St Teresa’s Hospice The Darlington & District Hospice Movement Quality Account for the Year 2012 - 2013 1 TABLE OF CONTENTS: PART 1 CHIEF EXECUTIVE’S STATEMENT 3 PART 2 LOOKING AHEAD: IMPROVEMENT PRIORITIES FOR 2013/14 4 2.1 INTRODUCTION: 4 2.2 IMPROVEMENT ASPIRATIONS FOR THE CURRENT YEAR 4 PART 3 REVIEW OF QUALITY PERFORMANCE 12 3.1 REPORT ON PRIORITIES FOR IMPROVEMENT 2012/13 12 2012/13 - IMPROVEMENT PRIORITY 1 (PATIENT SAFETY) 2012/13 - IMPROVEMENT PRIORITY 2 (PATIENT SAFETY) 2012/13 - IMPROVEMENT PRIORITY 3 (CLINICAL EFFECTIVENESS) 2012/2013 - IMPROVEMENT PRIORITY 4 (PATIENT EXPERIENCE) 2012/2013 - IMPROVEMENT PRIORITY 5 (PATIENT EXPERIENCE) 12 13 14 15 16 3.2 STATEMENT OF ASSURANCE FROM THE BOARD 19 3.3 REVIEW OF QUALITY PERFORMANCE DURING 2012/13 22 2012/13 PERFORMANCE - PATIENT SAFETY 2012/13 PERFORMANCE - CLINICAL EFFECTIVENESS 2012/13 PERFORMANCE - PATIENT AND STAFF EXPERIENCE THE BOARD OF TRUSTEES STATEMENT SUPPORTING STATEMENTS: ST TERESA’S HOSPICE QUALITY ACCOUNT 2012/13 22 23 26 28 29 APPENDICES (i) Audit Table (ii) Patient & Carer Feedback Action Plan 2 Part 1 Chief Executive’s Statement This report on the quality of services provided by St Teresa’s Hospice (The Darlington & District Hospice movement) is an important part of our information strategy to communicate openly with all stakeholders. Since the production of our last Quality Account, both corporate and clinical governance at the Hospice have been further strengthened. The Board of Trustees has commenced a development programme and reviewed its membership. A new Chair will be appointed from July 2013. St Teresa’s Hospice Board of Trustees is committed to continuous service improvement and has supported the implementation of a formalised five year strategy (2010-2015) focussing on safe, effective, high quality care which provides patients and their carers with a positive patient experience. Significant progress has been made with the implementation of the Strategy, so much so that, following a review, a new strategic plan will be produced during the forthcoming year, which is relevant to the new commissioning and healthcare landscape. The new strategy will further develop a model of working where the Hospice is a dynamic “hub” of the community which combines the highest quality patient care that is evaluated and cost effective with social experiences and activities alongside continuous service improvement and innovation. In July 2012, a Clinical Governance sub strategy was written and implementation commenced across all disciplines. The sub strategy is designed to provide a systematic framework for improving and maintaining quality of patient care in the Hospice. It embodies high standards of care, transparent responsibility and accountability for those standards and a constant dynamic of improvement. Key improvement areas across the domains of Patient Safety, Clinical Effectiveness and Patient Experience are outlined in this Quality Account and are supported by action plans; we aim to ensure a “one hospice” approach, across all teams, to achieve these goals. The Quality Account is written in consultation with service users, and is endorsed by our Board of Trustees, The Board enthusiastically supports quality improvement and views this reporting format as an opportunity to demonstrate existing good practice to stakeholders, whilst focusing on the coming year's priorities for improvement. Jane Bradshaw Chief Executive 3 Part 2 Looking Ahead: Improvement Priorities for 2013/14 2.1 Introduction: This Quality account focuses on specific improvement priorities for the coming year which cross the domains of Patient Safety, Clinical Effectiveness and Patient Experience. Service users and staff have been consulted on both the strategy and this Quality Account, and have agreed the outlined priorities for improvement. St Teresa’s Hospice is fully compliant with the National Minimum Standards (2002) and has satisfied the Care Quality Commission (CQC) that standards are being met through both self assessment and an unplanned CQC inspection in January 2013. The CQC inspection was extremely successful and St Teresa’s Hospice was deemed fully compliant. Since writing the last quality account, significant re-configurations in the NHS have taken place with the advent of the Clinical Commissioning Groups (CCG) and GP Commissioning. The Hospice’s catchment area crosses at least two CCG areas: Darlington CCG and Hambleton, Richmondshire and Whitby CCG. The majority of patient flows are from within Darlington CCG. 2.2 Improvement Aspirations for the Current Year Improvement Aspiration 1 (Patient Safety, Patient Experience, Clinical Effectiveness) To Improve End of Life Care for Darlington Care Homes Residents Why choose this as an Aspiration? St Teresa’s Hospice provides the best possible palliative care to the people of Darlington and North Yorkshire and through provision, collaboration, innovation and education supports the wider delivery of supportive and palliative care. In 2012, Darlington Borough Council offered all of its registered care homes the opportunity to register on the GSF for Care Home Framework (GSF) which gives quality assurance, improvement and recognition. The GSF improves the quality, coordination and organisation of care facilitating individuals to remain in their preferred place of care as they approach the end of life and has been developed from its original use in Primary Care so that it is transferrable to the Care Home setting. It is hoped that the program will both improve quality of care for residents of care homes and prevent avoidable hospital admissions, through better organisation and proactive planning. 14 out of a possible 16 Homes registered on the program. Unfortunately, none of the homes made progress with the enormity of the program, which was initially underestimated. Therefore, Darlington Borough Council approached the Hospice in spring 2012 to seek support for the program and funding was sought from Darlington CCG to contribute towards the Hospice’ costs for a facilitator. The project began last year and will continue during 2013/14. 4 By supporting the Care homes to implement the GSF framework including providing training on specific topics relating to end of life such as recognising when a patient is actually approaching the end of life, proactive planning using a standardised approach to care planning including discussion with families about DNACPR (Do Not attempt to resuscitate), and other care planning tools such as advanced care plans it is hoped quality of care will improve and patients will be able to die in their preferred place of choice. Targeted education delivery and shadowing of Hospice staff will develop the workforce within care homes enabling them to deliver higher quality care. How will this Aspiration be achieved and measured? Objective Measure of performance All registered care homes will both hold Audit of care homes registers. a GSF register and code patients on their Target: 100% of registered care homes register, at least once per month are coding at least once per month In 2013/14 at least 4 homes will apply for accreditation To reduce avoidable Hospital admissions for patients nearing the End of Life Where care homes are part of a national group and therefore must use corporate advanced care plans, their paperwork will be audited to ensure it meets the basic principles of Deciding Right. In all other care homes Deciding Right will be promoted All patients for whom it is appropriate will have an advanced care plan Advance care plan practical training session Ad hoc training provided to specific homes on gaps in knowledge (for example symptom management, advanced care planning etc) To provide care homes with an opportunity to shadow staff at the hospice Care homes feel supported by the facilitator so that they can themselves implement the GSF program Audit of care home admissions to A and E pre and post intervention Evidence of accreditation or application for accreditation for 4 identified homes Evidence of individual case studies demonstrating the impact of the changes implemented through GSF program Audit of care homes documentation. Target: 100% of care homes are using advanced care planning and documentation that meets best practice Audit of care plan use in homes, Target: 100% of all patients who are coded as “B” or above have an ACP in place Training logs/registers Register of training and training packs Letter to all care homes inviting them to shadow staff at the Hospice, Register of shadow shifts. Target: Each care home to send at least one member of staff to the hospice Survey of homes; Target 100% satisfaction with support received by the Hospice Dependent upon CDDFT 5 Improvement Aspiration 2 (Patient Safety) To Introduce Core Competencies for Health Care Assistants Why choose this as an Aspiration? At St Teresa’s Hospice we aim to ensure that all care focuses on the safety, needs, wishes and priorities of the patient, their carer and family. In order to do this, the workforce must be appropriately skilled to recognise the changing needs of patients and patterns of care must be planned and delivered to meet these needs, and those of the family. To fully meet patients and carers needs, several factors must be in place, a flexible, co-ordinated multi disciplinary team, correct staff to patient ratios, appropriate leadership, the correct skill mix within teams and appropriate workforce development, training and education and support of the development of new and enhanced posts and roles. Over the past 12 months significant time and effort has been spent reviewing internal structures, examining the components and skill mix of the multi-disciplinary teams and to make sure the teams are able to deliver the strategic plan whilst working