Quality Account 2013 -14 Mission Statement Teesside Hospice Care Foundation (THCF) is committed to enhancing the quality of life of those suffering from life limiting illness, offering specialist palliative care and support to patients and their carers in the belief that each person is entitled to dignity and choice within the best provision of care. Teesside Hospice 1, Northgate Road, Linthorpe, Middlesbrough, TS5 5NW 1 Registered Charity Number - 512875 We observed the experiences of people who used the service and relatives visiting the unit. We saw that staff interacted and communicated well with people and their relatives and staff were attentive and treated patients with dignity and respect. We saw that the atmosphere was friendly and relaxed. We saw that people had their needs assessed and that care plans were in place. We found there were effective processes in place to ensure safe sharing of information with other providers. We found that people were cared for a clean and safe environment. We saw there was a range of equipment available to support people and we found that systems were in place to monitor the quality of the service”. CQC Inspection Report, January 2014 “Throughout my stay I was impressed by the kindness and concern shown to me by everyone from volunteers, doctors, nurses, etc. I was made to feel very special and that what I thought as a person was always taken into consideration, a big thank you to you all. Patient comment – Inpatient Unit Satisfaction Survey 2013/14 “Absolute confidence in the knowledge that the patient was in the hands of a fully dedicated and professional team who in spite of numerous setbacks just didn’t stop caring or give up. Doctors and nurses were always available to listen, advise and answer my question” Bereaved Carer 2013/14 “I cannot find the words to express how amazing & supportive to my parents, myself and family hospice was during a period of hideous grief and pain the staff were a rock of kindness and allowed our parents to keep their dignity and spirits lifted. “ Bereaved Carer 2013/14 2 PART 1 Statement from Chief Executive Teesside Hospice Care Foundation is committed to delivering the best possible experience for patients and their families. Through the Hospice’s Consultant led multi professional team we aim to provide the highest standard of specialist palliative care we can achieve. In 2013/14 the Board of Trustees reviewed board succession and have clearly identified the skills and expertise required to continue to be a strong dynamic board who can support the senior management team going forward. We have also welcomed four new trustees and have had a change to the chairs position. This Quality Account will hopefully demonstrate the level of commitment we have to deliver, review and improve the quality of the service we provide to patients and their families that access our services. The Care Quality Commission made an unannounced inspection to the Hospice in January 2014. The report on this inspection did not identify any areas where remedial action was required, nor were any recommendations or suggestions made. We commenced a major refurbishment project in December 2013 which has enabled the Hospice to improve and enhance the environment and facilities to fit the changing needs of patients and families. The project has been part funded through a Department of Health Capital Grant scheme and topped up from the Hospice’s financial reserve. The project is expected to be complete at the end of April 2014. The Board of Trustees continues to oversee the corporate governance of the organisation, with various sub committees having trustee representation. Policy review and new documentation is developed with the inclusion of the appropriate management and staff. We receive 35% funding from the NHS but rely heavily on our Trading Company together with the very generous support of local businesses and supporters to make up the remaining 65% of the required funding. Legacy income is not a guaranteed source of income but is needed to ensure the Hospice has vital reserves going forward. In April 2013 we secured a three year contract with our local Clinical Commission Groups to provide a Community Lymphoedema Service for the Tees wide locality. Throughout the year we have seen the number of patients attending this service significantly increase. I would like to thank all staff, volunteers and supporters for their dedication in contributing to make our patients and families have the best experience of palliative we can deliver. To the best of my knowledge the contents of this report are true and accurate. Maureen Thompson Chief Executive 3 PART 2 Looking ahead: Key priorities for improvement for 2014/15 2.1 Introduction Teesside Hospice Care Foundation (THCF) was established in 1982 as a specialist palliative care centre to enhance the quality of life of those suffering from life limiting illnesses. It offers Consultant led specialist palliative care and support to patients and their carers. Our aim is to provide the relief of complex symptoms with regard to physical, social, psychological and spiritual aspects of patient/family care, thus enabling them to return home or to another care environment. The majority of care to patients, families and carers focuses upon pain and symptom control, but we also provide respite admissions for specialist palliative care. An annual patient survey