Quality Accounts Report 2013-2014 1 Part 1: Chief Executive’s Statement I am pleased to provide our Quality Account for the work of St Joseph’s Hospice, Hackney. We are a charity, separate from the NHS, but we have prepared the report in recognition of the financial support we have from the NHS and the contribution we make to local NHS services. St Joseph’s Hospice delivers specialist palliative care, end of life care, and respite care for people with a progressive and life-threatening illness, their families and carers. Our priority is to look after people with complex or multiple needs and to provide specialist support and expertise in end of life care to generalist services in hospitals and the community. In addition we provide expert advice and support to other professionals on specialist palliative and end of life care, offer specialised education and training and undertake targeted research in aspects of this care. Underpinning all our work, as part of our founding mission, is a particular responsibility to support the poor – whatever the form of their poverty – health, economic, social, emotional, spiritual etc. We are committed to providing our services in partnership with other like-minded organisations. Our Mission is central to the quality of everything we do at St Joseph’s and in 2013/14 we achieved many quality improvements. These include: • Continuing to improve physical spaces at the Hospice, including the refurbishment of space to enable better coordination of teams and their interdependencies and opening of the ground floor Community Hub made possible by a grant from the Department of Health. This has enabled our Reception and public areas to be more welcoming and accessible to our local community • Continued working with other care providers including Marie Curie to take a proactive lead across inner East London to make the case for better coordination of care and for rapid response mechanisms to support people who are in their last years of life/end of life in the community and their carers • Continued work in embedding our compassionate communities initiative – with pilot projects in Hackney and new initiatives within Newham to ensure easier access to our services • Supporting our staff and teams: − Initiatives such as the monthly multidisciplinary Schwartz rounds supporting our staff in their emotional and demanding work with patients and families. − taking forward actions following our annual staff survey • Continued engagement with local ethnically diverse communities • Continued expansion of the way we care for people in the community • Fully operationalising our First Contact team to create a simpler and revised pathway for referrals to hospice services and introduce a Nurse led 24/7 advice 2 & support telephone line service. This is reflected with our current level of activity – Appendix 1 • The hospice has accommodated the inpatient service of Richard House Children’s Hospice, during the refurbishment of their wards. This has provided an opportunity to enhance further joint working in supporting young adults making the transition between children’s and adult hospice services. We have now established a joint transition team between the two hospices to support this work • Continued joint clinics with local NHS providers which support patients with lifelimiting conditions other than cancer. Our services are available free to the people who need them. Just over 55% of the Hospice costs are met by local NHS commissioners. The remainder of our funding comes from charitable legacies, donations and other fundraising. Our fundraising represents an additional input of some £6.2 million in 2014-15 into local palliative care services. Delivery of consistent, high quality services continues to be at the heart of everything we do, and our goal is to achieve the best quality of life for our patients and their families all the time. We do this by providing an active, high quality holistic approach to managing any distressing problems patients may encounter as a result of their illness. This may involve management of pain and other symptoms, and the provision of psychological, social and spiritual support are paramount – based on detailed assessment of the needs of the patient and discussion regarding their preferences by a multi professional team. We aim to work in active collaboration with our patients, their families and carers and are keen to enable patients and their families to be actively involved in the development of plans for care of their loved one if this is what they wish. These plans, in which quality is embedded, are reviewed on a regular basis – both formally and informally by staff involved in their implementation. Formal review is undertaken by a multi-disciplinary team. In addition we seek to communicate regularly with other healthcare professionals involved in our patients’ care to ensure seamless support wherever possible. The Hospice is also keen to work in partnership with other organisations; we fully realise that we cannot meet our patients’ many needs by ourselves. We work closely with local NHS providers, CCGs and with Marie Curie, Richard House, Age UK East, Macmillan and with other voluntary sector care providers to deliver better integrated services. We want to develop closer links with social services and other relevant local authority services. We have been an active participant of ‘One Hackney’, a CCG initiative to promote integrated working to ensure Hackney’s most frail and vulnerable people receive integrated care to enable them to receive care in the community wherever possible. Our Finding Space area at the hospice provides a welcoming and comfortable place for a growing number of user groups to meet and/or deliver care and support. Our Education Centre is used by more groups for meetings and conferences, which enhances our presence and visibility within the health and care sector. 3 St Joseph’s Hospice is set within an ethnically diverse area. We aim to meet the varying needs and expectations of all our patients, their families and carers, whatever their cultural, spiritual or ethnic background. We offer culturally sensitive diets and other services; we are supported by a comprehensive bilingual and advocacy service and multi-faith chaplaincy services. We actively reach out to different communities so that they are aware of our existence and so that we can learn more about their particular needs. The standards of high quality care to which we aspire could not be achieved without the commitment and dedication of our staff and our volunteers all of whom contribute so actively to help us achieve our mission to serve the people of East London. St Joseph’s is accountable for safety and quality to the Care Quality Commission (CQC). For registration and compliance purposes, I am the Responsible Individual and the Registered Manager is Ruth Bradley, Director of Care Services. We received a very positive report about our services from the CQC in October 2013 following inspection of our main hospice site services; all standards were met in relation to the following: • • • • • Consent to care and treatment Care and welfare of people who use services Cleanliness and infection control Assessing and monitoring the quality of service provision Complaints We also had a further inspection of the specialist palliative care service that we provide to the East Ham Care centre in Newham in March 2014 this was also a positive report. The following standards were reviewed and all were met: • • • • • Respecting and involving people who use our service Safety and suitability of premises Safety and suitability of equipment Supporting workers Records However, we do not rely on CQC reports to validate the quality of our services. We undertake regular internal inspections. The quality of care generally is overseen by the Hospice Senior Management Team. Regular reports on quality safety and service improvement are considered by our multi-professional Clinical Governance Committee. This report follows the standard format. We provide a comprehensive range of palliative care services for the people of City and Hackney, Newham and Tower Hamlets, as well as specific services in other areas. Although the report will be reviewed by the Hackney Scrutiny Committee, it picks up work from other areas where relevant. 