Q St Helena Hospice Quality Account 2013 - 2014 “People told us that care and treatment options were explained in detail and that they were fully involved in setting and reviewing their goals. They said that this helped them to feel more in control.” “It was evident that staff, at all levels of the organisation, were committed to improving the quality of the hospice services.” A statement from the Care Quality Commission inspection report September 2013 Registered Charity Number 280919 ST HELENA HOSPICE QUALITY ACCOUNT 2014-15 Contents Page SECTIONSPAGE Part 1 Introductory Statement by the Chief Executive Mark Jarman – Howe 3 Statement from the Board of Trustees 4 Part 2 Priorities for improvement 5 Future Priorities for improvement 2014 - 2015 5 Priorities for Improvement from 2013 – 2014 9 Mandatory statement of assurance from the Board of Trustees 14 Part 3 Review of quality performance Quality Initiatives 20 What people say about our organisation? 31 Statement from North East Essex Clinical Commissioning Group 31 Statement from Healthwatch Essex 32 Statement from the St Helena Hospice Service User Group 33 2www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 1 QUALITY ACCOUNT 2014-15 Part One: Introductory Statement by the Chief Executive Mark Jarman-Howe St Helena Hospice aims to be the lead provider for palliative and end of life care within North East Essex and the Colne Valley. Established for nearly 30 years it is a positive and dynamic organisation determined to make a difference to the quality of care received by patients and their families, and to ensure year on year that the extent of unmet need is steadily eroded. The Hospice has a range of professional teams and services including a large Hospice Nurse Specialist team, Hospice at Home service, a 15-bedded inpatient unit, and two day centres – one in Colchester, co-located with the inpatient unit, and one at our Tendring Centre in Clacton. We also have a large complementary therapy team, a growing rehabilitation team, vibrant chaplaincy team and excellent bereavement services. We also provide a transition service for young adults in partnership with The J’s Hospice. In 2013/14 we implemented the 24/7 SinglePoint telephone advice, referral and coordination centre service for patients, their families and professionals. This includes hosting the My Care Choices electronic end of life register for the locality. We also extended our bereavement service and are pleased that this is now available to everyone who requires such support in our locality regardless of their age or reason. We continually explore ways to extend the scope and responsiveness and quality of our services, and work closely with other providers and service users. We provide an education centre, linked with a local university, which has one of the best specialist libraries in the country, and supports our varied education programme. We highly value innovation and research and continue to develop our own in-house practice development methodology known as the HEARD model (Hospice Education And Research and Development). Safety and quality are at the heart of our commitment to excellence in all the services we provide and we welcome the opportunity to share our progress and priorities in this report. For further information about St Helena Hospice, including Strategic Plans, recent CQC Inspection Reports and Patient Survey Reports please see our website at www.sthelenahospice.org.uk Mark Jarman-Howe Chief Executive St Helena Hospice telephone 01206 845566 3 S T H E L E N A H O S P I C E PA R T 1 QUALITY ACCOUNT 2014-15 Statement from the Trustees The Board of Trustees is committed to ensuring the quality and sustainability of the care provided to patients, whether delivered within the hospice environment or in the community. To this extent the Board is organised into sub-committees, representing all the main hospice activities, which meet regularly with staff and management to review current services and future developments. These sub-committees report directly to the Board. A corporate governance sub-committee, also reporting direct to the Board, monitors overall compliance with current practices, policies, and procedures and has responsibility for risk management, especially those risks which may impact patient care. Trustees continue to show an appetite for investing in strategic developments and, in this respect, fully support the new SinglePoint initiative. They are pleased to see that evidence proves it is already valued by patients and carers as well as helping to reduce avoidable hospital admissions and, indeed, has become central to the hospice services. Trustees also commend the Chief Executive and the senior management team on establishing an excellent relationship with the local Clinical Commissioning Group which we believe will result in more inclusive, integrated and consistent quality care for palliative and end of life patients. The Board is confident that the care and treatment provided by St Helena Hospice is of a high quality, is cost effective and can be sustained in the foreseeable future and they fully endorse this Quality Account. Peter Vergo Chair of the Board of Trustees “ I want you and your colleagues to know that the care we received from Hospice at Home was of the highest standard, the best I have ever experienced, and without fault. Everyone, including the phone call handlers, were very kind, sensitive, knowledgeable, and professional. You all have such a holistic, person centred ” approach, and very good listening skills. Also, it seemed that you were never rushed. From patient and family feedback 2014 4www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 2 QUALITY ACCOUNT 2014-15 Part 2: Priorities for Improvement Introduction St Helena Hospice Strategic Plan covers the three years between 2014/15 to 2016/17 Our Strategic Objectives for the next three years are: 1 We will meet the specialist palliative care needs of all patients, and their families, at any stage of their illness regardless of diagnosis 2 We will meet all palliative and end of life care needs of patients identified as being in the last 12 months of life and support their families 3 We will promote open attitudes in our community toward death and dying, and provide bereavement support to all that need it. How we will achieve this • The care we provide will be individualised and unique • We will continuously improve our services to ensure that they deliver quality, flexibility and cost effectiveness • We will work and act in a way that makes a positive contribution to our local community The quality issues in this Quality Account are related to the provision of direct clinical care services and those support services that are related to patient and family care. It does not relate to other functions at St Helena Hospice such as income and marketing and administration. Future Planning and Priorities for Improvement 2014 – 2015 These priorities for improvement have been developed through consultation with those who provide services and representatives from the service user group. The priorities that have been selected directly impact on the three domains of quality • Patient safety • Clinical effectiveness • Patient experience telephone 01206 845566 5 S T H E L E N A H O S P I C E PA R T 2 QUALITY ACCOUNT 2014-15 Future Improvement Priority 1 Expansion of the St Helena Hospice Bereavement Service. Quality Domains: Clinical Effectiveness / Patient Experience People who experience bereavement need to have their loss recognised and acknowledged by professionals. We have a responsibility to ensure that information and practical and emotional support is available to people who are bereaved. The manner in which professionals and volunteers respond to those who are bereaved can have a long term impact on how they grieve, their health and their memories of the individual who has died. (Reference “When a person dies”: Guidance for Professionals on developing Bereavement Services. National End of Care Programme. www. endoflifecareforadults.nhs.uk) St Helena Hospice already supports bereaved adults and children where the patient was known to hospice services. During 2013 the bereavement team gave support to approximately 1600 people. In the future St Helena Hospice bereavement service will offer bereavement support to ALL newly bereaved families and individuals, including children, who live in North East Essex Standard The service will be developed and extended to include all those who are bereaved in North East Essex including those individuals and families who are not already known to the Hospice. The extended service will increase the number of individuals who receive the offer of support pro-actively. Previously Bereavement support was available