. Describe characteristics of healthcare systems and policies that inhibit the provision of high-quality, culturally sensitive care. 8. Discuss ethical challenges for the social worker related to practicing in an environment that is structured in a way that promotes unequal access to and quality of care. 9. Evaluate a range of policy and intervention solutions that have been proposed in order to address and resolve health disparities. 10. Articulate strategies for the exercise of leadership and advocacy in successfully addressing health disparities. 1 TEACHING METHODS: This course will stimulate new ideas and insights related to health disparities and policy. During the course, students will agree and disagree with course content. Respectful discussion and debate is strongly encouraged. Students should feel free to relate the readings to broader policy, intervention, prevention, treatment, and systemic factors previously discussed and from experience in the field. Each session will include a combination of lecture, discussions, and classroom exercises. As the semester progresses, there will be allotted time for group and individual consultation to prepare for the final assignment. Depending on the week, guest speakers will be invited for a portion of the class to discuss relevant content. Adult learning methods will be utilized. Therefore, students are expected to complete all assigned readings before each class begins so they can contribute to discussion in meaningful ways. Not every article will be discussed in elaborate detail but should serve as a background for which the class topic is based. All students are expected to attend classes, participate in class discussion and activities, and make connections to class content in field and community contexts. POLICY FOR ACCOMMODATIONS FOR STUDENTS WITH DISABILITIES: Students with disabilities that affect their participation in the course and who wish to have special accommodations should contact the University’s Disabilities Services (http://disabilityservices.unc.edu) and provide documentation of their disability. Students should discuss the specific accommodations they require directly with the instructor. APA FORMATTING: Students are expected to correctly cite all of your material following the 5 th ed. of the APA manual. If you are not familiar with this style, please refer to the APA manual and/or the School’s Writing Resources Page: (http://ssw.unc.edu/students/writing). This link provides access to an array of resources including the newly updated “APA Quick Reference Guide.” You may also schedule an appointment with the SSW Writing Support Team: Diane Wyant, (dwyant@email.unc.edu) or Susan White, (sewhite@email.unc.edu). POLICY ON ACADEMIC DISHONESTY: Please refer to the APA Style Guide, The SSW Manual, and the SSW Writing Guide for information on attribution of quotes, plagiarism and appropriate use of assistance in preparing assignments. All written assignments should contain a signed pledge stating: "I have not given or received unauthorized aid in preparing this written work". In keeping with the UNC Honor Code, if reason exists to believe that academic dishonesty has occurred, a referral will be made to the Office of the Student Attorney General for investigation and further action as required. TEXTBOOKS AND OTHER READINGS: There is no required text for this course. All readings will be accessible through the UNC library system (http://www.lib.unc.edu/index.html?searchtab=ejournals) or posted on Sakai. If a reading has not uploaded or the link is broken please notify the instructor as soon as possible. 2 GRADING SYSTEM: H = 94 and above P = 80 to 93 L = 70 to 79 F = 69 and below ATTENDANCE AND PARTICIPATION: Student attendance at all class sessions is expected. If you will not be able to attend a class, notify the instructor as soon as possible. It is your responsibility to obtain handouts and information about class content from your classmates if you are unable to attend a class. In order to fully participate in and benefit from each session, students must complete required readings and come to class prepared and on time. Student who miss 2 or more classes without seeking permission from the instructor, or who are continually late, will receive an “L” grade. LATE ASSIGNMENTS: Late assignments are strongly discouraged. To obtain permission to submit an assignment after the deadline, the student must seek approval from the instructor before the due date. If permission for late submission is not granted before breaking a deadline, the grade will automatically be reduced 10% each day, including weekends. In case of an emergency, a late paper may be accepted without penalty at the discretion of the instructor. Avoid having last minute computer failures prevent you from turning papers in on time. Plan ahead! CELL PHONE POLICY: Cell phones are a disruption to the learning process. Please turn off cell