2013 - 2014 Quality Account “This place isn’t somewhere to come and die, it’s somewhere to come and live.” Comment from a Day Care guest quoted in the Care Quality Commission report published in March 2014. Reporting period: 1st April 2013 - 31st March 2014 Contents Chief Executive’s Statement Page 2 Part 1 - What we achieved in 2013 - 2014 Page 3 Part 2 - Mandated Statements Page 6 Part 3 - Quality Overview Page 13 Part 4 - Priorities 2014 - 2015 Page 17 NHS Southern Derbyshire Clinical Commissioning Group (CCG) Statement Page 20 1 Chief Executive’s Statement As a provider of NHS healthcare, Treetops Hospice is required to produce an annual Quality Account that reports and demonstrates to the public how we measure the quality of services we provide, and how we involve patients, carers and NHS health professionals in the evaluation of this process. Quality sits at the centre of all that the hospice provides and we strive year on year to develop and improve what we offer to people within the community who access our services. We were delighted that the quality of our services was acknowledged in a very positive report from the Care Quality Commission following an unannounced inspection, where no shortfalls were identified. This, once again, demonstrates the hard work, dedication and commitment of each member of staff. It is the staff and volunteers who make Treetops Hospice a safe, secure and happy place for all. I am responsible for the preparation and contents of this report and to the best of my knowledge the information reported in this Quality Account is an accurate and fair representation of Clinical Services provided by Treetops Hospice. Our corporate and clinical governance structure ensures that we have both the systems and processes in place to maintain a viable and responsible business, whilst ensuring that our services are of the highest quality and meet the aspirations of our mission statement: - “Where every day counts.” George Cameron Chief Executive May 2014 2 Part 1: What we achieved in 2013 - 2014 The Day Care unit had an unannounced inspection by the Care Quality Commission (CQC) in January 2014. The inspection report is available on the CQC website and confirms that Treetops Hospice met all the assessed standards, as described in the Guidance about compliance: Essential standards of Quality and Safety. In 2013 we produced our second five year rolling strategy where we identified both planned development of service provision and improvement priorities. 1. Review of the Day Care unit The number of patients attending Day Care increased from 224 to 240. The current Day Care patient notes documentation was reviewed in order to eliminate duplication of information and significantly increase the amount of measurable data for audit purposes. Identified target To introduce three additional activities into the Day Care experience. During the year, the team introduced gardening and armchair exercises which have proved very popular. Pets as Therapy dogs have been introduced to the Day Care unit on three days each week which the guests find very enjoyable. One guest said “Because of my condition I can’t have a dog and I have always had dogs.” The team have also introduced themed weeks e.g. during the summer when the theme chosen was a day at the seaside. The creative worker and her volunteer team worked with the guests to produce decorations and posters, fish and chips were served wrapped in newspaper for lunch and overall the guests and all that were involved created a real buzz in the unit. 2. Hospice at Home A total of 4,219 home visits were provided over the year. Of these, 30% of visits were made by Registered Nurses and 70% by Health Care Assistants, maintaining the skill mix at 30:70. Identified targets To increase the number of hours of care provided from 29,000 hours to 30,000 hours To increase the number of patients cared for from 650 to 700 Both these target were achieved, providing 30,000 hours of care to 711 patients. 3 3. Nursing team development programme Our two Royal College of Nursing (RCN) learning representatives delivered an excellent educational/support programme for the team which has been well attended and received. Identified target To increase the number of sessions offered from six to eight and introduce three more core competencies During the year, eight sessions were offered and the following six core competencies were covered:Equality and diversity Communication Tissue viability at the end of life End of life care for non-malignant conditions Documentation – DNACPR and End of Life Care Pathways End of life care in neurological conditions 4. Bereavement Service The total number of clients supported by the service rose from to 242 to 334, an increase of 38%. During the year, the Adult, and Children and Families Bereavement services amalgamated which has allowed them to utilise counsellors and support workers more flexibly and effectively. The appointment of a part-time Bereavement Service administrator has had a huge impact on the operation, relieving the manager and the two counsellors of a large amount of clerical work. During the year, the bereavement team has increased from 25 to 37 volunteers (27 Treetops trained volunteers and 10 volunteer counsellors). They have also introduced a Student Placement Service where students in their final year of a recognised counselling qualification are given an opportunity to work with clients. In return, they give Treetops a commitment to stay with the service for a minimum of two years and receive continuous training, mentorship and supervision. There are now 10 students working within the department, bringing the total number of volunteers to 47. 