1 Part 1: Trust Board Chairman’s Statement St Barnabas Lincolnshire Hospice is a Lincolnshire charity committed to ensuring that local people have access to excellent palliative and end of life care. Our focus is to deliver outstanding services and work with partners to ensure that, regardless of location or diagnosis, patients and their families receive the care and support they require. In our quality accounts we have included a number of initiatives where we have worked with our colleagues. These include developing arrangements to ensure that pressure relieving equipment is prescribed proactively, this not only reduces the risk of pressure damage but minimises the disruption to patients when they are most poorly. In the coming year we will be working with colleagues to arrange for equipment to be collected promptly as we know from families that delays cause them both practical problems and emotional distress. We have worked very closely with colleagues in the mental health trust, prison authority and homeless charities to develop the support for people approaching the end of their life in these settings. Each of these projects combines, not only provision of care but also support for staff working in these areas so that they may develop the skills and confidence to provide palliative care to patients in their keeping. As Trustees of St Barnabas Hospice we are the guardians of the Hospice for the people of Lincolnshire. With this we are committed to ensuring that we listen to the feedback from our patients, their families and the local community so as to promote the development of our services and extend our reach to more people. Over the last few years we have refreshed our day therapy services. The new model designed around the individuals’ priorities, is extremely successful and in the last two years we have seen a 177% increase in the number of people accessing this service, which is funded wholly through charitable donations. With our partners, United Lincolnshire Hospitals Trust, we are developing the range and support for patients in acute hospitals. In the last year our Consultants, working with the Specialist nursing team, saw over 300 patients and facilitated an increase in the number of patients being transferred from hospital to the Hospice in-patient unit. We have also commenced the development of the first ever Hospice in a hospital, which is due to open in 2014 and will not only create a six bedded in-patient unit in Grantham Hospital, but support the wider provision of palliative and end of life care on the hospital site and in the wider community. 2 On behalf of the Trust Board I am pleased to present this Quality Account for 2013/14 and, to the best of my knowledge, the information contained therein is accurate. Mr Robert Neilans Chairman of the Board of Trustees 3 Trust Board Endorsement of the Quality Account We, the Trust Board of St Barnabas Lincolnshire Hospice, are pleased to endorse the content of the Quality Account and, to the best of our knowledge, the information contained therein is accurate. Trustee Signature Mr Tom Murray Mrs Jacky Smith Mr Graham Hale Mrs Sue Glaister Mr Peter Jordan Mrs Ann Daulton Mr Tony Maltby Mr Keith Darwin Mr David Libiszewski 4 Auditors Statement We have audited the information included in the Quality Account of St Barnabas Hospice Lincolnshire for 2013/14 by obtaining, reviewing and verifying the information included in the Quality Account to source documentation held by St Barnabas Hospice Lincolnshire and are satisfied that the information included in the Quality Account is correctly and accurately reported. 5 Part 2: Priorities for Improvement and Statements of Assurance from the Board (in regulations) 1. IMPROVEMENT The Board of Trustees continues to support the continuous development and improvement of its services to ensure that the care and support it provides evolve to meet patient and carer needs. The priorities for quality improvement we have identified for 2014/15 are set out below. These priorities have been identified in conjunction with patients and carers, staff and stakeholders. The priorities we have selected will impact directly on each of the three priority areas; patient safety, clinical effectiveness and patient experience. 1a. Priorities for Improvement 2014 – 2015 Priority One Patient Safety, Clinical Effectiveness and Patient Experience Priority One: Working with other health and social care organisations to lead the development of a palliative care specific pressure damage prevention pathway for the county. 1. The prevention of pressure damage is a national ambition 1 for all patients receiving care because it has a significant impact on the safety and experience of patients. End of life patients are particularly vulnerable to pressure damage because the skin, as an organ, also fails during the dying process and patients may experience other symptoms that preclude some pressure damage prevention activities, for example turning a patient to relieve pressure. Patients at home may not wish to accept pressure relieving equipment in their homes when they are very unwell. NHS and Midlands Strategic Health Authority. http://nhs.stopthepressure.co.uk/ 6 How was the priority identified? This priority was identified at a pressure damage summit held in December 2013 and led by the Deputy Chief Nurse of LCHS as part of the national ambitions work to reduce and eliminate avoidable pressure damage. There is recognition that patients at the end of life are at significant risk of pressure damage. How will priority one be achieved? This priority will be achieved by working together with other organisations, in health and social care to develop a proactive prevention pathway that will acknowledge the specific issues identified in end of life care. The pathway will be based on the revised National Institute of Health and Care Excellence (NICE) guidance on prevention of pressure damage to be published in May 2014. How will progress be monitored and reported? Progress will be monitored through quarterly reports to the Patient Care Executive. Priority Two Clinical Effectiveness and Patient Experience Priority Two: The Palliative Care Co-ordination Centre (PCCC) will be used to recall of equipment from patients’ homes when it is no longer required. Patients require equipment to support care when they are at home, examples include mattresses to prevent pressure damage, commodes and hospital type beds. When the patient dies this equipment is no longer required and families want the equipment removed as soon as possible; particularly when the equipment is in the main living areas. It is currently the community nurse responsibility to initiate the collection of equipment. The Palliative Care Co-ordination Centre is already notified of the death of a patient and has mechanisms for ensuring a variety of agencies are notified in a timely manner. 7 How was the priority identified? This priority was identified by community nursing staff as a way of reducing their work load. In addition as a health community we had received feed back from carers’ representatives that there were delays in collecting equipment and that this caused distress to family. Our Hospice at Home staff, who are not able to recall equipment, had also received calls and observed equipment being dismantled and stored in garages. How will priority two be achieved? This priority will be achieved by working with Lincolnshire Community Health Services Trust (LCHST) and Nottinghamshire Rehab Services (NRS) and from Lincolnshire Community Services. Agreement has already been gained from commissioners with regard to this priority. How will progress be monitored and reported? Progress will be monitored through quarterly reports to the Patient Care Executive. Priority Three Patient Experience Priority Three: St Barnabas will support the Lincolnshire West CCG in developing a mechanism for gaining feed back from patients and carers who may find it hard to have their voices heard. The importance of volunteer input in gaining feedback from patients and carers was identified during the Real Time Reporting project undertaken in Lincolnshire in 2012 /13 and led by Help the Hospices, the National End of Life Care Programme and Marie Curie. Training will be provided to volunteers before they interview patients and carers in their own homes, in hospital and in other care settings. The focus of the volunteers’ work will be on those patients and carers who may find it hard to have their voice heard in other circumstances, for example they may have a sensory deficit that makes attending focus groups or completing paper based or electronic surveys difficult. The informal, semi-structured interviews will be based on the 11 themes within the National VOICES survey to elicit key information that will be used to develop services across the health and social care community that improve clinical effectiveness and patient and carer experience. 