Quality Account 2013 Our care places the patient at the centre of everything we do. Contents Part 1 - Introduction 1.1 1.2 1.3 1.4 1.5 1.6 1.7 1.8 “Our mission is to deliver, champion, and teach, high quality care and choice for those with a terminal illness. We will do this through the creation of a sustainable centre of excellence, improving quality of life and personal experience.” Chief Executive Statement Introduction Overall Statement of Purpose Responsibility towards Patients, Families, Carers and Friends Other Responsibilities Specific Aims Our History Our Hospice today 2 3 3 4 4 4 5 5 Part 2 - Priorities for Improvement 7 2.1 Priorities for Improvement 2012­2013 2.2 Priorities for Improvement 2013­2014 7 10 Part 3 - Statements of Assurance from the Board of Trustees 14 3.1 Review of Services 3.2 Income Generation 3.3 Participation in Clinical Audits Participation in National Clinical Audits Participation in Local Audits 3.4 Research 3.5 CQUIN goals agreed with Commissioners 3.6 What others say about Rotherham Hospice 3.7 Reviews and Investigations by CQC 3.8 Data Quality 3.9 Information Governance Toolkit Attainment 3.10 Clinical Coding Error Rate 14 14 14 14 15 17 17 19 20 21 21 21 Part 4 - Supporting Statements 22 4.1 Statement from Rotherham Clinical Commissioning Group (Rotherham CCG) 22 4.2 Statement from Rotherham Health and Wellbeing Board 22 Part 1 - Introduction 1.1 Chief Executive Statement On behalf of our Board of Trustees and the Executive Team, I am very pleased to be able to present the Quality Account for Rotherham Hospice for 2012/13. Our patients, their families, and carers are at the very centre of our care and delivering quality services to them is our priority. Quality is at the heart of our mission to place the patient and not the illness at the centre of everything we do to improve quality of life and personal experience. The commitment of the Board to ensure the Hospice delivers excellence in care across all of its service is evident through its strong governance framework. I am able to give the Board the assurance they need that the appropriate processes and procedures are in place to underpin all our activities and services; through the operational Clinical and Corporate governance groups and the Board committees of Clinical Strategy, Finance and Resources and Marketing and Communications. I am also grateful to the Rotherham Clinical Commissioning Group (previously Rotherham PCT) for their continued commissioning of our services and the financial support through this contract. I am proud of our relationship with RCCG and their support for the Hospice and commitment to developing services that deliver end of life care of the highest quality to a wide range of patients in Rotherham. Consistently achieving our high standards of care is only possible through the continued hard work of our dedicated members of staff and volunteers. Our team here continues to strive for excellence in all they achieve and the Board and Executive Team would like to thank each and every one for their commitment to providing the highest quality care to our patients and their families and carers. The safety, experiences, and outcomes for patients, their families and carers are of utmost importance to all of us at Rotherham Hospice. Hearing the voice of patients, families and carers is important to us and we seek feedback, comments, suggestions and advice wherever we can to help inform our service developments and governance framework. We receive many positive comments about the quality of our care across all our services from patients and professionals alike. Learning lessons to continually improve care is a key priority for the Hospice. I am committed to developing and nurturing an environment of openness, honesty and transparency to ensure that we fulfil our duty of candour. The Hospice is committed to addressing any concerns and complaints effectively and efficiently and to ensure we learn lessons to continuously improve our care and services. The hospice is a very dignified place, the care and support for patients plus relatives is exceptional.” – Inpatient Unit “I am made to feel special in every way. Fridays are eagerly anticipated!” – Day Hospice “Very good, professional service, very good support for patients, family, carers and GP’s too”. “Carers report feeling confident and supported in caring for their loved ones at home with the help of the Hospice at Home service”. ­ GP who has used Hospice at Home services I am responsible for the preparation of this report and its contents. To the best of my knowledge, the information reported in this Quality Account is accurate and a fair representation of the quality of the healthcare services provided by Rotherham Hospice. Mike Wilkerson Chief Executive 2 1.2 Introduction Rotherham Hospice presents this Quality Account as an annual report to the public, as a provider of NHS commissioned healthcare services. In line with national requirements it exercises our accountability to service users, stakeholders and the broader public and demonstrates how all areas of the organisation have engaged in our quality improvement agenda, reflecting the three domains of quality: patient safety, clinical effectiveness and patient experience. This Quality Account is both retrospective and forward looking, providing a review of services delivered throughout 2012/13, explaining what is being delivered well and where service improvement can be made. It also looks forward, describing key priorities for improvement throughout 2013/14. Finally this Quality Account demonstrates the engagement of service users, key stakeholders, staff and others with an interest in the organisation in determining the quality of our services and the priorities for improvement in the future. For further information on the content of Quality Accounts or to view an account for a specific organisation, please see the NHS Choices website: http://www.nhs.uk/aboutNHSChoices/professional s/healthandcareprofessionals/ qualityaccounts/Pages/about­quality­ accounts.aspx 1.3 Overall Statement of Purpose The purpose of Rotherham Hospice is to enhance, through specialist palliative care and education, the quality of life of patients and those important to them. The Hospice is committed to achieving this by providing services for patients requiring specialist palliative care during the changing phases of their illness. It is also the aim of Rotherham Hospice to ensure that all staff working within the Hospice and associated services are fully engaged and empowered to provide high quality care. In addition, that all patients receiving care from the Hospice and associated services, receive a high quality, effective service that is safe, free from unnecessary risk and promotes personalisation, privacy and dignity. Our purpose is to care for our patients and to support their families, carers and friends. We aim to give the most appropriate and efficient treatment and care to our patients; to assist in the relief of their physical and emotional suffering and to help them to lead an acceptable, purposeful and fulfilling life in their place of residence or in the Hospice. We will offer a well co­ordinated, multi­professional and ‘seamless’ service, which integrates Hospice specialist palliative care services with primary, secondary and tertiary health care services; other voluntary and independent agencies; social services and, in the case of children and young people, education services. Our approach will be non­judgemental and non­ discriminatory. We consider it equally important to give support to those who care for our patients, whether they are professional carers, members of the family or friends. Our care places the patient at the centre of everything we do. 3 1.4 Responsibility towards Patients, Families, Carers and Friends Patients, families, carers and friends will be treated as individuals; with compassion, humility, honesty and love. We will listen to them and, whenever possible, involve them in decisions about patient treatment. Their preferences, beliefs and customs will be respected and their complete privacy and dignity assured through the use of single rooms, screens, discrete interview rooms and heightened awareness of staff to these requirements. The needs of patients at different stages of their illness will always be taken into account. There is no charge to patients or their families for use of our services. 1.5 Other Responsibilities The local community generously contributes a great deal of money, time and effort to sustain our work. We must use these resources wisely, prudently and effectively. 1.6 Specific Aims Our aims are to: • Provide supportive and palliative care for adults with a terminal illness regardless of age, disability, gender reassignment, pregnancy and maternity, race, religion or belief, gender, sexual orientation or civil partnerships. • Encourage patients to maintain their identity, dignity and independence. • Provide a welcoming and homely environment to all. • Facilitate effective, meaningful communication between patients, staff and significant others through a multidisciplinary team approach. • See the patient as a unique individual and plan with them their care management, whilst promoting their independence. • Nurture the patient’s feelings of self­worth and promote a sense of still being able to actively live life. • Support patients and their families in decision making and adapting to changes throughout their illness. • Offer a continuation of care and support through the initial stages of loss and bereavement. • Maintain standards of the highest quality, supporting staff and volunteers’ personal and professional development. • Work together in developing an environment based on support and mutual respect. • Provide education and information to Rotherham healthcare professionals and the general public regarding palliative care issues. 4 1.7 Our History The Rotherham Hospice Appeal was formed in 1988, with the purpose of raising £1 million to provide Hospice care for the people of Rotherham. By 1993 over £550,000 had been raised, and the search for a suitable site began. Rotherham Metropolitan Borough Council offered the site of its old council horticultural nurseries towards the end of that year. The site fulfilled all the criteria required, and was accepted on a 99 year lease for a peppercorn rent. The building of Rotherham Hospice was completed in May 1996, and the Hospice opened its doors to Day Hospice patients in mid­1996. A year later in September 1997 the Inpatient Unit was opened providing 4 single en­ suite rooms and a 4­bed ward. In 2009, the Board of Trustees approved plans for a ten­bed extension to the Hospice Inpatient Unit. In late 2010 the original Hospice was also refurbished to create a modern Hospice suitable for quality care provision into the future. The 10­bed extension was opened in April 2011 and the Hospice now has an Inpatient Unit with 14 single en­suite rooms. 1.8 Our Hospice Today Rotherham Hospice offers a range of services that respond to local need. We strive to provide a homely, welcoming environment, placing significant emphasis on an individual’s dignity, privacy and comfort. The Hospice delivers this care through the following services: • Inpatient Unit – consisting of 14 single inpatient bedrooms all with en­suite facilities including capacity for bariatric care. • Day Hospice – providing 15 places a day 5 days a week (excluding bank holidays). Transport for patients to and from the Hospice is also provided. • Community Care – through the Hospice Community Team which provides Clinical Nurse Specialists covering all of the Rotherham Borough, a 24/7 Advice Line and a Hospice at Home team delivering hospice care in a patients place of residence. • Family Services – including Occupational Therapists, Physiotherapists, bereavement support which