within the auspices of the clinical governance sub strategy. Gaps in the teams have been identified and significant changes have been made including the appointment of a Nurse Consultant, a Macmillan Physiotherapist, 2 senior nurses and additional counsellors. Several further appointments to support the delivery of safe and effective patient care will be made over the coming months in line with budgetary constraints. The above is all very important and is a component part of high quality care delivery. It is also important that staff are supported to develop their skills through continuous professional development and clinical supervision, which is available to all clinical staff. One way of supporting continuous workforce development is through core competences, to ensure that all staff are confident to work with patients as they approach the end of life, and ensures a basic minimum standard that all staff are working to. The hospice clinical governance strategy highlights the intention to develop core role competences across all staff grades, however during 2013/14, priority will be given to developing competences for health care assistance roles, base lining existing staff against these competences and implementing the corresponding education program. The findings of the Francis report add further endorsement to this Quality Aspiration. The report talks about Fundamental Standards of Behaviour, introducing Core competencies will help to achieve this and further enhance our culture of “putting the patient first”. How will this Aspiration be achieved and measured? Objective Target/ Measure of performance To establish a task and finish group to review Agreed competency framework for the St Christopher’s Hospice accredited End Hospice Health care assistants Band of Life Competency Framework (2012) and 2 and Band 3 determine any additional competency areas required for Health care assistants within St Teresa’s Hospice To launch the competency framework to all 100% of Hospice contracted Health Hospice contracted Health care assistants care assistants to receive the core 6 To Support Hospice Health Care assistants to baseline themselves against the framework, and managers to authorise competency level To develop training matrix and education program for identified gaps in knowledge within staff group competency framework. Measure: distribution list. 100% of Hospice Health care assistants to baseline themselves/authorised competence by line managers Training matrix and timetable for education in place by 31st March 2014 Improvement Aspiration 3 (Clinical Effectiveness) To introduce improvements to the Hospice at Home Service - to enhance the patient experience, improve access to the service, improve assessment and care planning Why choose this as an Aspiration? There continues to be a significant difference between patients preferred place of care (PPC) and actual place of care (or death). A survey carried out in 20101 identified Preferred Place of Care, this can be seen in the table below compared with actual place of death Table 1 Comparison of Preferred Place of Care to Actual Place of Care 2010 Home Hospice Hospital Care Home National Preferred Place of Care 63 29 3 1.5 National Actual place Actual Place of Care of Care Darlington 2011 21 20.4% 5 3.9% 53 50.1% 18 17.8% Other 3.5 3 7.8% The table clearly demonstrates the national picture of disparity between preferred place of care and the actual place of death. Locally, similar to the national average, many more people are dying in hospital rather than in their own homes or in the hospice. The national mortality rate is set to increase dramatically, the hospice recently carried out a needs assessment which indicated that by 2020 over 40% of the Darlington population will be over 50 years and 10% will be over 75. The number of people aged 65 and over is projected to rise from 17,400 in 2008 to 23,800 in 2023 and 29,100 in 2033.The number of people aged 85 and over is projected to increase from 2,400 in 2008 to 3,800 in 2023 and 6,000 in 2033. This will have a significant impact on the need for Hospice care. The Hospice recognises the importance of supporting patients to achieve their PPC, and has been supporting patients in their own homes with its Hospice at Home service for over 25 years. Since 2011 with the inception of the joint partnership project between the Hospice, NHS and Marie Curie the Rapid Response Service has been available. 1 PRISMA telephone survey,2010, Source: National End of Life Intelligence Network 7 During the last year service review of the Hospice at Home service has been undertaken alongside participation in a national survey of Hospice at Home services co-ordinated by Help the Hospices. Findings of the National Survey reinforce the extreme value provided by Hospice at Home services across England and that these services continue to be core Hospice services. The 76 Participating Hospices delivered 4843 episodes of care over 3 months (1 episode is referral to discharge), 83.5% cancer diagnosis, 16.5% no cancer diagnosis and where services where involved 87% of patients involved achieved their PPC. Locally, the Hospice at Home service continues to be popular however, average annual provision of services has decreased recently. Several reasons can be attributed to this including change over in district nursing staff who have historically been the biggest referral source, increase in social and domiciliary care provision, changes in demographics and increases in patients admitted to care homes rather than being cared for at home possibly due to family members work commitments, complexity of patient conditions and lack of knowledge of the existence of the service. The Hospice has also been poor at promoting the service and several staffing changes have not helped. Also, our statistics have demonstrated significant changes in patient profiles over the past few years, many more non cancer patients are supported by the service and patients are presenting with more complex needs there has also been an increase in patients with Dementia. In order to support patients to achieve their PPC ,high quality services must be available to support a patient and carer at home. Supporting the Care Closer to Home agenda is important to the Hospice and therefore over the forthcoming year we will make improvements to the existing Hospice at Home service. The intention is to improve assessment and care planning for patients which will improve patient experience and improve accessibility to the service. How will this Aspiration be achieved and measured? Objective Target/ Measure of performance Recruitment of Hospice at Home Team Successful recruitment leader Establishment of comprehensive Evidence of documentation, patient assessment, care planning and risk audit will demonstrate 100% of assessment process patients will receive assessment Development Hospice at Home team by Competency framework supporting core competency for Health care assistants and specialist training in Dementia Improvements in service in response to Service user questionnaires pre and service user feedback post intervention Increase in service provision Increase in provision by at least 10% 8 Improvement Aspiration 4 (Clinical Effectiveness, Patient Experience) To improve services offered to patients with Dementia Why choose this as an Aspiration? The number of people with Dementia is increasing and presents an urgent challenge to all health and social care providers both in terms of the number of people affected, cost and availability of skilled workforce to support patients. There are approximately 670,000 people in England with Dementia and in Darlington in 2012 there was 1368 diagnosed Dementia cases2 and according to the Alzheimer’s society in 2021 this will rise to 1771 cases for Darlington alone. Dementia is commonly associated with older age, and as such the incidence of other diseases increase, it can therefore be expected that many of the Darlington Dementia population will also have co-morbidities. The National Dementia strategy (2009), highlights that end of life care for people with Dementia is often poorer than those who are cognitively intact, with poorer care planning, decreased access to services, in particular hospice care and poor symptom and pain control. The Hospice aims to improve the services it offers to patients with Dementia. It will do this by ensuring it has a skilled workforce to recognise and identify those who may be undiagnosed with dementia and to support people with Dementia with their unique needs. The Hospice will also ensure that the [premises is fit for purpose and is both safe and accessible for patients with dementia and begin to configure services to support patients in their own homes. How will this Aspiration be achieved and measured? Objective Target/ Measure of performance To identify patient population accessing Undertake baseline of population the Hospice with dementia pre and accessing services Jan-Mar 2013 & Janpost intervention Mar 2014 To educate the workforce in dementia 100% of clinical & non clinical paid staff to awareness undertake dementia awareness training A core group of staff to undertake Core staff group of 8 to undertake enhanced Alzheimer’s Society training, 100% of these staff to receive accredited training accreditation Undertake Dementia friendly premises Audit plan and physical improvements audit To gain service user feedback 100% of Dementia patients or their carers to be offered the opportunity to comment on services 2 End of Life Intelligence network, April 2013 9 Improvement Aspiration 5 (Clinical Effectiveness, Patient Experience) To fully integrate nutritional screening into Hospice assessments, to ensure all patients’ nutritional requirements are met and to provide a