8 How was the priority identified? This priority was identified by a carer working with the Palliative Care Strategy Group. How will priority three be achieved? This priority will be achieved by St Barnabas recruiting, training and mentoring volunteers to undertake this work. The volunteers will be co-ordinated by a member of staff from the CCG to maintain patient confidentiality. Volunteers will be asked to visit the patient or carer and complete an informal, semi-structured interview and record the responses. Volunteers will be involved in the design process. How will progress be monitored and reported? Progress will be monitored through quarterly reports to the Patient Care Executive. 1b. Priorities for Improvement 2013 – 2014 Priority One Patient Safety, Clinical Effectiveness and Patient Experience Priority One: The development of robust operational polices to support the care of patients in secure/locked settings, including prisons and mental health units by Hospice at Home staff. To ensure the delivery of safe and effective care for patients and support to staff within these settings that will reduce inappropriate admission to hospital for the patient. An ageing prison population means that more people with palliative and end of life needs will need to be cared for within the criminal justice system. Patients with mental health care needs who require care within a secure setting may also have physical health needs that require palliative and end of life care. These patients may be required to, or may choose to, remain in a ward where they have lived for some time and where they know staff and staff know them. In both settings end of life care is not common and therefore staff have little experience and limited opportunities to develop their skills and competence in palliative and end of life care. 9 During the year the Trust has received referrals from both Lincolnshire Partnership Foundation Trust (LPfT) and the criminal justice system. Although the number of referrals has been small they have enabled us to ensure that a robust mechanism has been put in place to ensure patients receive appropriate care and LPfT and prison staff have access to advice and support whilst maintaining safety. A meeting with staff from HM North Sea Camp enabled us develop an effective system for referral and ongoing support for any person identified as requiring palliative care. Gold Standards Framework (GSF) meetings were instigated to support the identification and care of those with palliative care needs. A mechanism for referral to the Hospice at Home team has been agreed including appropriate risk assessments.. As can be anticipated referrals from these services are sporadic. Nursing staff from LPfT have attended training delivered by St Barnabas education facilitator supported by a variety of medical and nursing staff from the organisation. These have evaluated extremely well. In addition we have been working to support homeless people at the end of life, working with staff from LPfT, the YMCA and NOMAD Trust to identify and provide monthly in reach support to patients with palliative and end of life care needs. Five “easy read” leaflets have been created, collaboratively, to advise nonclinical staff and the homeless community, in simple language, the nature of and how they might try to manage the most common illnesses, these included:- Heart failure, Respiratory Diseases, Liver failure, Diabetes and Korsakoff’s Syndrome. Referrals to day therapy and hospice at home services have been received as a result. The first patient who attended day therapy said: “I was in a very bad place and needed XXX to get everything set up. I wanted to do it but it made me very nervous and I was scared of mixing with “normal” people and what the nurses might think of me. I was worried about letting people down because mornings are always bad for me. Everyone has been so nice to me and I like coming for the sessions. I have a flat now but I do get lonely so talking is good for me, even when I don’t think I feel like it. It has meant a lot to me, I feel like fundraising for them myself” 10 Priority Two Clinical Effectiveness and Patient Experience Priority Two: Identify, and embed into practice, a small range of patient reported outcome measures that assess, from the patient’s perspective, the effectiveness of medical and nursing interventions and the outcomes of care for the patient. The effective measurement of the outcomes of care and treatment are vital for the continuous improvement of services and the delivery of care. The patient is the only person who can measure the difference that care has made to their symptoms, be that physical or emotional. Effective measurement of outcomes enables staff to review care, be that programmes of care in the Day Therapy service, or individual symptom management within the Inpatient Unit. Effective outcome measures facilitate communication between patients The of the first two specialist nurse practitioners to the andappointment staff and also support the patient to be in control of, and(SNPs) a partner in, Trust in October 2013 has enabled us to commence this work. The SNP their care. clinical work is focused on the day therapy service where they The Specialist Nurse Practitioners (SNPs) have initially developed a preassessment questionnaire that is completed by the patient prior to an holistic assessment being undertaken by a nurse. This document facilitates communication between the patients and the staff, enables staff to focus on the issues that are of greatest importance to the patient and also supports the patient to be in control of, and a partner in, their care. The pre-assessment questionnaire uses a range of outcome measures to quantify the patient’s needs. These outcome measures will then be used to monitor the effectiveness of the programme of treatment at review meetings. As an adjunct to this work, discussions have also taken place with noncancer nurse specialists to support these developments. It was recognised that referrals to palliative care services might be improved if tools used to make it easier to identify frail patients was included within the referral process. The Responsive Need Tool (RNT), a tool that facilitates communication of both level of need and urgency, and commonly used within the county, has been revised with the aim of reflecting the agreed frailty score. This work continues and is to be piloted in May before being 11 ratified and incorporated with other work including the electronic patient register. Looking to the future, St Barnabas hopes to participate in the pilot of an outcome measure developed by Help the Hospices and St Christopher’s . Priority Three Patient Experience and Clinical Effectiveness Priority Three: The development of a fully refurbished six-bedded unit at Grantham District Hospital to provide a ‘Hospice within a Hospital’. This development will be provided in partnership with United Lincolnshire Hospitals Trust (ULHT). The need for six local palliative care beds covering Grantham and the surrounding area was identified as long ago as 2009. NHS Lincolnshire were unable to procure the beds through a tendering process. The aim of this service is to provide local palliative care inpatient facilities for patients who, whilst requiring an inpatient stay, do not require the consultant led, specialist palliative care available in Lincoln. This means that patients will be able to receive inpatient care whilst remaining closer to home. The beds will be provided in a separate, fully refurbished, ward within Grantham and District hospital. There are two reasons for developing the service in this way: o A stand alone unit of six beds is not cost effective and is not financially viable. o The service has been designed to enable staff to in-reach into the hospital to better support the palliative care needs of patients on other wards, so improving palliative care throughout the hospital. The beds will serve as a catalyst for the wider review of palliative care pathways across the locality to ensure that more patients achieve their preferred place of care and death. 