4 I am responsible for the preparation of this report and its contents. It has been developed by the Director of Care and Clinical Governance Lead in conjunction with senior clinical and non-clinical staff and shared with the Chair of the Board of Trustees before being distributed to local scrutinisers of the Hackney Health and Wellbeing Board, and commissioning primary care trusts. To the best of my knowledge, the information reported in this Quality Account is accurate and a fair representation of the quality of healthcare services provided by our Hospice. Michael Kerin Chief Executive 11/06/14 5 Contents Priorities for improvement 2014 -2015 Future planning Priority 1- Continue to build on Community Engagement - to improve service users experience Future planning Priority 2 – Improving Choices at the End of Life – to enhance experience Increased Engagement with Service Users – to inform Improvements to Patients experiences and Clinical Effectiveness Future planning Priority 3- To strengthen patient safety and clinical effectiveness by developing better Information systems and processes to measure quality and enhance Information Governance Future planning Priority 4- Continue to Lead in embracing Partnership working with Health & Social care - to improve Service users experiences in End of Life care Priorities for Improvement 2013 -14 Page 7 9 10 11 11 12 Future planning Priority 1- Building on Community Engagement - to improve service users experience 12 Future planning Priority 2 – Improving Choices at the End of Life – to enhance experience 18 Future planning Priority 3- Strengthening Information Governance – to strengthen patient safety and clinical effectiveness 18 Future planning Priority 4- Leading on Partnership working 19 Statement of Assurance from the Board 21 Review of Quality Performance 27 Glossary of terms 29 Appendix 1 – MDS data 30 Appendix 2 – Audit schedule 31 6 Part 2: Priorities for Improvement 2014-2015 St Joseph’s Hospice remains compliant with the National Minimum Standards (2002) and has satisfied the Care Quality Commission that standards are being met through self-assessment and via a visit from CQC in October 2013 and March 2014. As such, the Board did not have any areas of regulatory shortfall to include in the priorities for improvement for 2014-2015. The work of the Hospice in recent years has been underpinned by our Strategic Plan (2007-12) which was developed after consultation with local stakeholders. Following consultation, we have identified strategic priorities for 2012-2015 which reaffirm and build upon these existing priorities. We have shared our proposals with external stakeholders (including the Hackney Cabinet Member for Health, Social Care and Culture). These take forward our existing priorities, building on the progress we have made in the last five years. 1. A local leadership role in end of life care 2. Better coordination of care: a. Key partner in developing the case for an integrated East London palliative and end of life care coordination service b. Community developments. 3. Proactive partnerships with NHS and others: a. to avoid unnecessary hospital admissions and provide 24/7 availability of key services b. to meet people’s choice in place of care and death 4. Promoting social justice: a. “compassionate communities” especially in communities which are disadvantaged b. working with other groups who share our goals, to advocate for the needs of the poor and vulnerable, and to improve information services (eg working with Macmillan to develop an information service linked into the Macmillan initiative with Hackney libraries. 5. Greater visibility of the hospice: a. As a provider of care, education and expertise b. At the “heart of the community” - encouraging other groups working for the common good to use hospice facilities where this does not detract from delivery of our core services. c. In delivering a range of new services in the community d. In the image we present on Mare Street through our site strategy. 7 6. Ensuring St Joseph’s Hospice’s sustainability: Remaining sustainable by ensuring the Hospice is financially responsible and maintains strong governance, management and organisational health. The priorities in this year’s Quality Account are to build on the work following last year’s priorities for improvements. This has set the foundations for future planning and developments and incorporates strategic plans becoming embedded in the organisational changes taking place. The Hospice continues to consider how it can extend and improve its services to better meet the needs of our local population, in line with the six key priorities in the Strategic Plan and drawing on local NHS plans. We have continued to look at development opportunities for service improvement from a wide variety of specific funding sources including Government grants for Hospices, Third Sector grants and from trusts. We welcome your comments and ideas on this Quality Account which you can do via email, letter or telephone to Ruth Bradley, Director of Care Services. If you know of someone that may need a translation we will make arrangements for this to be provided via our Advocacy and Interpreter services. St Joseph’s Hospice confirms that the quality improvement priorities for 2014 to 2015 will be: Strengthen existing service provision: service improvements to meet changing needs of local communities, and good practice, for example: • St Joseph’s First Contact Team: this multi professional referrals and triage team was established in September 2013 and already demonstrates that the goal of improving access to the range of hospice services is being achieved. − − − Early indications are that internal referrals within the organisation have increased as well as referrals from GPs, offering a wider range of hospice services to people. The team aims to allow individuals to be seen at an earlier stage of their life limiting illness When patients and clients and their families have been assessed and do not require Hospice services, we are signposting them to a range of appropriate, local services that will meet their needs. • Development programme of the clinical pharmacist service: to develop the use of the most appropriate and cost-effective drugs and to improve the quality of medicines management. • Expanding community based support: notably through the development of ‘St Joseph’s At Home’ community model and taking more services into community settings. • Extending care beyond cancer: development of joint outpatient clinics and services with relevant specialists, respite provision and Finding Space 8 • A source of advice, support and expertise: through education provision, research and articles, formal and informal engagement with professionals and opinion-formers in other local organisations and through the information service in Finding Space. • Reaching out to local communities and building community capacity: On-going engagement with different ethnic communities to raise awareness of the work of the Hospice. We also aim to promote the work of the hospice via fundraising and volunteering activities. We are building community capacity in “compassionate communities”, working with local groups, to help them acquire skills and confidence to support to people in their community who are dying or who are carers. During 2013 and 2014 the hospice initiated a Compassionate Communities project in Hackney. A project manager was appointed to take this work forward and we are already working with local faith groups to identify what information and support they need to be better able to support members of their communities who are dying or recently bereaved. The scheme is being formally launched at an event at the Hospice on 25 June. • Additional support to carers: especially through respite provision and activities in Finding Space and our Compassionate Communities work. Future planning Priority 1- Continue to build on Community Engagement to improve service users experience We will continue to seek the views of our service users and other members of the local communities that we serve about how we can improve our services in relation to their scale, scope and quality. This work helps to inform us about how we meet service user needs and build on the work already achieved to support our current patient needs and expectations and we have used several approaches to help us achieve this aim:a. Finding Space, a facility which opened in 2009, is a hub for activities focused on − − − Community engagement – through which local people find out more about Hospice and end of life care, and engage with St Joseph’s Hospice to work together to improve end of life provision in East London Community empowerment – through which individuals are empowered to change their experience of end of life care as individuals directly affected