QUALITY ACCOUNT 2012/13 1 Our Vision Putting local patients and families at the heart of everything we do, we will ensure that on the journey towards the end of life, we provide the right care, in the right place, at the right time Our Values: Care – We will provide 1st class care, delivered by competent people who put the patient at the heart of all we do Compassion – We will treat everyone with respect, dignity and empathy Collaboration – We will work with others to ensure that patients and families receive the best end of life care possible Charity – We will provide care free of charge to patients and families and will connect with our local communities so that they continue to finance our present and our future St John’s Hospice Built by the people, for the people 2 Part 1 Chief Executive’s Statement It gives me great pleasure to present this, the first Quality Account for St John’s Hospice, Lancaster. In this account our aim is to show how the Hospice measures quality, involves patients, carers and staff and strives to always look for areas where we can improve our care. A Quality Account is an annual report to the public from providers of NHS healthcare about the quality of services they deliver. It is important to note that St John’s Hospice only receives around 30% of its funding from the NHS, the rest (around £2.5million) is donated by the local community. The majority of services described in this document are funded by charitable donation rather than by the NHS. Quality sits at the centre of all that the Hospice does. Our vision is that everyone in our catchment area of South Lakeland, parts of North Yorkshire and all of North Lancashire with any life-limiting condition will have high quality care and support at the end of their life in the right place, at the right time. We asked patients, families, volunteers and staff to sum up in one word what St John’s means to them. Their key words can be seen here: 3 Our Corporate and Clinical Governance structures ensure that we have both the systems and processes in place to maintain a viable and responsible business, whilst ensuring that our services are of the highest quality and meet the aspirations of our vision. Our services are subject to unannounced inspections at any time. In order to prepare for this, during the 2012/13 period we instigated a “peer review” mock inspection by colleagues. It is important to us that we are viewed as part of a wider healthcare community and are not seen to work in isolation. The findings from our peer review were welcomed and used to ensure continuous improvement for patients and families. On the 2nd February 2013, the CQC conducted an unannounced inspection of the Hospice. The Hospice was fully compliant in all areas inspected. This year we are proud to have achieved: An increase in the number of patients accessing our care following the refurbishment of the ward The development of a day hospice group specifically for patients with Chronic Obstructive Pulmonary Disease (COPD) Introduction of McKinley Syringe Drivers following NPSA alert Extension of the hours to the Hospice at Home service in North Lancashire Pilot “Reminiscence” programme in day hospice Purchase of scanning equipment to prevent patients being transferred to hospital unnecessarily Developed a three year hospice strategy linked to commissioning priorities Our goals for future improvement include: To become the palliative care “hub” for North Lancashire To move from paper to electronic records, using an IT system that our GP colleagues also use To complete a review of food and nutrition throughout the Hospice To gather accurate data and information in order to demonstrate our value to commissioners I am responsible for the preparation of this report and its contents. To the best of my knowledge, the information contained in this Quality Account is accurate and a fair representation of the quality of healthcare services provided by our Hospice. Sue McGraw Chief Executive 11th April 2013. 4 Part 2 Priorities for Improvement 2013/14 The priorities for improvement we have identified for 2013/14 are set out below. These have been developed in conjunction with patients, carers, staff and stakeholders. We have expressed our priorities in terms of the three domains of quality: Patient safety Clinical effectiveness Patient experience Priority 1 – Patient Safety & Patient Experience Review and Improve the patient experience on the Ward This will include looking at the physical aspects of the building, equipment and resources in the rooms and the communal areas How was this priority identified? Feedback from patients, families, carers, visitors and staff is crucial to the on-going development of our care. Whilst there is no doubt that the hospice environment is safe and well maintained, we wanted to give our stakeholders the opportunity to highlight areas where we could make simple changes to improve the patient experience. Over a 3 week period, we asked everyone who visited to tell us what one small thing would make a big difference. We will continue to do this over the next twelve months to ensure that the patient and public voice is at the centre of our plans. How will progress be monitored and reported? Further consultation sessions will be arranged Our patient and family User Group will be consulted Suggestions will be reported to the Care and Quality Sub-Committee who in turn will report to the full Board Priority 2 – Clinical