2012 - 2013 Quality Account Reporting period: 1st April 2012 - 31st March 2013 Contents Chief Executives Statement Page 2 Section 1 – Improvement priorities 2013 - 2014 Page 3 Section 2 – Mandated Statements Page 5 Section 3 – Quality Overview Page 9 The Board of Trustees’ commitment to quality Page 14 1 Chief Executive’s Statement The staff and volunteers of Treetops Hospice are our greatest asset. 2012 - 13 has seen significant growth and improvements across the whole organisation. This is reflected not only in the delivery of Clinical Services but also in the departments that provide the funds and resources. Altogether, this makes Treetops Hospice a successful and financially viable business. This year the hospice had an unannounced inspection by the Care Quality Commission where no shortfalls were identified. This is a tribute to the hard work of each member of staff, and their dedication and passion for their roles. It is the staff and volunteers who make Treetops Hospice a safe, secure and happy place for all. I am responsible for the preparation and contents of this report and to the best of my knowledge, the information reported in this Quality Account is an accurate and fair representation of the quality of Clinical Services provided by Treetops Hospice. “Where every day counts” reflects our ethos and commitment to all those who are supported by Treetops Hospice with the best quality of care available across all services. George Cameron Chief Executive 15th May 2013 “Your nurse, who was with my mother in her last hours on this earth, made the journey for her and myself so very bearable. You have demonstrated not only that every day counts but also every hour.” Feedback from a carer 2 Section 1: Improvement Priorities 2013 - 2014 The Day Care unit had an unannounced inspection by the Care Quality Commission (CQC) in November 2012. The inspection report is available on the CQC website and confirms that the Hospice met all the assessed standards, as described in the Guidance about compliance: Essential standards of Quality and Safety. In 2012 we produced a five year rolling strategy where we identified both planned development of service provision and improvement priorities. 2013 - 2014 strategic priorities will incorporate new service developments and improvements that have been identified following the successful application to the Department of Health for a stand-alone Clinical Support Centre. Priority 1 Hospice at Home With the continued recommendation for facilitating choice of preferred place of care for patients in their terminal stage of life, the growth in activity and specialism of our Hospice at home service has been an identified priority since April 2012. During 2012 - 2013 we recruited an additional 6 Health Care Assistants to the team and increased our activity by 30% on the previous year by providing in excess of 6,000 more hours. During 2013 - 2014 it is our intention that this growth will be sustained and continued with the aim of supporting more patients and their families to have a real choice of place of care and ultimately, death. Identified targets To increase the number of hours of care provided from 29,000 hours to 30,000 hours To increase the number of patients cared for from 650 to 700 Priority 2 Nursing team development programme During 2012 we embarked on a learning agreement partnership with the Royal College of Nursing. Investing in two of our Hospice at Home senior nurses, we have co-supported their training to become RCN learning representatives for the Hospice. Regular education/support meetings are now facilitated by the learning representatives and nurses’ attendance has grown significantly in the year. Identified target To increase the number of sessions offered from 6 to 8 and introduce 3 more core competencies 3 Priority 3 Review of the Day Care unit Following the opening of our purpose built unit in 2010 there was a substantive growth in patients’ attendances, which more than doubled our previous weekly provision. During 2013 - 2014 we plan to undertake a full review of the service. Our model to date has been traditional in style with access to Art and Complementary therapies and creative activities. Our focus for the future will be to review the patient experience of Hospice Day Care provision. We propose to widen the choice of activities outdoors, both in the grounds and outside the hospice environment, and indoors, offering more physical and intellectual stimulation. It is intended to review the current Patient Day Care notes documentation in order to eliminate duplication of information and significantly increase the amount of measurable data for audit purposes. Identified target To introduce 3 additional activities into the Day Care experience Priority 4 A new Clinical Support Centre The successful application to the Department of Health for funding a new Clinical Support Centre, will allow Clinical Services to be developed in line with the five year Strategy. Three main areas of development have been identified: A bespoke Bereavement Centre Increased office space for Hospice at Home co-ordination hub. Introduction and development of a Support and Information Service. The new centre will be built in the hospice grounds and will reinstate the Bereavement Service from its current off site location to within close proximity of the rest of our clinical