for 45% of local deaths and the extended service will offer support to 100%. How the priority was identified In 2011 the report by the Marie Curie Delivering Choice programme for North East Essex identified that there was inconsistency in the bereavement support services available and confirmed the need for an equitable service for every newly bereaved family or individual connected with the deceased in North East Essex. This is also in line with the guidance in the Department of Health 2008 End of Life Strategy How this will be achieved Additional counsellors and bereavement volunteers were recruited in 2013 to enable the service expansion to take place. These staff have undergone a thorough training and induction programme. Studies have shown that trained volunteers are used very successfully in bereavement counselling and this is the model that has been used successfully to date by St Helena and will continue into the future.. (Adult Bereavement Support in Five Hospices in England.D. Field et al, Palliative & End of Life Care Group, Sheffield University 2006 – 5.13.2. (65)) We will co-ordinate bereavement care for the whole locality of North East Essex and information about the service has been distributed across the locality - to health and social care services 6www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 2 QUALITY ACCOUNT 2014-15 (including the local hospitals and all GP practices), community groups and education facilities. There will be a strong link with the bereavement suite at Colchester General Hospital and collaborative work has already been undertaken to enhance the facilities when a family come to view the deceased at the hospital. Calls to the Bereavement Service will be triaged by a qualified counsellor who will assess the needs and urgency of the care and support required. We will provide equity of access to services for bereaved individuals and families, including children. Measures to monitor effectiveness: The measures we will use to develop and strengthen the Bereavement Service will include • A questionnaire will be given to all people who have used the service when our support has ended to gain feedback about the efficacy and quality of the service. The feedback will be analysed and used for further improvements and refinements. • For complex bereavements where counselling is appropriate we are currently developing a tool, called the Bereavement Gauge to be used by the client to give them the opportunity to be part of their own process. The tool will enable us to work alongside the client in assessing the process during their counselling sessions and to assess their emotional wellbeing and future needs. • Reports will go to the Board of Trustees via the Clinical Governance committee and to the CCG via regular commissioning meetings Future Improvement Priority 2 Providing a 7 day a week Rehabilitation Service. Clinical Effectiveness, Patient Experience and Patient Safety St Helena Hospice offers a rehabilitation service Monday to Friday consisting of Physiotherapists, Occupational Therapists and Rehabilitation Assistants. There is currently no rehabilitation service at weekends or on bank holidays. A patient with urgent needs referred to the rehabilitation team would have to wait until the following week. This could result in a delayed discharge or an unnecessary admission to hospital. Other services at St Helena Hospice already offer 7 day provision, for example Hospice Nurse Specialists, SinglePoint etc. A 7 day Rehabilitation service will enable patients to have wider access to the multiprofessional team. telephone 01206 845566 7 S T H E L E N A H O S P I C E PA R T 2 QUALITY ACCOUNT 2014-15 Standard St Helena Hospice will extend rehabilitation services in order to provide an out of hours service during weekends and bank holidays, involving at least one qualified rehabilitation professional. The service will be able to provide advice to the SinglePoint team, respond to any urgent request for assessment in the community, have input to the Inpatient Unit for new admissions and provide early intervention across all settings. Measures Pilot study is to be completed to look at the most effective ways of delivering a 7 day Rehabilitation Service. Feedback will be requested from patients/carers and professionals about the responsiveness of the service. Audit of response times Future Improvement Priority 3 Community Services SinglePoint Quality Domains: Clinical Effectiveness, Patient Experience, Patient Safety There is still much work to be done 1 The development of a call clinical review tool pertinent to palliative and end of life care is planned for April/May 2014. This will allow an audit of the consistency of clinical advice given. 2 Improved collaboration with all stakeholders is an ongoing priority. Engaging all providers has proved challenging but great cooperation with the East of England ambulance service has been invaluable. The End of Life Care team from Anglia Community Enterprise have been very supportive of the initiative from the outset. 3 The impact of the SinglePoint service and also wider hospice services on avoidable hospital admissions is being explored by an admission avoidance group that meets fortnightly to examine when patients are admitted to hospital or if an intervention has prevented admission. Gaps in service provision have been explored and immediately the lack of an Occupational Therapy services in Colchester during the last 3 months of life became apparent. The hospice committed resources to a new post and this will be taken up in May 2014. 4 There needs to be ongoing integration of specialist and generic palliative care services. A specialist palliative care nurse is present in the SinglePoint office 7 days a week for complex advice and support, as well as access 24/7 to the on call hospice doctors. 5 Gathering patient and family feedback via the patient survey will yield productive information to inform future service direction 6 Medication and palliative care competencies have been developed for all registered nurses to ensure consistency of practice and continuous professional development 8www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 2 QUALITY ACCOUNT 2014-15 7 Similarly development and training in the use of PGD’s will enhance the patient experience in making access easier to some basic comfort measures such as managing constipation promptly through appropriate use of suppositories and enemas. Increasing the number of Non-Medical Prescribers will be an ongoing service priority. 8 The majority of the SinglePoint RN’s have undertaken the Advanced Communication Skills Training during the past 6 months 9 A training needs analysis for the entire community team has been undertaken through the annual staff development review. Improvements and developments within St Helena during 2013/14 will be monitored and progress will be reported to and via a range of methods including the following: • The Quarterly Quality meeting • The Clinical Governance Committee • Reports to the Patient and Family Service Committee of the Board of Trustees • The Corporate Governance Committee • Patient and Service User Surveys • The Quality Account • The Annual Review • The Annual General Meeting • Reports to the North East Essex Clinical Commissioning Group • St Helena Hospice newsletters and the intranet • Updates posted on the St Helena website • The HEARD Celebration Day • Volunteers Day Priorities for Improvement from 2012 – 2013 The aim of the Quality Account is to both look forward to priorities for quality improvement in the forthcoming year and also to review and comment on achievements from priorities from the previous year. In last year’s report we set out three priorities for improvement. These priorities were chosen for their direct impact on the quality of care that patients and families receive. The Quality Improvements for last year 2012 – 2013 were: Priority 1 Hospice Education And Research (and) Development (HEARD) Quality Domains – Clinical Effectiveness and Patient Experience Standard To build on, develop and embed a model of practice development, research and education throughout the organisation. This model will celebrate innovation and disseminate learning locally, telephone 01206 845566 9 S T H E L E N A H O S P I C E PA R T 2 QUALITY ACCOUNT 2014-15 regionally, nationally and internationally in order to improve palliative and end of life care for patients and families. The aim is to share the model and promote excellence in palliative and end of life care for the benefit of patients and families. Achievements to date: 1 Staff will be able to evidence their participation in practice development activities through their annual appraisal and personal development plans which link strongly with the organisational strategy • Staff Development Reviews (SDRs) have been completed across the whole organisation within a three month timescale to ensure that all employees have a timely SDR and the opportunity to discuss practice development activities with their line manager. A training needs analysis has been completed using information gathered from SDRs, which will inform an internal programme of training to be developed over the coming months. 