12 The extension and refurbishment of the ward at Grantham Hospital to develop the new unit started at the beginning of January 2014 following a period of remediation on the original building. The work continues and can be viewed on the St Barnabas website: http://www.stbarnabashospice.co.uk/Page/92/hospice-within-a-hospital An artist’s impression of the unit can be seen below. The interior design of the building, led by the project manager, has included input from patients and their families, hospice volunteers, staff and the general public, using the principles of the King’s Fund Enhancing the Healing Environment. One of the key aims is to create an independent clinical facility, that is warm, welcoming and provides a homely feel whilst at the same time being compliant with infection control requirements. Access to the unit will be through its own front door off the main hospital corridor and this will have a distinctively different external appearance to other wards in the Hospital. We want people to feel the difference as soon as they approach the unit and walk through the door. The bedrooms will be extended to create a personal space along the lines of a sun room that can be used by patients all year round. The design of this garden area will create the opportunity for patients who are unable to get out of bed to be able to enjoy the garden space and will have the effect of "bringing the outside in". 13 There will be a number of communal areas which have been designed to be used flexibly to meet the needs of patients, carers and the clinical team. There will also be treatment rooms and facilities for the clinical team. There will be a relatives’ room with en-suite facilities so that families/carers can take a break without being too far away from their loved one. The provision of private space will also mean that when patients are dying, families and carers are not exposed to having to contain their emotions due to being in more public areas. Our ambition is to provide a unit that as suggested by one of our patients is "welcoming and smart -- but not too posh!" and we are confident that we will meet this ambition. Through careful design with the provision of individual rooms, we will be able to provide a more inclusive service and support patients whose illnesses are complicated by other factors such as dementia, the needs of young adults and children etc. and for whom the current service provision is far from ideal. The building work is due to be finished in the late summer and once commissioning and deep cleaning have been completed the first patients will be admitted. Prior to the admission of the first patient there will be open days to enable staff and the general public an opportunity to see the building without adversely impacting on patients. In parallel work is ongoing to develop the clinical policies and procedures for the unit. The aim is to ensure that we capitalise on the skills of partner organisations to ensure that we are able to provide the widest range of interventions and avoid moving patients into acute care wherever possible. The policies will also support the delivery of the quality objectives of the unit: Patient Experience Patients, and their families, who are approaching the end of life or requiring palliative care will: feel confident that professionals will offer opportunities for end of life care discussions in a timely, informed and sensitive manner in order to decrease fear of the unknown and to enable people to retain a sense of control over their last days and weeks and months of life. have equitable access to services that can effectively meet their needs and improve quality of life. 14 be treated with dignity and respect and to feel supported by well coordinated and responsive services that provide an excellent standard of care. have access to information and professionals with expertise to support difficult decision-making. have access to services that provide spiritual, psychological, social and physical support irrespective of ethnicity, religion, culture or sexuality. experience a peaceful, dignified death. be able to access information and support in bereavement. Clinical Effectiveness Integrated service providing palliative care and care at the end of life incorporating NICE guidance and with the full involvement of patients and carers, use of end of life tools, the Gold Standard Framework and the preferred priorities of care. Patient Safety Patient safety will be maintained throughout their admission through: o the establishment of a service with safe staffing levels and patients being admitted to the right bed in a timely manner o the development of a robust process incorporating NICE guidance and using end of life tools, such as the Gold Standard Framework and the preferred priorities of care will be employed throughout the patient’s stay. o the development of a model of care which identifies the patient pathway and the actions required should their condition change, and the roles and responsibilities of members of the clinical team o the development of a training programme to address the identified training needs of the nursing team o regular patient/carer questionnaires and surveys and the development of plans to address concerns o the provision of clinical advice from the St Barnabas In-patient unit and community based palliative care nursing service o the provision of emergency medical support from ULHT medical teams 15 2. STATEMENT OF ASSURANCE FROM THE BOARD The following are statements that all providers must include in their Quality Account. Many of these statements are not directly applicable to specialist palliative care providers, and therefore explanations of what these statements mean are also given. 2a. Review of Services During 2013/14 St Barnabas Lincolnshire Hospice supported the Lincolnshire’s four NHS Clinical Commissioning Group priorities with regard to the provision of local specialist palliative care by providing the following services: o o o o Hospice at Home Inpatient Unit Welfare Benefits Palliative Care Co-ordination Centre In addition the Trust has provided the following services through charitable funding: o o o o o Day Hospice Occupational Therapy Physiotherapy Lymphoedema Family Support Services, including bereavement support services During the reporting period 2013/14 St Barnabas Lincolnshire Hospice provided three NHS services. St Barnabas Lincolnshire Hospice has reviewed all the data available to them on the quality of care in all of these NHS services. The income generated by the NHS services reviewed in 2013/14 represents 63 percent of the total income generated from the provision of NHS services by St Barnabas Lincolnshire Hospice for 2013/14. What this means: St Barnabas Lincolnshire Hospice receives NHS funding, through the National Community Contract, for the Hospice at Home service and Palliative Care Coordination Centre and partial funding for the Inpatient unit and Welfare services. The Trust also has a small contract with Lincolnshire County Council for the provision of community Occupational Therapy services. The remaining income, to support the delivery of Day Therapy, Occupational and Physiotherapy and the Lymphoedema service, Family Support Services, including bereavement, is generated through fundraising, shops and lottery activity and investment income. 16 2b. Participation in Clinical Audit During 2013/14 no national clinical audits or confidential enquiries covered NHS services provided by St Barnabas Lincolnshire Hospice. During that period St Barnabas Lincolnshire Hospice participated in no national clinical audits and no confidential enquiries as it was not eligible to participate in any. The national clinical audits and national confidential enquiries that St Barnabas Lincolnshire Hospice was eligible to participate in during 2013/14 are as follows: NONE The national clinical audits and national confidential enquiries that St Barnabas Lincolnshire Hospice participated in during 2013/14 are as follows: Not applicable The national clinical audits and national confidential enquiries that St Barnabas Lincolnshire Hospice participated in and for which data collection was completed during 2013/14 are listed below alongside the number of cases submitted to each audit or enquiry as a percentage of the number of registered cases required by the terms of that audit or enquiry. Not applicable The reports of no national clinical audits were reviewed by the provider in 2012/13. This is because there were no national clinical audits relevant to the work of St Barnabas Lincolnshire Hospice. St Barnabas Lincolnshire Hospice was not eligible in 2012/13 to participate in any national clinical audits or national confidential enquiries and therefore there is no information to submit. 