services. The stand-alone sensitively designed centre will provide user-friendly access to support and care which it is hoped make the visiting experience less intimidating. This will be particularly important with regard to bereaved clients who may find it difficult to access areas that are designated for End of Life patient care. 4 Section 2 Mandated Statements Statements of assurance from the board Within a submitted Quality Account all providers must include the following statements, despite some of them not being applicable to hospice services. Review of services During 1st April 2012 - 31st March 2013 Treetops Hospice provided the following services: Day Care Hospice at Home Bereavement Support Clinical Services are governed by the Clinical sub-committee of the Board of Trustees, who meet bi-monthly and receive service reports which enable them to review the management and quality of care provided by all services. The reports are then submitted to the whole Board of Trustees at their meetings. Participation in clinical audits During 2012 - 2013 Treetops Hospice did not participate in any local or national clinical audit. Our Bereavement Service was involved with Help the Hospices and the Association of Bereavement Service Co-ordinators (ABSCo) in the development of a national evaluation tool for work with bereaved adults. To date ABSCo are still in the process of developing this tool. The Childhood Bereavement Network similarly is in the process of developing a national evaluation tool for Bereavement projects working with children and young people. Treetops Families service has contributed to this process by providing a focus group of young people to help design the evaluation form. Research During 2012 - 2013 the hospice was not involved in any research projects. 5 Quality improvement and Innovation goals agreed with our Commissioners CQUINN targets and indicator of quality for 2012 - 2013 were: Submission of Day Care patients’ bi-monthly evaluations (Guest voice) The collection and submission of 95% of our patients GP code of which we achieved 100% The collection and submission of 80% of our Hospice at Home patients “preferred place of care” What others say about us Care Quality Commission Treetops Hospice is registered with and regulated by the Care Quality Commission in accordance with the Health & Social Care Act 2008. Our most recent inspection report dated 2012 is available on the CQC website. Service Evaluations Day Care Service Evaluation of our Day Care service is surveyed bi-monthly on a rolling questionnaire programme that includes 8 domains: Before you got to Treetops Hospice Day Care Your journey to Treetops Hospice Day Care and your first day Relationships with staff and volunteers Dignity and Safety Your care Catering Transport Activities The criteria for referral to our Day Care unit are that the patient has been medically assessed as being in the last 12 months of life. Therefore, the decisions to adopt a bi-monthly process is to ensure that we capture more patients’ views and are able to be more pro-active in our response to suggestions or concerns. “All the staff and volunteers I have come into contact with have good anticipation of needs. I enjoy being here.” “I rate the service, help etc., far above my expectations and I’m sure the others do also. Thank you all.” “I feel very comfortable coming to Treetops and I know I shall be looked after. It gives my husband a well-deserved break.” Guests’ Voice (Day Care Patient questionnaire) 6 Hospice at Home service 1. Carer Evaluation Each year we send out a service evaluation to the carers of (1 in 4) patients who died in our care during the year. Of the 60 carers who returned the evaluation last year: 88% found the service extremely or greatly helpful 90% said that the amount of care provided was sufficient 95% were totally at ease or comfortable about the way we cared for their loved ones 85% felt that the service had completely or greatly enabled them to care for their loved ones at home 2. Referring professionals’ evaluation Each year we send out a service evaluation to referring health professionals. Of the 24 health professionals who returned the evaluation last year: 92% said that that the Treetops Hospice at Home nurse coordinators are very helpful 92% said the patient and carer were satisfied with our care 83.5% reported that our service helped to prevent or delay hospital admission. “The nurses that came to look after my husband were very professional but I felt like a friend was coming into our home. I cannot praise them enough and would recommend your service to anyone.” “I was very pleased to have such caring people in my home - at first it seemed strange to leave my husband with someone he didn’t know but we were soon reassured as he was treated with such respect and kindness. Thank you all.” “Your nurses do a very responsible job and we felt very supported by their expertise and by them as people. We could not have fulfilled our relative’s wish to stay in the home in which she was born 94 years ago without their help.” Carer evaluations 7 Adult Bereavement Service All clients who finish receiving support during the year are asked to complete an evaluation of their experience. Of the 25 clients who returned the evaluation last year:: 84% said that the support they received made the experience of bereavement