includes a child bereavement support group and complementary therapies. Patients and carers can find out more about the services the Hospice offers and how the charity operates by reading the Patient and Visitor Information Booklet provided on admission and leaflets available in the Hospice and on our website. Our members of staff will also discuss topics during the patient’s admission or attendance and on a daily basis as the need arises. Our website www.rotherhamhospice.org.uk also provides further information for patients and families. Our care places the patient at the centre of everything we do. 5 We believe interaction with families and carers is very important to those in our care, and we actively encourage an open visiting policy. Family members and carers are also more than welcome to use the reclining chairs and beverage and snack facilities on offer, should they wish to stay. They can also make use of family overnight accommodation on site should this be required. We ensure that patients can stay in touch with loved ones through the use of telephones and wireless internet facilities in the patient areas. The views and opinions of those using our service are very important to the Hospice. Members of staff seek comments and suggestions through ‘Patient and Carer Experience’ surveys that are provided on admission and discharge. Patients and families are also encouraged to share their views verbally or in writing to staff. A leaflet with further information is available from reception, and the complaints procedure will be discussed with patients and families on admission to the Hospice. In the first instance, those wishing to raise a concern are requested to contact either our Senior Sister on the Inpatient Unit, our Day Sister on the Day Hospice or the Clinical Services Director, who is the Registered Manager. Rotherham Hospice is regulated by the Care Quality Commission and they can be contacted at: Finsbury Tower, 103 – 105, Bunhill Row, London, EC1Y 8TG. The Commission’s telephone number is 03000 616161. The Commission has a website at www.cqc.org.uk 6 Part 2 - Priorities for Improvement 2.1 Priorities for Improvement 2012/13 Looking Back 2012/13 Priority One – Review and redesign of Community/Hospice/Hospital Specialist Palliative Care/End of Life Care Services (Addressing clinical effectiveness, patient safety and patient experience) Standard To lead on a “Whole Systems” review of current Specialist Palliative Care and End of Life Care (EOLC) service provision across Rotherham and the development of a single coordinated service with active EOLC register that allows patients to receive high quality end of life care in their preferred place. How was this priority identified? This priority was identified through active involvement with the EOLC commissioning group where trends of inappropriate service provision, duplication, lack of service and no coordination have all been identified as affecting patient and family experience, clinical outcomes and financial recourses. It was then discussed that an increase in the responsive Hospice service could address some of these issues. However a desire to address the whole situation was expressed and the Hospice is now to lead a pilot project to map, plan and “test out” future models of practice. Performance against this priority Maintaining stakeholder engagement for a whole systems review has been difficult in some instances, due to some stakeholders having to change focus to address independent organisational issues. This has resulted in a single focus on the pilot as a driver for change as opposed to a significant part of a systems wide change process. The pilot has been received very positively across commissioners, partner health care and domiciliary organisations and the local authority. This has allowed growth in terms of joint processes, increased collaboration and less duplication. Responding to service trends in capacity and demand, patient and family needs and stakeholder feedback and revised methodology has seen the service evolve from planned provision to “responsive” crisis management, enabling fewer people (at higher risk) to be managed at a greater intensity. This has resulted in positive outcomes for patients, families and key stakeholders by reducing hospital and Hospice admissions, reducing GP call out and preventing unnecessary social care interventions whilst increasing carer confidence to provide care at home. This has increased the number of people being able to receive care in their preferred place and improved collaboration in relation to community care at the end of life, regardless of the person’s residence. Statistics on preferred place of care have increased from 4.3% to 74.6% across community patients. There has also been a dramatic increase in the uptake of formal and non formal education programs across joint health and social care provider organisations including nursing homes, residential homes, domiciliary services, local authority and GP practices. What people told us about these improvements Feedback about the changes made to services have been received from patients, relatives, carers, GP’s, district nurses and partner organisations. Some of these are summarised below. “Without this service many of my patients would certainly not have been able to die in their preferred place (at home) and I am sure that more if not all of them would have been admitted to hospital”. ­ GP “The service provided the care the patient needed quickly and efficiently” – . District Nurse “I feel we were completely involved in the decisions made regarding care and treatment” – . Patients relative 7 Priority Two – Nutrition and Hospitality (Addressing clinical effectiveness and patient experience) Standard All inpatients and Day Hospice patients receiving nutritional support and hospitality services from the Hospice will feel they have had adequate involvement in their nutritional assessment and