is undertaken and managed by THCF Clinical Audit Group. The outcome of the survey is shared with the Clinical Governance Committee, Council of Management Trustees and summaries of the survey are displayed as posters in each department to inform patients, their families and other visitors to the organisation of the outcome of the survey. A carer support programme is established alongside the Day Care Service and where possible patient and carer views are sought prior to specific changes or service developments. Teesside Hospice is fully compliant with the National Minimum Standards (2002) and has satisfied the Care Quality Commission (CQC) that standards are being met through both self-assessment and an unplanned CQC inspection in January 2014. The CQC inspection was extremely successful and Teesside Hospice was deemed fully compliant. Teesside Hospice monitors the quality of care that is provided across the organisation via its Clinical Governance Committee. The importance of providing quality care is underlined by the membership of the committee which includes the organisations most senior clinicians, the Director of Patient Services and representatives from the Board. Since writing the last quality account, significant re-configurations in the NHS have taken place with the advent of the Clinical Commissioning Groups (CCG). The Hospice’s catchment area is predominately Middlesbrough, Redcar and Cleveland areas however, we are also contracted to provide a specialist community lymphoedema service to patients from the North and South CCG areas. 4 2.2 Improvement Aspirations Aspiration 1 - Patient Safety Why choose it as a priority? To reduce the number of patient falls Why choose this priority? A patient falling is the most common patient safety incident reported to the National Patient Safety Agency (NPSA) from inpatient services. Literature that examines falls in the palliative care setting suggests that fall rates are particularly high in the inpatient palliative care population with rates of approximately 16 falls per 1000 bed days compared to rates of about 4.8 falls per 1000 bed days in acute hospital inpatient populations. Frequently patients will have multiple risk factors for falling and a multifactorial risk factor assessment to identify reversible causes is important in preventing falls. In addition the tendency for the palliative care patients’ condition to change rapidly makes assessment of falls more challenging. Falls have been identified, as a significant problem in the elderly and frail patient populations. Therefore as the number of older adults with cancer increases in the future, the prevention of falls in this population will become even more critical. How will this priority be achieved? In 2008 a small group of people in the UK were brought together at the invitation of Help the Hospices and with the support of the NPSA to create a falls prevention and management toolkit. A group of staff led by the nominated lead person for Manual Handling at THCF have reviewed the process we follow regarding falls. As a result we have introduced an adapted version of the Help the Hospice tool at THCF. This will ensure that an evidence-based and more effective process is followed in the management and prevention of falls in the inpatient unit and day care setting. Furthermore, the THCF group have now revised the Hospice Manual Handling Policy, introduced a comprehensive care plan which identifies key fall risk factors and included the incident report form as part of the process. Throughout this review, the group have been conscious of the need to maximise patients’ mobility and independence through the use of individualised care plans which promote the patients right to independence, privacy, dignity and rehabilitation. 5 How will this priority be measured? A clinical incident report tool is part of the toolkit. This ensures that the circumstances of any fall are described completely and meaningfully in order to analyse and use reports of falls to learn about contributing factors. An audit of the care plan used in each patient that falls will be undertaken to check the individual’s vulnerability in terms of fall risk factors to ensure all risks have been addressed. 6 Aspiration 2 – Clinical Effectiveness To increase accessibility and awareness of the acupuncture service and its benefits to patients in the holistic management of symptoms, within the Day Care and Inpatient services ensuring that the delivery of acupuncture to patients is beneficial and improves their quality of life. Why choose this priority? Patients presenting at Teesside Hospice have multiple physical and mental symptoms, the management of which requires a holistic approach to benefit patients. Acupuncture is a non-drug treatment which offers an alternative therapy for patients without significant side effects, used in conjunction with conventional palliative care treatments. Acupuncture can be used to help relieve symptoms and side-effects of some cancer treatments such as, the management of pain, it has also been used in the treatment of hot flushes, shortness of breath, nausea and vomiting, peripheral neuropathy, fatigue, anxiety, depression, insomnia and dry mouth syndrome with positive results. How will this priority be achieved? This priority will be achieved through the introduction of educational sessions informing medical and nursing staff of its beneficial