more bearable 96% said they were satisfied with the service 96% said they would recommend the service to others “It’s hard to explain how much the support meant to me and has given me the strength to cope with all the other stuff that life throws at me. I know that I am in a far better place than I was.” “It got me through a difficult period when I felt almost as if I was on another planet.” Adult Bereavement Clients Families Bereavement Service Feedback forms are sent out to service users and their parents/carers who have finished receiving support during the year. Of the 14 children who returned the evaluation last year: 100% of the Children/Young people were unhappy before any therapeutic sessions were given 100% said that they were feeling happier after the sessions ended 100% of Children/Young people said they would tell a friend about the support we can offer if they felt needed help. “I liked the support, it was probably the best thing that I did and helped to make my feelings more understandable and clear.” “It helped because of talking about my mum” Young bereaved people Of the 10 carers who returned the evaluation last year: 90% of Parents/Carers felt that the needs of their child in relation to their bereavement were addressed 100% said they would make use of the service again should the need arise with their child “It has made a huge difference in making me feel Y is able to talk about his bereavement. I have found being able to talk to him, a big help with my own feelings too” Carer of young bereaved person 8 Section 3 Quality Overview Treetops Hospice submits a National Minimum Dataset (MDS) to the National Council for Palliative Care. A summary of the MDS is included in the Annual Report which is submitted to the commissioning PCTs. Comparison with National Minimum Data Sets The most recent available National Minimum Data set covers the period 1 st April 2011 – 31st March 2012. Treetops Hospice data for 2012 – 2013 have been collated but there are no comparative data available at this time. Day Care Unit MDS data 2012-2013 Treetops Hospice No comparative data are available 2011-2012 Treetops Hospice National Median Data have been compared to 47 large units % Places used % New patients with a noncancer diagnosis 92 100 58 39 31 15 % New patients aged over 84 22 13 11 For the past 8 years the Day Care Unit occupancy rate has averaged 93% compared to 61% nationally. This has been achieved by overbooking each day from 10-15% depending on the clinical needs of the particular group. Our commitment to providing End of Life care to all patients irrespective of diagnosis is reflected in the percentage of new patients with diagnoses other than cancer. We are noticing a significant rise in the number of patients aged 85 and above reflecting the National Council finding that “the 'oldest' old are having more contact with specialist palliative care." Hospice at Home MDS data 2012-2013 Treetops Hospice No comparative data are available 2011-2012 Treetops Hospice National Median Data have been compared to 16 large units % New patients with a noncancer diagnosis 27 18 16 % New patients aged 65-84 57 61 58 % New patients aged over 84 27 24 20 % Home deaths 82 81 68 9 We continue to be committed to supporting people at the End of Life regardless of diagnosis and our figures reflect the National Council for Palliative care finding that “More people with conditions other than cancer are accessing specialist palliative care services.” While the percentage of our patients aged 65-84 remains stable and in line with the national average, the percentage of those over 84 years has risen steadily over the years demonstrating the increased need for care in an ageing population. (This year we cared for 5 patients aged over 100 including the then oldest man in Britain who died aged 110). The percentage of our Hospice at Home patients who die at home has remained at around 80% for the last 5 years. In addition to this, 82% of patients who had a recorded preferred place of care/death achieved their choice. Bereavement Service MDS data 2012-2013 Treetops Hospice No comparative data are available % New service users under 16 years % New service users 16-24 years % of deceased with noncancer diagnosis % of non-cancer deaths in new service users under 18 years % of deaths related to suicide in new service users under 18 years 2011-2012 Treetops Hospice National Median Data have been compared to 40 large units 24 24 N/A 6 7 2 50 42 11 71 72 N/A 25 18 N/A Our Bereavement Service is very unusual in Hospice terms as we accept referrals from anyone in the community regardless of any association with Treetops Hospice. We also provide Bereavement support to children and young people under 18 years old. The impact of this is that our Bereavement Service supports a much larger than average percentage of clients dealing with non-cancer related deaths including unexpected deaths. This is especially significant in our Families Service where 25% of new service users presented with issues related to parental suicide. 