Effectiveness Become the Palliative Care “Hub” for North Lancashire and share our learning with neighbouring commissioning groups Provide a telephone “hub” and a 24/7 rapid response service in the community for end of life patients in North Lancashire 5 How was this priority identified? Almost half of complaints to the NHS relate to bereavement or the way in which someone has died. Since the End of Life Care Strategy was produced in 2008, Commissioners have been keen to understand ways to deliver end of life and palliative care more effectively. The End of Life Care Commissioning Lead in North Lancashire, guided by key national drivers such as the NHS Mandate, end of life care profiles for the area, predictive modelling tools and experience from having worked in the hospice and as a local GP over a number of years, recognised that the current model was not sustainable. Most people, given a choice, would prefer to die in their own home, and yet statistics show that only around 35% achieve this. The development of the Hub came as an initiative to address this issue whilst ensuring that the most cost effective model was provided. How will progress be monitored and reported? A multi-agency project group will monitor progress Satisfaction surveys with bereaved relatives Monitoring of performance using the National Council for Palliative Care’s Minimum Data Set, alongside locally developed CCG KPIs (to be advised) Progress will be reported to the Care and Quality Sub-Committee, who in turn will report progress to the full Board Priority 3 – Safety Adoption of an electronic patient record system to ensure patients receive safe, effective and consistent care We will adopt the system used by GPs in both our Commissioning areas How was this priority identified As the hospice is a charity and not part of the NHS, we do not have access to the IT infrastructure that many of our colleagues in the wider healthcare community are currently using. When patients are transferred to us, we have to access paper documentation which is not always available in a timely manner. Equally, on discharge, our colleagues in the community have little or no information immediately. Clearly this has the potential for delay and mistakes in communicating key information which may affect patient safety. How will progress be monitored and reported? A cross healthcare community project group will monitor and report on the effectiveness of the new system Regular audits will be undertaken Staff will be consulted to ensure they are involved in the development of the project Surveys of partners will be undertaken to ensure that the project is effective Progress will be reported to the Care and Quality Sub-Committee who, in turn will report progress to the full Board 6 Priorities for Improvement 2012/13 As this is the first Quality Account produced by St John’s Hospice, there was no formal statement of priorities for improvement in 2012/13. However, we constantly strive to make improvements for patients and families. Below are just three examples, expressed in terms of the three domains of quality, where we made improvements in 2012/13. Patient Experience Ward Improvements Following a complete refurbishment of the Ward, we have gradually increased bed occupancy to put us in the upper quartile for bed occupancy as guided by the National Council for Palliative Care Minimum Data Set On completion of the ward refurbishment, the facilities within the Hospice were vastly improved. Facilities for families to stay over-night and a family day room with a comfortable and welcoming atmosphere were introduced enhancing the patient and family/carer experience. Our reception area was improved to enable disabled access in an inviting and calming environment. 7 Patient Safety Safer Ambulatory Syringe Drivers We worked with colleagues across Cumbria and North Lancashire to choose a syringe driver to meet the requirements of the NHS patient safety alert, December 2010. Ambulatory syringe drivers are widely used for palliative care and long term therapy in all clinical settings and at home. Some ambulatory syringe drivers have rate settings in millimetres (mm) of syringe plunger travel and require manual calculation to set the correct dose, which introduces the risk of errors. On the 10th December 2010, the NPSA recommended that these syringe drivers should be phased out within five years. In line with community partners across North Lancashire and South Cumbria, the Hospice adopted the McKinley Ambulatory Syringe Drivers and following training and education to all staff these were implemented across the organisation, three years before the NPSA deadline, therefore reducing the risk of medication errors. Clinical Effectiveness Extension of Hospice at Home Hours To meet unmet community demand, the Hospice at Home Service hours were extended to cover the hours of 7am-10pm Traditionally, our hours of working for the Hospice at Home team were 8.30am-4.30pm. This limited service did not link with the working hours of other colleagues in the community. In addition, patients’ needs were not being met at crucial times during the day/evening. Clinical Effectiveness/Patient Safety The Appointment of a Quality & Development Co-Ordinator To ensure that the increasing demand to meet regulatory requirements is met, the Hospice invested in a new post, Quality & Development Co-Ordinator. This senior post will be managed by the Head of Care and will