2 The presence of staff teaching on a range of subjects related to palliative and end of life care, giving presentations and displaying posters at conferences, study days and on courses held locally, nationally and internationally. European Association of Palliative Care Conference 2013 held in Prague. Two poster presentations • Poster 1 - Improving the quality of palliative care to patients at home through a programme of education for GPs. • Poster 2 - Palliative care education and support across continents and cultures NET 2013 Conference (Networking for Healthcare Education) international conference held in Cambridge. Two theme paper presentations : • Paper 1 – Dealing with Monsters: Using “A Monster Calls” with palliative care nurses studying the impact of bereavement on children. • Paper 2 – Ways to walk the labyrinth: Integrating poetry, art and experience to educate hospice practitioners in the use of labyrinths as a spiritual support. Help the Hospices Conference 2013 held in Bournemouth. Poster presentation: • Poster - Developing and celebrating good practice in a hospice setting: equipping a workforce for a changing and uncertain future. 10www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 2 QUALITY ACCOUNT 2014-15 3 St Helena teaching and clinical staff have taken part in many teaching sessions both within the Hospice, and for other establishments in the area throughout the year. The aim of this initiative is to share experience and promote excellence in palliative and end of life care for patients and families in all settings. All of these activities will have a positive impact on the quality of care and address the three domains of quality namely safety; clinical effectiveness and patient experience Examples of activities which have taken place over the last year are: I II III IV V VI Hospice Nurse Specialists, Lymphoedema service staff, Doctors and Complementary therapy team leader teaching on internal degree level modules held here at the Hospice. Staff from all directorates are involved in the organisation wide induction days These days are mandatory for all staff and volunteers joining St Helena Teaching staff delivering off-site teaching for local care agencies and Nursing Homes. Teaching and clinical staff providing study days for Consultants and Paramedics in the locality – Consultants’ study day, Paramedics Champion’s day. Teaching staff delivering sessions for Anglia Ruskin University at both Chelmsford and Cambridge campuses. Teaching and clinical staff delivering teaching sessions at the University of Essex to both Nursing and physiotherapy students. 4 The success of innovations in practice will be evaluated using criteria agreed through a steering group made up of professionals from within the organisation, service users and academics from local higher education establishments • After much consideration, the Steering Group has been dissolved. This role has been incorporated into the existing Education and Research Committee, which has representatives from professionals within the organisation, user groups and academics from local higher education establishments. Further to this, service user representation has been embedded within the core HEARD group. The criteria have been revised to reflect this change, and continue to be used to evaluate practice development. 5 Innovations and practice development will be available for staff and the public to view on the organisational website and celebrated at an annual practice development day. A very successful Celebration Day was held at the Hospice on 5th March 2013. Several areas of practice development were highlighted, including: • the X Project ( a project with local primary school children), • Videoconferencing with Pakistan palliative staff to give them advice and support, • Open Art Group with patients and families, • Eco-therapies offering patients the opportunity for physical, social, emotional and spiritual support, • Showcasing a practical implementation document which addresses end of life care needs in telephone 01206 845566 11 S T H E L E N A H O S P I C E PA R T 2 QUALITY ACCOUNT 2014-15 relation to lesbian, gay, bisexual and transgender (LGBT) people. The document was developed by the National End of Life Care Programme in partnership with the Director of Education and Research at St Helena Hospice and The University of Nottingham. • Audit in action: Breathlessness clinic and feedback from the service user survey. Following the success of this day, a Celebration Day will be an annual event and the next one is planned for the 12th June 2014. Priority 2 Obtaining Real time feedback from service users Quality Domain – Patient Experience Standard Service users will be facilitated to provide feedback about their experience in a structured way at the time they are receiving the service. Due to organisational changes the work on this priority is ongoing and to date the following has been achieved: • A survey for those who have used the bereavement service has been devised in collaboration with the service user group • Patients in all areas of the hospice have the opportunity to use a comment box and the results of their feedback is analysed on a regular basis. Those who have left their contact details are advised of the action plan following the receipt of their feedback. • An audit of complaints received has been conducted. The auditors included 2 members of the service user group. As a result of this audit improved information has been made available to service users about how they can offer feedback, comments and complain. • A tool has been devised for those receiving counselling. This will be used at each session to determine the effect of the intervention on the person’s emotional wellbeing. • Day service attendees have been consulted about the current service delivery model and asked for their thoughts and ideas for the development of day services in the future. This has been done using focus groups. Priority 3 Safe administration of medication by the Hospice at Home Service Quality Domain: Patient Safety, Patient Experience Standard Patients receiving care at home by the Hospice at Home service will be supported to take their medication by trained and competent assistant nurses. 12www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 2 QUALITY ACCOUNT 2014-15 During the year 2013 - 2014 •All Hospice at Home Assistant Nurses have received training and most are now competent to administer medication to patients in their own home. •The Clinical Managers of the Hospice at Home service worked in collaboration with a GP with CCG responsibility for End of Life Care to develop a Medication Authorisation and Administration Record for use in the patient’s home that is acceptable to GPs and used by the Hospice at Home team and the Marie Curie Nursing Service. •The initiative has been very successful, in particular for respite visits and has enabled the informal carer/family member to leave the home for some time whilst allowing the end of life patient to remain comfortable and symptom free. •There has been an identifiable and real benefit for night time visits allowing the family member to rest undisturbed by the need to get up to administer medication. Priority 4 Providing a 24/7 single point of access for patients at end of life and with specialist palliative care needs. Standard St Helena Hospice will provide a 24 hour service, 7 days a week for North East Essex where patients, family members and health and social care professionals can ring in and receive advice, information, support and if, appropriate, signposting on any issues related to palliative and end of life care. St Helena Hospice will also host the combined electronic register where patients who are within the last year of their life will be registered so that all health care professionals regardless of the service they provide will have access to up to date information allowing them to make informed decisions about the care of the patient. Achievements to date: • On 23rd September 2013 the SinglePoint service was launched to provide a 24 hour 7 days a week single point of access for patients in the last year of life and those with specialist palliative care needs at any stage. During the first 6 months calls to the service have grown steadily from 1997 calls at the end of October 2013 to 2533 in March 2014. • The My Care Choices register (End of Life Care Register) is hosted by the SinglePoint service and the patient numbers populating the register is increasing monthly. • Since September we have received hundreds of letters and emails commending the initiative : ‘The SinglePoint service was so good in that we could always get help or advice, the staff would contact other agencies for us such as GP or district Nurses and they could get things done quickly!’ ‘It was an immense relief to his family that they had only SinglePoint’s number to call for advice. Prior to that they had been gathering phone numbers for all the different teams - immense sigh of relief from them… this was palpable’ (doctor) The service is still evolving and the priorities for the SinglePoint service for the forthcoming year can be found on page 23 telephone 01206 845566 13 S T H E L E N A H O S P I C E PA R T 2 QUALITY ACCOUNT 2014-15 Mandatory Statements relating to quality of NHS services provided The following are statements that all providers are required to include in their Quality Account. Many of these statements are not directly applicable to Hospice services and this will be explained where applicable. Review of services During 2013 - 2014 St Helena Hospice provided the following services: • Inpatient – 15 beds • Day Services - at Colchester and Clacton-on-Sea – 93 places per week • Community services – including Hospice Nurse Specialists. Hospice at Home • Also working in the community are Rehabilitation (Occupational therapy, Physiotherapy) Family Support, Social Work, Chaplaincy, Complementary Therapy and Medical staff • Bereavement services to both adults and children • Chaplaincy • Counselling • Education and training • Family and Carer Support • Lymphoedema Service •Outpatients •Rapid Response to symptom or care problems within the last 3 months of life for people in the community. •SinglePoint – advice, support and information 24 hour hours a day •Therapies – art and music •Transition service - for people between the ages of 16 and 40 living with a life-limiting illness Funding of Services St Helena Hospice is an independent charity which provides all services free of charge. The income generated from the NHS in 2013/14 represents approximately 34 % of the total income. The remaining income to fund our services came from voluntary charitable donations, legacies, Hospice shops. Hospice lottery, corporate and community fundraising. Clinical audits During 2013 -2014 no national clinical audits or national confidential enquiries covered NHS services that St Helena provides. During that period St Helena Hospice participated in no national clinical audits and no national confidential enquiries of the national clinical audits and national confidential enquiries as it was not eligible to participate in any. The national clinical audits and national confidential enquiries that St Helena Hospice was eligible to participate in during 2013/14 was as follows: NONE 14www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 2 QUALITY ACCOUNT 2014-15 The national clinical audits and national confidential enquiries that St Helena Hospice participated in during 2013/14 are as follows: NONE The national clinical audits and national confidential enquiries that St Helena Hospice participated in, and for which data collection was completed during 2013/14 are listed below alongside the number of cases submitted to each audit or enquiry as a percentage of the number of registered cases required by the terms of that audit or enquiry. NONE What does this mean? As a provider of palliative and end of life care St Helena Hospice was not eligible to participate in any national audits or national confidential enquiries during 2013/14. This is because none of them related to palliative and end of life care. Local audits St Helena has established a Quality and Audit Committee to oversee and monitor an annual programme of quality and audit activities. The programme includes a wide range of activities across all clinical disciplines and services. The audit tools used are both national where they exist and locally developed tools strongly referenced to national or local quality standards. The audit process ensures that where necessary a local action plan is agreed. The Quality and Audit Committee receive reports on audits undertaken and monitor the action plans. Re-audits are part of the activity programme to check that improvements have taken place and the audit activity directly results in improvements to patient and family care. The process ensures that all services are involved in quality improvement and assurance. Local clinical audits are conducted by health and social care professionals and teams evaluating aspects of care that they themselves have selected as being important to them and their team. An example of this is the audit of the breathlessness clinic which was conducted by a physiotherapist and a registered nurse. Examples of other audits undertaken during 2013 – 2014 include: •Documentation of CPR status •Complaints Management •Controlled Drugs •Infection Control •Cleaning •Call handling for the SinglePoint service •Discharge letters to GPs •On - going community support from the Hospice Nurse Specialist Team •Letters on the death of a patient telephone 01206 845566 15 S T H E L E N A H O S P I C E PA R T 2 QUALITY ACCOUNT 2014-15 Participation in clinical research The number of patients receiving NHS services provided by St Helena Hospice in 2013 - 2014 that were recruited during that period to participate in research approved by a research ethics committee was NONE. There were no appropriate national, ethically approved research studies in palliative and end of life care in which we could participate during this period. Use of the CQUIN payment framework St Helena Hospice income in 2013/14 was not conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment framework because St Helena Hospice does not use any of the NHS National Standard Contracts. 16www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 2 QUALITY ACCOUNT 2014-15 What others say about St Helena Hospice: Statements from the Care Quality Commission (CQC) St Helena Hospice is required to register with the Care Quality Commission. and is registered to provide the following regulated activities: •Personal Care •Treatment of disease, disorder or injury St Helena Hospice is required to meet the Essential Standards of Quality and Safety. The Essential Standards are described in the Health and Social Care Act 2008 (Regulated Activities) Regulations 2010 and the Care Quality Commission (Registration) Regulations 2009 and the CQC regulate against these standards. During 2013/14 the Care Quality Commission has visited St Helena Hospice and carried out two routine inspections. In September 2013 the CQC inspected the Colchester site (which incorporates the Joan Tompkins Day Centre and the Inpatient Unit) and in November 2013 the Tendring Centre in Clacton-on-Sea. Judgements by the CQC are made as follows: ü û û Met this standard - This means that the standard was being met in the the provider was compliant with the regulation. if we find that standards were met, we take no regulatory action but we may make comments that may be useful to the provider and to the public about minor improvements that could be made. Action needed - This means that the standard was not being met in the the provider was non-compliant with the regulation. We may have set a compliance action requiring the provider to produce a report setting out how and by when changes will be made to make sure they comply wth the standard. We monitor the implementation of actions plans in these reports, and if necessary, take further action. We may have identified a breach of a regulation which is more serious, and we will make sure action is taken. We will report on this when it is complete. Action needed - If the breach of the regulation was more serious, or there have been several or continual breaches, we have a range of actions we take using the criminal and/or civil procedures in the Health and Social Care Act 2008 and relevant regulations. These enforcement powers include issuing a warning notice; restricting or suspending the services a provider can offer, or the number of people it can care for; issuing fines and formal cautions; in extreme cases, cancelling a provider or managers registration or prosecuting a manager or provider. These enforcement powers are set out in law and mean that we can take swift, targeted action where services are failing people. telephone 01206 845566 17 S T H E L E N A H O S P I C E PA R T 2 QUALITY ACCOUNT 2014-15 For the Colchester site the following aspects were inspected: 1 Care and welfare of