phones during class. Requirement COURSE REQUIREMENTS OVERVIEW: % of Grade Class Participation Reading Questions Reading Summary Memo Reflection Midterm: Health Disparity Outline Final Health Disparity Presentation 10 points 10 points 10 points 10 points 30 points 30 points Date/Due Date Ongoing 2 days before session 2 days before session Week 6 or Week 11 Week 8 Weeks 14 & 15 3 COURSE OVERVIEW: 1/10/12 1/17/12 1/24/12 1/31/12 2/7/12 2/14/12 2/21/12 2/28/12 3/6/12 3/13/12 3/20/12 3/27/12 4/3/12 4/10/12 4/17/12 Class 1: Introduction and course overview; why study health disparities? Class 2: Patterns and causes of health disparities—past and present Class 3: Pattern and causes of health disparities (cont.) Class 4: Frameworks and theories to understand racism and health disparities Class 5: Overview of Healthcare in the U.S.—How system is financed and policies Class 6: Health care in the U.S. (cont.); health care reform, access to health Class 7: Health care disparities in developing countries ** Guest Speaker** Class 8: Examples and interventions of community approaches to improve health SPRING BREAK Class 9: How immigration, acculturation and national origin influence health Class 10: Substance abuse and mental health disparities ** Guest Speaker** Class 11: The role of social workers in advocacy and addressing health disparities Class 12: Interventions to Reduce Disparities in an Age of Scarce Resources Class 13: Final presentations Class 14: Final presentations and class wrap up COURSE READINGS AND COURSE OUTLINE: JAN 10, 2012 Week 1: Introduction and course overview; why study health disparities? 1. Introductions and course overview 2. Introduction to health disparities in diagnosis, prognosis, and health outcomes Readings: Healthy People 2010. A Systematic Approach to Health Improvement. Available on Sakai. (*Focus on pages 11-26). Epstein, H. (2003, October 12). Ghetto Miasma; Enough to make you sick? The New York Times. Available: http://www.nytimes.com/2003/10/12/magazine/ghettomiasma-enough-to-make-you-sick.html?pagewanted=all&src=pm Braithwaite, K. (2008). Health is a human right, right? American Journal of Public Health, 98, 5-7. Recommended: Krieger, N. (2001). A glossary for social epidemiology. Journal of Epidemiology and Community Health, 55, 693-700. JAN 17, 2012 Week 2: Patterns and causes of health disparities—past and present 1. Background and history of disparities in healthcare 2. Patterns and causes of health disparities 3. Inequalities in healthcare access and utilization of services 4 Readings: Link, B.G & Phelan, J.C. (2006). Fundamental Sources of Health Inequalities. In Mechanic, D., Rogurt, L.B., Colby, D.C. & Knickman, J.R. (Eds.), Policy Changes in Modern Health Care (71-84). New Brunswick: Rutgers University Press. Williams, D.R. (2006). Patterns & Causes of Disparities. In Mechanic, D., Rogurt, L.B., Colby, D.C. & Knickman, J.R. (Eds.), Policy Changes in Modern Health Care (115134). New Brunswick: Rutgers University Press. Moniz, C. (2010). Social work and the social determinants of health perspective: A good fit. Health & Social Work, 35(4): 310-313. Recommended: Drexler, M. (March 3, 2005). Spreading the health: Government's role in addressing health disparities. Harvard School of Public Health Symposium Series 2005: Health Disparities & the Body Politic. Available: http://134.174.190.199/disparities/book/HealthDisparities.pdf (Focus on p.11-24) JAN 24, 2012 Week 3: Pattern and causes of health disparities (cont.): SES, employment and neighborhood 1. Patterns and causes of health disparities (cont.) 2. SES, neighborhood, employment and other factors related to health inequality 3. Video: Is inequality making us sick? Place Matters (view in class) Readings: Williams, D.R., & Jackson, B.P., (2005). Social sources of racial disparities in health. Health Affairs, 24(2): 325-334, doi: 10.1377/hlthaff.24.2.325. Moore, L.V., Diez Roux, A. (2006). Associations of neighborhood characteristics with the location and type of food stores .American Journal of Public Health, 96(2): 325-331. Kwate, N.O. (2008). Fried chicken and fresh apples: Racial segregation as a fundamental cause of fast food density in black neighborhoods. Health & Place,14;32-44. Recommended: The John D. and Catherine T. MacArthur Foundation Research Network on Socio-economic Status and Health (2008). Reaching for a healthier life: Facts on Socio-economic status and health in the U.S. Available on Sakai. 5 JAN 31, 2012 Week 4: Frameworks and theories to understand racism and health disparities 1. Individual risk factors vs. social conditions 2. Lifecourse health development theory (LCHD) 3. Historical trauma and population health Readings: Krieger, N. (2001). Theories for social epidemiology in the 21st century: An eco-social perspective. International Journal of Epidemiology, 30,(4) 668-677. Jones, C.P. (2000). Levels of Racism: A Theoretic Framework and a Gardener’s Tale. American Journal of Public Health, 90(8), 1212-1215. Halfon, N. (2009). Life Course Health Development: A New Approach for Addressing Upstream Determinants of Health and Spending. Policy Brief (Available on Sakai). FEB 7, 2012 WEEK 5: Overview of Healthcare in the U.S.