5. A new Clinical Support Centre The successful application to the Department of Health for funding has allowed a NEW Clinical Support Centre to be built in the hospice grounds, which is due for completion in June 2014. 4 6. External Education programme During the year we facilitated our third very successful study day for health professionals on Motor Neurone Disease funded by Derbyshire Workforce Development. The day was supported by Nottingham University Hospitals NHS Trust, Derby Hospitals NHS Foundation Trust, Southern Derbyshire and Nottingham West CCGs and the Motor Neurone Disease Association. The day included an overview of the disease and such subjects as bulbar weakness, respiratory issues and end of life care planning, each delivered by an expert clinician in the field. Sixty-two delegates attended, including community nurses, physiotherapists, speech and language therapists and palliative care specialist nurses. The day was extremely well evaluated by the attendees and some of their comments are reported below. “Emotional, thought provoking and educational” “Highlighted the complexity of this disease and the importance of MDT working with regards to its management” “When each speaker was presenting you could hear a pin drop – this says it all” “Emotional day but wonderful how much passion and care is out there” We also secured funding to continue our successful series of courses for bands 1- 4 staff in hospitals, community and nursing homes on palliative care, practical care of MND patients and bereavement and loss. In addition to this, Southern Derbyshire CCG commissioned us to provide End of Life training to staff in residential homes. 7. Partnership working The Director of Clinical Services is an active member of the Southern Derbyshire End of Life group. The remit of the group is to ensure that equitable care of the highest possible standard is available to the community they serve. To achieve this goal it is established that communication and partnership working across both health and social care providers is co-ordinated and understood by all providers. A recent example of the group’s work was the identification of a small cohort of patients who had died within 72 hours of hospital admission, and then examining the circumstances around these admissions to identify any strategies that may have achieved a better outcome. 5 Part 2: Mandated Statements Statements of assurance from the board Within a submitted Quality Account, all providers must include the following statements, despite some of them not being applicable to hospice services. Review of services From 1st April 2013 to 31st March 2014, Treetops Hospice provided the following services to three CCGs in Derbyshire and four CCGs in Nottinghamshire: Day Care Hospice at Home An additional service has been provided to the three Derbyshire CCGs: Bereavement Support Treetops Hospice raises 67% of the funding for these services through retail outlets, lottery and fundraising. The remaining 33% comes from the NHS via the above CCGs through cost and volume contracts. Clinical Services are governed by the Clinical sub-committee of the Board of Trustees, who meet quarterly and receive service reports which enable them to review the management and quality of care provided by all services. The reports are then submitted to the whole Board of Trustees at their meetings. Participation in clinical audits During 2013 – 2014, Treetops Hospice did not participate in any national clinical audit or national confidential enquiries. Research During 2013 – 2014, the hospice was not involved in any research projects. NHS Quality Improvement and Innovation Goals Treetops Hospice has quality requirements set by the commissioning CCGs All quality requirements for 2013 - 2014 were met: Enhancing the quality of life for people with long term conditions Ensuring that people have a positive experience of care 6 Treating and caring for people in a safe environment and protecting them from avoidable harm CQUIN requirements were met: To achieve objectives as set in the End Of Life implementation plan (copy available) To improve carer satisfaction – see carer evaluation 7 What others say about us Care Quality Commission Treetops Hospice is registered with and regulated by the Care Quality Commission in accordance with the Health & Social Care Act 2008. Our most recent inspection report dated 8thJanuary 2014 is available on the CQC website and finds us meeting the standard in all five core criteria inspected. Below are some of the comments that were included in the summary: The staff are friendly and treat patients with dignity and respect. The staff encourage