people who use service - St Helena Hospice met this standard 2 Supporting workers - St Helena Hospice met this standard ü ü 3 Assessing and monitoring the quality of service provision - St Helena Hospice met ü this standard. For the Clacton-on-Sea site 1 Care and welfare of people who use services – St Helena Hospice met this standard 2 Safety and suitability of premises – Action required. Please see below* 3 Supporting workers – St Helena Hospice met this standard 4 Assessing and monitoring the quality of service provision - St Helena Hospice met this standard ü ü ü *Safety and Suitability of premises – action required This related to the width of a door in the Tendring day centre. There had been a comment from one patient who uses a wheelchair that two doors were too narrow to allow them to wheel themselves through the doorway independently. Immediately the report was received an on-site inspection and risk assessment was undertaken to ensure St Helena Hospice is complying with the Disability Discrimination Act. On balance it was agreed that the risk of injury to patients was extremely low as staff are available at all times. A report to the Care Quality Commission was submitted within the required timeframe and no response has been received. The CQC has not taken enforcement action against St Helena Hospice during 2013/14 nor has St Helena been required to participate in any special reviews or investigations by the CQC in this period. St Helena Hospice did not submit records during 2013 – 2014 to the Secondary Uses service for inclusion in the Hospital Episode Statistics which are included in the latest published data. St Helena Hospice uses SystmOne the electronic patient information system and there is a systematic process used to collect and monitor data as follows: •The Clinical Governance Committee through the records management committee receive any incident reports related to data quality •A Data Quality Manager is in post and in addition an IT Training and Reporting Administrator has been appointed to enable data quality and reporting to be further improved. The new post holder will train staff in data input. 18www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 2 QUALITY ACCOUNT 2014-15 •Data reports are scrutinised by the Patient and Family Services Committee of the Board of Trustees on a quarterly basis. •Quarterly meetings take place between St Helena Hospice and North Essex CCG to monitor data quality Information Governance Toolkit attainment levels St Helena Hospice Information Governance Assessment Report score overall score for 2013 - 2014 was 67% and was graded Satisfactory Clinical coding error rate St Helena Hospice was not subject to the Payment by Results clinical coding audit during 2013- 2014 by the Audit Commission. telephone 01206 845566 19 S T H E L E N A H O S P I C E PA R T 3 QUALITY ACCOUNT 2014-15 Part 3 Review of quality performance Detailed below is data about services provided by St Helena Hospice and a review of quality performance during the year April 2013 – March 2014. Referrals Referrals to St Helena Hospice totalled 2172 for the period of this Quality Account Inpatient Services There were 310 admissions to the inpatient unit during the year. Admissions take place 7 days a week. The average length of stay was 19.5 days over the 12 month period. There is clear evidence that since the introduction of the Care Co-ordinator role there has been a reduction in length of stay. This means that people can be back at home or their place of residence more swiftly and can be followed up as necessary and wished by member/s of the community team. The average occupancy over the year for 11 months (there was no data for April 2013) was 76% with variations during the reporting year. Statistics on the length of wait for a bed in the inpatient unit have been kept for the last 3 months of the year and show the average wait for a bed is 3 days. The introduction of Care Coordinator role in the Inpatient Unit We have introduced a new role in the Inpatient Unit, that of Care Coordinator. This development links with all three domains of quality: patient safety, clinical effectiveness and patient experience. Rationale The rationale for creating this role was to further improve the quality of the patient and family’s experience during their inpatient admission, in line with recommendations for acute hospitals from the Francis Report into the Mid Staffordshire enquiry. Excellent communication is required within the team and with professionals outside of the team, in order to ensure the patient’s and family’s experience is a smooth and seamless process. The Care Coordinator role was created in order to facilitate all aspects of the patient and family experience in the Inpatient Unit (IPU). Definition The Care Coordinator is an identified qualified nurse from IPU who is allocated to take on the responsibility for the co-ordination of the provision of palliative care for the patient, their family and friends, during their stay in IPU. This will include pre- admission assessment of patients in conjunction with the keyworker; assessing, planning, implementation, evaluation and reassessment 20www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 3 QUALITY ACCOUNT 2014-15 of care during IPU admission in conjunction with other staff; planning discharge arrangements and care after discharge. The Care Coordinator takes the leading role in the co-ordination of care, treatment, resources and activities that assists the patients in IPU toward improved quality of life and/or adjustment to loss or change. The role of the Care Coordinator is to coordinate when to bring in other professionals such as Occupational and Physiotherapists, Doctors, Counsellors, if these particular skills are needed by the patient and family. The Care Coordinators agreed that to maximise the support they provided this could be achieved by staggering their hours to provide the service between 07.30-18.00. Outcomes Improved Communication Care Coordinators are now identified as point of contact for all community and hospital based keyworkers in relation to patients admitted or being considered for admission to IPU to provide seamless care and prevent duplication of assessment. Care Coordinators meet with the rehab team on a twice daily basis to up date each other on care planning and discharge issues. Care Coordinators liaise with nursing and medical staff to ensure plans are timely throughout admission and relevant information is shared. Patient and families have a point of contact throughout admission, with the Care Coordinators making contact pre admission and also providing a follow up call 24-48 hours post discharge. Feedback Patient and families Relatives have fed back that they like having a named person to speak to. Pen Portrait of patient and family pathway since Care Coordinators in place: A Hospice Nurse Specialist highlighted that Mr A needed a bed on the inpatient unit as an emergency admission. The Care Coordinator was able to contact Mr A and arrange for him to come in that afternoon. The Care Coordinator was able to facilitate this by liaising with nurses on the ward, identifying where patients could move to a bay, in order to provide Mr A with a side room. Admin staff ensured relevant health professionals were aware of the plan to admit. The Care Coordinator was able to be present on Mr A’s admission with the doctor, completed the admission paper work and highlighted Mr A’s needs to the IPU staff. Mr A’s wife needed a lot of support during the admission and throughout his stay on IPU. Mrs A informed me that it was helpful having a named person to go to for any questions or advice. Mr A died after a couple of days and his wife described his death as dignified and peaceful. Mrs A contacted the Care Coordinator after a few days as she was struggling to understand why Mr A had deteriorated telephone 01206 845566 21 S T H E L E N A H O S P I C E PA R T 3 QUALITY ACCOUNT 2014-15 so quickly. The Care Coordinator was then able to arrange for Mrs A to come in and see them together with one of the doctors. Mrs A highlighted how comforting it was that she was still able to speak to someone she knew at the hospice even though Mr A was no longer here. Staff Inpatient staff report now having the time to provide the clinical and emotional support to patients without having to deal with administrative tasks or the pressures of timely discharge. The counsellors on the unit previously spent a proportion of time discharge planning which has now stopped. They are now able to focus on providing specialist counselling support to patients and families and able to provide wider support across the organisation through community one to one sessions and group work. “All the good reports we had heard about the Hospice were completely by our actual experience of the short stay there.” Day Care St Helena has two day centres; one in Colchester and one in Clacton-on-Sea. Both centres offer some days for people attending for a full or part day and some days for outpatient appointments. At the Colchester centre the average attendance on day centre days was 66% and at the Tendring Centre in Clacton it was 52% . Data was kept for 11 of the 12 month reporting period. Day Services is currently being reviewed in order to maximise the potential for these facilities and services. Service users have been part of this process. Outcomes of this review will be in next year’s Quality Account. “It is incredible that all staff and volunteers display such care, kindness, and efficiently at all times to both patients and visitors. There could not have been a more peaceful place amongst such kind people.” 