that their individual needs have been met. The group has also been instrumental in making changes in relation to the presentation of food including the use of pictures to ensure all meals are presented in the same way and demonstrate appropriate portion sizes. How was this priority identified? Further work is still required in the area of workforce review and this will be taken forward in the coming year. This priority has been identified through recent feeding audits and through patient and family feedback. These processes have identified that patients and families do not always feel that they have the right level of choice regarding meals and that in some cases presentation and menu suitability do not meet individual need. Performance against this priority The Hospice Nutrition and Catering Forum is now a well­established group that considers all aspects of both patient and family needs in relation to nutritional screening, understanding and responding to special requirements and individual choice, standards of food preparation and presentation. It also allows continuous access to the Dietician who is now an active member of the group. This work has seen the introduction of new systems to record personal choices and specific requirements and changed practice to encourage catering staff to have more direct contact with the people for whom they provide services. It has also seen the introduction of improved systems to allow catering staff to have “on hand” information about the needs of each patient and improved menu choice and better utilisation of resources. The Nutrition and Catering Forum will be responsible for conducting future audits and implementing any agreed changes. What people told us about these improvements Inpatient Unit staff have told us that changes to assessment of nutritional status has led to more meaningful discussions and appropriate care planning. One comment made by an inpatient who actually attended a Catering Forum was, “I was extremely happy with the food.” “Really loved the all day breakfast, really nice when others do the cooking” – Day Hospice patient. 8 Priority Three – Bereavement Support Services (Addressing patient experience) Standard All patients, family members and those close to patients will receive pre and or post bereavement support appropriate to their individual needs. How was this priority identified? On­going review of current bereavement support services has demonstrated that although quality can be assured for the level of volunteer service provided, there are significant gaps in the levels and structure of service provided overall. There is also recognition that bereavement services are not standardised across all parts of the organisation. This priority has also been identified as an area for improvement through the CQUIN framework. Performance against this priority Mapping of patient records identified gaps in understanding of some patient’s cultural needs, beliefs and preferred wishes at the end of life. This in some instances led to a shortfall in the quality of recording of any pre­bereavement work that took place between staff, patients, families and carers. The introduction of a new holistic record has increased the engagement of patients and families in joint care planning processes, including discussions in relation to advance care planning, preferred place of care and any other specific direct wishes. This has increased the performance against pre­bereavement support in a very positive way both from a compliance perspective and more importantly for patient and family outcomes. services has increased as a result of raised awareness and expectation and service experience surveys show very positive results from those people who access services. Bereavement support is predominantly delivered via volunteer befrienders, with escalation to level 2, 3 and 4 counselling support where required. This has helped us to identify where further changes to the service, including growth and service redesign, could provide increased capacity and improved outcomes. This will be taken forward next year as an integral part of the development of Patient and Family Support Services. 2012/13 has also seen the growth of bereavement support services for children and young people. Structured pre­bereavement work with patients and families has helped to increase relationships and therefore enable access for children’s bereavement support for children and families who otherwise would not seek support. What people told us about these improvements Early identification of any areas of concern can facilitate early support for bereaved relatives and friends and this has resulted in all relevant people being offered bereavement support services 6 weeks following a death. The uptake of bereavement support Our care places the patient at the centre of everything we do. 9 “The support was helpful as it had been 7 months since my bereavement, it made me realise what I felt was normal” “My support volunteer was friendly but not intrusive” “Extremely helpful, let me talk about matters I could not discuss with the family. Also helped me to stop feeling guilty about the past” 2.2 Priorities for Improvement 2013/14 Rotherham Hospice Board of Trustees is committed to the delivery of high quality care. That is care which is safe, effective and provides patients and carers with a positive experience. Throughout 2012/13 we identified many quality improvements that could be made over the next 12 months. In selecting our priorities we have been mindful of national and local policy as well as those issues which are of concern to our service users, our workforce, our partners and our Trustees. The priorities for quality improvement that have been identified for 2013/14 are set out below. They have been selected because of the impact they will have on patient safety, clinical effectiveness and patient experience. Priority 1: Phase 2: Redesign of Hospice Community Team Priority 2: The development of Patient and Family Support Services, including the introduction of Hospice based social work facilities Priority 3: The introduction of structured Complementary Therapies for Hospice patients and their families. 