effects and the treatment options available with acupuncture. The use of two qualified practitioners will offer equity across the Hospice services and increase accessibility for patients. How will this priority be measured? The priority will be measured through the qualified acupuncture therapists assessing and documenting patient’s symptoms and using the MYCaW (Measure Yourself Concerns and Wellbeing) assessment tool to review the effect on patients symptoms and their general well-being. This will be documented within the patient’s notes. An audit will also be undertaken to measure the effectiveness of treatments on symptoms and well-being. Statistical analysis of patient uptake within the Day Care and Inpatient departments will identify if the educational sessions have had an impact on the numbers of patients being referred to the service. 7 Aspiration 3 – Patient Experience To improve the experience of Day Care Patients by introducing a new individualised programme of support Why choose it as a priority? The Commission into the Future of Hospice Care was established by Help the Hospices in 2013 to help providers of hospice care prepare to meet the needs, challenges and opportunities that will present themselves in the future. This report highlights the need for hospices to review their services in order to ensure they are still meeting the needs of the populations that they serve. The Minimum Data Set (MDS) for Specialist Palliative Care Services is a voluntary process whereby activity data is collected by the National Council for Palliative Care (NCPC) on an annual basis. The aim is to provide an accurate picture of hospice and specialist palliative care service activity. Teesside Hospice has contributed to this process for several years. THCF data identified the following changes from previous data: • • • • • A reduction in the number of referrals to the Day Care service An increase in the average length of care A decrease in the number of Day Care patients attending on their allocated day An increase in the number of patients requiring Doctor consultations An increase in numbers of non-cancer patient referrals At Teesside Hospice a meeting was held with the senior clinical team to consider the implications of the report and led us to consider whether we needed to make any changes to our Day Care service model. How will this priority be achieved? It was decided that the first step in the review of THCF Day Care service should be to carry out a series of focus groups, which included patients, external professionals and the Hospice team. This was led by the Clinical Team Leader at THCF. The focus groups were held between November 2013 and January 2014 supported by the Improvement Team at the James Cook University Hospital. The discussions at the three focus groups provided valuable and rich information which was then analysed. Key themes were identified regarding accessibility, programs of support, symptom and lifestyle management. These themes were discussed with the senior team at the Hospice taking account of recent beneficial group work within the Day Care setting. This involved a series of interventions to support patients coping with symptoms such as fatigue, anxiety and breathlessness. The first pilot project will be to introduce a new service running alongside Day Care using a ‘Workshop’ approach for patients in a time limited programme of support from June 2014. 8 How will this priority be measured? The pilot programme will be evaluated from the onset to determine whether it has had an impact and has improved patient’s symptoms. Those involved will be asked for feedback regarding whether they have found the programme beneficial. This will inform any decision to establish this programme as a service offered in Day Care in the future. 9 2.3 Statements of Assurance from the Board - (Formal statements required by the Department of Health) The following are statements under various headings that all providers of NHS healthcare services must include in their Quality Account, even though many of the statements are not directly applicable to Teesside Hospice. a. Review of Services During the reporting period 2013/14 Teesside Hospice provided the following Specialist Palliative Care Services to the NHS: • • • • • Inpatient Unit – 10 beds Day Hospice Services Specialist Lymphoedema Services Medical Out Patient Services Adult and Children’s Bereavement Counselling Service Teesside Hospice has reviewed all the data available to us in terms of the quality of care delivered. Activity data is provided to the Commissioners of these services on a quarterly basis and is reviewed at quarterly meetings with the Commissioner, Chief Executive (CE) and Director of Patient Services (DPS). The income generated by the NHS services reviewed by this quality account represents 35% of the total income generated from the provision of NHS services by Teesside Hospice for 2013/14. This 35% represents only part of the funding required to provide services at Teesside Hospice. The remaining 65% of income is generated through fundraising, charity shops income, lottery activity and investment income and we are dependent on the generosity of the local community in sustaining this income. The NHS contract means that all services delivered by Teesside Hospice are partly funded by the NHS and partly funded from charitable funds. 