by a life threatening illness, as carers of someone with a serious condition or as family members facing loss. It is anticipated that their experience could be improved through increased knowledge of their choices and care available (via the information service) and through assistance to communicate their preferences and needs at the end of life. In addition they will be able to receive services and support in Finding Space that helps them live well despite the challenges of an advancing illness – for example welfare benefits advice, complementary therapies, stress management and similar. Carers will receive help and guidance to care effectively for others and themselves Community participation – compassionate communities pilot in Hackney through which individuals and communities are trained and supported to help provide aspects of end of life care to others in their families, communities or local 9 area. Such care could include practical and social support for the patient, their family or carer. b. Newham Satellite Services: A vital part of developing the model for a satellite service in Newham – which we would aim to replicate in all such community developments - was to seek the views and ideas of local residents about what type of service(s) would make a positive impact to their quality of life. Feedback has informed the development of this service; the satellite service will initially deliver predominantly supportive care services in Chargeable Lane which is conveniently located to the local hospital and is a centre where other providers of social care are based offering good networking opportunities across services. Plans for 2014 – 2015 will be to establish these services and explore future needs. c. Public Health messages to the local community - a work stream with Tower Hamlets CCG - is to develop a series of articles for publication in local newspapers that promote public health messages that relate to the last years of life. The hospice has formed links with public health leads and ‘Faith in Health’ based at the London Muslim Centre, to ascertain the best means of community engagement on issues such as Advance Care Planning, Rehabilitative Care, emotional support. Dr Libby Sallnow – who has been leading on the compassionate communities developments, will be an advisor to this work. Future planning Priority 2 – Improving Choices at the End of Life – to enhance experience Increased Engagement with Service Users – to inform Improvements to Patients experiences and Clinical Effectiveness We are keen to take more of our services into the local community. It is acknowledged that the will be operational challenges of working at satellite bases – the first base in Newham will serve as a test bed for future developments and a project team has already been established to consider the issues and options. Work has been completed on updating our full range of patient and visitor information leaflets and further work is in progress on the Hospice website which will enable communities and potential service users to make informed decisions and choices about accessing the range of services offered by St Joseph’s. We have already introduced a new ‘generic’ information booklet and a specific leaflet for visitors. This revised information will also be available on the website. In 2013-14, we started Care Compass, an initiative to extend our hospice services to reach more people in our local communities, providing a website-based personalised advice and support service, developing a number of community based services, and using new technology. The Department of Health awarded St Joseph’s a Small Business Research Initiative (SBRI) grant to support the website development. Although the development was not commercial enough for continued SBRI support, the plan is to continue to develop the website both for local people, to encourage hospices in other areas to establish linked website-based developments and to seek to secure funding from elsewhere. 10 Future planning Priority 3- To strengthen patient safety and clinical effectiveness by developing better Clinical Information systems and processes to measure quality and enhance Information Governance In order to support ongoing development across the wide range of services that the hospice offers and those that are planned, it is recognized that our current provision of clinical information systems needs to be strengthened. The priority for 2013 to 2014 was to improve the current information systems and ensure that we meet all expectations in respect of information governance. Whilst we have achieved a significant part of this work, it will continue to be a high priority for 2014 – 2015. We will be replacing our current Clinical Information system to ensure that is ‘fit for purpose’ and meets the complex and changing needs of the Hospice. The focus for 2014 -2015 will be on ensuring our IT strategy ensures support for any new system and that the infrastructure supports effective controls and efficient access to information in order that new and innovative ways of working can be implemented. Here will be a need to undertake training and on-going support for staff in any new system that is implemented. We will ensure the appropriate use of information and avoid unnecessary capture, processing, sharing and storage and promote integrity and accuracy of information. One of the key requirements of any new system will be to ensure that we are able to report accurately on all activity and on all quality indicators for commissioners and to enable the hospice to review performance measures for individual services by developing quality dashboards incorporating measures of clinical outcome, patient experience and service effectiveness and efficiency. The hospice participated in a national bench-marking project facilitated by Help the Hospices of the ‘Inpatient Unit Patient Safety Metrics’. This commenced in April 2014, data is submitted quarterly on falls, pressure ulcers and medication errors and results will enable the hospice to compare our prevalence with similar sized hospices. Quality Management data measures such as mandatory training, appraisal and sickness & absence are now available in a dashboard format. This information will also enable us to benchmark internally across service areas and also is readily available to compare across other similar organisations. Future planning Priority 4 - Continue to Lead in embracing Partnership working with Health & Social care - to improve Service users experiences in End of Life care Borough based working As noted above, the hospice is an active member of the One Hackney initiative to bring providers together to meet the needs of the most vulnerable residents in the Borough. We have established good links with City and Hackney Clinical Commissioning Group to work together on planning services and are members of a stakeholder group to review clinical ambitions for end of life care for City and Hackney. Michael Kerin continues as the voluntary sector member of the Hackney Health and Wellbeing Board. The hospice Strategic Planning Group; brings together a wide range of senior hospice leaders and managers to exchange information on and coordinate the strategic 11 developments from all areas across the hospice. This will also provide a platform for reviewing the impacts of schemes in individual Boroughs in our area, and whether they can be rolled out in other areas. The Borough based working in other East London Boroughs includes the initiatives in Newham (already noted) and engaging with Bart’s Health NHS Trust and the relevant commissioners around services in Tower Hamlets, Newham and Waltham Forest. Working within our Community The commitment and input of volunteers will be vital in supporting us in terms of community engagement. We recently surveyed volunteers working at St Joseph’s Hospice and asked them “What did you hope to gain from volunteering when you first started?” The overwhelming majority felt they were making a valuable contribution to the community. This is encouraging for future recruitment alongside the fact that most prospective volunteers request to work closely with patients. Alongside our Compassionate Communities work, we will continue to seek news ways in which we can work with our partners in health and social care to support people who wish to die at home or who need additional support from our services in the community. The hospice will continue to seek opportunities to enable patients and carers to receive flexible, sensitive accessible and timely care services either in their home