catering menu that will meet both patients and their guests’ requirements. Why choose this as an Aspiration? Many chronically unwell people experience dietary difficulties and deficiencies related to or resulting from their illnesses. Comprehensive Nutritional screening aims to identify those who are at risk or who are already malnourished. On identification of those at risk from malnutrition, the Hospice needs to be able to provide appropriate advice and care plans to patients to prevent further weight loss and to ensure that its catering facility can meet basic nutritional requirements for in patients, and can modify diets to provide additional nutritional support including for those with special dietary requirements (Coeliac, diabetic, staged diet). Staff need to be appropriately skilled to provide advice on diet and nutritional supplementation and to recognise when specialist dietetic referral is necessary; they must also be able to monitor and review nutritional intake of food and fluids. Nutrition should be seen as part of treatment for all patient populations and specific groups of patients will benefit from nutritional advice, which should therefore be readily available. There are no restrictions on visiting patients in the inpatient unit, but currently , the Hospice can only offer hot drinks and a limited selection of snacks to visitors. To improve patient and carer experience the Hospice will expand its catering provision to give visitors choice and availability. How will this Aspiration be achieved and measured? Objective Target/ Measure of performance Introduction of Nutritional screening for 100% of patients will be offered nutritional patients as appropriate (Identification of screening (caveat: given the nature of the Tool, staff training, System One patient population, nutritional screening Templates) will not always be appropriate, this will be documented in patient notes). Nutritional advice for those requiring it Identify a mechanism for provision of high quality nutritional advice by an appropriately skilled dietician and in-house training for staff Introduction of food and fluid intake Audit of patient records; 100% of patients charts commencing nutritional support will have intake monitored Review menus to ensure that they User satisfaction survey provide sufficient patient choice and Comparison of menus to Estimated meet nutritional requirements of all Average requirements (EAR) groups. Review Food presentation and service Survey of mealtimes to ensure appropriate giving consideration to roles and support is given by staff to enable patients responsibilities of staff; support given to to eat and drink patients to eat, review of crockery and cutlery Review of procurement to ensure best Service user survey to determine 10 value for money, without compromising quality. Scoping new Bistro area requirements; Business plans Improvement Aspiration 6 (Patient Experience) To improve access to Complementary Therapies and extend the range of complementary therapies available at the Hospice Why choose this as an Aspiration? Complementary therapies can be used to treat specific symptoms in addition to orthodox medicine and can help people to cope with the stresses caused by their disease, improve sleep and improve quality of life. Many therapies also provide a sense of well being and can offer a patient some control as a positive choice they can make about their health. Carers can benefit for similar reasons and by supporting carers we are enabling them to care for a loved one for longer and without reaching a crisis point. Aromatherapy massage is available to patients in their own home and at the Hospice, and on a limited basis to carers; acupuncture is available to all patients at the Hospice. Recognising the valuable contribution to a patient’s treatment and coping mechanisms of both patients and carers, the Hospice intends to increase the range of provision available and accessibility for patients in their own homes. How will this Aspiration be achieved and measured? Objective Target/ Measure of performance To recruit a Complementary therapy Successful recruitment lead to develop the service To recruit at least 3 additional volunteer Minimum of 3 additional complementary therapists to increase the range and therapists, statistics to demonstrate an provision of therapy services increase in therapy sessions provided 11 Part 3 Review of Quality Performance 3.1 Report on Priorities for Improvement 2012/13 The Quality improvements outlined in our first Quality account 2011/2012 have all been satisfactorily achieved, however, in all areas continuous improvement is planned. The Board of Trustees have been in full support of the improvement areas over the past year and have received regular reports on progress. Services users have been consulted with where appropriate. The identified improvement priorities for 2010/2011 were as follows: 2012/13 - Improvement Priority 1 (Patient Safety) Introduction of the Deciding Right document to integrate the principles of advance care decisions for all appropriate patients accessing St Teresa’s Hospice services Quality Improvement Achieved How did we achieve this? Deciding Right is an initiative which integrates Advanced Care Planning, the Mental Capacity Act, Cardiopulmonary Resuscitation and Emergency Health Care Plans. The Hospice chose this as a quality improvement to improve patient safety. Patients are referred to the Hospice from a variety of settings: GP’s, care homes, acute trusts, patients home, and sometimes as temporary residents, and from two different PCT/SHA (now different CCG) areas. A plethora of documents prior to switching to Deciding Right documentation was available in the health care economy which all do similar things but the paperwork is different. The Hospice education manager undertook training on Deciding Right in April 2012. Following this, she educated all internal staff during May and June to ensure that they were all conversant and trained appropriately to utilise the documentation. A switchover date was set and from the 1st of June all patients entering the Hospice as part of admission where transferred or initiated as appropriate on the Deciding Right DNACPR, all patients discharged into the community with this nationally recognised and validated paperwork. Education was made available to GP practice end of life care leads in Darlington and North Yorkshire, who were then responsible for cascading information within their own practice Education sessions were scheduled and District Nurses, clinical nurse specialists and care homes invited Targeted education to care homes was delivered as part of the GSF in Care Homes project Both CDDFT and Darlington CCG choose not to use the Deciding Right Advanced Care plan (ACP), therefore the Hospice facilitated the development of a suitable ACP for use within CDDFT and Darlington CCG. The Hospice gained service user feedback on the 12 documentation and ensured its ratification by CDDFT Clinical effectiveness board prior to its launch in March 2013 Successful achievement of this measure can be demonstrated through audit results of patient records evidence the successful transition to Deciding Right documentation in 100% of patients requiring DNACPR documentation. Training logs are available and minutes of GP lead meetings demonstrating those accessing education sessions. How do we plan to continually improve? The Hospice will continue to improve uptake of Deciding Right documentation through the GSF in Care Homes project in Darlington. Care home staff will be educated on the use of Deciding Right documentation. All newly appointed staff will receive training as part of induction. 2012/13 - Improvement Priority 2 (Patient Safety) Introduction of Patient Safety Thermometer Quality Improvement Achieved How did we achieve this? St Teresa’s Hospice views patient safety as its top Priority. The safety thermometer is a tool to survey patient harm and harm-free care and was included as a CQuIn measure for the Darlington PCT annual contract 2011/2012. The safety thermometer assesses against the domains of pressure ulcers, falls, catheters, urinary tract infections and venous- thrombo-embolism (VTE) Senior clinical staff in the Hospice were trained and a process established whereby the “snapshot” measure would be undertaken for all patients on the In patient Unit and accessing Hospice at Home services on the 4th of each month with the exception of VTE (following prior agreement with the PCT due to its inappropriateness of use in the palliative care setting) The safety thermometer was reported to County Durham PCT without exception on the 4th of each month and no adverse variances recorded The CQuIn target was considered met with full payment received. How will we continue to improve? The hospice will continue to use the safety thermometer and during the forthcoming year will be discussed at each clinical governance meeting, and any specific issues discussed. The Hospice will report findings nationally in 2013/14. 