10 b. Participation in Clinical Audit During 2013/14, there were no national clinical audits and no national confidential enquiries covering NHS services relating to palliative care. Therefore, during that period Teesside Hospice was not eligible to participate in any national clinical audits and national confidential enquiries. c. Research The number of patients receiving NHS services provided by Teesside Hospice in 2013/14 that were recruited during that period to participate in research approved by a research ethics committee was ZERO. There was no appropriate, national, ethically approved research studies in palliative care in which we could participate. d. Commissioning for Quality and Innovation (CQuIN) Payment Framework A proportion of Teesside Hospice’s NHS income in 2013/14 was conditional on achieving quality improvement and innovation goals agreed between Teesside Hospice and the commissioning CCG. The improvement conditions that were agreed were: • NHS Safety Thermometer - collecting data and demonstrating a reduction in the incidence of pressure ulcers, falls and urinary infection in patients with a catheter • Undertaking a local patient experience survey and implementing actions resulting from the survey and including Friends and Family Test in the survey. The two CQuIN measures represent 2.5% of the overall contract value with both being successfully achieved with full payment. e. The Care Quality Commission Teesside Hospice is required to register with the Care Quality Commission and its current registration status is for the following regulated activities: • • • Treatment of disease, disorder or injury Diagnostic and screening procedures Transport services, triage and medical advice provided remotely Teesside Hospice is registered with the following conditions: • • • Services are provided for people over 18 years old The maximum of 10 patients may be accommodated overnight Notification in writing must be provided to the Care Quality Commission at least one month prior to providing treatment or services not detailed in the Statement of Purpose 11 The last unannounced routine inspection of Teesside Hospice took place on 6th January 2014. The report on this inspection did not identify any areas where remedial action was required, nor were any recommendations or suggestions made. Teesside Hospice has not participated in any special reviews or investigations by the Care Quality Commission in 2013/14. f. Data Quality Teesside Hospice did not submit records during 2013/14 to the Secondary Users service for inclusion in the Hospital Episode Statistics which are included in the latest published data. What this means: Teesside Hospice is not eligible to participate in the scheme. g. Information Governance Toolkit attainment levels Teesside Hospice did not participate in the Information Governance Toolkit. However, the Hospice has its own Information Governance Policy / Records Management Policy and Information Sharing Agreement with the James Cook University Hospital. h. Clinical Coding Error Rate Teesside Hospice was not subject to the ‘Payment by Results’ clinical coding audit by the Audit Commission during 2013/14. 12 Part 3 Review of Quality Performance The quality improvements outlined in our first Quality Account (2012/13) have all been satisfactorily achieved, however, in all areas continuous improvement is planned. The Board of Trustees has been in full support of the improvement areas over the past year and has received regular reports on progress. Services users have been consulted with where appropriate. 3.1 Improvement Priority 1 (Patient Safety) To improve the standard of prescribing and administration of medicines to ensure patient safety in medicines management The safe and effective management of medicines is fundamental to the quality of care provided to patients at Teesside Hospice and an important aspect of complex symptom management. The recommendations of the audit of medicines prescribing practice have been achieved and put into practice. These included ensuring that all medical and nursing staff were aware of the results of the audit; amending the Medicines Management Policy to include the additional agreed exceptions to the generic prescribing list and using accepted abbreviations when prescribing medications. This is currently being re-audited. The annual Controlled Drugs (CD) audit was undertaken in November 2013 by the Accountable Officer for Controlled Drugs (Director of Patient Services) and the Inpatient Unit Sister. This audit measures the Hospice compliance in terms of the Misuse of Drugs Regulations (2001), The Health Act (2006) and the Controlled Drugs (Supervision of management and Use) Regulations 2006. Compliance in terms of adequacy of the premises/security; procurement of CD’s; the examination of the stock held and the administration of CD’s was 100%. Some errors were noted in terms of nursing staff following the correct procedure to correct documentation errors and also by the medical staff when changing prescribed doses of CD’s. The results of the audit have been shared with nursing and medical staff as well as to the Clinical Audit Group and Clinical Governance Committee. An action plan has been formulated and implemented to address the areas of non-compliance. The audit will be repeated in 2014. 