or in a location of their choice. To achieve this we have formed various partnerships to explore suitable models of home care. An example of this is the planned work is the Hope for Home initiative. Hope for Home was formed in response to a perceived lack of support for families and friends who were carers to people with dementia. St Joseph's Hospice has been commissioned by Hope for Home to deliver Namaste Care therapy from April 2014, to people with Dementia in their own homes. Namaste Care will be delivered by trained volunteers managed by a development manager who is professionally led and supervised by a senior nurse. Part 3: Priorities for improvement 2013-14 This section reports on the progress on the priorities for improvement last year, and what was achieved over this period. The quality improvement priorities for 2013-2014 were as follows: Improvement Priority 1: Building on Community Engagement - to improve service user’s experience Feedback St Joseph’s Hospice values the views of all its service users. This is especially the case given the very culturally diverse and ever-changing nature of the population that we serve. We continue to gather views, and acting upon them is a clear and permanent priority for the Hospice. The Hospice has sought the views and feedback from taken an explicit decision to work proactively and engage with local organisations to facilitate access to views of minority or hard to reach groups around aspects of our care, in order to help us achieve our objective of “engaging effectively with our local communities”. Our overall aim in this work has been to increase the sense that St. Joseph’s is there for all, and is “owned” by local people from all the different communities in East London. 12 Compassionate Communities: Hackney The Compassionate Communities development and implementation of a project plan was to establish compassionate communities in Hackney and was started formally in mid-2013. The project aims to build a network of confident lay carers “Community Neighbours” who support people affected by end of life issues so as to augment the care provided by professionals. The principles of the project include recognising the unique contribution of individuals who give time and attention to others in their community who face advancing illness or bereavement. The Project Manager identified key community groups to target (because of the limited capacity and resources of the project, and to ensure the project reached some of the more vulnerable groups) which include the Turkish/Kurdish communities, the older White population and the Black Caribbean community. The project is being undertaken in partnership with Social Action for Health who are specialists amongst those communities. Some of the project money has been invested further in Social Action for Health workers to ensure that the training and outreach of the project gathers pace (as there is a limit to the pace a two-day a week post holder can manage). The project provides culturally sensitive training, support and supervision for people who are interested in learning more about how to support others in their communities facing end of life. It aims to make a difference to the social isolation, practical challenges and gaps in care and advocacy that people who are unwell or bereaved must cope with. It is also an opportunity to signpost to all STJH services and break down the barriers to understanding what a hospice does and what is available locally. Key challenges for the project include: • how to ‘fit’ with other community work happening in Hackney (for example, other work reaching out to religious leaders in Hackney) in order to efficiently share resources and contacts. • thinking about how it might inform or shape other community work happening in other boroughs, such as the Newham community outreach work. • finding long-term external funding to pay for the project. The Fundraising Team is working on identifying possible funders. Care Compass Project This initiative was established to extend our hospice services to reach more people in our local communities, providing an onsite personalised advice and support service, developing a number of community based services, and using new technology. The Department of Health awarded St Joseph’s a Small Business Research Initiative (SBRI) grant to support a website development. Our vision was to create a website which is for everyone who has been diagnosed with, or experienced, a life limiting illness or condition, including families, carers, and friends. Our work with people indicate that there’s a need for sharing stories and gaining support, which is not expert or professional, but given by others experiencing similar situations. We believe that people would like to engage, help and support others in their community, understand the services and attend events in their area, and find useful and relevant information. Our work in listening to people so far shows that an interactive space is required to share experience, both happy and sad, and that getting help in this way can really make a difference. 13 Although the development was not commercial enough for future SBRI support the plan is to continue with the website and seek to secure funding from elsewhere. Events During 2013-2014 the hospice has continued to hold a series of regular open events, which engage and inform people in our local communities. In addition, there has also been a significant amount of engagement as part of the community hospice development programme ‘St Joseph's at Home’. This programme aims to ensure accessibility to and acceptability of current and future hospice services. The introduction of new services has provided an opportunity to introduce volunteer befrienders from local communities to become part of hospice services. Events included the following: Dying Matters Awareness week 13th to 17th May 2013 St Joseph’s team undertook a wide variety of activities to support National Dying Matters Awareness Week. Five major events were planned during the week: • ‘Make a Will Week’ Local solicitor helped participants to write a will or to change their will in return for a donation to the hospice • ‘Make a Will Workshop’ This session, run by local solicitor Emma Rowe provided information and advice on writing wills, and why wills matter • ‘Affordable, Meaningful Funerals’ this was an interactive workshop hosted by Down to Earth • ‘The Future of Deaths Parts I and IV’ - Two short films by Anton Mirto documenting a performance on the interrelationship between living and dying and letting go (www.a2company.org). • ‘Hospice Information for Muslims’ – Launch of a new information service for Muslims. Hosted by Hospice Chaplain Imam Muhammad Karin. • ‘Living & Dying Well Road show’ – this event included over 18 exhibitors, free complementary therapy taster sessions, music by the London Sinfonia, mini workshops and refreshments Carers Week 10th to 16th June 2013 St Joseph’s ran one event per day across Carers Week: • Carers’ Pamper Day – with Music, lunch and complementary therapies available • Hackney Annual Carers Conference – all day event • Prepared to Care – St Joseph’s and Marie Curie Cancer Care event • Welfare and Benefits Advice for Carers – drop in service • Social Work Advice Service for Carers – drop in service Jewish community Last year it was noted as key objective for the hospice to re-engage with the Jewish community. In 2013 we re-engaged with Jewish Care and organised a series of workshops of 4 workshops between October and November 2013. These workshops were run by our Advancing Practice Nurse and sessions included: • Advanced Planning in End of Life Care • Essential Communications Skills in End of Life Care • Providing Care towards and at the end of life • Loss, Grief and Bereavement An additional session was held in order for the Jewish Care team to meet the Community Teams at the hospice (City and Hackney Nursing Team, Day Hospice Social work and 14 bereavement teams and Finding space team), to gain an overview of multi-disciplinary team working and find out about our services. Newham We have continued to engage local communities in our service developments which included: This bereavement service, which delivers component Level 2 befriending for adults living in Newham for people who are suffering from loss and grief due to bereavement. The service is delivered by trained volunteers who are largely, although not exclusively, drawn from Newham. The service engages with the local communities by recruiting volunteer befrienders from Newham and engaging with a wide