10 Priority One – Phase 2: Redesign of Hospice Community Team (Addressing clinical effectiveness, patient safety and patient experience) Standard How will this priority be achieved? Phase 2: To ensure that the Hospice implements the findings of the “Whole Systems” review of Specialist Palliative Care and End of Life Care (EOLC) service provision across Rotherham, creating sustainability and increased quality and effectiveness. This priority will be achieved through formal evaluation processes which include the collection, collation and analysis of quantitative measures such as activity data including demand for service, units of care, and hospital admissions averted. It will also consider qualitative measures, including, preferred place of care and patient experience. Final validation will be supported by Sheffield Hallam University. Findings of this evaluation will then be used to determine future working models and service configuration. How was this priority identified? This priority was identified as an integral part of the evaluation and validation stages of the redesign of Specialist Palliative Care Services and End of Life Care Services across the borough. The overall review was considered as a two year work stream with pilot phase testing out future models for validation and commissioning consideration. Monitoring and reporting methods The project will be monitored through the project lead, joint EOLC strategy group and independent University evaluation. On­going performance and option appraisals will be decided through the joint commissioner and provider stakeholder group and final evaluation findings will be reported to the local Rotherham Clinical Commissioning Group for commissioning consideration. 11 Priority Two – The development of Patient and Family Support Services, including the introduction of Hospice based social work facilities (Addressing clinical effectiveness and patient experience) Standard How will this priority be achieved? All patients, carers and family members will have access to holistic services that address their physical, social, spiritual, cultural and diverse individual needs. This priority will be achieved through the appointment of a qualified social worker into the holistic role of Patient and Family Support Services Manager. This will allow dedicated time and focus to enable all of the services under this umbrella to be driven forward in a symbiotic manner. It will be this integration of services that achieves improved outcomes for patients and families by ensuring timely assessment, reduced duplication and increased understanding of need. Patient flow throughout Hospice services will be seamless, coordinated and be delivered in an efficient timely manner, improving patient experience and maximising use of organisational recourses. How was this priority identified? Although bereavement support and carer support services have been delivered by hospice staff and volunteers for some time, these services have been predominantly volunteer led and therefore sporadic on occasions. In addition, dedicated Social Worker time at the Hospice has only been possible thorough local authority funding therefore this has created delays in assessment and care planning processes, particularly for patients requiring local authority or Continuing Health Care funding to support their discharge package. Monitoring and reporting methods Service activity data, service user feedback surveys, and the measurement of carer outcomes such as: reduced calls to advice line, admissions for carer crisis, will be collected and presented on a monthly basis to the Clinical Governance Group to allow the service to be developed in a way that continues to meet the needs of its users. This information will then be reported to the Executive Team and Clinical Strategy Committee as part of a broader quality matrix. 12 Priority Three – The introduction of structured Complementary Therapies for Hospice patients and their families (Addressing clinical effectiveness and patient experience) Standard Patients, carers and family members will benefit from the holistic care provided by Hospice services, including the provision of complementary therapies to enhance personal experience. All complementary therapies to Hospice patients will be free at the point of delivery. How was this priority identified? Complementary therapies have been provided at Rotherham Hospice since its inception but have never been funded as a core service provision. This has led to sporadic care on occasions as volunteer therapists have not been able to commit to providing services on a regular basis. This was identified as an area for improvement as with little investment a tiered approach to complimentary therapy and therapeutic touch could be established which would enhance patient experience across a number of services. How will this priority be achieved? This priority will be achieved through the appointment of a qualified Complementary Therapist. This will allow dedicated time and focus to enable this area to be driven forward across all services. 13 All complementary therapy treatments provided by the Hospice will be overseen by the qualified Complementary Therapist and all volunteer complementary therapists will be supervised and monitored by the above person. This will allow a tiered approach and increased capacity. Monitoring and reporting methods Service activity data, service user feedback surveys, and the measurement of carer outcomes such as: reduced pain, agitation, insomnia etc. will be collected and presented on a monthly basis to the Clinical Governance Group to allow the service to be developed in a way the continues to meet the needs of its users. This information will then be reported to the Executive Team and Clinical Strategy Committee as part of a broader quality matrix. Part 3 - Statement of Assurance form the Board of Trustees The following are a series of statements that all providers must include in their Quality Account. Many of these statements are not directly applicable to specialist palliative care providers. 