13 3.2 Improvement Priority 2 (Clinical Effectiveness) To measure the effect of the introduction of ‘Flowtron Hydroven 12 with Lymph assist therapy’ to the lymphoedema service to ensure that it delivers care that is beneficial to patients and improves their quality of life. The lymphoedema service has undergone major changes in 2013-1014 prompted by the successful application to become a qualified provider (AQP) of the community lymphoedema service. The service specification enables the service to be accessed by people suffering from cancer or non-cancer related lymphoedema in the North & South CCG areas. As part of the AQP process we have also set up a domiciliary service to visit patients at home who are unable to travel to the clinics held at Teesside Hospice. In the last 12 months the lymphoedema clinic caseload has more than doubled in size and the complexity of the patient’s continues to increase. There are more patients requiring more advanced lymphoedema treatments in particular Manual Lymphatic Drainage Massage (MLD). In 2012-2013 we purchased two Flowtron Hydroven 12 Lymph Assist machines. These have significantly improved patient’s limb shape, movement, limb volumes and subcutaneous tissues. We have completed an audit on the effectiveness of the machine and this shows 71% of patients received an excellent explanation of the machine, 14.2% stated very good and 14.2% adequate. In comparing the machine to the nurse doing the whole massage 42.8% of patent’s rated it as excellent and 42.8% very good, 14% said poor. These results were the same when patients were asked if the machine softened the subcutaneous tissues as effectively. A total of 85% of patient’s said they would recommend the treatment to someone who had similar lymphoedema to them. The positive comments we received were “very relaxing my arm felt lighter," “Above my knee feels a lot softer” ”help keeps my limb soft”. The only negative comment was the foot aspect of the garment did not feel strong enough when inflated by the machine. As a result of the audit we have recently purchased a further Flowtron Hydroven 12 Lymph Assist machine to help keep up with the demand for its use. 3.3 Improvement Priority 3 (Patient Experience) To increase patient and carer involvement in service development and delivery at Teesside Hospice by initiating a new Patient & Carer Forum Teesside Hospice has held several Patient and Carer User Forums and Bereaved Carer User Forums throughout the year. This is a new initiative for the hospice to ensure we are giving patients and carers every opportunity to feedback to us their thoughts, suggestions and any issues/problems they may have experienced. It also ensures we are constantly striving to establish ways we can improve the care and experience for patients and their families. We have held 2 programs of user forums with patients that attend the Day Care 14 service, holding them on each day of the week. The first one was to help us create a new patient information leaflet. We took a draft copy and patients stated what they felt needed adding or removing. The second one was part of a larger project addressing the question “Does the current model of Day Care meet the need?” Several sessions were held with hospice staff, community staff and patients. This project is ongoing and a report and action plan is due to be completed in the next few months. A 3rd Patient and Carer User Forum was advertised throughout the hospice to design a Welcome Pack for patients admitted to the Inpatient Unit (IPU). This time we did not present a draft copy but started by asking what patients would find useful in a Welcome Pack. We incorporated all their ideas when creating the Welcome Pack. Patients and carers also had an opportunity to discuss other issues and there were several suggestions and issues discussed. Those that brought about changes are stated below. The people that attended were contacted afterwards to find out how beneficial they found the forum and unanimously, all who attended stated they felt it enjoyable and beneficial. A Bereaved Carer User Forum was also held towards the end of 2013. The next of kin of all patients who die within IPU receive a Bereaved Carers Questionnaire, from which we get a fantastic response. Those Carers who returned the questionnaire within the last 12 months were invited to attend the User Forum. On the day, 5 Carers attended and it was an extremely productive and beneficial meeting for all who attended including the staff. Carers were complimentary about the care their loved ones had received but also felt comfortable to discuss areas they felt could be improved. The forum produced some excellent suggestions but also served as a therapeutic process, as carers found returning to the Hospice and having time to discuss their experiences with others extremely beneficial. Following the Forums, the information gleaned was shared with the senior management team and has resulted in several changes in practice and the creation of additional patient and Carer information as listed below. The Bereaved Carer User Forum were also asked to attend a follow-up meeting where the changes that had occurred due to their feedback were shared and they were also asked to comment on a new Bereavement Pack that will be given to bereaved carers following the death of their loved one. Again, this was an excellent meeting where carers expressed their delight and satisfaction at being able to make changes that will improve the experience of bereaved carers in the