range of other service providers, community based groups, and faith groups in Newham to raise awareness and distribute publicity about the service. We received external funding for a small six month project to start a new horticultural project working with people suffering loss and grief, which will be based at West Ham Cemetery. A Horticultural Therapist has been recruited and will start this innovative work in early 2014. This project will give an additional option for people who are bereaved to become involved in a community gardening project. Carers In partnership with Marie Curie Cancer Care the hospice has formed a working group to map existing provision for carers across East London, identifying gaps and developing ideas for new and innovative ways to support families and carers. The activities during Carers week provided an opportunity to link with Tower Hamlets CCG service improvement lead to share some of this early work and provide further information to enhance this. The work that is developed with Tower Hamlets will be shared with the other 2 inner London boroughs that we serve User feedback Internally, we have introduced a number of different methods for obtaining user feedback, in order to engage with our users, these include the following: Service User feedback on Ground Floor Refurbishment - In the summer we surveyed staff, volunteers, patients, patient families, healthcare professionals and members of the public about our plans for the refurbishment of the ground floor reception and café. In September we completed a service user feedback review of the plans to refurbish the ground floor As a result of feedback received, we have re-shaped the plans, the feedback and results summary are available on the website, twitter and Facebook. We have: • Relocated what will be the future main entrance to where the current staff entrance is. This will mean the main entrance is more visible for visitors and that the Reception Team can see all the exits to the rest of the building • Improved the location of the quiet rooms for distressed relatives and patients • Decided not to create a general internet café but instead provide a wireless network and computers at the Information Service area • Put the Information Service near to the main entrance and Reception to make the service accessible for visitors. Other survey feedback we are taking into account includes: • We have provided a volunteer team based at Reception who will accompany visitors to where they need to go and fetch visitors to take them to their appointments. We will not have an appointments screen announcing names • We have made plans for the shop and café to provide a wider range of items for sale 15 • We will brief the interior design team to provide a warm and welcome environment with a mix of seating to suit all needs and abilities. A timescale of the schedule of work was made available to the public. Help The Hospice’s Annual Survey The hospice participated in an annual survey conducted by Help the Hospices and Centre for Health Services Studies (CHSS), University of Kent. 19 hospices participated and the results were distributed in December 2013. The next step will be to meet with service leads and to review the findings and make recommendations where there were areas for potential improvement. Specific areas for service improvements identified were as followed (and these were very similar nationally) • Agreeing more specific goals/outcomes for service users • Improvements in discussion on advanced care planning • Improvements in patient user information • Ensuring more viability on how to give feedback. Patient-Led Assessment of the Care Environment (PLACE) assessments The hospice participated in new PLACE assessments during April 2013 and results were published in September 2013. The assessment involved using service users to assess how the environment supports patient’s privacy and dignity, food, cleanliness and general building maintenance. We recruited volunteers who participated in this year’s assessments. The outcome from the assessments was very positive and gave a user perspective of the environment – areas for improvement such as signposting will be a focus for the next year, following the recent building developments on site. The results were as follows: • Cleanliness 98% • Food 94% • Privacy, Dignity & Wellbeing 93% • Condition, Appearance & Maintenance 93% Satisfaction/Feedback Cards We introduced a new system using feedback cards during 2013–14 asking for response to a standardised question on the card: ‘How was your experience at St Joseph’s today’ inviting individuals to respond to the question by choosing one of three options, using a smiling face, plain and sad face. They are asked to give the opportunity to explain why they have given their answer, so a second question invites a free text to respond by asking ‘Could you tell us the main reason for your answer’ The overal % of patients and service users who when asked stated their experience was positive is as follows: • • • • • • July August September October November December 82% 83% 86% 98% 94% 96% 16 A sample below: of the reasons given for their responses are 17 Day Hospice survey Our Day hospice patients completed a survey in August 2013, in partnership with London Youth. London Youth came in over two days and completed one simple form with the patients. A further document was also created to be completed if they were able to respond in more detail. It was felt that it was important to keep this exercise brief initially as many of the patients become tired and we are considering how we optimize their feedback over the 12 week programme for attending the Day Hospice. 22 people completed the simple form; 10 people did the longer one. The full results are being used to consider future plans for the Day Hospice. Improvement Priority 2 – Improving Choices at the End of Life – to enhance experience In addition to the activities listed in the previous section, we have developed an “Empowered Living Team” in Newham with funding from the SEBBA Trust (TBC), supported by regular training and supervision. What has been developed in the early days of the project is plans for complementary therapy support groups modeled on the success of the Neurological Support Group, currently meeting fortnightly in Finding Space, at St Joseph’s which offers social and therapeutic support to people with neurological conditions such as motor neurone disease, multiple sclerosis, Parkinson’s disease and their carers. This group would provide a stepping stone for other hospice services to join in due course expanding the provision of hospice services beyond the hospice walls. Interest from the therapies, bereavement, psychosocial, CNS and outpatient team has been expressed to date. There may also be the opportunity to work more closely with our partners in Newham such as GPs, community nursing teams, hospital departments, volunteer organisations, schools, colleges, universities, the police etc. There is ongoing consultation with both the Newham Bereavement Service, and Marie Curie Helper Service to explore joint working opportunities with their volunteer cohort in massage training and regular case study supervision. This is to include the training of volunteers in simple and effective hand and foot massage techniques which can be used widely with clients, when judged appropriate, in the home setting. Improvement Priority 3- Strengthening Information Governance – to strengthen patient safety and clinical effectiveness We have actively improved our overall compliance with the Information security regulations and have implemented actions which have been reviewed by the Information Governance committee on a monthly basis. Policy and procedures are in place with on-going audit and review using a structured framework. All staff receive mandatory training relating to information security. It is expected that all information being used efficiently, effectively and in accordance with all legal and ethical requirements. As noted above, during 2014 we have updated our current clinical information system. There has also been investment in our current communication systems ensuring that they are up to date and have increased resiliency as well as making sure that our network infrastructure is able to cope with increasing demands. We have now achieved full connection to the NHS N3 network, which will enable easier transfer of patient information in a secure environment. 