ensure the Hospice meets its duty to ensure clinical effectiveness, patient safety and patient experience are at the forefront of care. 8 Part 2 (Continued) Statements of Assurance from the Board Quality Accounts have a series of statements that MUST be included. Many of these statements do not apply to St John’s Hospice. Explanations of these statements are given where appropriate and are prefaced by the words: “MANDATORY STATEMENT”. During 2012/13, St John’s Hospice provided the following services: In Patient Unit – 17 beds (registered for up to 20.) Hospice at Home Service Day Hospice Family Support and Bereavement Service Education and Training – Community including 6 Steps to Success programme with Care Home Education and Training – Students including Lancaster University GP trainees, GPSTRs from the Liverpool University Deanery, Nurses and Occupational Therapists from UCLAN and University of Cumbria Out Patient Clinics – Including malignant and non-malignant Lymphoedema Charitable donations support 70% of this work, the remaining 30% comes from the NHS. During 2012/13, we made the transition from receiving funding via 3 PCTs (North Lancashire Cumbria and North Yorkshire,) to receiving funding from two Clinical Commissioning Groups (CCGs) Lancashire North and South Lakes Locality. MANDATORY STATEMENT – St John’s Hospice has reviewed all the data available to them on the quality of care in all these NHS services. Participation in Clinical Audits The Hospice Audit calendar is led by the Head of Care, co-ordinated by the Education department and overseen by the clinical team. Audits are a standing item on the Clinical Governance Committee agenda and are discussed monthly at the clinical management meeting. 9 The following are examples of audits conducted within the Hospice in 2012/13: End of Life Documentation checklist Management of oral Candidasis Bedrails Decision Record Hoist Battery Charging Regime Day Hospice of Patient HAD Scores Recognition of Depression and Use of Anti-Depressants Notification of Death Letter Drug Allergies Fire Recommendations St John’s Hospice took part in the North West Audit Group regional heart failure audit during 2012/13 Research MANDATORY STATEMENT - The number of patients receiving NHS services provided or subcontracted by St John’s Hospice in 2012/13 that were recruited during that period to participate in research approved by a research ethics committee was NONE Use of the CQUIN Payment Frame MANDATORY STATEMENT - St John’s Hospice NHS income in 2012/13 was not conditional on achieving quality improvement and innovation goals through the Commissioning for Quality and Innovation payment framework because it is a third sector organisation and as such was not eligible to participate in this scheme during the reporting period. Statement from the Care Quality Commission (CQC) St John’s Hospice is required to register with the CQC; we are registered to carry out the regulated activities: Treatment of disease, disorder or injury Diagnostic and screening processes Transport services, triage and medical advice provided remotely 10 St John’s Hospice has the following conditions on registration: Only treat people over 18 years old Only accommodate a maximum of 20 in-patients The CQC has not taken any enforcement action against St John’s Hospice during 2012/13. An unannounced CQC inspection took place on the 2nd February 2013. The following standards were inspected: Respecting and involving people who use services Care and Welfare of people who use services Safety and Suitability of Premises Requirements relating to workers Complaints Handling All areas inspected fully met CQC standards. Data Quality MANDATORY STATEMENT - St John’s Hospice did not submit records during 2012/13 to the Secondary Users Service for inclusion in the Hospital Episode Statistics which are included in the latest published data. However, St John’s Hospice does submit data to the Minimum Data Set (MDS) for Specialist Palliative Care services collected by the National Council for Palliative Care on an annual basis, with the aim of providing an accurate picture of Hospice and Specialist Palliative Care service activity. Information Governance Toolkit St John’s Hospice Information Governance Assessment Report overall score for 2012/13 was 39% and progress was considered satisfactory by the Information Governance Delivery Service. Clinical Coding Error MANDATORY STATEMENT – St John’s Hospice was not subject to the payment by results clinical coding audit during 2012/13. 11 Part 3 Review of Quality Performance In this section, we have chosen to provide data benchmarking St John’s Hospice with figures from the National Council For Palliative Care Minimum Data Set, (MDS.) The MDS is the only national benchmarking tool for Hospices. In Patient Unit 2012/13 2011/12 Total number of patients 293 286 Number of new patients 259 248 % Occupancy 74% 67% Location after end of stay 161 – Deaths 160 – Deaths (NB Figures do not total because some patients were admitted more than once.) 169 – Home 172 – Home 7 – Care Home 14 – Care Home 4 – Acute Hospital 12 – Acute Hospital 9 - Other 7 - Other 15.4 11.6 2012/13 2011/12 Total number of patients 315 250 Total number of visits face to face 4902 4155 Total number of telephone calls 4722 3858 % of people who died at home 92% 93% Average length of care 25.9 days 38.4 Average length of stay Hospice at Home 12 Day Hospice 2012/13 2011/12 Total number