17 2c. Research The number of patients receiving NHS services provided or sub-contracted by St Barnabas Lincolnshire Hospice in 2013/14 that were recruited during that period to participate in research approved by a research ethics committee was NONE. What this means: As a provider of specialist palliative care St Barnabas Lincolnshire Hospice is not eligible to participate in any of the national clinical audits or national confidential enquiries. This is because none of the 2013/14 audits or enquiries related to specialist palliative care in settings other than acute care and were therefore not relevant. Despite not being eligible we do monitor the work we do, undertaking audits and patient and carer surveys. The results of our audits and patient and carer surveys can be found further on in this report. The Hospice will also not be eligible to take part in any national audit or confidential enquiry in 2014/15 for the same reason. What the Hospice has done. In the last year the organisation has developed and implemented a new research policy and undertaken a staff survey on the topic of research. The results of this survey are being fed back to staff through governance roadshows across the county. Our consultant research lead, working with United Lincolnshire Hospitals Trust, has gained agreement from both organisations to take part in the IMPACCT multicentre trial (led by the University of Leeds). Recruitment to this trial has commenced and will continue until the end of June. Patients accessing the day therapy service in Lincoln, who meet the criteria for the study, will be offered the opportunity to participate. In addition the consultant continues to link into the Trent cancer local research network priority group for palliative care. 2d. Use of the CQUIN Payment Framework A proportion of St Barnabas Lincolnshire Hospice income in 2013/14 was conditional on achieving quality improvement and innovation goals agreed between St Barnabas Lincolnshire Hospice and any person or body they entered into a contract, agreement or arrangement with for the provision of NHS services, through the Commissioning for Quality and Innovation payment framework. 18 Further details of the agreed goals for 2013/14 CQUIN payments and for the following 12 month period 2014/15 are available electronically at www.stbarnabashospice.co.uk . 2e. Statement from the Care Quality Commission (CQC) St Barnabas Lincolnshire Hospice is required to register with the Care Quality Commission and is currently registered to carry out the regulated activity: Treatment of disease, disorder or injury. “St Barnabas Lincolnshire Hospice has the following conditions on registration: The registered provider must ensure that the regulated activity, ‘treatment for disorder or injury' is managed by an individual who is registered as a manager in respect of the activity as carried on at or from a Specialist Palliative Care Unit.” Statement of reasons The registration of the provider of this regulated activity is subject to a registered manager condition under Regulation 5 of the Care Quality Commission (Registration) Regulations 200. The Registered Provider must only accommodate a maximum of 11 patients at Specialist Palliative Care Unit. Statement of reasons We are imposing this condition because your service is set up to accommodate 11 persons. The premises, management or staffing provided at this location are suitable only for a maximum of 11persons. The Registered Provider must not treat persons under 18 years in respect of the regulated activity 'Treatment for disorder or injury' at or from Specialist Palliative Care Unit. Statement of reasons We are imposing this condition because your service is set up to accommodate persons aged 18 years or over. The premises, management or staffing provided at this location are suitable only for persons aged 18 years or over. This Regulated Activity may only be carried on at the following locations: Specialist Palliative Care Unit, 36 Nettleham Road, Lincoln, LN2 1RE The Care Quality Commission has not taken any enforcement action against St Barnabas Lincolnshire Hospice during 2013/14. 19 St Barnabas Lincolnshire Hospice has not participated in any special reviews or investigations by the Care Quality Commission during 2013/14. The Care Quality Commission made an unannounced inspection on 10th January 2014. The report is available on the CQC website www.cqc.org.uk/directory/1140658893 and also on the St Barnabas Hospice website www.stbarnabashospice.co.uk. 2f. Data Quality Statement of relevance of Data Quality and your actions to improve your Data Quality. St Barnabas Lincolnshire Hospice did not submit records during 2013/14 to the Secondary Users service for inclusion in the Hospital Episode Statistics which are included in the latest published data. Why is this? This is because St Barnabas Lincolnshire Hospice is not eligible to participate in this scheme. However, in the absence of this we have our own system in place for monitoring the quality of data and the use of the electronic patient information system, SystmOne. This is important because, with the patients’ consent, we share data with other health professionals to support the care of patients in the community. What have we done? This year the Trust data analyst has reviewed the inputting of specific information required for the Minimum Data Set (MDS) to ensure accuracy of information. To support this we are developing an action plan and audit process. 2g. Information Governance Toolkit Attainment Levels St Barnabas Lincolnshire Hospice Information Governance Assessment Report score for 2013/14 was: Level 0 - 0%; Level 1 - 0%; Level 2 - 87%; Level 3 - 10%; Not Relevant – 3% 20 This means that we have attained 100% Level 2 or above compliance, which is the requirement for any organisation to access the NHS’s network. Organisations are graded either satisfactory or unsatisfactory. St Barnabas Lincolnshire Hospice Prepared on 08/04/2014 Assessment Level 0 Level 1 Level 2 Level 3 Not Relevant Total Req'ts Overall Score Grade Version 11 (2013-2014) 0 0 25 3 1 29 70% Satisfactory Fig 4.Table IG Toolkit Assessment Summary Report Fig 5. Breakdown of Attainment Level for IG Toolkit Version 11 What this means. Organisations are graded either satisfactory or unsatisfactory. St Barnabas Trust was graded as ‘satisfactory’ and meets all of the Connecting for Health standards. This provides patients with the confidence that their information is being dealt with safely. 21 2h. Clinical Coding Error Rate St Barnabas Lincolnshire Hospice was not subject to the Payment by Results clinical coding audit during 2013/14 by the Audit Commission. This is because St Barnabas Hospice receives payment under a block contract and not through tariff and therefore clinical coding is not relevant. 22 Part 3: Review of Quality Performance The National Council for Palliative Care (NCPC): Minimum Data Sets (MDS) We have chosen to present information from the NCPC minimum data set which is the only information collected nationally on hospice activity. The figures below provide information on the activity and outcomes of care for patients. Hospice Inpatient Unit St Barnabas Lincolnshire Hospice Specialist Inpatient Unit Services 2011/12 Total number of patients 183 % New patients 92% % Re-referred patients 3% % Admissions from 69% patient’s own home % Admission from acute 30% hospital % Occupancy 83% % Patients discharged to 45% their home Average length of stay – 17 days cancer Average length of stay – 13 days non-cancer 2012/13 190 93% 5% 2013/14 183 93% 4% 60% 56% 36% 44% 74% 81% 41% 30% 15 days 17 days 24 days 12 days There has been a significant increase in the number of patients transferred from acute hospital. ‘Thank you from the bottom of our hearts for giving xxx the dearest, kindest farewell’ ‘The cooks go out of their way to source and cook excellent quality food’. ‘After half a day with you, my husband said that he felt he never wanted to leave’. 