22www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 3 QUALITY ACCOUNT 2014-15 Quality of the environment During 2013 an Estates and Facilities Manager has been appointed to St Helena. The post-holder manages the housekeeping, maintenance and catering functions and staff within those services. The standard of cleaning is checked on a regular basis by the housekeeper and on a formal basis via the internal audit programme which runs on a rolling monthly basis on a quarterly cycle for each of the three clinical sites with the aim of delivering a continuous improvement system. Tablet computers are currently being trialled to improve the effectiveness of site audits and to allow staff more time to focus on the report writing aspect of the audit. The estates and facilities team also work closely with the infection control representatives to ensure that audit findings are discussed and acted upon. The safety of patient care is paramount and delivering a safe environment forms a core aspect of the services provided by the estates and facilities team. There is a maintenance reporting system in place to ensure that maintenance issues affecting patients and the delivery of services to patients are reported in a timely manner and attended to within satisfactory protocols. The in-house maintenance team attend all maintenance issues primarily, and if specialist service providers are required then contact is made and call outs are booked to ensure that the issue can be addressed as soon as possible. There is a planned preventative maintenance schedule in place to ensure that all maintenance equipment, fabric, fixtures and fittings are maintained to a satisfactory level and to ensure early detection of potential disrepair so that the facilities supporting the patients can be kept in good working order and repaired with minimal impact to patients. Non urgent issues that may affect the health and safety of patients and patient families attending the site are also discussed at the health and safety committee meeting, which is chaired by the Health and Safety officer and attended by Trustees as well as staff health and safety representatives. Nutrition for patients is a core service provided by the hospice and the in-house catering team have a 5 star food hygiene rating. The catering team are an integral part of the estate and facilities team and work closely with the clinical team and infection controls leads, and participate in those aspects of the cleaning audits covering food storage and preparation areas, the server and food consumption areas.” Community Services Admission avoidance One of the prime purposes of the new SinglePoint service is to improve communication and coordination around the prevention of dying patients being unnecessarily admitted to an acute hospital. We have set up an Admission Avoidance group, who meets regularly, to investigate any admissions to an acute setting that could have reasonably been avoided, or any potential admissions that were avoided directly as a result of action taken by St Helena Hospice. The level of SinglePoint’s impact so far suggests that we could potentially stop 260 patients being unnecessarily admitted per annum. “ The care and compassion you all showed means so much to me, dad, and everyone that visited mum telephone 01206 845566 ” your Hospice your community services 24/7 01206 890360 23 S T H E L E N A H O S P I C E PA R T 3 QUALITY ACCOUNT 2014-15 Hospice Nurse Specialists Hospice Nurse Specialists continue to cope with high workloads and work 7 days a week. Each day one Hospice Nurse Specialist will be based with the SinglePoint Service to offer their specialist knowledge and advice. 642 Initial assessments and 4217 home visits were were conducted during the reporting year. “ Your monthly home visits were looked forward to, and the helpful advice you always gave. I’m sure you were responsible for arranging a bed in the Hospice when deterioration came quickly just before Christmas. ” Rehabilitation services The rehabilitation service is staffed by Occupational Therapists, Physiotherapists and Rehabilitation Assistants who work in Inpatient services, Day services, and in the Community. Breathlessness management and fatigue management are offered through clinics and home visits. For the 11 months in which data was collected there were 309 Initial assessments by Physiotherapists and 212 by Occupational Therapists. Over the 12 months there were 205 home visits by Physiotherapists and 246 by Occupational therapists. Hospice @ Home Over the past year the Hospice at Home Service provided 7416 home visits enabling those who are ill and their family/carers to manage end of life care in the place of their choosing. The Medical Team The medical team works with patients and families in all settings where the Hospice provides a service. All team members have undergone a 360 degree appraisal during the year and two of the Hospice Consultants have successfully received their re-validation which is now required every 5 years on an individualised 5 year cycle. 24www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 3 QUALITY ACCOUNT 2014-15 “Thank you so much for all the time you spent with me over the two days I was at the hospice. It was really insightful, and cemented my passion in pursuing a career in the medical field. There were some real characters, and the working relationships with the other staff members, and the patients, was incredible, and truly inspiring”. Psycho-social The psycho-social team offers counselling, social work, art therapy, music therapy. and complementary therapies. These are offered in all settings as appropriate to patients and their families including children. Groups are also offered; they vary and are constantly being evaluated in order to meet the changing needs of service users. Groups during 2013 – 2014 were ‘Living with Illness Programme’ – a 6 week programme for patients diagnosed with a serious and incurable illness; ‘Your Space’ bringing together individuals who are involved with a friend or relative who is living with a lifelimiting illness, ‘Family Time’ for patients and families with dependent age children and ‘Caring for Carers’ an evening drop in for carers. “I have been receiving counselling both pre and post death of my mother. It has been a great help to me, it has helped me deal with my loss and accept my loss a lot better than if I had not received it”. Chaplaincy The chaplaincy team work with patients and families in the inpatient, day and community settings. They conducted 74 home visits during 2013 - 2014 Bereavement Data for the bereavement services is being reviewed due to the service expansion. Bereavement support is offered both in preparation for the death of someone close as well as after the death. A range of professionals are involved in bereavement work including counsellors, social workers and the arts therapists. The STARS programme (Supporting; Talking, Adjusting, Remembering, Someone Special) is a Family Grief Support Programme and was held during the year. “ I wouldn’t change a thing, the week- end was great, the sessions were brill, I feel great for working through it, Good to talk when we felt ready ” telephone 01206 845566 25 S T H E L E N A H O S P I C E PA R T 3 QUALITY ACCOUNT 2014-15 The lymphoedema Service St Helena provides a service to those who have lymphoedema as a result of cancer or its treatment. The majority of people are seen in outpatient clinics at either the Clacton or Colchester sites. Those who attend for treatment may not be in the palliative or end of life care stage of their illness. The treatment plan is focused on an initial course of treatment including advice and support for the person to self-manage the condition. Periodic follow up appointments are then planned to maintain the condition and to enable the person to achieve the maximum quality of life possible.Patient and professional education is an important part of the service and an annual conference takes place as well as teaching sessions to a range of health care professionals. “ Excellent presentation; really practical information and great explanation. Feedback from a Lymphoedema Service study day during the year ” The Transition Service St Helena Hospice offers a Transition Service for young adults from the age of 16 to 40. The service is currently available at our Colchester Day Centre once a week. It allows these young adults access to social and psychological support, spiritual care and medical professionals who can monitor their physical wellbeing.. It is a collaborative project with the J’s Hospice in Chelmsford. It is the first therapeutic day centre in the country for young adults with life-limiting illness. Volunteers St Helena Hospice continues to receive a huge contribution to the quality of services from volunteers. During the year a large number attended a Volunteer’s Day where they were given the opportunity to learn more about Hospice plans for the future and to contribute their own ideas and thoughts. The day gave the opportunity to learn as well as share. 