of patients 140 144 % new patients 69% 74% Average period of attendance 85 days 91.4 days 2012/13 2011/12 Total service users 456 444 Number for whom formal support ended 391 379 Average length of support 47 days 88 days Family Support and Bereavement Service Feedback from Staff St John’s Hospice is a significant local employer with low rates of staff turnover and high levels of applicants when vacancies are advertised. An annual staff satisfaction survey is conducted, the top three statements that staff agreed with were: I enjoy the work I do – 97% I am proud to work for St John’s Hospice – 96% I feel like I am making a difference – 92% 13 Feedback from Patients, Families and Carers Feedback from patients, families and carers is one of the most important ways for us to understand and improve the services we provide. Here are some examples of comments and compliments in our service users’ own words: 14 Surveys We conduct regular patient and family surveys on the ward, here are some recent comments: “I feel like I’m in Heaven” “We think it’s great” “I’d prefer plainer food. Some days I don’t know what’s available and at what times” As a result, a Board member will lead a review of food and nutrition in the Hospice over the next 12 months. Complaints 2012/13 Complaints are all monitored by the relevant member of Senior Management Team, clinical complaints are discussed at the Clinical Governance Committee and are reported to the full Board. Complaints Number Total number received 4 Total number of complaints upheld in full 1 Total number of complaints upheld in part 2 Total number of complaints not upheld 1 Opportunities to give Feedback on this Quality Account We welcome feedback on our first Quality Account. If you have any comments, please email: Sue.mcgraw@sjhospice.org.uk Or write to: Sue McGraw Chief Executive St John’s Hospice Slyne Rd Lancaster LA2 6ST 15 Annex Quality Account Consultation with Key Stakeholders St John’s Hospice, Lancaster Quality Accounts Feedback Cumbria County Council The Cumbria Health Scrutiny Committee welcomes the opportunity to comment on the St John’s Hospice Quality Accounts for 2012-13. Councillors sitting on the Health Scrutiny Committee have provided their individual feedback on the document and have highlighted firstly how readerfriendly the document is, with photos nicely breaking up the text and providing the reader with a well laid-out document that is informative, interesting and progressive. Further, councillors have found the document to be concise and both accessible and clear in the language it uses. The account provides a clear picture of what is happening across the hospice and the comparisons provided on the previous year is very helpful too. The overall picture is of a well run and caring establishment. At the same time, there was a suggestion that perhaps more information could have be drawn from the unannounced inspection of 2 February 2013, with more detail provided upon the inspection successes. In addition, councillors feel that readers would be interested to hear what St John’s were pleased about, following the inspection, and whether there were any points that it wished to develop and incorporate in future priorities going forward. It is an important element of quality accounts documents to have a strong element of reflection. Health Scrutiny members appreciate the work that has taken place over the recent year and look forward to continuing to work with the Hospice. 16 Healthwatch Cumbria Best Life Building 4-8 Oxford Street Workington Cumbria CA14 2AH Tel: 03003 038 567 www.healthwatchcumbria.co. uk Re: Feedback on St John’s Hospice Quality Account To Whom It May Concern: We were asked to provide some feedback on St John’s Hospice Quality Account for 2012-2013. The following document details our comments and suggestions, although we would like to stress that Healthwatch Cumbria is an organisation still very much in its infancy and without a full staff team available to carry its public engagement function. We therefore feel that in future, with greater resources available, we can produce a much more detailed feedback report. Feedback Upon reading the Quality Accounts for St John’s Hospice, the Healthwatch Cumbria team feel that they are very well laid out, giving clear precise information. They have clearly set out their priorities using the various tools at their disposal, such as “peer review mock inspections”, regular patient surveys, consultations etc. It is good to see that they have an active patient and family user group who are able to inform decisions, services delivered etc. There was a general consensus that the idea of a cross healthcare community project around patient’s records is excellent, as it is vital that patient records are available to hospice staff. We feel this is very positive. One of our team was impressed with the feedback from the staff, which clearly show a very happy staff team work at the hospice. She said “I like the feedback from patients, families and carers, in their own words, which show how much they valued the care and services received from the hospice and staff team.” Overall, we feel it is a very accessible document, highlighting the good work of the Hospice over the past year. Yours sincerely, Healthwatch Cumbria 17 Lancashire Overview and Scrutiny Committee, Lancashire County Council had no comments to make this year. No response was received from Healthwatch Lancashire. 18