23 Specialist Outpatient Service Specialist Palliative Care Outpatients 2011/12 Total number of patients 239 % New patients 90% % Re-referred patients 0 % Continuing patients 10% 2012/13 348 91% 1% 9% 2013/14 314 90% 0.3% 10% The Outpatients data is non comparable with previous years where ‘Hospital Contact/Support’ was more informal and therefore included with the Outpatient (Advice/Consultation) data. In 2013/14 the hospital support increased with the three consultants and the data now sits within the Hospital Support section below. Specialist Palliative Care Hospital Support 2011/12 Total number of patients % New patients % Re-referred patients % Continuing patients 2012/13 2013/14 317 100% 0% 0% 2011/12 625 67% 2.5% 2012/13 944 63% 5% 2013/14 1736 60% 4% 36% 30% 8% 11% 218 days 131 days 132 days Day Therapy Day Hospice Total number of patients % New patients % Re-referred patients % continuing patients % of places booked but not used Average length of care 24 There has been an increase of 83% in the number of patients accessing the Day Therapy service during the year. Over the last two years there has been a 177% increase in patients accessing the service. The change to the model of care, from day care to day therapy has provided a more attractive service for younger people without reducing access for older patients. “Came to see occupational therapist-very good. Nurses nice and welcoming too.” “The day centre is a positive part of being ill.” Complementary Therapy - “Great shame it’s ended. It’s the highlight of my week.” Hospice at Home Hospice at Home 2011/12 2012/13 2013/14 Total number of patients 1545 1640 1851 % New patients 85% 85% 85% % Re-referred patients % of patients who died at home % of patients who died in acute hospital 5.5% 5.2% 7% 79% 79% 86% 9% 9% 7% 40 days 43 days 44 days Average length of care The Hospice at Home service has seen an increase of 13% on the number of patients accessing the service. The number of patients achieving their preferred place of care is 92% with 86% dying at home. This represents an increase of 6% and 7% respectively on the previous year. “The care and support that your team gave us made a dreadful situation a lot easier.” “I cannot praise the staff enough; they made the whole experience a good one.” “Sincere thanks for the excellent care and compassion you showed to dad in his last days.” 25 Welfare Benefits Service Welfare Benefits Service 2011/12 2012/13 2013/14 Total Clients 2837 3212 3667 New Clients 1979 1842 1960 Re-referred Clients 588 1370 1707 £5,426,965.68 £6,483,581.68 £6,956,128 Total money claimed on behalf of clients There has been an increase of 14% in the number of people accessing the Welfare benefits service. The monetary gains have also increased but, due to changes in the welfare benefits system, are not as great as would be expected from the increased activity. The table below shows the reduction in the average monetary gain per person for 2013/14 compared to the previous year. ‘They are absolutely excellent’ Monetary Gain April 2012 - March 2013 April 2013 - March 2014 Total Number Of Patient Referrals Total Annual Cash Gained Average Per Patient 3212 3667 £6,483,581 £6,956,128 £2,018.55 £1,896.95 The average reduction is £121.60 or 6% of the patients’ benefits. This service has become even more vital as the changes in the welfare benefits have impacted on palliative care patients. This is reflected in the increase in the number of re-referrals to the service. Quality Markers We Have Chosen To Measure In addition to the limited number of suitable quality measures in the national data set for palliative care, we have chosen to measure our performance against the following: INDICATOR 2011/12 Complaints Total number of complaints (clinical) 6 2012/13 2013/14 7 9 The number of complaints upheld in full 1 2 3 The number of complaints upheld in part 2 5 1 26 The number of complaints not upheld 3 0 5 Three upheld clinical complaints related to: Verbal complaint regarding having to wait for help back into bed Complaint regarding attitude of a member of staff Patient unhappy with service provided by Family Support Services for herself and her husband. Failed contacts as planned One partially upheld complaint related to: Constructive criticism regarding a variety of aspects of care from a patient’s relative following admission to the Inpatient Unit. INDICATOR 2011/12 Patient Safety Incidents The number of serious patient safety incidents 1 (excluding falls) 2012/13 2013/14 0 0 The number of slips, trips and falls 37 35 32 The number of patients who experienced a fracture or other serious injury as a result of a fall. 0 0 0 36 42 55 39 43 41 Number of patients admitted to the Inpatient Unit with pressure damage Number of patients who developed pressure damage whilst in the Inpatient Unit Pressure damage that developed on the unit was grade 1 and 2. Documentation indicated all measures to minimise damage were undertaken. The Trust is currently leading the development of a palliative care pressure damage prevention pathway across both health and social care. INDICATOR Patient Safety Number of patients, clients and families referred to Family Support Services because of safeguarding issues The number of patients know to be infected with MRSA on admission to the Inpatient Unit The number of patients infected with MRSA whilst on the Inpatient Unit The number of patients with MRSA bacteraemia 2011/12 2012/13 2013/14 11 16 38 1 0 1 1 0 0 0 0 0 27 The number of patients admitted to the Inpatient Unit with C. difficile The number of patients infected with C. difficile whilst in the Inpatient Unit 1 0 0 0 0 0 The number of patients known to be infected with an alert organism for example, Staph aureus, Pseudomonas aeruginosa, ESBL, Klebsiella, and Streptococcus pneumoniae on admission 10 6 3 The number of patients who contracted any of these infections whilst in the Inpatient Unit 1 4 3 28 Clinical Audit Clinical audit is a way in which the organisation can learn and improve the delivery of its services, the outcomes for patients and the experience they have. The Audit group has undertaken a programme of audits using national audit tools designed specifically for hospices. Patient and relative surveys are also administered to all patients/relatives (as appropriate) admitted to the Inpatient Unit. The survey reflects the Care Quality Commission outcomes from the Essential Standards. Clinical staff continue to be involved in the audit work with a number of staff participating in infection control and syringe driver audits. The table on the following pages shows the work undertaken in 2013/14. Where issues are identified during an audit, an action plan is developed to put the problems right. Progress on the action plans is monitored through the Clinical Governance Group to ensure that they are completed. We will then undertake a further audit to see if the actions we have taken have resolved the issues identified. Medicines Managements Audits (including controlled drugs which are now completed quarterly as a requirement by the Local Intelligent Network Group) Completed Audit Action Actions to be taken Action Plan Plan to improve practice Status Controlled May Yes Working issues regarding some elements of Completed. Drugs Re-audit 2013 recording within Controlled Drug documentation to be addressed via briefing sessions for the nursing Regular staff. monitoring of Increased monitoring of the Controlled Drug Register Register. implemented. Medical staff signature list to be updated. Discharge TTO Audit (medicines to take home) May 2013 Yes Expenditure on opioids Q3 2011 Q42012 May 2013 No formal action plan Medical Gases(Oxygen) re-audit May 2013 Yes Consolidation and plan for electronic format for Nearing discharge medication. completion The importance of accurate discharge documentation to be reinforced to the Team. Recommendation to review costs of opioids 6 monthly and to report any exceptional excess N/A expenditure to the Trust at various levels as appropriate. Training in the use of oxygen therapy and non Completed rebreathing masks for nursing and medical staff to be implemented. Reminder to use oxygen indicator cylinder labels and change to colour of oxygen cylinders. 