3.1 Review of Services During 2012/13 the Rotherham Hospice provided the following NHS services: • Inpatient Unit ­ consisting of 14 single inpatient bedrooms all with en­suite facilities including capacity for bariatric care. • Day Hospice ­ providing 15 places a day 5 days a week (excluding bank holidays). Transport for patients to and from the Hospice is also provided. • Hospice Community Team including Clinical Nurse Specialist Services, 24/7 Advice Line and Hospice at Home • Bereavement services, Carers support and Chaplaincy services Therapy services, including, Complementary, Physiotherapy and Occupational therapy and Psychology services. Rotherham Hospice has reviewed all the data available to them on the quality of care and efficiency across all of these services and used this information to facilitate service improvements and or demonstrate commissioner and regulatory compliance. 3.2 Income Generation Rotherham Hospice is commissioned via the National Community Contract, to deliver NHS End of Life Care and Specialist Palliative Care Services on behalf of NHS Rotherham (retrospectively) and in future the Rotherham Clinical Commissioning Group. The income generated by the NHS services reviewed in 2012/13 represents 100% of the total income generated from the provision of NHS services by Rotherham Hospice for 2012/13. The overall income generated from the NHS contract represents 50% of the overall cost of running all Hospice services. 3.3 Participation in Clinical Audits National Clinical Audits and National Confidential Enquiries During the period 2012/13 Rotherham Hospice was not eligible to participate in any national clinical audits or national confidential enquiries. As Rotherham Hospice was ineligible to participate in any national clinical audits and national confidential enquiries there is no list or number of cases submitted to any audit or enquiry as a percentage of the number of registered cases. This is because none of the 2012/13 audits or enquiries related to EOLC or specialist palliative care. The Hospice will also not be eligible to take part in any national audit or confidential enquiry in 2013/14 for the same reason. Although the Hospice did not have the opportunity to participate in national clinical audits throughout 2012/13, internally the following local clinical audits were conducted. 14 Local Clinical audits Rotherham Hospice has conducted and/or reviewed 14 local clinical audits during 2012/13 as follows: Standard Phase 2: To ensure that the Hospice implements the Audit Lead Medicines Management Full Review Medical Director/Clinical Lead/IPU Sister/Pharmacy Lead Controlled Drugs Standard Operating Procedures Review Clinical Lead/Pharmacy Lead April May June July Aug Sept Oct Nov Dec Jan Feb March 2012 2012 2012 2012 2012 2012 2012 2012 2012 2013 2013 2013 NHS Safety Thermometer Clinical Lead/IPU Sister Additional Safety Thermometer markers Clinical Lead/IPU Sister Compliance Evidence Clinical Lead/Governance Facilitator Patient Experience Audit IPU Sister/Clinical Governance/Facilitator/ Trustee of Board External Records Audit External Assessor Revised Records Audit IPU Sister Patient Falls Audit IPU Sister/Focus Group Infection Prevention and IPU Sister & IPC Lead Control Sharps and Hand Washing Audit Data Quality Clinical Lead/Data Analyst Data Collection, recording and reporting CEO/Clinical Services Lead/IG Group Audit on High Impact Interventions(inc safety, processes, impact and experience) Clinical Services Lead Patient Feeding / Nutrition Audit IPU staff and Support Services Manager Our care places the patient at the centre of everything we do. 15 Our care places the patient at the centre of everything we do. We are committed to providing the highest standard of specialist palliative care for patients suffering from life limiting illness over the age of 18. 16 3.4 Research The number of patients receiving NHS commissioned services provided by Rotherham Hospice in 2012/13 that were recruited during that period to participate in formal research approved by a research ethics committee was 0. One formal research programme has been approved by the Sheffield Hallam University Ethics Committee but to date no patients have been recruited due to the criteria for inclusion. This has been reconsidered and resubmitted for revised approval. With this in mind the research will now be conducted in 2013/14. 3.5 Quality Improvement and Innovation Goals agreed with our Commissioners/ CQUIN payment framework A proportion of Rotherham Hospice income from the NHS in 2012/13 was conditional on achieving Quality Improvement and Innovation goals agreed between Rotherham Hospice and Rotherham PCT and any person or body they entered into a contract, agreement or arrangement with for the provision of NHS services, through the Commissioning for Quality and Innovation payment framework. The CQUIN measures were in relation to the following areas: All of these CQUIN measures were achieved in full. Further details of the agreed CQUIN goals for 2013/14 and for the following 12 month period are as follows: 1. 2. 3. 17 Carer Support (Local CQUIN) Safety Thermometer (National CQUIN) Joint Care Planning (Local CQUIN) CQUIN Measure 1 Spirituality and Bereavement Service user Experience This indicator focuses on the delivery of spirituality and bereavement support for patients, carers and family members during all phases of terminal illness including • Pre­bereavement, at the end of life and family members who are closely affected by a death. To ensure that patients and family members are offered, when and where appropriate, ongoing bereavement, emotional and spiritual support according to their needs. CQUIN Measure 1 Performance Summary 2012/13 saw 100% of all bereaved relatives or significant partners being offered the opportunity to access structured bereavement support. 