26www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 3 QUALITY ACCOUNT 2014-15 Quality Markers that are measured and monitored St Helena Hospice is committed to quality; it is an integral part of everything that we do. In January 2014 we signed up to a pilot of a national hospice benchmarking tool which enables St Helena to benchmark against hospices of a similar size and on a national basis Data is collected on the following incidents in the inpatient unit: •Pressure Ulcers •Falls •Medication errors The pilot has now been completed and the benchmarking will begin from April 2014 In addition the following are monitored: •Complaints and commendations •Risk Management: health and safety, clinical incidents and accidents, patient safety •Quality improvement: research, standard setting, audit, practice development. •Workforce planning: appraisal, supervision, research and education, CPD •Management of poor performance •Caldicott/Information Governance •Service User Group information and feedback Reports on all of the above are given at the monthly clinical governance meeting Complaints and Feedback about patient and family experience 8 complaints have been received during the year 2013 – 2014. All complaints received were fully investigated, any learning identified and the necessary steps taken to put instruction and training into place as indicated. A complaints audit was undertaken in January 2014, two of the auditors were from the service user group. Feedback from service users is monitored continuously. People are encouraged to give feedback via a variety of methods: feedback boxes placed in all areas of the Hospice including reception and the dining room in the inpatient unit; via the website; by talking to staff; via social media. Posters to advise people on how they can tell us about their experience and any ideas they may have are prominently displayed throughout the organisation. Commendations Compliments on the quality of the services St Helena provides are received throughout the year and for all services. These are collated and reported to the monthly Clinical Governance committee. We also receive positive feedback from the Patient Satisfaction Survey which is conducted by the telephone 01206 845566 27 S T H E L E N A H O S P I C E PA R T 3 QUALITY ACCOUNT 2014-15 Service User Group and reported to the Clinical Governance Committee. “ The members of the Hospice Service User Group wish to congratulate all members of staff, the enormous band of volunteers and the management team on these excellent responses.” 28www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 3 QUALITY ACCOUNT 2014-15 The North East Essex Clinical Commissioning Group said of the 2013 Patient survey results: “Thank you for sharing this report with the CCG. Your staff are to be congratulated on providing such good care. We will be reporting this to our Quality Committee and Board Well done” Pressure Ulcers During the reporting year there were a total of 13 pressure ulcers recorded. Of these 2 were grade 4 and therefore reported to the North East Essex CCG as a serious incident. 2 of these ulcers were present on admission to St Helena. Staff conduct a risk assessment with the consent of all newly admitted patients within 24 hours of admission and preventative measures put in place a ccordingly. There is currently a project being undertaken to assess the preventative equipment in use and available to prevent the formation of pressure ulcers. Catheter Acquired Urinary Tract Infections During 2013 – 2014 the number of people who had a catheter already in situ and were admitted to the inpatient unit with a urinary tract infection was 17. There were 5 people who acquired a urinary tract infection whilst in St Helena hospice. VTE Assessments All patients who are admitted to the inpatient unit should have a risk assessment for venous thromboembolism performed on admission. During the reporting year a small number of patients did not have this assessment recorded. Investigation showed that this was a recording error and the SystmOne data templates have been changed as a result to make recording more transparent. Falls During 2013 – 2014 there were 58 patient falls. A pilot if intentional rounding is now taking place which it is hoped will reduce the number of falls by pro-actively addressing the causes of falls such as the need to use the toilet and the desire to maintain independence with diminishing mobility. The risk assessment process for falls prevention is also being reviewed. Medication incidents 22 medication incidents occurred. These were fully investigated and staff re-training implemented as indicated.. There were no serious consequences to patients in any of these cases. Audits of all the above clinical incidents are performed quarterly. We recognise that they have the potential to cause pain and distress to patients and are making every effort to and take responsibility to prevent where possible or to minimise the occurrence of these incidents. telephone 01206 845566 29 S T H E L E N A H O S P I C E PA R T 3 QUALITY ACCOUNT 2014-15 Education and Training St Helena Hospice has an established Education and Research Centre that provides a range of teaching and learning opportunities that are directly applicable to patient care. Subject areas and the approach to learning are underpinned by the 6Cs of care, compassion, competence, communication, courage and commitment and are explicit in many courses. Courses include symptom control, psychosocial issues, family-centred care, and communication skills. A great deal of the teaching is skills based, such as medicines management, and these are further assessed in practice. The level of the courses available range from degree and masters level through to short courses and conferences. Many of the staff, including all nurses, will attend the courses. The academic year of 2012/13 saw 82 student registration for the BSc (Hons) course in Palliative Care and a significant number of those worked at the Hospice. All classroom based teaching is offered to a range of disciplines throughout the Hospice but is also multi-disciplinary in its focus. In addition, a range of different disciplines external to the organisation access the learning opportunities, therefore teaching and learning is collaborative with others from a range of backgrounds and care settings. The classroom teaching is further supported in practice via clinical supervision, completion of competency portfolios and an annual staff appraisal. Service users experiences are central to many courses and some will be part of the teaching and learning; this needs particular support but is often very powerful and provides the unique patient and family perspectives that practitioners can use to inform practice. In this way teaching and learning methods are frequently experiential and will include real experiences. One particular example that builds on this is the Advanced Communication Skills Course which uses actors, video playback and discussion about skills used and their impact on the person. Following feedback, these skills are refined and tried again. The overarching aim is to provide practitioners opportunity to improve their skills and then ultimately improve the patient and family experience by ensuring safety and effectiveness in their physical and emotional care. All teaching and learning reflects a strong evidence-base to equip all staff to deliver the highest quality palliative and end of life care. Link staff are being identified to work on aspects of palliative and end of life care to further