10 What our staff says about the organisation For the past three years Treetops Hospice has surveyed their staff by investing in the Help the Hospices Birdsong Hospice staff survey. In 2012 the results of the survey as measured against other hospices was very encouraging with our satisfaction rates predominantly higher than others. As measured against the previous two years, the results in certain areas of the domain “The organisation and communication”, showed a marked decline in staff confidence. Treetops staff % response to communication statements 2010 2011 2012 100 81 80 69 61 63 62 62 60 42 40 38 42 20 0 I feel well informed about Communication between Senior management are what is happening within different well informed about what the charity teams/departments is other staff think and do efffective It has been acknowledged that the decline could be a result of the rapid growth of the organisation, where three major departments are now located off-site, and the number of retail outlets has reached 14. However, the Senior Management Team with support of the Board of Trustees, have taken this issue very seriously and have instigated measures to improve communication across the organisation which include: Improvement of the internal website, ensuring that information is upto-date and relevant. All remote and retail premises now having internet access, including the internal website and Treetops email accounts. Enhancement and promotion of our internal staff and volunteer newsletter encouraging recipient participation. Organisation of the first Treetops Hospice staff conference in May 2013 We currently employ 114 staff with only 7 leaving during the year giving a staff turnover of 6%. 11 The Board of Trustees’ commitment to quality The Board of Trustees is fully committed to the quality agenda. The Clinical Sub-Committee, that represents the clinical arm of our governance structure, is made up of 6 members of the board. Members are either current or retired health or social care professionals and/or have an interest in the delivery of end of life care. They contribute to ensure that the hospice provides a high quality service in accordance with its Vision, Mission and Values. Vision That everyone living within the communities we serve has access to end of life care of the highest quality. Mission To make every day count through giving the highest quality support for patients and carers living with life limiting illness or affected by death and dying by: Ensuring we have the skills and experience to deliver and promote excellence in end of life care provision. Working in partnership with other local end of life service providers to ensure the best possible patient experience is achieved. Developing services to reflect the changing needs of the diverse community we serve. Values Respecting the unique worth of every person We believe that every person is different but equal and that everyone’s unique needs and contribution should be recognised and supported. Exercising responsible stewardship The commitment of our staff and volunteers to making the best use of all our resources enables us to deliver high quality care today and in the future. Working with hope Our hope is to enable patients and carers supported by the Hospice to live well and die well. Sustaining a culture of trust, warmth and safety Everyone who comes into contact with Treetops Hospice is treated with care and respect. 12 The Board is confident that the treatment and care provided by Treetops Hospice is of high quality and is cost effective. As part of their commitment to the organisation all our trustees recently took part in the Board Development training programme facilitated by Cass Business School, through funding received from Help the Hospices with the aim of being more effective in both the quality and governance of the organisation. In addition, a biography of each trustee is available to staff via the internal website. All new trustees complete an induction programme, which includes meeting staff from each department to give them a more detailed understanding of all aspects of Treetops Hospice’s work. 13 Southern Derbyshire Clinical Commissioning Group Quality Account 2012/13 Treetops Hospice STATEMENT GENERAL COMMENTS NHS Southern Derbyshire Clinical Commissioning Group (the CCG) is the coordinating commissioner for the NHS contract held with Treetops Hospice. In this role the CCG is responsible for ensuring pre-publication clearance of the Quality Account produced by the Charity for 2012/13. The production of a Quality Account is not currently a mandatory requirement for independent sector providers of NHS funded care but it is considered good practice. COMMENTARY The Quality Account submitted by Treetops Hospice has been reviewed by the CCG and is pleased to confirm that it agrees with all the contract related data that is stated in the Quality Account. This is the first Quality Account that has been produced by Treetops Hospice and whilst it gives a good overview of the year 2012/13; it does not fully reflect the tremendous amount of work that has been undertaken within the organisation. They are to be congratulated on their successful application to the Department of Health for the stand-alone Clinical Support Centre. This will allow them to achieve the strategic developments outlined within this report to benefit access to supportive services and improve the patient experience. Treetops Hospice have taken an active role in the End of Life Implementation Group to set out a vision, for the development of end of life services for the people of Southern Derbyshire and Erewash by working strategically with partner organisations 14