future. The group decided that although it had been extremely beneficial to participate in the Bereaved Carer User Forum they were anxious that it should finish to ensure that it did not 15 become a support group and that more recently bereaved carers should be consulted for the next group. A new Bereaved Carers Forum is being planned for later in the year. Actions / Changes Resulting from the User Forums A newly designed Day Care Patient Information Leaflet has been created with the help of Day Care patients. A Welcome Pack for IPU has been created with the help of patients carers. A report on the review of the model of Day Care is being produced. The Welcome Pack, Day Care Patient Information Leaflet and other appropriate leaflets are in the process of being uploaded onto our hospice website so anyone can access the information as needed. Children’s activities are to be placed into our new IPU Family Room when it is completed Wi-Fi has been connected throughout the hospice so patients and families can contact family and friends at all times and in all areas. Information leaflets are being emailed to various community professionals. A new Bereavement Pack has been created with the help of bereaved carers. A separate sheet has been added to the Bereaved Carers Questionnaire which gives the carer the opportunity to be placed on a Bereaved Carers Teesside Hospice mailing list. This will benefit the carers as they will receive information regarding ‘in memorium events’ such as our Sunflower Memory Walk, Tree of Life or Sunflower Memory Service and will benefit the Hospice in regard to fundraising. A counselling card has been created which will be included in the new Bereavement Pack that families are given following the death of their loved one. The idea is that people may keep hold of the wallet sized card so they have the Bereavement Counselling service contact details at hand if they decide counselling may help at any point in their bereavement journey. The next of kin of patients who have died at Teesside Hospice will be contacted via telephone approximately 6 weeks following the death of their loved ones by a member of the Multi-Disciplinary Team. The Bereaved Carers Questionnaire has been altered slightly to give more opportunity to request help from the Bereavement Counselling team if this is needed. 16 An audit was undertaken on the sending of the yearly anniversary card and the system for this has been altered to ensure that every bereaved carer is sent a card on the 1st anniversary of the death of their loved one. 3.4 2013/14 Performance - What patients and families say about the services they receive We value the feedback we receive from patients and families as an important aspect of how we can identify issues, resolve problems and improve the quality of the care Teesside Hospice provides. As part of our commitment to ensuring patients and families have a voice we give a survey to all patients discharged from the Inpatient Unit and send a survey to the family of patients who die in our care. A patient survey is also given to all Day Care and Lymphoedema Service patients. The results of these surveys are collated and shared with Trustees, staff/volunteers and patients/carers by PowerPoint or poster presentations. The surveys are anonymous but where concerns are raised and people identify themselves this is followed up in a timely manner to resolve the issue and to learn from what has gone wrong. a. The In Patient (IPU) Survey - Summary of Results The annual IPU Satisfaction Survey from April 2013 – March 2014 had a response rate of 32% (39 out of 123 discharged patients). Some of the key findings from this report are as follows: 100% patients stated they were always treated with respect 100% patients felt their privacy was always respected 100% patients were always satisfied with the response when they needed to ask for assistance 100% patients felt supported in making decisions about their care either always or most of the time 100% patients felt very satisfied or satisfied with their involvement in planning their care 100% patients stated staff introduced themselves either always or most of the time 100% patients stated staff always or most of the time explained what they were doing prior to any procedure 100% patients felt they always or most of the time understood explanations given to them regarding their treatment and care 100% patients stated staff always or most of the time made an effort to meet their individual wishes 17 100% patients felt the general environment and surroundings and room furnishings / comfort were either excellent or good 100% patients rated helpfulness of volunteers and reception staff as either excellent or good. 100% patients rated standard of Nursing Care, Medical Care, Occupational Therapy, Social Work, Chaplaincy/Spiritual Care, Dietician, Complimentary Therapies, Hairdressing, and Catering and food service/menu choice as either excellent or good 100% patients felt standard of emotional support was either excellent or good 100% patients felt the cleanliness of the Hospice was either excellent or good 100% patients stated their care, treatment and support needs had been fully met 97% patients stated they would recommend this service to a member of their family or friends 97% patients felt they were able to ask questions about their care either always or most of the time 95% patients rated the standard of the physiotherapy support either excellent or good 92% patients rated the standard of the Counselling session support either excellent or good 91% patients felt access to food outside mealtimes was either excellent or good 88% patients were aware of the Teesside Hospice Information Booklet. 