73 new adults joined the bereavement support program throughout the year ensuring that service was delivered to 467 people in total. In addition 16 new children joined the children’s bereavement program extending this service to 39 children in total. This has been extended to include two group sessions to allow quality and demand to be met. Adults: Of those leaving bereavement services 100% of people were offered the opportunity to participate in the bereavement support surveys. Of these people 55% responded and of these responses 89% demonstrated a positive experience. Children’s bereavement support surveys were completed in Q4 by 100% of children, parents and guardians who attended the groups. These showed an overall positive experience. (Lichert scaling system used as measurement tool) CQUIN Measure 2 NHS Patient Safety Thermometer CQUIN Measure 3 Patient Carer and Stakeholder Experience Collection and submission of data on patient harms using the National Patient Safety Thermometer. To measure, monitor and improve patient, carer and stakeholder experience via near time experience surveys across all Hospice services. From July 2012, survey all relevant in­patients on a monthly basis focusing on patient harm: ­ falls; ­ pressure ulcers; ­ catheter associated urinary tract infections. Submit data on a monthly basis to the NHS Information Centre. www.hscic.gov.uk/thermometer CQUIN Measure 2 Performance Summary The Clinical Services Director (CQUIN lead) and the Data Analyst (Data Lead for Safety Thermometer) continue to drive forward the principles of Harm Free Care to ensure the Hospice has a comprehensive understanding of the safety thermometer tool and the CQUIN requirements. All staff have been fully briefed and a nominated lead for each clinical area has been identified. The nominated lead is responsible for co­ordinating data collection and submission (via the data analyst) each month. Although no national minimum is set for % achievement of Harm Free Care it is important to note that although measured across small numbers, the Hospice continues to achieve a very high standard. With 92% Harm Free Care recorded across the year. Progression on data collection and collation has been extremely positive and in turn has led to additional measurements being added locally to the tool to allow a broader understanding and assurance of how Harm Free Care is achieved. Achievement against this additional data was recorded in Quarters 3 and 4 at 83%. This demonstrates positive attitudes to individual patient risk assessment and re­assessment in relation to pressure sores, falls, moving and handling and nutritional screening. The information is also being collected weekly to allow consistency and continuity in audit processes. The provider will evidence that they have offered all patients, carers and family members the opportunity to participate in service experience surveys (target 100% offered) This will be offered to all patients following discharge and to family members following bereavement. The survey response rate will be a minimum of 40%. Improvement trajectories to be agreed with the commissioner. CQUIN Measure 3 Performance Summary Patient experience surveys have been carried out across the Inpatient Unit in quarters 1 and 2. Quarter 3 was the first time the survey was rolled out to include the Hospice Community Team. Throughout the year data has been collated and analysed as follows: Of those leaving services 100% of people were offered the opportunity to participate in the experience survey. Of these people 76% responded and of these responses 97% demonstrated a positive experience. (Response rates have fluctuated across the three months in quarter 4, with some forms still expected to be returned in Q1 of the new year). Feedback has been used to inform the need for service changes and review and to demonstrate compliance and provide information to other service users on our quality of service provision. The Day Hospice survey was completed in quarter 4 with 57 forms given out to Day Hospice attendees. 84% of patients and carers returned their forms and 96% demonstrated a strong positive experience. (Lichert scaling system used as measurement tool) Hospice information can be accessed via the NHS Information Centre website. www.hscic.gov.uk/thermometer 18 3.6 What others say about us As a learning organisation, Rotherham Hospice is keen to engage all service users and key stakeholders in feedback to support service improvement and increase quality and experience. With this in mind the organisation has robust networking systems in place with local strategic partners to ensure we receive feedback which can facilitate service improvement by strengthening what we do well and learning from situations where we did not meet expectation. The Hospice also has a number of working groups which include representation from external organisations. These include our Equality and Diversity Group, PLACE assessment Group and our Nutrition and Catering Forum. Finally, feedback is sought in the form of service user satisfaction surveys and stakeholder surveys (community pilot only). These surveys have helped us to understand how our services are perceived by the people who use them. Learning form the comments made has enabled us to acknowledge where shortfalls in service provision exist and make positive service changes to address these. This year Rotherham Hospice also participated in the “Postcard Campaign” led by the Commission for Hospice Care. This asked people who had experienced Hospice services to say “What was different about hospice care”? and “What if anything was special