18 Our current telephone system had a number of shortcomings and is in the final stages of being replaced by an integrated system. This will address a number of important issues, including our main telephone does not have a call queuing facility and no automated voice attendant which results in callers hearing constant ringing when switchboard are dealing with a single call. The proposed new system benefits are as follows: • Web based system – this allows users to log on remotely and will support off-site connectivity which will support satellite offices and/or home working. • Windows based - it connects to Windows operating systems and allows individuals (with permission) and work groups to configure call routing to support their working practices. • Can be linked to Outlook and a central telephone directory so reception team and other staff can see staff availability for improved level of customer service • the system will be able to handle multiple incoming lines through the main switch • Voice recording for audit, training and customer service quality control • Automated attendant – multiple voicemail (unavailable or service announcements) messages can be set up to support individual department services. • Ability to send multiple SMS messages All providers are able to provide a maintenance service including Out of Hours support – a key requirement given that we are providing services over extended hours This will greatly improve the efficiency of our teams and enhance communication across the different disciplines who may be involved in and individuals care or treatment. Improvement Priority 4- Leading on Partnership working Coordinate My Care We have been working with our partners during 2013-14 to continue with the introduction of Coordinate My Care (CMC) – which is an electronic record to enable health and social care professionals to access information relating to preferences at the end of life for patients with life limiting illnesses. This system has been developed following the 2008 End of Life Care Strategy which recommended ‘creation of locality wide registers for people approach end of life so that they can receive priority care.’ CMC has continued to be developed by NHS clinicians to improve coordination across acute and community providers 24/7. The Hospice hosted an East London Multi-professional meeting in May 2014, with representatives from palliative care team around East London and member of the CMC facilitation team to review the issues around some concerns about its use. This was a positive meeting and the benefits were re iterated. The hospice continues to use this tool as required. CMC represents a new way of working, which is designed to benefit patients by: • empowering patient choice • not needing to repeat information when seeing a new nurse/doctor • enabling 24/7 access to live information which will improve communication and coordination of care across all sectors • ensuring a more appropriate response to crisis calls with the potential to reduce inappropriate hospital admissions and LAS transfers End of Life Care Facilitation Service The Newham End of Life Care Facilitation service will complete the 3 year contract at the end of November 2014.This service has involved engaging with stakeholders across 19 primary, secondary, community and the third sector, including care homes, to improve choices and opportunities for people in Newham at the end of life. The service has promoted high visibility of hospice staff in leading improvement to outcomes of care for people at the end of life. This service is led and managed by St Joseph’s in partnership with NUHT and works closely with the St Joseph’s Community Palliative Care Team. Drawing on this experience, a review of the hospice community palliative care service recommended in 2013 a greater proportion of dedicated time is spent in all three of our Borough-based teams to build external relationships with partners across health and social care which will promote shared understanding, increase opportunities for joint working and encourage informal learning. In 2013, the Hospice had access to a 1 year funding opportunity coordinated by Health Education North Central and East London, the Local Education and Training Board (LETB). We received funding to extend the End of Life Facilitation model in Newham to Tower Hamlets and City and Hackney and the Newham Facilitators have taken a lead role to extend their service model into the LETB funded posts in the other boroughs combined with a longer term exit strategy for education and facilitation within East London. Our plans are that one of the Clinical Nurse Specialist within each borough team would take a lead for end of life care education and facilitation for the local health and social care community with the aim of sustaining and widening some of the aims and principles of the Newham service Supportive Care Services in Newham From 2014, the Hospice social work team have formed a partnership with the London Borough of Newham team to enable a social worker from each team to be seconded across health and social care; this will enable the social worker to experience social care for people and their families with life limiting illness and end of life within another sector, provide professional development and form professional links Age UK East London and St Joseph’s Hospice – Last Years of Life Service Both organisations were successful in a joint bid submission to deliver personal care, emotional and practical support to people of Tower Hamlets in their Last Years of Life. Age UK have previously provided this service over 2 years and are now collaborating with us to introduce other elements of this service. Namaste Care a sensory therapy for people with cognitive impairment which will be provided by St Joseph’s Hospice. This partnership continues our positive engagement with Age UK. Jewish Care Domiciliary Care Team The hospice has provided a series of workshops for social care workers of the domiciliary team, Jewish Care. This has provided an excellent opportunity to see how we can best support and develop skills for generalist teams who are caring for people at end of life. This opportunity has furthered our ongoing engagement and visibility within the Jewish community. Marie Curie Cancer Care and carers We have continued to partner with Marie Curie Cancer Care over the past 2 years to explore how we can jointly improve end of life care across East London and to ensure the voluntary sector contribution is visible within the new commissioning arrangements. We have focused on 2 key areas of work: coordination of care for east London and support for carers. The pace of progress has been determined by the engagement of the CCG leads and how our proposals align with the emerging models of integrated care. There has been renewed interest by City and Hackney in care coordination and rapid response models of care as part 20 of the ‘One Hackney’ initiative to strengthen integrated care and ensure more people are cared for in the community and reduce the number of avoidable acute hospital bed days. Work on supporting carers continues with a lead by Tower Hamlets CCG who are engaging stakeholders across statutory and voluntary sector to plan a multi sector carers event to develop service improvements. Engaging with other Hospices Richard House Children’s Hospice Inpatient unit has been at St Joseph's hospice since December 2013 whilst their hospice is being redeveloped, and work continues on our joint transitional care programme. The hospices are considering further opportunities for collaborative working. An alliance has been proposed between both organisations to explore our common focus and purpose in palliative care, and to review a number of areas where we could work more closely together. Statements of Assurance from the Board The following are a series of statements that all providers must include in their Quality Account. Many of these statements are not directly applicable to specialist palliative care providers. 1.1 Review of services During 2013/14 St Joseph’s Hospice provided seven key service areas for the NHS. The services were as follows: • • • • • • • In-Patient Day Hospice Community Palliative Care Team Intervention Finding Space- community engagement and information service (the latter in partnership with Macmillan) Bereavement and Psychological Therapies Social work End of life care facilitation St Joseph’s Hospice has reviewed all the data available to them on the quality of care in all its services. 