13 2012/13 - Improvement Priority 3 (Clinical Effectiveness) SystmOne will be introduced to the Hospice, and will be fully operational with all new patients entered onto the electronic patient management system from November 2012. The introduction of the system will improve clinical effectiveness in the Hospice by improved communication between healthcare professionals involved in a patient’s care, improved medicines management and reporting. Quality Improvement Achieved How did we achieve this? The Hospice CEO and Deputy CEO/clinical Service Manager were identified as the internal project leads for implementation of the project and worked with the PCT representative to form the project team who ensured that: All staff were fully appraised of the business change prior to commencing the project Each department had a SystmOne Champion as an information conduit Staff of all grades were chosen to work on departmental project teams All staff undertook Information Governance training prior to receiving smartcards The schedule was carefully planned, training schedules agreed in advance and additional resources sought where necessary to release staff for training IT infrastructure was planned and installed in advance All NHS stakeholders were communicated with and benefits shared The Go Live date was delayed from November 2012 until the 28th of January 2013 as a result of delays within the PCT Following Go Live it was recognised there was insufficient IT infrastructure, this has been rectified The Hospice is currently running a paper based system and SystmOne which will continue until satisfactory audit of patient records and comprehensive reporting mechanisms are in place. Alongside the role out of SystmOne Summary Care Record was also deployed How will we continue to improve? Audit of patient records will begin from June 2013, following successful audit any remedial action required will be taken, the Hospice intends to become completely paperless. Reporting systems need to be established so that essential quantitative data can be extracted and reported upon. The Hospice has contributed to the early work on the enhanced summary care record and will continue to influence this piece of work. The Hospice intends to set up a North East User Group. Staff users have all undertaken the information governance module, and the hospice has satisfied CQC requirements in relation to information governance however, hospice Information governance will be examined more closely to identify any areas of improvement during the forthcoming year. 14 2012/2013 - Improvement Priority 4 (Patient Experience) Priority: To establish a formal integrated User Partnership Group Quality Improvement Achieved How did we achieve this? On writing the Quality Account 2011/2012 the intention had been to establish a formal User group. However, on discussion with service users it was quickly understood that due to the nature of the user group, palliative patients and their carers that this formalised user involvement was not an acceptable option. This was because users themselves did not feel well enough to regularly commit to involvement in a group nor did their carers wish to leave them. The Hospice Strategic management team therefore decided to set up a variety of mechanisms to capture user feedback and involvement. This then became a CQuIn measure for the Darlington 20122/2012 contract. Therefore, although a service user group has not been established with a formal remit the Hospice is now engaging with service users in a more formalised way, the quality improvement has still been achieved. The following was put in place in 2012/2013: Semi structured interviews with randomly selected service users from Hospice at Home, Day therapy and Inpatient services Use of Patient questionnaires, report published by University of Kent (Linked to Help the Hospices) Use of Carer questionnaires Service user focus groups- specific focus groups set up to look at topics as they arise, for example feedback on the new Advanced Care Plan Documentation, Taster session of Tripudio exercise program before introduced into Day Hospice Review of suggestion boxes and collation of all complaints, comments and compliments. How will we continue to improve? Whilst the hospice understood the value of service user engagement and feedback, the time taken to elicit this information was underestimated. Therefore, the information gathered through the processes described above needs to be evaluated and shared across all departments and relevant improvements planned for. In 2013/14, service user engagement will become part of an individual’s role within the hospice to oversee, plan and co-ordinate. 15 2012/2013 - Improvement Priority 5 (Patient Experience) Priority: To develop Hospice Day Therapy adopting a Rehabilitation model Quality Improvement Achieved How did we progress this? St Teresa’s Hospice constantly strives to follow evidence based practice. The NICE Supportive and Palliative Care Guidance and End of Life Care Strategy (2008) recommend access to rehabilitation services for patients including at the end of life. The day hospice historically operated a social model. The new day therapy model Day Therapy model will improve patient experience by helping patients to improve mobility, or live better with their disability, and will support them to function in daily activities whilst overcoming feelings of loss of control and providing a feeling of well being and self worth. The transition to a new day therapy model is partially achieved. Progress has been slower than expected due to budgetary constraints for appointing the physiotherapist, despite this many successful improvements have been made. Following consultation with staff and patients the following changes have successfully been implemented: Partnership working with Macmillan has enabled the Hospice to employ a full time Physiotherapist, commencing in March 2013. The post holder will support patients throughout all Hospice departments, but will have a strong presence in Day Hospice. The Physiotherapist will use holistic assessment to plan packages of care for patients and follow them up in the community to ensure a seamless patient journey. Following a “taster” session with service users, following which excellent feedback was achieved 10 staff have been trained in Tripudio, a form of fitness for rehabilitation and health. The program is easily tailored to the ability and needs of the patient group. Formal evaluation of the program has shown very positive patient experience. All guests have indicated that they have enjoyed it, even those who could not take part reported enjoying watching it. Some guests reported that they do the exercises at home themselves on the mornings that they do not visit the Hospice. Some comments include: “...feel the benefits after I have finished and I enjoy that I can sit down and still take part” “...that it helps with my breathing” “..Some said that they didn’t think they would be able to do any type of exercise” “...enjoy it because I feel part of a group that are doing the same thing” Blood transfusions are now available at the Hospice for all palliative anaemic patients at the time of writing 7 patients had received a transfusion, all reported excellent patient experience and GP feedback has also been extremely positive 16 A Breathlessness management clinic has been set up as part of day therapy. The target group of respiratory patients are often socially isolated and have little access to social or emotional support, good quality advice or peer support. The clinic is run as a 6 week program supported by the multi-disciplinary covering breathlessness management, anxiety, depression, Preferred Place of Care, DNACPR and ACP. Prior to the clinic patients are given information packs by the Respiratory Specialist Nurse, which informs them of the hospice and services available. This is also discussed in more details during the clinic. Pre clinic and post clinic questionnaires are included so the service can continue to improve. Feedback has been excellent so far, some comments include: “Impression of hospice has changed immeasurably, the help and caring available is outstanding.” “The session on advance care planning and DNAR opened up a subject which wasn’t easy to talk about, but was handled so well with kindness and tact.” “I always thought the hospice would be a gloomy place, filled with whispers and connected only with death and dying. I now see this was a completely wrong impression.” “All my questions and fears were answered with great knowledge, humour and friendliness.” “It has been the best step I have taken in years.” How will we continue to improve? As the introduction of the physiotherapist was delayed until March 2013, the service has yet to be evaluated. Formal evaluation of the service is being set up nationally validated evaluation tools (Therapy Outcome Measures and Palliative Care Assessment Score) and a range of key performance indicators will be identified. The post holder will also identify areas where care has been compromised or could be enhanced by an occupational therapist as part of the multi-disciplinary team. Following evaluation recommendations will be made to the board. Lymphoedema services at the hospice are currently extremely vulnerable owing to contractual issues and the Hospice is currently negotiating with the CCG regarding ongoing service levels and commissioning. Depending upon the outcome, Lymphoedema services will move under the umbrella of day hospice and this service could be further enhanced and developed by involvement of the Physiotherapist and a dedicated Lymphoedema Tripudio clinic which will support patients with maintenance and prevent exacerbation of symptoms. The national model of Health and Well Being clinics has been launched and the hospice is very keen to explore further as more people are now surviving cancer and its treatments but living with debilitating side effects. The Health and well being clinics aim to support patients with rehabilitation and live a fulfilling life beyond their disease. The Hospice would be an ideal base for such a clinic, we could effectively make use of existing expertise and often patients accessing current services would benefit from this approach. 