patients to be as independent as possible and patients are involved in decisions about their care and support. The establishment is clean and there were no concerns regarding prevention and control of infection. The staff are well trained and motivated and have the skills to deliver care that meets the patients’ needs. The hospice has appropriate systems in place to monitor the quality and safety of the service and people who use the service have the opportunity to give feedback about their experience. Day Care Service Service user evaluations Due to the constantly changing client group, our Day Care service is surveyed bi-monthly on a rolling questionnaire programme to ensure that we capture more patients’ views and are able to be pro-active in our response to suggestions or concerns. Areas surveyed are:: Before you got to Treetops Hospice Day Care Your journey to Treetops Hospice Day Care and your first day Relationships with staff and volunteers Dignity and Safety Your care Catering Transport Activities 8 “Coming to Treetops changed my life. All I have to say is praise for such a wonderful place”. “I enjoy very much coming. It’s kept me going”. “I’ve felt a lot better since I’ve been coming here – more happier in myself”. “Just a perfect place and time to be - everything is good. You feel so safe here and nothing is too much of a problem”. Guests’ Voice (Day Care Patient questionnaire) Hospice at Home service Referring professionals’ evaluation Each year we send out a service evaluation to referring health professionals. Of the 29 health professionals who returned the evaluation last year: 100% said that that the Treetops Hospice at Home nurse co-ordinators are very helpful. 93% said the patients and carers were satisfied with our care. 96.5% said that our service was reliable. 89.5% reported that our service helped to prevent or delay hospital admission. “As a professional I have had excellent and appropriate support from the Hospice at Home co-ordinators with good feedback, when appropriate, regarding the patient’s condition”. “Your service has been invaluable and has assisted patients/carers/families to have quality of life during the last few months of their progressive illness, allowing dignity, and supporting other health professionals” From referring professionals evaluations 9 Carer Evaluation Each year we send out a service evaluation to the carers of (1 in 4) patients who died in our care during the year. These are measured against the same questions from the previous year. Percentage of carers who responded positively to the questions: Was the referral to the service timely? Was the amount of care provided sufficient? Were you at ease about the way we cared for your loved ones? Did our nurses take time to listen to your concerns? Did the service enable you to care for your loved ones at home? 2012 - 13 2013 - 14 94% 97% 82% 90% 100% 100% 97% 98.5% 100% 100% “All the nurses came on time, were compassionate in dealing with my husband and took time to listen to me regarding his care and also how I felt at the time.” “The care provided was outstanding. Your nurse, who was in attendance when my husband passed away, was caring, compassionate and really did make such a terrible time a little easier. The dignity she allowed him was second to none.” “Always sensitive and extremely helpful, they made us feel reassured that we were doing the right thing in caring for our family member at home.” “We could not have coped without your help, so generously given and compassionate at all times.” “I was very surprised to learn how knowledgeable your staff were. It helped me no end to get through that terrible time.” “When we needed help you were there - a professional, caring, nursing service who truly listened to our needs.” Carer evaluations 10 Bereavement Service All clients who finish receiving support during the year are asked to complete an evaluation of their experience. Adults Of the 42 adults who returned the forms: 95% said that the support had made their experience of bereavement more bearable. 98% said they were satisfied with the service provided. 100% said they would recommend the service to other people. 86% said the support was offered at just the right time. “Thank you for helping me through this terrible time in my life, without you I would still be struggling to make any sense of it all.” “The service was a lifeline for me when I was at my lowest ebb. It was offered to me in a friendly, caring environment with a support worker who was kind, caring, supportive and knowledgeable.” “Every session (although not easy) was useful and very worth having. I now feel like a different person.” Adult Bereavement evaluations Parents/Carers Of the 16 parents/carers who returned the forms: 94% were happy or very happy with the speed of response to the referral. 75% reported a decrease in their level of concern about their child after the support had finished. 88% were happy or very happy with the extent to which the support had addressed their child’s bereavement needs. 100% would recommend the service to other people. 