improve standards and quality. Examples of this are dementia, staff from inpatient, community day services and education have been identified and links are established with the North Essex Mental Health Trust. Links have been established with a learning disability provider and a multiprofessional team are working to improve both access and information for this group of people. Each Hospice Nurse Specialist has protected time to devote to practice development and learning and some are conducting audits in their field of practice in order to improve the quality of patient care. 30www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 3 QUALITY ACCOUNT 2014-15 What people say about our organisation North East Essex Clinical Commissioining Group response to St Helena Hospice Quality Account 2013-14 North East Essex Clinical Commissioning Group (CCG) welcomes this Quality Account as a commitment to an open and honest dialogue with the public regarding the quality of care provided by St Helena Hospice. Assurance from the CCG is required to ensure that the information in this Quality Account is accurate, fairly interpreted, and representative of the range of services delivered. Though the CCG are commenting on a draft version of this Quality Account, we are pleased to be able to assure the accuracy of the content in general. We have fed back our comments on accuracy in the draft report and anticipate that these changes will be made to the final published version. The CCG is however unable to assure all data reported, as some data will have been provided or updated prior to publication. Your report is a well-presented and public-facing document. The introduction includes a list of services provided by the Hospice, which could have been enhanced by a statement summarising the provider’s view of the quality of the services provided during the reporting period. Quality statements are contained throughout the document and a modification of these to be included in part one would meet with the regulatory advice for quality account reporting. The Quality Account states that the Hospice is registered with the CQC and describes the outcome of the two visits undertaken in 2013 and the subsequent action undertaken by the hospice in response to the findings of the CQC. You have reported on your achievement in the quality priorities that you set for 2013-14, which demonstrates that improvements have been achieved across all priority areas. The CCG would like to congratulate the Hospice on the success of setting up Single Point; My Care Choices Register; and the Rapid Response service. These initiatives will enable patients at the end of their life to be appropriately cared and supported in their preferred place of care. Developing a service in collaboration with other care providers across the health economy has been a significant achievement which will make a real improvement to the experience of patients and their families. Last year we recommended that you undertake local audits and share the findings of these audits. The Quality Account provides reference to these audits and their outcomes. telephone 01206 845566 31 S T H E L E N A H O S P I C E PA R T 3 QUALITY ACCOUNT 2014-15 Overall the Quality Account was a clear and concise report of the good work undertaken by the staff and volunteers at the Hospice. The document evidences this well with the use of CQC feedback reports, patient stories and comments from family carers. The conclusion of the NHS North East Essex CCG is that St Helena Hospice’s Quality Account 2013-2014 provides a clear picture of your improvements and future ambitions for improving quality and safety in your services. The CCG looks forward to continuing its work with St Helena Hospice in the coming year, and encourages you to continue to implement the multiple and wide-ranging efforts and initiatives to improve the quality of its services. Lisa Llewelyn Director of Nursing and Clinical Quality NHS North East Essex Clinical Commissioning Group Statement from Healthwatch Essex for St Helena Hospice Quality Account 2013-2014 Healthwatch Essex is an independent organisation with a vision to be a voice for the people of Essex, helping to shape and improve local health and social care services. We recognise that Quality Account reports are an important way for local NHS services to report on what services are working well, as well as where there may be scope for improvements. We welcome the opportunity to provide a critical, but constructive, perspective on the Quality Accounts for St Helena Hospice, and we will comment where we believe we have evidence – grounded in people’s voice and lived experience – that is relevant to the quality of services delivered by St Helena Hospice. In this light, it is therefore necessary to say services provided by St Helena Hospice have not featured significantly either in our programme of research in 2013-14, or the evidence of people’s voice and lived experience gathered through our outreach or engagement work. As Healthwatch Essex develops these programmes in 2014-15, including some prospective work planned with Essex’s hospices, we would expect St Helena Hospice to feature more prominently in the future. Healthwatch Essex recognises St Helena Hospice’s efforts to engage with service users, encouraging and enabling them to provide feedback about their experience. These methods include - a survey for people who have used the bereavement service, the development of a tool to determine the impact of the counselling service on wellbeing, and consulting day service users about the current service delivery model. The Service User Group, made up of patients and current and previous carers, is vital in ensuring St Helena Hospice uses lived experience to inform decisions. Each year the group also carries out a 32www.sthelenahospice.org.uk ST HELENA HOSPICE PA R T 3 QUALITY ACCOUNT 2014-15 survey on service user experience and views on topics. It is effective in that by allowing the group to control the survey, the Hospice aims to get unbiased, honest opinions on services and where there can be improvement. Healthwatch Essex shares the aspiration of putting patient experience at the centre of services, and believes that listening to the voice and lived experience of patients, service users, carers, and the wider population, is a vital component of providing good quality care. We hope to work collaboratively with St Helena Hospice over the coming year, to engage service users effectively and ensure that their views are listened to and acted upon. We look forward to working together in the production of Quality Accounts in the coming year and making sure that the voice and experience of patients and the public form an integral part of these. Statement from St Helena Hospice User Group “The Service User Group, comprising carers and patients, fully supports the developments underway to further enhance the quality of the existing, excellent services. In particular the group wish to commend the hospice on their active support in two key areas: • extending the bereavement support service to all bereaved people in the area as providing equity in this service was identified by the group as a major and much needed advance; • introducing the SinglePoint service to all palliative patients in NE Essex which the group knew from personal experience would help to ease the stress of caring for someone with a palliative condition. The Group is involved in discussion with all hospice services which enables the views of patients and carers to be embedded in subsequent decisions. The group also continues to carry out the annual patient survey and reports the results to the hospice management and trustees. It is acknowledged that future changes will be challenging for all concerned but the User Group enthusiastically endorses the strategy and looks forward to contributing to its success.” Staff told us that there was excellent communication within the organisation and that they felt “listened to” by the senior management team. They said that there was a good learning environment and support for professional development. Care Quality Commission inspection report September 2013 If you wish to give feedback or to comment on this Quality Account please contact: Mark Jarman-Howe, CEO St Helena Hospice Barncroft Close Highwoods Colchester CO4 9JU 01206 845566 mjarmanhowe@sthelenahospice.org.uk telephone 01206 845566 33 St Helena Hospice is a company limited by guarantee. Registered in England and Wales Number 01511841. Registered Charity Number 280919. Registered Office: Myland Hall, Barncroft Close, Highwoods, Colchester, CO4 9JU. Registered Charity Number 280919 www.facebook.com/sthelenahospice www.twitter.com/sthelenahospice visit www.sthelenahospice.org.uk