29 Audit Completed Electronic remote direction to administer June 2013 Anticoagulation June 2013 Controlled Drugs (selected elements) The Management of Blood Transfusions within the Inpatient Unit August 2013 Sept 2013 Action Plan Yes Yes Yes Completed Key elements completed. Remainder of actions are in progress. Re-audit of forms 2014 Completed Completed Nov 2013 No formal action plan The use of Fentanyl PRN products for breakthrough cancer pain Nov 2013 Yes Nov 2013 Action Plan Status Yes Management of Controlled Drugs & Accountable Officer Medical Gases(Oxygen) Re-audit Actions to be taken to improve practice Remind staff that identification labels must be attached to the remote prescriptions, and training regarding printing of prescriptions. Medical staff to be reminded to add date and time when transcribing. Instruction sheet to be displayed in a more prominent position. Convene a meeting of medical staff to consider barriers to completion of the forms and improve compliance with their completion. Revise layout of forms; review and revise anticoagulation guidelines. Establish cost benefit of the purchase of a hoist weighing attachment. Controlled Drugs register to include a specific column to document the form of the drug. Yes Revise blood transfusion care plan to include patient consent and confirmation of administration line change if required. Further training re: completion of fluid balance charts. Team to be reminded of the correct procedure for Regular managing corrections within the Controlled Drug monitoring of Register. the Register ensures that issues are addressed in a timely manner. Training sessions re: titration and pain evaluations Training for nursing staff. sessions in Prompts for patients to be provided to avoid delay process of of a second breakthrough dose of medication if being required. arranged. Display titration information prominently. Information displayed. Ensure oxygen cylinder status labels are available and that they are used. Amend ‘Fridge & Oxygen’ Check list. Display instruction for use of non-rebreathe masks next to the emergency oxygen cylinder Update staff on the use of the Oxygen Patient Group Direction (PGD). Completed. Laminated information for staff regarding PGD on display in ward. 30 Audit Completed Medication Incidents within the Inpatient Unit Nov 2013 General Medicines Dec 2013 Controlled Drugs (Selected elements) Feb 2014 Action Plan Yes No formal action plan Yes Actions to be taken to improve practice Improve the accuracy of reporting and managing incidents and ensuring feedback to relatives as appropriate. Update mentorship skills of Trust staff to support new employees. Medicines management to be closely monitored by Ward Manager and Deputies. Patient drug requisition forms to be adapted to strengthen the receipt documentation process. Reminder to medical team to include form of medication. Remind staff of the correct procedure for amending documentation. Remind staff to adhere to their recognised signature. Action Plan Status Planning to deliver training by December 2014. N/A Completed Additional Audits Audit Hazard Alerts Palliative Care Co-ordination Centre; Audit of telephone contact with 6 identified care homes. Welfare; Customer satisfaction and accuracy of documentation Complementary Therapy Documentation Hospice at Home “Unable to Gain Access Visits” evaluation Completed Action Plan Jan-June 2013 N/A No specific issues identified. N/A May 2013 N/A No significant issues identified. N/A May-July 2013 No formal action plan Feedback to team via newsletter N/A July 2013 Yes Actions to be taken to improve practice Action Plan Status Provide a consistent treatment sheet format for all bases and update staff regarding corrections to documentation. Completed Adjust forms to reflect whether after care advice has been given to patients. Process map daily structure of visits within teams August 2013 Yes Completed Re-audit February 2014 31 Completed Action Plan Nutrition and Hydration Service Evaluation (including documentation review and questioning of staff) August 2013 Yes Hygiene Code August 2013 Yes Strengthen risk assessment format and reinforce to staff to implement appropriate care plan. Review key policies to reflect effective communication between all teams. Clinical on Call Manager Procedure August 2013 Yes Hazard Alerts July to Dec 2013 Yes Day Therapy; Assessment of the documentation check list for SystmOne January 2014 Yes Develop an electronic system for recording calls and responses. Review policy and disseminate new processes to staff. Review system for receiving and managing alerts at the weekends Review the system for responding to Estate & Facilities Notification Alerts to strengthen the audit trail. Training on an individual basis regarding documentation standards to be delivered to team members by the Specialist nurse practitioners. Day Therapy; Documentation regarding Advance Care Planning and Advance Decision to Refuse Treatment Mattress Audit including Static and Specialist Pressure Relieving Mattresses (Dynamic) January 2014 Yes Ensure that staff set a date to review individual advance care plans. Training to be delivered on an individual basis to staff on the completion of Advance Direction to Refuse Treatment documentation. Training being delivered as part of individual reviews February 2014 Yes Action required regarding mattresses and covers not attaining the accepted standard. Completed. Audit Actions to be taken to improve practice Action Plan Status Develop a Trust Wide Nutrition & Hydration Policy. Deferred. Re-establish the Nutrition Group and develop the Nutrition Link Nurse Role. Review and simplify nutritional documentation. Completed Completed. Completed Completed Training being delivered as part of individual reviews 32 Audit Completed Infection Prevention and Control Audits Action Actions to be taken to improve practice Plan Action Plan Status Isolation precautions within the Inpatient Unit Sept 2013 Yes Management of Waste within the Inpatient Unit Oct 2013 Yes Sluice Mgt of sharps within the Inpatient Unit Inpatient Unit & Day Therapy Lincoln; External Infection Prev Audit Jan 2014 February 2014 N/A N/A March 2014 Yes; for both bases Reminder to staff the importance of cleaning Completed equipment and it’s subsequent labelling. Update bin labels Review management of hoist slings. Improve documentation regarding visual infusion phlebitis forms. Hand hygiene Ongoing Trust wide Ongoing Trust wide No Issues addressed as appropriate. N/A Yes Issues addressed as appropriate N/A Audit Completed Action Plan Patient Nutritional SurveysInpatient Unit Complementary Therapy Service Patient Evaluation Survey Patient Survey (Inpatient Unit) April 2013 to March 2014 Relatives Survey (Inpatient Unit) April 2013 to March 2014 June to December 2013 N/A Minor issues addressed during survey period. Surveys to be reviewed and questions updated by the Nutrition Group- May2014 December 2013 No formal action plan Feedback results to staff. Evaluation forms reviewed and updated. N/A April 2014 Yes Responses and actions compiled by the IPU Ward Manager and added to survey reports. April 2014 Responses and actions compiled by the IPU Ward Manager and added to survey reports. Issues addressed as they arise Issues addressed as they arise Cleanliness Implement a check list for volunteers to remind them of their responsibilities regarding care of patients who are Completed isolated. Remind staff to supply patients, who are to be isolated, with an information leaflet in addition to verbal information. Clarify legislative guidance regarding waste storage Completed compounds. Provide guidance for management of paper waste. Provide a receptacle for volunteers to dispose of handover slips. Replace first aid kits and order plastic covers for disposal of contaminated mattresses. Minor working issues only N/A Practice confirmed as safe and compliant with policy. N/A Patient and Relative Surveys Yes Actions to be taken to improve practice Action Plan Status N/A 33 Feedback from Patients and Families on Services We value the feedback we receive from patients and families as this is an important way in which staff can identify and resolve problems and improve the quality of the care we provide. We are always looking for new ways to receive feedback. This year, in addition to the survey we give to all patients discharged from the Inpatient Unit or send a survey to the family of patients who die on the unit, we have used new methods of collecting feedback. Friends and Family Test As part of a national programme acute hospitals and some hospice inpatient units have asked patients if they would recommend the service they provide to their friends and family. All of the patients we asked said they would recommend our service to their friends and family. The table below shows the results we achieved each month throughout the year. Inpatient Unit Data Inpatient Discharges Responses <48hrs Promoters Passive Detractors NP Score Sample Size Apr 13 May 13 June 13 July 13 Aug 13 Sept 13 8 4 1 7 4 5 8 8 0 0 100 100% 4 4 0 0 100 100% 1 1 0 0 100 100% 7 7 0 0 100 100% 4 4 0 0 100 100% 5 5 0 0 100 100% Data Inpatient Discharges Responses <48hrs Promoters Passive Detractors NP Score Sample Size Oct 13 Nov 13 Dec 13 3 5 5 Jan 14 3 Feb 14 5 Mar 14 5 3 3 0 0 100 100% 5 5 0 0 100 100% 5 5 0 0 100 100% 2 2 0 0 100.00 66.67% 5 5 0 0 100.00 100% 4 4 0 0 100.00 80.00% 34 Day Therapy Data Inpatient Discharges Responses <48hrs Promoters Passive Detractors NP Score Sample Size Apr13 Data Inpatient Discharges Responses <48hrs Promoters Passive Detractors NP Score Sample Size Oct 13 6 May13 Nov 13 5 June13 