11 “I was extremely concerned about my daughter as the bereavement altered her character and personality. The difference in just a few weeks was positive and I cannot thank your service enough.” “I have noticed a positive change in my daughter. I feel that by contacting you I have given her the extra support she needed at the time she needed it.” Parent or Carer evaluations Children/Young People Of the 14 children who returned the forms: 86% reported an improvement in their feelings after the support. 64% said the sessions had helped them. 29% were not sure if the sessions had helped them. 93% said they would recommend the service to other people. “I just would like to say a big thank you because you made me realise the person I really am. It could of not been any better, I am really happy now.” “It helped a lot and I enjoyed it especially making things for my dad.” Children’s evaluations 12 Part 3: Quality Overview Treetops Hospice submits a National Minimum Data set (MDS) to the National Council for Palliative Care. Comparison with National Minimum Data Sets The most recent available National MDS covers the period 1st April 2012 to 31st March 2013. Treetops Hospice data for 2013 – 2014 have been collated but there are no comparative data available at this time. Day Care Unit MDS data 2013 - 2014 2012 - 2013 Treetops Hospice Treetops Hospice National Median Total number of patients 240 224 228 % Places used 100 92 58 % New patients % New patients with a non-cancer diagnosis % New patients aged over 84 50 48 66 39 39 19 16 22 12 The total number of patients has gone up by 7% and our percentage of new patients has remained at about 50%. Our high occupancy rate (100%) reflects our commitment to making the most effective use of the resource. We have an unusually high percentage of patients with a non-cancer diagnosis (39%) which highlights our dedication to providing care for all palliative conditions. The percentage of patients aged over 84 at time of referral has gone down this year although 43% of new patients were over 75 years old, reflecting the profile of an aging population. 13 Hospice at Home MDS data 2013 - 2014 2012 - 2013 Treetops Hospice Treetops Hospice National Median Total number of patients 711 652 572 % New patients % New patients with a non-cancer diagnosis % New patients aged over 84 87 92 87 23 27 16 26 27 20 % Home deaths 82 82 64 The percentage of patients aged over 84 at referral has remained high, corresponding to the demographics of the general population. The percentage of our Hospice at Home patients who die at home has remained at 82% by comparison with the Office of National Statistics data for all deaths which show that 21.8% of people died at home and 51.5% in hospital. The PRISMA survey of preferences in 2010 showed that 45% of people aged over 75 years would prefer to die at home. (MDS Full Report for the year 2012 - 2013). In addition to this, 79% of our Hospice at Home patients who had a recorded preferred place of care/death achieved their choice. Bereavement Service MDS data 2013 - 2014 2012 - 2013 Treetops Hospice Treetops Hospice National Median Total service users 334 242 184 % New service users under 16 years 18 24 1.7 % New service users 16-24 years 9 6 3 % of deceased with non-cancer diagnosis 41 50 7 Our Bereavement Service is very unusual in Hospice terms as we accept referrals from anyone in the community regardless of any previous association with Treetops Hospice. We also provide bereavement support to children and young people under 18 years old. The impact of this is that our Bereavement Service supports a much larger than average percentage of clients dealing with non-cancer related deaths, including unexpected deaths. This is especially significant in our Children’s Service where 25% of new service users presented with issues related to traumatic death by accident, suicide or murder and a further 25% from unexpected health related deaths such as ruptured aneurysm or heart attack. 14 What our staff says about the organisation For the past four years Treetops Hospice has surveyed their staff by investing in the Help the Hospices Birdsong Hospice staff survey. Following last year’s decline in reported staff confidence in communication within the organisation, the Board of Trustees and the Senior Management Team instigated measures such as improvement of the internal website, providing all remote and retail sites with internet access and email accounts, enhancement of the internal staff and volunteer newsletter and held the first ever Treetops Hospice staff conference in May 2013. The effect on staff response has been marked and is shown below. Treetops staff % response to communication statements 2011 2013 92 100 80 2012 69 67 61 62 60 60 42 40 42 38 20 0 I feel well informed about Communication between Senior management are well what is happening within the different teams/departments informed about what other charity is effective staff think and do As in previous years, our results as measured against other hospices were very encouraging with the comparison for the same statements shown below. Hospices responses to communicaton statements Treetops Hospice 100 90 80 70 60 50 40 30 20 10 0 All hospices 92 66 67 60 36 38 I feel well informed about