17 The Hospice is keen to support patients closer to home and prevent avoidable Hospital admissions. Building on the success of introduction of blood transfusions over the forthcoming year we will explore the introduction of IV antibiotics. Again building upon the success of the breathlessness clinic, a heart failure clinic is planned. The Hospice supports both Darlington and North Yorkshire, however, on recognition that the rurality of areas of North Yorkshire prevents patients accessing the Hospice, the possibility of Satellite Day therapy for these patients will be explored. 18 3.2 Statement of Assurance from the Board The following statements must be provided within a Quality Account by all providers. Many of these statements are not directly applicable to St Teresa’s Hospice, therefore explanations are given. a. Review of Services During the reporting period 2012/2013 St Teresa’s Hospice, Darlington, provided the following services to the NHS: 6 Bedded In patient Unit Day Therapy Service Hospice at Home Rapid Response service Lymphoedema services Family Support (including welfare benefits) Complementary Therapies During the reporting period 2012/2013 St Teresa’s Hospice, provided or sub contracted 7 NHS services (no funding received for Complementary therapies). The Hospice has reviewed all the data available to them on the quality of these NHS Services. The income generated by the NHS services reviewed in 2012/2013 represents 100 per cent of the total income generated from the provision of NHS services by St Teresa’s Hospice Darlington for 2010/2011. The income generated represents approximately 40 % of the overall costs of running these services. What this means: St Teresa’s Hospice is funded by both NHS income and by fundraising activity. The Hospice receives funding from two different PCT areas approximately 80:20 for its NHS funding which reflects patient activity from the two PCT areas. The grants allocated by the NHS contribute to approximately 40% of Hospice total income. This means that all services are partly funded by the NHS and partly by Charitable Funds. St Teresa’s Hospice for the accounting period 2013/14 has signed an NHS contract in place of the traditional voluntary sector grant with Darlington CCG and Hambleton, Richmond and Whitby PCT. Contracts for Rapid response have rolled over as part of a pilot project and are due to expire in September 2013. b. Participation in Clinical Audit During 2012/2013 no national clinical audits or confidential enquiries covered NHS services provided by St Teresa’s Hospice. During 2012/2013 St Teresa’s Hospice participated in no national clinical audit and no confidential enquiries of the national clinical audits and national confidential enquiries it was eligible to participate in. 19 The national clinical audits and national confidential enquiries that St Teresa’s Hospice was eligible to participate in during 2012/2013 was none. The National audits and national confidential enquiries that St Teresa’s Hospice participated in, for which data collection was completed during 2012/2013, are listed below alongside the number of cases submitted to each audit or enquiry as a percentage of the number of registered cases required by the terms of audit or enquiry. St Teresa’s Hospice was not eligible to participate; therefore, there is no information to submit or list here. What this means: St Teresa’s Hospice as a provider of palliative care is not eligible to participate in any national audit or confidential enquires as these have not pertained to palliative care during the accounting period St Teresa’s Hospice has not reviewed any national or local audits during 2012/2013 and therefore has no actions to implement c. Research The number of patients receiving NHS services provided or sub-contracted by St Teresa’s Hospice in 2012/2013 that were recruited during that period to participate in research approved by an ethics committee was none. There was no appropriate, nationally, ethically approved research studies in palliative care in which St Teresa’s Hospice could participate. d. CQUIN Payment Framework St Teresa’s Hospice NHS income in 2012/2013 was not conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment framework because it had a voluntary sector grant in place for the North Yorkshire element of contracts. St Teresa’s Hospice NHS income in 2012/2013 was conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment framework for 2 elements within the County Durham contract. The 2 CQuINS represented 2% of the overall contract value and successful achievement of both has been achieved with full payment. In the accounting period 2013/14 CQUIN measures are within the NHS contract with Darlington CCG for a continuation of the Safety Thermometer, service users and in relation to Dementia. At the time of writing no CQuIn had been agreed with Hambleton, Richmond and Whitby CCG. e. Statement for the Care Quality Commission St Teresa’s Hospice is required to register with the Care Quality Commission and its current registration status is for the following regulated activities: Diagnostic and screening procedures Treatment of Disease, disorder or injury 20 Personal Care St Teresa’s Hospice is registered with the following conditions: Services are provided for people over 18 years old The maximum of 6 patients may be accommodated overnight Notification in writing must be provided to the Care Quality Commission at least one month prior to providing treatment or services not detailed in the Statement of Purpose St Teresa’s Hospice was subject to an unplanned inspection by the Care Quality Commission in January 2013 and was deemed fully compliant. St Teresa’s Hospice has not participated in any special reviews or investigations by the Care Quality Commission in 2012/2013. f. Data Quality St Teresa’s Hospice did not submit records during 2012/2013 to the Secondary Users service for inclusion in the Hospital Episode Statistics which are included in the latest published data. What this means: St Teresa’s Hospice is not eligible to participate in the scheme. g. Information Governance Toolkit Attainment. St Teresa’s Hospice did not participate in completion of the Information Governance Toolkit in 2012/2013. However, the Hospice has its own internal Information Governance Policy. All clinical staff have completed the Connecting for Health Information Governance module as condition of receiving NHS smartcards, and this will be added to mandatory training programs. h. Clinical Coding error rate St Teresa’s Hospice was not subject to the Payment by Results clinical coding audit during 2012/2013 by the audit commission (as it had a voluntary sector grant in place for the reporting period). 21 3.3 Review of Quality Performance during 2012/13 The review of Quality at St Teresa’s Hospice can be considered across the three domains of Patient Safety, Clinical Effectiveness and Patient Experience. The following information provides information on these areas during the accounting period 2012/2013. 2012/13 Performance - Patient Safety Clinical Incident Reporting Clinical Incident Reporting- reporting on clinical incidents was chosen as one measure as it gives an insight for the Hospice and patients as to how “safe” the service was during the accounting period. Clinical incidents are reported by staff involved every time they happen and investigated by the Clinical Governance Board with appropriate action plans put in place. Table 2 Demonstrating Clinical Incidents during Accounting Period 2012/2013 Clinical Incident Slips, trips, falls and accidents - patients 1 Slips, trips, falls and accidents – staff and 6 volunteers Drug errors 0 Other 1 Clinical issues 16 Safety Thermometer St Teresa’s Hospice has completed the patient safety thermometer for the past 12 months as part of the CQuIn for the Inpatient services and Hospice at Home services. The Safety thermometer is a “snapshot” measure taken across pre determined domains on the same day each month. During the April 2012-March 2013 time period, there were no harms recorded in any of the domains measured. Table 3 Demonstrating Safety Thermometer Performance April 2012-March 2013 Month IPU H@H IPU H@H IPU H@H IPU H@H IPU H@H IPU H@H IPU H@H 22 PU Catheter Catheter & VTE * UTI 2 0 - Falls July/Aug/Sept 0 0 2012 ** July/Aug/Sept 0 0 0 0 2012 ** Oct 2012 0 2 0 0 Oct 2012 0 0 0 0 Nov 2012 0 0 0 0 Nov 2012 No patients recorded Dec 2012 0 0 0 0 Dec 2012 0 1 0 0 Jan 2013 0 0 0 0 Jan 2013 0 0 0 0 Feb 2013 0 0 0 0 Feb 2013 No patients recorded March 2013 0 2 2 0 March 2013 0 0 0 0 *VTE not recorded for Hospice patients ** Test period no accurate recording 2012/13 Performance - Clinical Effectiveness Measuring clinical effectiveness is important to the Hospice as it helps identify areas of improvement and is important to both the Hospice and the public as it helps us demonstrate that our services are achieving what we intended to achieve. There is no single way of demonstrating clinical effectiveness; the following will provide a picture of activity. Hospice Performance against the National Minimum Dataset The Hospice collects statistical information on every patient and enters this into a National Minimum Dataset held by the National Council for Palliative Care which allows collation of information on demographics, comparisons between services and conclusions to be drawn on patients' preferences and achievement of these preferences. The following table provides a comparison of the Hospice performance against the most recently published report (May 2012) on the National Council for Palliative Care National Minimum Data Set for 2010/2011 where an appropriate comparison can be made. Table 4 Comparing St Teresa’s Hospice to the National Minimum Dataset Area In patient services Total Number of Patients within a year treated Total New Patients Re-referred Patients Average Bed Occupancy (%) Cancer Diagnosis (%) Non cancer diagnosis (%) Average length of stay (days) Died in Hospice (%) Discharge care home (%) Discharge acute (%) Discharged Home (%) Other Day Therapy Total Number of Patients Treated Number of New Patients Total Days available places Total Places attended Total places booked DNA Average length of care (days) Cancer Diagnosis (%) Non cancer diagnosis (%) St Teresa’s Hospice 2010/2011 (For info only) St Teresa’s Hospice 2011/2012 (For info only) Minimum Dataset 2010/2011 St Teresa’s Hospice 2012/2013 119 181 100 14 60% 122 14 86% 73% 131 6 64% 76% 14% 6.7 82 % 18 % 7.7 87% 13% 13.5 84% 16% 8.1 days 34 % 1% 1% 48% 40% 1% 2% 49% 55% 4% 2% 38.