1.2 Income Generated The income generated by the NHS services reviewed in 2013/14 represents 100 per cent of the total income generated from the provision of NHS services by St Joseph’s Hospice for 2013/14. The income generated from the NHS represents approximately 55% of the overall cost of running these services. 2 Participation in Clinical Audits During 2013/14, we did not take part in any national clinical audits and national confidential enquiries covered NHS services relating to palliative care. St Joseph’s Hospice only provides palliative care. 21 2.1 Eligibility to Participate in National Confidential Enquiries During that period St Joseph’s Hospice was not eligible to participate in any national confidential enquiries. 2.2 /2.3/ 2.4/2.5 National Enquiries. Clinical Audits and National Confidential The national clinical audits and national confidential enquiries that St Joseph’s Hospice was eligible to participate in during 2013/14 are as follows: None. As St Joseph’s Hospice was ineligible to participate in any national clinical audits and national confidential enquiries there is no list or number of cases submitted to any audit or enquiry as a percentage of the number of registered cases required by the terms of the audit or enquiry. 2.6/2.7/2.8 Local Clinical Audits The reports of 11 local clinical audits were reviewed by St Joseph’s Hospice during 2013/14 and in addition we carried out infection control audits every month (See Appendix 2). St Joseph’s Hospice intends to take the following actions to as a result: • • • • • • • • • • Develop standards re data recording /communication with staff Develop hospice policy for use of unlicensed medication Approve and implement new Standard Operating Procedure on prescribing and administering injectable medication Improve pharmacy IT access Produce ‘staff guide’ for staff on use of diamorphine & morphine injectables ensure easy access to information Continue development of operational procedure to strengthen the work of multidisciplinary first contact team to improving ease of access to the range of hospice service. Improve documentation, through regular documentation audit in annual programme for 2014-2015 to ensure standards for record keeping are maintained. Continue staff mandatory training in Information Governance for all staff Continued audit of Nursing Compliance with Monitoring of Blood Transfusions Encourage pro-active MDT discussion to identify patients who are nearing the end of life. 3. Research The number of patients receiving NHS services provided or sub-contracted by St Joseph’s Hospice in 2013/14 that were recruited during that period to participate in research approved by a research ethics committee was 0. There were 0 appropriate national research studies and 8 local ethically approved research studies in palliative care in which we have participated. These include: 22 Studies completed by external researchers • (Developing a measure of psychological resilience City University) • Carers perception of sedation at the end of life -(UCL) • Employee engagement and self-determination in charity sector employees -(City University) • Volunteer Management in palliative care phase 1 - (Lancaster) • Photographic exploration of a hospice palliative care setting with reference to themes of environment and absence (London Metropolitan) • Interviews with palliative care social workers - (Middlesex university) Current studies being undertaken by external researchers • Qualitative study of the outcomes of Acupuncture - (Warwick University) • Exploring the concept of work engagement in a hospice setting - (City of London University . We currently have 8 studies that are awaiting ethical approval. 4/4.1/4.2 Quality Improvement and Innovation Goals Agreed with our Commissioners St Joseph’s Hospice income in 2013/14 was not conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment framework. 5/ 5.1 What Others Say About Us St Joseph’s Hospice is required to register with the Care Quality Commission and its current registration status is unconditional. The Care Quality Commission has not taken any enforcement action against St Joseph’s Hospice during 2013/14. On-going feedback is received and analysed regularly by the Clinical Governance Lead and the Hospice Director of Care Services. The following feedback has been received for this quarterly report, from the Hackney Health and Scrutiny Committee and Newham Clinical Commissioning Group, our Lead Commissioners: 23 24 25 6/6.1 Periodic reviews by the CQC St Joseph’s Hospice is subject to periodic reviews by the Care Quality Commission and the last formal review was a visit in October 2013 and March 2014 with a subsequent written report. The CQC’s assessment of St Joseph’s Hospice was that the establishment met all the standards reviewed, which included: Standards Consent to care and treatment Care and welfare of people who use services Cleanliness and infection control Assessing and monitoring the quality of service provision Complaints Respecting and involving people who use our service Safety and suitability of premises Safety and suitability of equipment Supporting workers Records Outcome 2 4 8 16 17 1* 10* 11* 14* 21* *East Ham Care centre 7. Reviews and investigations by CQC St Joseph’s Hospice has not participated in any special reviews or investigations by the CQC during 2013/2014. 8 Data Quality St Joseph’s Hospice will be taking the following actions to improve data quality: • • • • Continue to work to improve our technology links with the NHS Review our information technology system with a view to further refining our collection, analysis and application of data, moving our entire information platform to deliver at a higher level of complexity and sophistication Working to further embed the culture of data capture, its use and application across the organization The hospice has shared records in accordance with the Data Protection Act. 9. NHS Number and General Medical Practice Code Validity St Joseph’s Hospice did not submit records to the Secondary Uses service for inclusion in Hospital Episode Statistics which are included in the latest published data. 10. Information Governance Toolkit Attainment Levels A self-assessment was undertaken by Clinmed consulting, February 2014 as part of our organisation’s information governance arrangements for N3 connection to NHS information systems. The hospice has undertaken a self-assessment and has compiled an improvement plan in line with the IT service developments that have taken place during 2013/14 26 11. Clinical Coding Error Rate St Joseph’s Hospice was not subject to payment by results clinical coding audit during 2013/2014 by the Audit Commission Part 3: Review of Quality Performance In terms of quality of care for our patients, once the initial referral has been received each individual receives a holistic assessment, comprising physical, psychological and spiritual dimensions from our multi-disciplinary team. Each assessment is carried out in accordance with each patient’s expressed needs wherever possible, and includes their family and carers. Following this process, options are outlined to each patient and their family and explanations are given about which of the Hospice services best might meet the needs of the individual. If the offer of care is accepted then on-going review of patients by qualified clinicians takes place in all service areas. Care plans are agreed in conjunction with patients and their families and these are reviewed regularly and routinely, with active patient engagement wherever possible. St Joseph’s receives many commendations from patients and families, and only a very small number of complaints are received each year (three in 2013/14). Commendations are welcomed and celebrated at Senior Management and Board level, and with individual teams. All complaints are taken extremely seriously. They are all thoroughly investigated, reported on at Senior Management level and to the Board and reported to the CQC annually. Immediate action is taken to rectify any shortfalls or concerns identified, and appropriate training is given out as necessary. Policies and procedures related to clinical governance may be altered as a result of complaints and any lessons learnt are shared across the teams. The Hospice is committed to reaching and engaging with the many diverse local communities that we serve. We collect, analyse and monitor our performance in this area to inform both practice and service development. The chart below shows the total proportion of patients from different ethnicities in 2013/14 and that 28% of our patients were from BME communities. We recognise that we are not necessarily capturing all information regarding ethnicity of our services users and this is being addressed through our Equality and Diversity Group. 