Communication between Senior management are well what is happening within the different teams/departments informed about what other charity is effective staff think and do 15 Complaints and compliments Complaints During 2013 – 2014 we received no clinical service complaints. Compliments In addition to the positive evaluations of our services, we also received 114 individual cards and letters of thanks during the year and 80% of our in memoriam donations came from the families and carers of those who were cared for by our services. “I would like to thank you all for your care and compassion which you gave to my wife. She loved coming to Treetops.” “The work you do allows families like us to care for our loved ones and keep them at home with us in the most difficult of times. We hope this donation goes a little way to helping you support another family who so desperately needs help like yours.” “A heartfelt thank you to all who looked after our mother, helping to make it possible for her to be in her own home as was her wish.” “We would like to thank your nurses who helped us through our most difficult time with dignity and care. Please accept this donation towards helping others.” “I am so grateful for the assistance of a very professional outfit with wonderful staff. I was in awe of their interpersonal skills. My mother got her wish to die at home, made so much more comfortable by you guys.” Patient Safety Indicators Patient safety is paramount to our Day Care unit and all incidents are reported and logged. We ensure that every incident is assessed, relevant risk assessments reviewed and any wider implications are considered. Number of patient slips, trips and falls Number of falls resulting in fracture 2 0 We have a Health and Safety committee, made up of staff and trustees, who meet quarterly and receive departmental reports. They review and drive forward the health and safety action plan and scrutinise all accidents and incidents in order to identify trends. 16 Part 4: Priorities for 2014 – 2015 1. To open the new Clinical Support Centre that will be known as the Cheetham Centre in recognition of our founder, Cally Cheetham. Our new Clinical Support Centre has been built in the hospice grounds and will open in June 2014. This will allow Clinical Services to be developed in line with the five year strategy. 2. To develop and enhance Day Care Services A new role of Day Care Services Manager has been introduced that will have wider responsibilities than that of the current Day Care Unit Manager. The main difference will be the added responsibility of the introduction and management of a new Support and Information Service based in the Cheetham Centre. We will be aiming for closer working partnerships with specialist health professionals involved with the care of our client group e. g. heart failure and respiratory nurses, and we will continue to explore the introduction of nurse- led clinics into the Day Care Unit. We will continue to work towards broadening both the psychological and occupational activities offered in Day Care to promote and enhance the guests’ experience. The supportive services of both Complementary and Art Therapies will be reviewed to achieve a more integrated and therapeutic approach. We will also be re-launching our peripatetic Complementary Therapy Service following the recruitment of a new nurse/complementary therapist who will offer treatments in people’s own homes to those who are unable to travel to the hospice. 3. To review Carers’ Support A carers’ development worker has been recruited on a five month temporary contract to explore a much more client-led carers’ service which will look at developing programmes that relate to specific illnesses, symptoms or long term conditions. 4. To develop Hospice at Home Services During the year, the co-ordination team will move into more suitable accommodation in the Cheetham Centre, which includes a private office for such things as making condolence calls, appraisals and 1-1 meetings/supervision. Our aim is to increase Hospice at Home provision to 33,000 hours and continue to consider expansion of the Hospice at Home service into new geographical areas. 17 We intend to map the source of our referrals to the Hospice at Home service against GP practices to identify areas where hospice care at home is not as frequently being accessed. We will then work with community health care professionals to promote the service in these areas. We will also aim to maintain the very high level of service satisfaction reported in our carer evaluations. 5. To continue the nursing team development programme One of our RCN learning representatives is due to leave the organisation mid-year but the remaining nurse educator is keen to continue to develop and support the programme. One of the Day Care HCAs will attend a course to become a certified manual handling trainer to support our existing trainer. A new full time senior staff nurse will be appointed during the year to replace the existing 30 hour post holder who is retiring. He/she will be jointly responsible for the organisational manual handling and infection control training. 