—How the system is financed and related policies 1. 2. 3. 4. Federal health agencies Federal financing of health care in the US Private sector health care and reform Role of social workers in health care settings Readings: Barusch, A.S. (2012). Health: Chapter 6. In A.S., Foundations of social welfare policy: Social justice in human perspective (164-203). Belmont, CA: Brooks/Cole, Cengage Learning. Horton, S. (2006). The double burden on safety net providers: Placing health disparities in the context of the privatization of health care in the US. Social Science & Medicine, 63(10), 2702-2714. Kaiser Family Foundation (2005). Medicare and Medicaid at 40: Key Medicare and Medicaid Statistics, Available at: http://www.kff.org/medicaid/40years.cfm Recommended: Holahan, J., & Garrett, B. (2009). Rising Unemployment, Medicaid and the Uninsured: January 2009. Available at: http://www.kff.org/uninsured/upload/7850.pdf 6 FEB 14, 2012 WEEK 6: Overview of Healthcare in the U.S (cont.); Improving access to quality health care Reflection due today or week 11 1. Ideological and cultural issues to tackle 2. Brief history of health Insurance in the U.S. 3. Health reform and role of social work Readings: Golden, R.L. (2011). Coordination, integration, and collaboration: A clear path for social work in health care reform. Health & Social Work, 36(3): 227-228. Zabora, J.R. (2011). How can social work affect health care reform? Health & Social Work, 36(3): 231-232. Ofosu, A. (2011). Implications of health care reform. Health & Social Work, 36(3): 229230. Kaiser Family Foundation (2009). National health insurance—a brief history of reform efforts in the U.S. Available: http://www.kff.org/healthreform/upload/7871.pdf Kaiser Family Foundation (2009). Massachusetts Health Care Reform: Three Years Later. Available: http://www.kff.org/uninsured/upload/7777-02.pdf Recommended: Mackey, J. (August 11, 2009). Op-Ed: The Whole Foods Alternative to Obamacare. Wall Street Journal: http://online.wsj.com/article/SB10001424052970204251404574342170072865070.html FEB 21, 2012 WEEK 7: Health Care Disparities in Developing Countries 1. Global health inequality 2. Structural approaches to reducing health disparities 3. Guest Lecturer: Kumi Smith, MPH Gill, B. ,& Oakie, S. (2007). China and HIV -- A Window of Opportunity. New England Journal of Medicine, 356(18): 1801-1805. Rennie, S., & Behets, F. (2006). Desperately Seeking Targets: The Ethics of Routine HIV Testing in Low-Income Countries. WHO Bulletin, 84(1): 52-57. Garrett, L. (2007). The Challenge of Global Health. Foreign Affairs, 2007. 86(1):14-38. Foreign Affairs Roundtable Discussion. Available at: http://www.foreignaffairs.com/discussions/roundtables/how-to-promote-global-health 7 FEB 28, 2012 WEEK 8: Examples and interventions of community based approaches to improve health Midterm outline due 1. Impact of social injustice on the health of marginalized populations 2. Addressing racial inequality in healthcare through civil rights 3. Group work on health disparities presentation Readings: Gehlert, S., Coleman, R. (2010). Using community-based participatory research to ameliorate cancer disparities. Health & Social Work, 35(4): 302-309. Gamble, V. N. (1997). Under the shadow of Tuskegee: African Americans and health care. American Journal of Public Health, 87, 1773-8. Isaac, E., Rowland, M., & Blackwell, L. (2007). Fighting health disparities: The Educational role of the African American church. Cross Currents, 57(2), 261-265. Wiechelt, S.A., Gryczynski, J., Jeannette, L., (2009). Designing HIV prevention interventions for urban American Indians: Evolutions of the ‘Don’t Forget Us’ program. Health & Social Work, 34(4): 301-304. MAR 6, 2012 : NO CLASS, ENJOY YOUR SPRING BREAK MAR 13, 2012 WEEK 9: How immigration, acculturation and national origin influence health 1. 2. 3. 4. Effects of immigration and acculturation on health The Latino Health Paradox Case example: Latino injection drug users Video: Unnatural Causes-- Becoming American (view in class) Readings: DeRose, K. P., Escarce, J. J., & Lurie, N. (2007). Immigrants & health care: Sources of vulnerability. Health Affairs, 26(5), 1258-1268. Zambrana, R.E., Carter-Pokras, O. (2010) Role of acculturation research in advancing science and practice in reducing health care disparities among Latinos. American Journal of Public Health, 100(1), 18-23. Galarneau, C. (2011). Still Missing: Undocumented immigrants in health care reform. Journal of Health Care for the Poor and Underserved, 22: 422–428. Recommended: 8 Vega, W.A., & Amaro, H. Latino outlook: Good health, uncertain Prognosis. (2002). In T.A. LaVeist (Ed.), Race, Ethnicity, and