about the care and support received”? All of the respondents gave very poignant comments which reinforce the culture of the Hospice. Some of these comments express not only care and compassion at times of sadness, but also praise the overall uplifting feel of the Hospice environment. A selection of these comments are listed below: C “Good hospitality. Gives back confidence. Builds moral. Friendly”. “They take the time, to listen and speak to me. My needs were met 100%”. “My needs are met without me having to ask for help.” 19 3.7 Care Quality Commission (CQC) Rotherham Hospice is required to register with the Care Quality Commission and its current registration status is approved and unconditional. Rotherham Hospice has no conditions on registration and registration is approved as follows: Rotherham Hospice has not participated in any special reviews or investigations by the CQC during 2012/13. The Care Quality Commission has not taken enforcement action against Rotherham Hospice during the period April 2012­March 2013. Rotherham Hospice Trust is registered in respect of 4 Regulated Activities: Throughout 2012/13 Rotherham Hospice undertook a self­assessment of its compliance against all 28 CQC domains and in turn the Health and Social Care Act 2008 and Care Quality Commission Registration Regulations 2009. This enabled the organisation to understand its level of compliance and identify any areas for further improvement which will be implemented through the governance framework. • Accommodation for persons who require nursing or personal care • Diagnostic and screening procedures • Transport services, triage and medical advice provided remotely • Treatment of disease, disorder or injury Regulation also states that: • Services can only be provided to people 18 years of age and over • A maximum number of 14 patients can reside in the Inpatient Unit at any one time As part of an unannounced CQC compliance inspection on Monday 13th May 2013, the following standards were considered and outcomes achieved: Consent to care and treatment (Outcome 2) √ Met this standard with very positive feedback Meeting nutritional needs (Outcome 5) √ Met this standard with very positive feedback Infection prevention and control (Outcome 8) √ Met this standard with very positive feedback Requirements relating to workers (Outcome 12) √ Met this standard with very positive feedback Complaints (Outcome 17) √ Met this standard with very positive feedback Records (Outcome 21) √ Met this standard with very positive feedback 20 3.8 Data Quality Rotherham Hospice did not submit records during 2012/13 to the Secondary Users Service for inclusion in the Hospital Episode Statistics which are included in the latest published data. This is due to ineligibility to take part in the scheme. However, in the absence of this we have a local system in place for monitoring the quality of data and the use of the electronic Patient Information system, SystmOne. This provides monthly information on data quality and ensures accuracy in recording and reporting mechanisms. Monthly data quality performance for 2012/13 is as follows: Rotherham Hospice score for 2012/13 for Information Quality and Records Management assessed using the Information Governance Toolkit was 66% (Satisfactory at level ll). Throughout 2012/13 the Hospice has put in place the relevant framework documentation, polices, training, and security infrastructure to be able to demonstrate an attainment of level 2 compliance with NHS Connecting for Health’s, Information Governance standards. This ensures we provide service users, key stakeholders, staff and others with an interest in the organisation, with the confidence that their information is dealt with efficiently, safely and securely. Apr­12 May­12 Jun­12 Jul­12 Aug­12 Sep­12 92.5% 94.4% 94.8% 94.64% 93.22% 93.34% Oct­12 Nov­12 Dec­12 Jan­13 Feb­13 Mar­13 96.12% 95.74% 95.88% 95.41% 93.28% 94.93% Commissioning data quality targets stand at 90%. Therefore compliance has been consistently achieved throughout the year. 3.10 Clinical Coding Error Rate Rotherham Hospice was not subject to the Audit Commissions, Payment by results clinical coding audit during 2012/13 21 3.9 Information Governance Toolkit attainment levels Part 4 Supporting Statements 4.2 Rotherham Clinical Commissioning Group (Rotherham CCG) “The hospice report is an encouraging read. It records the success the hospice has had in the past year in its continual drive to improve services for Rotherham residents as they enter the last days of their lives. It is gratifying to see how many positive comments the hospice receives in questionnaires, and yet does not become complacent.The response to the patients opinions of the catering services are testament to this.The partnership working between the hospice and the CCG is proving fruitful and rewarding.The pilot is already delivering an improved level of service in difficult times.This is only possible with staff who are committed and professional, and the encouragement they receive from the organisation is evident. We look forward to a continuation of this work in the coming year.” Dr Russell Brynes GP EOLC Commissioning Lead Rotherham CCG 4.3 Rotherham Health and Wellbeing Board “On behalf of the Health & Wellbeing Board, I strongly support the work of the Hospice in caring for the people of Rotherham. We strongly endorse and support the high quality of care provided by the Hospice and believe this report fairly represents the achievements of the Hospice.” Dr John Radford Director of Public Health On behalf of the H&WBB www.rotherhamhospice.org.uk 22 Rotherham Hospice, Broom Road Rotherham, South Yorkshire S60 2SW Tel: 01709 308900 www.rotherhamhospice.org.uk A Registered Charity. A Company Limited by Guarantee. Registered Address: Broom Road, Rotherham, S60 2SW Company Registration No: 2234222 Registered Charity No: 700356 Our care places the patient at the centre of everything we do.