% 1% 46% 5% 2.5% 33% 13.5% 137 146 - 121 72 3920 80 3920 - 54 3840 213 1947 794 300 127 1852 847 326 76% 24% 80% 20% 85% 17% 65% 35% 141 23 Area Hospice at Home Total Number of Patients treated New Patients Patients died in Hospice (%) Patients died at home (%) Patients died at Care home (%) Patients died at Hospital (%) Patients died at Community hospital (%) Cancer Diagnosis Non cancer diagnosis Length of care (days) St Teresa’s Hospice 2010/2011 (For info only) St Teresa’s Hospice 2011/2012 (For info only) Minimum Dataset 2010/2011 St Teresa’s Hospice 2012/2013 213 184 - 182 164 23% 132 15% 9.8% 132 12% 55% 68% 73.3% 68% 9% 3% 4.9% 7% 10% 8% 8.5% 13% 1% 1% 2% 0 55 45 103 52 48 127 83% 17% 123 55% 45% 120 In patient Unit During the accounting period the Hospice had a total of 141 patients on the In-patient Unit, 131 of which were new referrals. Bed occupancy was 64%, lower than the MDS which was 73%. The number of patients is down on last year which can be partly explained by a change in referral criteria when compared to the last reporting period as the hospice no longer accepts planned respite and partly due to medical cover, prior to appointment of the nurse consultant, complex patients could not be accepted. Furthermore, the Hospice needs to review the way in which it records occupancy, currently a bed is available if it does not have a patient in however, cleaning and reserving a bed make it unavailable and this is not currently recorded. The Hospice has 6 inpatient beds, and the national average is 14.75. The Hospice was successful at supporting non cancer patients, with 84% of the in patient population treated having a cancer diagnosis compared to the MDS of 87 %. Average length of stay is shorter than the national average during the accounting period. The number of patients dying in the Hospice is also lower at 46% compared to the MDS of 55%. Considering these statistics alongside the place of death for patients, one assumption is that the Hospice was extremely effective at facilitated discharge, enabling a patient to die in their preferred place of care at home with 33 % of patients dying at home. Nationally, 55% of all admissions result in death and over a half of all patients admitted to inpatient units did not die on their first admission which dispels the myth that people only go to a hospice to die. Day Therapy The total number of places was 3840, with an attendance rate 1827 a slight decrease on the previous accounting period. However, the rate of DNA was increased and the numbers of patients 24 attending from the inpatient unit was significantly reduced when compared to last year which is a reflection of the increased complexity in the patient population. Day therapy will be promoted more broadly as the changes over the accounting period are embedded. Average length of care was above the national average of 127 days with Hospice average length of care being 326 days, this is partly explained by the patient caseload. St Teresa’s Day Therapy has a cancer population of 65% and non cancer population of 35% predominantly neurological patients, who have longer and increasingly, progressively debilitating disease trajectories (and therefore require longer access to day therapy services). Similarly to the national picture, St Teresa’s Hospice had no Dementia patients where Dementia was their primary diagnosis. Hospice at Home The Hospice at Home service supported 182 patients during the accounting period. 68% of those patients were supported to die at home, 12% died in the Hospice with 7% in a care home and 13% in hospital. Again the Hospice was able to support non cancer patients extremely well with 55 % of total patient population having a diagnosis other than cancer. Rapid Response Service The Rapid Response service was established in September 2011 as an initial 18 month pilot project, as a Partnership between NHS county Durham, Marie Curie and St Teresa’s Hospice for Darlington based patients. The project was extended for a further 6 months and the pilot will finish in September 2013. The service was established with the key aim of supporting patients at home, avoiding hospital admission at the end of life where possible and appropriate. The information provided is quantitative for the accounting period 2012/2013, and qualitative research is being carried out by Marie Curie as part of the full pilot project evaluation. Table 6 Rapid Response Performance 2012/2013 Parameter Total Number of Patients Total no. of referrals (total no. of patients) 242 Total No. Of Visits Facilitated Discharge to die at Home from Hospital Total No. OF Patients Supported to Die in PPC (usually home) Total Number of Avoidable admissions (usually from a patient’s own Home) Cancer Diagnosis COPD Heart Failure Neurological Elderly Frail 1633 31 184 136 131 (54%) 40 (16.5%) 29 (11.9%) 14 (5.7%) 28 (11.5%) Key Performance Indicators Key Performance Indicators (KPI) were agreed with commissioners prior to the service commencing. The KPI demonstrate if the service is meeting its goals. 25 Table 7 Key Performance Indicators for Rapid Response 2012/2013 Key Performance Target Indicator Response to patient 95% within an hour of referral Measurement of an 100% advanced care plan in place (ACP) Achievement Notes Achievement of 50% Preferred Place of Care Total Number of Never 0% Events 76% 100% 100% 0% Measurement of the plan in place was achieved at 100%. Of the patients referred to the service only 57% of Patients had it in place (138 out of 242) 184 patients were supported at home avoiding hospital admission out of a possible 242 These are events that should never happen Clinical Audit Audit is a valuable way of examining everyday practice. During the reporting period the Hospice has introduced a 12 month program of Clinical Audit, which is reported on at each clinical governance meeting. The program can be seen in Appendix 1. 2012/13 Performance - Patient and Staff Experience Patient satisfaction St Teresa’s Hospice has invested significant time in exploring patient and service user experience over the past year. User feedback has been sought is a variety of ways including the following: Patient Questionnaires Carer Questionnaires Semi Structured Interviews Focus Groups Suggestion Boxes Additional volunteered information is also recorded from comments, thank you cards and letters and feedback on the Hospice website. Patient Questionnaires- the Hospice subscribed to the annual Help the Hospices Patient Survey, report to be produced June 2013 Carer Questionnaires- Drop in group, analysis of the questionnaires indicated very positive carer experience but that carers were continuing to use the group often in excess of 3 years. The group will be re-focused to provide support to carers up to 3 years post bereavement and development of a “Friendship” group for longer term social needs. Bereavement Care Questionnaire- most people provided extremely positive feedback, no negative feedback was received at all 26 Semi structured Interviews – twice a year a series of semi structured interviews took place conducted by a trained Hospice trustee and non clinical team member Focus Groups- Focus groups were set up to address specific pieces of work, e.g. the development of an Advanced Care Plan The benefit of this formalised user feedback is recognised and the Hospice intends to build upon this for the forthcoming year. The action plan for Service User engagement can be seen in Appendix (ii) Staff Experience An annual staff experience survey was carried out, this year it focused on Staff satisfaction and had a 75% response rate. Overall, Staff satisfaction is high, which is backed up by a high staff retention rate and extremely low staff and volunteer turnover rates, several staff commented that they had not received training in year, when the response rate for the mandatory training workbook was 100%. During the year, we have introduced a new reporting system for staff sickness in all departments. Recognising that these statistics are important indicators, a report is given at the quarterly HR subcommittee meeting and monthly updates are given to all departmental heads. The Hospice has updated its capability procedures and sickness monitoring systems, so that any worrying trends would be flagged up early, and managers have access to good guidance; however, there are no current sickness trend alerts. Staff Training There is an annual Mandatory Training program for all staff. During 2012/2013 all staff who were entitled to access System One also undertook mandatory information Governance training and this will be added to the annual mandatory training matrix. Annual appraisal is in place for all staff and continuous professional development needs are identified normally at this point and fed into individual CPD programs. Awards and Complaints The Hospice receives many letters of thanks and recommendations from patients and families which are celebrated with staff teams. Complaints are seen by the Hospice as an integral part of service improvement as they provide valuable feedback. In the reporting period 2012/13 no complaints were received. Although complaints are very rare, the Hospice does have a complaints process in place. Serious untoward incidents would be reported to both the Care Quality Commission and