82% patients knew how to make a complaint • 78% patients stated they were offered verbal feedback following MDT meeting Comments stated following the question “Please comment on anything you were particularly happy with or unhappy with giving an example if possible, as this will help to improve our service for patients in the future” “You did all you could and were very helpful and caring and assisted me whilst trying to beat my anxiety.” “My treatment, the care & compassion shown & the professionalism of the staff couldn't get any better.” “Nothing unhappy with. Personal care when in private situations (bathing, dressing, etc.) was excellent and the overall friendliness alongside professionalism made everything a wonderful experience. Thank you to everyone involved.” 18 “Politeness of staff, volunteers, ext. Cleanliness of unit. Absolutely outstanding work of doctors and nurses.” “Really happy with the support I have received I feel I have had a full holistic approach to my needs.” “The staff and Doctors in this unit are amazing. “ “The staff and volunteers — so very good with the patient. I felt that I was personally cared for.” “The staff go out of their way to make you feel comfortable and help you with any problems.” “Throughout my stay I was impressed by the kindness and concern shown to me by everyone from volunteers, Drs, nurses, etc. I was made to feel v special and that what I thought as a person was always taken into consideration, a big thank you to you all.” “V pleased with the care rcvd from named nurse they explain everything that was happening and in a way that I could understand they made me feel at ease and know that I had that support helped with my stay and made me feel relaxed and comfortable.” “Very happy with all aspects of my stay.” “What I found particularly helpful was the total inclusion I was given at all stages of my care, drug regimen, amount, frequency, side effects, it was all there. Hospice is a happy caring environment that makes coping with a terminal illness easier to bear.” “Words fail to express the kindness, care and love shown to me and my family. I felt very much 'at home' and appreciate every aspect of the whole staff.” “All staff are absolutely first class.” “All staff were very kind and helpful.” “Do not know how you can improve such a marvellous service”. “Everyone very pleasant and helpful. Joy to be there apart from being unwell.” “Excellent care.” “I think the hospice is a nice friendly place. It is very relaxing. Staff and everyone are very good and very understanding. Nothing is any trouble for them. Me and my family cannot thank you enough. Thank you again for your help.” “Absolute confidence in the knowledge that the pt was in the hands of a fully dedicated and professional team who in spite of numerous setbacks just didn’t stop caring or give up. Drs and nurses were always available to listen, advise and 19 answer any questions. They would always make time for you.” “Both of my daughters and myself have said it was the best thing we could have done for her in her last couple of days. We spent 24hrs a day with her and saw how she was treated and us by all the staff. We have spoken very highly of Teesside Hospice” “Fantastic team, fantastic service I’m very grateful for everything.” “I was very happy with everything that happened in the hospice.” “In my opinion it is not possible to improve on the standards in this hospice.” b. The Bereaved Carers Survey- Summary of Results From previous research, bereaved carers were found to be the most open to providing feedback on hospice facilities and services. Therefore, a questionnaire was devised with user involvement as a way of evaluating services and increasing levels of user involvement in the future. Questionnaires are posted out 8 weeks following the death of the patient – this was the advisory period given by members of the focus group. The annual Bereaved Carers survey from (Jan 2013 – Dec 2013) had a response rate 66%. Some of the key findings from this report are: 100% bereaved carers rated standard of nursing care, medical care, Occupational Therapy, Complimentary Therapies, Hairdressing and food service/menu choice as either excellent or good 100% bereaved carers rated helpfulness of reception staff as either excellent or good. 100% bereaved carers felt standard of emotional support was either excellent or good 100% bereaved carers felt the help with practical issues was either excellent or good 100% bereaved carers rated the standard of room furnishings / comfort was either excellent or good 98% bereaved carers rated helpfulness of volunteers as either excellent or good. 98% bereaved carers stated the standard of catering either excellent or good 98% bereaved carers rated the standard of room cleaning was either excellent or good 20 96% bereaved carers rated the standard of the dietetic support either excellent or good 95% bereaved carers rated the standard of the physiotherapy support either excellent or good 92% bereaved carers rated the standard of the social work support either excellent or good 92% bereaved carers rated the standard of