6. To develop the Bereavement Service The move into the Cheetham Centre will reinstate the Bereavement Service from its current off-site location to within close proximity to the rest of our clinical services. The stand-alone, sensitively designed centre will provide user-friendly access to support and care which it is hoped will make the visiting experience less intimidating. The new centre will have five counselling rooms for adults and three for children and families. The increased availability of space, which includes two group therapy rooms, will allow far more flexibility e.g. the development of various groups such as people bereaved by suicide, widowed parents, teenage groups etc. It is intended to promote and develop a student placement educational programme which will also be opened to external paying professionals, to create a centre of excellence and learning in relation to bereavement work. Additional students will be recruited on a rolling basis. There is a high demand for placements which allows us to select only the most competent and committed candidates. There is also the scope to recruit and train further volunteers as demand requires although this would have an impact on management and supervision of such a large team. 18 As part of the strategy to increase referrals, we have commenced a programme of approaching agencies such as GP practices and schools that have not accessed our service before. 7. To launch and develop a new Support & Information Service Our most exciting development will be the opening of a NEW Support and Information Service which will be launched in the autumn of 2014, following the appointment of a Clinical Nurse Specialist (CNS) who will be responsible for the project with support from trained volunteers. The service will provide help for those diagnosed with, or affected by, a lifelimiting illness, in making sense of their individual situation. This will include: access to medication and symptom control advice counselling and support a benefits advisory/information service an internet resource and library service 8. Partnership working The Director of Clinical Services will continue as an active member of the Southern Derbyshire End of Life group, with an on-going commitment to improved collaboration and integration of End of Life care. Additionally, with the nationally agreed withdrawal of the use of the term and concept of End of Life care pathways, the director has also been involved in the development of a supportive care plan that can follow a patient on their End of Life journey and promote delivery of high quality care. Gold Standard Framework for hospices During the year, Treetops will be investing in the adoption of a new Gold Standard Framework (GSF) for hospices. Although we recognise that, as an End of Life care provider, we already have many of the skills and practices required to achieve the standard, two senior staff have been tasked to look at ways of improving working practice for our clinical teams. Initially they will conduct surveys to establish a baseline of staff confidence in respect of delivering a gold standard service, thereby identifying areas for training and development. We will also be looking at best practice for co-ordination of care across the wider health and social care community, to promote the standard such that all patients that meet the criteria for GSF are identified, registered and benefit from the full range of Treetops Hospice services. 19 Southern Derbyshire Clinical Commissioning Group Quality Account 2013/2014 Treetops Hospice STATEMENT GENERAL COMMENTS NHS Southern Derbyshire Clinical Commissioning Group (the CCG) is the coordinating commissioner for the NHS contract held with Treetops Hospice. In this role the CCG is responsible for ensuring pre-publication clearance of the Quality Account produced by the Charity for 2013/14. The production of a Quality Account is not currently a mandatory requirement for independent sector providers of NHS funded care but it is considered good practice and Treetops are to be congratulated on the completion of their second quality account. COMMENTARY The Quality Account submitted by Treetops Hospice has been reviewed by the CCG and is pleased to confirm that it agrees with all the contract related data that is stated in the Quality Account. This is the second Quality Account that has been produced by Treetops Hospice which gives a good overview of the year 2013/14, fully reflecting the tremendous amount of work that has been undertaken within the organisation including comprehensive priorities for 2014/15. Treetops have had a notable successful inspection from CQC this year, achieving all the five core standards. This is indicative of a high quality and clinically effective service. The Clinical Support Centre is almost complete and will provide additional support services to patients, staff and the public leading to further improvements in patient experience. Treetops Hospice continue to have an active role in the End of Life Implementation Group to set out a vision for the development of end of life services for the people of Southern Derbyshire and Erewash by working strategically with partner organisations. 20