CCG. Corporate Governance Measures The Hospice has a Board of Trustees which delegates operational responsibility to the CEO and also has the following Officers in place: Anti fraud policy officer (Hospice Trustee) Caldicott Guardian, (CEO) who is responsible for Safeguarding Patient Information 2 Privacy Officers (CEO & Deputy CEO/Head of Clinical Services) Accountable Emergency Officer (CEO) Prevent lead (Hospice Trustee) Accountable Officer, Drugs (Hospice Education Manger) 27 The Board of Trustees Statement The Board of Trustees is fully committed to the provision of a high quality service at the Hospice. The Hospice has a well-established clinical and corporate governance structure, with members of the Board playing an active part in ensuring that the Hospice fulfils its mission, according to its charitable intentions, and in ensuring that the organisation remains responsible and compliant in all areas of CQC Registration, Health and Safety, Employment Law and other relevant legislation. Signed Alasdair MacConachie OBE, DL, FRSA, Chairman Board of Trustees of the Darlington & District Hospice Movement 28 Supporting Statements: St Teresa’s Hospice Quality Account 2012/13 Statement from Health and Partnerships Scrutiny Committee of Darlington Borough Council:3 Members have met with Chief Executive and Clinical Services Manager from St Teresa’s Hospice and undertaken a visit of the facilities and are extremely impressed by the enormity of services offered by the Hospice. Members welcome how the services over the years have developed to include Hospice at Home, Day Care (now Day Therapy), In Patient Unit, Family Support and Bereavement Services. The Hospice has also strengthened its Management Team to include a new Finance Director, Head of Clinical Services and Nurse Consultant. This enables the Hospice to remain current and ensures that the services provided are relevant for those who need them. Members are pleased that following a review of Clinical Services, services have evolved in response to the level of need for example, improvements to Day Therapy Services. The focus of the Day Therapy Model is based around palliative rehabilitation ... This builds on the ethos of care closer to home and what the Council, Darlington Clinical Commissioning Group and County Durham and Darlington NHS Foundation Trust are aiming for. The Hospice is also able to care for patients with complex needs and staff are trained to administer intravenous drips, antibiotics and blood transfusions at the hospice instead of transferring patients to hospital. The Blood Transfusion Service at the Hospice has been extremely well received by both local GP's and patients. GP's are able to refer directly to the Hospice, preventing a hospital admission ...... allows the patient to receive their treatment in an appropriate, comfortable and calm environment. Members are delighted that GPs have established a positive relationship with the Hospice and that GP Palliative Care Leads Group meetings are convened at the Hospice. The Hospice plays an important role in facilitating good links with all GP Practices, disseminating topical information and developing action plans and GPs have welcomed the support. Members acknowledge that benefits of St Teresa’s remaining an independent charity as the Hospice is able to be responsive to need and adaptable. The aim is to ensure all of the services are integrated with any state provision to avoid duplication and ensure what is best for the patient. 3 [Extract from the Final Report of the Older People and End of Life Care Task and Finish Review Group to consider the Older People and End of Life Care workstreams of County Durham and Darlington NHS Foundation Clinical Strategy, Chaired by Cllr Jan Taylor. Yr ended March 2013] 29 Statement from Darlington Clinical Commissioning Group 30 Appendix (i) Summary of Clinical Audits 2012/13 Month of Audit April 2012 Audit Title Audit Purpose Audit of Paper patient records May 2012 Drop in review May 2012 End of life care pathway audit` group July 2012 Audit bereavement Questionnaires of October 2012 Darlington Bereavement forum evaluation December Audit of Hospice To audit recording of patient information in accordance with Hospice Policy To audit the End of Life Care Pathway in accordance with guidance Audit of attendance at group and experience of service users To identify if this group is meeting its agreed objectives To identify levels of satisfaction with FST’s service To identify any service improvements which may be made Outcome / Actions Plan to improve practice Attendance remains high but repeat attendance by new members remains low. The responses affirm that the current format, with its emphasis on peer support and social contact, continues to be appropriate and that the volunteers are affective in facilitating this group. There is evidence that after 2 or 3 years members are generally in a position to move on from support at the hospice. We will undertake further consultation with service users to explore the possibility of longer term members setting up their own friendship group. Most of the referrals are via the hospice so it may be helpful to continue raising awareness of the service with GPs and other health professionals. Audit of service users’ comments and evaluation about the ongoing bereavement support provided by FST To identify levels of satisfaction with FST’s service to all families of people who have died under the care of the hospice To identify any service improvements which may be made Analysis of real-time and /or written feedback from participants of the DBF To identify if this group is meeting its agreed objectives To identify any service improvements which may be made As part of ongoing commitment to Overall the comments received were positive and levels of satisfaction remain high. Comments made regarding other hospice services have been passed on to the relevant departments. Suggests for service improvements included evening drop-in (x1)and follow-up visits (x1). In the past we have provided evening drop-in groups but these are generally not used, however we now offer drop-in support in both Darlington and Richmond providing alternative times and days, giving a wider range of choice than previously available. We do not routinely undertake follow-up telephone calls or visits. The decision to provide follow-up in addition to postal support is made at the weekly clinical team meeting based upon information provided on the handover form. Generally, the Forum has met its aims. The three presentations this year were all well attended and received positive feedback, however, our goal of setting up a website has not been achieved. A website for the Forum will be explored in 2013. The Hospice is to continue hosting regular events in line with the groups’ suggestions. There will be time at each event for sharing news/issues and networking. The hospice will liaise with members about Dying Matters Week in Darlington and explore the feasibility of staging a multi-agency event. Audit completed and action plan put in place. Inspection January 2013 deemed Hospice fully compliant. 31 Month of Audit 2012 December 2012 December 2012 January 2013 January 2013 January 2013 Audit Title Audit Purpose compliance to CQC Essential standards Christmas tree of memories evaluation Essential Steps in Infection Control Audit of Staff receiving Clinical Supervision Audit of Experience: Staff 1. Annual Questionnaire Audit of Staff Experience: 2. Audit of Staff Sickness Levels January 2013 Audit of Clinical staffing levels January 2013 January – monthly January 2013 January 32 Patient Safety Thermometer Audit of Opiod prescribing Audit of Hospice compliance to CQC Essential standards Audit of Patients quality and to ensure compliance in readiness for inspection Evaluate questionnaires completed by staff and volunteers on the day To identify if this event is meeting its agreed objectives To identify any service improvements which may be made To ensure Hospice Compliance across all domains of Infection Control Identify staff accessing clinical supervision Identify quality of supervision and determine if meeting staff and organisational needs To assess staff satisfaction and identify improvements where necessary To assess whether levels are within acceptable parameters To assess whether appropriate action is taken in case of long-term absences To check for any tell-tale trends – e.g. overload in one department resulting in burn-out, etc Audit of staffing ratios and skill mix against national recommendations To identify Hospice performance across domains of VTE, Falls, pressure sores, catheter care To identify effectiveness of the Morphine/Diamorphine switchover training program and subsequent practice As part of ongoing commitment to quality and to ensure compliance in readiness for inspection To identify current service use and Outcome / Actions Plan to improve practice Review completed. Audit completed- 100% c Event worked well. Next year we will follow up on recommendation to check the Book of Remembrance against the attendance list to ensure names have not been missed. Audit demonstrated supervision was infrequent, often unorganised and set up with counter-productive staff groups Complete re-design of supervision provision. Comprehensive program of supervision overseen by external supervisor agreed and in budget to commence April 2013 The annual Staff Questionnaire demonstrated that staff are under-valuing online training and workbooks (i.e. not counting as a training course) in some cases. Action was taken to ensure all courses are evaluated and recorded, and that information is cascaded as appropriate, via team meetings. No other trends were identified During the year, a new reporting system for staff sickness in