Health—A public health reader (47-75). San Francisco: Jossey-Bass. Sherrill, W., Crew, L., Mayo, R., Mayo, W., Rogers, B., & Haynes, D. (2005). Educational and health services innovation to improve care for rural Hispanic communities in the US. Education for Health: Change in Learning & Practice, 18(3), 356-367. MAR 20, 2012 WEEK 10: Substance abuse and mental health disparities 1. Substance abuse and mental health disparities among racial/ethnic groups 2. Treatment and interventions tailored towards minority and vulnerable populations 3. Guest Speakers TBD. Readings: Mechanic, D. (2007). Mental health services then and now. Health Affairs, 26(6): 15481550. Barry, C.L. & Huskamp, H.A., (2011). Moving beyond Parity: Mental health and addiction care under the Affordable Care Act. New England Journal of Medicine; 365: 973975. Wells, K., Klap, R., Koike, A., & Sherbourne, C. (2001). Ethnic disparities in unmet need for alcoholism, drug abuse, and mental health care. American Journal of Psychiatry, 158: 2027-2032. McGuire, T.G., & Miranda, J. (2008). New evidence regarding racial and ethnic disparities in mental health: Policy Implications. Health Affairs, 27(2): 393-403. doi: 10.1377/hlthaff.27.2.393 MAR 27, 2012 WEEK 11: The role of social workers in advocacy and addressing health disparities Reflection due today if you did not hand it in week 6 1. Role of social work profession in addressing health disparities and improving access 2. Policy practice and legislative action 3. Advocacy Readings: Poindexter, C.C. (1999). Promises in the Plague: The Ryan White CARE Act as a Case Study for Legislative Action. Health and Social Work, 24, 35-41. Altpeter, M., Mitchell, J.F. & Pennell, J. (2005). Advancing Social Workers' 9 Responsiveness to Health Disparities: The Case of Breast Cancer Screening. Health and Social Work, 30(3), 221-232. Praxis Project (2005). Advocating for Better Policies. Available: http://www.unnaturalcauses.org/assets/uploads/file/UC_PolicyAdvocacy.pdf (*This will be a helpful tool to consider as you plan your final presentation). Recommended: Shaw-Ridley, M., & Ridley, C.R. (2010). The health disparities industry: Is it an ethical conundrum? Health Promotion & Practice,11: 454-464. Wallack, L. (2002). Public health, social change, and media advovacy. Social Marketing Quarterly, 8(2): 25-31. McDonough-Figueira, J. (1993). Policy Practice: The Neglected Side of Social Work Intervention. Social Work, 38(2),179-188, Gamble, V., & Stone, D. (2006). U.S. policy on health inequities: the interplay of politics and research. Journal of Health Politics, Policy & Law, 31(1), 93-126. APR 3, 2012 WEEK 12: Interventions to Reduce Disparities in an Age of Scarce Resources 1. Policy intervention efforts to address health disparities 2. Case examples: tobacco policy, obesity epidemic, and HIV/AIDS in the U.S. Readings: Warner, K.E. (2006). Tabacco Policy in the U.S.: Lessons for the Obesity Epidemic. In Mechanic, D., Rogurt, L.B., Colby, D.C. & Knickman, J.R. (Eds.), Policy Changes in Modern Health Care (99-114). New Brunswick: Rutgers University Press. MacMaster, S.A., Vail, K.A., & Neff, J.A. (2002). The Xchange point: A drop-in center for African American active injection drug users. Health & Social Work, 27(3):227231. Marlatt, A.G., & Witkiewitz, K. (2010). Update on harm-reduction policy and intervention research. Available at: http://dionysus.psych.wisc.edu/lit/Articles/Marlatt2010a.pdf APR 10, 2012 WEEK 13: Final presentations APR 17, 2012 WEEK 14: Final presentations and class wrap up 10 SOW0 836, HEALTH ACCESS & DISPARITIES CLASS ASSIGNMENTS: CLASS PARTICIPATION: (10 POINTS) All students are expected to complete the readings and to actively participate in class discussions. If you do not feel comfortable speaking in class, you may also email me a three one-page reflection papers by week 13. READING QUESTIONS: (10 POINTS) Due: 2 days before class session that reading was assigned Each student will pick one article from class and be responsible for critically analyzing the text to develop 2-3 discussion questions based on the reading. These questions will be used to supplement lecture and stimulate class discussion. Questions are due to the instructor 2 days before the class session. Students are expected to contribute to the class discussion based on their critical analysis of the article they reviewed. READING SUMMARY MEMO: (10 POINTS) Due: 2 days before class session that reading was assigned In addition to preparing discussion questions, each student is responsible for submitting a one page memo outlining the main points of the article. Do not get lost in details or statistics; Instead, ask yourself “what are the main points” to take away from this reading? Why does this reading matter? Please include the title and authors on your memo and submit this to your instructor 2 days before the class session so it can be uploaded to Sakai for your