27 The Hospice is committed to producing high quality and reliable information on which to base its decisions about service delivery and continuous service improvement .We have made significant progress in the last two years in terms of improved scope and quality of data. We continue to consider this as a priority for the coming year. 28 GLOSSARY Care Quality Commission The Care Quality Commission (CQC) replaced the Healthcare Commission, Mental Health Act Commission and the Commission for Social Care Inspection in April 2009. The CQC is the independent regulator of health and social care in England. It regulates health and adult social care services, whether provided by the NHS, local authorities, private companies or voluntary organisations. Visit: www.cqc.org.uk Clinical audit Clinical audit measures the quality of care and services against agreed standards and suggests or makes improvements where necessary. Commissioners Commissioners are responsible for ensuring adequate services are available for their local population by assessing needs and purchasing services. Primary care trusts are the key organisations responsible for commissioning healthcare services for their area. They commission services (including acute care, primary care and mental healthcare) for the whole of their population, with a view to improving their population’s health. Local Involvement Networks Local Involvement Networks (LINks) are made up of individuals and community groups which work together to improve local services. Their job is to find out what the public like and dislike about local health and social care. They will then work with the people who plan and run these services to improve them. This may involve talking directly to healthcare professionals about a service that is not being offered or suggesting ways in which an existing service could be made better. LINks also have powers to help with the tasks and to make sure changes happen. Overview and scrutiny committees Since January 2003, every local authority with responsibilities for social services (150 in all) have had the power to scrutinise local health services. Overview and scrutiny committees take on the role of scrutiny of the NHS – not just major changes but the ongoing operation and planning of services. They bring democratic accountability into healthcare decisions and make the NHS more publicly accountable and responsive to local communities. Registration From April 2009, every NHS trust that provides healthcare directly to patients must be registered with the Care Quality Commission (CQC). Regulations Regulations are a type of secondary legislation made by an executive authority under powers given to them by primary legislation in order to implement and administer the requirements of that primary legislation Schwartz rounds Schwatz rounds offer healthcare providers a regularly scheduled time to openly and honestly discuss social and emotional issues that arise in caring for patients. The focus is on the human dimension of caring. Caregivers have an opportunity to share their experiences, thoughts and feelings on thought-provoking topics drawn from actual patient cases. The premise is that caregivers are better able to make personal connections with patients and colleagues when they have greater insight into their own responses and feelings. 29 Appendix 1 – MDS Data The below data has been extracted from the St Joseph’s Hospice, Hackney National Minimum Dataset (MDS) submission to the National Council for Palliative Care (NCPC). This data is also shared with our three local CCGs (Newham, Tower Hamlets and City & Hackney) on a quarterly basis. The most recently published MDS dataset report from the NCPC was released in June 2014, for the period 1st April 2012 to 31st March 2013. This is the most recent data available so we have provided these national figures as a comparison to our data, along with our data for the previous year which is a direct comparison to the MDS national dataset. In Patient Unit - IPU % New patients % Occupancy % Diagnosis – non cancer % Ethnicity – non-white % Patients returning home from an IP stay Average length of stay STJH 13/14 STJH 12/13 93% 80% 22% 33%* 84% 77% 21% 33% MDS – National Mean (12/13) 82% 75% (London 76%) 13% 23% 48% 48% 37.8% 16.3 days 15.7 days 14.4 days Community Palliative care team - CPCT STJH 13/14 STJH 12/13 71% 22% 42% 69% 20% 38% MDS – National Mean (12/13) 69% 16% 28% 69% 69% 67% 134 days 136 days 111 days STJH 13/14 STJH 12/13 MDS – National Mean (12/13) % New patients 64% 62% 61% % Diagnosis – non cancer % Ethnicity - nonwhite Caseload 25% 38% 40.68 27% 42% 62.05 23% 21% 54.80 % New patients % Non-cancer patients % Ethnicity – non white % Homecare patients who died at home/hospice Length of care Day hospice 30 Appendix 2 - Completed Audits since April 2013 with actions completed Title Infection Control & prevention Audits using the Help the Hospices toolkit Audit of Nursing Compliance with Monitoring of Blood Transfusions Audit of CPCT documentation Multi professional framework- End of Life Care needs and documentation of care after death. Implementation and use Aims Aspect of service delivery being audited To ensure compliance Improving with best practice patient safety Actions completed Goods compliance – continue with monthly Hand washing audits To ensure all aspects of blood transfusion are managed effectively and safely within St Joseph’s and comply with ‘Better Blood Transfusion Safe and Appropriate Use of Blood’ guidance Improving patient safety 6 monthly audits scheduled into annual plan To ensure compliance with standards for record keeping & interdisciplinary working Re-audit to confirm continued improved compliance with good standard in relation to end of life care Improving patient safety Develop standards re data recording /communication Improving patient/family/c arers outcomes Revised documentation only just been introduced There is room for improvement in our completion of the care after death paperwork The bereavement team have asked for a prompt for referral to them. Re- Assessment must be undertaken for any patient re admitted or when changes occur during their stay scores to be reassessed Plan to re-audit Oct 2014 Develop hospice policy for use of unlicensed medication (A medicinal product that does not hold a UK marketing Mandatory Training in place Audit best practice for Patients who have acquired pressure ulcers whilst in Hospice Monitor compliance Improving with the patient recommendations outcomes from RCN & NICE regarding best practice NPSA safety alert 20: Promoting safer use of injectable medicines To assess compliance with the recommendations listed in the NPSA Improving patient safety 31 Patient Safety Alert 20 NPSA patient safety alert 12: Ensuring safer practice with high dose ampoules of diamorphine and morphine NPSA patient safety alert 12: Ensuring safer practice with high dose ampoules of diamorphine and morphine Are we prescribing and monitoring steroids appropriately? Audit of VTE prophylaxis and prescribing on the in-patient unit No national guideline Improving on standards within patient hospice care outcomes Information governance audit Audit of oxygen use in the hospice inpatient unit Improving patient safety Are we considering VTE prophylaxis and prescribing it appropriately Improving patient outcomes Assessing compliance with national guidance on information governance? Are we prescribing oxygen in line with national guidance Improving patient safety Improving patient safety authorisation). Revise SOP on prescribing and administering injectable medication Improve pharmacy IT access Regular relevant mandatory training Plan to re-audit Produce ‘staff guide’ for staff on use of diamorphine & morphine injectables to ensure easy access to information Develop & disseminate Pharmacy led training bulletin reporting on outcomes of audit, relevant incidents etc Develop guidelines on Opioid switching based on up to date guidance Teaching delivered to CNSs on prescribing and monitoring steroids. Guidelines to be developed Presentation to teams, existing guidance highlighted. Change prompt on drug chart Regular review of need for VTE prophylaxis Detailed action plan reviewed at monthly IG Committee meeting to ensure continued compliance & monitoring Good compliance – results disseminated through Medical Gases Committee. Continue education around prescription and use of oxygen Drug prescription chart redesigned to facilitate safer prescribing and monitoring of oxygen use 32