all departments was introduced. A report is now given at the quarterly HR sub-committee meeting and monthly updates are given to all departmental heads. The Hospice has updated its capability procedures and sickness monitoring systems, so that any worrying trends would be flagged up early, and managers have access to good guidance; however, there are no current sickness trend alerts. One member of staff was successfully rehabilitated into a new post, following a capability assessment. Audit indicated shortage of HCA for both IPU and RRT Appropriate organisational policy followed for requesting additional posts, ratified and in budget April 2013 for 2 new wte HCA No adverse variances recorded to date, will be monitored on a month basis and deviations reported on at Clinical Governance meeting 100 % compliance with prescribing of opioid of choice. Audit to be repeated in July Action plan created and gaps identified and immediately rectified. Annual CQC inspection in January 2013, Hospice was fully compliant. Audit against standards will be completed again in December 2013 Provision is dramatically reduced in comparison to previous years, which is not consistent with national push to move Month of Audit 2013 January 2013 Audit Title accessing Hospice at home Patient Satisfaction Audit Purpose compare to historical statistics Audit to evidence patient satisfaction and identify areas of improvement Outcome / Actions Plan to improve practice February 2013 February – monthly 2013 Audit of Complementary therapy service against network criteria Audit of SystmOne Post Go Live To identify compliance with NECN criteria for Complementary therapists Volumetric report completed to audit numbers of staff trained who are utilising the system February 2013 March 2013 March 2013 Audit of Discharges from CDDFT to Hospice Audit of Patient Flows Review of Carers’ Group Weekly audit of tasks, waiting lists and caseloads to identify issues with use of the system To identify problematic discharges from CDDFT to the hospice To identify patient flows to services from Darlington and North Yorkshire Audit of attendance at group and experience of service users via real time and/or written feedback To identify if this group is meeting its agreed objectives To identify levels of satisfaction with FST’s service To identify any service improvements which may be made care closer to home. Recognition of lack of leadership for the service, planned Hospice at Home lead role, in budget to commence Q2 Two groups of Semi-structured interviews were carried out by a non-clinical member of staff and a Hospice Trustee, with 6 randomly selected carers, to assess patient satisfaction with services. Excellent feedback was received and a full confidential report has been forwarded to clinical governance group for start of new hospice year (April). There were no problems/complaints to act upon following the interviews (it was recognised that this should be escalated immediately should any issue be raised). One comment was received regarding patients “keeping quiet” about being in pain, which has been forwarded to staff, as part of their learning. Register of therapists now in place All therapists now have appropriate indemnity insurance Planned development of patient information leaflet Recognition of development needs of the service and agreement by Education and personnel committee to develop a Complementary Therapy lead, in budget to recruit Q2. Report showed 61 users trained and only 44 logged onto the system. Each one explained through long term sickness, holiday, managers issued with smartcards for reports only Weekly audit of tasks has identified gaps in staff knowledge where training has been put in place Problems with allocating DTU patients- new system put in place Caseload management issues Delays in were analysed and delayed discharges were associated to equipment (Oxygen concentrators purchased) and to lack of ward knowledge on Hospice accepting 24/7 referrals. SPC team now all aware can refer 24/7 Identification of large numbers of day therapy patient from N. Yorks, discussions to begin with North Yorkshire staff to identify better ways of serving patient population in April 2013 Delayed until May 2013 33 Appendix (ii) Patient & Carer Feedback: OUTLINE ACTION PLAN FOR 2013-14 Abbreviations: GMT – General Management Team (Heads of Depts); SMT – Strategic Management Team (CEO, Deputy, and 4 Senior Managers) Over-all Objectives for the Year: Have a co-ordinated approach, which allows for additional feedback to be solicited if necessary (e.g. in the case of focus groups on specific topics) and to ensure appropriate and timely feedback, following any suggestions by patients or carers. REGULAR REPORTS AND “REAL TIME” OUTCOMES will be a feature (i.e. “real time” feedback and action wherever possible, rather than delayed reporting and lengthy plans). Buy-in from all departments to ensure feedback is captured whether it be soft or formal intelligence-gathering Ensure stakeholders, whether patients, carers, staff or volunteers, hear how this makes a difference No Item Objective / Improvement areas from last year 1. Share last year’s findings - Bring forward recommendations from annual report, and formalise the structure. 2. Provide resource additional - Following the recommendations in the annual report, we will identify Patient & Carer Satisfaction as a key part of a named individual’s role. 3. Use of Questionnaires Patient - To elicit feedback direct from patients who are currently using the Hospice’s services. To ensure that staff are (sensitively) promoting the questionnaires. To ensure that there’s a robust system for collating and evaluation. To ensure that issues are escalated and action plans are speedily implemented To share results effectively. - 34 DETAIL - Share Annual Report with Managers & Teams Hold evaluation and forward planning session Budget has been approved Formalise role description for additional (hospice) resource Approval by HR sub-committee Appointment of additional resource (New Lead) - Receive and share report from University of Kent regarding participation in the Help the Hospices patient Survey - Task group to forward-plan, to improve patient questionnaire distribution and the numbers returned if possible - Share outcomes with patient, carer and staff groups Ensure Service User experience is reported on in the annual Quality Account Produce Annual Report Share at Board of Trustees Evaluation and Forward planning at GMT Lead By When Jane Bradshaw GMT Meeting 25.04.13 JB/Victoria Ashley Diane Farrell New Lead (see above) JB VA April - June 2013 June 2013 June 2013 and ongoing No Item Objective / Improvement areas from last year 4. Use of questionnaires: Carer - Improve distribution across all services 5. Conduct Carer Interviews: - Building on the new structure created last year, continue to elicit feedback from Carers, in a 1:1 semi-structured conversational style, regarding the experiences of their loved ones who used the Hospice’s services. - Ensure appropriate and timely feedback, following any suggestions by carers ; REGULAR REPORTS AND “REAL TIME” outcomes will be a feature (i.e. “real time” feedback ,rather than delayed reporting) DETAIL - - - 6. 7. Service Groups: User Focus Review suggestion boxes: - - Proposed groups: a. Hospice now and future (Involvement in writing the new strategic plan) b. Improving patient comfort (in light of 68% from Dept of Health Application) Others topics tba Continue to monitor, report and action plan Aim to improve on frequency of servicing and passing on info from the boxes Aim to improve feedback to initiators, where known Aim to improve general feedback via meetings, newsletters, etc - meeting - Share report and action plan at Clinical Governance Meeting Review the process now in place Forward-plan with Dept Heads Monitor progress Produce Annual Report Share report and action plan at Clinical Governance Meeting Share at Board of Trustees Obtain written feedback about the process from those responsible, in order to ensure they are well-supported and to inform future plans Continue ongoing planned programme with Trustee and Staff Rep, holding two sessions (of six 1:1’s) to be held September and March Implement a tracking system through clinical governance Ensure any issues are speedily escalated and resolved, and outcomes shared with the initiator. These groups will be coordinated and facilitated by the new lead. Aim to have had at least 2 by end of year As the Hospice is producing a new strategic plan, the focus groups will be involved as stakeholders. Produce annual report Ensure all staff are aware of boxes Ensure boxes are maintained in a presentable condition with writing materials and forms easily accessible Make agenda item at team meetings to ensure escalation process is known and information is shared. Lead By When JB GMT Meeting April 2013 JB April 2013 Ann Foster, Lynne Wright Sept. 2013 & March 2014 JB & VA May 2013 New Lead (see above) From June 2013 ongoing New Lead (see above) From June 2013 ongoing 35 No Item 8. Produce Report letters received: 9. 36 Objective / Improvement areas from last year from Ensure Service User Representation at Key Hospice Meetings: - Collate comments from thank you letters and check for actions necessary Produce update to Clinical Governance Meetings Produce annual report To ensure the “User Voice” is appropriately represented at key Hospice meetings such as AGM, Board of Trustees, CQC inspections. DETAIL Lead By When - Weekly trawl of correspondence Timely action planning as necessary Produce annual report New Lead (see above) From June 2013 ongoing - Ensure that User rep’s and/or the staff lead (New Lead above) are invited to key meetings in the Hospice calendar. JB, VA and Senior Admin. All year