classmates. REFLECTION PAPER (10 POINTS) Due: Week 6, February 14, 2012 or Week 11, March 27, 2012 Students will complete 1 writing reflection assignments due either at the beginning of week 6 or 11. Students can explore any topic of interest that relates to course content from any of the class sessions. Reflection papers should be 2-3 pages (not including reference page) and needs to demonstrate student’s ability to think critically about health policy information in a variety of contexts. Students may want to consider the following kinds of issues: What are the main health issues and related policies under discussion? Do you agree or disagree with a perspective or theory as discussed in class? Explain. Are you aware of health disparities in your own community, professional setting? What additional questions or issues did a reading or film from class bring up for you? What are the cultural and/or ethical considerations for the policy under discussion? What are the implications for social work practice given class content? Discuss biases/flaws or a model to be emulated to reduce health disparities that you are aware of from previous work experiences. Let these points serve as ideas to get your reflection started; not every point needs to be addressed. Reflections do not require extensive outside literature or research. Think of this as a critical reflection that synthesizes material in your own thoughts. Do not summarize an article for me, analyze it and explain how it is informed by your understanding of these issues. 11 MIDTERM HEALTH DISPARITY OUTLINE: (30 POINTS) Due: Week 8, February 28, 2012 The written component of this assignment will include a 7-10 page outline (not including references) that addresses: Topic and prevalence of issue: who is affected and what comparison data can you offer to highlight this health disparity? Learning objectives for the presentation at the end of the semester What are some theories or explanations as to why this disparity exists? Describe how an existing or proposed policy addresses or exacerbates the problem; what are the underlying assumptions of the policy? What if any, has been the role of social work? Why this topic is relevant to social work and social justice. The midterm assignment will serve as a starting point to get your final health disparity presentation organized. Outlines should provide the context for your topic, you should provide a through and critical literature review with a synthesis of data highlighting the issues. The assignment should explore possible pathways by which race, ethnicity, class, gender or any other variable discussed in class, have resulted in disparate health outcomes among the population of the given disease. All references need to be included in APA format and do not count toward the 7-10 page limit. This could be handed in as a DETAILED outline, or essay format, whichever the group prefers. Your instructor is available for group consultation before the due date. Note: the final assignment will focus more closely on specific actions (e.g. advocacy activities, research, legislative change, organizational modification, etc.) that can be taken to improve the quality of care provided to underserved or poorly served populations. Your midterm assignment is the groundwork which will lead to more action/change oriented steps. 12 FINAL HEALTH DISPARITY GROUPS: (30 POINTS) Each group is responsible for designing an informative 20-25 minute presentation that describes a health disparity, the population affected, and the impact of local, state and/or federal policy on mitigating or exacerbating health equity. This presentation should offer a thorough and thoughtful analysis of the policy(ies) impacting health disparities and access to health. Your presentation should include the following components: a. What are the main health issues and related policies under discussion? (i.e., Ryan White Care Act on HIV/AIDS on the treatment of HIV in communities of color; Federal ban on funding for syringe exchange programming and HPC prevalence; Rates of obesity and food stamp utilization; asthma and housing policy. b. Describe the prevalence and underlying causes of the problem (i.e., institutionalized racism, lack of insurance, environmental and/or structural barriers). In other words, who is affected most? How and why does this happen? c. Describe how an existing or proposed policy addresses or exacerbates the problem. What are the underlying assumptions of the policy? d. Review empirical research (peer-reviewed journal articles) about the effectiveness of the policy. What does the research say about the strengths and limitations of the policy in addressing the problem? e. Include specific recommendations to improve the health disparity under discussion and the level of change (micro, mezzo, macro); organizational change. The Praxis reading from week 11 can help you think through a specific advocacy plan. 13