the Chaplaincy / Spiritual Care either excellent or good. Those completing the survey were also asked “What was the best thing about Teesside Hospice” and “Have you any thoughts that might help other patients and families using the hospice in the future?” Numerous comments were received and a selection are detailed below. “Absolute confidence in the knowledge that the pt was in the hands of a fully dedicated and professional team who in spite of numerous setbacks just didn’t stop caring or give up. Drs and nurses were always available to listen, advise and answer any questions. They would always make time for you.” “Unconditional support, medically and emotionally. Nothing was too much trouble for anyone. Staff listened and cared and x was made to feel very special, as were we all.” “There was no best thing because across the board all was excellent. Everyone is made to feel welcome, supported and cared for. I can' t compliment Teesside Hospice enough.” “The fact my husband was treated as a person and not just a number, the staff listened to him and treat him with the best care and respect, the whole family and friends felt welcome.” “Dad loved all aspects of the ‘extras’ especially the lady who did the hand massages — he never thought he would!” “All in all, mum was very well looked after in her final weeks, thanks.” “I cannot find the words to express how amazing & supportive to my parents, myself & family, hospice was during a period of hideous grief & pain the staff were a rock of kindness and allowed our parents to keep their dignity & spirits lifted. I genuinely mean it when I say we could not have got through the last few years without you“ “The caring way patients get looked after and the family. All staff are lovely and give you any help needed. It's so peaceful and unobtrusive. X last days were made easier. Thank you.” 21 “The best thing is the calming atmosphere and the amazing angels the staff. Don't know how we would have coped without them. My husband felt content and safe at Teesside Hospice and for that I am eternally grateful thank you so much.” “Every aspect of the hospice was excellent but the staff are what make it so special. The support that pt received was exceptional and the staff made the situation easier for all family. “ “A welcome pack sometimes you don’t like to ask about things.” “Dont be frightened the staff will go out of their way to ease the pain for you and your loved one. God bless them all.” “Not to think that it is a sad place. I think I/we have coped much better as a family knowing that dad had the utmost care right up to the end. His death was peaceful and we were given as much time with him as we wished – greatly appreciated. The room had also been set out beautifully when we went back in to see Dad, thankyou.” “The mention of the hospice worried us at first but the place was very welcoming. This needs to be highlighted to future patients that this is not only a place to come to at the end.” “The time that pt spent in the hospice meant that we could use her last few wks to just be together instead of taking care of all her needs. Don’t be afraid to ask for any needs as Teesside Hospice do all they can to accommodate.” No negative comments were received however, several people offered helpful suggestions that have been actioned and will enhance the experience of patients and carers in the future. These include the development of a ‘Welcome Pack’ to inform patients of useful information when they are admitted to the Inpatient Unit and the introduction of a Chaplaincy ‘Calling Card’ to inform patients that a member of the Chaplaincy team tried to visit and how to request a further appointment. 22 The Board of Trustees Statement The Board of Trustees is fully committed to the provision of a high quality service at Teesside Hospice. The Hospice has a well established clinical and corporate governance structure, with members of the Board playing an active part in ensuring that Teesside Hospice fulfils its mission, according to its charitable intentions and in ensuring that the organisation remains responsible and compliant in all areas of CQC registration, health and safety, employment law and other relevant legislation. This Quality Account was approved 10th June 2014 Signed Professor Brian Footitt OBE, Chairman, Board of Trustees of Teesside Hospice Care Foundation Healthwatch Middlesbrough and South Tees Clinical Commissioning Group were invited to comment on the Quality Account. The following comment was received. Healthwatch Middlesbrough response to Teesside Hospice Care Foundation (THCF) Quality Accounts 2013/14 Healthwatch Middlesbrough can confirm that they have consulted on the Annual Draft Quality Account 2013/14 of Teesside Hospice Care Foundation (THCF). The Quality Account was circulated to the Healthwatch Middlesbrough Executive Board for comments. The chair of Healthwatch Middlesbrough, board members and staff were all offered the opportunity to comment and feedback. Overall, Healthwatch Middlesbrough welcomes the opportunity to respond to the Draft Quality Account and would hope it will continue to reflect the views the residents. It is clear from the report that you value the opinions of your patients and carers and we applaud the active way in which you involve them in helping shape future services and improvements. Yours Faithfully, Paul Crawshaw-Chair Healthwatch Middlesbrough 23