Dec13 11 July13 8 Aug13 3 Sept13 3 7 2 0 6 1 0 86% 88% 2 0 0 100% 67% 0 0 0 0% 0% Jan 14 Feb 14 Mar 14 32 24 50 14 11 1 0 0 11 0 0 100% 58% 100% 22% 3 4 4 10 3 0 0 100% 50% 4 0 0 100% 80% 4 0 0 100% 36% 10 0 0 100% 31% 35 It’s the small things … We continue to receive comments through the “It’s the small things that make a difference” postcards. We provide them with a postcard which they can send back to us, identifying the small things that have made a difference to them. This is another means by which patients, clients, carers and families can feedback to us. Below is a selection of comments about the ‘small things’ that made a difference to our patients during the last year. Having a contact number for St Barnabas-was a lifeline! Caring, sharingnothing too much trouble-a wonderful organisation ‘You listened when no one else would. And then made everyone listen to us. Thank you’ ‘Respect, caring & honest. Supported all the family’ ‘Gave me interests and enjoyment, and meeting people’ ‘Just being there for me & my husband. Taking charge when needed. Fabulous care. Thank you’ ‘The home care team contributed immensely to my husband comfort & peacefulness in his death’ ‘Friendship & understanding’ ‘They were kind, helpful and made it possible to give XXX his last wish to be at home’ 36 The Patient Survey The Patient survey from April 2013 to September 2013 and from October 2013 to March 2014 had a response rate of 50%. We asked patients about their care and treatment. We asked the following questions based on the Care Quality Commission Essential Standards of Quality and Safety1. In October the format of the survey changed following feedback. Questions with an * were not asked when the survey was changed – so the results reflect the answers given to the survey between April and September 2013. Was your privacy and dignity respected? 95% of patients said ‘yes always’ Was your right to independence respected? 100% of patients said ‘yes always’ Did you feel that the care, treatment and support you were given met your needs?* 93% of patients said ‘yes always’ Did you feel that the care, treatment and support were delivered in a safe and effective manner by members of the healthcare team? 100% of patients who responded said ‘yes always’ Did you have confidence and trust and feel safe in the care of the staff treating you?* 100% of patients said ‘yes always’ How would you rate the Hospice food and drink?* 1 93% of patients rated the food and drink as ‘very good’ or ‘good’ Care Quality Commission (2009) Essential Standards of Quality and Safety 37 Did you feel that the hospice room or ward that you were in was clean? 100% of patients who responded said ‘yes always’ Did you feel safe and comfortable with the equipment used by the staff?* 93% of patients who responded said ‘yes’ (not answered 7%) We also asked what could be done to develop our services patients said: (Comments are direct quotes as they appear in the surveys) ‘I think the Hospice is an amazing place. I felt really cared for and very privileged to be able to stay there’ ‘Quite frankly I can’t think how you would improve on St Barnabas. It was my ‘home from home’. All staff were so caring – wonderful team – would be difficult to improve. Thank you so much’ ‘I was very happy at the Hospice the staff looked after me and supported me and family members. I would like to say a big thank you to all the staff for there care’ ‘Food absolutely wonderful’ The Relatives’ Survey The annual Relatives’ Survey from April 2013 to March 2014 had a response rate of 64%. When asked what could be done to develop our services, relatives said: (Comments are direct quotes as they appear in the surveys) ‘I was very pleased how the staff looked after my wife in the short time she was there. If, God forbid, I am ever in need of the same care as my dear wife needed I would wish to go in the same Hospice’ ‘Long may you keep up the excellent work!’ ‘Unfortunately my husband was gravely ill when transferred to the Hospice and was only there for three days before he died. The nurses and staff couldn’t have been more caring and helpful to him, me and my family. It was a comfort to us all that he was in such a good, caring environment’ 38 ‘No I could not fault the Hospice at all!’ ‘My suggestion is ‘keep up the good work’. Our son and myself were so grateful for the kindness shown to my husband, and ourselves during the relevant days. After half a day with you, my husband said that he felt he never wanted to leave. You are welcome to use those answers if it is helpful’ ‘Every aspect of the service the Hospice offered was superb. My wife felt calm, comfortable and part of the family of staff who make up your teams. As did all of us, her family’ ‘Every member of staff was so lovely, I can’t think of any complaints. They are all miracles doing miraculous work’ ‘I could not see how it could be improved, the care given to my Mum and myself and my family was second to none both during her treatment and after her passing. I have no problem with my name being put to my comments and would like to thank everyone again for their wonderful care’ ‘My family and I found the care and support both my husband and ourselves received was excellent’ ‘My dear Mum had a dignified and peaceful ending thanks to all. She was with you for 20 days and sadly passed away Christmas day. The staff looked after me just as much as my mum. Thank you’ ‘The staff at Lincoln could not have been more helpful and understanding to me and my family. Bless em’ ‘I wish you had many more beds to help others through these painful times’ ‘The respect shown by staff when my partner passed away was excellent which I told the Sister the following day excellent work!’ Copies of the full surveys are available on the Trust website www.stbarnabashospice.co.uk 39 Real Time Reporting The final phase of the Real Time Reporting project was completed this year and the final report published. The full report of the project is available at: http://www.stbarnabashospice.co.uk/Files/Resources/Real%20Time%20Reporting %20-%20Listening%20Differently_73254448.pdf Below are some of the comments about hospice services taken from the completed survey: “Coming to [the hospice] has made my life worth living. I never wanted to live the way I am but the hospice –its staff and volunteers have helped me so much. My OT and physio have helped me so much.” In addition to the learning developed about the use of the electronic tablet devices another important aspect identified was the role of the volunteers. It is based on this learning that we have identified one of our priorities this year and why we are working with the Lincolnshire West CCG to develop methodology to increase Public and Patient Engagement. Below is an extract from the report: “One of the unexpected findings of the project was that of the invaluable role of volunteers trained to support the process. Their value was multi-faceted, including: Instilling confidence in individuals who were reticent about the value of contributing their views and particularly those without family or friends. Reporting any concerns that individuals had voiced to them with their permission, in order that they could be resolved. For example, one patient surveyed was anxious about going home and being a burden on the family. The volunteer, with the patient’s permission, raised this with the staff nurse who responded immediately by offering reassurance to the patient that his concerns were indeed understood and would be addressed. Providing social support as part of the process. Working collaboratively with staff to identify individuals for whom the survey might be appropriate.” Listening Differently to Users (2014) page 10 40 Statement of Directors’ Responsibilities in Respect of the Quality Account The directors are required under the Health Act 2009 to prepare a Quality Account for each financial year. The Department of Health has issued guidance on the form and content of annual Quality Accounts (which incorporates the legal requirements in the Health Act 2009 and the National Health Service (Quality Accounts) Regulations 2010 (as amended by the National Health Service (Quality Accounts) Amendment Regulations 2011). In preparing the Quality Account, directors are required to take steps to satisfy themselves that: the Quality Account presents a balanced picture of the Trust’s performance over the period covered; the performance information reported in the Quality Account is reliable and accurate; there are proper internal controls over the collection and reporting of the measures of performance included in the Quality Account, and these controls are subject to review to confirm that they are working effectively in practice: the data underpinning the measures of performance reported in the Quality Account is robust and reliable, conforms to specified data quality standards and prescribed definitions, and is subject to appropriate scrutiny and review; and the Quality Account has been prepared in accordance with Department of Health guidance. The directors confirm to the best of their knowledge and belief they have complied with the above requirements in preparing the Quality Account. By order of the Board …………………………..Date………………………………………..Chair …………………………..Date………………………………………..Chief Executive 41 Statement on St Barnabas's Quality Account for 2013/14 HEALTH SCRUTINY COMMITTEE FOR LINCOLNSHIRE This statement has been prepared by the Health Scrutiny Committee for Lincolnshire. Priorities for 2013-14 The Committee welcomes the Trust's progress with its three priorities for 2013/14. In particular, the Committee is pleased with the development of a six bed Hospice within a Hospital at Grantham and District Hospital, which we believe will be essential for the people in the surrounding area. We look forward to the Hospice within a Hospital opening in the coming year. Priorities for 2014-15 We support St Barnabas's three priorities for improvement in 2014-15. We would like to emphasise our support for the development of specific measures to reduce pressure damage for palliative care patients. Achievement of this priority will clearly benefit patients and reflects one of the key themes for health care. Engagement with the Health Scrutiny Committee for Lincolnshire On 21 March 2014, four members of the Health Scrutiny Committee visited the St Barnabas Hospice In-patient Unit in Lincoln. The members of the Committee concluded that the visit was a very positive and encouraging experience, reinforced by open and honest conversations with staff, patients and relatives. Here is the report of the visit: "The St. Barnabas In-Patient unit is located in Lincoln and offers the following services: Palliative Care Inpatient Unit Welfare Benefit Support and Advisory service Physiotherapy Occupational Therapy Lymphoedema Clinic Bereavement Support 42 "The Mission Statement is “St Barnabas provides specialist palliative and end of life care so that everyone can access and receive the support they need to live well and ease the process of dying.” "The unit is an 11 bed unit with two rooms of four beds (one for male patients and one for female patients) and three separate one bed rooms. The unit has a conservatory which includes a children's play area and has a television. There is a separate lounge from the main ward area. There is also a large balcony area overlooking the gardens. "Admission to the unit is normally for a relatively short period of time, typically ten or eleven days during which time the patient is ‘stabilised’ before returning home. Care is integrated with an outreach team when the patient is at home, called ‘Hospice at Home’, which embraces physical needs, emotional needs, social support and spiritual support. This is supported by the Palliative Care Co-ordination Centre (PCCC), which is open 365 days a year at the Nettleham Road unit, 9am to 6pm Monday to Friday and 9am to 5pm Saturday and Sunday and Bank Holidays. "Food is prepared from scratch in a kitchen on the premises. The range of choices is very wide, with the patient being served nutritious and tasty food. "The hospice was very clean and staff were obviously happy in their work. Each shift has a nursing sister in charge wearing a navy blue uniform. It was said sight of this uniform was reassuring for patients and visitors. "Visiting times are open with a recommended ‘quiet time’ of 14.20-15.30, as much to give visitors respite as patients. "In terms of quality and governance St Barnabas are inspected by the Care Quality Commission (CQC) and as a charity is regulated by the Charity Commission. The most recent CQC report states that St Barnabas met all of the required criteria with many very positive comments from patients, relatives, staff and volunteers." A representative from St Barnabas also attended the Health Scrutiny Committee in October 2013, as part of an item on palliative and end of life care. We look forward to continuing engagement with the Committee in the coming year. Presentation and Accessibility of Information to the Public We believe that the Quality Account is well-presented and accessible to members of the public and provides a clear guide on the activities of the St Barnabas. 43 Care Quality Commission We note that St Barnabas received an unannounced inspection from the Care Quality Commission on 10 January 2014 and we are pleased that St Barnabas was compliant with all the standards inspected. We congratulate St Barnabas on this achievement. Conclusion We would like to congratulate St Barnabas Hospice on its achievements over the last year, in particular the developments at Grantham and District Hospital and we look forwards to further achievements in the coming year. 44 NHS Lincolnshire Commentary for St Barnabas Hospice Quality Account Commissioning high quality, safe patient services is Lincolnshire West’s Clinical Commissioning Groups (LWCCG) highest priority. Lincolnshire West CCG acknowledges a well written Quality Account from St Barnabas that incorporates all the elements required through the National Health Service Quality Accounts guidance. This includes negative responses when a section is not applicable ensuring that all required information is provided. The use of clarification boxes at the end of sections to recap and confirm the detail of the response and provide further information is useful and good practice. It is anticipated that the areas identified for focus in 2014/15 will continue to enhance the patient experience and improve patient safety and clinical outcomes. Lincolnshire West CCG therefore welcomes the focus that the St Barnabas places on the following 2014/15 quality priorities: Working with other health and social care organisations to lead the development of a palliative care specific pressure damage prevention pathway for the county; Utilising the Palliative Care Co-ordination Centre (PCCC) to recall equipment from patients’ homes when it is no longer required; Supporting the Lincolnshire West CCG in developing a mechanism for gaining feedback from patients and carers who may find it hard to have their voices heard. In terms of performance against the 2013/14 Commissioning for Quality and Innovation (CQUIN) indicators, the following indicators were achieved: Friends and Family Test NHS Safety Thermometer - Improvement Improvement in processes/procedures supporting end of life care Community Macmillan Nurse Consultant Multi- Disciplinary Team Meetings It is also recognised that during 2013/14 St Barnabas Lincolnshire Hospice supported NHS Lincolnshire’s commissioning priorities with regard to the provision of local specialist palliative care by providing the following services: Hospice at Home Inpatient Unit Welfare Benefits Palliative Care Co-ordination Centre St Barnabas was subject to an unannounced visit from the CQC in January 2014 and judged to have met the required standard. Links to the published report were provided in the Account. 45 Areas for improvement 2014-15 Lincolnshire West CCGs endorse the areas identified as Priorities for Improvement for 2014-15 and the associated initiatives as detailed within the St Barnabas Lincolnshire Hospice Quality Account, as well as the CQUIN goals to be achieved as below: Friends and Family Test – Increased or Maintained Response Safety Thermometer - Improvement Equipment Recall from patients homes when no longer required Hospice at Home Real Time Reporting - to survey patients in the community and provide almost real time feedback / reporting Patient and Public Engagement - To work with the Lincolnshire West to support the public and patient engagement agenda for End of Life Care Lincolnshire West CCG strongly supports the work underway to improve the patient experience and to capture real time feedback from patients and carers across the service regarding whether they would recommend the quality of the service to family and friends. Lincolnshire West CCG endorses the accuracy of the information presented within the St Barnabas Quality Account. Overall quality programme performance will continue to be reviewed by the CCG on an ongoing basis through the formal contract quality review process. Wendy Martin Executive Lead: Nurse/Midwife & Quality Lincolnshire West CCG June 2014 46